I was diagnosed about 6 years ago. Doc said I would be using a walker or in a wheelchair within 2 years at that time. Taking no meds, just vitamins. No walker or wheelchair yet. Not a cure, but the right foods and exercise helps. Only speaking for myself as MS affects each person differently. Do your homework. It is what it is, so we have to live with it, As the saying goes, “I have MS, but MS does not have me.” Be strong.
Hi. Did you have a lumbar puncture when you were diagnosed? If so did the neurologist order a crap load of tests on the spinal fluid? Glad you are well and not taking meds.
Joe B Stress is a craper with Ms. I had a stroke and it blue up my MS symptoms!! Steroids haven’t helped this attack. Neurologist told me to go on tysebria. Don’t want to though.
Hi Joe B, I hope your doing well, I will pray for you, I know what it is like living with an illness that takes over your life, But Jesus gave me a miracle and Healed me, and made my life better, Jesus loves you and can do the same for you, call on Him and ask Him into your heart to be your personal Lord and Saviour, God bless
Just diagnosed officially last month. It's a terrible, scary disease. 4 months ago I had severe severe optic neuritis in one eye - my vision in my left eye went black, I couldn't even see my hand if I held it in front of my face. It is still after all this time no where near back to what it was (i had good vision prior). Now everything is covered in a heavy fog, I can still barely see and everything is black and white. I am not even 30 yet and also male so this scares me quite a bit. It has destroyed who I thought I was and has left me fearful of the future. Thank you for making this video - I wish you all the best :)
This is a good video. I've had MS for 31 years, I was diagnosed when I was 19 years old. I was a sophomore in college so essentially I have had it most of my adult life. I've had some pretty serious setbacks or flare-ups or exacerbations, as they call them. It has been about eight years since my last flare-up and really I have been able to do just about everything that I have wanted to do in life.
There is no video that I have spent as much time with as yours. It kept me engaged from the beginning to the end, and I genuinely appreciate how frank you were in explaining your MS experience. I was diagnosed In 2000, just before COVID. I used that COVID shutdown period to try to better understand what the heck just happened to me. I'm still going back and forth with my neurologist to find the best combination of meds, and I used supplements like crazy.. after one of my worst episodes last weekend, I can say that I feel normal today and doing everything I can to stay that way. In short, I found your description of your experience fascinating, I honestly just sat there and watched the whole thing, and I can't begin to explain how happy I am that you were willing to take the risk of sharing. Enjoy the rest of your day. Stacey
I have severe, terrible anxiety about this type of thing. My doctor said he suspects MS from my symptoms so of course I had to research it. Your honesty actually makes me feel better. I watched this entire video. Thank you!
Gelvin, thank you for sharing your story. I was diagnosed with Multiple Sclerosis in 1987. I was 39 at the time. I was having the classic symptoms of MS. So my doctor sent me to have a MRI. Which came back positive for lesions. I never had a spinal tap. But was sent to UCLA for a few tests. One showed that I have lesions in my spine. I was relapsing remitting up until 5 years ago and now I'm primary progressive. Which they can only tell by my relapses and symptoms. I'm unable to have a MRI because I have a pacemaker. I've probably tried every injection they have; so now I get an infusion every 6 months. ❤
Omg I hear you! I have sooo many parallel symptoms and experiences as you. I was diagnosed with MS 2 years ago and transverse myelitis 11 years ago. I’m a classical guitarist and MS devastated my right hand as well giving me a whole host of other horrible symptoms. My hand took a year but is 80% better now. Thank you for sharing your story. I particularly appreciate your scathing remarks about the bullshit remedies people try to push on you. They drive me crazy. I wish you all the very best. ❤
@@daniel9907 my first symptoms were numbness and tingling in my hands, in particular intense burning of my right hand. Buzzing fizzing electric shocks down my whole body (Lhermitte’s sign). Spasticity down half of my body in the shower causing me to collapse (Uhthoff’s phenomenon). On my relapse 3 years ago I woke up with spasticity in my legs. Hot and cold pins and needles down whole body, dizziness with room spinning vertigo and nausea. Tightness and weakness round my torso, abdomen and legs. Many falls in the street. Chronic fatigue (I spent a year in bed) and cognitive problems. Electric shock jolts anywhere in my body - causing me to sometimes bite my tongue and mouth in my sleep. The emotional impact has been shock, fear, anxiety, depression etc. My symptoms have improved over the years and I feel a lot better but I’ve had to modify my life to look after myself. Thanks for asking 😊.
Man, I appreciate this video so much. I was diagnosed a month ago. Dr’s didn’t explain anything just told me I had to take meds. I feel so scared alone and confused. I’m a single mom and can’t “take a day off” even when I feel like I’m gonna die. But I appreciate this video so much. You just speak the truth no B.S and that is something I haven’t been able to find anywhere
My oldest son has MS & your saying all the things he has spoke about...the same symptoms , experiences . He is 53 & got it late in life also..... I'm so thankful for you telling your story & how informative & up front you have been..... You have helped me understand & comprehend much more.... He explains the same problems you have gone through... I'm going to have him watch this & I'm positive he will be relieved to listen to someone that can relate to him. I just want to comment about your allergy problem & I found by recording everything I eat that made me ill that most everything now days has SOY in it & SOY makes me SICK... Physically sick, stomach, etc Also gluten & MILK I'm just saying read about what they have done to the food we eat that's making us sick... I'm 70 & I went from barely walking, stomach pain, arthritis pain, diabetes etc. I recorded everything I ate & figured it out myself. Now I'm rid of diabetes, lifting weights, exercise daily. Soy is also in VITAMIN D , tuna fish has soy, I have to read every Meds label etc. It's used as a filler in all our food & it's killing us... We have auto immune disease in our family... You are an angel of truth for my son that he is NOT alone in his pain. Thank you so much for taking the time & putting yourself out there for everyone to see! I pray you receive the miracle you so deserve & be healed in Jesus Name! Amen to you & your family . Stay STRONG & GOD BLESS! I'll be watching for your videos!
The best thing you can do for a loved one that has MS is research like you did by listening to this video. I wish everyone would hear this video so they could better understand this horrible disease
You are like a breath of fresh air! finally I found a real person who explains our condition well! I've been on Keto for three weeks and I'm much better. Mercury in the Mediterranean sea is the cause of the Sardinian problem! I drink a lot of water, coffee, Tea , and almond milk. I eat a huge mixed salad with fried red onions and portobello mushrooms in olive oil every day. I sprinkle blue cheese stuffed olives on my salad too. Plus I eat lots of eggs and cold meats, rotisserie chicken etc.
Hi. Thanks for sharing your experienced. Are you saying that being on a Keto diet has helped your MS symptoms a good deal? I’m interested in that because I am researching Keto as a form of healing and not just for weight loss. thanks
Cheers for the video content! Forgive me for the intrusion, I would appreciate your initial thoughts. Have you considered - Seyrooklyn Salient Supremacy (just google it)? It is a good one of a kind product for overcoming the symptoms of multiple sclerosis without the hard work. Ive heard some super things about it and my close friend Aubrey after many years got great results with it.
Thank you for opening up like this. Been dealing with some weird health problems for years now and the specialists just pointed me to neurologist to get evaluated for MS. You brought me some comfort. Hopefully it's not my case and I'm sorry it is yours. Thank you again for sharing.
I was diagnosed with M.S. in ‘98, It’s funny how it works, I still lead a pretty normal life, but my oldest son has it and is a little worse than I am, it’s great seeing videos like this explaining it. Thanks for the video
Gotta say it - there is NOTHING better than a first hand experience story by someone else going through this. Thank you so very much, Will. The medical industry is so ill-equipped. Makes me crazy. We must help ourselves these days, in the most NATURAL ways possible.
Wonderful honesty and openness. Thank you for this. My 29 years old daughter was diagnosed last year so we are as a family supporting her through it. Much love to you honey x
@@Cjtpinethank you for asking... her symptoms appeared slowly....over a number of years...like tingling in her feet...numb fingers and hands, heavy sensations in her legs...eye sight a bit blurry but nothing showing up on eye tests... the symptoms would come and go...until she had a big relapse and had an MRI and they found the lesions... she s doing well now....she is on tysabri infusion.
As someone who has had a few symptoms over the last couple years, but no MS correlation/diagnosis yet, I found this video extremely helpful and informative on what types of things to look out for moving forward. Thank you, Will.
Just diagnosed at er after it caused me to have a stroke. Doctors would not listen when I kept telling them what I was going thru. Last year diagnosed with RA . Now this past week had the MS and stroke diagnosis. Thanks for sharing ur story it helped me understand how it affects others
I have MS, I was diagnosed in 2015. After the initial nightmare I have been feeling pretty much back to normal. But now I'm starting to have symptoms of relapse, and honestly I am terrified. Nobody understands, my job doesn't understand, my friends don't understand. I feel so alone.
You aren’t alone. Try to find a MS support group so you can talk with people who understand and may be able to share valuable suggestions. Hang in there!
I'm sorry to hear that you have it. My mom was diagnosed in the early 70s at around 40 and they knew much less about it then than they do now. There were no "MS" meds back then, just muscle relaxers and pain killers. She survived until 2009. She had the first kind you mentioned, I think they called the spells "exacerbations." It then turned into primary/progressive. As bad as she was she lived to be 77, having had it for 37 years or so. I remember what she went through and learning how weird the disease. But she was tough and never complained. I pray a cure or better medicine will be found. God bless you.
I wish the best for you. I’m being sent to a neurologist soon to be tested for MS. I’m trying to collect as much information as I can, so thank you for making this video. I know it can’t be an easy thing to talk about. My daughter has Tourette’s syndrome so I’m a huge advocate for educating the population on chronic illnesses. It took us a few years to have her diagnosed because I just didn’t know enough about it. So I applaud you for telling your story. I wish you a good, long life with the best quality of life you can have. Although I’m scared of being told I have MS, I’ll be happy to have answers. I’m just so tired of being so damn tired all the time! I can only fight it so long before my body takes over and forces me to sleep (regardless of where I am or what I’m doing). How do you explain to people when you have no diagnosis yet? “I swear I didn’t stay out all night partying and I’m not a lazy ass; I just have some weird unknown sleep issues...” rarely does that go over well! There are points when I start to feel like a hypochondriac. Anyways, thank you for making this video. I really appreciate all the information.
if your main issue is just fatigue, it may not be MS. valley fever can cause that. i had that when i was a kid, and i thought i was just lazy, but i felt like i could never get enough sleep.
@@WillsEasyGuitar many of the MS symptoms are similar to Hyperparathriodism & Hypercalcemia. There are correlations of HPT & hypercalcemia with MS, schizophrenia, celiac, heart disease, thyroid diseases, kidney disease, etc. Many of my family have the listed diseases. My mother, aunt & nieces have MS, plus celiac & schizophrenia. My mother went blind also. Pls check your calcium, vit D, and parathyroid hormone. HPT is also a wicked disease. It also causes blurred, double vision, neuropathic, bone & muscle pain, kidney stones & bladder issues. Be your own advocate & research, research, research. Wishing you well in your journey.
I just found your video and watched it to the very end. I realize you made this video four years ago so I hope you are doing okay and not suffering. Thank you for all the information and brutal honesty. This is a terrible disease and I’m sorry you are living it. God bless you and your family.❤
I don't comment, ever, but I want to say thank you for this video. I haven't been diagnosed yet. But I've got a good idea that's what's going on. The speech and brain fog is the toughest for me. I work in a fast paced environment and can't seem to keep up. I have 3 young daughters and am a single mom. I'm just hoping I can find a way to keep myself together for at least 10 more years. Get my girls through college. But, besides all that, thank you for sharing this with us all.
I currenly have my suspicions about myself having it. I know I have an autoimmune disease of some sort, but I need to get diagnosed. I don't have health insurance but about to get an "affordable care" plan.🙄 I've started eating clean, eating healing foods, and that eliminates/minimizes flare ups.
Sweetie just remember college is a scam and will put you in massive amounts of debt. Don’t beat yourself up if your girls don’t all go to college. It’s truly overrated and a lie we are told that we must go to college to get a good job. I know many many friends who went , have masters , bachelors degree’s and they’re working at local Resteraunts.
My daughter had been diagnosed with autoimmune multiple sclerosis. She's been hospitalised for the 2nd time and today She had seizures and was taken to the ICU. They did MRI and ICU doctor said they found a blood clot on one of the vessels in the brain so now they going to do a CT scan to zoom to the exact place and start my girl on blood thinning medication. I am going through so much and can't stop my tears and I have been praying for her. I love my daughter very much!
I've been watching you for awhile. I know of your health problems. My Prayers for you my friend. Such a Talented guy! You do not deserve this hard ship in your life. I enjoy your videos. My prayers to you Buddy.
Thanks for posting this video Will. My daughter has MS.I totally understand the ups and downs of dealing with this disease. Glad to see you are doing relatively well. All the BEST Will!
Thank you for your video, I haven't been diagnosed yet but ms is one of the things my neurologist is saying it could be. You made your video in a way that is real and relatable.
Thank you for this. I’m in the process of being “officially “ diagnosed for MS right now. Already have the negative blood tests. About to do the lumbar and cervical MRI and EMG testing. But have had two doctors say I have this. Have ignored the symptoms for a year now. But my symptom have gotten worse. Even now writing this thank god for auto correct.
Appreciated hearing the details of this horrible condition that I knew of but embarrassingly, I didn't understand . Wishing you all the very best in your life and keep up the great work .
Thank you so much. I actually did have my legs buckle under me with a new relapse. This happened after a prolonged period of remission, and I had almost thought I was never going to have a bad one again. Wrong! That was about 2018, and I have never got my full functioning back after that. What helped me more than anything was a good physical therapist. Now, I am in a foreign country, where people like this actually come to the house and help you, and this was a God send. I was able to lose the walker and walk on my own again, even if it was slower than before. For this, I am grateful. One step at a time. So, I totally agree with you on everything. Take care. We are none of us getting out of here alive, and it is people like you who make life a little more tolerable.
Hey there, great video. It helped me understand MS when I was first diagnosed. I wished everyone around me would see this video so they would understand what it is. I just started my own vlog; The Silver Lining - living with MS to help people understand what it is and to leave something behind for my kids who are still to young to understand what is wrong with me. One step at a time is my new moto !
I am so sorry to hear this and have seen so many ppl now with it .. I have M.S. diagnosed at mid 30s at the time all there was for it was shots like avonex and a couple others but made the fibromyaglia worse . so i stopped after a year of taking the shots . I tried all 3 at that time. 22 years later and it hasn't really got worse , problems yes , walking talking seeing even playing bass with fingers that tingle , some times fall ,not very often though ... Worse part is the burning of the bones in my legs from the contrast that never left me ..Which there were Lawers that was doing cases on this but nobody wanted my case . Contrst 24/7 Napalm Burn .. I am 56 and this is not right .But i try to warn ppl of the burning ...Keylation will get rid of the contrast if i had only known 18 , 19 years ago .
Will, this is a wonderful video. Thank you so much. I am glad you got off of those damaging drugs. I was diagnosed in 1987 at the age of 33. When I had my daughter in 1992 I plummeted and was incontinent and wheelchair bound by 1994. I stopped seeing a neurologist when my daughter was two years old. I have secondary progressive ms bur I am lucky for I do not often feel tired or have pain. My main problems are constant UTI's due to catheterisation. I nearly died two years ago with uro sepsis with was really grim and has made me terrified of it happening again. Luckily I have bounced back! Like you I had terrible depression and had to see a shrink and had to have a psychiatric nurse, I am on SSRI's but was lucky as it worked for me. I was totally suicidel it was terrible, even worse than he ms. I felt like a useless wife and mother who could not even carry my child but I got through it and still managed to take her to local activities. When she was five I went to adult education and opened my mind. I wrote a book and became secretary of my local writer circle for six years until my husband became ill. He died in 2016 of dementia. I am now starting to get over it and keep myself busy by making jeweiry, paintinit too and other crafts which I never thought I could do! It keeps me going. My symptoms in the beginning was also optic nueritis and I had to wear an eye patch for a while, they called me captain birdseye at work! I knew I had ms because my sister had it art age 16, died age 44. My mum had it and died about 15 years ago, my aunt had it too and passed. My younger brother had it too and passed 5 years ago and now my nephew has it and he is only 50years old and has the worst kind and may have Parkinson's as well! I wonder if there are any other families like mine? We do seem to be cursed. Thankfully this is rare. I hope that you will keep well and strong. I don't blame you for not trusting big pharma. I am sure I would be in a much worse state if I had continued to see my neurologist. I too have had people telling that I should try this, that and the other and I agree, they have shit for brains. Often while out shopping in my power chair people will start telling me about their aches and pains and then go sprinting across the road to catch a bus! Anyway, I am sorry for the long comment but it is good to be able to talk with others that understand.
Out of all the great MS stories. Yours really touched me! Thank you for sharing. Pure honesty with a bit of humour! I hope you are managing the best you can. I’m waiting for my spinal tap. I’m scared!
This is the first video of yours that I have seen and I am very appreciative for it. I was just diagnosed 3 days ago. It stinks but I think I have a semi-level head on my shoulders with a great support network. Your first episode story was remarkably similar to mine. Pain and numbness in the left foot. Weird brain fog. Then, ultimately, optic neuritis in my left eye. As I write this comment, my left eye still feels like it has Vaseline smeared all over it. I am in medical device sales, selling to the VA. I work with Biomed on a daily basis. The similarities are remarkable. Thank you for sharing your story as this was the best and most straightforward take on this whole situation. The veteran in me just wants to suck it up and move on to the next mission. The best advice that you gave is to give yourself grace, embrace the suck, stay strong, and enjoy life along the way. Again, thanks for the video, it made a true impact. I am going to have my wife watch it again with me so that she can understand your real life account.
I have learned more from you about MS in fifty minutes than I have from a dozen experts. Excellent advise about quack healers. Thanks for your honesty and openness.
My husband will be 54 next week. He was just diagnosed 2 days ago. He's been in a constant pain for months now, but we didn't know what it was. I'm really concerned about his future. 🙏
I got dx'ed with EGPA a few years back and was shocked how similar my symptoms are to what you are going through. I have also had extremely bad luck with monoclonal antibody injections (3 different ones) and will not take any more. Only a couple videos into your channel and I have learned more about the guitar in those few videos than roughly 4 decades of whatever I was doing wrong, lol. You're a great instructor. Take care man!
Wish I could do the antianxiety and depression meds. I get all kind of crazy on them ,just ready to tear someone apart for looking at me wrong. I'm 55 and recently diagnosed. The VA has looked back at my folder and thinking I may have had it since late teens or 20s. Thanks for this vidio this is the closest anyone has described. To what is happening. The crying for no reason at all freaks me out. Be sitting at dinner with friends and family ,all happy and good and crying my eyes out. Over 20 years with my company ,though they have been told what is going on, it has came back to me that I must have got on drugs is why I dont work anymore. It has isolated me a lot.
I know it's been 3 years since you recorded this video and I hope you're doing well today. Thank you for your honesty as far as diet and lifestyle. I was diagnosed over 4 years ago but I know I've had it longer. It's been a slow and steady decline but I'm still fighting and yes I'm still walking not great but I'm doing it. Take care brother.
Diagnosed almost a year ago now & in my 30s. No one in my family has it, so easy to question, “Why me?” My first flareup caused from my ribs down to go numb, and it took about 3 days to move that high. It took a long time on medication to start feeling my limbs feel better, but still have the random stiffness at night, that reminds me that it still is there, so on days I get discouraged that the medication is slowing it down. A lot of people tell me this won’t kill me, but you even said it affects your quality of life. Honestly, I’m trying to move towards changing my diet to stay away from inflammatory markers to help my body heal. Prayers to anyone battling MS. It is scary and when you are feeling alone, know there’s plenty of us out there feeling similar.
I am going through all this. I have tons of lessions. I'm seeing a new nuro dr. I can't walk. Your right tons of people are telling me, juice and eat vegetables you will be healed this lady dr did it. I'm so tired of people saying eat a carrot and I'll be able to walk. This sucks I have not been out of my home in 5 months.
Stress and bad sleep make my ms worse...so covid is definitely causing problems no employment no unemployment selling home that's a nightmare no places to relocate. I will stop there now I'd better go pray again.god bless.
My first symptoms was when I was in my early teens I started to have bladder problems eventually I was diagnosed with a spastic bladder which is now known as neurogenic bladder I was put on medication which helped for a while I now have a supra pubic catheter…My second symptom was my sight I started to have problems focusing and impaired vision my pupils was affected too…I saw an optician he wrote a letter to my doctor saying I needed to see a neurologist immediately….My third symptom was numbness and pins and needles my legs felt heavy and I couldn’t walk eventually my ability to walk came back but over the years it got to the point I needed a wheelchair….I now am in my 60s…I have heart failure and other health issues…Thank you for you video it was very in-depth
Thank you so much, Will, for making this video! I have been suffering with a multitude of "random" , seemingly unrelated symptoms for so many years now. I have gone to countless dr's, practitioners, physical therapists, etc, and not one of them has ever been able to help me, or to even give me any kind of diagnosis. They want to treat each symptom as a separate thing, but I have suspected for a long time now that they are somehow connected and interrelated. A friend recently suggested to me that perhaps it's MS, and I started doing some research on it a few days ago, as I had heard of it, but didn't really know what it was, or what kind of symptoms it caused. From what I now know about MS, it could possibly be what has been causing me so much pain and trouble over all these years. Unfortunately, it doesn't appear that there's much in the way of treatment for it, other than the drugs, which Will said were such bad news for him! But I still would appreciate having a solid diagnosis, just so I know exactly what I'm dealing with, if it really is MS.
My neurologists said they can't diagnose MS until you have another relapse!!?? I'm numb from the waist down, have all or most the symptoms as Will, what more do they want?? Good luck with getting a solid diagnosis, and good luck with your journey. Take Care.
@@juliepickett3517 I'm so sorry to hear that you are suffering from such terrible symptoms! I agree, what more do they frickin' want!! I hope that you can find another doctor who will take you seriously, and get you on the right treatment plan. That has been my issue with dr's, for most of my life. It seems that whatever you go in to see them for, they never really seem to take you seriously, as if you are just making it all up, or that you are a hypochondriac and just making a big deal out of nothing. It's so infuriating, especially when you really don't even like going to see the dr, but you just go out of desperation.
I'm having all the same symptoms lately. I'm scared as hell. Just got some blood work done and dr appointment next week. Hope I can see a neurologist after that. Everyone thinks I'm just stressed or it's nothing even my wife.
Oh man I'm so sorry to hear about this. The way you described how your symptoms started sounded absolutely terrifying, but you told the story so brilliantly and calmly, and you are obviously so much improved from that fog currently, that I'm sure you've really helped and given hope to so many people who are newly diagnosed and in a panic about it being a degenerative disease and wondering whether things will ever improve. All the best to you, man.
I noticed the first signs of my onset at 42.5 years old and it's kicked my ass every second of every day since that time (10+ years). I've been to the top universities in California and the US (UCSF, USC, UCI, Scripts Institute, Mayo Clinic, Johns Hopkins, etc) and there has been NO relief and or answers. Just have to appreciate each moment I have on this earth.
Thank you for this video , this was the most informative video I have watched so far. I am going through the testing process now with all of the systems you described in your video. I could just cry right now because I am so depressed but after watching your video I have a better understanding of this disease and I will have a better attitude as i move forward. Thank you for your sharing your experiences with everyone!!
“The medication sometimes is scarier than the goddamn disease!” PREACH! I was on Tecfidera which was horrific. Now I take Ocrevus which I just pray isn’t eating my body from the inside. I’m only 26 but sometimes I feel 3x my age. I hate this disease.
@@WillsEasyGuitar Sorry to hear you're flaring. I know it's shit weighing the odds but I guess it's rolling the dice either way, meds just put a little lead in it to (HOPEFULLY!) sway it in your favor.
I know this is an old post but I just wanna say hey. I couldn’t tolerate techfidera either. Told my doc I’d do Ocrevus for 2yeats but who knows if it’s helping.
Good job of describing MS Will, I have Relapsing Remitting ,diagnosed about 8 yrs ago but, I had symptoms for 30 yrs before they made me seek help .I hope you find something that helps.
@@Genejr88 On and off and every time I went to a doctor they blew it off,checked me for diabetes and that was it ,never got a diagnosis until I moved to FL and the heat got to me and I put 2 and 2 together and asked to be tested. P.S. I never have taken the meds, just careful diet and exercise ,it's not perfect but imo better than the horrible meds.
I’ve had it for 10 years. Im only now in the process of being diagnosed. I’m not interested meds either. 😞 I’ve heard people do well just by cutting out gluten and dairy. Hoping it works for me. I’m also TTC so I want to keep it natural.
Great explanation was diagnosed myself with RR at 37 woke up one day and my vision was messed up. Yeah no fun but it’s not a life sentence.... ur spinal tap story is exactly what happened to me...eat healthy and keep positive. Guitar really help me through all the negative thoughts initially. Still got a 8 and 10 yr old to raise and my daughter to walk down the isle someday... i too have lesions in my brain, spine wish i was as comfortable talking about it as you are... Thanks for sharing
I have had a spinal cord injury from a torn descending aorta for 30 years due to a car wreck, hence i have used a wheelchair since I was 18. Last year, I was diagnosed with kidney cancer and had to have part of my hip and femur removed due to a serious wound. Afterwards, I started working on guitars, which is something I have always wanted to do but never really knew all that much about it. I have learned a great deal and appreciate the information you have shared. I refer back to your videos often. In my real life, I am the ED of a non-proft organization that assists people with disabilities by coordinating services and supports to help people live independent lifstyles. If you ever need anything, please be sure to reach out to your local CIL, they usually have a wealth of resources available. If my memory serves me correctly, you live near San Diego. There is a really good CIL there so please be sure to call them if you ever need to. Thanks again for all of the information you have shared.
Thank you for your open and honest video on this awful disease. You're so 'right on' on all your comments, I believe, esp re medications. I've been having every symptom for a few years and only 2 yrs ago, felt it may be MS. At present, I'm still awaiting a Neuro referral (18 months+ so far...). I's say mine is relapsing-remitting type, too. I'd like a diagnosis, but not keen on doing any meds as I avoid them like the plague for most things, incl a-fib, cholesterol, etc. Lifestyle and diet change first. So far, still on my feet, so not wanting to ruin that. Keep on keeping on!
Good video Will! My best friend has MS and I've had to learn about it the hard way. He's been diagnosed with it for at least the past 10 years (he's 32) and has to walk with a cane, is losing his teeth, can't feel his hands or feet, and is blind in one eye (Still one hell of a guitar player). Good luck with everything Will!
@@shawnmcanthony5724 You're right, I've talked with him since then and he's saying that it was a mix of the meds that lowered his immune system and himself just not taking care of himself. His teeth became brittle taking the meds and he stopped doing regular mouth care and continued to smoke 2+ packs a day. The good news right now is that he's now listening to his doctor, hasn't had a seizure in 8 months, and is getting vision back in his other eye.
Also your advice about being very Careful about medical treatment is so true You can’t take anything as gospel when it’s your health they’re talking about
Arrythmias are the worst man and the ensuing anxiety from them, glad you are doing even better off the alleged MS meds. anything is better than those things.
You have really inspired me to make a change in my life. I was diagnosed last year, with the same kind of story, new shoes, I was on holiday though, and my feet went numb, then my legs, until it spread up to my bra line!!! My MRI showed up 7quite big lesions, and 1 at the base of my skull, (there you go, about of brain fog, can't remember what it's called) also, 2 in my spinal cord.I (as you refered) I am A Lucky Bastard too! Thank you for posting this, you really switched something on in my brain. Take Care of Yourself.
I’m going to be going to do my test next month, I’m really nervous. I’m super young and only 19 years old I have so much pain in my joints I could scream, but I’m glad you did this video. I pray you’re doing okay with MS, not sure If I have it. My doctor is very worried that something else is going on, I think for the first time it surely scared me. I hope they get a cure for MS. I’m against certain meds because honesty who knows what is in those pills. I do not trust it, If I do find out it is MS or something else I will do something natural and work out more. God bless!💜
I'm sorry,I mean no dusrespect your video scared me more than helped.For four days now I've been dealing with issues concerning my walking;It's becoming impossible to get around and my energy level is just about depleted.I've had the classic signs of MS going on two years now.First thing monday I'm headed straight to the hospital.Good luck with your MS situation Willis.
Was just diagnosed with trigeminal neuralgia but I'm pretty sure that when I get back under an MRI we'll find that it's actually MS behind it. Your video was super helpful and I'll probably watch it again. I'm really struggling with brain fog and losing words at the moment and extreme fatigue ... driving me crazy. Good to see you still living a productive life with it. Keep up the good work (and do another video about it sometime!). Thanks.
Thanks for sharing ❤ really appreciated your transparency and honesty. The part about being tired and pushing yourself to complete tasks. I really needed to hear that. I beat myself up about being lazy. But we are quite the opposite! All the best. God Bless
Howdy Dr.Will! Sorry to hear you're suffering with such devastating health issues, but I must say I have only the deepest RESPECT for you, having the courage to share such a personal matter in a public forum, so that others may benefit from your experiences! And, it if it makes you feel any better, I once lived in a low-rent housing development, and one of the reasons I chose the place was because I HATE screen doors, and this place had none. So, one morning, I got up late for work, rushing out the front door & damn near ran into a SCREEN DOOR - that's right; maintenance had installed a screen door on my apartment while I slept! So, there ya go - you're not the only victim of screen door mayhem! Cheers, Bro! Keep these awesome videos comin' & I'll keep watching!
I so love this‼️ you are the first person that talked about their MS journey that TOTALLY is insyc with what I have been going through since my diagnosis in 2007! I ABSOLUTELY HATE this for my life! I hate this ENTIRE disease process. I’ve listened to so many UA-cam videos and this one hits what I’m experiencing and what I have experienced almost down to a carbon copy! I know (they say) everyone’s is different but OMG! First off I’m a female and you’re male, I’m African American and you’re Caucasian, I’m not sure of the age bracket but it’s shocking. I have relapse remitting RRMS and you have PPMS wow ‼️I know people try to reach out to help but until they’ve experienced it they will NEVER TRUELY understand what it’s like for us day to day🤦🏽♀️but thank you for your video it was so GREATLY APPRECIATED! Take care of yourself to the best of your ability!
Find an Upper Cervical chiropractor! Getting checked regularly and adjusted when needed can help you immensely! I would be happy to hand select one I'd trust my family with. I'd just need to know the town you're in.
Thanks for your story friend. My parents have many degrees and I was 17 when I had flare ups with vision. Our eye doctor called it at that time. Said you will have MS in future. So I got diagnosed at about 23 years old. I definitely recommend excercise to all with any disease. I felt the same as you and tried different stuff starting with Avonex. Now I'm on Rituxan once a year. I'm from the desert and I had to stay in good weather to be able to move comfortably. I have all of these. I go to gym and sauna helps health after heat wears off. I tried Marijuana but only works temporarily. It works for hunger when meds take it away.
Thanks for sharing. I was diagnosed May 21, 2019. You were very helpful for when I start all my appointments this week. Not sure my type yet. I have no pain just a numb hand and left leg is heavy, it buckles when I walk. I know that I will get through this one day at a time. Once again thank you.
My daughter force me to go to the ER because my vision was affected I thought I had something in my eye. A neuro opthamologist diagnosed me with optic neuritis, didn't mean anything to me, the doctor called in a neurologist. The MRI showed lesions on my brain that were affecting my sight. I have been diagnosed with osteo lytic bone lesions throughout my axial skeleton & skull as well as brain lesions. The lytic bone lesions are seen in very few diseases, primarily in bone cancer, multiple myeloma, and metastasized cancers. Thankfully they did not find cancer. I was admitted into the hospital. Treated with high doses of IV steroids at 115 lbs. The treatment was torture. I begged the doctors to stop the steroids. Side effects caised bone pain, insomnia massive anxiety, heart rate of 130, high blood pressure, swelling, sweating profusely, painful heartburn, delirious from insomnia and became very depressed. I wanted to go home.Thank you for sharing your story. To hear you say the test to confirm Ms did not confirm MS confirms my decision not to have it done. I am interested in preventive measures to minimize chances of relapse & brain lesions. Managing symptoms is so important. Knowing stress causes relapses of MS is mind-boggling. Relapses demand our attention, with no choice we have to put ourselves 1st. It is a disease that forces us to care for ourselves 1st. I've always cared for others. It certainly is a new way of living. Thank you.
Tricia my diagnosis came with optic neuritis also 14 years ago. I also can’t do steroids but my MS test was was very clear and positive. No more meds available for me now but I’ve done practically all of them and have fought off the worst of it. Wishing you all the best.
In the 80’s I went numb down one side when I was in the shower. Had a few basic tests and the doctors said it could be MS, if I never get any more symptoms, it’s not, I didn’t, so great. Four years later my father was actually diagnosed with progressive MS at 60, he had it for 15 years before he passed away, but became pretty disabled and in a wheelchair very quickly. A couple of years ago my nephew was diagnosed with MS in his 20s. His is the relapsing type and seems to be doing OK the moment. It does make me wonder if it is genetic.
Very informative and very well said on all things. It truly is a process as ever case is an individual one. Just told possible MS after MRI. Have "small cell eshemic disease" already, Im 50 so. Thank you for taking the time to share your story. Helped to shed light on my situation. Blessings!
I have intermittent numbness in spots all over from my face, to my lips, tip of my tongue, to my mid back, fingers, and toes. Recently I also have had vertigo (dizziness) with nausea that comes in waves. I went to a Neurologist and she giggled at me when I told her I thought I have MS. She didn’t believe me but ordered the MRIs anyways. So just waiting to get it done to see if anything shows up.
I had the vertigo (to the point I had a bad fall end of last year), intense stabbing ear pains I kept going back to the ER for. Ears MRI discovered 3 "MS-like" brain lesions. Had a full spinal MRI but only showed 3 non-cancerous "tumors" called hemangiomas but no "MS-like" lesions on the spine. I have read though that thoracic hemangiomas can also be a result of MS progression. Random drop in testosterone levels for no reason back when I was around 32 (I'm 38 now). Been on TRT since then. Come to find out low T is an MS symptom in men. Then I started getting random numbness in legs. Now pretty much everyday I have some numbness and pins and needles in both my arms and legs. Random arm and finger weakness. Extremely stiff legs to the point my gait is being affected now. My walking is really noticeable. I cannot walk on my tip toes anymore. My left knee will go weak and buckle randomly as well when walking. Resting actually makes it worse. Ungodly level sweating of buckets in warm weather or even cooler weather. Poor blood circulation in both hands and feet, almost always ice cold to touch. Stabbing pains in my feet and toes. Electrical "popping" type pains in fingers. Random involuntary muscle spasms and "tremors" I guess you could say. Random extreme itchiness in arms and legs but no reason for it. Feeling like bugs crawling on my legs sometimes with nothing there. Brain fog that comes and goes. Hard time stringing together words and sentences sometimes. Stuttering which i never had before. Forget how to count money. On and on. A whole list of weirdness. Just had my EMG testing today and THANK GOD it ruled out ALS (my nerve conduction was mostly solid) but I did terrible with my reflexes and walking and strength testing. I'm mostly still strong but had noticeable weakness in my arms and legs in certain tests and directions. I see the neurologist again next week but the two EMG doctors that saw me today (the one doctor had to call in a bigger doctor after seeing my walking and reflex tests) both felt my issue was my brain and CNS, nothing related to past spinal injuries I've had since the Marines. So I'm looking at probable MS at this point or something very similar. I hope it's the slower, intermittent kind and not the more severe but we'll see. Either way, no worries. I would be more upset if I got the news I only had a few years of life left. That's the scariest scenario of them all especially having my wife and kids.
![Multiple Sclerosis Diagnostic Criteria [Neurologist Explains]](http://i.ytimg.com/vi/Ixns85V95-Y/mqdefault.jpg)
I was diagnosed about 6 years ago. Doc said I would be using a walker or in a wheelchair within 2 years at that time. Taking no meds, just vitamins. No walker or wheelchair yet. Not a cure, but the right foods and exercise helps. Only speaking for myself as MS affects each person differently. Do your homework. It is what it is, so we have to live with it, As the saying goes, “I have MS, but MS does not have me.” Be strong.
Hi.
Did you have a lumbar puncture when you were diagnosed?
If so did the neurologist order a crap load of tests on the spinal fluid?
Glad you are well and not taking meds.
Yes a lumbar puncture was done and fluids tested, also blood work to eliminate other possibilities.
Joe B Stress is a craper with Ms. I had a stroke and it blue up my MS symptoms!! Steroids haven’t helped this attack. Neurologist told me to go on tysebria. Don’t want to though.
try ayurvedic medicine safed musli, lions mane , mucuna puriens , multivitamins , green veges and physical theraphy , meditation takecare
Hi Joe B, I hope your doing well, I will pray for you, I know what it is like living with an illness that takes over your life, But Jesus gave me a miracle and Healed me, and made my life better, Jesus loves you and can do the same for you, call on Him and ask Him into your heart to be your personal Lord and Saviour, God bless
Just diagnosed officially last month. It's a terrible, scary disease. 4 months ago I had severe severe optic neuritis in one eye - my vision in my left eye went black, I couldn't even see my hand if I held it in front of my face. It is still after all this time no where near back to what it was (i had good vision prior). Now everything is covered in a heavy fog, I can still barely see and everything is black and white. I am not even 30 yet and also male so this scares me quite a bit. It has destroyed who I thought I was and has left me fearful of the future. Thank you for making this video - I wish you all the best :)
This is a good video. I've had MS for 31 years, I was diagnosed when I was 19 years old. I was a sophomore in college so essentially I have had it most of my adult life. I've had some pretty serious setbacks or flare-ups or exacerbations, as they call them. It has been about eight years since my last flare-up and really I have been able to do just about everything that I have wanted to do in life.
Hi Christina my son also diagnosed young at 16 have you been on treatment all these years ?
That gives me some hope
There is no video that I have spent as much time with as yours. It kept me engaged from the beginning to the end, and I genuinely appreciate how frank you were in explaining your MS experience. I was diagnosed In 2000, just before COVID. I used that COVID shutdown period to try to better understand what the heck just happened to me. I'm still going back and forth with my neurologist to find the best combination of meds, and I used supplements like crazy.. after one of my worst episodes last weekend, I can say that I feel normal today and doing everything I can to stay that way. In short, I found your description of your experience fascinating, I honestly just sat there and watched the whole thing, and I can't begin to explain how happy I am that you were willing to take the risk of sharing. Enjoy the rest of your day. Stacey
I have severe, terrible anxiety about this type of thing. My doctor said he suspects MS from my symptoms so of course I had to research it. Your honesty actually makes me feel better. I watched this entire video. Thank you!
hey any updates with you ?
I bought a plot too! Still.here!
It's not the worst thing in the world
Indeed sometimes a remedy is worse than the disease
If you have a MRI they can diagnose it.
Gelvin, thank you for sharing your story. I was diagnosed with Multiple Sclerosis in 1987. I was 39 at the time. I was having the classic symptoms of MS. So my doctor sent me to have a MRI. Which came back positive for lesions. I never had a spinal tap. But was sent to UCLA for a few tests. One showed that I have lesions in my spine.
I was relapsing remitting up until 5 years ago and now I'm primary progressive. Which they can only tell by my relapses and symptoms. I'm unable to have a MRI because I have a pacemaker.
I've probably tried every injection they have; so now I get an infusion every 6 months.
❤
Omg I hear you! I have sooo many parallel symptoms and experiences as you. I was diagnosed with MS 2 years ago and transverse myelitis 11 years ago. I’m a classical guitarist and MS devastated my right hand as well giving me a whole host of other horrible symptoms. My hand took a year but is 80% better now. Thank you for sharing your story. I particularly appreciate your scathing remarks about the bullshit remedies people try to push on you. They drive me crazy. I wish you all the very best. ❤
Oh my please tell me about your symptoms if you don't mind
@@daniel9907 my first symptoms were numbness and tingling in my hands, in particular intense burning of my right hand. Buzzing fizzing electric shocks down my whole body (Lhermitte’s sign). Spasticity down half of my body in the shower causing me to collapse (Uhthoff’s phenomenon). On my relapse 3 years ago I woke up with spasticity in my legs. Hot and cold pins and needles down whole body, dizziness with room spinning vertigo and nausea. Tightness and weakness round my torso, abdomen and legs. Many falls in the street. Chronic fatigue (I spent a year in bed) and cognitive problems. Electric shock jolts anywhere in my body - causing me to sometimes bite my tongue and mouth in my sleep. The emotional impact has been shock, fear, anxiety, depression etc. My symptoms have improved over the years and I feel a lot better but I’ve had to modify my life to look after myself. Thanks for asking 😊.
PPMS HERE, 39 MALE IN A POWER CHAIR. STAY STRONG EVERYONE.
Thanks for making this video Will. Going on 12 years with MS myself, take it a day at a time brother.
Man, I appreciate this video so much. I was diagnosed a month ago. Dr’s didn’t explain anything just told me I had to take meds. I feel so scared alone and confused. I’m a single mom and can’t “take a day off” even when I feel like I’m gonna die. But I appreciate this video so much. You just speak the truth no B.S and that is something I haven’t been able to find anywhere
My oldest son has MS & your saying all the things he has spoke about...the same symptoms , experiences . He is 53 & got it late in life also..... I'm so thankful for you telling your story & how informative & up front you have been..... You have helped me understand & comprehend much more.... He explains the same problems you have gone through... I'm going to have him watch this & I'm positive he will be relieved to listen to someone that can relate to him.
I just want to comment about your allergy problem & I found by recording everything I eat that made me ill that most everything now days has SOY in it & SOY makes me SICK... Physically sick, stomach, etc Also gluten
& MILK I'm just saying read about what they have done to the food we eat that's making us sick...
I'm 70 & I went from barely walking, stomach pain, arthritis pain, diabetes etc. I recorded everything I ate & figured it out myself. Now I'm rid of diabetes, lifting weights, exercise daily. Soy is also in VITAMIN D , tuna fish has soy, I have to read every Meds label etc. It's used as a filler in all our food & it's killing us...
We have auto immune disease in our family...
You are an angel of truth for my son that he is NOT alone in his pain. Thank you so much for taking the time & putting yourself out there for everyone to see! I pray you receive the miracle you so deserve & be healed in Jesus Name! Amen to you & your family . Stay STRONG & GOD BLESS! I'll be watching for your videos!
The best thing you can do for a loved one that has MS is research like you did by listening to this video. I wish everyone would hear this video so they could better understand this horrible disease
You are like a breath of fresh air! finally I found a real person who explains our condition well! I've been on Keto for three weeks and I'm much better. Mercury in the Mediterranean sea is the cause of the Sardinian problem! I drink a lot of water, coffee, Tea , and almond milk. I eat a huge mixed salad with fried red onions and portobello mushrooms in olive oil every day. I sprinkle blue cheese stuffed olives on my salad too. Plus I eat lots of eggs and cold meats, rotisserie chicken etc.
Hi. Thanks for sharing your experienced. Are you saying that being on a Keto diet has helped your MS symptoms a good deal? I’m interested in that because I am researching Keto as a form of healing and not just for weight loss. thanks
Hi 👋 again thank you 🙏
I appreciate you thank You much
Nobody needs to eat meat, it's deadly for precious living creatures and causes heart disease, cancer and other ailments in humans.
Best wishes for you, Will. We are your family.
Whatever direction you decide to go, we will always be with you.
Sweet!
My sister who is 55 was just diagnosed with ms and out of all the videos I watched, yours is the most helpful. Thank you so much. What a big help.
A lot of those other MS videos, are young people all smiles and giddy, he keeps it real, I'm a MS er, myself, so hats off, to this video, Real facts.
try ayurvedic medicine safed musli, lions mane , mucuna puriens , multivitamins , green veges and physical theraphy , meditation takecare
Cheers for the video content! Forgive me for the intrusion, I would appreciate your initial thoughts. Have you considered - Seyrooklyn Salient Supremacy (just google it)? It is a good one of a kind product for overcoming the symptoms of multiple sclerosis without the hard work. Ive heard some super things about it and my close friend Aubrey after many years got great results with it.
I'm 52. I've been getting signs. I get tingling in my feet and hands sometimes, and numbness in my feet with flare ups. Gotta get diagnosed..
17 just been diagnosed and I was freaking worried I’ll never continue to play guitar but I see you have MS and play guitar. It gives me hope.
Keep going son ❤
Thank you for opening up like this. Been dealing with some weird health problems for years now and the specialists just pointed me to neurologist to get evaluated for MS. You brought me some comfort. Hopefully it's not my case and I'm sorry it is yours. Thank you again for sharing.
I was diagnosed with M.S. in ‘98, It’s funny how it works, I still lead a pretty normal life, but my oldest son has it and is a little worse than I am, it’s great seeing videos like this explaining it. Thanks for the video
Gotta say it - there is NOTHING better than a first hand experience story by someone else going through this. Thank you so very much, Will. The medical industry is so ill-equipped. Makes me crazy. We must help ourselves these days, in the most NATURAL ways possible.
Yeah man. Great to know we're not alone as well.
Wonderful honesty and openness. Thank you for this. My 29 years old daughter was diagnosed last year so we are as a family supporting her through it. Much love to you honey x
What was her first symptoms?
@@Cjtpinethank you for asking... her symptoms appeared slowly....over a number of years...like tingling in her feet...numb fingers and hands, heavy sensations in her legs...eye sight a bit blurry but nothing showing up on eye tests... the symptoms would come and go...until she had a big relapse and had an MRI and they found the lesions... she s doing well now....she is on tysabri infusion.
@@manjitu4253 thanks for sharing. I'm 29 as well going through similar symptoms. Have a MRI next week. she's not alone tell her I said to stay strong
@@Cjtpine thank you so mich ... shes getting married in august too! So life does gp on !! Best wishes to you too.
@@manjitu4253 Does burning sensation in feet & arm, Muscle twitching also ? and dizziness? Ringing on the ears???
It's very good to hear your story in plain everyday American language. It's the best video testimony I've heard.
Thank you so much for sharing your story and being totally honest! I would love to see an update video on how you’re doing 😊
Which medication did he take ?
As someone who has had a few symptoms over the last couple years, but no MS correlation/diagnosis yet, I found this video extremely helpful and informative on what types of things to look out for moving forward. Thank you, Will.
Hey any updates ?
Hi any updates hope your ok
Just diagnosed at er after it caused me to have a stroke. Doctors would not listen when I kept telling them what I was going thru. Last year diagnosed with RA . Now this past week had the MS and stroke diagnosis. Thanks for sharing ur story it helped me understand how it affects others
I have MS, I was diagnosed in 2015. After the initial nightmare I have been feeling pretty much back to normal. But now I'm starting to have symptoms of relapse, and honestly I am terrified. Nobody understands, my job doesn't understand, my friends don't understand. I feel so alone.
There's lots you can do, but take sphingolin, ALA, vitamin B complex.
You aren’t alone. Try to find a MS support group so you can talk with people who understand and may be able to share valuable suggestions. Hang in there!
Medical cannabis has helped me with tremors and and neuropathy.
I'm sorry to hear that you have it. My mom was diagnosed in the early 70s at around 40 and they knew much less about it then than they do now. There were no "MS" meds back then, just muscle relaxers and pain killers. She survived until 2009. She had the first kind you mentioned, I think they called the spells "exacerbations." It then turned into primary/progressive. As bad as she was she lived to be 77, having had it for 37 years or so. I remember what she went through and learning how weird the disease. But she was tough and never complained. I pray a cure or better medicine will be found. God bless you.
Your mom is my hero
@@shawnmcanthony5724 Thank you. She was mine too! A tough lady.
I wish the best for you. I’m being sent to a neurologist soon to be tested for MS. I’m trying to collect as much information as I can, so thank you for making this video. I know it can’t be an easy thing to talk about. My daughter has Tourette’s syndrome so I’m a huge advocate for educating the population on chronic illnesses. It took us a few years to have her diagnosed because I just didn’t know enough about it. So I applaud you for telling your story. I wish you a good, long life with the best quality of life you can have. Although I’m scared of being told I have MS, I’ll be happy to have answers. I’m just so tired of being so damn tired all the time! I can only fight it so long before my body takes over and forces me to sleep (regardless of where I am or what I’m doing). How do you explain to people when you have no diagnosis yet? “I swear I didn’t stay out all night partying and I’m not a lazy ass; I just have some weird unknown sleep issues...” rarely does that go over well! There are points when I start to feel like a hypochondriac. Anyways, thank you for making this video. I really appreciate all the information.
if your main issue is just fatigue, it may not be MS. valley fever can cause that. i had that when i was a kid, and i thought i was just lazy, but i felt like i could never get enough sleep.
@@WillsEasyGuitar many of the MS symptoms are similar to Hyperparathriodism & Hypercalcemia. There are correlations of HPT & hypercalcemia with MS, schizophrenia, celiac, heart disease, thyroid diseases, kidney disease, etc. Many of my family have the listed diseases. My mother, aunt & nieces have MS, plus celiac & schizophrenia. My mother went blind also. Pls check your calcium, vit D, and parathyroid hormone. HPT is also a wicked disease. It also causes blurred, double vision, neuropathic, bone & muscle pain, kidney stones & bladder issues. Be your own advocate & research, research, research. Wishing you well in your journey.
I just found your video and watched it to the very end. I realize you made this video four years ago so I hope you are doing okay and not suffering. Thank you for all the information and brutal honesty. This is a terrible disease and I’m sorry you are living it. God bless you and your family.❤
I don't comment, ever, but I want to say thank you for this video. I haven't been diagnosed yet. But I've got a good idea that's what's going on. The speech and brain fog is the toughest for me. I work in a fast paced environment and can't seem to keep up. I have 3 young daughters and am a single mom. I'm just hoping I can find a way to keep myself together for at least 10 more years. Get my girls through college. But, besides all that, thank you for sharing this with us all.
I currenly have my suspicions about myself having it. I know I have an autoimmune disease of some sort, but I need to get diagnosed. I don't have health insurance but about to get an "affordable care" plan.🙄 I've started eating clean, eating healing foods, and that eliminates/minimizes flare ups.
I pray that you and your daughters are well.🙏
CT
Sweetie just remember college is a scam and will put you in massive amounts of debt. Don’t beat yourself up if your girls don’t all go to college. It’s truly overrated and a lie we are told that we must go to college to get a good job. I know many many friends who went , have masters , bachelors degree’s and they’re working at local Resteraunts.
I pray all is well and that if you were diagnosed, that you are being treated properly.
My daughter had been diagnosed with autoimmune multiple sclerosis. She's been hospitalised for the 2nd time and today She had seizures and was taken to the ICU. They did MRI and
ICU doctor said they found a blood clot on one of the vessels in the brain so now they going to do a CT scan to zoom to the exact place and start my girl on blood thinning medication. I am going through so much and can't stop my tears and I have been praying for her. I love my daughter very much!
MS shouldn't cause blood clots. that sounds like it was caused by something else. I am sorry to hear about your daughter. that is horrible.
I've been watching you for awhile. I know of your health problems. My Prayers for you my friend. Such a Talented guy! You do not deserve this hard ship in your life. I enjoy your videos. My prayers to you Buddy.
Thanks for posting this video Will. My daughter has MS.I totally understand the ups and downs of dealing with this disease. Glad to see you are doing relatively well. All the BEST Will!
Thank you will for explaining what having ms is like
I’m a nurse but learned a lot from this video
Best wishes to you and your family
Thank you for your video, I haven't been diagnosed yet but ms is one of the things my neurologist is saying it could be. You made your video in a way that is real and relatable.
Thank you for this. I’m in the process of being “officially “ diagnosed for MS right now. Already have the negative blood tests. About to do the lumbar and cervical MRI and EMG testing. But have had two doctors say I have this. Have ignored the symptoms for a year now. But my symptom have gotten worse. Even now writing this thank god for auto correct.
Hey how you holding up?
Appreciated hearing the details of this horrible condition that I knew of but embarrassingly, I didn't understand . Wishing you all the very best in your life and keep up the great work .
Chemicals!
Best wishes Will. This video will help many people. I feel sure of that.
Thank you so much. I actually did have my legs buckle under me with a new relapse. This happened after a prolonged period of remission, and I had almost thought I was never going to have a bad one again. Wrong! That was about 2018, and I have never got my full functioning back after that. What helped me more than anything was a good physical therapist. Now, I am in a foreign country, where people like this actually come to the house and help you, and this was a God send. I was able to lose the walker and walk on my own again, even if it was slower than before. For this, I am grateful. One step at a time. So, I totally agree with you on everything. Take care. We are none of us getting out of here alive, and it is people like you who make life a little more tolerable.
Hey there, great video. It helped me understand MS when I was first diagnosed. I wished everyone around me would see this video so they would understand what it is. I just started my own vlog; The Silver Lining - living with MS to help people understand what it is and to leave something behind for my kids who are still to young to understand what is wrong with me. One step at a time is my new moto !
I have a friend that has it and she suffers bad with it . MS is bad stuff , wish they knew more and were able to treat it .
Craig Voisin Try Dr. Aaron Boster's site on UA-cam. They do know a lot. I hope your friend can learn more about MS.
I am so sorry to hear this and have seen so many ppl now with it ..
I have M.S. diagnosed at mid 30s at the time all there was for it was shots like avonex and a couple others but made the fibromyaglia worse . so i stopped after a year of taking the shots . I tried all 3 at that time. 22 years later and it hasn't really got worse , problems yes , walking talking seeing even playing bass with fingers that tingle , some times fall ,not very often though ...
Worse part is the burning of the bones in my legs from the contrast that never left me ..Which there were Lawers that was doing cases on this but nobody wanted my case .
Contrst 24/7 Napalm Burn ..
I am 56 and this is not right .But i try to warn ppl of the burning ...Keylation will get rid of the contrast if i had only known 18 , 19 years ago .
Will, this is a wonderful video. Thank you so much. I am glad you got off of those damaging drugs. I was diagnosed in 1987 at the age of 33. When I had my daughter in 1992 I plummeted and was incontinent and wheelchair bound by 1994. I stopped seeing a neurologist when my daughter was two years old. I have secondary progressive ms bur I am lucky for I do not often feel tired or have pain. My main problems are constant UTI's due to catheterisation. I nearly died two years ago with uro sepsis with was really grim and has made me terrified of it happening again. Luckily I have bounced back! Like you I had terrible depression and had to see a shrink and had to have a psychiatric nurse, I am on SSRI's but was lucky as it worked for me. I was totally suicidel it was terrible, even worse than he ms. I felt like a useless wife and mother who could not even carry my child but I got through it and still managed to take her to local activities. When she was five I went to adult education and opened my mind. I wrote a book and became secretary of my local writer circle for six years until my husband became ill. He died in 2016 of dementia. I am now starting to get over it and keep myself busy by making jeweiry, paintinit too and other crafts which I never thought I could do! It keeps me going. My symptoms in the beginning was also optic nueritis and I had to wear an eye patch for a while, they called me captain birdseye at work! I knew I had ms because my sister had it art age 16, died age 44. My mum had it and died about 15 years ago, my aunt had it too and passed. My younger brother had it too and passed 5 years ago and now my nephew has it and he is only 50years old and has the worst kind and may have Parkinson's as well!
I wonder if there are any other families like mine? We do seem to be cursed. Thankfully this is rare. I hope that you will keep well and strong. I don't blame you for not trusting big pharma. I am sure I would be in a much worse state if I had continued to see my neurologist. I too have had people telling that I should try this, that and the other and I agree, they have shit for brains. Often while out shopping in my power chair people will start telling me about their aches and pains and then go sprinting across the road to catch a bus! Anyway, I am sorry for the long comment but it is good to be able to talk with others that understand.
Thanks for sharing 😇
Out of all the great MS stories. Yours really touched me! Thank you for sharing. Pure honesty with a bit of humour! I hope you are managing the best you can. I’m waiting for my spinal tap. I’m scared!
@@user-zc4wp4xu1u I am going for the spinal tab tomorrow morning. I've been so scared. No one is going with me. I'll let you know how it comes out.
thanks for sharring Will. im really sorry that you have to go through this shit.. cheers from denmark
everyone diagnosed with ms should watch and more importantly "listen" to this video
Best wishes Will - I love your channel. Thanks for being so open about an illness that must be really scary and unpredictable.
This is the first video of yours that I have seen and I am very appreciative for it. I was just diagnosed 3 days ago. It stinks but I think I have a semi-level head on my shoulders with a great support network. Your first episode story was remarkably similar to mine. Pain and numbness in the left foot. Weird brain fog. Then, ultimately, optic neuritis in my left eye. As I write this comment, my left eye still feels like it has Vaseline smeared all over it. I am in medical device sales, selling to the VA. I work with Biomed on a daily basis.
The similarities are remarkable. Thank you for sharing your story as this was the best and most straightforward take on this whole situation. The veteran in me just wants to suck it up and move on to the next mission. The best advice that you gave is to give yourself grace, embrace the suck, stay strong, and enjoy life along the way.
Again, thanks for the video, it made a true impact. I am going to have my wife watch it again with me so that she can understand your real life account.
Thanks for telling your story. Hope you find all the solutions for management. Best guitar channel and hope you're around for a long time.
I have learned more from you about MS in fifty minutes than I have from a dozen experts. Excellent advise about quack healers. Thanks for your honesty and openness.
My husband will be 54 next week. He was just diagnosed 2 days ago. He's been in a constant pain for months now, but we didn't know what it was. I'm really concerned about his future. 🙏
I got dx'ed with EGPA a few years back and was shocked how similar my symptoms are to what you are going through. I have also had extremely bad luck with monoclonal antibody injections (3 different ones) and will not take any more. Only a couple videos into your channel and I have learned more about the guitar in those few videos than roughly 4 decades of whatever I was doing wrong, lol. You're a great instructor. Take care man!
Wish I could do the antianxiety and depression meds. I get all kind of crazy on them ,just ready to tear someone apart for looking at me wrong. I'm 55 and recently diagnosed. The VA has looked back at my folder and thinking I may have had it since late teens or 20s. Thanks for this vidio this is the closest anyone has described. To what is happening. The crying for no reason at all freaks me out. Be sitting at dinner with friends and family ,all happy and good and crying my eyes out. Over 20 years with my company ,though they have been told what is going on, it has came back to me that I must have got on drugs is why I dont work anymore. It has isolated me a lot.
Very interesting!!! We have our disagreements, but man to man, I wish you the best and good health!!!
Hi Nicky, what areas do you disagree with?
I know it's been 3 years since you recorded this video and I hope you're doing well today. Thank you for your honesty as far as diet and lifestyle. I was diagnosed over 4 years ago but I know I've had it longer. It's been a slow and steady decline but I'm still fighting and yes I'm still walking not great but I'm doing it. Take care brother.
Diagnosed almost a year ago now & in my 30s. No one in my family has it, so easy to question, “Why me?” My first flareup caused from my ribs down to go numb, and it took about 3 days to move that high. It took a long time on medication to start feeling my limbs feel better, but still have the random stiffness at night, that reminds me that it still is there, so on days I get discouraged that the medication is slowing it down. A lot of people tell me this won’t kill me, but you even said it affects your quality of life. Honestly, I’m trying to move towards changing my diet to stay away from inflammatory markers to help my body heal. Prayers to anyone battling MS. It is scary and when you are feeling alone, know there’s plenty of us out there feeling similar.
I am going through all this. I have tons of lessions. I'm seeing a new nuro dr. I can't walk. Your right tons of people are telling me, juice and eat vegetables you will be healed this lady dr did it. I'm so tired of people saying eat a carrot and I'll be able to walk. This sucks I have not been out of my home in 5 months.
Could be worse. Could have my doctors.
ReaL FooD i$ MeDiCiNe... MoTHeR NaTuRe'$ WaY =D
Stress and bad sleep make my ms worse...so covid is definitely causing problems no employment no unemployment selling home that's a nightmare no places to relocate. I will stop there now I'd better go pray again.god bless.
My first symptoms was when I was in my early teens I started to have bladder problems eventually I was diagnosed with a spastic bladder which is now known as neurogenic bladder I was put on medication which helped for a while I now have a supra pubic catheter…My second symptom was my sight I started to have problems focusing and impaired vision my pupils was affected too…I saw an optician he wrote a letter to my doctor saying I needed to see a neurologist immediately….My third symptom was numbness and pins and needles my legs felt heavy and I couldn’t walk eventually my ability to walk came back but over the years it got to the point I needed a wheelchair….I now am in my 60s…I have heart failure and other health issues…Thank you for you video it was very in-depth
Thank you so much, Will, for making this video! I have been suffering with a multitude of "random" , seemingly unrelated symptoms for so many years now. I have gone to countless dr's, practitioners, physical therapists, etc, and not one of them has ever been able to help me, or to even give me any kind of diagnosis. They want to treat each symptom as a separate thing, but I have suspected for a long time now that they are somehow connected and interrelated.
A friend recently suggested to me that perhaps it's MS, and I started doing some research on it a few days ago, as I had heard of it, but didn't really know what it was, or what kind of symptoms it caused. From what I now know about MS, it could possibly be what has been causing me so much pain and trouble over all these years. Unfortunately, it doesn't appear that there's much in the way of treatment for it, other than the drugs, which Will said were such bad news for him! But I still would appreciate having a solid diagnosis, just so I know exactly what I'm dealing with, if it really is MS.
My neurologists said they can't diagnose MS until you have another relapse!!??
I'm numb from the waist down, have all or most the symptoms as Will, what more do they want??
Good luck with getting a solid diagnosis, and good luck with your journey. Take Care.
@@juliepickett3517 I'm so sorry to hear that you are suffering from such terrible symptoms! I agree, what more do they frickin' want!! I hope that you can find another doctor who will take you seriously, and get you on the right treatment plan.
That has been my issue with dr's, for most of my life. It seems that whatever you go in to see them for, they never really seem to take you seriously, as if you are just making it all up, or that you are a hypochondriac and just making a big deal out of nothing.
It's so infuriating, especially when you really don't even like going to see the dr, but you just go out of desperation.
I'm having all the same symptoms lately. I'm scared as hell. Just got some blood work done and dr appointment next week. Hope I can see a neurologist after that. Everyone thinks I'm just stressed or it's nothing even my wife.
@@route19er hey any updates ?
Hey Christine, did you figure it out ?
And uncontrollable bouts of crying and sadness. I've withdrawn from everyone cause they consider me crazy
depression is a part of MS. you may want to talk to your doctor about these symptoms.
I see you.
You’re not crazy. It would be crazy not to feel a million things at once. You got this.
Oh man I'm so sorry to hear about this. The way you described how your symptoms started sounded absolutely terrifying, but you told the story so brilliantly and calmly, and you are obviously so much improved from that fog currently, that I'm sure you've really helped and given hope to so many people who are newly diagnosed and in a panic about it being a degenerative disease and wondering whether things will ever improve. All the best to you, man.
Thank you so much for this video. I was just diagnosed with MS and your information was extremely helpful.
Thanks for this video. Flying home to be with my brother, who is going through the testing phase. This answered so many questions.
I noticed the first signs of my onset at 42.5 years old and it's kicked my ass every second of every day since that time (10+ years). I've been to the top universities in California and the US (UCSF, USC, UCI, Scripts Institute, Mayo Clinic, Johns Hopkins, etc) and there has been NO relief and or answers. Just have to appreciate each moment I have on this earth.
You're been though a lot in a little time man. I feel for you. All my best wishes and a big thanks for sharing this.
Thank you for this video , this was the most informative video I have watched so far.
I am going through the testing process now with all of the systems you described in your video. I could just cry right now because I am so depressed but after watching your video I have a better understanding of this disease and I will have a better attitude as i move forward.
Thank you for your sharing your experiences with everyone!!
“The medication sometimes is scarier than the goddamn disease!” PREACH! I was on Tecfidera which was horrific. Now I take Ocrevus which I just pray isn’t eating my body from the inside. I’m only 26 but sometimes I feel 3x my age. I hate this disease.
they want me to start taking a new one. im in the middle of a new flare up. im still not sure.
@@WillsEasyGuitar Sorry to hear you're flaring. I know it's shit weighing the odds but I guess it's rolling the dice either way, meds just put a little lead in it to (HOPEFULLY!) sway it in your favor.
I know this is an old post but I just wanna say hey. I couldn’t tolerate techfidera either. Told my doc I’d do Ocrevus for 2yeats but who knows if it’s helping.
Thanks for taking the time to share your story. I wish you all the very best. You’ve helped my understanding a lot.
Good job of describing MS Will, I have Relapsing Remitting ,diagnosed about 8 yrs ago but, I had symptoms for 30 yrs before they made me seek help .I hope you find something that helps.
Curious if you had symptoms for 30 years, was it constant until you started treatment or on and off until diagnosis?
I'm curious also
@@Genejr88 On and off and every time I went to a doctor they blew it off,checked me for diabetes and that was it ,never got a diagnosis until I moved to FL and the heat got to me and I put 2 and 2 together and asked to be tested. P.S. I never have taken the meds, just careful diet and exercise ,it's not perfect but imo better than the horrible meds.
@@rachabeff3212 see below. :-)
I’ve had it for 10 years. Im only now in the process of being diagnosed. I’m not interested meds either. 😞 I’ve heard people do well just by cutting out gluten and dairy. Hoping it works for me. I’m also TTC so I want to keep it natural.
Thank You for sharing. I'm helping someone that is 39 with MS. He is bed ridden. This had helped me understand it.
Great explanation was diagnosed myself with RR at 37 woke up one day and my vision was messed up. Yeah no fun but it’s not a life sentence.... ur spinal tap story is exactly what happened to me...eat healthy and keep positive. Guitar really help me through all the negative thoughts initially. Still got a 8 and 10 yr old to raise and my daughter to walk down the isle someday... i too have lesions in my brain, spine wish i was as comfortable talking about it as you are... Thanks for sharing
How you holding up?
I have had a spinal cord injury from a torn descending aorta for 30 years due to a car wreck, hence i have used a wheelchair since I was 18. Last year, I was diagnosed with kidney cancer and had to have part of my hip and femur removed due to a serious wound. Afterwards, I started working on guitars, which is something I have always wanted to do but never really knew all that much about it. I have learned a great deal and appreciate the information you have shared. I refer back to your videos often. In my real life, I am the ED of a non-proft organization that assists people with disabilities by coordinating services and supports to help people live independent lifstyles. If you ever need anything, please be sure to reach out to your local CIL, they usually have a wealth of resources available. If my memory serves me correctly, you live near San Diego. There is a really good CIL there so please be sure to call them if you ever need to. Thanks again for all of the information you have shared.
Very informative, direct to the point no BS. Wishing you all the best and health and future.
Thank you for your open and honest video on this awful disease. You're so 'right on' on all your comments, I believe, esp re medications. I've been having every symptom for a few years and only 2 yrs ago, felt it may be MS. At present, I'm still awaiting a Neuro referral (18 months+ so far...). I's say mine is relapsing-remitting type, too. I'd like a diagnosis, but not keen on doing any meds as I avoid them like the plague for most things, incl a-fib, cholesterol, etc. Lifestyle and diet change first. So far, still on my feet, so not wanting to ruin that. Keep on keeping on!
Thank you for doing this. It’s helped me feel better. The fatigue 😩 I keep calling myself idle but I just can’t most days.
😊
Good video Will! My best friend has MS and I've had to learn about it the hard way. He's been diagnosed with it for at least the past 10 years (he's 32) and has to walk with a cane, is losing his teeth, can't feel his hands or feet, and is blind in one eye (Still one hell of a guitar player). Good luck with everything Will!
Losing his teeth does not look like an ms symptom🤔
@@shawnmcanthony5724 You're right, I've talked with him since then and he's saying that it was a mix of the meds that lowered his immune system and himself just not taking care of himself. His teeth became brittle taking the meds and he stopped doing regular mouth care and continued to smoke 2+ packs a day. The good news right now is that he's now listening to his doctor, hasn't had a seizure in 8 months, and is getting vision back in his other eye.
@@brianpoole9514 good to hear
Also your advice about being very Careful about medical treatment is so true
You can’t take anything as gospel when it’s your health they’re talking about
Thank you for being real in the video & for reply. Greatly appreciate it
Good video Will,I really hope you keep on the up and up! Take care my friend!
Arrythmias are the worst man and the ensuing anxiety from them, glad you are doing even better off the alleged MS meds. anything is better than those things.
You have really inspired me to make a change in my life. I was diagnosed last year, with the same kind of story, new shoes, I was on holiday though, and my feet went numb, then my legs, until it spread up to my bra line!!! My MRI showed up 7quite big lesions, and 1 at the base of my skull, (there you go, about of brain fog, can't remember what it's called) also, 2 in my spinal cord.I (as you refered) I am A Lucky Bastard too!
Thank you for posting this, you really switched something on in my brain. Take Care of Yourself.
i hope you are able to kick this thing in the ass. im going through a flare up right now that is going after my legs and feet.
How ya feeling?
I’m going to be going to do my test next month, I’m really nervous. I’m super young and only 19 years old I have so much pain in my joints I could scream, but I’m glad you did this video. I pray you’re doing okay with MS, not sure If I have it. My doctor is very worried that something else is going on, I think for the first time it surely scared me. I hope they get a cure for MS. I’m against certain meds because honesty who knows what is in those pills. I do not trust it, If I do find out it is MS or something else I will do something natural and work out more. God bless!💜
Hey, cool to hear your story about the disease. You talk about it so easily and confidently -- very cool. Well done, man
So sorry to hear this sad news Will. Thank you for sharing the information, and God bless you.
Thank you for info. First MRI is next week. All signs pointing to MS, potentially for years. You frankness helps.
I hope you don't have MS. But if you do there's a lot of support out there.
I'm sorry,I mean no dusrespect your video scared me more than helped.For four days now I've been dealing with issues concerning my walking;It's becoming impossible to get around and my energy level is just about depleted.I've had the classic signs of MS going on two years now.First thing monday I'm headed straight to the hospital.Good luck with your MS situation Willis.
Did you go to the hospital?
Did you get the MRI s ?
Was just diagnosed with trigeminal neuralgia but I'm pretty sure that when I get back under an MRI we'll find that it's actually MS behind it. Your video was super helpful and I'll probably watch it again. I'm really struggling with brain fog and losing words at the moment and extreme fatigue ... driving me crazy. Good to see you still living a productive life with it. Keep up the good work (and do another video about it sometime!). Thanks.
I've had TN type 1 and 2 both sides for 13 yrs
Hi Michael, I appear to be having initial symptoms of TN. Can you please share more of your experience?
Thanks for sharing ❤ really appreciated your transparency and honesty. The part about being tired and pushing yourself to complete tasks. I really needed to hear that. I beat myself up about being lazy. But we are quite the opposite! All the best. God Bless
Great description of having MS and the meds.
At last, someone who is honest 👏
Thank you Will for making this video. This is the best one I've seen out on YT re MS and symptoms. This was so helpful. Praying for your health...
Howdy Dr.Will! Sorry to hear you're suffering with such devastating health issues, but I must say I have only the deepest RESPECT for you, having the courage to share such a personal matter in a public forum, so that others may benefit from your experiences! And, it if it makes you feel any better, I once lived in a low-rent housing development, and one of the reasons I chose the place was because I HATE screen doors, and this place had none. So, one morning, I got up late for work, rushing out the front door & damn near ran into a SCREEN DOOR - that's right; maintenance had installed a screen door on my apartment while I slept! So, there ya go - you're not the only victim of screen door mayhem! Cheers, Bro! Keep these awesome videos comin' & I'll keep watching!
I so love this‼️ you are the first person that talked about their MS journey that TOTALLY is insyc with what I have been going through since my diagnosis in 2007! I ABSOLUTELY HATE this for my life! I hate this ENTIRE disease process. I’ve listened to so many UA-cam videos and this one hits what I’m experiencing and what I have experienced almost down to a carbon copy! I know (they say) everyone’s is different but OMG! First off I’m a female and you’re male, I’m African American and you’re Caucasian, I’m not sure of the age bracket but it’s shocking. I have relapse remitting RRMS and you have PPMS wow ‼️I know people try to reach out to help but until they’ve experienced it they will NEVER TRUELY understand what it’s like for us day to day🤦🏽♀️but thank you for your video it was so GREATLY APPRECIATED! Take care of yourself to the best of your ability!
right now i still have RRMS, but i dont heal from the flareups as much as i used to. im about 8 years in with the disease.
Thank you for sharing your story. I swear I got more answers from you than my Neuro. Take care 🧡
Find an Upper Cervical chiropractor! Getting checked regularly and adjusted when needed can help you immensely! I would be happy to hand select one I'd trust my family with. I'd just need to know the town you're in.
Thanks for your story friend. My parents have many degrees and I was 17 when I had flare ups with vision. Our eye doctor called it at that time. Said you will have MS in future. So I got diagnosed at about 23 years old. I definitely recommend excercise to all with any disease. I felt the same as you and tried different stuff starting with Avonex. Now I'm on Rituxan once a year. I'm from the desert and I had to stay in good weather to be able to move comfortably. I have all of these. I go to gym and sauna helps health after heat wears off. I tried Marijuana but only works temporarily. It works for hunger when meds take it away.
Thanks for sharing. I was diagnosed May 21, 2019. You were very helpful for when I start all my appointments this week. Not sure my type yet. I have no pain just a numb hand and left leg is heavy, it buckles when I walk. I know that I will get through this one day at a time. Once again thank you.
My ankle joints feel this way it's so confusing
My daughter force me to go to the ER because my vision was affected I thought I had something in my eye. A neuro opthamologist diagnosed me with optic neuritis, didn't mean anything to me, the doctor called in a neurologist. The MRI showed lesions on my brain that were affecting my sight. I have been diagnosed with osteo lytic bone lesions throughout my axial skeleton & skull as well as brain lesions. The lytic bone lesions are seen in very few diseases, primarily in bone cancer, multiple myeloma, and metastasized cancers. Thankfully they did not find cancer. I was admitted into the hospital. Treated with high doses of IV steroids at 115 lbs. The treatment was torture. I begged the doctors to stop the steroids. Side effects caised bone pain, insomnia massive anxiety, heart rate of 130, high blood pressure, swelling, sweating profusely, painful heartburn, delirious from insomnia and became very depressed. I wanted to go home.Thank you for sharing your story. To hear you say the test to confirm Ms did not confirm MS confirms my decision not to have it done. I am interested in preventive measures to minimize chances of relapse & brain lesions. Managing symptoms is so important. Knowing stress causes relapses of MS is mind-boggling. Relapses demand our attention, with no choice we have to put ourselves 1st. It is a disease that forces us to care for ourselves 1st. I've always cared for others. It certainly is a new way of living.
Thank you.
Tricia my diagnosis came with optic neuritis also 14 years ago. I also can’t do steroids but my MS test was was very clear and positive. No more meds available for me now but I’ve done practically all of them and have fought off the worst of it. Wishing you all the best.
Thank you so much for the video. I am 79 years old. I was diagnosed when I was in my 50's. I had a spinal tap to get my diagnoses.
In the 80’s I went numb down one side when I was in the shower. Had a few basic tests and the doctors said it could be MS, if I never get any more symptoms, it’s not, I didn’t, so great. Four years later my father was actually diagnosed with progressive MS at 60, he had it for 15 years before he passed away, but became pretty disabled and in a wheelchair very quickly. A couple of years ago my nephew was diagnosed with MS in his 20s. His is the relapsing type and seems to be doing OK the moment. It does make me wonder if it is genetic.
Very informative and very well said on all things. It truly is a process as ever case is an individual one. Just told possible MS after MRI. Have "small cell eshemic disease" already, Im 50 so. Thank you for taking the time to share your story. Helped to shed light on my situation. Blessings!
Best wishes Will. I hope we can learn so much more from you!
Thank you so much for sharing your life with MS 🙏🏼 Wishing you all the best ever 🙏🏼❤️
I have intermittent numbness in spots all over from my face, to my lips, tip of my tongue, to my mid back, fingers, and toes. Recently I also have had vertigo (dizziness) with nausea that comes in waves. I went to a Neurologist and she giggled at me when I told her I thought I have MS. She didn’t believe me but ordered the MRIs anyways. So just waiting to get it done to see if anything shows up.
Don’t you love when these doctors just blow you off? You know your body better than anybody.
Hi Emily, I’m experiencing something similar. Can you share what the eventual outcome was?
I had the vertigo (to the point I had a bad fall end of last year), intense stabbing ear pains I kept going back to the ER for. Ears MRI discovered 3 "MS-like" brain lesions. Had a full spinal MRI but only showed 3 non-cancerous "tumors" called hemangiomas but no "MS-like" lesions on the spine. I have read though that thoracic hemangiomas can also be a result of MS progression.
Random drop in testosterone levels for no reason back when I was around 32 (I'm 38 now). Been on TRT since then. Come to find out low T is an MS symptom in men.
Then I started getting random numbness in legs. Now pretty much everyday I have some numbness and pins and needles in both my arms and legs. Random arm and finger weakness. Extremely stiff legs to the point my gait is being affected now. My walking is really noticeable. I cannot walk on my tip toes anymore. My left knee will go weak and buckle randomly as well when walking.
Resting actually makes it worse. Ungodly level sweating of buckets in warm weather or even cooler weather. Poor blood circulation in both hands and feet, almost always ice cold to touch. Stabbing pains in my feet and toes. Electrical "popping" type pains in fingers. Random involuntary muscle spasms and "tremors" I guess you could say. Random extreme itchiness in arms and legs but no reason for it. Feeling like bugs crawling on my legs sometimes with nothing there. Brain fog that comes and goes. Hard time stringing together words and sentences sometimes. Stuttering which i never had before. Forget how to count money. On and on. A whole list of weirdness.
Just had my EMG testing today and THANK GOD it ruled out ALS (my nerve conduction was mostly solid) but I did terrible with my reflexes and walking and strength testing. I'm mostly still strong but had noticeable weakness in my arms and legs in certain tests and directions.
I see the neurologist again next week but the two EMG doctors that saw me today (the one doctor had to call in a bigger doctor after seeing my walking and reflex tests) both felt my issue was my brain and CNS, nothing related to past spinal injuries I've had since the Marines.
So I'm looking at probable MS at this point or something very similar. I hope it's the slower, intermittent kind and not the more severe but we'll see. Either way, no worries. I would be more upset if I got the news I only had a few years of life left. That's the scariest scenario of them all especially having my wife and kids.
Me too tingling everywhere in the eye lids even.