Chronic Illness TikTok Compilation 5
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- Опубліковано 9 вер 2024
- Chronic Illness TikTok Compilation 5
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Chronic illness is such a misunderstood thing, and I wish that it's the kind of thing discussed in schools to promote more understanding and empathy.
yea
I agree. I have a chronic illness and not alot of people at school understand how it works. Sometimes i can be exited or loud but be exausted inside and then get called a liar for it. I wish schools would educate a bit better.
I never understood chronic illnesses what r they
@@Reckyyy. life-long illness or a illness that is with you for a year or years, such as, heart diseases (I have a heart disease) cancer, and more
I am the only diabetic in the school so in November ( diabetes awareness month) we put up poster and give this year I have out braclets 😊
Social anxiety combined with tics must suck. I can imagine its a cycle, where you're anxious, so you tic, which makes you more anxious, which makes you tic more, etc.
My tics are triggered by anxiety, but doing the tics makes my anxiety worse, it really is a vicious cycle
I have tourettes and it's the worst. I try to look calm but my tics make it look like my neck is trying to throw my head across the room 😅😭
Omg that is literally me I have a tic disorder social anxiety and health anxiety and it sucks I’m always ticing and it’s very rare to see me not
It does I hate it
@@someonesomewhere1100 my doctor literally says it just anxiety but I have verbal tics... 😀
The girl talking about our school system is a genius!!! I’m totally with her. Attendance is a BS system.
I know, my school gives out awards for it but i obviously dont get any for not being there. But atendance works for the whole class so when they say “oh someone just needed to be here for one more day and we could have gotten the prize” it reallt annoys me because its not like its my fault and same goes with other people with illneses
My class blamed me
@@arny625 same tbh
I go through virtual, and attendance still matters way too much.
You weren't there for the live class? Guess you'll have to answer the questions on each page even though it worsens your already severe anxiety.
You have ADHD and OCD causing you to not be able to pay attention, especially when one of your teachers won't shut up, and also feel the need to perfect every assignment? No, we can't switch your teacher or give you more time.
Our mandated twice a year assessments that don't actually help you or us stress you out to the point of tears, panic attacks, and unhealthy amounts of coffee to not pass out? No, you can't get out of them.
Our styles of teaching have differed from past years to cater to a specific type of student making it so you can't figure out what going on and make it so much harder for you to learn? Yeah, no. We won't change it back. We pander to our favorite students too much.
You have severe insomnia? Yeah, you're gonna have an 8 am class no matter what. And, here me out, it's gonna have to be one of your two least favorite classes of the year! Doesn't that sound fun!
TW☣️
You're now at risk for an eating disorder because you have back to back class from 8 am to noon and have barely an appetite because you're deprived of food? Sorry. Can't do anything.
You're grandmother passed away less then a month ago and you almost threw up anytime you tried to eat or even thought about doing school work so you didn't do it for a week? Sorry, we can't offer anything.
TW Over! :) ☣️
Geez... I gotta stop ranting-
My parents have almost gone to jail multiple times because of me being unable to attend school due to my severe anxiety and depression leaving me bedridden and unable to walk it’s bullshit even after we explained they still almost sent them to jail when I have a 504 plan
Shout out to all the people disabilities no one could imagine what you go through you're so brave and strong. 🤗🤗🤗🥰
Thank you so much I have type 1 diabetes and may I tell EVERYONE here if you like rollercoasters I can NOT recommend Diabetes enough btw to everyone out there who is all “weLl My dOg HAs diaBETes SO I knOw what yoU SHouLd bE EatINg” shut.up Like this is a real problem everyone relating their grandmas who have type 2 to me with type 1!
I have a chronic migraine disorder, pcos, and several mental illness and it’s good to see that others can be strong too.
Honestly, as someone with several diagnosed illnesses, it gets really difficult. One of mine is a degenerative + chronic pain disorder and it has been flaring up more and more lately. I struggle to walk more than half the days now. The fate for a lot of people with it is being wheelchair bound, which terrifies me because I am a very active person and have already been told I will probably be in a wheelchair by 25(I am 21). Watching compilations like these does make it easier. It reminds me that I’m not the only person suffering from illnesses out there, and it’s comforting.
I have autism , ADHD , ADD , general anxiety disorder , ptsd , irritable bowel syndrome , minor food and outdoor allergies. I’m in college doing pretty good studying special education and almost in my junior year.
I have un-medically-diagnosed autism, (possible adhd idk ima ask a therapist) anxiety disorder, ptsd, depression, and I'm in middle school, I don't know how I am doing this, and I also have heart and lung disease, and several more issues
This gives me flashbacks when I had a feeding tube- It really sucked because I would throw up every morning and after about a week the tube would come out of my mouth. So I had to get a new tube almost every week.
Super interesting, my son has a feeding tube for his chronic kidney disease and he vomits every morning also. The drs say they can't find a cause. But luckily he has a g tube so it doesn't come out from vomiting. Sorry you had to deal with that.
If its not bothering you, may i learn why you needed feeding tube. Just to educate myself.
I know that’s what I had to deal with
@@kennethmccormik6054 so feeding tubes can be used in many circumstances. They are usually used if you are unable to take food orally because the tube allows the nutrients to go straight to the stomach. The tubes can be used for people with eating disorders or very ill immune systems. Hope this helped😊
@@iflxssyi6898 That was really informative thanks but i have couple more questions, so if you drink something or place the tube in, same thing will be going to your stomach just drinking takes a long way.
Some of the girl were drinking a special juice ( i dont know its name but i dont intend to offend)
If they dont have some kind of ill immune why they dont drink it, is it because it tastes bad? I understand that these things have a really bad taste but it should be better to just drink it than putting a tube in nose, tube must be really uncorfortable especially putting process.
Props to those who are out there fighting these illnesses and or dealing with them everyday of their lives for every minute of every hour of every week. People who are dealing with these are literally amazing people to live through that.❤️❤️❤️
I'm chronically ill. Thanks.
Hope you can live your life well :D
The first gurl who is allergic to water makes me feel lucky. Really all of these do but I can relate to her the most, I have a mild allergy to water, I just get hives and welts and kinda stings, but I couldn’t imagine being in that much of daily pain
Can you explain more on this allergy, please? I've heard about it but I'm not sure if I understand it all. Sorry if I sound rude, I don't mean to, I'm just trying to get educated ^^ you don't have to answer either btw
@@love_eros5289 the skin has a reaction and causes pain and can feel like burning
Imagine going to school with a feeding tube and they take it away. 😭 I hope the class will help. Because school usually forces you to eat something. And they won't let you use your feeding tube. That would suck, and when they call the parent they'll be sorry! Or they'll kick you out idk
Schools don’t take away your feeding tube! It’s a medical necessity and they aren’t allowed to do anything to it! You can use it at school just like you do at home.
That’s literally illegal??
Nagem Moclah yes it would be considered depriving the child of food
My school tried taking away my walker
@@arny625 if it isn't rude, may I know the entire story of them trying to take away your walker? Plus I almost had my walker taken away before
I have fibromyalgia and it kicks my ass everyday, you guys with even more severe chronic illnesses are strong as hell! 🥺 I can't even make it a day with a flare..
Thank you for these! It really helps me learn a lot as someone who doesn’t face these challenges. I have two friends that have Juvenile myositis and I think it’s important to try to understand what they go through everyday. Everyone in the video and in the comments is so strong and inspiring. I truly wish the absolute best for all of you. ❤️❤️
I’m so happy theirs some one with torretts
@Alexandra Connolly does it matter? What is with people like u like oml
@@lunar6425 jeez no need to be rude :|
Omg why would you say something like that your rude
@@Thatweirdkid_207 she was referring to how she related to the clip. She was not being rude at all. OMG ur so stupid.
@@jessicacat9549 who’s bri
Most of the people in my grade think that having a chronic illness means being weird and mentally wrong like a maniac but it's not :/
i’m so glad my diabetes and rheumatoid arthritis don’t require this amount of care that most of these do bc i would definitely forget stuff and die.
Wrong. I’ve had chronic rheumatoid arthritis pain my entire life. I had to move from Chicago to Florida because my body can’t handle temperatures under 76 degrees. I feel like I’m freezing to death. My family run errands for me when Winter hits Florida. Florida! I’m on drip biologics just so I can move and steroids to keep swelling down. When you can’t wear shoes because your feet are swollen and your face swells up like a puffer, I’ll take the damn tube. I sleep with a weighted blanket and on heated gel packs everyday. Again, I’ll take the tube.
@@LeeHanHart i’m sorry your RA affects you like this
I have jia too!!!!! I am considdered quite severe though
I also also have sever athsma and have both celiac desise and hypothyroidsm.
Long story shot, ive got 2 autoimmune dissorders, my body ahtes me
@@Charlie-yq8hu may I ask what makes your jia count as severe? I have it too and I'm having a full body flare up, but I have no idea what sort of stage I'm at since it's hard to find info on how jia affects adults like me who didn't grow out of it 😪
@@lillian_space just the amount of joints and i systemic jia as well as polygoarticular jia. This means ot also affects my organs like my heart and lungs.
My friend is type 1 diabetic and she has to see the school nurse 6 times a day and eat a lot of snacks and security guards have taken the snacks that basically keep her alive so to all you security guards out there: SOME PEOPLE NEED THEIR SNACKS SO LET THEM HAVE THEM
3:58 when I was in middle school they had perfect attendance awards one year and I didn’t miss a single day of school, but I left 15 minutes early for a dentist’s appointment one day and that meant I didn’t have perfect attendance. Also the award was given out in front of the whole school, it was really disturbing.
I'm glad these people are pushing through dispite them having their illness it brings me hope seeing them not let obstacles block their way of having a normal life 😄❤️❤️
Omg, I'm actually so happy so see another person with chronic Aquagenic Urticaria (obviously not that they have it just that I'm not alone)
Awh, I feel bad for them 😭
Forgive my ignorance, but are feeding tubes needed if you can't swallow?
The reason for the feeding tube is different for everybody but usually they can swallow but cant get all the nutrition just from eating
@@lillianndelaney781 thank you for answering! Is it something that's temporary at least? 🙏🏻
Such brave people
@@someonesomewhere1100 It can be forever, but if it is forever they mostly make a little tube in you’re skin close to you’re belly. And they put a tube in. But it can be from a week to years to forever.❤️
I have one
@@zoey22860 you're a tough cookie! I'm cheering you on! 🌞
Thanks for giving me entertaining stuff to watch while trying to get rid of nausea 😁
I couldn’t imagine going through this everyday these people are so tough a brave
Thank you! It’s definitely hard at times❤️
these videos are so interesting to me I love watching them to be informed and learn more about illnesses
I find it so heartwarming that these people are showing what they go through and how these type of illnesses are so misunderstood and they set such a good example for others who go through their particular illness🥺🥺
Comments like these mean the world to me, i’m one of the creators in this video and i try so hard to spread awareness and make ppl more comfortable with their medical devices❤️
My teacher has diabetes, in not sure if it’s type 1 or 2, but it’s pretty sad, on the first day of school I saw a patch on the back of her arm with a large band-aid covering it, I thought she had maybe gotten a shot or something, but it was actually covering one of those diabetes tabs you can put on the back of your arm. She still comes to school everyday and lives a normal life.
I’m crying I feel so bad for them
I hate how much it sucks for those who have chronic illnesses that are invisible... I think those people with the tubes can get some sympathy but if you dont people just be like "but you dont look sick, stop being dramatic" and that is sooo annoying!
I just got diagnosed with Crohns disease (a type of chronic illness) and i found myself on these videos. I was hoping to see some videos about it so i feel less lonely. I was wondering if you could add some crohns videos of at least incorporate more types of chronic illnesses. Thank you :)
Hi, welcome to the community! Wishing you all the luck and spoons!
It's good to see everyone is doing fine
Hai, randomly came across these. 34 year old with narcolepsy, sleep apnea, fibromyalgia, sleep paralysis, muscle degenerative disorder, an a slew of other mental issues. One thing i def wanna say please remember not all disabilities are visable. Be kind to others. we are all trying our best to manage through
So, I have a question for people who have those nasal feeding tubes:
How do those feel? Could you also describe how it felt when it was put in?
I’d love to know so I can better understand y’all. Thanks!
Hi, they really hurt when the nurses put them in. Your throat gets really sore and your nose hurts and could bleed. After about a week you don't really feel it as much anymore, m but sometimes if you make a weird mobe it can hurt. When they put it in is is really uncomfortabel. When the tube reaches you throat you will likely gag and they will ask you to take soms sips of water. After it is in you don't really feel the feed or taste it. You can feel when you flush it with cold or warm water. It feels like drinking but you don't swallow any.
Hope this answers some of your questions feel free to aks anything.
💕
@@faizae5966 i have a question why do you use those feeding tube?
sorry if i'm rude
@@pastel_lav Not rude at all! It depends on the condition. There are a lot of reasons why someone may need a feeding tube. I have had 6 in total. My first one was because i unable to drink 3 liters of water in a set period of time for a test. The next 3 where for my crohn's disease. And the last 2 were because i have something called gastroparesis, Wich means that my stomach is partially paralised and i am unable digest the food i was eating, wich caused pain, puking and bloating. There are also different types of feeding tubes, my first 4 were all nasal gastric (it goes from your nose trough your esophagus into you stomach). The last two were nasal jejunal, Wich means it goes from your nose through your esophagus, trough the stomach and into your intestines. But there are lot of diffrent types more and a lot more reasons to have a feeding tube.
Let me know if you want to know some more! ( I can only speak from my experience though!)
💕
@@faizae5966 oh ok thank you for explaining! i appreciate it!!
It hurts the first time, but after that it’s a lot easier to put them in. It’s easier to drink water while putting them in as well, you can do it without water but it’s more uncomfortable that way. Also, if you cry while putting the tube in, the pain is a lot worse.
4:07 I said this and they said just come it’s fine mind you I’d be in the car for 2 hours to go to the hospital for problems and sometimes I can’t get up out of my bed
8:23 man, that really must suck, I have EDS too, it’s not that bad though. Can’t tell you guys all the symptoms I have, because I have many other medical problems that cause EDS symptoms.
I would like to raise epilepsy awareness. Having siezures in public is embarrassing.
4:31 maybe bc more days in school and higher attendance is directly related to higher graduation rates and less trouble with gangs and drugs
Yo the tube goes so far! I didn’t even know what! It would literally like my brain out. It hurt some much just when I got my COVID test. I can’t even imagine the pain she feels when she puts that in
Makes me scared
I've had so many c o v I dtests
Bless your heart for y'all💔🥺
So the people with feeding tubes do they need them from birth or does your stomach stop working over time? If it develops over time what are the symptoms?
Some need them when born some grow in to their illness ☹️
There are sooo many reasons for a feeding tube. My son has one . He has had it since he was 2 months old. He has kidney disease and his kidney doesn't properly process fluid . The fluid goes straight through the kidney and his body doesn't hold on to any of it so he has to use a feeding tube to keep him from constant dehydration. He can eat and drink normally as well. But he needs more fluids than he could possibly consume on his own.
I still don’t know these illness so anyone who can explain this for me that would be great and this video is very good!
My husband has a cholnergenic allergy to cold. When he gets cold or comes.down with the cold virus, he hives and his tongue swells. Our youngest is allergic to insects. I seem to have an allergy to sun. When I go to the beach or get a tan, I get horribly sick, blister. (Sucks, I live in Florida) I keep threatening to move to Alaska.
I have a case of Mild pectus: Pectus excavatum is a condition in which a person's breastbone is sunken into his or her chest. In severe cases, pectus excavatum can look as if the center of the chest has been scooped out, leaving a deep dent. Its dangerous to have severe Pectus, To fix it you have to Sit with a vaccum (its a sucction cup sucking your bones back to place) for 2 hours everyday for 2 years and you also have to workout everyday till your 18 so it doesnt sink back down Female vaccums are 500 hundred dollars and males are 40-150 and your bones seals at 18 and your bones can be more damaged if you start before 12 so you have to start your pectum routine at 12 and end at 18 to be normal
I had a surgery. They put a bar in that popped the sternum out so it was flat. They took the bar out after 2 ½ years. Now my sternum looks normal
To anyone who has or has had a feeding tube, what does it feel like when using it or when the fluids go down?
I have two feeding tube both are surgical tubes one that goes to my stomach and one to my intestines. The one that goes to my intestines I can't feel anything. But I can feel the one that goes into my stomach and some times can taste it it just feels like liquid going down .
Cold
3:28 that was a big fricken tube that she put down her nose I can't even imagine the weird feeling/pain
Hey for the big bags & stands w the nose feeding tube, is that only for people w chronic illnesses and stuff or can it be for people with eating disorders as well
I think people with eds could need one too if it gets really bad (correct me if I'm wrong^^)
I got you to 4.3k likesss
Okay, so I have suffer with a condition called Cold Urticaria. And sometimes I feel alone in my struggle, since this condition is pretty rare I haven’t met anyone with this condition. So, I was wondering if anyone in these comments suffer from this.
-Cold Urticaria means you are allergic to the cold in which you get hives, etc.
This is sad I’m really scared G⃟o⃟d⃟ bless you all
@Miss Chester Hey there! Hope you are doing well. Just so you know I am currently recovering on this allergy and asthma medication, it’s called Xolair. You should check it out it might help you in the future.
@@nahdionadii8989 Thanks 😊 God bless you too ❤️
@Miss Chester That’s great, hope everything goes well for you tomorrow. Take care of yourself, even with this pandemic going on. ❤️
@Miss Chester Hey! How did the doctors appointment go? What did she say about Xolair?
Does anyone know whos the girl at 4:57?
God bless all
i have small tics and i hate them soooo much, they are the worst especially because i have anxiety and panic attacks
The girl at 2:10 and 9:25 went to my high school, she's such a nice person
I'm trying to figure out if I have an illness atm; however, all my labs are normal...
It kinda sucks but there's nothing I can do about it
be thankful your lab results are normal that is a good thing hunny
@@clarahall4125 I just went in fro new ones cause I'm getting worse, they are testing all my organs...
Yesterday the doctor noticed a problem with my spleen too.
It's kinda annoying that they can't find the problem with labs though...
I hope you are able to figure out what is going on
I have anemia !!
Hi, friend I was able to get cure of my deadly disease by the help of a great herbal doctor called edobor that send me his herbal medicine I use to get cure
Just message him now on WhatsApp if you have any kinds of sickness in your body system
hii
My EDS makes my legs shake. I just got up to use the toilet and I walked bent over, legs, and knees especially, shaking. It's horrible.
Beans🔥✨🔥
3:55 I am in middle school but, I'm apart of the 504 system bc I have celiac disease and it really affects my attendence.
Hey :) Not trying to be offensive or dismissive, genuinely trying to be educated. So celiac disease is connected to gluten, right? Can't you just not eat anything with gluten in it? Why would that affect your attendance?
hey im gluten intolerant (my doctor says I could develop celiac soon) and I have the same question as the person above lol. Is it because of the side effects of eating gluten and then youre too sick to go to school? Or is it something else? /gen
Hey so I need some help ( since my mom ignore this) soo everytime I take shower ( hot, cold,low preasure , high preasure)
my chest turns red and itchy ( and my face sometimes in some spots)
I would love to know the reason
Hi, friend I was able to get cure of my deadly disease by the help of a great herbal doctor called edobor that send me his herbal medicine I use to get cure
Just message him now on WhatsApp if you have any kinds of sickness in your body system
+2348154510050
@@johnsonrichard2777 Yes most definitely! It worked for me as well thank you for sending me to the dr for my Excessive ass hair!
Unfortunately, i have severe anxiety and depression and cant afford treatment beyond supplements that supposedly help, but really dont. Ive also got ahdh and autism, which im also untreated for because of financial issues. All these problems with no support causes me to lash out, but I'm taking steps to support myself. I'm not going to let these issues win
I feel so bad for these people
hey can you please do hidden illness please bc i have crohns it would be so good to see one
I’m bored Af rn
The girl at the time 6:24 had super pretty hair
Sadly my mom my sister and me have alers danlous and mine is getting worst but gotta hope for the best
The video at around 4:24 all i heard was cogs ang i sat there going ✨️my initials spell KOGG✨️
Can you take can you taste the food whenever you insert it and you have to like gulp it?? ❤️
Full credit to anyone who goes through this
8:28
Dude same but mine is less closer to 5 ish minutes
I have suver anxiety and it’s hard to do things in front of people
I admire you ❤ you are special ❤💖
I love the dyeing of the formula but I wonder what it does to the expiration date..
If I had a water allergy, I would use salt and lemon juice on a washcloth as a dry cleansing.
I have 4 disorders and 2 neurological disabilities (as far as I know) plus severe stomach issues:/
So brave
7:26 or just don’t smoke?
Its medicinal weed
Me: chilling with 2 eating disorders
Anorexia: LET ME IN PLEEEEAAASEE
If it's not rude to ask, what 2 eating disorders do you have? I'm recovering and possibly relapsing into @n0r3xi@ again, and also recovering from being bulimic (I think that's how you spell it)
Attendance.. i have so many problems that make my life a hell due to my health yet I have to keep my attendance high since I can get kicked outta school.
Also others mock me for being constantly sick. It sucks.. the system shouldn't be set up like this...
Definitely. I had a friend in high school with serious health issues, she was in and out of the hospital for months at a time. She was basically a genius, had been reading since she was 3yo, was in AP physics, math, robotics, what have you, but she still didn't get to graduate with us because of her attendance. It was bs and everyone knew it, but that didn't change anything. I didn't keep in touch with her, but I heard from someone else she got her GED, so at least there's that. Still an awful system.
(Ng tube) flushes felt soooo good I hated the feeds
9:12 im confused so what this guy is saying is im setting myself on fire somehow? huh?
3:56 look, i don’t have much of an argument here but this is a little dramatic. Attendance will not end the world
hiiiii
Amy pohl was my teacher in 2016 till 2016 not even a year!!!
Just a question because I don’t really understand
Wha5 illnesses do people need to get in a hospital?Im not really sure and it may sound weird but I’m just curious
5:46 the person pushing the cart or whatever is hot
Are these the “oooops April’s fools day” version? Because none of these are even remotely close yo reality.
can you add some epilepsy ones in the next video?
I would like to know who the nurse giving thc facts is
I just have a question.. so are the feeds/ tubes due to things like eating disorders or something else?
Some people can't properly digest food that is taken by mouth so they will have a tube to make it easier and safer for them
My crying
I have type 1 diabetic
I have EDS it sucks.
I feel bad :(
The first girl is from he uk
💖
Dying your food bag thing WITH PAINT IS GOING IN YOUR BODY
It's food dye, not actual paint.... Plus they wouldn't do that if it was harmful to their body, as food dye is ok for the body, so it won't hurt them.
I can barely deal with athsma
I saw the girl that’s eyes can’t Focus at the shop and I thought she was normal
I have actually had this question for a long time how can’t they eat from their mouth if they can talk why does it go inside of their nose?
I'm not sure about this, but I'm pretty sure speaking and swallowing use different functions and parts of the throat (e.g. speaking = larynx, swallowing = esophagus)
Earlyy!