The book was released after the completion of the film. They worked with a group of CF patients during the filming process one of which was Claire Wineland, a stunning young lady and her out look on life and just her soul are completely indescribable! she unfortunately passed away in September last year from complications of a double lung transplant and the main female character reminds me so much of the person she was and to me that is so touching. They also had a CF nurse on set with them everyday. It's film so expect it to be dramatised and over exaggerated. I personally can not wait to see the film, it's going to be super bitter sweet Edit: ooh ooh ooh! Also! The guys that wrote the original screen play colabed with the author of the book!
Oh my gosh, i was so heartbroken when Claire passed. I had watched her on youtube for a while and i cried when i heard of her passing. it was really quite sad, as she was such a beautiful person inside and out. I just hope that, wherever she is now depending on everyone's different beliefs, she is doing well and still shining brightly
It's so awesome that you make videos about this! There's a girl in my school with gastroparesis and I didn't understand how difficult it is for her until I watched some of your videos! Thank you so much! ❤️
Amy, I have to do a complete colon cleanse every 4 days. It is awful on my system. I have Severe Gastroperesis and Chronic Idiopathic Constipation. I was diagnosed in July, 2018 and have been on total liquids since then. You are a real inspiration to me.
I can understand dreading a procedure, but I am always wanting to get things I am dreading over with so I can move on. I just hate the feeling of not knowing what to expect and want to just get back to normal as quickly as possible. Hopefully when the time comes, it isn't nearly as bad as you were thinking. Sending lots of love your way!!!
I just wanna throw it out there for others!! That liquid prep stuff was impossible for me and then I was offered a tablet version called diacol. It was so much freaking easier!! Trust me look it up or ask your doctor. It kills me that people don't know about this and are always forced to take that god awful prep shit
a little more info, its a prep where you take i think it was 20 tablets the night before and 15 in the morning ( it was last may so I'm a little unsure on specifics) and with it you have to drink ALOT of water like you're given an amount you have to drink as well as keeping up other fluids. The way its set up worked so well. i didn't even finish the next mornings prep and was still fine for my test. The liquid prep was what was standing between me and a diagnosis. So i really hope this can make a difference for someone :)
Here in Holland, I can order the hand sanitizer liquid with my normal catheter or ostomy material. I agree, it’s amazing and smells great! Also, I just ordered the book, it’ll get here on Monday and I hope I’ll enjoy it as much as you!
I have a few stuffed animals at my parents' home where I put insulin pump sites in them back in middle school. It's definitely fun to have stuffed animals with the same medical devices as you.
For a few minutes while I was watching this video I forgot you had EDS. When you went to scratch your side your arm bent in an unusual way and I was like owwww!! But then my brain caught up and I remembered you have EDS and you can bend in ways like that! 😅
Amy; my husband had many colonoscopies due to familial polyps and here in Canada we definitely DID purchase the laxative prep at the pharmacy without a prescription. Of course the Dr. told us the name, amount etc of the product he needed to have! Good luck whenever you do go for your scope. ❤️🇨🇦❤️
New subscriber here, I have Celiac disease and I had to get a scope done for my diagnosis and it was so weird I was 9 years old and I was crying and freaking out before they put my in the operating room. I am very luck I was diagnosed when I was cause I would be skinner then I am now and I am SKINNY
Those watermelon ice lollies look good! I've never seen those here. I like that name too, because, in the states, we usually just call them popsicles which doesn't exactly make sense now that I think about it LOL
Hey just a few tips about doing preps when you have motility issues and a J tube (NJ, GJ, or straight J) of some sort. There are a few options to preps. The most common is golytely which is a gallon, so a ton of volume, the other miralax, which is a ton of volume as well so not well suited for people who have issues with volume. There are other options not commonly used called Suprep (used it when I got my ileostomy since I have volume issues). It is literally 2 eight once bottles (475 ml). Versus Golytely which is 128 ounces or the Miralax which is 64 ounces. Suprep is by far the best. Because it is so low volume it is way easier to intake, I would also ask about starting the prep two or three days before the procedure to account for you motility issues. Hopefuly Australia has access to this prep. Just saying all of this to give some things you can ask about to your doctors and see how they feel about it
When I get mine changed I’m fine. When I had the original surgery I was screaming in pain. Though it’s done as outpatient (I was admitted), usually and I guess some people can walk after. I couldn’t even sit up! The book came out first in 2018.
I just got the audio book of Five Feet Apart.. It says that the book is based on the movie and they were written along side the movie.. But I am off to start the book!!! Sending you lots of love from Oregon!!!
Hey beautiful, you actually can buy the colonoscopy prep at the chemist without a script. Picoprep is more gentle then coloprep etc. But it doesn't change the issue of how to get through it without putting you at greater risk. Also my last colonoscopy, I know they had to do more manual cleanout because the prep hadn't been very effective. *hugs* xoxox
ive kind of realised ive never really commented before even though i watch all your videos within minutes or hours of you putting them out :P haha i just Love how down to earth you are, keep strong
I've done two Colonoscopies now. And your gastroenterologist will tell you what type of prep you need and how much prep you need but they won't write out a script per se. You then walk in to your pharmacy and tell them what prep and how much you need. The thing I don't like about preparing for a colonoscopy is 1 you get no sleep. You're up and down all night going to the toilet. 2 having to force the prep drink down. I didn't mind the taste but you feel so bloated after a while, you just don't want to drink anything. And 3 toilet paper feels like sandpaper and it doesn't matter how soft the toilet paper is. But in your experience would be completely different ☮️⚛️
Looked up the release for " five feet apart" movie and in my area of the US it is on March 15. I have seen trailers and commercials for it and it looks really good. I think it will be a very emotional movie. Have a good weekend.
Love you and your strength ! I also loved watching you and seeing how much stuff is so different compared to here in the U.S.A. Here you can buy all of your colonoscopy prep stuff just over the counter at your local store that's what I had to do for mine I had an August. I also love seeing your nice warm sunshine ! I live in North Central Minnesota and we have tons of snow and cold it's been a long winter !
@@eafj90 its amazing the differences between countries and their health care. I'm always interested in the different procedures and products. Wish you well Amy, and anyone dealing with these sorts of issues 😘
I love you!!! I hope I get to meet you one day❤️ you’re such a sweet person and so strong!❤️❤️❤️❤️❤️ I have a doll made with my ileostomy and my other scars and I feel like they are so amazing they should do more dolls like that!
4theloveofcomedy13 wow really! Most of those are over the counter here but there not used as colonoscopy prep, the prep they use you need a prescription for 😅
@@amyslife4457 interesting! Procedures can definitely different between countries, so there could be something extra they do or dont have available otc.. i work for Walgreens pharmacy in the US so i do see quite a bit of prep sold otc🤗 idk about availability where youre at🤔🤔
I literally laughed so hard at toms jokes and almost spat my Carmen’s bar all over me and now I really wanna watch or read five feet apart is it movie that would suit a 13 year old?? I love your videos ❤️❤️❤️
Amy I wanted to see if you follow Being Dusty-Mae The mom and daughter Dusty both have your same conditions, and figured maybe they cold relate to you or Visa versa
Was it a surgery or just replacing the g tube button which technically some people do at home because it’s just a short tube vs the jtube (well unless the jtube is put into the surgery moved j.) And the book was made after the movie according to cyztic1 he actually is waiting to read the book after the movie cuz of that lol 😂
It isn’t as scary as you might think and you could even have a valve on it not a bag. Love your videos so much! I had my catheter at your age and it was the best thing I ever did!
The book was released after the completion of the film. They worked with a group of CF patients during the filming process one of which was Claire Wineland, a stunning young lady and her out look on life and just her soul are completely indescribable! she unfortunately passed away in September last year from complications of a double lung transplant and the main female character reminds me so much of the person she was and to me that is so touching. They also had a CF nurse on set with them everyday. It's film so expect it to be dramatised and over exaggerated. I personally can not wait to see the film, it's going to be super bitter sweet
Edit: ooh ooh ooh! Also! The guys that wrote the original screen play colabed with the author of the book!
Oh my gosh, i was so heartbroken when Claire passed. I had watched her on youtube for a while and i cried when i heard of her passing. it was really quite sad, as she was such a beautiful person inside and out. I just hope that, wherever she is now depending on everyone's different beliefs, she is doing well and still shining brightly
It's so awesome that you make videos about this! There's a girl in my school with gastroparesis and I didn't understand how difficult it is for her until I watched some of your videos! Thank you so much! ❤️
I know being chronically ill brings so many obstacles, but I just watched you scratch your back and realized you can easily reach all the spots.
Amy, I have to do a complete colon cleanse every 4 days. It is awful on my system. I have Severe Gastroperesis and Chronic Idiopathic Constipation. I was diagnosed in July, 2018 and have been on total liquids since then. You are a real inspiration to me.
Most colon preps like CitroMag, PegLyte, Co-Lyte and Go-Lytely are actually sold over the counter (at least in Canada and the US)
I can understand dreading a procedure, but I am always wanting to get things I am dreading over with so I can move on. I just hate the feeling of not knowing what to expect and want to just get back to normal as quickly as possible. Hopefully when the time comes, it isn't nearly as bad as you were thinking. Sending lots of love your way!!!
I just wanna throw it out there for others!! That liquid prep stuff was impossible for me and then I was offered a tablet version called diacol. It was so much freaking easier!! Trust me look it up or ask your doctor. It kills me that people don't know about this and are always forced to take that god awful prep shit
Oh my gosh I am so asking for that tablet next time!
Thanks! Because the prep drink tastes so awful it makes me sick and it makes me so dehydrated that my body can't cope
Where I am we have to take the tablet and wait for it to kick in and then drink the other stuff on top of the tablet. It's so horrible
@@tinkerpudge123 that so awful :(
a little more info, its a prep where you take i think it was 20 tablets the night before and 15 in the morning ( it was last may so I'm a little unsure on specifics) and with it you have to drink ALOT of water like you're given an amount you have to drink as well as keeping up other fluids. The way its set up worked so well. i didn't even finish the next mornings prep and was still fine for my test. The liquid prep was what was standing between me and a diagnosis. So i really hope this can make a difference for someone :)
Here in Holland, I can order the hand sanitizer liquid with my normal catheter or ostomy material. I agree, it’s amazing and smells great! Also, I just ordered the book, it’ll get here on Monday and I hope I’ll enjoy it as much as you!
I have a few stuffed animals at my parents' home where I put insulin pump sites in them back in middle school. It's definitely fun to have stuffed animals with the same medical devices as you.
For a few minutes while I was watching this video I forgot you had EDS. When you went to scratch your side your arm bent in an unusual way and I was like owwww!! But then my brain caught up and I remembered you have EDS and you can bend in ways like that! 😅
Amy; my husband had many colonoscopies due to familial polyps and here in Canada we definitely DID purchase the laxative prep at the pharmacy without a prescription. Of course the Dr. told us the name, amount etc of the product he needed to have! Good luck whenever you do go for your scope. ❤️🇨🇦❤️
Can you please do a main channel video of you doing a spread in your bullet journal, like talk through with your ideas and explain how it's going.
with in the span of hours i read Five Feet Apart. completely understand that if you picked it up you wouldn't put it down, cause i didn't
It's so frustrating having a procedure cancelled my surgery has been postponed twice within 3 weeks
New subscriber here, I have Celiac disease and I had to get a scope done for my diagnosis and it was so weird I was 9 years old and I was crying and freaking out before they put my in the operating room. I am very luck I was diagnosed when I was cause I would be skinner then I am now and I am SKINNY
Those watermelon ice lollies look good! I've never seen those here. I like that name too, because, in the states, we usually just call them popsicles which doesn't exactly make sense now that I think about it LOL
They look like they are from Peters which is an Australian brand so I doubt they would have them in the States.
Book was after film. Basically they figured it'd be a good lead up to the film being released which I think is next month...💚🙏
Hey just a few tips about doing preps when you have motility issues and a J tube (NJ, GJ, or straight J) of some sort. There are a few options to preps. The most common is golytely which is a gallon, so a ton of volume, the other miralax, which is a ton of volume as well so not well suited for people who have issues with volume. There are other options not commonly used called Suprep (used it when I got my ileostomy since I have volume issues). It is literally 2 eight once bottles (475 ml). Versus Golytely which is 128 ounces or the Miralax which is 64 ounces. Suprep is by far the best. Because it is so low volume it is way easier to intake, I would also ask about starting the prep two or three days before the procedure to account for you motility issues. Hopefuly Australia has access to this prep. Just saying all of this to give some things you can ask about to your doctors and see how they feel about it
Defiantly going to try and get my hands on that book
You can buy picoprep over the counter at pharmacy and volume is much less-
That eye pun actually made me laugh out loud. Yes Tom, eye see what you did there.
When I get mine changed I’m fine. When I had the original surgery I was screaming in pain. Though it’s done as outpatient (I was admitted), usually and I guess some people can walk after. I couldn’t even sit up!
The book came out first in 2018.
i love the teddy bear thing! its so cute!
I had scopes done. Usually you drink a laxative from the store for two days and than you get a script and go to the chemist.
I just got the audio book of Five Feet Apart.. It says that the book is based on the movie and they were written along side the movie.. But I am off to start the book!!! Sending you lots of love from Oregon!!!
Hey beautiful, you actually can buy the colonoscopy prep at the chemist without a script. Picoprep is more gentle then coloprep etc. But it doesn't change the issue of how to get through it without putting you at greater risk. Also my last colonoscopy, I know they had to do more manual cleanout because the prep hadn't been very effective. *hugs* xoxox
ive kind of realised ive never really commented before even though i watch all your videos within minutes or hours of you putting them out :P haha i just Love how down to earth you are, keep strong
Girl if we lived in the same town we sure would be really good friends because I love the harry potter books and movies.
I have had scopes done and I have always bought mine over the counter at the pharmacy. Do you have to use a specific one because of your GP.
Tom’s 🦵 leg🤣🤣🤣🤣🤣🤣🤣🤣🤣
I've done two Colonoscopies now. And your gastroenterologist will tell you what type of prep you need and how much prep you need but they won't write out a script per se. You then walk in to your pharmacy and tell them what prep and how much you need.
The thing I don't like about preparing for a colonoscopy is 1 you get no sleep. You're up and down all night going to the toilet. 2 having to force the prep drink down. I didn't mind the taste but you feel so bloated after a while, you just don't want to drink anything. And 3 toilet paper feels like sandpaper and it doesn't matter how soft the toilet paper is.
But in your experience would be completely different ☮️⚛️
Is this book available in the US? Id like to read it but unsure if its sold here. Can someone please let me know?
Looked up the release for " five feet apart" movie and in my area of the US it is on March 15. I have seen trailers and commercials for it and it looks really good. I think it will be a very emotional movie. Have a good weekend.
Love you and your strength ! I also loved watching you and seeing how much stuff is so different compared to here in the U.S.A. Here you can buy all of your colonoscopy prep stuff just over the counter at your local store that's what I had to do for mine I had an August. I also love seeing your nice warm sunshine ! I live in North Central Minnesota and we have tons of snow and cold it's been a long winter !
Five Feet Apart the film was made first and the book was an after thought.
Here in the United States we don't need a prescription for Dulcolax and Meralax, which is what we have to buy for our colonoscopy prep.
Dawn Barnette picoprep is over the counter here (Australia)
@@eafj90 its amazing the differences between countries and their health care. I'm always interested in the different procedures and products. Wish you well Amy, and anyone dealing with these sorts of issues 😘
I love you!!! I hope I get to meet you one day❤️ you’re such a sweet person and so strong!❤️❤️❤️❤️❤️ I have a doll made with my ileostomy and my other scars and I feel like they are so amazing they should do more dolls like that!
I want to read that book😉 wonder where I could find it in new york😮 you and Tom are so cute. Tom makes me laugh .. love ya amy
I was just watching vlogs and actually saw an ad for the movie 5 feet apart coming out on march 15th in the us and thought of you!!
Love you Amy❤ you're an inspiration!!
you have inspired me I have a diabetes and diverticulitis I have to watch what I eat too but you are a really strong person and I love your channel
You can actually buy colonoscopy preps otc--its just miralax, bisacodyl, and magnesium citrate--at least in the US these are all otc(:
4theloveofcomedy13 wow really! Most of those are over the counter here but there not used as colonoscopy prep, the prep they use you need a prescription for 😅
@@amyslife4457 interesting! Procedures can definitely different between countries, so there could be something extra they do or dont have available otc.. i work for Walgreens pharmacy in the US so i do see quite a bit of prep sold otc🤗 idk about availability where youre at🤔🤔
Love y'all Amy and Tom always makes me night even when I'm having a bad night yall make it so much better ❤❤❤❤
The ad I watched was longer than the video... What a strange thing cx
the book was written after the film
I literally laughed so hard at toms jokes and almost spat my Carmen’s bar all over me and now I really wanna watch or read five feet apart is it movie that would suit a 13 year old??
I love your videos ❤️❤️❤️
_lilly06_ yes I think so! ❤️
Amy's Life thanks I’m currently in hospital and need a nice new movie to watch and five feet apart sounded like something I’d get into
Love u & sending good vibes from New Hampshire 😍😍❤💙💚💜
Great you use your time reading good books Amy!
Haven’t even watched yet. I just love you and hope you are well💛
I love your vlogs Amy! I really like the long ones especially!
I hope you have a good day seeing this
Nice video content today Amy and keep up the great work on your work on youtube 👍👍👋👋👌👌😊😊.......
I hope your surgery goes well♥️
"what's with the leg?!"
" it's not mine..."
Omg I hollered haha haha.
Edited to add:
I love you sweet girl. We miss you already.
what's the movie for Five Feet Under?
Amy I wanted to see if you follow Being Dusty-Mae The mom and daughter Dusty both have your same conditions, and figured maybe they cold relate to you or Visa versa
They live in Australia as well
Love from India ❤
Omg i love you i am sooorrry i am very late 22 hours i was busy today this is the first time i got on my computer. But love u!!!
I just sent you and Tom a dm on Twitter. Have a great night!
What is the book about xxx
Love u 2 amy. Can u get that book on audible
nicola Reay I think so! Xx
Was it a surgery or just replacing the g tube button which technically some people do at home because it’s just a short tube vs the jtube (well unless the jtube is put into the surgery moved j.)
And the book was made after the movie according to cyztic1 he actually is waiting to read the book after the movie cuz of that lol 😂
Do u plan on watching the movie on 5 feet apart?
Layla Thomas i do yes xx
Love from South Africa
I LOVE YOU
Good mornin ms.amylee(behby❤️💐)iloveyou❤️
What brand is those ice lollie 😍
Jay Considine there called frosty fruits xx
Would you ever consider a catheter via your tummy instead of the intimitent type?
Anika Baddeley noooooo! I’m way to scared 😅 I’ll catch as long as physically possible! 😂
It isn’t as scary as you might think and you could even have a valve on it not a bag. Love your videos so much! I had my catheter at your age and it was the best thing I ever did!
I know at least two people that got sepsis from that, but obviously it’s different for everyone and doesn‘t need to happen.
But how heavy on romance this book is? I'm not a fan of lovey-dovey things, so I've been staying away from it...
💜
Channel name: Iz so EDS
Hey amy
Tom is funny 😆
You are beautiful
You are amazing! Where do you live- you sound English but it doesn’t look like England?
Amy is from Manchester, England but lives in Perth, Australia
Oh thank you!!
Aye! LOL
Good one tom..lol
+1 to your wish to get another UA-cam button:) subscribed
Ate you British or Australian
Boozie Bear British living in OZ xx
Amy's Life Omg thanks for replying ❤️❤️
like 212
I snapped u would.. Need to speak to you!IT is 1:39 Am here I know it about 4pm there
Thank you so much for being you🧡 I would love to be your friend!