What are Dynamic Disabilities?
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- Опубліковано 27 сер 2024
- Today I am diving into the world of dynamic disabilities and sharing my personal journey of life with PTSD. Join me as I open up about the challenges, triumphs, and lessons learned while navigating life's unpredictable twists with resilience and positivity.
Lets break down stigmas, raise awareness, and advocate for inclusivity as we celebrate the strengths and capabilities of individuals with dynamic disabilities.
Whether you're navigating similar challenges, curious to learn more, or simply seeking inspiration, this video aims to enlighten, educate, and spread positivity.
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#lifewithaservicedog #JenandPharaby #targetvlog #vegangroceryhaul @target
Thanks for being here 🤗
Lots of Thanks to you and Pharaby for making videos and making people smile🤗You two are amazing! Bobo and I love to watch your videos(Bobo is mostly interrested in Pharaby,he keeps touching the screen with his paw when she is there😻so I have to put on the screen-lock😂)
Take good care of yourselves❤️
My dynamic disability of the last 2 decades recently caused me to loose a friend of 30 years. He just couldn’t understand how I could be well one day but then another day say I can’t do things.
I experience that same thing with my disability! I can go days to weeks not being able to leave the house. The part about being dizzy is exactly what I experience. At times, I will have to crawl inside if I need to get from one point to another. I’m so sorry you have to deal with that. It’s comforting knowing others are going through the same thing. Love your channel ❤
I think it’s a lot more common than we realize. Thanks for being here! Like you said, it’s really sad to experience it but it’s so nice to know that we’re not alone 🥰
Jen, thank you for talking about this. I had not really understood "dynamic disability" until now.
I had never heard the term “Dynamic Disability”! I sincerely appreciate hearing your story with the honesty of your struggles.
I too have a dynamic disability that you would never have any clue to unless you could see the back of my head under my hair and all the scars. I struggle with major guilt when I’m having bad days because I feel like I should just be stronger, or I’ m just lazy. Prior to my disability, I was a highly skilled professional with a career that falls in most of the top 10 most stressful job lists. I think that’s a major part of the guilt- how could I have excelled at functioning at such a high stress level and now I have days I can’t even get out of bed or do the simplest of tasks?
I sincerely appreciate you being honest about what those days can look like and helping to normalize it even for those of us that experience it 💜 A big hug to everyone here that is going thru this- it’s nice to know that people see you and understand 🤗
Thank you for being here! Dynamic disability is a somewhat new term I believe 😊 have a happy new year!
Thank you for posting this. This is the best explanation of what my disability. I can not tell you how many times I have heard, Just try, it is mind over matter.
This absolutely nailed how my conditions affect me! I have never heard the phrase but it is a very healthy way to view my life and not continue to be so hard on myself!! Thank you for your time and continued education! ❤❤
Thanks for being here 😊
Thank you for shedding light on this!! I too have good days and bad days.
Bless you and your precious girl!!!❤
Thanks so much for watching! Hope you have a wonderful day as well 🥰
This so describes my life. And having food already prepared is so important. If I have a bad day I might lay in bed looking at my medication on my nightstand for 4 hours before I decide to push through and do my 9 minute morning routine. Medication, clothes, oral care. If my food is not already prepared downstairs I will probably get down there and just not eat.
My service dog tried to bring me back from my car to the door of the hospital after an infusion....3 times. I thought he had to go potty or was not ready to leave the cozy recliner. Long story short, my blood pressure dropped quickly after that infusion to the point where when I was driving I had to stop. I was close to home and we got home safe. I called the infusion nurses and they noted it on my chart and notified my doctor.
He's not trained for BP changes at all. His tasks are PTSD related. But because of that incident, I have to have an extra bag of fluids after the infusion is done and have my BP monitored more closely. The nurses even ask my service dog if "Mommy is OK". If he gets off the recliner. ...we're good to go. If he hesitates or sniffs me A LOT.....they check my BP....and he's been accurate. And they document my BP and his response.
Dogs are amazing and to have him pick up on something that he was not trained to do that can be so medically important just confirmed the strong bond we have. We have been together every minute of every hour of every day for over 5 years. We have each other's backs.
You explained it so well. Thank you.
Thank you 😊
This is such great info. Thank you so much
You are so welcome!
I totally understand. I have severe anxiety and pain along with autoimmune disease. No one takes my illness seriously bc there are times I have good days and those r the times I will usually interact with people. No one knows how bad I feel other times. Even at home with my family bc I don’t complain. It’s the most horrible thing to feel like this and also have people who u know are talking behind your back or make rude comments. I wouldn’t wish this on anyone. Sending positive energy and love to you and Pharaby. 💞🌟
I’m so sorry that no one in your life is taking you seriously. I hope you can at least find some comfort with people online who experience the same things. That’s a big reason why I share, it’s so hard when people in your real life either don’t believe you or don’t believe the severity of things. Sometimes just knowing that others experience similar things is comforting.
I posted my first comment which was positive and I understand, but listening more, I totally deal with the same issues. I wish this message was put out bc people do not understand good or bad days. I have gotten in a car accident bc I pushed myself to go somewhere and I knew I was feeling foggy. It’s horrible. People have stopped inviting me and it’s horrible to not be able to make plans in advance. 💞
I’m so sorry you experienced that. And yes making plans for the future is so hard because we don’t know what to expect 😞
Omg, I didn't know that term... but yes to everything you said. That is exactly what I go through. Dynamic disability.
I lost a lot of friends because of my chronic illness. Like you said, they stopped inviting me because I don't go. Ot is sad, but at the same time, I can't blame them. We just don't have the same rythm.
I'll start using "dynamic disability" term.
Thanks for sharing!!
Take care!
I’m glad it was helpful 🥰 have a good day!
I always have to remind myself I'm not unreliable, my body is.
@jenniferdevinney541 ❤️❤️❤️
I have cpstd and somedays I'm ok and some I'm clutching my 5 pound chihuahua I've had for almost 16 years. She's the last of my pack and I'm the last also. I don't take her with me all the time because she's older now and she doesn't want to see humans either but I still take her with me to stressful situations for me like the Dr's. My dr calls her my emotional support and also alert because she does let me know when my blood sugar is wonky or my BP is too high or low BUT she never went thru any classes so I can't get that paper unfortunately. My next dog I'm getting it trained because my health is getting really bad and as I said my sweet chi is getting older 😢
Thank you for sharing. I do the same thing l do everything while I feel good before I'm just exhausted or too much pain.
Thanks for sharing and thanks for being here 🥰 I hope you have a peaceful day!
I am 64, bipolar, (3 day cycling), have dyslexia with directions and numbers, and, CPTSD from DV over 13 years. I have 2 ESA cats and I'd love to hear their thoughts. I can't wait to get my talking pet ebook from you.
Dynamic disability is such a good term! It's funny what you said about your friends' husbands. Currently my husband is my service dog 😂 I plan on training a psychiatric service dog next year. I'm really nervous. I'll be working with a trainer but I'm scared about not having the energy to train at home. I have a question for you about when you have a service dog for a condition that could occur 24/7 how do you let the dog know it's okay to interact with your friends and family or it's okay to just enjoy time at the dog park or backyard without worrying about you? I've always heard it explained by guide dog handlers that the dog knows they are off duty when the harness is off but obviously this doesn't apply to a psychiatric service dog. I'd love to hear your answer on this!
It’s the same thing for a psychiatric service dog in a way, she knows when she’s vested that she’s working and when she’s not she’s not working. But of course I have problems when we’re home & she is unvested too and she just knows to take care of me.
My rule of thumb is we don’t go anywhere outside the house where she would want to “dog” unless I’m having by a good health day. That way she can enjoy herself and I still have confidence that she’ll take care of me if something does happen but I try to help her be successful.
I have PTSD too,and I don’t go outside much.Some days I need to sleep for around 18 hours of the 24,and when I wake up I can barely function.But other days I can sleep for 6-8 hours and be just fine.I also have fatigue after 8 cardiacarrest,only the first one was bad,after that I got an icd&pacemaker so I get shocked directly into the heart when it stops and the pacemaker has to work my left heartchamber 95% of the time.I’ve had PTSD for about 3 decades now but the heart issues only since 2017.None of my disabilities are visible to the ‘public’ so most people think Im just pretending and being lazy when I say that I need to sleep today.After my first cardiacarrest I have to listen to my body and follow it when it needs sleep,if I ignore it and try to do lots of things and get to tired…my heart litterally stops and I have to go through the shocking and passing out somewhere(scaring my cat is the worst thing to me,I love my cat🥰he is my best friend and Thank God he likes to sleep and chill in my bedroom when I need to sleep)Sometimes he will wake me up by purring and pushing on my face with his paws,that means my medication alarm has gone off and I didn’t wake up so he says -Hey,time for meds!…and maybe some snacks for me?😺
It is a little bit isolating when people kind of don’t quite believe you are sick even when you show them papers with instructions from the hospital and such,because I do not look sick,so how can I be sick…right🤷🏻♀️It’s exhausting trying to ‘convince’ people that Im having the issues that I actually do have,so I choose to stay away from people instead.I’ve always prefered to spend time with animals over humans so to me it is not really a big deal,but I can absolutely understand that it can be for others with invisible disabilities😊
I wish you all the best of luck with everything in life❤️
I do not look sick,so how can I be sick…right
I feel you. after being disabled for 2 decades I’m still dealing with this. It’s to bad people can’t just believe each other. Instead of constantly feeling like you have to prove your sick.
@@ecospider5 Sadly it seems to be a lot of us who have invisible disabilities who constantly has to prove that we’re actually sick.The mentality of ‘if you don’t look sick,you’re not sick’ has to go! It would’ve made things at least a little easier for many people😊
I wish you the best and I hope you’re having a good christmas❤️
Thanks, you too. And Happy new year.
@@ecospider5 Happy New Year back to you❤️
I hope 2024 will be as good as possible for you!Take good care of yourself and stay safe🤗
On positive of my disease is I have learned a lot about how to be a good patient and I have a bunch of medical gizmos to track everything when I want to. I even grabbed a pocket EKG machine.
I think that might have saved my dad’s life a couple years ago. We played with a bunch of stuff and found out his actual pulse was different than his electronic pulse. The EKG showed a normal pulse. The blood pressure cuff showed a pulse of 31 bpm. He was in the doctors the next day and had a pace maker within the month.
He thought he was just tired because he was 85 but he felt a whole lot better with a pulse of 60. Now at 87 years old they had a technician look at his device with a local computer for 45 minutes. I wonder what data actually takes that long to analyze. But I’m sure they were tweaking real thing because now they put his base heart rate at 70 and he has even more endurance.
It sounds like you are getting reasonable medical care. That is so important with chronic issues.
Have a happy new year. 🎉😀 and a good 2024.
I have personally been dealing with "imposter syndrome" so comparing my dynamic disability to say, yours, and thinking, am I faking it? (I'm not) Am I worthy to have a service dog.
It's hard!!!
My son has brain cancer, he has his service dog that goes nearly everywhere with him. But like you said, sometimes we leave him home.
I always cringe at "the public eye."
I know this doesn’t help but please don’t feel like an imposter at all! Everyone’s disabilities are different and just because somebody’s might be more severe than another person doesn’t make the person with the less severe disability any less valid for needing assistance.
@@JenFarrer that's where I am. Working through that. ❤️
I'm a cancer mom, too. Just wanted to send you a virtual hug. ❤
@@HellenaHanbasquet I'm so sorry.
Invisible disabilities are not under understood. It very difficult for others to understand. I parked in an H/C parking space and stood up out of the car. A nearby woman started screaming st me. When I hauled my crutches out of the back seat, she ran off. I had a hang tag, but perhaps she couldn't see it. All she could do was scream.
😨 i’m so sorry you experienced that! Honestly that would be terrifying 🙈
This is super important topic. For example, I have some one in my life who perceives my light sensitivity and pulling my hood low to avoid excess light as if I'm being disrespectful.
The more extended my light sensitivity happens to get it usually means there's more going on and I'm getting very very sick but for some reason the extended time equals To her proof that it isn't real that it isn't as bad as I'm saying.....
So I end up feeling really heartbroken because she's angry that she can't see my eyes. I'm disrespectful.
And then we learn that I have two blood infections and I need to be rushed to the ER. But that anger, irritation and annoyance from her never goes away. It's really upsetting.
Who chooses to spend time in a room with people they love and doesn't want to be able to look at them? It's insane. Why would I want that?
I’m so sorry you’re experiencing that!
I hope you have a peaceful day 🥰