For that first one, when she's talking about a new symptom that makes her flip people off.I have tourettes and one of my frequent tics is flipping people off which I must admit... Sometimes I enjoy
Recently my autism has caused me to flip people off, I don't mean to but it has caused me to do it. I mainly flip off my mom and doctors because I'm around them the most. Not even mad at them or anything, then I'm like "I don't mean that"
looks like tremors to me, idk , but i got tremors few years ago , mine of easied up a bit but still shake when taking drink form something or picking stuff up , used to look like hers in away, mine was from medication for my sever form of epilepsy, i too agree i hurt to watch her deal with that.
@@connorrousseau9972 it was just the pain from the sticker ripping her skin, causing her to shake that’s all. I’m so sorry you had to go through what you did though, seems really rough ❤️
I genuinely don’t like people stereotyping invisible illnesses, because they are very real. I know several people with several invisible illnesses, and I hate seeing them stereotyped edit a year later: SO TURNS OUT I HAVE ONE MYSELF!
I have AMPS, (amplified musculoskeletal pain disorder) a completely invisible chronic pain disorder. I developed it January 2020. I went from getting an average of 5-6 hours of sleep, (had to wake up at 6 for school, had a really bad sleep schedule cause of the loads of homework, and loads of stress) to sleeping 12-16 hours everyday, and still being tired after that. My parents blamed it on my previous sleep schedule at first, but after 2 weeks they gave up on that. I started sleeping in the living room to see if it was mold making me sick, and sleepy. Nothing happened. I started to be in pain a lot. Started skipping school to sleep. My mom was being great about it, and believed me all the way, my dad.. not so much. He was convinced I was either faking it or it was just some stress that I had twisted out of proportion. He forced me to go to school. I got worse. I would come into school crying after my dad had screamed at me almost every morning. One of my classmates saw and heard my dad screaming at me in the car, and sat with me at lunch to make sure I was ok. Made my entire miserable month. She thought I had mono, which honestly did make sense. My mom got me tested for mono, twice. Negative both times. Started to worry a lot. Lots of googling. Called the children’s hospital, and at this point things were starting to shut down for coronavirus. Brought me to a specialist, for blood drawing, physical testing, and hopefully a diagnosis. We got in on a Wednesday in March, right after school ended for COVID. The doctor was AMAZING. She listened to every word I said. Never doubted me for a second. She asked me about what was feeling recently. I told her my legs, neck, and back hurt a lot. I told her that I had extreme fatigue. High stress. Anxiety. Stubbing my toe felt like breaking it, due to both pain and duration of it. I could barley get up after an outing. I had stomach pain. And I never, ever was even a tiny bit hungry. The only thing I ever wanted to eat was freeze dried strawberries. Turns out, I checked all of the boxes for amps. Blood test and flexibility test confirmed it. If my mom and the doctor had never listened to me, I would still be miserable, as I would have never gotten treatment (physical therapy, therapy for my anxiety, as it is the cause of most pain, as my body thinks stress signals are pain signals). I barely have episodes anymore, I can go on outings without being incredibly fatigued the next day, sleep schedule is normal again, especially now that it’s summer, and, best of all, I’m hungry again! I can’t put into words how grateful I am for that doctor.
Oh darling.. idk if u will believe but I have AMPS as well… it is a horrible, horrible thing to go through and pls promise me that you will never ever give up, or quit. U r not alone, ur never alone, pls remember that and stand strong lovely 😘🤩🤜🤛🦋🥇🎈 ❤️🧡💛💚💙💜🖤🤍🤎
I’m also grateful for this one doctor that thought of getting my hip x-rayed instead of my knee. (Had pain from my hip showing up as like knee pain). And I ended up having a really rare disease called leg-calve perthes. It took a year or more to diagnose. And now I’ve done lots of physical therapy and now can almost walk without limping! I also don’t use crutches or a wheelchair that often anymore. I’m soon going to get a hip replacement!
what is it about dads not believe their kids when they say theyre in pain. . . . my dad does that too 😭 im dealing w rhupus and sometimes my dad wont believe me too if i say im in pain before or during a school day
i hope your dad feels terrible for how he treated you. I have issued with commicating and when you combine that with pain all of a sudden communication is impossible and your dads yelling at you to tell him what hurts
The one about the pain scale, 100%. Back in May I developed a stomach ulcer and had to deal with that on top of my gastroparesis and I still rated my pain as like a 6.5 even though it's some of the worst pain I've been in in my entire life.
Yup. Developed a migraine on top of my usual tension headaches, which I get about once a week (both at the same time) a couple of weeks ago. -20/10 would not recommend. Still would've given it a 5, maybe a 6 or 7, at most
I had a similar story to the person in the video. I went to the ER with pain so bad I felt sick. The nurse asked me the stupid 1-10 question. I was fidgety but calm and said 6-7 because it comes in waves. The nurse said ok, wait in the waiting room and we will call you. Before I could leave the triage room my normally very quiet roommate says “Wait a minute. She is in pain every day of her life. She does not have a normal perception of pain. Ask her to rate her pain level when her shoulder dislocates”. So the nurse does. His eyes almost bugged out of his head when I answered 4, maybe 5 if it a bad one. I got taken right back and was in for a CT scan in less than 30 minutes. Kidney stone that had caused a near complete blockage. 😜
I was indirectly struck by lightning a few weeks back and all I can think was when the er doctor asked how much pain I was in, I said, “6 or 7” It was an electrifyingly shocking answer if I do say so myself. Yes I wrote here so I could write the pun. Sorry.⚡️ Yeah.
You have to adjust your version for them to understand which sucks. I was a nurse & I had my own problems with the pain scale because I noticed & we were taught that if it’s under like a 7 then yes you’re in pain but it’s still workable or if it’s a 5 then good bio feed back would work instead of actual pain medication. Completely ridiculous. And with the war on opiates now it’s even worse because now ERs don’t give opiates out unless you’re dying pretty much
I’m on the high functioning side of the autism spectrum, and when I (try to) state I can’t cope with talking or being touched they get upset with me. Or how a lot of people get angry with me when I constantly wear my headphones because I’m ‘purposely ignoring them’ but Im just wearing them to help ease my stress that stem from processing everything around me. I deal with more mental conditions then just autism as it is. But even just telling them I am It still doesn’t seem to fit the mold of what a lot of people believe autism “looks” like. I live every day and I’m happy I do, even with what I go through. Yet people act entitled and shit like I gotta hand them my medical info, passport ID, Birth Certificate and a goddamn doctorates thesis 🙄
You're not alone friend! I am also the same with my autism! Hate when people try talking to you with the headphones in. Theres a reason I have them in, and its because my environment is completely overstimulating and I'm trying to cope. Not because I'm an asshole 🙃
Ohhhh I feel you so much with that, I’m autistic too and it’s really hard when people assume I’m rude because I’m wearing headphones, or not looking at them when they talk :/
My oldest child is on the spectrum. He's 21 now but during childhood the school would complain so much about some of his coping techniques. Which btw he learned from his therapy. I got so sick of them harping on him, especially when most times he didnt even know he was doing them. So I hired an official advocate who helped me prepare an iron clad IEP with every single one of the things that help him listed as legally protected, with the option to add more as needed. They weren't happy, and I turned them in the 1 time they broke it....which never happened again. One of the items was he was allowed to wear his hood up, and put on his headphones for as long as he liked until he could process. The hood felt like protection he always told me. He hated being touched as well, I (mom) was the only person until he was much older that was able to touch/hug him. Of course only after he gave consent or initiated it himself. ❤❤❤
@@df-nk6gd my mom did the same thing, (even though I was later diagnosed I had a legally enforced IEP). Any time a teacher did anything against it, actions were taken. One time a Spanish teacher ripped a paper I was drawing on class to calm down and told me off in front of everyone, which was what my therapist and in-school therapist told me I should do. I went to the office the rest of the day because of the fear of not knowing what I was doing wrong to the point of being unable to speak. My mom heard about it, dropped me off the next morning and stormed into the office demanding to have a “talk” with the principal, case-worker about the teacher. After that she made sure to never upset me again. She got fired the next year. I’m so happy that there’s parents like you out there, being there for your son and vouching for him, like my mom did for me.
I have Crohn's disease, celiac disease, and major stress/anxiety disorders that cause frequent ulcers. I'm 14. sometimes the pain is so bad I just know that the pain would go away if I was dead. if I was dead, my mom wouldn't have to pay for medication or hospital visits anymore. everyday is hell for me.
I'm so sorry for you bro. Please don't die (suicide). I hope at some point the pain and medical bills decrease by atleast a bit to make you and your loved ones better.
I know is hard because I have often felt the same way you do but your family seems to care and wouldn't want you to die. I hope one day people with illnesses like ours or any illness, disorder, condition, etc... Would get better treatments to make life so much better.
I was once depressed i still struggled but then i have moments of clarity in which i know my Family is There for me and if that is not enough I have faith. I have faith in him and also that someone somewhere out there loves me even when I myself cannot love me. There are communities who help with mental support that I know can also help me. Believe me We ( I hope you don't mind i wrote us as we) are not alone. There is always Hope. When storm ends there is always a rainbow. P.S I am sorry if I sounded too cheesy, but you are loved you may not feel it but you are.
2nd one pissed me off so much...I would have told the doctor I dont want her near me, if she comes near me I will sue, would have told mom too. That type of person is a danger to society. Imagine the type of shit she does while you're asleep. Like wtf. She definitely wasn't the 1st person that sorry excuse of a nurse does that to
7:04 As a chronic pain patient, this happens WAY too often!! It's ridiculous that we have to suffer and be judged because of the people who misuse these medications! Our doctors wouldn't write them if we didn't need them!!
8:35 I once got into a car accident and they asked me the same question. I said a 6 because the worst pain I have had was falling down a waterfall on holiday. They did the exact same thing and let me go home. Turns out I had broken my foot.
I thought I was having a flare up in my foot for a couple months while I was waiting for new insurance to kick in. Had to walk a mile into work and stand on concrete floors for 8 hours. Found out 2-3 month later when I got a doctors appt. I had broken my foot no idea the pain was the same as a joint flare.
I really like watching these videos because it makes me feel like a community. I have type 1 diabetes and know of no one else that has it. No one in my family has it, none of my friends have it, nada. It’s not that I struggle with not knowing anyone else who has it, it’s just that it makes me feel more empowered when I am able to see people who know the struggles I’m facing and have conquered them too. Thank you for making these videos and bringing awareness to the community as well as an opportunity for connection. 😊
I hate how people react to tics. I have coprolalia tics and I sware a lot and I've been told so many times to stop swearing. I've also been told to be quiet.
I have a invisible illness too! It’s called Epidermolysis bullosa (EB) it’s a group of rare medical conditions that result in easy blistering of the skin and mucous membranes. Blisters occur with minor trauma or friction is given to the skin and it’s painful. Its severity can range from mild to fatal. Those with mild cases may not develop symptoms until they start to crawl or walk. For me on a scale one to ten I’m in the middle/above so like a 6 or 7. I get blistering in my throat and anywhere on my body, sometimes I cant sit, pick up anything, or even go in water. I’ve had it since I was a newborn and got blisters on my knees rlly bad when I started crawling. Mosquito bites also trigger a large lump on my skin that is hella fucking itchy so then I get a blister there. The amount of times I’ve had Karen’s complain to my parents when they go in a disabled parking and everyone gets out of the car walking fine, so then my parents tell them that I’m the one with the disability but they see me walking ‘fine’ and say to my parents that I’m overreacting. My feet and hands are the two places that I get most of my blisters and they are very fragile! Even walking from a far parking lot to the shops, (and around the shops) then back to the car can cause me to be bed ridden for nearly a week. I don’t want that! It’s really annoying. Also people at school when I’m in my wheelchair one day then the next I’m fine, they just question me and say I’m lying. That’s caused loads of anxiety and hate towards my body, I don’t really use my wheelchair at school anymore so I just rough it through the pain till I can’t walk at all. So please! Don’t question someone when they say they have a disability even if you can’t see it at that time.
I just wanna tell a story here cause it kinda fits the topic. I have celiac disease (for people who don’t know I’m basically gluten free and if I eat gluten I get VERY sick) today at my school there was a completion type thing, anyways my class won. The reward for it was suckers with no brand, ingredients, or any other markings on the individual wrappers, so of course as I usually do, I tried to find the original package they all came in. I went to the office and to no surprise they had thrown it out. Now one of the reasons I’m upset about this is that I’m not even the only gluten free person in my class alone. They offered me a basket of snacks and asked if I could have any, as expected there wasn’t ANYTHING gluten free. In summery, my school doesn’t care enough to offer snacks that all the students can eat, and I had to watch my class have a reward while I couldn’t. Thank you for coming to my tedtalk.
This happens far too often, I'm very sorry. I have a kiddo w a rare genetic condition that eliminates many foods from being consumed by her. The school doesn't care. Even before she was dx I was always cognizant of any classmates with allergies or conditions and made sure that I brought items they could have. But not a single parent has ever done that for my child. She's 11, and like you just sits there. They might give her a toy prize or something instead. God forbid they grab something from the approved list I painstakingly typed up for them that they asked for.
@@YourDailyDoseofJillish You're right but if they are made in a facility where they make other candies that do have gluten in them theres a chance the gluten will get in the lollipops and I cant take that chance
Spinal cord injury here, & I related so much to seeing that. I'm lucky to have regained the use of my legs (on good days), & I don't like to be ungrateful, but having to sometimes ask my husband to cut my food up for me, or a stranger in the supermarket to open a bag from the veggie-section roll for me because I've been trying for 6 minutes straight + just _can't_ , truly sucks. Hands that you can't control are the absolute pits.
ya ur right some people do, i used to get upset at people who complain about the lowest of stuff like not gettjng what they want for christmas or cant eat their favorite food cuz someoen said no or the palce it closed or jsut stupid stuff, and yet theres some of us like myself who struggle daily with things and are so sick we barly can get out of bed , i have tremors it seems thats what she has or something similar not sure but shaking like that sucks, couldnt drink from cup of water or pick up stuff, shaking while trying to text or get dress or eat food . use cups with straws now becuse its easier even though my shaking gotten better its now permanent. anyway ya ur right. i wish people wouldn't things they have for granted
hi! would you mind warning when there's gonna be someone ticking in a video? i have tics and they get really bad when i see someone else tic. thank you!
Oh the pain scale is always fun. My normal everyday pain is around what most people would consider a 5-6. Fun side effect of this, I will injure myself be like “eh, I feel worse every day than this.” And continue. I’ve almost torn a muscle off the bone doing that.
Yep, I have a chronic complex spinal injury & any day under a 5 is a "no pain" day. Makes it very difficult to report accurately at the hospital, regardless of whether the specific issue I'm there for is relating to my injury or not. The last time I was in hospital for my spine was the time I got the best quality attention + validation from an ER registrar that I ever have, when partway through the evening he checked in with me to ask for like the 5th time by then to rate my pain at that point, & when I replied, "Still a 7," he said, "Okay, but I just watched you writhing from a distance, & we don't generally consider spontaneous bed-dancing a 7, so." Guy's attention to detail saw me getting a prescription to try the medication that worked the best for me that anything had in 6 years at that point, & is still 1 of my most important partner medications today. Legit changed my life.
At 4:50 I completely understand the girl. People are so noisy and think they’re some kind of doctor that knows exactly how to “fix” me. They just can’t seem to understand that I can’t walk straight because my spine isn’t straight. And every time I walk and I kinda stumble and move side to side and everyone thinks I’m intoxicated. Like the fxck. I’m so self conscious about that now that I stick to my wheelchair a lot more than walking. And I don’t want to go out because people continuously stare at me and ask THE MOST personal questions ever. Like please mind your business and if you ask a question ask it nicely and don’t stare because that could make someone extremely uncomfortable. Oh and hi everyone and anyone who sees this ☺️💞, I’m Madison how are you?
I wish I could get rid of the toxic people in my life. Unfortunately they kinda are a part of me. I have Bipolar Disorder and my toxic people happen to be my manic and depressive selves.
So I got a kinda funny story and now the story so one day me and my family whent to a restaurant and I had to take my meds (threw shots) and the elderly people behind me were staring very intensely at me so while I was doing the shot I turned the insulin pen to where they could see that it says "insulin" very big and clear qnd I could here them whispering to each other that they were wrong and me and my brother were just laughing
Hey there ! I am a type 1 diabetic too. I know how people get too curious about the shots, and then we have to explain. Once, a girl spread the rumour about type 1 diabetes being contagious when l was in the third grade, so people kept away from me , its kinda funny that they believed her. It has been 9 years since my diabetes was detected, and now the judgy eyes feel sort of normal.
yes ur right its not mental disorder, i have autism too , its actually called neurological disorder it's litterally how ur brain formed when u were still developing inside ur mother tummy, i dont know why everyone thinks its a mental disorder.
Do you have specific triggers? Like certains foods or does it happen at random times. Knowing even stuff as broad as that could help narrow it down and be less of a mystery. Hope you figure it out
same, i went through years of testing and nothing came up. we figured out it was IBS. the reason we didn’t think of that was bc most people with IBS get diarrhea and maybe a little pain, whereas i have lots of pain and rarely get diarrhea. still working on getting it better, but avoiding dairy and getting my anxiety under control has helped a ton (anxiety and dairy are my main triggers). hang in there!!
I enjoy watching these it helps me a lot it can be overwhelming when people just think your “complaining” or lying or just faking it WELP the. My chronic disease be like WHY HELLO but no one would know u^u
The pain scale! I live with chronic pain my whole life. While I was in active labor I called the hospital to say I was coming in because I was in labor. The nurse on the phone didn't believe me. She said if I was in labor I wouldn't be able to speak. I tried to tell her I have a high pain tolerance. She still didn't believe me and told me to stay home and call my Dr in the morning. Good thing I didn't listen. My daughter was born an hour and a half later. Everything went OK. But if I had stayed home who knows...
I’m so glad I saw this. I’m so tired of my family (who are used to me always taking care of everyone) don’t believe, or it seems care, that I’m in constant pain so I’ve learned to hide it and cry in the shower.
I have friedreich ataxia, and a bit after I hit puberty it got so bad that I eventually couldnt even hold my own weigh anymore. Crutches were useless and medication wasn't helping, we decided to go for a wheelchair almost 2 years ago. My body on the other hand was not cooperating with it at all- it's not used to the lack of movement so I started having problems with my blood circulation :') I also developed a circulatory disorder, it clogs the vessels and weakens the heart muscle meaning the brain is less supplied with blood. Therefore I get a lot of headaches, some difficulty breathing, and the usual good old back pains. My medication is covering most of my symptoms but not everything, I can't take anymore though, Since It was already hard enough to find some that I didn't react badly to. 😅 (sorry for my little ramble -
I have FND and one of my fun (sarcasm) symptoms is I can pass out/go unresponsive at any time but it only happened when I was under a severe amount of stress from being really sick. One EMT didn’t believe me so he did a sternum rub not once but 5 times increasing pressure each time to where he nearly broke my ribs and severely bruised my sternum and most my rib because of his inability to control himself. He has a problem with people “faking” illnesses for “attention” (these were his words). He also stabbed my fingertip, 2 of my toes and raked something sharp on the arch of my foot. I woke up bleeding and in extreme pain but unable to talk due to my FND. This was all told to me by a nurse who documented everything. I was so bruised, couldn’t walk or breathe for over a week.
sorry u had to deal with that. where i live emt and doctors will do many test to see if a patient is faking due to how many fake calls they actually do get for people that just want a ride or place to stay. i havent heard it for that condition u have though mainly for people faking seizures , emt and doctors dont want to be wasting their time when they can help those who need it , a guy in homeless shelter i was at few years ago was faking a seizure so he can not have to leave during the day as it was a rule u had to, emt came in and do the chest rub when a person is unconscious however this guy woke right up complained and waked out, another guy harmed another homeless person and was getting kicked out by cops and staff and layed on floor saying call emt because he was having a seizure, to avoid jail. it dose happen and they do have to test at times but what it seems like was ur emt was having a very bad day and they shouldn't have done that to u. i agree it ok to test things out but never keep on calling someone a faker or ignore them. i hope u havent been through that again. i had a horrible doctor once not believe a health issue of mine and my mother drove all the way from another town to get involved with that doctor ,he was being rude and not listen, i was admitted to hospital and turns out everything i said was right. some doctors are just jerks. sorry so long rant
I have Exercise Induced Anaphylaxis, and have been resistant to every treatment so far. I look perfectly normal until my heart rate rises and my body perceives something as "exercise". Sometimes, nothing will happen. Other times, I'll begin going into anaphylaxis. So yes, I take breaks, can't walk with my kids, or ride bikes with them, can't play with them as they are playing at the park.
I feel this. I walked around with an infected wisdom tooth for like three years with barely minimal pain. When I finally got them pulled I then had to deal with a dry socket on the badly infected side. Everyone kept telling me “oh if it was a dry socket you’d be on the floor screaming and crying with you face feeling like it’s melting” no one believed me, I lived through a whole weekend and when I went back in on that Monday they had to pack it and give me more antibiotics and the dental surgeons could not believe I was up and walking and functioning with a dry socket when most people would pass out, he had given me pain meds after the surgery and he was surprised that I hadn’t taken like 30 mg (they were 10/325 hydros/Tylenol ) of my pills at once, his eyes went huge when we told him I’d been halving them to make them last longer.
Oh. My. GOODNESS! I totally feel the "if you try this (insert BS snake oil here) an you'll be cured!" It's insane how often I get folks on FB suddenly pepper my feed with so much "health guru wisdom" its mind boggling. The only one that beats it is "You don't look like your ill an need a service dog." 😤
I have fibromyalgia. Here’s the definition for those that don’t know: “Fibromyalgia is a disorder characterized by widespread musculoskeletal pain accompanied by fatigue, sleep, memory and mood issues. Researchers believe that fibromyalgia amplifies painful sensations by affecting the way your brain and spinal cord process painful and nonpainful signals.” On an average day my pain level would be a “normal” persons 6-7. So the pain scale is bs (as most of you have agreed). Every day doing the simplest tasks put me in pain. Laundry, in pain, dishes, in pain, vacuuming, in pain, grocery shopping, in pain. I’ve dealt with this for about 5 years now so it’s become my new normal. I usually try to hide the amount of pain I’m in because it’s an invisible illness and I’ve had so many people tell me I’m just faking it for attention. Some days I can’t even get out of bed without an immense amount of pain but I still go through my day like nothing is wrong. I’m so tired of people thinking that just because they don’t see the illness/disability, it’s not real. Along with other medical s**t I have wrong with me, living is a struggle some days. Some days I just want the pain to go away, to just stop. I’ve tried so many different medications and almost all of them have caused something flare up so I’ve just stopped taking meds. I know that’s probably not a good idea but I’m so tired of things that are supposed to help me, actually making things worse. Sorry for my little rant, I just want people to understand that there are people out there that are struggling with a medical condition but you can’t see it because it’s not physical but it’s none the less real.
Oh honey that girl changing her NG tube shaking it’s okay and I am thankful for those out there chronically ill that post about their struggles and try educating others; how I wish things were a bit different a few years ago for me (I’m not saying things are perfect but at least some of the time people understand it more) I’d made so many friends and feel more at ease that I would know I wasn’t alone in the struggle, in the battle when I was laying in hospital bed and with some...staff mistreating me. Not everyone but some that unfortunately had an impact on me and my care and scarred me. How things have changed in a couple years, with the impact of more education readily bailable to anyone who has a device with internet at least my (unfortunate) but recent hospital experiences haven’t been as bad as opposed to a few years ago and I’ve seen people in same ward as me with same thing and would they had been there a few years prior...things would have been so different. I’m glad they weren’t; I don’t want people to have to go through the pain and the hell of what I endured of the neglect, the misunderstanding, shouting you’re faking it basically, and be on brim of death, and not,....it’s a long story. It just makes me tear up in both senses I shouldn’t have had gone through such and then seeing these people....I hope they’re hanging in there. Know you’re loved, by me. I understand your pain and though I wish to no one ever go through that I know in reality thousands probably do a day no matter if it’s in a hospital setting, home, at grocery, mall, anywhere besides when you’re by yourself and just feel like crying. But hang in there, don’t give up. We’re doing this together.
Wow the toxic person one... When I met my now-husband and was in a healthy and supportive relationship, my AI disease went into remission for 2 and a half years. It came back because of an accident and a bunch of unrelated stress, but he is still my #1 cure.
The girl with the horse and dog they can smell a chemical change in your body before you seize. I know somebody who has a seizure dog and he smells her chem changed and he jumps up on het puts his paws on her shoulders and she knows she needs to sit down, he then proceeds to lay on top of her protecting her. it is the sweetest thing ever.
I have extreme depression, and throughout this I smile to make everyone get off my back. But now, no one even hangs out with me or is there for me. Smiling does not mean im not suffering and could use a friend.
Yeah! we all experience things differently if they reach the point in their lives were they are able to accept their disabilities/chronic illness without complaining about something, they still need to understand that there are people who are still on the process, oh and I also hate that sort of competition with the symptoms and surgeries like if say “I’m afraid cuz this will be my second surgery” people go like “oh come on! is just the second one? I’m going for the 10th one”
I had a friend who claimed I didn't value our friendship because I wasn't able to join her at the gym and complete a work out program she had decided to make for me whenever she wanted to go... She asked me for proof in writing from my doctor... I have fibromyalgia and a slight scolioses that's not visible because mine doesn't involve the actual spine being twisted but some of my vertebras are twisted causing preassure on my back muscles as they swell for over working them. I was also kicked out of the system completely because the authorities couldn't agree on where to go from here so I was basically kicked out with no disability, no benefits, no help to find work and so I was forced basically to be a housewife and we live off of my hubby's salary... If he had decided not to do it I'd be homeless with nothing at all. Thankfully love is still very much in our life and he's never been mad at me. Only at society. We have tens of thousands of people here in Sweden in the same boat as me :(
@@saltydinonuggies1841 I think what Emma ment is that very often ticks include things like "flipping the bird" and sayin f*ck you and all other offensive things which come out even more when they try their best to not say them.
I highly doubt the guy who has ankylosing spondilytis will see this but if he does, my mum is now 65 and still able to move around and be reletavely stable i hope the same goes for you
Oh... so my job IS trying to kill me with stress. Great... Cyclic vomiting syndrome on top of seizures and chronic nerve pain. No wonder why it got worse over the last few months.
the one about the pain scale is so RIGHT. im in hell tonite but i would only report it as a 7.5 . if the ER could do anything for my pain, i would be there right now........this is BAD
7:44 im 24 and was "diagnosed" (saying it like that cuz the stupid doctors didnt put it with my diagnoses just left it in notes) with multilevel spondylosis and retrolisthesis a couple years ago, at moment still waiting to be tested for other issues such as
I feel awful for the woman at 0:56. I too at the age of five had corrective surgery for bladder reflux. I have an identical scar to my mom who had a c-section. I hope I never come across such an unprofessional nurse who would cause harm because she didn’t believe me
In like may this year I started frequently fainting and stuff. Fast forward to August after I've seen a cardiologist and a audiologist, they couldn't find anything so my primary care said I had anemia and a vitamin B deficiency. Fast forward to October, I've been on the meds a good amount of time so she told me I could stop taking them. I do, but the symptoms don't resolve. Now I'm seeing a therapist for possible psychological issues. Now, they haven't given answers whatsoever. The only thing I can think of this possibly being is POTS (postural orthostatic tachycardia syndrome). It's really tiring not knowing why I feel like shit all the time. I'm barely at school anymore, and everyone is worried. Now, I've developed depression and anxiety. Then ive gotta deal with Karen's saying "your not sick" or "you don't look sick". It's very annoying.
I had a phone call last week with a distance education company that I hadn’t talked to in 4 years and before I went on disability. I told her I wasn’t interested and when she asked why I said I had been on disability for a year and a half. She then said “oh I’m sorry… actually I’m not sorry since you’re alive”…. Like what the heck?!
For tourettes I think if you tick a lot in your sleep you could be having a seizure but I’m not sure so don’t come for me on that, but if I am right you should probably see a doctor if that’s happening
Tics do not go away during light sleep but are often significantly diminished; they go away completely in deep sleep. Although the symptoms of TS are unwanted and unintentional (called involuntary), some people can suppress or otherwise manage their tics to minimize their impact on functioning. motor tics have been reported to persist during sleep.
I appreciate the video! Just a reminder, if you put a video with tics please put a warning because those often trigger tics in people who have tics already. I would really appreciate some notice next time :))))
So I went to the doctor about 2 weeks ago and she diagnosed me with H pylori virus and the symptoms of H pylori is loss of appetite, frequent burping, bloating, weight loss, stomach pain that worsens when your stomach is empty. And aching or burning in your stomach. I had no symptoms of it. I initially went in because I had swallowing difficulties. I had an endoscopy. That is when the doctors take a scope and look at your esophagus, your stomach, your intestines and the results come back clear. This doctor diagnosed me with this condition and prescribed me antibiotics and I feel nauseous, vomiting and diarrhea. These are the common side effects of taking antibiotics. Now this wasn't even my regular doctor, this was the assistant. I feel like she was so focused on giving me a diagnosis then actually diagnosing me correctly. Then I asked her for a barium swallow test that is when they measure how everything moves in your esophagus. She said no because I already had the endoscopy. Then her supervisor came in and said yes, go ahead and give her the barium swallow test and give her antibiotics for the stomach infection but he only said that because she told him that I had a stomach infection. He agreed with me on the barium swallow test. Today I went to my primary care doctor and I couldn't even get through the story once she figured out that I stopped taking the antibiotics she just stared at me with this judgmental look and the more that I try to explain why I stopped taking the antibiotics and why I believe that I don't have H pylori the more she kept judging me. She then told me to keep taking the antibiotics. I stopped taking them for 3 days once the side effects got worse. So at this point it makes it hard for me to talk about what I have wrong with me out of fear that I'm going to be judged and doctors are going to say that I'm wrong and they're right. I think it's so important for both parties, the doctor and the patient, to hear each other out so they can come to an agreement, not the doctor thinking that they know everything and don't listen to the patient. I feel like nowadays doctors, nurses, and assistance blow us off and then by the time we get the help that we need we are in worse shape or knocking on death's door. We might be the patient and the doctors might have studied for their career but I feel like at the end of the day we know our bodies. Should I listen to the doctors or should I listen to my gut? I just want to feel safe, comfortable, heard and treated for my health issues. So let me know what you guys think agree to disagree sorry for the long story but thank you guys for listening
Pain scale answer for me at the Dr is always "pain level what it would be of I was not use to it or the level I'm used to since that is a difference if breathing or not"
People with terrets (uncontrollable movements)are amazing!!!!So don't ever judge a book by its cover and don't make fun of others because we are all very unique in our own way.You also never know what others are going through.
My dad has thyroid problems he has to take meds for, bad arthritis in his feet and really bad in his back and neck, and chronic headaches. My mom has epilepsy and ulcerative colitis. Luckily, I seem to be fine except for my depression, anxiety, and ticcing *sigh*
Is it just me or do those memes about people in wheelchairs standing up, like it's some big shock and super suspicious!! Just kinda really annoying? It just perpetuates the myth that only people who are unable to walk or use their legs can use wheelchairs. Same with the memes about blind people using the internet and phones, like...they can also use those things :V doesn't mean they're faking.
My dad is in a wheelchair and he uses his crutches to get his wheelchair in the trunk of the car and crutch the the drivers seat (he has hand controls and he is way too stubborn to get a van/we can't afford a van) one time tho I had a seizure (I recently got diagnosed with epilepsy which that is a long story too) and he allegedly hopped outta his chair to turn me on my side
for the last one! animals can actually smell your blood sugar changing, and pick up on a lot of things humans cant without machines, which is actually why animals like dogs and cats are amazing service animals! your horse probably understood that as well if they have seen you pass out before and picked up on what your dog was alerting to. you dont have to train service animals to do service animal things if there is already one around. my sister has a service dog that she left behind until she has a proper home where she is now, and this dog has saved my life from my hypoglycemia many times, in fact saving my nana as well. her kissing me and laying on me for DPT when i am having a meltdown/panic attack from autism/ptsd has traveled to my other little dog, who is very dumb, and she has kept me from very bad episodes. animals are amazing!
Ok the dog and the horse both taking care of their owner was super cool, like I know the dog is trained for it but even the horse picked up on it and stopped walking
I get sick constantly and I don’t know why. It’s getting to the point where I think something might be wrong. Ive gotten sick every month from august except November now. I was hit really hard by covid and I’m still not completely recovered. My taste and smell are still gone. And my breathing is weird now. It doesn’t hurt me but it’s irritating.
As someone with tourettes, it is always a joy to meet fellow people with tourettes, I have 2 other friends with it and we meet up frequently and create chaos, yes we get stared at but we don't really care.
Hey, to all the people out there with all the illnesses, we all feel very bad for you VERY!! but i really don want to give you a (I feel bad or poor girl or he must be suffering.) you might be, but im not the kind of person to make you feel like you have to give up or you have to have simapthy to make yourself feel better. im really sorry you have to go through all of this but you must know that you can fight this and things will get better!
it's not a chronic illness or anything, no where near as bad as these at least. But I literally have people telling me not to take iron supplements for my anaemia. I work in aged care. These are patient's family members. They are telling A HEALTH CARE PROFESSIONAL NOT TO TAKE TABLETS THAT WILL LITERALLY GIVE ME WHAT I REQUIRE TO LIVE AND BREATH. and it gets even worse....nurses that i work with were telling me to just "eat more meat". Bitch, you don't think I've eaten all the meat? leafy greens? "iron rich foods" literally EVERYONE has recommended? I take iron ON TOP of an iron rich diet...and then at my next blood tests i still barely reach bare minimum.....just annoying (for context, a normal range for iron is 60-170mcg/dL. i think I was sitting at
I know I get dirty looks if I park in a disabled space, but then they don’t see that by the time I walk as much as needed to get essentials I have to sit in my car for who knows how long before I can stand up again to put said groceries into my car
8:34 A couple months ago I had a throat injury from singing out of my range for a prolonged period of time. I was out of school for over a week and refused to eat my birthday cake because I was in too much pain. On my birthday, we went to see the only available doctor at my primary care facility. On my pain scale, I was at a 9- in excruciating pain (it would reach a 10 that night). I never told him how much pain I was in (I really didn’t want to talk). Because I was in a social setting and I did not want attention, I was putting on the mask that I use in my day-to-day social life. This completely disguised my pain. The doctor kept insisting it was strep throat, even after we explained to him over and over that it was an internal injury. Low and behold, when my strep test came back negative, the doctor refused to give me a painkiller prescription. I went home that night unable to even cry from pain because it would hurt even more. Plus, we wasted how much money going to see a doctor who wouldn’t listen?
I have type 1 diabetes which is a invisible disability (unless you have visible technology like a insulin pump) and oh boy the 'you don't look sick' makes me so mad i could spit- yeah i know i don't and i don't care if your dog has diabetes im sorry.
I haven't been diagnosed with anything but even before the person with tourettes said they had tourettes I just saw them to k and my tick started acting up. I really wanna get tested/diagnosed but my parents don't believe me.
I have a vitamin deficiency disorder. I have several issues as a result. I need glasses, I have asthma, I cant handle heat well, I get dehydrated easily, I get exhausted easily, but the one thing everyone can see is how unbelievably pale I am. Just look at my profile pic, look at my surroundings, there's no filter. I get comments all the damn time to tan more. Im from Florida and I got looks all the time from people. Id have people recommend tanning beds. I cannot tan. I dont have pigment. You can literally see my veins through my skin I do not have pigment.
5:07 Hewo fellows people with turrets and ticing disorders.... ummm question I have had my tics for about 7 to 8 months now and I'm in the middle of getting things figured out but my meds aren't working very well anymore how would you all suggest I handle them while in my classes? Because I'm struggling and I have this one where I tend to try and punch what is next to my and one where i try to bang my head on the table or whatever is in front of me... I just need so advice.
I have tics (i don't knos the cause so please do not say i have tourettes) One i have sometimes (not alot) is flipping people off...one day it happend by my mum
The woman doing the splits around 4:40/4:50 made me smile. Like it’s such a sad thing but I have a chiari malformation and people do that all the time. Like people (even doctors) do it. It’s just like that is NOT how this works! Stoppppp being ignorant. Thank you to the lady in the splits, you made me feel whole.
Try a natural thyroid supplement! I had to shop around to find one that worked/didnt make me nauseous, but I love the solaray one I'm taking rn! The Armor one made me almost puke every morning though. Just make sure it has actual thyroid tissue in it
5:09 This person has recently been diagnosed with Tourette Syndrome so the misinformation is understandable, but I need to clear this up. I’m a Sophomore in high school and I’ve been diagnosed with Tourette Syndrome since I was around four or five. (I can’t quite remember and I have an atrocious memory so I stopped asking my mom.) You do NOT grow out of Tourette Syndrome by puberty. When I was in sixth grade I had heard that by puberty Tourette Syndrome could actually either get worse or get better, and I’m not sure if any of that was correct or not because my tics are still varying and going back and forth between “better” and “worse” to this day. What I do absolutely know though, is that you never grow out of Tourette Syndrome. It can be treated so true symptoms may decrease, and as you grow into adulthood your case may begin to seem more mild, but it will always be there. Tourette Syndrome doesn’t disappear. If it does, you don’t have Tourette’s, you have a tic disorder. They are two different things. (P.S. it’s also very likely this person has a tic disorder. Tourette Syndrome can be *diagnosed* late in life due to a large array of reasons, but you are *born* with it. You don’t develop Tourette Syndrome. This person most likely has a tic disorder, not TS. There’s little to no awareness for the difference between the two so I don’t blame them for not being aware, but there is no way they have Tourette Syndrome if they only started getting symptoms at 17.)
You should look into tourette action, they are finding that rhythmic pulses to the wrist help tics. I gotta disagree about one thing, You may be born with it but tourettes can manifest later in life. My neighbour wasn't diagnosed until 16.
@@parisinthe30sx No, you cannot manifest later in life. You can be diagnosed later in life for a multitude of different reasons, but the TS was there since birth. It is 1000% incorrect to say you aren’t born with Tourette’s. Please check out the official website on Tourette’s Association of America where they can provide some more information.
@@mxdhxtter1259 tourette's can manifest between the ages of 1-17 so yes people can develop it alittle latter. Also, people with tourette's can outgrow their tics it typically happens around teenage years to Adulthood. Someone growing out of tourette's later in life doesn't disqualify them from previously having tourette's and that it was a tic disorder and not tourette's since the diagnostic criteria for tourette's is ●two or more motor tic/one or vocal tics ●had tics for atleast a year ●have tics that begin before the age of 18 ●have symptoms that aren't due to medication or medication condition for example: seizures, huntington disease, postviral encephalitis.
@@mxdhxtter1259 actually they can and it's been proven that and form of tic disorder can be outgrown but there is a high possibility of it coming back. Also, how about you ask the thousands of adults now that don't have tics anymore you just calling them insane or calling yourself ignorant because you chose not to do research.
For that first one, when she's talking about a new symptom that makes her flip people off.I have tourettes and one of my frequent tics is flipping people off which I must admit... Sometimes I enjoy
I have tics to and I flip off whenever I tic sometimes. I enjoy it a lot
oh its quite fun sometimes
Do you ever fake a tic so that you can flip someone off?
same and i enjoy it too cause sometimes its too the people i hate
Recently my autism has caused me to flip people off, I don't mean to but it has caused me to do it. I mainly flip off my mom and doctors because I'm around them the most. Not even mad at them or anything, then I'm like "I don't mean that"
The poor girl changing her feeding tube sticker, her shaking made me want to cry.
Earlier this year I was super Sick and would shake like that. I couldn’t even write because everything came out illegible.
i know. It must really be painful.
looks like tremors to me, idk , but i got tremors few years ago , mine of easied up a bit but still shake when taking drink form something or picking stuff up , used to look like hers in away, mine was from medication for my sever form of epilepsy, i too agree i hurt to watch her deal with that.
@@connorrousseau9972 it was just the pain from the sticker ripping her skin, causing her to shake that’s all. I’m so sorry you had to go through what you did though, seems really rough ❤️
@@drujames691 oh i didnt know it was from pain, im sorry, ya it is rough thanks
I genuinely don’t like people stereotyping invisible illnesses, because they are very real. I know several people with several invisible illnesses, and I hate seeing them stereotyped
edit a year later: SO TURNS OUT I HAVE ONE MYSELF!
OOP welcome to the club
I have AMPS, (amplified musculoskeletal pain disorder) a completely invisible chronic pain disorder. I developed it January 2020. I went from getting an average of 5-6 hours of sleep, (had to wake up at 6 for school, had a really bad sleep schedule cause of the loads of homework, and loads of stress) to sleeping 12-16 hours everyday, and still being tired after that. My parents blamed it on my previous sleep schedule at first, but after 2 weeks they gave up on that. I started sleeping in the living room to see if it was mold making me sick, and sleepy. Nothing happened. I started to be in pain a lot. Started skipping school to sleep. My mom was being great about it, and believed me all the way, my dad.. not so much. He was convinced I was either faking it or it was just some stress that I had twisted out of proportion. He forced me to go to school. I got worse. I would come into school crying after my dad had screamed at me almost every morning. One of my classmates saw and heard my dad screaming at me in the car, and sat with me at lunch to make sure I was ok. Made my entire miserable month. She thought I had mono, which honestly did make sense. My mom got me tested for mono, twice. Negative both times. Started to worry a lot. Lots of googling. Called the children’s hospital, and at this point things were starting to shut down for coronavirus. Brought me to a specialist, for blood drawing, physical testing, and hopefully a diagnosis. We got in on a Wednesday in March, right after school ended for COVID. The doctor was AMAZING. She listened to every word I said. Never doubted me for a second. She asked me about what was feeling recently. I told her my legs, neck, and back hurt a lot. I told her that I had extreme fatigue. High stress. Anxiety. Stubbing my toe felt like breaking it, due to both pain and duration of it. I could barley get up after an outing. I had stomach pain. And I never, ever was even a tiny bit hungry. The only thing I ever wanted to eat was freeze dried strawberries. Turns out, I checked all of the boxes for amps. Blood test and flexibility test confirmed it. If my mom and the doctor had never listened to me, I would still be miserable, as I would have never gotten treatment (physical therapy, therapy for my anxiety, as it is the cause of most pain, as my body thinks stress signals are pain signals). I barely have episodes anymore, I can go on outings without being incredibly fatigued the next day, sleep schedule is normal again, especially now that it’s summer, and, best of all, I’m hungry again! I can’t put into words how grateful I am for that doctor.
Oh darling.. idk if u will believe but I have AMPS as well… it is a horrible, horrible thing to go through and pls promise me that you will never ever give up, or quit. U r not alone, ur never alone, pls remember that and stand strong lovely 😘🤩🤜🤛🦋🥇🎈
❤️🧡💛💚💙💜🖤🤍🤎
I’m also grateful for this one doctor that thought of getting my hip x-rayed instead of my knee. (Had pain from my hip showing up as like knee pain). And I ended up having a really rare disease called leg-calve perthes. It took a year or more to diagnose. And now I’ve done lots of physical therapy and now can almost walk without limping! I also don’t use crutches or a wheelchair that often anymore. I’m soon going to get a hip replacement!
what is it about dads not believe their kids when they say theyre in pain. . . . my dad does that too 😭 im dealing w rhupus and sometimes my dad wont believe me too if i say im in pain before or during a school day
i hope your dad feels terrible for how he treated you. I have issued with commicating and when you combine that with pain all of a sudden communication is impossible and your dads yelling at you to tell him what hurts
The one about the pain scale, 100%. Back in May I developed a stomach ulcer and had to deal with that on top of my gastroparesis and I still rated my pain as like a 6.5 even though it's some of the worst pain I've been in in my entire life.
Yup. Developed a migraine on top of my usual tension headaches, which I get about once a week (both at the same time) a couple of weeks ago. -20/10 would not recommend. Still would've given it a 5, maybe a 6 or 7, at most
I had a similar story to the person in the video. I went to the ER with pain so bad I felt sick. The nurse asked me the stupid 1-10 question. I was fidgety but calm and said 6-7 because it comes in waves. The nurse said ok, wait in the waiting room and we will call you.
Before I could leave the triage room my normally very quiet roommate says “Wait a minute. She is in pain every day of her life. She does not have a normal perception of pain. Ask her to rate her pain level when her shoulder dislocates”.
So the nurse does. His eyes almost bugged out of his head when I answered 4, maybe 5 if it a bad one.
I got taken right back and was in for a CT scan in less than 30 minutes. Kidney stone that had caused a near complete blockage. 😜
@@shywolf4 God Bless your quiet friend. You know things about to get serious when the quiet girl talks.
I was indirectly struck by lightning a few weeks back and all I can think was when the er doctor asked how much pain I was in, I said, “6 or 7” It was an electrifyingly shocking answer if I do say so myself. Yes I wrote here so I could write the pun. Sorry.⚡️ Yeah.
You have to adjust your version for them to understand which sucks. I was a nurse & I had my own problems with the pain scale because I noticed & we were taught that if it’s under like a 7 then yes you’re in pain but it’s still workable or if it’s a 5 then good bio feed back would work instead of actual pain medication. Completely ridiculous. And with the war on opiates now it’s even worse because now ERs don’t give opiates out unless you’re dying pretty much
I’m on the high functioning side of the autism spectrum, and when I (try to) state I can’t cope with talking or being touched they get upset with me. Or how a lot of people get angry with me when I constantly wear my headphones because I’m ‘purposely ignoring them’ but Im just wearing them to help ease my stress that stem from processing everything around me. I deal with more mental conditions then just autism as it is. But even just telling them I am It still doesn’t seem to fit the mold of what a lot of people believe autism “looks” like. I live every day and I’m happy I do, even with what I go through. Yet people act entitled and shit like I gotta hand them my medical info, passport ID, Birth Certificate and a goddamn doctorates thesis 🙄
I have ADHD and I feel this so hard
You're not alone friend! I am also the same with my autism! Hate when people try talking to you with the headphones in. Theres a reason I have them in, and its because my environment is completely overstimulating and I'm trying to cope. Not because I'm an asshole 🙃
Ohhhh I feel you so much with that, I’m autistic too and it’s really hard when people assume I’m rude because I’m wearing headphones, or not looking at them when they talk :/
My oldest child is on the spectrum. He's 21 now but during childhood the school would complain so much about some of his coping techniques. Which btw he learned from his therapy. I got so sick of them harping on him, especially when most times he didnt even know he was doing them. So I hired an official advocate who helped me prepare an iron clad IEP with every single one of the things that help him listed as legally protected, with the option to add more as needed. They weren't happy, and I turned them in the 1 time they broke it....which never happened again. One of the items was he was allowed to wear his hood up, and put on his headphones for as long as he liked until he could process. The hood felt like protection he always told me. He hated being touched as well, I (mom) was the only person until he was much older that was able to touch/hug him. Of course only after he gave consent or initiated it himself. ❤❤❤
@@df-nk6gd my mom did the same thing, (even though I was later diagnosed I had a legally enforced IEP). Any time a teacher did anything against it, actions were taken. One time a Spanish teacher ripped a paper I was drawing on class to calm down and told me off in front of everyone, which was what my therapist and in-school therapist told me I should do. I went to the office the rest of the day because of the fear of not knowing what I was doing wrong to the point of being unable to speak. My mom heard about it, dropped me off the next morning and stormed into the office demanding to have a “talk” with the principal, case-worker about the teacher. After that she made sure to never upset me again. She got fired the next year. I’m so happy that there’s parents like you out there, being there for your son and vouching for him, like my mom did for me.
I have Crohn's disease, celiac disease, and major stress/anxiety disorders that cause frequent ulcers. I'm 14. sometimes the pain is so bad I just know that the pain would go away if I was dead. if I was dead, my mom wouldn't have to pay for medication or hospital visits anymore. everyday is hell for me.
I'm so sorry for you bro. Please don't die (suicide). I hope at some point the pain and medical bills decrease by atleast a bit to make you and your loved ones better.
I know is hard because I have often felt the same way you do but your family seems to care and wouldn't want you to die. I hope one day people with illnesses like ours or any illness, disorder, condition, etc... Would get better treatments to make life so much better.
Believe they will be better times
I was once depressed i still struggled but then i have moments of clarity in which i know my Family is There for me and if that is not enough I have faith. I have faith in him and also that someone somewhere out there loves me even when I myself cannot love me. There are communities who help with mental support that I know can also help me. Believe me We ( I hope you don't mind i wrote us as we) are not alone. There is always Hope. When storm ends there is always a rainbow.
P.S I am sorry if I sounded too cheesy, but you are loved you may not feel it but you are.
@@gladysolvera6566 Thank you
2nd one pissed me off so much...I would have told the doctor I dont want her near me, if she comes near me I will sue, would have told mom too. That type of person is a danger to society. Imagine the type of shit she does while you're asleep. Like wtf. She definitely wasn't the 1st person that sorry excuse of a nurse does that to
Yess we gotta do something about that
This is my favorite compilation, chronic illness people "Assemble"
I’m not, but I’m finding as many of these comps as I can and commenting noice stuff
I’m here! Lol
I have assembled
Hi I have POTS
*broken avengers theme intensifies*
Hi btw👋
7:04 As a chronic pain patient, this happens WAY too often!! It's ridiculous that we have to suffer and be judged because of the people who misuse these medications! Our doctors wouldn't write them if we didn't need them!!
Girl in the 1st clip. That color is beautiful on you. What is it?
Grey?😂
@@lizakazmer371 I meant hair color
@@JA-ex4bo like a bright red if I'm not mistaken
Maybe magenta?
... red
8:35 I once got into a car accident and they asked me the same question. I said a 6 because the worst pain I have had was falling down a waterfall on holiday. They did the exact same thing and let me go home. Turns out I had broken my foot.
I thought I was having a flare up in my foot for a couple months while I was waiting for new insurance to kick in. Had to walk a mile into work and stand on concrete floors for 8 hours. Found out 2-3 month later when I got a doctors appt. I had broken my foot no idea the pain was the same as a joint flare.
I really like watching these videos because it makes me feel like a community. I have type 1 diabetes and know of no one else that has it. No one in my family has it, none of my friends have it, nada. It’s not that I struggle with not knowing anyone else who has it, it’s just that it makes me feel more empowered when I am able to see people who know the struggles I’m facing and have conquered them too. Thank you for making these videos and bringing awareness to the community as well as an opportunity for connection. 😊
I hate how people react to tics. I have coprolalia tics and I sware a lot and I've been told so many times to stop swearing. I've also been told to be quiet.
Out of context but your pfp is terrifying ♡
@@totsnotaya819 it’s not his fault your homophobic sis
@@totsnotaya819 was that a homophobic statement?? it’s not their fault you’re homophobic babe 🤪
Yeah people dont get tics are literally out of your control and often get worse when you think about them a lot. Im sorry you have to deal with that.
@@totsnotaya819 how is it terrifying
I have a invisible illness too! It’s called Epidermolysis bullosa (EB) it’s a group of rare medical conditions that result in easy blistering of the skin and mucous membranes. Blisters occur with minor trauma or friction is given to the skin and it’s painful. Its severity can range from mild to fatal. Those with mild cases may not develop symptoms until they start to crawl or walk. For me on a scale one to ten I’m in the middle/above so like a 6 or 7. I get blistering in my throat and anywhere on my body, sometimes I cant sit, pick up anything, or even go in water. I’ve had it since I was a newborn and got blisters on my knees rlly bad when I started crawling. Mosquito bites also trigger a large lump on my skin that is hella fucking itchy so then I get a blister there. The amount of times I’ve had Karen’s complain to my parents when they go in a disabled parking and everyone gets out of the car walking fine, so then my parents tell them that I’m the one with the disability but they see me walking ‘fine’ and say to my parents that I’m overreacting. My feet and hands are the two places that I get most of my blisters and they are very fragile! Even walking from a far parking lot to the shops, (and around the shops) then back to the car can cause me to be bed ridden for nearly a week. I don’t want that! It’s really annoying. Also people at school when I’m in my wheelchair one day then the next I’m fine, they just question me and say I’m lying. That’s caused loads of anxiety and hate towards my body, I don’t really use my wheelchair at school anymore so I just rough it through the pain till I can’t walk at all.
So please! Don’t question someone when they say they have a disability even if you can’t see it at that time.
I just wanna tell a story here cause it kinda fits the topic. I have celiac disease (for people who don’t know I’m basically gluten free and if I eat gluten I get VERY sick) today at my school there was a completion type thing, anyways my class won. The reward for it was suckers with no brand, ingredients, or any other markings on the individual wrappers, so of course as I usually do, I tried to find the original package they all came in. I went to the office and to no surprise they had thrown it out. Now one of the reasons I’m upset about this is that I’m not even the only gluten free person in my class alone. They offered me a basket of snacks and asked if I could have any, as expected there wasn’t ANYTHING gluten free. In summery, my school doesn’t care enough to offer snacks that all the students can eat, and I had to watch my class have a reward while I couldn’t. Thank you for coming to my tedtalk.
Yeah that sounds about right. Im sorry you all have to deal with that. It can really suck.
Yeh this is schools for u . My sons are the same with nuts x
This happens far too often, I'm very sorry. I have a kiddo w a rare genetic condition that eliminates many foods from being consumed by her. The school doesn't care.
Even before she was dx I was always cognizant of any classmates with allergies or conditions and made sure that I brought items they could have. But not a single parent has ever done that for my child. She's 11, and like you just sits there. They might give her a toy prize or something instead. God forbid they grab something from the approved list I painstakingly typed up for them that they asked for.
Lollipops dont have wheat in them
@@YourDailyDoseofJillish You're right but if they are made in a facility where they make other candies that do have gluten in them theres a chance the gluten will get in the lollipops and I cant take that chance
2:00 man I feel really bad for her I mean she can’t even keep her hand straight.. most of us have it quite easy.
Spinal cord injury here, & I related so much to seeing that.
I'm lucky to have regained the use of my legs (on good days), & I don't like to be ungrateful, but having to sometimes ask my husband to cut my food up for me, or a stranger in the supermarket to open a bag from the veggie-section roll for me because I've been trying for 6 minutes straight + just _can't_ , truly sucks.
Hands that you can't control are the absolute pits.
ya ur right some people do, i used to get upset at people who complain about the lowest of stuff like not gettjng what they want for christmas or cant eat their favorite food cuz someoen said no or the palce it closed or jsut stupid stuff, and yet theres some of us like myself who struggle daily with things and are so sick we barly can get out of bed , i have tremors it seems thats what she has or something similar not sure but shaking like that sucks,
couldnt drink from cup of water or pick up stuff, shaking while trying to text or get dress or eat food . use cups with straws now becuse its easier even though my shaking gotten better its now permanent. anyway ya ur right. i wish people wouldn't things they have for granted
That first one was just ✨perfection✨
hi! would you mind warning when there's gonna be someone ticking in a video? i have tics and they get really bad when i see someone else tic. thank you!
This is the first time I got tic in a while
I didn't know there were gonna be tics and I was already having a bad tic day... Now it's worse... -_-
Virtual hugs 🤗
Same 😩
Woah, you learn something new everyday; I didn't know that could happen
The last one with the animals is so heart warming. Animals are such precious creatures.
Things I have: Sensory processing disorder, anxiety, social anxiety, adhd
Oh the pain scale is always fun. My normal everyday pain is around what most people would consider a 5-6. Fun side effect of this, I will injure myself be like “eh, I feel worse every day than this.” And continue. I’ve almost torn a muscle off the bone doing that.
Same playing is it broken or just sprained is the story of my life 😅
Yep, I have a chronic complex spinal injury & any day under a 5 is a "no pain" day.
Makes it very difficult to report accurately at the hospital, regardless of whether the specific issue I'm there for is relating to my injury or not.
The last time I was in hospital for my spine was the time I got the best quality attention + validation from an ER registrar that I ever have, when partway through the evening he checked in with me to ask for like the 5th time by then to rate my pain at that point, & when I replied, "Still a 7," he said, "Okay, but I just watched you writhing from a distance, & we don't generally consider spontaneous bed-dancing a 7, so."
Guy's attention to detail saw me getting a prescription to try the medication that worked the best for me that anything had in 6 years at that point, & is still 1 of my most important partner medications today.
Legit changed my life.
At 4:50 I completely understand the girl. People are so noisy and think they’re some kind of doctor that knows exactly how to “fix” me. They just can’t seem to understand that I can’t walk straight because my spine isn’t straight. And every time I walk and I kinda stumble and move side to side and everyone thinks I’m intoxicated. Like the fxck. I’m so self conscious about that now that I stick to my wheelchair a lot more than walking. And I don’t want to go out because people continuously stare at me and ask THE MOST personal questions ever. Like please mind your business and if you ask a question ask it nicely and don’t stare because that could make someone extremely uncomfortable. Oh and hi everyone and anyone who sees this ☺️💞, I’m Madison how are you?
I wish I could get rid of the toxic people in my life. Unfortunately they kinda are a part of me. I have Bipolar Disorder and my toxic people happen to be my manic and depressive selves.
Oh hi-
Have a nice rest of your day/evening :)
So I got a kinda funny story and now the story so one day me and my family whent to a restaurant and I had to take my meds (threw shots) and the elderly people behind me were staring very intensely at me so while I was doing the shot I turned the insulin pen to where they could see that it says "insulin" very big and clear qnd I could here them whispering to each other that they were wrong and me and my brother were just laughing
I’m a diabetic too! Are you type one or two? I am type one :) I just got an omnipod and I am so excited!!
@@typeonerose3271 im type 1 too and iv had an omni for about a year and a half and they are amazing
Hey there ! I am a type 1 diabetic too. I know how people get too curious about the shots, and then we have to explain. Once, a girl spread the rumour about type 1 diabetes being contagious when l was in the third grade, so people kept away from me , its kinda funny that they believed her. It has been 9 years since my diabetes was detected, and now the judgy eyes feel sort of normal.
I have autism it’s not a mental illness though it’s a condition that just makes me think differently and understand things different
yes ur right its not mental disorder, i have autism too , its actually called neurological disorder it's litterally how ur brain formed when u were still developing inside ur mother tummy, i dont know why everyone thinks its a mental disorder.
Same here I’m autistic and I’m proud of my brain.
@@andreasanchez1453 oh I sold my brain cus I don’t think I need it
Second one I suffer a mystery stomach problem that leaves me horroric pain, I'm screaming my head off and balling my eyes out from crying
Do you have specific triggers? Like certains foods or does it happen at random times. Knowing even stuff as broad as that could help narrow it down and be less of a mystery. Hope you figure it out
same, i went through years of testing and nothing came up. we figured out it was IBS. the reason we didn’t think of that was bc most people with IBS get diarrhea and maybe a little pain, whereas i have lots of pain and rarely get diarrhea. still working on getting it better, but avoiding dairy and getting my anxiety under control has helped a ton (anxiety and dairy are my main triggers). hang in there!!
@@hailey51422 The pain is in the middle of my stomach
Yeah, Ive recently started experiencing something similar. Scared to go to the doctor that they'll just tell me its bad gad
I enjoy watching these it helps me a lot it can be overwhelming when people just think your “complaining” or lying or just faking it WELP the. My chronic disease be like WHY HELLO but no one would know u^u
The pain scale! I live with chronic pain my whole life. While I was in active labor I called the hospital to say I was coming in because I was in labor. The nurse on the phone didn't believe me. She said if I was in labor I wouldn't be able to speak. I tried to tell her I have a high pain tolerance. She still didn't believe me and told me to stay home and call my Dr in the morning. Good thing I didn't listen. My daughter was born an hour and a half later. Everything went OK. But if I had stayed home who knows...
I’m so glad I saw this. I’m so tired of my family (who are used to me always taking care of everyone) don’t believe, or it seems care, that I’m in constant pain so I’ve learned to hide it and cry in the shower.
I have friedreich ataxia, and a bit after I hit puberty it got so bad that I eventually couldnt even hold my own weigh anymore.
Crutches were useless and medication wasn't helping, we decided to go for a wheelchair almost 2 years ago. My body on the other hand was not cooperating with it at all- it's not used to the lack of movement so I started having problems with my blood circulation :')
I also developed a circulatory disorder, it clogs the vessels and weakens the heart muscle meaning the brain is less supplied with blood. Therefore I get a lot of headaches, some difficulty breathing, and the usual good old back pains.
My medication is covering most of my symptoms but not everything, I can't take anymore though, Since It was already hard enough to find some that I didn't react badly to. 😅
(sorry for my little ramble -
I hope you find something that really works!
I really hope that things work out for you!
I have FND and one of my fun (sarcasm) symptoms is I can pass out/go unresponsive at any time but it only happened when I was under a severe amount of stress from being really sick. One EMT didn’t believe me so he did a sternum rub not once but 5 times increasing pressure each time to where he nearly broke my ribs and severely bruised my sternum and most my rib because of his inability to control himself. He has a problem with people “faking” illnesses for “attention” (these were his words). He also stabbed my fingertip, 2 of my toes and raked something sharp on the arch of my foot. I woke up bleeding and in extreme pain but unable to talk due to my FND. This was all told to me by a nurse who documented everything. I was so bruised, couldn’t walk or breathe for over a week.
sorry u had to deal with that. where i live emt and doctors will do many test to see if a patient is faking due to how many fake calls they actually do get for people that just want a ride or place to stay. i havent heard it for that condition u have though mainly for people faking seizures , emt and doctors dont want to be wasting their time when they can help those who need it , a guy in homeless shelter i was at few years ago was faking a seizure so he can not have to leave during the day as it was a rule u had to, emt came in and do the chest rub when a person is unconscious however this guy woke right up complained and waked out, another guy harmed another homeless person and was getting kicked out by cops and staff and layed on floor saying call emt because he was having a seizure, to avoid jail. it dose happen and they do have to test at times but what it seems like was ur emt was having a very bad day and they shouldn't have done that to u. i agree it ok to test things out but never keep on calling someone a faker or ignore them. i hope u havent been through that again. i had a horrible doctor once not believe a health issue of mine and my mother drove all the way from another town to get involved with that doctor ,he was being rude and not listen, i was admitted to hospital and turns out everything i said was right. some doctors are just jerks. sorry so long rant
I have Exercise Induced Anaphylaxis, and have been resistant to every treatment so far. I look perfectly normal until my heart rate rises and my body perceives something as "exercise". Sometimes, nothing will happen. Other times, I'll begin going into anaphylaxis. So yes, I take breaks, can't walk with my kids, or ride bikes with them, can't play with them as they are playing at the park.
I mask pain too! I didn’t know when I had a tooth abscess
I feel this. I walked around with an infected wisdom tooth for like three years with barely minimal pain. When I finally got them pulled I then had to deal with a dry socket on the badly infected side. Everyone kept telling me “oh if it was a dry socket you’d be on the floor screaming and crying with you face feeling like it’s melting” no one believed me, I lived through a whole weekend and when I went back in on that Monday they had to pack it and give me more antibiotics and the dental surgeons could not believe I was up and walking and functioning with a dry socket when most people would pass out, he had given me pain meds after the surgery and he was surprised that I hadn’t taken like 30 mg (they were 10/325 hydros/Tylenol ) of my pills at once, his eyes went huge when we told him I’d been halving them to make them last longer.
Oh. My. GOODNESS! I totally feel the "if you try this (insert BS snake oil here) an you'll be cured!" It's insane how often I get folks on FB suddenly pepper my feed with so much "health guru wisdom" its mind boggling. The only one that beats it is "You don't look like your ill an need a service dog." 😤
The hand one made me feel her pain
Get your blankies and huggies ticket here!
I need one 🥰
@@jorjapanda1224 Here you go!
Do you have weighted blankets? I really want one for le sensory issues
@@fjakjcwjcjjwjcch Sure! They’re in the back
Nuggets over hereeeee shoot were out how are fries? 🍟🍟🍟🍟🍟🍟🍟🍟🍟🍟
I have fibromyalgia. Here’s the definition for those that don’t know: “Fibromyalgia is a disorder characterized by widespread musculoskeletal pain accompanied by fatigue, sleep, memory and mood issues. Researchers believe that fibromyalgia amplifies painful sensations by affecting the way your brain and spinal cord process painful and nonpainful signals.” On an average day my pain level would be a “normal” persons 6-7. So the pain scale is bs (as most of you have agreed). Every day doing the simplest tasks put me in pain. Laundry, in pain, dishes, in pain, vacuuming, in pain, grocery shopping, in pain. I’ve dealt with this for about 5 years now so it’s become my new normal. I usually try to hide the amount of pain I’m in because it’s an invisible illness and I’ve had so many people tell me I’m just faking it for attention. Some days I can’t even get out of bed without an immense amount of pain but I still go through my day like nothing is wrong. I’m so tired of people thinking that just because they don’t see the illness/disability, it’s not real. Along with other medical s**t I have wrong with me, living is a struggle some days. Some days I just want the pain to go away, to just stop. I’ve tried so many different medications and almost all of them have caused something flare up so I’ve just stopped taking meds. I know that’s probably not a good idea but I’m so tired of things that are supposed to help me, actually making things worse. Sorry for my little rant, I just want people to understand that there are people out there that are struggling with a medical condition but you can’t see it because it’s not physical but it’s none the less real.
Oh honey that girl changing her NG tube shaking it’s okay and I am thankful for those out there chronically ill that post about their struggles and try educating others; how I wish things were a bit different a few years ago for me (I’m not saying things are perfect but at least some of the time people understand it more) I’d made so many friends and feel more at ease that I would know I wasn’t alone in the struggle, in the battle when I was laying in hospital bed and with some...staff mistreating me. Not everyone but some that unfortunately had an impact on me and my care and scarred me. How things have changed in a couple years, with the impact of more education readily bailable to anyone who has a device with internet at least my (unfortunate) but recent hospital experiences haven’t been as bad as opposed to a few years ago and I’ve seen people in same ward as me with same thing and would they had been there a few years prior...things would have been so different. I’m glad they weren’t; I don’t want people to have to go through the pain and the hell of what I endured of the neglect, the misunderstanding, shouting you’re faking it basically, and be on brim of death, and not,....it’s a long story. It just makes me tear up in both senses I shouldn’t have had gone through such and then seeing these people....I hope they’re hanging in there. Know you’re loved, by me. I understand your pain and though I wish to no one ever go through that I know in reality thousands probably do a day no matter if it’s in a hospital setting, home, at grocery, mall, anywhere besides when you’re by yourself and just feel like crying. But hang in there, don’t give up. We’re doing this together.
Wow the toxic person one... When I met my now-husband and was in a healthy and supportive relationship, my AI disease went into remission for 2 and a half years. It came back because of an accident and a bunch of unrelated stress, but he is still my #1 cure.
The girl with the horse and dog they can smell a chemical change in your body before you seize. I know somebody who has a seizure dog and he smells her chem changed and he jumps up on het puts his paws on her shoulders and she knows she needs to sit down, he then proceeds to lay on top of her protecting her. it is the sweetest thing ever.
I have extreme depression, and throughout this I smile to make everyone get off my back. But now, no one even hangs out with me or is there for me. Smiling does not mean im not suffering and could use a friend.
I hate it when able-bodied and even some disabled people say “stop playing the victim” BRO I AM *DISABLED* STFU
SAME like serisouly??? it's ok to need support!!! it's ok to struggle!!!! the whole "you're playing the victim" thing seriously pisses me off
Yeah! we all experience things differently if they reach the point in their lives were they are able to accept their disabilities/chronic illness without complaining about something, they still need to understand that there are people who are still on the process, oh and I also hate that sort of competition with the symptoms and surgeries like if say “I’m afraid cuz this will be my second surgery” people go like “oh come on! is just the second one? I’m going for the 10th one”
Chronic illness sucks. I have UCTD and an assortment of health problems its caused over the years. Doing meal prep sitting down is such a good hack.
I had a friend who claimed I didn't value our friendship because I wasn't able to join her at the gym and complete a work out program she had decided to make for me whenever she wanted to go... She asked me for proof in writing from my doctor...
I have fibromyalgia and a slight scolioses that's not visible because mine doesn't involve the actual spine being twisted but some of my vertebras are twisted causing preassure on my back muscles as they swell for over working them.
I was also kicked out of the system completely because the authorities couldn't agree on where to go from here so I was basically kicked out with no disability, no benefits, no help to find work and so I was forced basically to be a housewife and we live off of my hubby's salary... If he had decided not to do it I'd be homeless with nothing at all. Thankfully love is still very much in our life and he's never been mad at me. Only at society.
We have tens of thousands of people here in Sweden in the same boat as me :(
5:02 Why are her ticks so innocent!
What do you mean innocent?
@@saltydinonuggies1841 I think what Emma ment is that very often ticks include things like "flipping the bird" and sayin f*ck you and all other offensive things which come out even more when they try their best to not say them.
@@outikoo9244 the only time they cuss is when they coprolalia
As someone who has MS(multiple sclerosis) Hashimoto's, Crohn's, thank you for making me feel visible 🧡
Do you have diabetes too? There seems to be a high correlation between MS and women with diabetes.
I highly doubt the guy who has ankylosing spondilytis will see this but if he does, my mum is now 65 and still able to move around and be reletavely stable i hope the same goes for you
Oh... so my job IS trying to kill me with stress. Great... Cyclic vomiting syndrome on top of seizures and chronic nerve pain. No wonder why it got worse over the last few months.
3:45 oh my god her voice is incredible and shes amazing ❤️😍
It's an audio she used it's not really her voice
the one about the pain scale is so RIGHT. im in hell tonite but i would only report it as a 7.5 . if the ER could do anything for my pain, i would be there right now........this is BAD
7:44 im 24 and was "diagnosed" (saying it like that cuz the stupid doctors didnt put it with my diagnoses just left it in notes) with multilevel spondylosis and retrolisthesis a couple years ago, at moment still waiting to be tested for other issues such as
I feel awful for the woman at 0:56. I too at the age of five had corrective surgery for bladder reflux. I have an identical scar to my mom who had a c-section. I hope I never come across such an unprofessional nurse who would cause harm because she didn’t believe me
For the one talking about pain scale- YES! Finally I’m hearing someone else say this
But why does the dog/horse one always make me cry.
In like may this year I started frequently fainting and stuff. Fast forward to August after I've seen a cardiologist and a audiologist, they couldn't find anything so my primary care said I had anemia and a vitamin B deficiency. Fast forward to October, I've been on the meds a good amount of time so she told me I could stop taking them. I do, but the symptoms don't resolve. Now I'm seeing a therapist for possible psychological issues. Now, they haven't given answers whatsoever. The only thing I can think of this possibly being is POTS (postural orthostatic tachycardia syndrome). It's really tiring not knowing why I feel like shit all the time. I'm barely at school anymore, and everyone is worried. Now, I've developed depression and anxiety. Then ive gotta deal with Karen's saying "your not sick" or "you don't look sick". It's very annoying.
I had a phone call last week with a distance education company that I hadn’t talked to in 4 years and before I went on disability. I told her I wasn’t interested and when she asked why I said I had been on disability for a year and a half. She then said “oh I’m sorry… actually I’m not sorry since you’re alive”…. Like what the heck?!
For tourettes I think if you tick a lot in your sleep you could be having a seizure but I’m not sure so don’t come for me on that, but if I am right you should probably see a doctor if that’s happening
Tics do not go away during light sleep but are often significantly diminished; they go away completely in deep sleep. Although the symptoms of TS are unwanted and unintentional (called involuntary), some people can suppress or otherwise manage their tics to minimize their impact on functioning. motor tics have been reported to persist during sleep.
0:05 this is my mom on all levels
Who else wants to buy Dr. Mitchell a beer, just on the strength of that 1 video?
Man out here sharing critical knowledge.
I appreciate the video! Just a reminder, if you put a video with tics please put a warning because those often trigger tics in people who have tics already. I would really appreciate some notice next time :))))
So I went to the doctor about 2 weeks ago and she diagnosed me with H pylori virus and the symptoms of H pylori is loss of appetite, frequent burping, bloating, weight loss, stomach pain that worsens when your stomach is empty. And aching or burning in your stomach. I had no symptoms of it. I initially went in because I had swallowing difficulties. I had an endoscopy. That is when the doctors take a scope and look at your esophagus, your stomach, your intestines and the results come back clear. This doctor diagnosed me with this condition and prescribed me antibiotics and I feel nauseous, vomiting and diarrhea. These are the common side effects of taking antibiotics. Now this wasn't even my regular doctor, this was the assistant. I feel like she was so focused on giving me a diagnosis then actually diagnosing me correctly. Then I asked her for a barium swallow test that is when they measure how everything moves in your esophagus. She said no because I already had the endoscopy. Then her supervisor came in and said yes, go ahead and give her the barium swallow test and give her antibiotics for the stomach infection but he only said that because she told him that I had a stomach infection. He agreed with me on the barium swallow test. Today I went to my primary care doctor and I couldn't even get through the story once she figured out that I stopped taking the antibiotics she just stared at me with this judgmental look and the more that I try to explain why I stopped taking the antibiotics and why I believe that I don't have H pylori the more she kept judging me. She then told me to keep taking the antibiotics. I stopped taking them for 3 days once the side effects got worse. So at this point it makes it hard for me to talk about what I have wrong with me out of fear that I'm going to be judged and doctors are going to say that I'm wrong and they're right. I think it's so important for both parties, the doctor and the patient, to hear each other out so they can come to an agreement, not the doctor thinking that they know everything and don't listen to the patient. I feel like nowadays doctors, nurses, and assistance blow us off and then by the time we get the help that we need we are in worse shape or knocking on death's door. We might be the patient and the doctors might have studied for their career but I feel like at the end of the day we know our bodies. Should I listen to the doctors or should I listen to my gut? I just want to feel safe, comfortable, heard and treated for my health issues. So let me know what you guys think agree to disagree sorry for the long story but thank you guys for listening
I hope that all of y'all get better in time and you fight for what's right.🤗❤️💕💙. Ps I use way to many emojis sorry
Pain scale answer for me at the Dr is always "pain level what it would be of I was not use to it or the level I'm used to since that is a difference if breathing or not"
The pain scale is shit..... My kidney stones are an 8 for me but if u hunch and bend like an armadillo I can mask very well
Not all of these are invisible illnesses but I like the idea behind the video. Thanks
With they gurl who was changing her patch thing for her feeding tube, she was shaking so much
People with terrets (uncontrollable movements)are amazing!!!!So don't ever judge a book by its cover and don't make fun of others because we are all very unique in our own way.You also never know what others are going through.
Me watching the Tourette’s one, immediately starts ticking too 😂 gotta love this illness (no not really tho)
Same
My dad has thyroid problems he has to take meds for, bad arthritis in his feet and really bad in his back and neck, and chronic headaches. My mom has epilepsy and ulcerative colitis. Luckily, I seem to be fine except for my depression, anxiety, and ticcing *sigh*
Last one though. Love animals for being our companions
Is it just me or do those memes about people in wheelchairs standing up, like it's some big shock and super suspicious!! Just kinda really annoying? It just perpetuates the myth that only people who are unable to walk or use their legs can use wheelchairs. Same with the memes about blind people using the internet and phones, like...they can also use those things :V doesn't mean they're faking.
My dad is in a wheelchair and he uses his crutches to get his wheelchair in the trunk of the car and crutch the the drivers seat (he has hand controls and he is way too stubborn to get a van/we can't afford a van) one time tho I had a seizure (I recently got diagnosed with epilepsy which that is a long story too) and he allegedly hopped outta his chair to turn me on my side
12:08 I love how the horse also notices and stops
for the last one! animals can actually smell your blood sugar changing, and pick up on a lot of things humans cant without machines, which is actually why animals like dogs and cats are amazing service animals! your horse probably understood that as well if they have seen you pass out before and picked up on what your dog was alerting to. you dont have to train service animals to do service animal things if there is already one around. my sister has a service dog that she left behind until she has a proper home where she is now, and this dog has saved my life from my hypoglycemia many times, in fact saving my nana as well. her kissing me and laying on me for DPT when i am having a meltdown/panic attack from autism/ptsd has traveled to my other little dog, who is very dumb, and she has kept me from very bad episodes. animals are amazing!
My best friend who is 4 years older has autisum and wears a sunflower lanyard my other BFF has it too and is getting one soon
Ok the dog and the horse both taking care of their owner was super cool, like I know the dog is trained for it but even the horse picked up on it and stopped walking
i love this vid
I get sick constantly and I don’t know why. It’s getting to the point where I think something might be wrong. Ive gotten sick every month from august except November now. I was hit really hard by covid and I’m still not completely recovered. My taste and smell are still gone. And my breathing is weird now. It doesn’t hurt me but it’s irritating.
I remember someone talking about this MCAS? or something immunie system disorders or dysanutioma
As someone with tourettes, it is always a joy to meet fellow people with tourettes, I have 2 other friends with it and we meet up frequently and create chaos, yes we get stared at but we don't really care.
Hey, to all the people out there with all the illnesses, we all feel very bad for you VERY!! but i really don want to give you a (I feel bad or poor girl or he must be suffering.) you might be, but im not the kind of person to make you feel like you have to give up or you have to have simapthy to make yourself feel better. im really sorry you have to go through all of this but you must know that you can fight this and things will get better!
Ha thinking back now I wonder if my pain tolerance being so high is why my 7+pound ovarion cyst went missed for a YEAR!
it's not a chronic illness or anything, no where near as bad as these at least. But I literally have people telling me not to take iron supplements for my anaemia.
I work in aged care. These are patient's family members. They are telling A HEALTH CARE PROFESSIONAL NOT TO TAKE TABLETS THAT WILL LITERALLY GIVE ME WHAT I REQUIRE TO LIVE AND BREATH.
and it gets even worse....nurses that i work with were telling me to just "eat more meat". Bitch, you don't think I've eaten all the meat? leafy greens? "iron rich foods" literally EVERYONE has recommended? I take iron ON TOP of an iron rich diet...and then at my next blood tests i still barely reach bare minimum.....just annoying
(for context, a normal range for iron is 60-170mcg/dL. i think I was sitting at
I know I get dirty looks if I park in a disabled space, but then they don’t see that by the time I walk as much as needed to get essentials I have to sit in my car for who knows how long before I can stand up again to put said groceries into my car
8:34
A couple months ago I had a throat injury from singing out of my range for a prolonged period of time. I was out of school for over a week and refused to eat my birthday cake because I was in too much pain. On my birthday, we went to see the only available doctor at my primary care facility. On my pain scale, I was at a 9- in excruciating pain (it would reach a 10 that night). I never told him how much pain I was in (I really didn’t want to talk). Because I was in a social setting and I did not want attention, I was putting on the mask that I use in my day-to-day social life. This completely disguised my pain. The doctor kept insisting it was strep throat, even after we explained to him over and over that it was an internal injury. Low and behold, when my strep test came back negative, the doctor refused to give me a painkiller prescription. I went home that night unable to even cry from pain because it would hurt even more. Plus, we wasted how much money going to see a doctor who wouldn’t listen?
I see, a fellow American who has to pay for help...
did you ever find out what was actually the problem? did you pull a cord?
I have type 1 diabetes which is a invisible disability (unless you have visible technology like a insulin pump) and oh boy the 'you don't look sick' makes me so mad i could spit- yeah i know i don't and i don't care if your dog has diabetes im sorry.
The first one… I felt that one
I haven't been diagnosed with anything but even before the person with tourettes said they had tourettes I just saw them to k and my tick started acting up. I really wanna get tested/diagnosed but my parents don't believe me.
I have a vitamin deficiency disorder. I have several issues as a result. I need glasses, I have asthma, I cant handle heat well, I get dehydrated easily, I get exhausted easily, but the one thing everyone can see is how unbelievably pale I am. Just look at my profile pic, look at my surroundings, there's no filter. I get comments all the damn time to tan more. Im from Florida and I got looks all the time from people. Id have people recommend tanning beds. I cannot tan. I dont have pigment. You can literally see my veins through my skin I do not have pigment.
5:07
Hewo fellows people with turrets and ticing disorders.... ummm question I have had my tics for about 7 to 8 months now and I'm in the middle of getting things figured out but my meds aren't working very well anymore how would you all suggest I handle them while in my classes? Because I'm struggling and I have this one where I tend to try and punch what is next to my and one where i try to bang my head on the table or whatever is in front of me... I just need so advice.
I hate having a invisible illness
I have tics (i don't knos the cause so please do not say i have tourettes)
One i have sometimes (not alot) is flipping people off...one day it happend by my mum
Keep on going you got this
I was born with a heart condition 😢it’s was life threatening 😞🥺
I have ptsd and depression. And social anxiety
The woman doing the splits around 4:40/4:50 made me smile. Like it’s such a sad thing but I have a chiari malformation and people do that all the time. Like people (even doctors) do it. It’s just like that is NOT how this works! Stoppppp being ignorant. Thank you to the lady in the splits, you made me feel whole.
Bruh, my levothyroxine does pretty much nothing for me. I passed out 3 times today because I am so exhausted.
Try a natural thyroid supplement! I had to shop around to find one that worked/didnt make me nauseous, but I love the solaray one I'm taking rn! The Armor one made me almost puke every morning though. Just make sure it has actual thyroid tissue in it
Obsessed with videos ❤️❤️
5:09
This person has recently been diagnosed with Tourette Syndrome so the misinformation is understandable, but I need to clear this up. I’m a Sophomore in high school and I’ve been diagnosed with Tourette Syndrome since I was around four or five. (I can’t quite remember and I have an atrocious memory so I stopped asking my mom.)
You do NOT grow out of Tourette Syndrome by puberty. When I was in sixth grade I had heard that by puberty Tourette Syndrome could actually either get worse or get better, and I’m not sure if any of that was correct or not because my tics are still varying and going back and forth between “better” and “worse” to this day.
What I do absolutely know though, is that you never grow out of Tourette Syndrome. It can be treated so true symptoms may decrease, and as you grow into adulthood your case may begin to seem more mild, but it will always be there. Tourette Syndrome doesn’t disappear. If it does, you don’t have Tourette’s, you have a tic disorder. They are two different things.
(P.S. it’s also very likely this person has a tic disorder. Tourette Syndrome can be *diagnosed* late in life due to a large array of reasons, but you are *born* with it. You don’t develop Tourette Syndrome. This person most likely has a tic disorder, not TS. There’s little to no awareness for the difference between the two so I don’t blame them for not being aware, but there is no way they have Tourette Syndrome if they only started getting symptoms at 17.)
You should look into tourette action, they are finding that rhythmic pulses to the wrist help tics. I gotta disagree about one thing, You may be born with it but tourettes can manifest later in life. My neighbour wasn't diagnosed until 16.
@@parisinthe30sx No, you cannot manifest later in life. You can be diagnosed later in life for a multitude of different reasons, but the TS was there since birth.
It is 1000% incorrect to say you aren’t born with Tourette’s. Please check out the official website on Tourette’s Association of America where they can provide some more information.
@@mxdhxtter1259 tourette's can manifest between the ages of 1-17 so yes people can develop it alittle latter. Also, people with tourette's can outgrow their tics it typically happens around teenage years to Adulthood. Someone growing out of tourette's later in life doesn't disqualify them from previously having tourette's and that it was a tic disorder and not tourette's since the diagnostic criteria for tourette's is
●two or more motor tic/one or vocal tics
●had tics for atleast a year
●have tics that begin before the age of 18
●have symptoms that aren't due to medication or medication condition for example: seizures, huntington disease, postviral encephalitis.
@@mikaelathompson You can’t outgrow tics. It doesn’t work like that. They don’t just go away one day. Don’t spread misinformation.
@@mxdhxtter1259 actually they can and it's been proven that and form of tic disorder can be outgrown but there is a high possibility of it coming back. Also, how about you ask the thousands of adults now that don't have tics anymore you just calling them insane or calling yourself ignorant because you chose not to do research.
I can relate to the adjustable pain scale.