I wish i had a doctor like you.. Just diagnosed with Tm.. In july of this year after a pererated gallblader. One week after the gallblader perferated i woke up paralized. Its december now i can walk for a short period of time.. But my legs and feet are numbe. Also suffer ing with thremors in my legs and arms and have lost bowel and bladder function. Sexual function.. Also.. I was treated wuth steroids 4 weeks after onset of the TM.. But no change.. Praying everyday that things get better as time passes.. 🙏Thank you as i have learned more about TM. From you, than i have from the doctors who were treating me for 16.weeks in hospital.. 👍
@@Patils92 thank you so much.. I am a year a nd two months in now.. Legs are still numbe from the knees down and bowel and bladder still the same. And now have a lot of tremor s.. But praying everyday that things will get better.. Whats left but prayer? But thank you. And i hope you are keeping well.. Xxx david
I've had it for past 5 months. I can walk with a walker and for short distances without a walker. But I still have a lot of pain in my hands, arms, elbows, feet. Still have urinary problems peeing all the time and constipation as well. I try to stay active...hope this eventually gets better...we'll see...Iwas in hospital for 64 days...
Got diagnosed with TM March 2018, 1 week after a flu shot, 6 months after my son was born. The entire left side of my body from the shoulder down was numb and had pins and needles. My arm and hand was the worst effected with severe weakness. Try taking care of a 6 month old with that! They did every test and MRI. I had no other lesions, but I did have positive ANA and OBands. Fast forward to Oct 2020 during a routine check up MRI they found a new lesion in the brain and I got a MS diagnosis. It took about a year to recover from the attack. The only remaining symptom is a slight numbness in my finger tip, slight l’hermitte sign in the shower, and banding when I stand too long. It is uncomfortable but I’ll take it compared to what I suffered with at the start of it all.
Sorry .. my post-vaccinal TM was super aggressive & extremely painful as well. I still have residual symptoms comparing to subsequent MS spine lesions which symptoms seem to b fully resolving.
I was just diagnosed with this even though I've been experiencing thoracic pain in my spine for years, the tingling in the numbness showed up about 5 or 6 days ago, and they recommended an IV steroid. Did you go through intravenous steroid treatment? For how long and did you notice a difference? what treatments did you notice helped the most.
@@Pauliepsi yes, 3 days of treatment. You can even do 5 days if needed. It did help me heal, but it is not a quick recovery. Nerves take a long time to heal. Be patient and keep up with physical/occupational therapy
Was diagnosed December 2023... Was then on steroids and antibiotic treatment for 21 day's... I was completely paralysed from the waste down... Showing progress on about day8. Suffering from the symptoms. By God's grace I was discharged after 21 day treatment and was able to walk out of hospital by myself. Today almost 8months ago I still doing good. Although I suffer from mild shocking waves daily from my torso down to my legs. My bladder function has improved as well as the ED but still not normal. Currently just on oral meds/Epleptin 100mg which I take 3x daily. The painfull sensation in my legs not so worst anymore. Taking it 1day at a time nd really praying from full recovery. My last MRI was 3 months back showing still damage on my CNS.
I was diagnosed with TM 14 years ago, similarly i was hospitalized and regained ability to walk, etc. I've never been on any medicine for TM since my initial hospital visit. i had a foot drop about 5 years ago and another one about 4 years ago. Both times, they said I had no new lesions and just gave me IV steroids to help. Since then, i haven't see a dr or had any other tests. I deal with pain from the waist down constantly. My foot (the one i get the foot drops) and whole right leg hurts a lot more. It's starting to wear on me since i had to make adjustments to my walk since some of my nerve damage in my foot was permanent. Meaning, i can't flex my toes up and down so i walk pretty good, but i think it's straining the rest of my foot/leg. I also don't have bowel & bladder control and feel like that has gotten worse over time. The pain has gotten worse as well. I made an appointment with a neurologist but that won't be until may. I wish i could just find out if it is something or how to help this pain. It's hard to live a "normal, working mom life" cause i'm constantly hurting and in pain.
I have had positive outcomes with supplements; D3, Lion's Mane, Alpha lipoic Acid, B1 and Turmeric with black pepper extract. Paleo Diet which reduces inflammation. I hope you feel better
Dude I was in a wheelchair and bedridden for months from TM. I am fully recovered now, with nerve damage repaired as well. I was diagnosed in 2015-16 with TM. I had to go to rehab to walk again. How are you doing? The lesions I had were from c1-c5. I know how horrible the nerve pain is.
@@uncivilizedrebirth I'm glad you have fully recovered!! I'm doing ok, I've regained most movement, just dealing with pain. But I'm good, thank you for asking 😊
I've had it for past 5 months. I can walk with a walker and for short distances without a walker. But I still have a lot of pain in my hands, arms, elbows, feet. Still have urinary problems peeing all the time and constipation as well. I try to stay active...hope this eventually gets better...we'll see...
I first presented with TM back in 2017 pre-MS diagnosis. After ruling everything out via MRI's, blood test for all the other connected diseases, and a spinal tap. It was a pretty open and quickly shut case of MS orchestrating in the background. There wasn't a single stipulation I didn't hit on the McDonald Criteria (second edition) Because, the attending Doctor at the ER knew my graduate work dealt with brain theory. He printed off 14 pages of info on TM tossed me a highlighter and said, "get to work" - we'll discuss your analysis later. Which, we did and I appreciate and respect that guy to this day. I think he knew, but he understood how I needed to find out. To that end, word must have got around because by the time I hit the specialist - she smiled, looked at me and said "I think you already know what this is, but I'm going to let you diagnose it and lay it out..." To which I did, very thoroughly I might add. LOL! I made sure to couch my synopsis with "it's possible...and, maybe". But, at the end of it all she said, "Nope, you are correct it's a pretty straight forward case of MS." Anyhow, the clincher in my own assessment was the "asymmetry" of my symptoms. The article the doc provided did a pretty thorough explanation of Chronic vs. Acute TM. I remember telling the attending Doc I wished it was "acute". He laughed and said "I bet you do, because you know acute may be severe, but often temporary." I said, "but this case isn't acute and as the article stipulates the symptoms are very asymmetrical." I'm numb from the waist down to my toes, but the right has far less sensation than the left side and per the information presented me, indicated a strong possibility that MS was playing the background. And, no - I never got full sensation back in the lower extremities, but to the specialists credit she was straight with me from the get-go and let me know the damage was likely permanent.
HI, my brother just got TM, what would you do, drugs, therapies , ANYTHING , differently or the same ? any information would be a blessing. he has the same symptoms as you. aloha from Hawaii
@@josephsmitty-jo1oi - TM is a bit tricky, because not all cases of TM have MS playing in the background. Most non acute cases do have a high percentage of folks that go on to develop MS. But, acute case that present with more severe symptoms can often resolve themselves over time. Some non acute cases do as well. Which, is part of the reason TM is not often treated with DMT (disease modifying therapies). I don't know if your brother has an acute or non acute case. I know that John Hopkins (a very long time ago) was attempting to plead the case for TM patients to be treated with DMT's, especially those with a large lesion load. But, I don't recall that there was ever a resolution. At the time we thought I might just have TM, there was honestly no treatment options available. That was 2017, I don't know if things have changed or if f they have made advances in other kinds of treatment that target TM specifically. What I can do is recommend you to this site: wearesrna.org/ It's the site I went to when I was in the hospital back in 2017, waiting to be diagnosed with MS and they do have resources for folks with TM who are looking for support or information on how they manage/and or cope with the condition. I genuinely hope this helps. Aloha from WA 🙂
This is a gnarly disease. Super greens, water, exercise, and stretching. Most importantly you need to have a strong spirit. I have gotten through it, it was hell on earth.
@sadyasardar Start taking a vitamin B supplement that has thiamine. This helps the body build the coating on the nerves called myelin health. Next start taking micronutrients aka greens. Leafy greens are great, lots and lots, powder (mix with water) versions are available also that may be easier to consume. Meditation for the pain is essential. The pain is like torture. Movement is crucial as well. You need to know the body can repair and rebuild. Cut out all processed foods, and filtered water, and get rid of all sources of fluoride. The body is trying to fight this and repair at that same time and everything going into the body needs to be natural. I will add again through meditation healing can happen as well. If you want more information please let me know. I would love to connect with you to help you through this. It is scary for the parents. Imagine how terrified a kid is going through this. Be strong for them, and validate all pain and emotions. And tell them you are in contact with someone who beat it and that this is temporary. They can beat it as well. I want to give you hope. I want to encourage you that healing is on the other end of this Don't hesitate to get in touch with me with any questions.
I've had it for past 5 months. I can walk with a walker and for short distances without a walker. But I still have a lot of pain in my hands, arms, elbows, feet. Still have urinary problems peeing all the time and constipation as well. I try to stay active...hope this eventually gets better...we'll see...
@ what does your leafy greens intake look like? The body is always rebuilding so if you consistently give it high quality building blocks it will be rebuilding with quality. Are you taking a Vitamin B complex with thiamine? This supports your myelin sheath that protects your nerves. Bernadine is an excellent supplement to take as well. How it pt and ot going?
Such good information. My son also has TM and MOG he made a great recovery from his attack. His was at the lower level leg weakness and bladder retention. Very scary, I wish more was talked about how traumatic this can be. My son was 14 at onset, it has been a challenge. Thanks for sharing.
I can relate to your son. I was 13 when mine happened (24 now). Ended up putting me in a coma for 5 days and paralysed me from my nipples down. None of the treatments they did worked and the doctors don't know why I'm not paralysed from my neck down. My damage is actually from my C2. Doctors have said mine has been the worst case ever recorded. I've been basically a guinea pig since
I had a severe TM attack out of the blue. I had been cleaning out mY Father’s home after his passing. I was alone and decided to take a hot bath . As I lowered myself into the hot baths, the worst pain I ever felt shot down both legs (worse on left). Once it reached the bottom of my feet, I screamed because it felt like my feet were on fire. Luckily, I had my iPhone beside the tub. I called my sister who was approximately 1 hour away. She got there and we called my doctor. I, to date, still suffer with bladder, bowel issues, and sexual dysfunction.
Luckily the ER Doctorr did not dismiss me. He did an immediate spinal tap and sent me from Corpus to San Antonio, Texas where I was put on IV STEROIDS at a high dose. I remained in the hospital for a week. They started rehabilitation immediately and prescribed it for approximately 8 weeks after my discharge. I am lucky to be walking more normally; however, the bladder, bowels, and sexual dysfunction has been a difficult, ongoing issue!!
@@RobynMarieGonzalez my brother just got TM, may i ask if you may have gotten it from the vaccine shot ? what would you recommend for a new patient ? please. BLESSINGS TO YOU.
I had a large TM lesion, T3-5 I think. Symptoms came on quickly-walking on sand, to walking on frozen peas, to walking on rocks. Banding in legs and butt. There was a clear line at my mid section where it was a different sensation below than above. Brain MRI showed two very small lesions that one neuro said could be normal aging, another neuro said it was not consistent with MS. 6 months later the TM lesion was remarkably reduced. I started on O-2 half infusions and 2 full so far. Now, a year later, my neuro will not call for a C-spine MRI, only brain. It seems both are in order. Most symptoms are gone, only persistent one is my “Hot foot” I had some banding before my last O. It went away on our 10 day camping trip, came back when I went back to work. O seems to have helped as well, however I know stress is a big factor as well.
I was diagnosed with TM from June 2023 was able to recover partially, still struggling to recover from right knee strenth. presently walking with walker support. please advise proper medication/therphay for complete recovery. 😒
Hello Dr. Brandon Beaver. I am paralised from TM for two years now.. my lower limbs are not working. Bowel & blader not working. Trunk tummy muscle not working.. i dont feel pain, cold/hot, touch from my nipple down. Muscles from there down are also not working... please help. I can raise funds to seek medical help at your hospital..
3 years? Typically, post-vaccine associated transverse myelitis is 2 weeks to within 2 months (lymphocyte/antibody response to vaccination occurs in a few weeks)
I was diagnosed with TM 6.5 years ago. I had rapid onset of symptoms, beginning with numbness in my legs and then paralysis which ascended upward to my chest, leaving me dependent on a ventilator within 48 hours. Initially, I had a clean MRI so I was diagnosed with GBS. I had IVIG, and was sent to a rehab facility to recover. Two weeks later, I developed severe spasticity during therapy and was sent back to the hospital, Only to discover I had LETM from C2 to C6. All of my brain MRI scans were clear at that time. Experienced partial recovery. Then in 2021 I got optic neuritis and was diagnosed with MS because I had one active brain lesion at that time, and have none since. No lesions on optic nerve at that time, but it was confirmed by VEMP And optic nerve pallor. Do you have any explanation for the lesions appearing on MRI after symptoms begin and not at onset?
Wow! So much useful information! And in such a short explanation that is clear to understand. When does this ever happen!? Wow. Thank you. Sincerely, thank you!
I was diagnosed with TM at 13 years old. I am now doing handstand push ups. There is a ten year recovery video on my youtue as I hope to inspire people to recover.
Approximately 1 month after covid-19 infection (taste and smell were gone), i woke up and my legs were numb. Next day it progressed to my mouth level. It was bilateteral, i was able to move but couldnt feel. It was really painful. I stayed in hospital for a week and some test have been done. Lesion was on my spinal cord. Between C1 and C2: 10mmx6mm. No other lesions on brain or spinal cord. OCB positive. 1 month after treatment same lesion became active and second attack happened but this time my right side's pain and heat sensitive affected. Since that i'm trying to live again but its tough. Its maybe MS or ,i hope, complication of covid-19 and never happens again. I just wanted to share my story.
How can I reach the doctor, I live in Iraq and I can't trust doctors here they don't recognise if I have MS or TM so now I useling term cure Betaferon and I'm afraid it's a mistake and I may cause danger for myself
Hi Doctor, my mom had this TM, been occurs and start the pain after she done 2nd doze of covid vaccine last year October 2022. she is now in severe pain, her left body can't move due to pain and even can't stand. She can walk alone until April this year but this May started the severe pain.
My son was diagnosed With Transverse Myelitis last Nov. 2021. There’s no sign it just happened then they do steroids, plasma exchange and IvIG. All of his test were negative. He’s injury was from C1 to C7 before. The they do MRI again last July 2023 and it was C3 to C6 now and still negative on his blood test and still don’t know the cause. He’s quadriplegic. I just want to ask if there’s a connection from his Covid vaccine? He’s only 15 then when it happened. I want him to go back to his normal life again.
After 2 treatments, mitoxantrone worked for me, I was a paraplegic, now I can walk, a miracle has happened. I'm not 100% but can shower, cook, walk to the store 7 blocks. So sorry for you son, I'm praying he gets better 💪❤👍
My mother having this after treating T12 compression and after covid vaccine booster. Doc, what is the best for her and her diet. She's 66 and has difficulty in getting from chair or bed.
My neurologist diagnosed me with MS after canceling out all other possibilities and seeing TM (causing Lhermitte’s sign symptoms) as well as what she said looked like typical MS brain lesions (asymptomatic). We were still waiting for results of MOG antibodies, which are only tested for at one research university in Japan, where I live, but my neuro was confident enough that it was MS. When I went back to the hospital to schedule the start of an MS DMT, my neuro apologized and said she jumped the gun, because my MOG test came back positive at a titer with a false positive rate of 18%. The hospitals’ entire neurology department had a meeting to talk about it, and they came back unsure which it really is, but with MOGAD being more likely.
Antibodies to MOG were found in about 5% (5/104) of people with MS in this study nn.neurology.org/content/3/5/e257nn.neurology.org/content/3/5/e257 It's difficult for me to say if these 5 individuals have MS (who incidentally have positive anti-MOG antibodies) or anti-MOG associated disease (MOGAD). Personally, if I had a patient with demyelinating lesions typical of multiple sclerosis, I would not recommend this test, and I would disregard it even if it were positive. Obviously, I can't give any input on your personal situation, but I wish you the best of luck.
i got gardasil hpv vaccination and the following day started getting shooting nerve pain down arms and legs. no tingling no numbness but burning sometimes. and muscle twitching. could this be transverse mylitis?! i’m doing a blood test with my doc but nothing else yet
A friend of mine was told her spine is clogged. They can't get spinal fluid. They don't think she has MS but she does have a brother that has it and has had a diagnosis for MS for many years. She has been in the hospital 8 months in Maine and has lost bowel and bladder function. They did tell her Transverse Myelitis and demyelination of the spine. She had no vaccines and the hospital isn't really helping her at all and 8 months seems ridiculous to me with no answers. Does this sound right? If not, what can I do to help? She wants the help and she feels they don't listen to her. They have no plan going forward other than for her to find a home to go to where she can get care. She is in her early 30's. This isn't right. Please, is there anyone out there that can advise or a doctor that might be willing to talk to her? She has state funded insurance and I think they are just milking it, meanwhile they aren't helping her. I am dealing with the same hospital and it's horrible. I worry how much worse this could be the longer her spinal cord is clogged with no resolution. "spinal cord is clogged" are the words she used so I am assuming a doctor told her that. She is one of the sweetest, honest people you will ever meet and if she can be helped, she needs it now. Advice would be great. She is tired of being in the hospital and of having no answers.
Uh yeah, this is happening to so many people right now it's mind blowing. Report to your state medical oversight agency and report doctors to the medical board. I can not BELIEVE how negligent doctors are now. It's like most of them are just charging insurance and then have no follow up or follow up testing for serious conditions like what you're describing. I'm on here for a sibling who has some sort of demyelating condition. Their docs throw up their hands "Duh, Dunno." Then she ends up in ER where they tell her to follow up with her Doc. Rinse and repeat. Doc wouldn't refer her to a nuerologist or a rheumatologist even though nearly whole family has autoimmune. Criminal! (Kaiser- THE Worst.) They don't want to diagnose or treat, they just want to keep you coming in so they can max out copays and charges without doing anything for the patient. It's pure Evil.
I read Montanna has the one of the best medical care in the states. My friend in Montanna attests to that. Says she never has a problem. The docs are proactive with testing, treatment and medication without treating you like a drug fiend when you have a serious condition.
Thank you for the information. I was diagnosed with TM (right side of the body loss of sensation but still motor function, bladder function, pain/temperature function all in-tact) and the MRI only showed one lesion on the right side of my spinal cord between c-3-4 on the right side. Did an IV of prednisone and then orals for 3 days following. It seemed to slightly help but still the sensation loss is present. I see my neurologist again in about 5 days (it’ll have been about 3 weeks since the initial treatment) - any predictions on possible recovery or future treatment options - I would imagine prednisone again but any insight is extremely helpful. 31 years old and very active, vegan for 4 years and I’ve now been taking vit B supplements and just started taking omega 3. Thank you for your helpful video!!
I have TV, my cause was unknown. I was paralyzed for 8 months, under hospital care, & short term housing for for 13 months. My 1st 2 treatments failed, one was IVIG, the other was some sort of steroids. The next is Mitoxantrone, I took it once per month for 3 months, then once every 3 months. I have had 6, or 7 treatments. Though the grace of God, a great neurologist, & luck I'm now walking, however under Fed law I'm considered permanently disabled. Physio is a big part, which is 9-12 hours per week.I'm very determined to be 100% if possible.
I'm glad you had a good recovery. Many people do recover significantly from transverse myelitis over time. In the United States, Novantrone isn't used (generally speaking) by neurologists due to the risks but it is certainly a viable option in aggressive demyelinating disease in the minds of some providers.
I suspect that I had it also after my second Vax, got 4 total. Couldn't walk up or down stairs and pain even just breathing. It lasted about 5 days. Nothing after the last 2 vaccinations.
@@KoalaBeer. it’s indefinite. 1/3 recover. How long that takes, no one knows. Just have to take everyday as it comes and continue rehabilitation. Problem is, it’s so rare that governmentally, no one within the healthcare system knows what to do. Privately you can find help but it’s very expensive and once you lose your job because of the condition, you have to rehabilitate yourself. However, I was able to find funding through the Transverse Myelitis Society and Challenge TM. They were a godsend! They done everything they could to help. With the condition being rare, it’s difficult to get funding for these organizations. So the majority of rehabilitation I now do myself was influenced from the help that I received from the Transverse Myelitis Society and Challenge TM.
I just got diagnosed with TM and the report says caused by the Epstein Barr virus. Still trying to see what this can do to me. I already have a spinal injury, arthritis in both hips and both knees and nerve damage in the left leg
Dear Dr Beaber, thank you for another one of your great videos! In your experience, how long does it take for pwMS who are acutely suffering from a flare up in the spinal cord to benefit from high dose cortisone? During my last flare up, I got 5 x 1g and 5 x 2g of cortisone over a course of 2.5 weeks and my symptoms continued to worse during that time. Only after 3 weeks the worsening (!) came to a stop, incomplete recovery took me about 2 months. Best regards
It varies widely. Some people can have dramatic improvement in a few days. Some people with more severe transverse myelitis can improve slowly and incompletely over 1-2 years.
Hello doc my brother diagnosed transverse myelitis last feb. his shoulder fell so painful and there's a time all his body cant move.. prednisone,pregabalin and Leviteracitam is his medicine
I’m a 34 year old former Air Force officer, former police officer, and [I was] a special agent hire, before I began to get sick in the Fall of 2020. I believe I now have a variant of TM. My symptoms were initially limited to breathing problems and exhaustion with exercise that was progressive, to now, I have intense head pressure [predominant to the left side] with remote left eye dilation, muscle atrophy and burning in my spine/neck/arms/legs, Orthostatic Intolerance, dysautonomia, possible mast cell activation, contracture in hands and feet, a weakened ejection fraction, eye pain with visual disturbance, bowel and bladder control loss w/ increased frequency, and overall worsening in most areas. I have a positive Lyme Disease test w/ several co-infections, such as Bartonella, Babesia, TBRF, Mycoplasma Pneumoniae, and E. Hystolitica. Speculated CIRS, related to mold exposure. I even have elevated heavy metals (Mercury and Arsenic) w/ MTHFR genetics, supporting B vitamin deficiencies. I’ve never had any issue before my entire life, with the exception of acquiring an ‘allergy like’ swallowing issue while working in the Air Force. They came on after spending some time in older facilities (Missile Alert Facilities). I suspect I developed a mild autoimmune condition that was overlooked as acid reflux, as I had 80% dysfunction in a manometry test a few years later [showing acid reflux was not the culprit]. My question, after all of that, is…could mold exposure or vaccinations be responsible for my initial onset of swallowing problems? I’m assuming that initial issue led to the vulnerability that set me up for this current rapid decline I’ve had over the last year. *I went from bench pressing 300 pounds and running 10Ks to bed ridden with skeleton like arms and severe spine and neck wasting…much more. Thank you for this video and for your wisdom. Cheers.
Vaccines are toxic to nerves. Meat Dairy Starches No good Get a coffee enema Then take sea moss Bladderwrack Burdock root Sunlight daily Gallon of natural spring water daily Walk in grass Dirt and or sands If by ocean get in. Sleep atleast in between 10 pm to 2 am
I was in the service when I was diagnosed in the 2015-16 time frame. I am fully recovered now. I was bedridden, wheelchair, and rehabbed for walking. I am now in the best shape of my life. Leafy greens all day long. B12 complex with thiamin daily. Exercise every day, something works, anything counts. Only water. I want to give you hope. The nerve pain alone is enough to drive a person insane. Or as I did, learn how to meditate and escape the pain. I had to deal with taking close to 10 medications, as of one year ago I am taking zero medications.
my mother is victim of transverse myelitis for almost 1 year and she is experiencing abnormal pain with no painkillers can relieve .so can she overcome such abnormal pain .please need your feedback
My husband was diagnosed with transverse myelitis in 2013 . Though we dnt know if it was owing to SLE or due to a painkiller he was injected in his lower spine cz of severe low back pain n loose motions accompanied. Though he recovered 40 % yet has issues in bending knees and toes and can walk only after wearing kfos or supporters n also has bladder numbness. Is it possible now to recover completely?
still need to do another brain mri,last was in 2019 nero said he doesnt think i have ms but put on notes may have ms, since 2017 lesion on c-2,have had chronic bilateral hand numbness, almost 5 yrs now sensation very uncomfortable when touch things gets more intense im 53,so im starting the journey again with all new doctors to find whats going on never had a lumbar puncture yet very nervous abt that as i have moderate lumbar arthritis ,nerve compression feeling so im nervous that the puncture will in some way make lumbar area worse or possibly touch my spinal cord when dong that procedue,any insight you can suggest Doctor? Enjoyed your thorough video here,i even took notes very helpful,thanks again and for your time.
I had partial TM last fall and was recently diagnosed with MS. I had enhancing lesions on my C1, C6 and medulla and had multiple o-bands with an IGG index of 1 on my spinal tap. The symptoms started in my right side and then progressed to my left side after 1 month. The symptoms only improved after the 1250 mg prednisone regime. My brain MRI was perfect except for the enhancing lesion on my medulla. How common is it for someone to be diagnosed with MS with no lesions on their brain and how common is it for the first MS attack to involve TM? I've read some resources that say you can't have MS without brain lesions so I'm very confused.
Can transverse myelitis progress to MS? MRI of brain and cervical were normal. MRI of thoracic showed lesions. I have numbness and tingling in both legs and positive Lhermitte’s sign for 3 months now) Currently on prednisone 60g/day for 2 weeks now. My doctor is hesitant to diagnose me with MS because I show no lesions on my brain or cervical.✨✨
Good morning Dr. Beaber. My initial symptoms began with TM in the thoracic area of the spine which eventually led to a diagnosis of MS. The TM started with gradual worsening symptoms of the lower extremities. Did the TM cause the MS? Or did the underlying MS cause the TM ?
TM is one of the potential attacks people with MS have. Typically, when TM is the first attack leading to a diagnosis of MS, the MRI of the brain will show older non-enhancing lesions typical of MS.
My 16 year old son was diagnosed with rapid onset TM C3 - T1 in June this year. He had IV and then oral steroids, 2 cycles of plasmapheresis (10 session in total) and so far 2 rounds of IV IG. He remains completely paralysed in both legs with some movement in arms and significant hand deficits. His spasticity is severe. Not sure where we go from here. Lumbar puncture and bloods showed no obvious cause.
So sorry. My TM is idiopathic, nothing was working untill they tried mitoxantrone, it resets the immune system. I went from being a paraplegic to walking in one year.
I am happy that me understands most of what you say. :) Me is a german with some english skills. :) Great informative videos you make. I understand a lot more of my Multiple Sclerosis since I subscribed your channel. Thank you so very much. :)
One thing I learned (well I learned a lot the 5 times I watched it)! I always thought by transverse it meant perpendicular to the spinal chord as this is how I use the word. You clarified that it is actually a lesion that traverses the spinal chord over multiple vertebrae! I think the name should be altered slightly. Traverse doesn’t equal transverse.
I've had TM for about 15 months now. My brain MRI in the beginning showed no lesions, but since then the only MRIs I've had have been to keep an eye on my original thoracic lesion. I was severely flared up, but that lesion was no worse than in the beginning. How often does TM actually lead to an MS diagnosis later? I'm tired of hurting.
@Dr. Brandon Beaber What are your thoughts on the correlation between Covid-19 infection and transverse myelitis? I've been experiencing excruciating lower back pain concurrent with a case of Covid-19 for the last 3 weeks. Pain not responding to Dilaudid, Lyrica, and Celebrex. Thank you
Hello, we have a patient who has lost his mobility from the chest down for four months. He is 35 years old. Plasma was also done but it did not work. What is your diagnosis and what is the treatment
Dear Sir, I have inflammation in my cervical spine due to nitrous oxide poisoning because of overuse. My b12 was alright too but on a low level. How long it'll take to recover I'm takin b12 IM injection as prescribed by doctor and having vitamin Any exercise to reduce inflammation or any tip you please wanna offer me. Thanks in advance Also it's been 20 days for treatment already And 1.5 months for symptoms And now I'm experiencing a lot of tingling whenever i go in hot weather.
How to control hot weather problem, it's very major like if I resist just for 10 minutes i feel almost paralyzed tingling but in general i have nothing .
@DrBrandonBeaber has been 6 months! Only a cervical MRI. Idk what else to do He is not getting better. Neuromuscular? Rheumatologist ? How can I help my son 😢
Thanks Mary. I wish you the best of luck. The best predictor of the risk of MS after TM would be whether or not the MRI of the brain shows lesions suggestive of demyelinating disease.
I'm not sure about this. I think multiple sclerosis and uniphasic transverse myelitis are separate diseases. Transverse myelitis related to multiple sclerosis is often posterior or lateral in location in the spinal cord, and older brain lesions are usually already present.
@@DrBrandonBeaber well let me ask you this if a person has two transverse myelitis attacks 2 years apart doesn’t that meet the diagnostic definition of multiple sclerosis that is attacks separate in time and location
@@randholtham8493 Some people develop recurrent transverse myelitis without brain lesions or optic neuritis. This can be idiopathic or related to another autoimmune disease.
I was diagnosed with TM 6.5 years ago. I had rapid onset of symptoms, beginning with numbness in my legs and then paralysis which ascended upward to my chest, leaving me dependent on a ventilator within 48 hours. Initially, I had a clean MRI so I was diagnosed with GBS. I had IVIG, and was sent to a rehab facility to recover. Two weeks later, I developed severe spasticity during therapy and was sent back to the hospital, Only to discover I had LETM from C2 to C6. All of my brain MRI scans were clear at that time. Experienced partial recovery. Then in 2021 I got optic neuritis and was diagnosed with MS because I had one active brain lesion at that time, and have none since. No lesions on optic nerve at that time, but it was confirmed by VEMP And optic nerve pallor. Do you have any explanation for the lesions appearing on MRI after symptoms begin and not at onset?
I wish i had a doctor like you.. Just diagnosed with Tm.. In july of this year after a pererated gallblader. One week after the gallblader perferated i woke up paralized. Its december now i can walk for a short period of time.. But my legs and feet are numbe. Also suffer ing with thremors in my legs and arms and have lost bowel and bladder function. Sexual function.. Also.. I was treated wuth steroids 4 weeks after onset of the TM.. But no change.. Praying everyday that things get better as time passes.. 🙏Thank you as i have learned more about TM. From you, than i have from the doctors who were treating me for 16.weeks in hospital.. 👍
I have been where you are and I now have full functionality! You can heal, do not lose hope!
@@uncivilizedrebirth thank you so much 🌹
Best of luck ,you will be fine soon👍
@@Patils92 thank you so much.. I am a year a nd two months in now.. Legs are still numbe from the knees down and bowel and bladder still the same. And now have a lot of tremor s.. But praying everyday that things will get better.. Whats left but prayer? But thank you. And i hope you are keeping well.. Xxx david
I've had it for past 5 months. I can walk with a walker and for short distances without a walker. But I still have a lot of pain in my hands, arms, elbows, feet. Still have urinary problems peeing all the time and constipation as well. I try to stay active...hope this eventually gets better...we'll see...Iwas in hospital for 64 days...
Got diagnosed with TM March 2018, 1 week after a flu shot, 6 months after my son was born. The entire left side of my body from the shoulder down was numb and had pins and needles. My arm and hand was the worst effected with severe weakness. Try taking care of a 6 month old with that! They did every test and MRI. I had no other lesions, but I did have positive ANA and OBands. Fast forward to Oct 2020 during a routine check up MRI they found a new lesion in the brain and I got a MS diagnosis. It took about a year to recover from the attack. The only remaining symptom is a slight numbness in my finger tip, slight l’hermitte sign in the shower, and banding when I stand too long. It is uncomfortable but I’ll take it compared to what I suffered with at the start of it all.
Sorry .. my post-vaccinal TM was super aggressive & extremely painful as well. I still have residual symptoms comparing to subsequent MS spine lesions which symptoms seem to b fully resolving.
I was just diagnosed with this even though I've been experiencing thoracic pain in my spine for years, the tingling in the numbness showed up about 5 or 6 days ago, and they recommended an IV steroid. Did you go through intravenous steroid treatment? For how long and did you notice a difference? what treatments did you notice helped the most.
@@Pauliepsi yes, 3 days of treatment. You can even do 5 days if needed. It did help me heal, but it is not a quick recovery. Nerves take a long time to heal. Be patient and keep up with physical/occupational therapy
Is a law suit possible?
Was diagnosed December 2023... Was then on steroids and antibiotic treatment for 21 day's... I was completely paralysed from the waste down... Showing progress on about day8. Suffering from the symptoms. By God's grace I was discharged after 21 day treatment and was able to walk out of hospital by myself. Today almost 8months ago I still doing good. Although I suffer from mild shocking waves daily from my torso down to my legs. My bladder function has improved as well as the ED but still not normal. Currently just on oral meds/Epleptin 100mg which I take 3x daily. The painfull sensation in my legs not so worst anymore. Taking it 1day at a time nd really praying from full recovery. My last MRI was 3 months back showing still damage on my CNS.
This clears up so many questions I’ve had regarding this topic. Thanks for providing such a clear explanation on this!
You're welcome Joanna
I was diagnosed with TM 14 years ago, similarly i was hospitalized and regained ability to walk, etc. I've never been on any medicine for TM since my initial hospital visit. i had a foot drop about 5 years ago and another one about 4 years ago. Both times, they said I had no new lesions and just gave me IV steroids to help. Since then, i haven't see a dr or had any other tests. I deal with pain from the waist down constantly. My foot (the one i get the foot drops) and whole right leg hurts a lot more. It's starting to wear on me since i had to make adjustments to my walk since some of my nerve damage in my foot was permanent. Meaning, i can't flex my toes up and down so i walk pretty good, but i think it's straining the rest of my foot/leg. I also don't have bowel & bladder control and feel like that has gotten worse over time. The pain has gotten worse as well. I made an appointment with a neurologist but that won't be until may. I wish i could just find out if it is something or how to help this pain. It's hard to live a "normal, working mom life" cause i'm constantly hurting and in pain.
I have had positive outcomes with supplements; D3, Lion's Mane, Alpha lipoic Acid, B1 and Turmeric with black pepper extract. Paleo Diet which reduces inflammation. I hope you feel better
Dude I was in a wheelchair and bedridden for months from TM. I am fully recovered now, with nerve damage repaired as well. I was diagnosed in 2015-16 with TM. I had to go to rehab to walk again. How are you doing? The lesions I had were from c1-c5. I know how horrible the nerve pain is.
@@uncivilizedrebirth I'm glad you have fully recovered!! I'm doing ok, I've regained most movement, just dealing with pain. But I'm good, thank you for asking 😊
@@lauraspeer9762 ❤️❤️❤️❤️i hope you are ok xx
I've had it for past 5 months. I can walk with a walker and for short distances without a walker. But I still have a lot of pain in my hands, arms, elbows, feet. Still have urinary problems peeing all the time and constipation as well. I try to stay active...hope this eventually gets better...we'll see...
I first presented with TM back in 2017 pre-MS diagnosis. After ruling everything out via MRI's, blood test for all the other connected diseases, and a spinal tap. It was a pretty open and quickly shut case of MS orchestrating in the background. There wasn't a single stipulation I didn't hit on the McDonald Criteria (second edition) Because, the attending Doctor at the ER knew my graduate work dealt with brain theory. He printed off 14 pages of info on TM tossed me a highlighter and said, "get to work" - we'll discuss your analysis later. Which, we did and I appreciate and respect that guy to this day. I think he knew, but he understood how I needed to find out. To that end, word must have got around because by the time I hit the specialist - she smiled, looked at me and said "I think you already know what this is, but I'm going to let you diagnose it and lay it out..." To which I did, very thoroughly I might add. LOL! I made sure to couch my synopsis with "it's possible...and, maybe". But, at the end of it all she said, "Nope, you are correct it's a pretty straight forward case of MS." Anyhow, the clincher in my own assessment was the "asymmetry" of my symptoms. The article the doc provided did a pretty thorough explanation of Chronic vs. Acute TM. I remember telling the attending Doc I wished it was "acute". He laughed and said "I bet you do, because you know acute may be severe, but often temporary." I said, "but this case isn't acute and as the article stipulates the symptoms are very asymmetrical." I'm numb from the waist down to my toes, but the right has far less sensation than the left side and per the information presented me, indicated a strong possibility that MS was playing the background. And, no - I never got full sensation back in the lower extremities, but to the specialists credit she was straight with me from the get-go and let me know the damage was likely permanent.
HI, my brother just got TM, what would you do, drugs, therapies , ANYTHING , differently or the same ? any information would be a blessing. he has the same symptoms as you. aloha from Hawaii
@@josephsmitty-jo1oi - TM is a bit tricky, because not all cases of TM have MS playing in the background. Most non acute cases do have a high percentage of folks that go on to develop MS. But, acute case that present with more severe symptoms can often resolve themselves over time. Some non acute cases do as well. Which, is part of the reason TM is not often treated with DMT (disease modifying therapies). I don't know if your brother has an acute or non acute case. I know that John Hopkins (a very long time ago) was attempting to plead the case for TM patients to be treated with DMT's, especially those with a large lesion load. But, I don't recall that there was ever a resolution. At the time we thought I might just have TM, there was honestly no treatment options available. That was 2017, I don't know if things have changed or if f they have made advances in other kinds of treatment that target TM specifically. What I can do is recommend you to this site: wearesrna.org/
It's the site I went to when I was in the hospital back in 2017, waiting to be diagnosed with MS and they do have resources for folks with TM who are looking for support or information on how they manage/and or cope with the condition. I genuinely hope this helps. Aloha from WA 🙂
@@rivkehahmad7339 GOD BLESS YOU.
This is a gnarly disease. Super greens, water, exercise, and stretching. Most importantly you need to have a strong spirit. I have gotten through it, it was hell on earth.
Hi I’m glad your doing well. Please I need more information for my 14 years old daughter got diagnosed with TM. Any advice help please 🙏
@sadyasardar
Start taking a vitamin B supplement that has thiamine. This helps the body build the coating on the nerves called myelin health. Next start taking micronutrients aka greens. Leafy greens are great, lots and lots, powder (mix with water) versions are available also that may be easier to consume. Meditation for the pain is essential. The pain is like torture.
Movement is crucial as well. You need to know the body can repair and rebuild. Cut out all processed foods, and filtered water, and get rid of all sources of fluoride. The body is trying to fight this and repair at that same time and everything going into the body needs to be natural.
I will add again through meditation healing can happen as well. If you want more information please let me know. I would love to connect with you to help you through this. It is scary for the parents. Imagine how terrified a kid is going through this.
Be strong for them, and validate all pain and emotions. And tell them you are in contact with someone who beat it and that this is temporary. They can beat it as well. I want to give you hope. I want to encourage you that healing is on the other end of this
Don't hesitate to get in touch with me with any questions.
I've had it for past 5 months. I can walk with a walker and for short distances without a walker. But I still have a lot of pain in my hands, arms, elbows, feet. Still have urinary problems peeing all the time and constipation as well. I try to stay active...hope this eventually gets better...we'll see...
@ what does your leafy greens intake look like? The body is always rebuilding so if you consistently give it high quality building blocks it will be rebuilding with quality. Are you taking a Vitamin B complex with thiamine? This supports your myelin sheath that protects your nerves. Bernadine is an excellent supplement to take as well. How it pt and ot going?
@@uncivilizedrebirth Taking B vitamins but I will get everything else
Brilliant video, thankyou, will taking this to my doctors
Such good information. My son also has TM and MOG he made a great recovery from his attack. His was at the lower level leg weakness and bladder retention. Very scary, I wish more was talked about how traumatic this can be. My son was 14 at onset, it has been a challenge. Thanks for sharing.
Special herpes cure thanksgiving to #Doctorojie for curing me
That must have been really scary for you as a mom and for your 14-yr old son. I am happy to hear he has made a great recovery from his attack.
I can relate to your son. I was 13 when mine happened (24 now). Ended up putting me in a coma for 5 days and paralysed me from my nipples down. None of the treatments they did worked and the doctors don't know why I'm not paralysed from my neck down. My damage is actually from my C2. Doctors have said mine has been the worst case ever recorded. I've been basically a guinea pig since
I lost my son last year to MOG. I still can't believe he's gone. He would've been 15 on the 26th of August
I had a severe TM attack out of the blue. I had been cleaning out mY Father’s home after his passing. I was alone and decided to take a hot bath . As I lowered myself into the hot baths, the worst pain I ever felt shot down both legs (worse on left). Once it reached the bottom of my feet, I screamed because it felt like my feet were on fire. Luckily, I had my iPhone beside the tub. I called my sister who was approximately 1 hour away. She got there and we called my doctor. I, to date, still suffer with bladder, bowel issues, and sexual dysfunction.
Luckily the ER Doctorr did not dismiss me. He did an immediate spinal tap and sent me from Corpus to San Antonio, Texas where I was put on IV STEROIDS at a high dose. I remained in the hospital for a week. They started rehabilitation immediately and prescribed it for approximately 8 weeks after my discharge. I am lucky to be walking more normally; however, the bladder, bowels, and sexual dysfunction has been a difficult, ongoing issue!!
@@RobynMarieGonzalez my brother just got TM, may i ask if you may have gotten it from the vaccine shot ? what would you recommend for a new patient ? please. BLESSINGS TO YOU.
this sounds so similar to mine but my pain was in my arms and full paralysis c4 within 30 min
I had a large TM lesion, T3-5 I think.
Symptoms came on quickly-walking on sand, to walking on frozen peas, to walking on rocks. Banding in legs and butt. There was a clear line at my mid section where it was a different sensation below than above. Brain MRI showed two very small lesions that one neuro said could be normal aging, another neuro said it was not consistent with MS.
6 months later the TM lesion was remarkably reduced.
I started on O-2 half infusions and 2 full so far.
Now, a year later, my neuro will not call for a C-spine MRI, only brain.
It seems both are in order.
Most symptoms are gone, only persistent one is my “Hot foot”
I had some banding before my last O. It went away on our 10 day camping trip, came back when I went back to work. O seems to have helped as well, however I know stress is a big factor as well.
No meat
Dairy
Starches
hi, what is " O " ? please . my brother just got TM. thankyou
I was diagnosed with TM from June 2023 was able to recover partially, still struggling to recover from right knee strenth. presently walking with walker support. please advise proper medication/therphay for complete recovery. 😒
I wish I was able to see this when I got TM 2.5 yrs ago. Definitely saving this for the newbies in my support group.
Thanks Heather. I hope it helps answer some questions. It is very difficult to sit down and explain all of this in a routine office visit.
I'm curious, how many patients have you had success with using the Cyclophosphamide protocol in Transverse Myelitis when other treatments failed?
Hello Dr. Brandon Beaver. I am paralised from TM for two years now.. my lower limbs are not working. Bowel & blader not working. Trunk tummy muscle not working.. i dont feel pain, cold/hot, touch from my nipple down. Muscles from there down are also not working... please help. I can raise funds to seek medical help at your hospital..
I was diagnosed TM 03 years after covoshild Covid vaccine !
3 years? Typically, post-vaccine associated transverse myelitis is 2 weeks to within 2 months (lymphocyte/antibody response to vaccination occurs in a few weeks)
I was diagnosed with TM 6.5 years ago. I had rapid onset of symptoms, beginning with numbness in my legs and then paralysis which ascended upward to my chest, leaving me dependent on a ventilator within 48 hours. Initially, I had a clean MRI so I was diagnosed with GBS. I had IVIG, and was sent to a rehab facility to recover. Two weeks later, I developed severe spasticity during therapy and was sent back to the hospital, Only to discover I had LETM from C2 to C6. All of my brain MRI scans were clear at that time. Experienced partial recovery.
Then in 2021 I got optic neuritis and was diagnosed with MS because I had one active brain lesion at that time, and have none since. No lesions on optic nerve at that time, but it was confirmed by VEMP And optic nerve pallor.
Do you have any explanation for the lesions appearing on MRI after symptoms begin and not at onset?
Wow! So much useful information! And in such a short explanation that is clear to understand. When does this ever happen!? Wow. Thank you. Sincerely, thank you!
I'm glad the video was useful.
I was diagnosed with TM at 13 years old. I am now doing handstand push ups. There is a ten year recovery video on my youtue as I hope to inspire people to recover.
Approximately 1 month after covid-19 infection (taste and smell were gone), i woke up and my legs were numb. Next day it progressed to my mouth level. It was bilateteral, i was able to move but couldnt feel. It was really painful. I stayed in hospital for a week and some test have been done. Lesion was on my spinal cord. Between C1 and C2: 10mmx6mm. No other lesions on brain or spinal cord. OCB positive. 1 month after treatment same lesion became active and second attack happened but this time my right side's pain and heat sensitive affected. Since that i'm trying to live again but its tough. Its maybe MS or ,i hope, complication of covid-19 and never happens again. I just wanted to share my story.
Please get a diagnosis done to prevent disease progression
How can I reach the doctor, I live in Iraq and I can't trust doctors here they don't recognise if I have MS or TM so now I useling term cure Betaferon and I'm afraid it's a mistake and I may cause danger for myself
Excellent as always! I always learn so much. Thank you Dr Beaber.
Thanks Becky. I filmed this forever ago but delayed publication because I had some other videos I wanted to get out.
Hi Doctor, my mom had this TM, been occurs and start the pain after she done 2nd doze of covid vaccine last year October 2022. she is now in severe pain, her left body can't move due to pain and even can't stand. She can walk alone until April this year but this May started the severe pain.
My son was diagnosed With Transverse Myelitis last Nov. 2021. There’s no sign it just happened then they do steroids, plasma exchange and IvIG. All of his test were negative. He’s injury was from C1 to C7 before. The they do MRI again last July 2023 and it was C3 to C6 now and still negative on his blood test and still don’t know the cause. He’s quadriplegic. I just want to ask if there’s a connection from his Covid vaccine? He’s only 15 then when it happened. I want him to go back to his normal life again.
After 2 treatments, mitoxantrone worked for me, I was a paraplegic, now I can walk, a miracle has happened.
I'm not 100% but can shower, cook, walk to the store 7 blocks.
So sorry for you son, I'm praying he gets better 💪❤👍
There might be link between the jab, & TV.
They didn't know in the beginning what was wrong with me, they asked if I took the jab, my answer was no.
My mother having this after treating T12 compression and after covid vaccine booster. Doc, what is the best for her and her diet. She's 66 and has difficulty in getting from chair or bed.
My neurologist diagnosed me with MS after canceling out all other possibilities and seeing TM (causing Lhermitte’s sign symptoms) as well as what she said looked like typical MS brain lesions (asymptomatic). We were still waiting for results of MOG antibodies, which are only tested for at one research university in Japan, where I live, but my neuro was confident enough that it was MS. When I went back to the hospital to schedule the start of an MS DMT, my neuro apologized and said she jumped the gun, because my MOG test came back positive at a titer with a false positive rate of 18%. The hospitals’ entire neurology department had a meeting to talk about it, and they came back unsure which it really is, but with MOGAD being more likely.
Antibodies to MOG were found in about 5% (5/104) of people with MS in this study nn.neurology.org/content/3/5/e257nn.neurology.org/content/3/5/e257 It's difficult for me to say if these 5 individuals have MS (who incidentally have positive anti-MOG antibodies) or anti-MOG associated disease (MOGAD). Personally, if I had a patient with demyelinating lesions typical of multiple sclerosis, I would not recommend this test, and I would disregard it even if it were positive. Obviously, I can't give any input on your personal situation, but I wish you the best of luck.
Special herpes cure thanksgiving to #Doctorojie for curing me
i got gardasil hpv vaccination and the following day started getting shooting nerve pain down arms and legs. no tingling no numbness but burning sometimes. and muscle twitching. could this be transverse mylitis?! i’m doing a blood test with my doc but nothing else yet
This is brilliant, thank you! Will share with our Behçets support group! :)
Thanks Laura
A friend of mine was told her spine is clogged. They can't get spinal fluid. They don't think she has MS but she does have a brother that has it and has had a diagnosis for MS for many years. She has been in the hospital 8 months in Maine and has lost bowel and bladder function. They did tell her Transverse Myelitis and demyelination of the spine. She had no vaccines and the hospital isn't really helping her at all and 8 months seems ridiculous to me with no answers. Does this sound right? If not, what can I do to help? She wants the help and she feels they don't listen to her. They have no plan going forward other than for her to find a home to go to where she can get care. She is in her early 30's. This isn't right. Please, is there anyone out there that can advise or a doctor that might be willing to talk to her? She has state funded insurance and I think they are just milking it, meanwhile they aren't helping her. I am dealing with the same hospital and it's horrible. I worry how much worse this could be the longer her spinal cord is clogged with no resolution. "spinal cord is clogged" are the words she used so I am assuming a doctor told her that. She is one of the sweetest, honest people you will ever meet and if she can be helped, she needs it now. Advice would be great. She is tired of being in the hospital and of having no answers.
Uh yeah, this is happening to so many people right now it's mind blowing. Report to your state medical oversight agency and report doctors to the medical board. I can not BELIEVE how negligent doctors are now. It's like most of them are just charging insurance and then have no follow up or follow up testing for serious conditions like what you're describing. I'm on here for a sibling who has some sort of demyelating condition. Their docs throw up their hands "Duh, Dunno." Then she ends up in ER where they tell her to follow up with her Doc. Rinse and repeat. Doc wouldn't refer her to a nuerologist or a rheumatologist even though nearly whole family has autoimmune. Criminal! (Kaiser- THE Worst.) They don't want to diagnose or treat, they just want to keep you coming in so they can max out copays and charges without doing anything for the patient.
It's pure Evil.
I read Montanna has the one of the best medical care in the states. My friend in Montanna attests to that. Says she never has a problem. The docs are proactive with testing, treatment and medication without treating you like a drug fiend when you have a serious condition.
Thank you for the information. I was diagnosed with TM (right side of the body loss of sensation but still motor function, bladder function, pain/temperature function all in-tact) and the MRI only showed one lesion on the right side of my spinal cord between c-3-4 on the right side. Did an IV of prednisone and then orals for 3 days following. It seemed to slightly help but still the sensation loss is present. I see my neurologist again in about 5 days (it’ll have been about 3 weeks since the initial treatment) - any predictions on possible recovery or future treatment options - I would imagine prednisone again but any insight is extremely helpful. 31 years old and very active, vegan for 4 years and I’ve now been taking vit B supplements and just started taking omega 3.
Thank you for your helpful video!!
@DrBrandenBeaber how long does it take for a toddler to recover if possible
I have TV, my cause was unknown.
I was paralyzed for 8 months, under hospital care, & short term housing for for 13 months.
My 1st 2 treatments failed, one was IVIG, the other was some sort of steroids.
The next is Mitoxantrone, I took it once per month for 3 months, then once every 3 months. I have had 6, or 7 treatments. Though the grace of God, a great neurologist, & luck I'm now walking, however under Fed law I'm considered permanently disabled.
Physio is a big part, which is 9-12 hours per week.I'm very determined to be 100% if possible.
I'm glad you had a good recovery. Many people do recover significantly from transverse myelitis over time. In the United States, Novantrone isn't used (generally speaking) by neurologists due to the risks but it is certainly a viable option in aggressive demyelinating disease in the minds of some providers.
I was diagnosed with Transverse Myelitis after getting the Covid vaccine
I suspect that I had it also after my second Vax, got 4 total. Couldn't walk up or down stairs and pain even just breathing. It lasted about 5 days. Nothing after the last 2 vaccinations.
So then what? Does it go away
@@KoalaBeer. it’s indefinite. 1/3 recover. How long that takes, no one knows. Just have to take everyday as it comes and continue rehabilitation. Problem is, it’s so rare that governmentally, no one within the healthcare system knows what to do. Privately you can find help but it’s very expensive and once you lose your job because of the condition, you have to rehabilitate yourself.
However, I was able to find funding through the Transverse Myelitis Society and Challenge TM. They were a godsend! They done everything they could to help. With the condition being rare, it’s difficult to get funding for these organizations.
So the majority of rehabilitation I now do myself was influenced from the help that I received from the Transverse Myelitis Society and Challenge TM.
@@Everybodylies13 I’m sorry to hear that. It’s a shame how popular news outlets didn’t give everyone more nuance to the possibilities of these jabs. Q
I just got diagnosed with TM and the report says caused by the Epstein Barr virus. Still trying to see what this can do to me. I already have a spinal injury, arthritis in both hips and both knees and nerve damage in the left leg
Dear Dr Beaber,
thank you for another one of your great videos!
In your experience, how long does it take for pwMS who are acutely suffering from a flare up in the spinal cord to benefit from high dose cortisone? During my last flare up, I got 5 x 1g and 5 x 2g of cortisone over a course of 2.5 weeks and my symptoms continued to worse during that time. Only after 3 weeks the worsening (!) came to a stop, incomplete recovery took me about 2 months.
Best regards
It varies widely. Some people can have dramatic improvement in a few days. Some people with more severe transverse myelitis can improve slowly and incompletely over 1-2 years.
Hello doc my brother diagnosed transverse myelitis last feb. his shoulder fell so painful and there's a time all his body cant move.. prednisone,pregabalin and Leviteracitam is his medicine
I’m a 34 year old former Air Force officer, former police officer, and [I was] a special agent hire, before I began to get sick in the Fall of 2020. I believe I now have a variant of TM.
My symptoms were initially limited to breathing problems and exhaustion with exercise that was progressive, to now, I have intense head pressure [predominant to the left side] with remote left eye dilation, muscle atrophy and burning in my spine/neck/arms/legs, Orthostatic Intolerance, dysautonomia, possible mast cell activation, contracture in hands and feet, a weakened ejection fraction, eye pain with visual disturbance, bowel and bladder control loss w/ increased frequency, and overall worsening in most areas.
I have a positive Lyme Disease test w/ several co-infections, such as Bartonella, Babesia, TBRF, Mycoplasma Pneumoniae, and E. Hystolitica. Speculated CIRS, related to mold exposure. I even have elevated heavy metals (Mercury and Arsenic) w/ MTHFR genetics, supporting B vitamin deficiencies.
I’ve never had any issue before my entire life, with the exception of acquiring an ‘allergy like’ swallowing issue while working in the Air Force. They came on after spending some time in older facilities (Missile Alert Facilities). I suspect I developed a mild autoimmune condition that was overlooked as acid reflux, as I had 80% dysfunction in a manometry test a few years later [showing acid reflux was not the culprit].
My question, after all of that, is…could mold exposure or vaccinations be responsible for my initial onset of swallowing problems?
I’m assuming that initial issue led to the vulnerability that set me up for this current rapid decline I’ve had over the last year. *I went from bench pressing 300 pounds and running 10Ks to bed ridden with skeleton like arms and severe spine and neck wasting…much more.
Thank you for this video and for your wisdom.
Cheers.
Vaccines are toxic to nerves.
Meat
Dairy
Starches
No good
Get a coffee enema
Then take sea moss
Bladderwrack
Burdock root
Sunlight daily
Gallon of natural spring water daily
Walk in grass
Dirt and or sands
If by ocean get in.
Sleep atleast in between 10 pm to 2 am
I was in the service when I was diagnosed in the 2015-16 time frame. I am fully recovered now. I was bedridden, wheelchair, and rehabbed for walking. I am now in the best shape of my life. Leafy greens all day long. B12 complex with thiamin daily. Exercise every day, something works, anything counts. Only water. I want to give you hope. The nerve pain alone is enough to drive a person insane. Or as I did, learn how to meditate and escape the pain. I had to deal with taking close to 10 medications, as of one year ago I am taking zero medications.
my mother is victim of transverse myelitis for almost 1 year and she is experiencing abnormal pain with no painkillers can relieve .so can she overcome such abnormal pain .please need your feedback
My husband was diagnosed with transverse myelitis in 2013 . Though we dnt know if it was owing to SLE or due to a painkiller he was injected in his lower spine cz of severe low back pain n loose motions accompanied.
Though he recovered 40 % yet has issues in bending knees and toes and can walk only after wearing kfos or supporters n also has bladder numbness.
Is it possible now to recover completely?
Very Nicely Explained Sir ❤
Thank you for sharing such an excellent review of this complex condition. Does IVIG have any role to play in treatment ?
still need to do another brain mri,last was in 2019 nero said he doesnt think i have ms but put on notes may have ms, since 2017 lesion on c-2,have had chronic bilateral hand numbness, almost 5 yrs now sensation very uncomfortable when touch things gets more intense im 53,so im starting the journey again with all new doctors to find whats going on never had a lumbar puncture yet very nervous abt that as i have moderate lumbar arthritis ,nerve compression feeling so im nervous that the puncture will in some way make lumbar area worse or possibly touch my spinal cord when dong that procedue,any insight you can suggest Doctor? Enjoyed your thorough video here,i even took notes very helpful,thanks again and for your time.
I had partial TM last fall and was recently diagnosed with MS. I had enhancing lesions on my C1, C6 and medulla and had multiple o-bands with an IGG index of 1 on my spinal tap. The symptoms started in my right side and then progressed to my left side after 1 month. The symptoms only improved after the 1250 mg prednisone regime. My brain MRI was perfect except for the enhancing lesion on my medulla. How common is it for someone to be diagnosed with MS with no lesions on their brain and how common is it for the first MS attack to involve TM? I've read some resources that say you can't have MS without brain lesions so I'm very confused.
Can transverse myelitis progress to MS? MRI of brain and cervical were normal. MRI of thoracic showed lesions.
I have numbness and tingling in both legs and positive Lhermitte’s sign for 3 months now)
Currently on prednisone 60g/day for 2 weeks now.
My doctor is hesitant to diagnose me with MS because I show no lesions on my brain or cervical.✨✨
Sorry. I can't comment on your specific situation here.
@@DrBrandonBeaber I guess my question is can TM progress to MS? Have you seen this while in practice?
Mine is in thoracic too and it hurts SO bad.
Good morning Dr. Beaber.
My initial symptoms began with TM in the thoracic area of the spine which eventually led to a diagnosis of MS.
The TM started with gradual worsening symptoms of the lower extremities.
Did the TM cause the MS? Or did the underlying MS cause the TM ?
TM is one of the potential attacks people with MS have. Typically, when TM is the first attack leading to a diagnosis of MS, the MRI of the brain will show older non-enhancing lesions typical of MS.
Great video!
Thanks
My 16 year old son was diagnosed with rapid onset TM C3 - T1 in June this year. He had IV and then oral steroids, 2 cycles of plasmapheresis (10 session in total) and so far 2 rounds of IV IG. He remains completely paralysed in both legs with some movement in arms and significant hand deficits. His spasticity is severe. Not sure where we go from here. Lumbar puncture and bloods showed no obvious cause.
Sending you hugs
So sorry.
My TM is idiopathic, nothing was working untill they tried mitoxantrone, it resets the immune system.
I went from being a paraplegic to walking in one year.
Is this is whats happening after the pfizer booster it sure feels like it does it go away?
Idk love to know
I am happy that me understands most of what you say. :) Me is a german with some english skills. :) Great informative videos you make. I understand a lot more of my Multiple Sclerosis since I subscribed your channel. Thank you so very much. :)
Thanks Rouvi.
One thing I learned (well I learned a lot the 5 times I watched it)! I always thought by transverse it meant perpendicular to the spinal chord as this is how I use the word. You clarified that it is actually a lesion that traverses the spinal chord over multiple vertebrae! I think the name should be altered slightly. Traverse doesn’t equal transverse.
Special herpes cure thanksgiving to #Doctorojie for curing me
I've had TM for about 15 months now. My brain MRI in the beginning showed no lesions, but since then the only MRIs I've had have been to keep an eye on my original thoracic lesion. I was severely flared up, but that lesion was no worse than in the beginning. How often does TM actually lead to an MS diagnosis later? I'm tired of hurting.
In your opinion how important are full spinal cord MRI’s are? Could you please do a video on what symptoms constitutes a full spinal MRI.
Do you mean for someone with multiple sclerosis for routine screening?
@Dr. Brandon Beaber What are your thoughts on the correlation between Covid-19 infection and transverse myelitis? I've been experiencing excruciating lower back pain concurrent with a case of Covid-19 for the last 3 weeks. Pain not responding to Dilaudid, Lyrica, and Celebrex. Thank you
I have seen instances of demyelinating disease following covid-19 infection, but I am not 100% covid-19 was the cause.
@@DrBrandonBeaber what about the jab ? please.
Well Done Beabs…
#Sharingiscsring.
We love visuals 🤘🏻
Thanks
Good video. Thanks.
:)
I have transverse myelitis and I’m interested in trying to get in touch with you how can I contact you?
Hello, we have a patient who has lost his mobility from the chest down for four months. He is 35 years old. Plasma was also done but it did not work. What is your diagnosis and what is the treatment
I can't give personal medical advice here but I wish you good luck.
Why is the symptoms of TM weakness and numbness only? isn’t the opposite symptoms also possible that is spasticity and pins and needles sensation?
Yes. These symptoms are possible too, though spasticity more commonly develops months or years later.
whoa this is amazing
Thanks
Dear Sir,
I have inflammation in my cervical spine due to nitrous oxide poisoning because of overuse.
My b12 was alright too but on a low level.
How long it'll take to recover I'm takin b12 IM injection as prescribed by doctor and having vitamin
Any exercise to reduce inflammation or any tip you please wanna offer me. Thanks in advance
Also it's been 20 days for treatment already
And 1.5 months for symptoms
And now I'm experiencing a lot of tingling whenever i go in hot weather.
How to control hot weather problem, it's very major like if I resist just for 10 minutes i feel almost paralyzed tingling but in general i have nothing .
Dr how can I get a 99% accurate diagnosis?
I'm not sure what you mean. Transverse myelitis is typically diagnosed by history, examination, and MRI of the spine.
@DrBrandonBeaber has been 6 months! Only a cervical MRI. Idk what else to do He is not getting better. Neuromuscular? Rheumatologist ? How can I help my son 😢
Great explanation as always!
I hope my TM doesn't turn into MS 😬
Thanks Mary. I wish you the best of luck. The best predictor of the risk of MS after TM would be whether or not the MRI of the brain shows lesions suggestive of demyelinating disease.
İñşâ llah tedavisi çıkaŕ teşekķüŕ ederim 🇹🇷🇹🇷🇹🇷
So is it that someone who suffers a TM and does not progress on to multiple sclerosis but rebounds back might have healthier mitochondria?
I'm not sure about this. I think multiple sclerosis and uniphasic transverse myelitis are separate diseases. Transverse myelitis related to multiple sclerosis is often posterior or lateral in location in the spinal cord, and older brain lesions are usually already present.
@@DrBrandonBeaber well let me ask you this if a person has two transverse myelitis attacks 2 years apart doesn’t that meet the diagnostic definition of multiple sclerosis that is attacks separate in time and location
@@randholtham8493 Some people develop recurrent transverse myelitis without brain lesions or optic neuritis. This can be idiopathic or related to another autoimmune disease.
I have transverse myelitis can I chat with you?
Nice
I found the religious quote of Buddha distracting
Thanks for the feedback
I found it inspiring!
Is TM can restored or ri back after the in ability to walk or paralysis two 🦵 lost of sensation and lost of walk its count 4 yours to happen
I was diagnosed with TM 6.5 years ago. I had rapid onset of symptoms, beginning with numbness in my legs and then paralysis which ascended upward to my chest, leaving me dependent on a ventilator within 48 hours. Initially, I had a clean MRI so I was diagnosed with GBS. I had IVIG, and was sent to a rehab facility to recover. Two weeks later, I developed severe spasticity during therapy and was sent back to the hospital, Only to discover I had LETM from C2 to C6. All of my brain MRI scans were clear at that time. Experienced partial recovery.
Then in 2021 I got optic neuritis and was diagnosed with MS because I had one active brain lesion at that time, and have none since. No lesions on optic nerve at that time, but it was confirmed by VEMP And optic nerve pallor.
Do you have any explanation for the lesions appearing on MRI after symptoms begin and not at onset?
@DrBrandenBeaber how long does it take for a toddler to recover if possible