6 experiences unique to autistic adults
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- Опубліковано 19 чер 2024
- Autism affects individuals of all ages, but it presents itself differently in adults. 💡🔍 Autistic adults may have developed coping mechanisms to deal with social communication issues, and changed sensitivities, interests, and executive functioning skills. 🧠 They may have co-occurring medical and mental health conditions. Here are six experiences unique to #autisticadults, with full explanations on our blog: www.autismbc.ca/blog/experien...
#LateNotLess #AutisticAdults #AutismBC #AutismAcceptance - Розваги
I'm an Autistic Adult. Here's the bottom line: We live in a society OBSESSED with work and access to property and credit. OBSESSED. Some of y'all have even said, your families are obsessed with work. This is the MAJOR challenge of my adult life. Not so much the work itself but dealing with all the pettiness, drama, and bullshit of coworkers day in and day out.
Working to survive and generating currency are VERY VERY VERY different. The fact that so many people have the 2 conflated is very telling
Imagine i had an item that i claimed is valuable despie it being worthless, and made you give me all your gold and in exchange i give you this item. I also control at will the value and supply of the item. Meaning you have to work exponentially harder for a item that is constantly losing value.
And due to me always inflating away the value, you have to work longer and longer hours, go more and more in debt to pay off loans for longer and longer period of times.
Versus
You go out with your gun and bow, kill and animal, process it, preserve it. You go out and turn over your soil, plant seeds you bartered for, tend it, harvest it. You sustainably build a adequately sized domicile nothing more nothing less...for free except your sweat.
Now which one is actual work?? Which one is currency generation..like a slave???
@getshorty75
Totally agree, it's all about training you to be compliant and dismissing you when you can't be.
I've dealt with family members treating it like I'm using autism to pathologise my own laziness, as if the stress of looking for and getting a new job will in some way make my baseline of constant anxiety just disappear.
My previous job was in a laboratory, and I had the benefit of working with a lot of other ND people and we formed little support networks between ourselves.
They don't realize the chain-reaction that they're causing that I, as an autistic person, see plain as day, everyday, all day. We're going to have to be very verbal during this time period, very loud, and explain it to them very clearly in a way that they can understand. The strife that they are causing in the world has evolutionary biological responses that express themselves as cluster-b personality disorders, which seek to create a world of scarcity that more closely resembles the dearth inside themselves! It's a downward spiral, the black sun.
I feel the same way. It's so nice to know someone else does as well.
Bingo!🎯
I wish sensory friendly bars existed where autistic adults could show up, drink, and info dump in a dimly lit room with peaceful music in the background. Looks like a library but it's a bar.
That is genius!
uhm, there's plenty of bars like that. look for craft beer pubs.
LOL, brilliant!
It's called "cabinets" in a restaurant. Has all that you've desrcibed
i couldn't even do that.
*"the social anxiety is strong in this one."*
Diagnosed at 60, now my misbegotten life is explained. Never had a girlfriend, bastardised at work, retired alone.
Sorry imagine your daughter disowning you because married a millionaire...says I'm different..I even look young for 60..yet I guess I'm not good enough
In theory I agree with you. BUT if you only get diagnosed as an adult (I was 57 yrs old) it is completely different. After a lifetime of "failure" (school, university, work, relationships etc) getting diagnosed is a relief. But it made me also very angry at all the health care professionals who did not take the time to look deeper, called me lazy or stupid (even stubborn), because I lacked so many "normal" skills.
Do you think you would have been open to the idea of being on the spectrum? I say that because I have a friend who I am confident has ASD, but who was misdiagnosed with bipolar type II depression. the more videos I watch about ASD, I’m sure that’s what it is, he aligns with that more so than anything. When I suggested it one time, he was quickly dismissive, but being how he is, he did look into it and a day or so later Text me back and told me that he had read into it, but he did not think it was him. The strange/funny part is that everyone I have introduced him to has at one time or another asked me if he was on the spectrum
@@isimonsez I would have been open to everything. I researched and checked every diagnosis I got and nothing fit. I tried all the therapies and medications the doctors recommended, nothing helped. And so I was labeled as lazy, stubborn, refusing to work with the professionals. When one therapist finally suggested I might be on the spectrum, I was very sceptical at yet another diagnois. But I looked into it, did my research and knew that this was it. That was me.
@spinwitch
That's why I tend to dismiss people who get nostalgic and say that everything was better in the past.
Yes, it might well have been -
As long as you fit the very, very narrow deinition of what a "normal person" was supposed to be.
im still dealing with this, discovered that im probably aspie at 56. they pegged me as ADHD and said about autism, "its a childhood development disease" and shook his head and dropped the subject......my ability to show up everyday to work is what is killing me. after quitting drinking 3 years ago, it hasnt gotten better. they finally fired me last month.....i dont know what to do. im not stupid, in fact, in peculiar ways, i am brilliant but i cant fit in a world with all these strict schedules and all the chaos of traffic and job sites. i dont know how I was able to do my job for 30 years...fact is, i never in my life put 2 weeks in with out missing a day. im good enough at what I do that some boss' tolerated my attendance. i dont know what to do, have an appt with doctor and im feeling like this is hopeless. he's just going to increase the dose of adderall.....and we will play this game until i give up, again
@@strayspark1967 This is so sad. There would be so many ways for ALL people to work in a much healthier way and be more productive and happy, but those who make the decisions refuse to even look at other option than the standar 9 to 5.
I wish you all the best for the future and that you can find a way to support yourself in every aspect.
That last part about living independently is a bit daunting as an autistic adhd person, I see people like my parents whose lives revolve around work act like “that’s just the way it is” since that’s how they were raised which kinda freaks me out because usually for me after doing a big task or going out to run errands my brain and body are just done and need to decompress, also planning and organizing things for neurodivergent people takes more mental energy than most realize so not only is energy spent on physical tasks but the planning of what’s next. I’m trying to transition towards a mindset of navigating life at my own pace and factoring in my difficulties but I still feel surrounded by this social pressure of “you need to do more, you need to achieve more, you’re falling behind”
I hope my fellow neurodivergent adults are doing well ❤
felt this 😵💫
I am trying to get an ADHD assessment and I have been diagnosed already with autism. Been living alone since 18 and it is very difficult, but I have found it still so much easier than living with my not accepting parents.
@@zaraandrews600 as someone who has at least one unaccepting parent, my heart goes out to you. I hope you know you’re doing a good job and you’re brave as heck to be doing what you’re doing. I hope life becomes more manageable and you find more people who accept and love you for who you are 💜
Nobody gives a fuck about your problems.
Go out and get a job and you will see how quickly that negative mindset goes away.
The slaves too scared to try and escape, always belittle and deride and discourage the ones brave enough to slip their shackles.
What we do today is not work. It is currency generation. And due to the devaluing of our currency so the rich can get richer, "working" is no longer worth it. It is modern day slavery.
I want to add to that last point, as someone who's been adjusting to living alone the last year, that for me it wasn't about forgetting to do those things. With meals especially I would get so overwhelmed each day that I would have a meltdown. My mind would go really fuzzy and I couldn't think clearly enough to put a meal together. Doing way better now though if that helps give hope to anyone out there! One step at a time
Thank you for sharing your experience with us! It's great to hear that you're doing better now and your words of encouragement will definitely inspire others. One step at a time indeed!
It's hard to do, but I wrote out a list of healthy foods, and I made a folder to put recipes and meal ideas into it whenever I feel like I can do that. That way, I have a go-to list that I don't have to think/process too much, and it's easier for me to come up with something to eat. Otherwise I would end up just grabbing something or just get overwhelmed and walk away and do something else besides eating 😣 I also have meltdowns if I can't find anything to eat pretty quickly, I can't spend hours on meal prep, it's got to be minutes 😊 I am very good at it now 🎉
@@nee-na6874 oh my goodness, I find that too, I just eat my veg raw, because cooking stresses me out. I wish you all the best😊
@@joerussell6021 I have digestive issues which frequently goes along with being neurodivergent, so I can't eat many raw foods 😥 but I still try very hard to eat healthy, that's why I wrote out the list and I keep it with my folder and I have one for my grocery list for when I go to the store about once a month because I live far away in the woods.🤠
Thank you for this.
"Autistic adults who manage to hold down a job struggle (with tasks at home)" 🙋♀️💯
🙋🏻
Indeed, only so much energy and bandwidth.
Yes, even working part-time take so much energy leaving household tasks a low priority. And I do want to keep working if I can.
I can't do both lol. I just want to win at something😝
I have an older cousin who just gave me the adult sex talk. I learned about puberty and everything else when I was 10. However, no one ever explained to me the complex social needs and expectations that people have in an adult sexual relationship. This was prompted by me telling him that I met someone that I find interesting. It was a great lecture and I learned a lot. People who are not autistic probably wouldn't have needed such a lecture, but my cousin understands that I need human interaction explained. Otherwise, I'm just frustrated and confused by why people are mad at me.
Thanks for sharing this with us! The transition from childhood to adolescence and adolescence to adulthood is hard for many autistic people, especially as social needs and expectations around relationships, work, and school change. We're glad your cousin was able to be there for you in that moment!
Forgetting to eat, drink and sleep. Yep, that's me!
I relate to all six. The strangest thing for me is the last one, living independently. I've done a lot of things and had life experiences many people dream of having like travelling the world and achieving "dreams" etc. Idk how I did those things and do them. But at the end of the day, I can barely take care of myself in a way NTs can. I get confused, muddled and overwhelmed very easily with things like paying bills, taxes and applications etc. I always live a life of incredibly high stress that's lead to becoming disabled. I have an ASD 2 friend who is very good at big picture planning, but I have no clue how to do that. Ppl presume I'm doing just fine 'cos they would expect an adult like me to do those things, but in reality idk if I'll end up homeless in a few months or not simply 'cos I cannot tend to basics. It's always infuriated my abusive family 'cos it just seems like I don't have a plan. And yet I've done all these supposed "big things" in everyone else's eyes that makes them presume I'm capable because I hyperfixated on one aspect of something and checked off every box in order boom-boom-boom until I was done and then I am lost again. So the skill gaps aren't just in my professional life, they exist like big gaping holes in my actual life. Like Jim below, I just feel alone and scared all the time as I'm sure many autistic adults must feel too.
Thank you for sharing your experience with us. It takes a lot of courage to talk about the challenges we face, and we appreciate you opening up. It's important to remember that everyone's journey is different, and it's okay to struggle with certain things, even if others perceive us as capable in other areas. Please know that you're not alone. It's okay to ask for help and take things one step at a time. We wish you all the best.
This is just a complete guess, but it sounds to me like there might be some AD(H)D in the mix. I don't claim to know that for sure, but it is a very common comorbidity for autism.
YES! I've done things like traveling abroad alone, buying a car, graduating from college, and somehow landing a full time job, but no matter what I always feel just as lost after things like this happen while marveling and pondering how it was even possible. In many ways I still feel like a young child on the inside despite being 27, but I think I'm so out of touch with my emotions that people don't really see this.
I’m very with bills n common sense I’ve travelled served been political change making. But I’m clumsy self aware have melt downs get embarrassed feel anything I make an error on is purposely bullied on its social for me. And depression and unhealthy eating even when I do cook my own struggling with big jobs due to physical disability. Not trusting others as have been used and exploited when I’m
Kind to others. Seen as a threat to other workers do bullied. So now I can’t fit in or work since I burned out now bullied as a scrounger benefit claimant in uk wish is ableist fascist and Nazi almost. They want us to commit suicide for the rich n greedy to save on our pensions
@@annakilifa331 I’m 53 on list for adhd assessment was diagnosed autistic at spy 21 at 51 -52
It doesn't feel empowering. Now that I know it feels like a cage. There are things I've wanted to do my whole life that I know I just can't now. I'm pretty much just alone and scared. Lucky for me, my special interest is computers and programming.
I definitely understand this feeling! When I was diagnosed with ADHD a few years ago I thought everything could get better because there's solutions available like medication and therapy, etc. Now that I realize I'm also Autistic I know some of it isn't "fixable" now, there's only work-arounds now, and sometimes, there's not even that.
Sending you good vibes! You are not alone!
Jim and Sara, just echoing the sentiment that diagnosis has not felt empowering. My diagnosis leaves me very sad that my loss of skills and increased levels of challenges in performing day to day tasks a I age is not a temporary situation and is not "fixable". While we may not be alone in these struggles, the feeling of being alone in terms of mental and physical isolation from others due to the barriers caused by neurodivergence challenges can be profound for me. Thank you both for your own reflections on this.
Thank you for sharing your experiences and feelings with us. We understand that receiving a diagnosis can be overwhelming and that it may not always feel empowering. Thank you for offering different perspectives. We appreciate you all for speaking out and raising awareness about the realities of living with neurodivergence.
I don't want to dismiss your feelings at all, but I do want to add my own experience. When I was diagnosed with ADHD, I felt this way. It seemed like I was just always going to have to struggle to do the things everyone else could. And in some fucked up way I felt like I deserved it, like I was broken and this was just my lot in life.
I realized on my 26th birthday that I was autistic. More or less everything about my life and my psyche made sense to me, finally. And it helped me realize something else, that I should have learned much earlier. It's okay to be bad things. It's fine to just suck at something everyone else is good at, even if other people think you should feel lesser for it. There are people who are good at those things who will help you. And there are people who are bad at things that you're good at, and you can help them. Focus on your strengths, and delegate your weaknesses (as much as you can).
I feel the same way. Many ND folks try and encourage me that I'll feel different one day and I really REALLY hope that's true. Diagnosed w ADHD a few years ago at 22, now 25 and have been looking into autism for over a year now. I am sure I am autistic, and the revelation has only brought sorrow and distress.
The other day, my mom, best friend, and I went to the beach. I had on my sunglasses and had my normal glasses hanging from the neck of my shirt. Apparently at some point when I bent down, my glasses fell off. As the sun set I reached for them to find them gone. I walk back looking all around, and ask a couple on the beach of they saw anything. They didn't. I found my glasses later, thankfully. On the way to the car, I passed the couple again, wearing my glasses. The guy speaks up that he's glad I found them. I told him I found them on a little mound of sand just waiting for me, like fate or something. He and his gf just kinda smiled awkwardly at me, I wished them a good weekend and left.
I could just tell. I could tell they knew. I could tell they thought I was awkward and weird and different just from how I was walking on the sand and how I moved my arms and hands. It was heart breaking. And this has happened my whole life, and now I know why.
All my issues, combined with burnout and becoming "more" autistic (a common thing noted by late diagnosed people) makes me feel hopeless. I will always be different. People will always notice me. And they will treat me differently. They will treat me worse. Just like they always have been.
You say it so succinctly: "Eating, sleeping, cleaning, and running errands" Yep those are all tough. I live on my own and for now am managing to hold down a job to afford that. But on stressfull days i forget to eat a meal or two, only remember when i get a headache or cant concentrate then realize its from hunger.
My house is always in disarray, never would really have anyone over, even if i had friends, because its embarassing.
Errands are the worst. Usually order grocery delivery. How did people deal before that? Youre telling me to not starve you had to make a shopping list and go to the grocery store every week!?
Things i do to kind of work around it:
Hire someone to mow my lawn even though its kind of a waste of money.
Get groceries delivered
Basically eat the same food every week. Usually just have 1 same breakfast and a few super easy entrees i repeat for dinner and lunches.
Have no hacks for cleaning i cant afford to hire cleaners wish i could - i feel like outsourcing is the eadiest answer to all these things but all that takes money. I know i am lucky to afford getting someone to mow the lawn.
Anyway - ramble over.
Thank you so much! We're glad to hear this video struck a chord with you. There are blog posts on the Resources page of our website that provide tips for coping and context for why this happens if you're interested.
I concur. Grocery delivery is quite the convenience. Last week I thought I’d go pick up a few things at the grocery store. I’ve been to this store multiple times (not alone) but last week when I went alone I got disoriented in the store. Took me awhile to find the locations of the stuff I needed. It was overwhelming and I cried after that.
As an autistic adult, when I was single (well over two decades ago), I would go to the store to get just a few things to last me a week or so, such as fruit, TV dinners, ramen. Or, I would just go out (at a time when eating out was affordable). I didn't know how to cook, so that's what I did.
"As they age, an autistic adult's migraines start to get more intense" Wait. This is a THING? Because I've definitely been seeing this over the last few years and hadn't connected it to either aging or Autism (and yes I have autism Dx). The really annoying thing is the way that tinnitus, which used to be just the precursor to a migraine has nearly become constant. It feels like my brain has just been turning up the sensory sensitivities now that I'm past 50 and I'm not at all happy about that
i havent has a headache in 24 years.....
Great video, you literally pointed out just about every struggle I'm currently facing in a way that may be understandable to allistic folks that I usually end up over explaining.
Thank you! I'm glad the video was helpful to you and that it could potentially serve as a tool for explaining your struggles to others.
@@AutismBC I appreciate this so much-being to use this as a tool to explain what is going on to others. I have so much trouble putting together what is going on inside, but when I hear you talk about these 6 things, they are all too familiar. Thank you for making clears videos that are too the point and so helpful! ❤
(after five minutes of solid information bombardment from a fast talker while I concentrate on maintaining appropriate eye contact so I look like I'm listening, but I can't listen because my attention is on worrying about looking like I'm listening and worrying that I've already forgotten most of it while they were still talking but I can't interrupt them to write any of it down or admit that I already forgot everything they said) "Can you put that in an email for me for so I can refer back to it?" "No. That's why I'm telling you now to save time and so I don't have to write it down." Literally no clue what I had been told. I was gone about two weeks later.
I’m a fast loud autistic I’m adhd with both rspid and delayed processing rapid on many levels quick to explode and get frustrated with self and others. Too much common selves fir this world and bullied for every imperfection like living on cute glass it hurts
Hi! Thanks for sharing your experience with us. This is a common experience we've heard from plenty of autistic adults, both on our staff and in our community. We hope you can find an environment that's more accommodating and inclusive in the near future, and if you want to participate in our programs or groups, you can learn more about them on our website! We always make an effort to provide meaningful support to autistic people.
The speed adjustment feature on UA-cam is your friend. The .75 or .50 level is often helpful.
How about the fact that being “high functioning” with a later in life diagnosis, I’m not believed or dismissed when it comes to my health. It took me over a year and nine months on sick leave befor a doctor believed me and I’m a nurse!
I was misdiagnosed 8 years and they repeatedly refused to mri my spine and as an ex medic I was right but got no justice, mh struggles life long. I give people everything I had and it was ne er enough went through life with imposter syndrome I never felt good enough now I have ptsd i workers ten years in healthcare and 8 in the TA on-top of it mostly. Nowt I did to fit in was good enough my brain always ever self aware and stress burnout not even recognised diagnosed at 51. I could of been so much more if my family wasn’t working class and I wasn’t abused
That sounds so frustrating! The healthcare system is an extremely challenging environment for many autistic adults to navigate, so you're not alone. It's difficult to pinpoint any one issue causing the dismissal of health issues you mentioned but we would love to help advocate for positive change. Some of our recent blog content covers questions to ask your doctor, barriers to neuroaffirming care, and why neuroaffirming care matters. If you want to reach out with ideas for other initiatives, feel free to reach out using the Contact Us page on our website!
I've been fighting my work for over a year to allow me to wear hearing protection. I FINALLY am able to wear it after telling them I'm dealing with hearing loss. I had to fill out an incident report. I work at a warehouse... My performance and mental health have improved since.
We're sorry to hear your workplace is so unwilling to meet your request for accommodations. That sounds incredibly stressful, but we're glad you were ultimately able to wear hearing protection at work! We believe all employers should provide accommodations to their employees, and our Communications team wrote a blog about how employers can be more inclusive to autistic people that's on our website if you're interested in reading!
@@AutismBC I don't have the attention span. 😓 I HATE that I have to work to survive.
If it's really that loud, and they aren't allowing PPE, that's the domain of OSHA.
@@AutismBC its normal for the workplace to ignore our needs...
@@confidentlocal8600 OSHA is safety...they dont care about autism.
This would be more accessable without the music- I couldn't make it to the end as the music kept getting in the way.
Thanks a lot for taking the time to give us your feedback. We've received similar feedback in the past and have ensured that all of our other videos are accessible. Unfortunately, it seems like we missed the mark on this one. We're sorry for any inconvenience this may have caused, but we will prioritize accessibility in all of our future videos. Thanks again for bringing this to our attention!
@@AutismBC Thank you.
I'm 62. At the age of 54 I saw Temple Grandin give a lecture 'I think in pictures'. It was a revelation and a shock and an epiphany all in one. I thought everyone thought in picture's. To discover people had no mental visualisation was the shock. I was and am saddened that my wife doesn't think in picture's. That she can't see her mothers face in her head as I do. The fact I have, what can only be described as, a heads up display at all times in my vision is to me a bonus. I thought everyone did. I could never show my workings out in the margins of my maths book because it was visual. I didn't, and don't, understand how you can do it differently. There are severe difficulties I also face in life, but to be without my visualisation would be crippling. I was clinically diagnosed as having Asperger's at the age of 57. I'd struggled all my life and now I actually believe I'm gifted and better for the way I think. I really feel sorry for those who can't see. In the course of my research leading up to my diagnosis, I discovered some people don't even have an inner monologue (!??) I can't fathom that on any level. Since diagnosis my crippling depression has virtual vanished... The measure of sanity should not be how well we fit into a profoundly broken society - Jiddu krishnamurti I believe, and I've paraphrased somewhat.
I'm very happy you were able to get diagnosed, even late in life! I just found out recently myself and it's got me very curious about the way I think, and cognition in general! I also never realized that other people thought differently for a very long time. Although I can visualize images in my head (quite dimly, usually) and can have a conscious train of verbal thought, most of my thought process occurs... not subconsciously, but conceptually, in a manner that I can only describe as conscious but neither verbal nor visual. I'd say it's closest to what I've heard described as pattern or "math and music" thinking, as well as 'bottom-up' or 'details-before-concepts' thinking. i've always felt that i thought about everything backwards, which was frustrating as a child. but as I've grown and learned how to think about things forwards as well, I'm a much more creative thinker than people who never tried to think backwards. I hope more people can learn about this younger, and also that we can all learn to appreciate our differences as what they are, no more and no less.
I also think in pictures and visualisations, it comes with interesting aspects.
I self-identified at Age 44 in 2005 after reading a random newspaper article about "Asperger's Syndrome" - suddenly my entire life was utterly Explained! I was gifted at math, had a nightmarish childhood (ADHD, OCD, ODD, all the Alphabet soup "disorders"), was able to get my act together enough to complete school, go to college, earn Engineering degrees, become a civil engineer w/a quite accomplished 35 year career designing & managing transportation projects (a lot with commuter rail, ports, & airports - I was a HUGE nerd about trains, planes, & ships).
I have a very keen ability to visualize inside my head - I could picture the designs I was working on - or others were - in my head, as they would look completed. Eventually, CAD advanced to where my gift was irrelevant & computers did this for us.
Once I figured myself out, I started seeing that everyone in my field of engineering was also somewhere "on the spectrum", & it helped me as I advanced into middle management to deal with the "people problems" more effectively.
My personal life was never all that great - I dated & got married twice, mainly because my family wanted me to, for their own fulfillment & religious purposes, not my own (I am Profoundly Agnostic). My family ultimately rejected my self identity, it was a source of embarrassment & shame for my parents, after a lifetime of me humiliating them in front of friends & family with my "strangeness". I was outright rejected, & am now estranged, much in the way LGBTQ+ folks are by conservative parents. Much like them, I cannot help how I was born, & am not going to let anyone make me feel ashamed of myself for being who I am. It is their loss, not mine.
As for any "official diagnosis", I considered seeking one when I had a "difficult" boss, but then the Newtown school shooting happened in 2012, & the media was saying "take guns away from anyone with Aspergers Syndrome", as I am a history enthusiast, & thus a firearms buff, I did not actually want this "official" categorization in this society any longer. I know myself better than any "Shrink" ever will anyhow . . .
I think in pictures too! It's like a movie going on in parallel in my head that I need to follow in order to try to interpret whats going on in real time...quite challenging. 😊
Also, I can visualize objects and and molecules in my head. Very useful fir organic chemistry ⚗️
other people dont think in pictures? i didnt know....
Thank you for this; I fight and suffer on a daily basis with no proper support system so it's nice to know we're understood and awareness is being raised.
Thank you for taking the time to leave this thoughtful comment! It's rewarding to know you found this video insightful.
This is mostly true for me on #1, but I still have absolutely no idea what anybody else is thinking or why the rules are what they are. In retrospect, it's hard for me to understand how I didn't notice. I guess, I heard that people can't mind read, so that means that nobody knows anything about what other people are thinking.
Thanks for sharing your experience! It's understandable to feel that way, especially since social norms and expectations can often seem arbitrary and difficult to understand. Remember, you're not alone!
@@AutismBC To be honest, when I stumbled on the rest of the autistic community, it kind of freaked me out a bit that there's actually other people out there that understand just about all of it, not necessarily the same person, but collectively, most of this stuff isn't particularly new. Which means that collectively we can find some sort of a reasonable answer for most of it. Or at least the most problematic bits.
@@SmallSpoonBrigade That's wonderful to hear. The sense of community and understanding is often at the heart of our programming and resources because it's crucial to well-being and self-understanding for many autistic adults we've spoken to.
You have to feel what people are thinking...and neurotypcals are too stupid to do that.
People who don’t use headphones who have their phones on loud speaker mode watching videos etc can be annoying esp at the gym or when travelling via train
This video = my life... Thank you for sharing this information, I appreciate it and am thinking it's the best one I have watched that perfectly describes what it's like being an autistic adult. I'm 67 and got clarification FINALLY in the past year, but knew I was "very different" since I was a child. I'm in the process of reframing my entire life now and it's a journey that is EVERYTHING.
Thank you so much for letting us know this video resonated with you! We wish you all the best in your journey.
I have a detailed list of everything I need to keep track of down to what I eat, how many times I eat, how many calories, and how much it cost that I write down and update every day. The idea of me ever being overweight is a fantasy because I have to put in so much effort just to be a healthy weight. And thats just food, this goes down to every other detail of my life and its so overwhelming. Then I have to keep track of all these lists and systems while holding down a 9-5 plus overtime and somehow have enough mental energy to hang out with friends on the weekend. I can't, I need a much lower workload but thats not possible so I do what I can and hope my college classes take me somewhere where I don't need to work so many hours.
I think the issue with this video is that it feels like it assumes you were diagnosed with autism when younger and aware of your issues. But I was diagnosed at 21.
I was diagnosed at 21 as well. I commonly struggle with work; finding a job, interviewing and keeping a job.
Hello! Thank you for this feedback. The autistic adults who wrote and hosted this video are also late-diagnosed, so we're sorry to hear the video came across as being intended for solely early-diagnosed folks. We'll be more careful when making future content to ensure it's more inclusive to people diagnosed at all different points in their lives.
Would be interested in hearing some strategies for self advocacy particularly hhow to handle rejection/dismissal/refusal to accommodate
I think the difficulty with this video is that it is very perspective based and those of us who have different perspectives can’t relate. Take point 1, in some aspects learning I’m autistic helped me understand myself and accept my differences. But on the other hand, knowing this is the way that I am and can’t change it feels utterly hopeless. Sure I can learn to manage it, but as someone with multiple conditions to manage it just feels like long term burnout is inevitable.
Hi! Thanks for sharing this with us. We're sorry to hear our video wasn't relatable for you, and we're taking action to include a greater variety of voices in our campaigns in the future. The host in this video also has personal experience with multiple conditions and chronic burnout as an autistic adult but we will be sure to take a critical eye to upcoming content with this feedback in mind.
Excellent video. I only wish there were pre-formatted closed captions for easier following.
Thanks for bringing this to our attention! We will be sure to look into that before posting future content.
It started off with depression, anxiety and hereditary OCD(some panic attack episodes too), started taking therapy, things got a bit better but mostly the same. Then I got to know about 16 MBTI and related so much with the INFP type, few years later read about HSP/HSS, and then started getting youtube recommendations for ADHD in adults and then finally a video about Bridgerton's Francesca displaying Autistic traits got me here. I am scared, will it ever end? Is this it or is there still something else? Sometimes I accept myself fully, I love myself for who I am and then there are days like today, when I absolutely hate my life. I have always found it difficult to fit it, now I know why, but does it make things easy for me? Today I just feel like sitting in a corner and crying all day, not wailing just those tiny silent sobs.
Just want to say I completely relate to what you said and when I got to the part about about the 16 MBTI I said to myself "watch it be INFP" lol. My only difference is I was already diagnosed with ADHD but completely relate with you. Idk about you but for me its a little comforting to know/realize I'm not alone with my experience. Have a good one.
En tant qu'adulte diagnostiquée autiste à 38 ans, cette vidéo m'attriste vraiment et me fait sentir encore plus seule. Après toutes ces année de solitude, d'isolement, de masking, de harcèlement, d'incompréhension, de surstimulation (sans comprendre pourquoi), je suis juste une adulte brisée, dépressive, anxieuse et très seule...
I feel the same way. I hope that we both get through it and succeed in life.
@@lilibaby696 Your message has already made me feel less alone... I hope you find your place and a way to blossom
Diagnosed 1966 with autism. No education, training or direction. Lost my BC government labouring job at 42 because of my autism. Was told the top person in my ministry had it in for me and ended up forced into taking a modest buyout. Lost medical, dental, chunk of pension, human connection and more. 65 and that’s my employment legacy. The only work I found after was delivering telephone books and working at an election. I guess my resume read like an autistic resume because I never received one job response except these two menial labour positions - not one. Watching my brother with his career on top of family, grandkids and successful marriage - integrity - really hurts. He gave my parents grandkids and I gave them ambiguous loss and a reason to not be trusted.
Thank you for the nice content! It is very helpful to listen to someone else describing my everyday problems in such a detail
That means so much to us! Thank you for letting us know you found it helpful. That's why we do it!
I have always struggled with keeping my apartment clean. Even now, I still have difficulty with that.
1:02 - Nah I still just feel broken and unwanted
I’m an adult with Autism, and I live alone, but my parents are just across the street and my sister and her family live about half an hour away from us, so that works out well for me. I’m mostly independent, but I still depend on my family and friends for rides to things.
Love from QC to BC!
I clicked on this video thinking it would be helpful for me having an ASD dx, but felt frustrated by the focus on the nt/allistic audience. There are some fair points made, but I was hoping to hear from a neurodivergent perspective aimed toward neurodivergent people. This is my first exposure to this group, so I don't know who the intended audience was...
Thank you for watching our video! It's a part of our new campaign to raise awareness about late-identified autistic individuals. Aly, who is also autistic, is leading this effort by summarizing different experiences as an autistic adult with non-autistic (allistic/NT) folks. We know that many people still think that autism only affects children, so our hope is to change this perception. We apologize if this video wasn't what you expected, but we'd love for you to check out our other content.
This is well written. Thank you.
This video is absolutely spot on thank you
Great video, although I think the first experience depends entirely on the individual regardless of them being autistic. I found out as an adult, and ever since I've felt defective, very much like a broken clock.
Hello! Thank you so much. We completely agree that each autistic person's experience is entirely unique. Many of our autistic staff and community members relate to the feeling you described and we're tirelessly working to create more supportive paths forward through resources and programming, and we appreciate hearing your thoughts!
I didn't except that to hit so close - dealing with the increasing migraine right now!
This was so kind! Thank you ❤
completely brilliant video perfect
Love from NS to BC
The migraine thing is so real. I’m only 20 and have suffered from them since I was 8.
i haven't had a headache in 24 years...
@@gothboschincarnate3931 lucky !! I’d be grateful to have a week without one 😭
Very well put..
The bit abouit migraines getting worse with age - HOOO BOY! I've actually been worried that something was seriously wrong because they have absolutely been getting worse over the last decade.I didn't think it was something manageable at all, that all I could hope for was to find and avoid the triggers (and accept having a blanket day when necessary). Are ASD migraines really treatable?
i haven't had a headache in 24 years...
Hmm. You sure described me!
You can get round the eating problem very well by sticking to fixed times and reminding yourself of these times as much as possible, for example with an alarm clock on your smartphone. As eating too little or too much can also be a problem, it can help to work out your daily calorie requirements and the corresponding distribution of nutrients and use this to create an approximate plan, which can save you a lot of time in your daily preparation. There are probably apps that can do this, but let's be honest, what autistic person would want to be relieved of this work?
And besides: routines are a good thing after all ;)
I'm sorry, but I still see myself as broken... not different.
I get that feeling. I'm trying to see myself as an out of date computer that can't be updated easily & needs longer to process things & 'downloading' information requires jiggling the cables a little bit. Helps to see the frustration in perspective & get outside myself. Also needs more computer technicians to maintain itself kind of thing. An old school car comparison works too. We work in analog & the world runs digital kind of thing. Not 'fixable' per se, but still dignifying.
I was diagnosed at 19 ... xD No other comorbidities though but maybe that doctor was just for the autism diagnosis
BINGO - you hit the nail on the head with this one.
Thank you for your comment! I'm glad to hear that you found the video relatable.
I think our now 25 yr old son might be autistic. How can we help him know that we love and support him? When we speak with him he is very rude and defensive. I always ‘ ask too many questions’ just to ask him how his day was. I get only a few words from him yet he tells me I can’t have a conversation! He does come to small family gatherings and is now studying computers and finance at university. Of course, the lecturers have major faults in his eyes. I have stepped back in our relationship because his words are so hurtful.
Autism awareness is different everywhere
❤
i didn't know my migraines were tied to my autism!
i haven't had a headache in 24 years...
I struggle with tech
This is literally a list of complaints my parents have about me 😂
How could you mention co-occurring conditions without mentioning ADHD?!
I want to like this but there are so many holes in her explanation of what the disease is. If you have to wait until adulthood for diagnosis you are depleted & often can't advocate for yourself because you don't have the strength to, Especially if you also have coocuring diseases like a.d.h.d that make things like executive functioning extremely difficult/impossible or if you have trauma. So your life just sort of goes into a downward spiral until the day you die, Especially if you have no family or friends you can rely on for support or care.
It's a neurotype, not a 'disease', but I agree with some of the points you've made otherwise
Hello! Thank you for sharing, and we'll be incorporating your feedback into future content to focus more on solutions to these hardships. This is all true for many autistic adults, including the host speaking in the video, and we strive to support autistic adults through programming, resources, and other community initiatives to help alleviate these struggles. The purpose of this video was mostly to communicate how autistic adults' experiences tend to differ from autistic children's experiences, based on firsthand perspective from our staff and members. However, we don't always get it right, and we're grateful for your insight.
I certainly hope the channel owner doesn't mind. But I would really like to post my neurodiversity poem
Hi there! We'd love to hear from you. You can submit to our Contact Us page on our website to get in touch with a member of our team.
Thank you 🙏🏻
some not that unique. Increased self awareness is common with ADHD, BPD, and CPTSD.
I’m disabled and isolated and no one cares
Hello! We're sorry to hear you're isolated and would love to connect with you. If you reach out using our contact page, staff can get in touch to share opportunities for connection in the BC community!
Totally broken.
That's the name " *she* "(we know who _she_ is) gives to self collected serious people, instead of her ourward shameless outgoing behaviour....She's thought it all, only *_she_* is normal, *_she_* is the example, and *_she_* knows of happiness.....She, she, and only she......✝️
The main trait difference between myself and autistic people is an ability to see the similarities between all things. Meanwhile I can maintain and hold the cognitive dissonance level required to look at individual things. This also works in my dealings with people but most autistic people are constantly looking to call me typical and themselves unique. This tremendous drive to be unique unique unique unique breaks down as a system for them and then they attack attack attack attack attack because somehow I was unable to understand as a typical typical typical how it works.
whooptie dupetie....
I'm sorry, but I don't feel empowered. Even though I've hit my early 20s I still feel like certain things are missing. The way you look at the camera also looks like your reading from a script at the same time.
The villain here is neoliberal capitalism, and our society's ongoing refusal to even _pretend_ to do the bare minimum for citizens' health care and labour rights, let alone for people with disabilities.
If I'm pretty good at masking, and I'm highly functional, and basically able to do my job perfectly well, day-in and day-out (which I am), none of that matters if a bachelor apartment costs $2,200 and the municipal, provincial, and federal governments are not only completely ignoring the problem, but doing their utmost to drive up housing costs while driving down wages. Autistic adults have a handicap in the best of environments, but Canada? Canada is a cruel, neoliberal hellscape.
self awareness isn't unique to autism... neither is struggling at work... neither is managing relationships... Title doesn't make any sense
Unique to autistic adults compared to autistic children.
Wtf... A person who researched autism is telling you about autism... I could have done that I thought this was a person with autism speaking about her experience
Hi there! The person talking in the video is an autistic adult speaking from a combination of research and experience.
You thought correct then because she is autistic.
I'm an autistic minor. None of these are unique to you guys lol (other than living independently for me, but others that is also just as much of an issue)
You sound like you’re saying artistic.
Autism ruins our entire life...
Who is this woman? Why this woman?
How is woman?
Her vocal fry is like nails on a chalkboard.
I’m studying to become a pharmacist, is it an autistic friendly job? I’ve thought about working in a pharmacy so in contact with the patients . But you stand up all day, have very chaotic and uneven weeks in therms of demand and especially social interactions. I like helping others to be able to take control of their own health that’s why pharmacy is interesting to me but I understand you can’t resolve everything by medication and I feel incapable to help people in a less concrete and dependable way. The relationship with the patient would be I guess ruled out so easier for me. Which reminds me that if I have colleagues it will be more complex, having to present my work or having other colleagues to manage would be a hassle of miscommunication. In pharmacy I have noticed they like to gossip and talk behind the backs of managers or else. I could also do industrial and research in pharmacy so I guess I will be fine. The thought of depending heavily on someone or having someone depending on me is very triggering to me
Hi there! Thanks for engaging with the video. While we can't endorse any one particular job, since it depends on each person's sensitivities, long and social shifts tend to be challenging for autistic adults. We hear you and wish you the best of luck in finding work that's accessible and fulfilling!
Get yer boosters! lol...
None of these is unique to being an adult with autism. The title is misleading.
I think it’s unique for adults with autism as opposed to children with autism
Lots of these are also applicable to ADHD and other mental conditions, though the double empathy problem is unique to ASD.
I think what they meant was that it's unique to people with neuro-divergence, especially those where it is innate, although, in acquired neuro-divergence, struggling to keep up with self care is more prominently obvious as their mental illness progresses. With innate neuro-divergence, it's wavering severity of struggle with self care.
Thank you 🙏🏻