Just got out of the hospital yesterday after 1 month being hospitalized, i did every treatment in this video, now im home on some medication, i can walk now and stand but not for very long, when i first got to the hospital i couldnt move anything at all from under my arms to my toes everything was paralyzed they did blood plasma transfusion and after 2 weeks i started to walk again, everything has to do with the mind you have to be determined to walk again and believe you will, they told me i was never going to walk again and now i walk with a cane, i have alot of pills to take and also i have physiotherapy to do i also have a catherder because i can not pee on my own but in about two weeks in going back to the hospital to see if i can pee without it, right now mentally im tired i sleep 3hs a night because the pills give me a big high rush so im very tired very weak and even tho i am still numbs and my whole body vibrates i still get up walk around and to my exercises because i have alot of will and determination to walk and have my lide back im only 30 years old
In March of this year I came home from playing softball and my feet were numb, after going to a chiropractor, a spine specialist,neurologist, 6 MRIs a spinal tap, steroids a specialist finally diagnosed me with transverse myelitis. I was in a wheelchair within 4 weeks and the only thing they told me to do was rehab physical therapy. which has been the best thing for me. I'm now walking with a walker, still using the wheelchair a little bit, but I feel that my body is healing itself and coming back online. it is different for everybody but the doctors don't really know a whole lot about this so don't give up, get your body strong and get all the research that you can find on it for your case. I was constipated for a little bit, I didn't have bladder problems.
@@leviticacaz6899 I tried baclofen for a short time for my spasms but it didn't help. so I got off of it pretty quick. I am walking now, but still rehabbing for strength.
You didn't have steroid treatments? Or any treatments?? You must have strong willpower or be a favorite of the Lord's. --- My son was just told he has this, he received the steriod treatment. There is some improvement. Do you take tumeric or any kind of supplement?
I had a lesion on my entire cervical spine due to this a year ago- I couldn’t walk, couldn’t use my right arm or feel anything on my left side. Doctors didn’t know why. I did steroid infusions and it cleared up entirely a few months later. Now, three months ago I started having a major number neurological symptoms again. No new lesions, but now I have oligoclonal banding that wasn’t there last year. I thought I was done with this- the doctors aren’t sure what is happening. I’ve been tested for everything under the sun and they want to tentatively diagnose me with MS and treat me with Ocrevus…I’m just so tired of this. I just want to know why this is happening
So sorry to hear this for you. Did you know you had a 'lump' on your spine before it covered the entire spine? We are praying that MAYBE we caught it in time, for my son; but not a lot of improvement after the IV steroid infusions. I wish you the best and hope for positive results in your favor.
@@krsrv1255 i dnt knw bt may be they r giving me steroids. M still hospitalized. I just need ur blessings. M too young 😔. Can't bear this pain. So plzz bless me or give me some advice to recover soon.
I've had it for past 5 months. I can walk with a walker and for short distances without a walker. But I still have a lot of pain in my hands, arms, elbows, feet. Still have urinary problems peeing all the time and constipation as well. I try to stay active...hope this eventually gets better...we'll see...
@michaelorsini9695 I'm really sorry to hear you're dealing with so many difficult symptoms. It sounds like you're going through a challenging time with pain, mobility issues, and other symptoms affecting your daily life. Staying as active as you can is a great approach, but it might be helpful to consult with a specialist who can provide a more specific treatment plan or further investigation into what might be causing all of these issues. It’s important to address not just the symptoms, but the root cause, which may require a combination of treatments. I hope things improve for you soon, and remember to take it one day at a time. You’re strong, and seeking the right support is key. 💙
@@soulfultiny8210 yes by grace of almighty i am fone now. Department bof neurology DMC Ludhiyana, Punjab has got expert doctors for treatment of this problem. And physiotherapy on regular basis helped me. From past 2 years I am fine But back pains and stiffness becomes a part of life even after recovering from TM
A member of my family has this. He just finished the steroid infusions. There is improvement; but not completely, yet. Does anyone know if taking tumeric/ curcumin/black pepper combo might help with this not recurring?
Anyone else here wondering if you have it but unsure because your symptoms are not severe, but still troubling? Like strong leg pain ? I ended up in ER and could barely walk last year. Gradually got better, did PT. but it crept up again.
I've had this when I was 12. Now Im 47. Most people never fully recover. Neither did I. In my case It was a virus sort of flue infection that caused it
I was just diagnosed with this and they immediately told me I'm going to be in the hospital for 5 days doing IV injection steroids I wanted to know if any of you have used this to treat this condition.
My son just had the 5 day, 1,000 mg. steroid IV treatment. He has had some improvement. The doctor said the steroids would continue to work for a couple of more months. That much of a high powered dose of steroids is dangerous for the kidneys. - I wish you good luck. What was the results?
Diagnosing transverse myelitis, an inflammation of the spinal cord, can be challenging due to its varied symptoms, which may include weakness, numbness, and loss of function below the affected area. The diagnosis typically involves a combination of a detailed medical history, neurological examination, MRI scans to look for spinal cord inflammation, and possibly a lumbar puncture to analyze cerebrospinal fluid for signs of infection or immune response. Blood tests may also be conducted to rule out other conditions. Because it mimics other neurological disorders, an accurate diagnosis often requires consultation with a neurologist.
Hi, I was diagnosed with TM in early 2020,I am suffering with all the symptoms, incontinence,weakness in my legs,an now I can not walk at all as calf muscle seems non existent an not working.i spent 2 weeks in hospital,they sent me home with no care plan or advice on how to cope or deal with this condition. Can anyone help an advise me to get through this condition please
Hey I got it to from a treatment from my cancer I have had it for almost a year now and they tell me I will never walk again something they also said is doing Physical therapy and occupational therapy will help it get better
Shane, start rehab as soon as you can. You to make new pathways to your legs. Basically going around the old nerves. Where was your legion on your spine?
Same here. I'm doing pelvic floor exercises to help with incontinence (urine) and eating a fiber-rich diet for constipation. It's not 4-5 times a week from 2 during my illness.
i had a covid infection in april 21 and then my myelitis which was not visible on the mri ear 2 months dependent on a wheelchair since november 21 i can walk again without help legs are still a little heavy and balance is still bad, i can’t run yet and Feet are still numb can it get better? many thanks for the help
@@TomTom-bf6fq I am 33 years old, I had covid on april 10 and i have been hospitalized from april 23 to 28. After 2 MRI, lumbar puncture and blood test the neurologist told me it was a myelitis. I have 2 lesion on my spine from c3 to c7 and from t3 to t11. Each week i can see some small progress. I work on construction, use to workout 5 days a week. Now i can’t work, can’t workout but atleast i can function alone.. I need to be reevaluate in the end of june to see if i can go back to work, but i don’t think ill be able from what i feel now..
@@simonpatenaude2797 I work in a office I can’t work 1 year i work since April 2023 again … I was train boxing with my kids bevor i had corona an then a fucking myelitis . Do you can running ?
I have lower back pain, my legs are weak and numb. My left arm is weak and trembeling. I'm so tired all the time. And everything started 10 days after second dose of Astra zeneca vaccine. I was healthy before. Now I hate my life, every morning starts with : sh..t, I'm still alive.
@@lidijabratic2712 Don't lose hope, I have been diagnosed 2 months ago and on medication still. I feel the same every morning but I'm not gonna give up. I started walking for 40mins which makes me far far better. Try doing it , go for rehab that may help you. Yes the lower backpain still exists for me too .
I hate the term "Idiopathic" for those of us who clearly had a reaction to some type vaccine. I got a flu shot and 4 days later no movement below waist.
@ELITETRADEr294 Methanol poisoning is a serious condition that occurs when methanol is ingested, often through contaminated alcohol or other substances. Symptoms include headache, dizziness, nausea, and in severe cases, organ damage. While raw fruits and vegetables are healthy and can help support overall health, they don’t treat methanol poisoning. Immediate medical attention is necessary if methanol poisoning is suspected, and treatment typically involves the administration of antidotes like fomepizole or ethanol, along with supportive care.
Just got out of the hospital yesterday after 1 month being hospitalized, i did every treatment in this video, now im home on some medication, i can walk now and stand but not for very long, when i first got to the hospital i couldnt move anything at all from under my arms to my toes everything was paralyzed they did blood plasma transfusion and after 2 weeks i started to walk again, everything has to do with the mind you have to be determined to walk again and believe you will, they told me i was never going to walk again and now i walk with a cane, i have alot of pills to take and also i have physiotherapy to do i also have a catherder because i can not pee on my own but in about two weeks in going back to the hospital to see if i can pee without it, right now mentally im tired i sleep 3hs a night because the pills give me a big high rush so im very tired very weak and even tho i am still numbs and my whole body vibrates i still get up walk around and to my exercises because i have alot of will and determination to walk and have my lide back im only 30 years old
Sorry about the condition, I'm glad you are staying strong and positive about it. Rooting for you to get better soon and thank you for sharing
How old are you?
Sounds hard, personally I'm experiencing all the symptoms of ALS. I wish I had your disease
I have this too! I'm only 39
@@siwa654no u don't
I was sick with this 2017 thank God I started walking 3 months later. I’m fully recovering with exercise now
Eat 100% grass fed raw meat and liver. Drink alot of 100% grass fed bone broth. Recover
How you recover
Please tell me...
@@smrutimuktasingh9567 aap ko bi tm hua hai kya
@@smrutimuktasingh9567 I took a whole bunch of anti inflammations, pain relievers and did wrestling bridge stretches for a period of 4 months
In March of this year I came home from playing softball and my feet were numb, after going to a chiropractor, a spine specialist,neurologist, 6 MRIs a spinal tap, steroids a specialist finally diagnosed me with transverse myelitis. I was in a wheelchair within 4 weeks and the only thing they told me to do was rehab physical therapy. which has been the best thing for me. I'm now walking with a walker, still using the wheelchair a little bit, but I feel that my body is healing itself and coming back online. it is different for everybody but the doctors don't really know a whole lot about this so don't give up, get your body strong and get all the research that you can find on it for your case. I was constipated for a little bit, I didn't have bladder problems.
Sorry about the experience. Glad you are better now
All you did was physical therapy????? No meds or anything ?
@@leviticacaz6899 I tried baclofen for a short time for my spasms but it didn't help. so I got off of it pretty quick. I am walking now, but still rehabbing for strength.
You didn't have steroid treatments? Or any treatments?? You must have strong willpower or be a favorite of the Lord's. --- My son was just told he has this, he received the steriod treatment. There is some improvement. Do you take tumeric or any kind of supplement?
@@Jackmanis You didn't receive steroid treatments?? Just rehab??
I an 12 years old and I was just got out of the hospital for the last 2 weeks and now is learning to walk again with out my walker
Sorry about your experience. Stay strong please.
I had a lesion on my entire cervical spine due to this a year ago- I couldn’t walk, couldn’t use my right arm or feel anything on my left side. Doctors didn’t know why. I did steroid infusions and it cleared up entirely a few months later. Now, three months ago I started having a major number neurological symptoms again. No new lesions, but now I have oligoclonal banding that wasn’t there last year. I thought I was done with this- the doctors aren’t sure what is happening. I’ve been tested for everything under the sun and they want to tentatively diagnose me with MS and treat me with Ocrevus…I’m just so tired of this. I just want to know why this is happening
So sorry to hear this for you. Did you know you had a 'lump' on your spine before it covered the entire spine? We are praying that MAYBE we caught it in time, for my son; but not a lot of improvement after the IV steroid infusions. I wish you the best and hope for positive results in your favor.
Did you get Covid Vaccine
M suffering with this disease plz bless me to heal myself.
Plz shower ur blessings
Have you been given IV steroids. ?
@@krsrv1255 i dnt knw bt may be they r giving me steroids.
M still hospitalized.
I just need ur blessings.
M too young 😔. Can't bear this pain.
So plzz bless me or give me some advice to recover soon.
@@soulfultiny8210 Blessings of God be with you. Be brave and Be positive. Believe in almighty. Every thing will be in your favor. Best wishes
@@krsrv1255 thank u so much brother.
Krishna bless u .
Thanks dear
Hello kumud are you are suffering from TM due to covid?
Thanks for sharing. I got Transverse myelitis I can’t event stand but now I recover already. I also share in my channel.
Please every good health
I'm so glad to hear about your recovery from Transverse Myelitis. Wishing you continued good health and happiness. ❤️
I've had it for past 5 months. I can walk with a walker and for short distances without a walker. But I still have a lot of pain in my hands, arms, elbows, feet. Still have urinary problems peeing all the time and constipation as well. I try to stay active...hope this eventually gets better...we'll see...
@michaelorsini9695 I'm really sorry to hear you're dealing with so many difficult symptoms. It sounds like you're going through a challenging time with pain, mobility issues, and other symptoms affecting your daily life. Staying as active as you can is a great approach, but it might be helpful to consult with a specialist who can provide a more specific treatment plan or further investigation into what might be causing all of these issues. It’s important to address not just the symptoms, but the root cause, which may require a combination of treatments. I hope things improve for you soon, and remember to take it one day at a time. You’re strong, and seeking the right support is key. 💙
Thank you for such a nice information
About 4 years I am paralyzed my right leg and back pain and doing physical therapy. I am getting batter but not fully recovered.
I have went through this.
It's been 2 years now.
R u ok now? How u feel now? Is everything alright? Plzz tell me cz m going through this
@@soulfultiny8210 yes by grace of almighty i am fone now. Department bof neurology DMC Ludhiyana, Punjab has got expert doctors for treatment of this problem. And physiotherapy on regular basis helped me. From past 2 years I am fine
But back pains and stiffness becomes a part of life even after recovering from TM
@@krsrv1255 ohhh..! Thnx for the info.
God bless u.
U'll always be fit&fine.
@@soulfultiny8210 thank you and I reciprocate same for you.
@@soulfultiny8210 do u have urinary problems still?
Thank you! from a fellow medical youtuber
you are welcome
Does supplementing with DHEA help?
Is stem cell injection can help.
A member of my family has this. He just finished the steroid infusions. There is improvement; but not completely, yet. Does anyone know if taking tumeric/ curcumin/black pepper combo might help with this not recurring?
Not really, go for plasma therapy.
I am suffering from this now. Spent 1 week in the hospital using my walker now but getting better after steroids.
Wishing you a smooth and speedy recovery ❤️
Best wishes and stay strong
Anyone else here wondering if you have it but unsure because your symptoms are not severe, but still troubling? Like strong leg pain ? I ended up in ER and could barely walk last year. Gradually got better, did PT. but it crept up again.
Let me guess did you have a covid vaccine right before all of your symptoms started?
I've had this when I was 12. Now Im 47. Most people never fully recover. Neither did I. In my case It was a virus sort of flue infection that caused it
Complete recovery?? Or not
Bowel bladder controling ability???
I was just diagnosed with this and they immediately told me I'm going to be in the hospital for 5 days doing IV injection steroids I wanted to know if any of you have used this to treat this condition.
Have you got result using this treatment??
My son just had the 5 day, 1,000 mg. steroid IV treatment. He has had some improvement. The doctor said the steroids would continue to work for a couple of more months. That much of a high powered dose of steroids is dangerous for the kidneys. - I wish you good luck. What was the results?
Is long segment myelitis & transverse myelitis same?
Is there anyone who got recovery after two years. If anyone please share how.
Then how do you come up with a diagnosis for this? Nobody seems to be able to answer that
Diagnosing transverse myelitis, an inflammation of the spinal cord, can be challenging due to its varied symptoms, which may include weakness, numbness, and loss of function below the affected area. The diagnosis typically involves a combination of a detailed medical history, neurological examination, MRI scans to look for spinal cord inflammation, and possibly a lumbar puncture to analyze cerebrospinal fluid for signs of infection or immune response. Blood tests may also be conducted to rule out other conditions. Because it mimics other neurological disorders, an accurate diagnosis often requires consultation with a neurologist.
@@MedicalCentric Thank you! I have lupus so I was hearing symptoms that are also very close to lupus 😎
Hi, I was diagnosed with TM in early 2020,I am suffering with all the symptoms, incontinence,weakness in my legs,an now I can not walk at all as calf muscle seems non existent an not working.i spent 2 weeks in hospital,they sent me home with no care plan or advice on how to cope or deal with this condition. Can anyone help an advise me to get through this condition please
Hey I got it to from a treatment from my cancer I have had it for almost a year now and they tell me I will never walk again something they also said is doing Physical therapy and occupational therapy will help it get better
Shane, start rehab as soon as you can. You to make new pathways to your legs. Basically going around the old nerves. Where was your legion on your spine?
I also recovered from TM but urine and constipation problem not gone properly
I m also a transverse mylittes patient can u tell me how u recovered from it please
Same here.
Kitna time hua apko myelitis k baad se ab tk?
Same here. I'm doing pelvic floor exercises to help with incontinence (urine) and eating a fiber-rich diet for constipation. It's not 4-5 times a week from 2 during my illness.
@@loseweightusingketo sometimes I lose to get proper instructions of pelvic exercises.
Can.u plz share a link of this exercise.
I want to make support group for people with TM. If anyone want to join reply
nice
i had a covid infection in april 21 and then my myelitis which was not visible on the mri ear 2 months dependent on a wheelchair since november 21 i can walk again without help legs are still a little heavy and balance is still bad, i can’t run yet and Feet are still numb can it get better?
many thanks for the help
From what I heard from the doc, it could take months.. Every central nervous system is different from people to people. Don’t give up my friend
@@simonpatenaude2797 I try it my friend I can walk without help but I can’t run
@@simonpatenaude2797 how old are you and how lang you had the myelitis
@@TomTom-bf6fq I am 33 years old, I had covid on april 10 and i have been hospitalized from april 23 to 28.
After 2 MRI, lumbar puncture and blood test the neurologist told me it was a myelitis. I have 2 lesion on my spine from c3 to c7 and from t3 to t11. Each week i can see some small progress.
I work on construction, use to workout 5 days a week. Now i can’t work, can’t workout but atleast i can function alone..
I need to be reevaluate in the end of june to see if i can go back to work, but i don’t think ill be able from what i feel now..
@@simonpatenaude2797 I work in a office I can’t work 1 year i work since April 2023 again … I was train boxing with my kids bevor i had corona an then a fucking myelitis . Do you can running ?
Make sure to add Covid and the Covid vaccine as causes
I guess so, I'm recently diagnosed with this disorder and looks like a roller coaster ride.
Amen! Ty for noticing 😇😇😇
I have lower back pain, my legs are weak and numb. My left arm is weak and trembeling. I'm so tired all the time. And everything started 10 days after second dose of Astra zeneca vaccine. I was healthy before. Now I hate my life, every morning starts with : sh..t, I'm still alive.
@@lidijabratic2712 Don't lose hope, I have been diagnosed 2 months ago and on medication still. I feel the same every morning but I'm not gonna give up.
I started walking for 40mins which makes me far far better. Try doing it , go for rehab that may help you.
Yes the lower backpain still exists for me too .
@@vivekbhaskar8528 what medication are you taking?
I have long segment myelitis
Please visit a doctor.
@@MedicalCentric I've visited & my treatment is also over.
I hate the term "Idiopathic" for those of us who clearly had a reaction to some type vaccine. I got a flu shot and 4 days later no movement below waist.
Please tell me you see fine now
I got the flu, and it caused my TM.
Wow
Even chickenfox?
Tm ഉള്ള മലയാളി ആരേലും ഉണ്ടൊ ഇതു കാണുന്ന?
njan mathiyo chetta
Yes
@@fidhaahamed2698 eniku 5years walkeril cheruthaittu nnadakum
Enthokke treatment cheythu?
@@fidhaahamed2698 physiotherapy continue cheyana ella doctor's. Um parayunne. Unani Ayurvedam nnattuvayidhiyam Okka nnoki result valare slow aanu
methanol poising , eat raw fruits and vegs
@ELITETRADEr294 Methanol poisoning is a serious condition that occurs when methanol is ingested, often through contaminated alcohol or other substances. Symptoms include headache, dizziness, nausea, and in severe cases, organ damage. While raw fruits and vegetables are healthy and can help support overall health, they don’t treat methanol poisoning. Immediate medical attention is necessary if methanol poisoning is suspected, and treatment typically involves the administration of antidotes like fomepizole or ethanol, along with supportive care.