Im the mom of a 1 yr old son born with hydrocephalus..... he has 3 siblings 16, 15 and 11 all born without any complications. And your right life wouldn't be the same without him being perfectly him!
This is so true. God is the ultimate healer. He is the ultimate intercessor. I am praying for you all. I am the mommy of two disabled children high functioning but definite disabilities and your life will be so enriched 🥰
Sarah Meredith Absolutely! I don’t think they’re saying they wouldn’t rather their children had born healthy. Of course, for the child’s sake, you want them to be 💯 healthy. I think they’re saying everything happens for a reason, and this won’t affect how they feel about their baby. IMHO, Things like this deepen a persons relationship with God, and it strengthens, if not teaches, true compassion and empathy for others. On the faith side: As far as I know, no one in the Bible ever asked Jesus for healing and was turned away. He’s the same today, yesterday and forever. I believe it will happen, just not on their time.
Whether or not the baby has a lot of problems or no problems God gave you this baby for a reason.. this baby was meant to be with you guys..obviously every parent wants to hear that their baby is totally healthy and nothing is wrong.. but God made this baby for a reason and you will be great parents
@Star Wow...this is, obviously, not within your reach. Instead of the snark, I challenge you to spend some time getting to know God. If you do, I think you'll be amazed...
“My grace is sufficient for you, for My power is made perfect in weakness.” 2 Cor. 12:9 This verse was spoken over my life as I was born with Spina Bifida. I speak this verse over baby boy :)...God will show himself in amazing ways to you all. ❤️
God will always be with you. I am 31yrs and I was also born with spina bifida. Acceptance is the most amazing cure for you guys & your baby. It will be a roller coaster of emotions I cannot lie but live day by day. Your baby will be amazing & will be loved for sure. God will never leave your side. Trust your hearts & you are in my prayers xxx
Thank you for being honest and saying that it's not always good and not always easy, but it's def worth it in the end since you can end up having a great life regardless of having difficulties, it's still worth carrying on and staying strong and believing and praying that everything will go fine and knowing that God's hands can be put on the surgeons hands and make this little guys life a little bit better now. Anyway I'm glad you have lived life and not doing so as a victim but rather living the best life that is right for you.
Praying for your baby and your family! My godson (1.5yrs old) is going in for his 4th brain surgery tomorrow in Cincinnati and their doctors and hospital are AMAZING. The damage in his brain from the condition that he has caused him to have cerebral palsy and after his last surgery he started walking which was unsure of when/if he would but after each surgery he got closer! They are seriously the best! Praying for a safe surgery, recovery, pregnancy, and delivery for you guys! ♥️
I mean this in the kindest way possible. I know that no one wants their child to have a disability, that no one plans their life this way. But you guys will be the PERFECT parents for a special needs child. Not everyone has the same loving & kind hearts that you guys do. This baby is lucky to have you guys as his parents. Your love for God, and belief in him, yourselves & your child, is truly astonishing. I’m praying for y’all. That little boy will change your life, no matter his diagnosis. 💖
My son at 16 was in a terrible car accident, most of his bones were broken and he had severe internal injuries. He was on his way home from work on a Sunday afternoon about 4:30. My husband drove up at the accident scene and followed them to the hospital, I began praying ceaselessly and arrived about 20 minutes after them. They let me see him on his way into emergency surgery and I got to tell him I loved him and I would be there when he woke up. During surgery a blood clot went into his lungs and caused a condition called ARDS, he had less than a 5% chance of surviving! He was unconscious for the next four weeks and God woke him up on Easter Sunday morning in April of 2000! He had several problems that he was not out of the woods, we prayed! We had church’s all over the world praying for him and I would update every Saturday, he would spend the next eight months in the hospital 6 were on a ventilator because he could not breath with the open hole in his chest. God healed the hole and blessed him with the courage to learn to walk again and to feed himself and become a beautiful human being. He is now a doctor and teaches about being the patient in the bed. He has had several accommodations, he is not boastful because he knows God saved him for a purpose! Never stop praying even when it seems hard or defeating God will always do a miracle with purpose! Love and prayers always!
Your son is the kind of doctor I'd love to go to because he understands what it feels to be a patient. Heavenly Father is real and true, regardless of what religion you are we are all from the same Heavenly Father, we truly are His children. Kudos for your fantastic faith and son!
I have a two friends who’s sons have Spina bifida, one had intrauterine surgery and the other could not due to mothers health, the one who had intrauterine walks completely unassisted with no braces, the other needs braces and crutches for both sides. The difference is really crazy- but both are loved and beautiful people.
Hi Lexie! I discovered your channel a little bit ago and usually do not comment or anything, but I felt the need to share this with you. I am a pre-nursing student at IU, and also was a swim instructor, and one period I had a beautiful little girl in my class who has spina bifida. She, to this day, is the brightest, happiest, funniest child I have ever met, and I fully believe God helps her challenge and conquer the world with every step she takes. She was so brave and willing to learn, and other kids followed HER example. I truly believe this child will be a blessing to you, that God willing he heals by God's plan. I would like to believe that God knew this little boy needs you both as his mommy and daddy, and that you both will be blessings to him as much as he'll be a blessing to you guys. I'll be praying for you! Thank you for sharing your story
I think it’s absolutely incredible that surgery can be done on babies now before they are born. It’s a very secure feeling knowing that babies don’t have to be born and go directly into surgery. You’re going to be so surprised when your baby is born and you realize just how perfect he really is. He’s going to do amazing when he’s born and as he continues to grow.
Direct from Puerto Rico I want to let you guys know that I admire your faith and courage. I will be praying for you guys and specially for the baby... God will come trough for you and show you his glory... God bless you...
I am impressed with you and your husband’s faith. My husband and I have been following your journey. Our baby was diagnosed with Spina bifida too, and we opted to do surgery at Children’s Hospital of Philadelphia. Our baby was born on July 12, 2019. He is doing great! His lesion was at L3 and is kicking his legs and moving his toes! God is great! We saw SO many miracles along our journey too. I’m glad you are recognizing the miracles that have happened for you already. Although the journey can feel overwhelming at times, God is with you and will get you through it. I’d love to share any insights to the surgery or answer any questions. Please reach out if you want!
Here’s a snippet of our story....good luck! You will do amazing! www.deseret.com/utah/2019/9/3/20830332/miracle-baby-defying-spina-bifida-with-fetal-surgery-that-is-growing-in-popularity-across-the-u-s
Because I’m pregnant as well, this hits me so hard. I’m praying that God would heal yalls sweet baby boy through this surgery. He’s a miracle worker and I’ve experienced it first hand. I know He can and He will. Praying for peace and comfort for y’all as y’all walk through this journey. 💙how blessed this baby boy is already to have such sweet parents.
I happened to watch one of your videos that You Tube recommended to me and I just wanted to say that your faith in God at such a young age is amazing. You are inspiring this middle aged woman! Thank you and God bless you and your baby.
You guys are such lights to me in your commitment and dedication to the Lord. It’s such a beautiful thing to witness your faith. I’ll be praying for you guys and for little one.
Just found your channel on my feed which is no coincidence but I'm grateful that God is being glorified through this and it's encouraging to me as single Christian woman who's had infertility issues for almost 40+ years 🙏🙏 sending prayers and much much love from the Cayman Islands 💓💓
Lord, just by u explaining even I got overwhelmed so I completely understand your stance about this all. This is your baby and you are baby mom and u and dad take all the time u need and as well with your family. I’m pregnant 31w almost 32 and it’s a lot being pregnant so when there is something health wise with baby is well a lot. I know God is great and baby has THE best parents ever. My prayers are with you guys and my prayers will continue to be with you guys.
Surgery before birth will give your baby the best chance to come with as least complications as possible. My brother has SB and I wish my mom had the option to perform surgery before birth! You will be so inspired and in love with this baby.
I can’t even tell you how excited I am for the miracles that God has already blessed you with in this time!! Your amazing to be sharing your faith and belief so openly ❤️ Your story is going to change lives! ❤️ I’ll be praying for you daily❤️
Keep your faith up Lexie God can heal in so many ways we are in prayer at our church for 90 days where we come closer to God and seek he’s presence he will do super natural miracles I will keep you in my prayers God is our healer.
That is the same location of my spina bifida. L4-L5. My parents didn't know I was going to be born with spina bifida until after I was born. I've had 11-12 surgeries from the time I was born up until my early teen years. I am now 27 years old and very blessed I have still been able to live a normal healthy life. If you have any questions or concerns please reach out to me.
My husband and I were told yesterday at my 31 week appointment that our baby boy has spina bifida. Thank you so much for putting your heart and soul out for everyone to see. Watching all of your videos has blessed me. We know God heals and works miracles, and that God has blessed us with a special child regardless of the circumstance. Praying for you, your husband, and baby on this journey.
clicked on this so fast! i think you guys are making great decisions like the surgery now and how you are viewing your situation, your baby is so lucky to have you guys as parents!
I’m 29 weeks pregnant with our 4th child, a little girl. We were diagnosed 10 weeks ago with Spina Bifida Myelomeningocele at L5. I just want to let you know that our hearts and prayers are with you. Please let me know if you want to connect. I know that since the day we found out about this I have been looking for community with an understanding of what we are going through. I’m so grateful for your hearts. God is so awesome in this!!
Thank you so very much for sharing the update with us! Your little guy is so blessed to have you as his parents I think in terms of God he knows what hes doing when he brings babies that have difficulties down-to-earth this baby could not have better parents. You will be caring for him and loving him and educating people through this journey and I thank you with all my heart
I am from Serbia. Just want to say i will pray for you and you baby. Everything will be good, God is GREAT! Sending you so much love. You are sending so much positive messages and incouraging all of us its incredible.... Thank you! 💕💕💕💕💕🙋♀️🍀
God is amazing! This baby is so blessed to have two people like you,two believers as his parents. I am praying for all 3 of you morning and night. I know that whatever God's will is that you both will praise him. Sending lots of love and positive thoughts and a million prayers your way. 💗
As a fellow Christian, I admire your guys’ faith and fervency that you both have had in this tough time. I know this is not news that any parent wants to hear and it can be a hard reality to come to grips with. However, from a place of love and concern, you both need to be careful that you don’t make the desired miracle or outcome you’re praying for an idol. Yes, God does miracles and can fulfill the impossible, but you need to desire HIS will more than the will that you desire, even if what you want is good. Start thanking God for the diagnosis, pray for each individual circumstance or outcome positive or negative that could happen and ask that He would prepare your heart for whatever that is. I guarantee you if you approach God from that perspective, He will honor that selflessness far more than what you could possibly think and bless you even greater for it. Hope this helps!
I think you missed it because they do have that attitude already. What I do see is maybe you have an issue with the Lord and your projecting it on to them. Take care of the log in your own eye first.
Your faith is so inspiring. Regardless this baby will be an amazing gift and will be a light for so many. Positivity is key and you have that. Love your videos.
Y’all are so strong for doing this video!!! Period.......... Continue to pray, continue spreading love and understanding for ppl! You guys are eternally blessed for the blessing that GOD has bestowed on you!! This is how I feel about my son and his journey!!! Thanks for sharing
I have been following your journey for awhile now. I am so happy that you have a option for surgery. Your baby is special and god choose you to be his parents. You can do it mama. I love you and your spittle family. Love from California
new subscriber,..... just ran across this video while searching down the worm hole of UA-cam. I will keep yall in my prayers. Having such strong faith at a young age even after the results is simply amazing. keep updating us at your leisure. be lazy. it's ok. lol God Bless
so glad that you qualify for the surgery. my son didnt sadly because of how he was attached to the uterus. My son went to school with the next baby that did qualify for the surgery. they had the same opening and issues, and she came out so much better then he did. this baby will be better off with the surgery. it has shown to be great for the baby. i pray it works well for him and that you both come through it well! start looking at doctors and finding the ones that will care for him now. also check out the spina bifida clinic at Vanderbilt childrens hospital. best in the country!
Take all the time you guys need, you need to heal from the surgery and I can imagine how hard this must be for you both and your family. I already appreciate you guys keeping us updated on how it is going with you and your little bean. Good luck guys, 🤞🏼🤞🏼 for you that the surgery and recovery goes smoothly.
So many prayers still being spoken over you all! Your commitment to the Lord through this trial is a testimony in itself of how much of a world changer that baby boy is. He will be so loved no matter what the outcome is 💙
Amen! The way you explained how you are still trusting in God even though the healing didn't come yet was well said. I know your baby boy will come out just the way God wants him to. He will be perfect. Stay blessed ❤️
I have Spina Bifida I am 29 & although I have had a few surgeries because of my SB (my last one was when I was 18) & I live a normal (as possible) life! Even tho this is a scary situation/diagnosis,your sweet baby will be a world changer through out his life!
I have Spina Bifida. I watched your pregnancy announcement a long time ago cause I was just watching lots of pregnancy announcement videos that day and happened to click on yours. So crazy! I am 25 years old and in my senior year of college. Spina Bifida doesn't go away and is a lot to process but you can live a happy and good life with it. Mine is myelomeningocele and is L5 S1. I also have Hydrocephalus. I had the surgery after I was born because in '94 there was no other option. Praying for your growing family. I hope this comment can be an encouragement. Also this month is Spina Bifida Awareness Month
You guys are already so precious with your faith! All things are possible for those who believe! God is already working miracles through your messages. I pray for the most beautiful outcome for you all and that whatever way HE works, you will find peace in your hearts and continue to trust that HE always works for the best outcome, even if we do not understand what we see or what has happened, ever or for many years! May your work and love continue to be a blessing to your families and all who watch! Love, AJ
I love how much faith you have had in God! I also love that you continue to believe even though God did not heal your baby. God works in mysterious ways. Like you said in your video, God is blessing every step of the process, from guiding the hands of the doctors and surgeons, to providing the blessing of a home to stay in while needing to stay in Cincinnati. As long as you continue to praise His name, God will continue to bless you and your child. No matter the outcome this child is a blessing and his life has already made a great impact on the world as well as brought great praise to God's name because of the faith you both have shown through this trial.
Praying for a successful surgery and quick healing both physically and emotionally for all of you. I love how strong your faith in Our Father is...He works miracles every day and I know things will work out the way they're supposed to. ❤️🙏
What a blessing to have a place to stay! I had open fetal surgery with my now 2 yr old son, but I have friends who had fetoscopic surgery with their baby. I know your minds are in a whirlwind with all of the information and “facts” that you learned about your child, but God is in control. We’re praying God will work miracles through your surgeons and that others will be encouraged by watching you walk step by step in faith following the Lord! ❤️
The thing I keep thinking about watching this. I’m so grateful this baby is coming at a time where intrauterine surgery is even a thing. Like it blows my mind the technology we have. He is such an amazing God. Your going to be amazing parents! Still sitting in the edge of my seat waiting to see what happens.
God heals in many miraculous ways. Sometimes it is not always in the ways we see or what are looking for. I am sure his thoughts were on strengthening your baby for the upcoming surgery. Guiding doctor's hands so they can be steady on such a small little tiny baby. Yes many many prayers have come your way my dear, please don't think they do what you asked. For he knows what is to come. We just have to trust in him. Keep thinking positive. Keep praying.. praying for you and your family.
Hope your journey/settling to Cincinnati and surgery goes so well for you guys, take care of yourself and prayers for healing and health for you and your baby boy after the surgery ♥️
Lexie you hang on & hold on tight! God has a special plan for that sweet baby boy! I’m believing that little precious blessing you’re carrying will be healed by our Great Physician. I’m praying for you guys!♥️
Oct 24th a good day. My daughter was born not breathing for 20 min on that day they brought her back and she is perfect. No issues what so ever. I have good vibes for you!
God is moving! I love it! Im praying for your family and you both seem so good... less emotional... more sure. Ive been praying for peace and strength for you guys and I could feel his presence over this and his hand working in the situation. Praise God. ❤
Cincinnati is a wonderful Hospital! They are the best with special cases,transplants and just everything. I am praying for you and your family during everything.
My cousin has Spina Bifida and he is very active in his life. He has his own family, works, played on a national championship wheelchair basketball league, he can walk just not through places like Disney World but that is due to the fact that he had caught meningitis as an infant before he had is repairative surgery(he was born in the late 70's) so it messed with him a little more. Overall he has a very happy fulfilling life. He never let people tell him he can't do something and has always believed God will tell him when he has gone to far. Blessings to you and your little one.
You have such a wonderful understanding of how God works and he does things in his timing and his way. This in its self is describing something we as humans question all the time and pulls people always from God. We never understand "it's beyond our understanding" statement in the bible. How awesome you can explain this. God bless you and your new baby. I am a new subscriber just to hear his blessings and see the work in your lives thru this. There is power in prayer. I will be praying.
I'm 27 years old (soon to be 28!) and I was born with the worst form of Spina Bifida. I am also an L4 and L5. I am praying hard for you guys. I can't sit here and tell you it is an easy ride, but I can tell you that medicine is so much more advanced than when I was born and he has a good chance of living a fairly normal life. I am thankful that you found out so early on, so you can research and get doctor's advice. I will be praying for healing of your baby, but if that doesn't happen I pray for God's hand to guide your baby's life and your lives.
Lexi & Craig I am believing with you that God will heal your baby boy through whatever means He chooses to do so. He will have such a wonderful testimony to give when he grows up!! Just found you guys & I Love You already!! Praying for Your Little Family!!
i hope that everything with the surgery goes well and that lexie and the baby are okay after and god gave you this baby for a reason and what ever happens is for a good reason and just know that good is always with you and he will take care of you all and he will watch over you through everything!! i love you guys and stay strong!!❤️💗
I have Spina Bifida. I broke my back in Middle School on a bike ride, there was talk of surgery, the day I was supposed to be admitted and prepped for surgery, they took X-rays and saw that my Spine had fused back together. I got to go home that day without surgery.
Praying for you and this precious baby. I am so proud of you as a Christian,it is So true that God does and will take care of this baby. God works in his timing and his ways. Every baby is a miracle and a God knows exactly how this baby is going to be and how he will be Blessing so many lives.
Hey Lexie, I'm really sorry that you are going through this difficult time. It is great to hear that you are acknowledging how God is working in your life, even when it isn't the "ideal" outcome. I unfortunately just found out that I had a silent miscarriage at 8 weeks and even in that time of sadness we could see God working things together. Our hope and comfort is that God is good - all the time! Praying for you all and the journey ahead - love your sister in Christ.
I have left a message before. My daughter has spina bifida and we found out when she was 18. She has 5 vertebrates missing. She can walk and doesn't have any disability. My question is...is the back open and can the baby move his legs. Was just curious if he could be totally functional without the surgery.
I'll be praying for you and your baby. Just know that whatever happens, healed or not, God loves you and loves your baby, and he will always guide you to take care of him and be good parents. No matter what, this baby will fill your life with love and happy moments. Keep trusting and be patience, He is in control 😊 kisses from Argentina, blessings! 💕
God works in mysterious ways, I admire how strong you both are. We never will understand why some things happen but one thing is for certain, God never gives us something we can not handle. We might not handle it good in the beginning of finding out but as time goes by we get stronger and stronger everyday. I will pray for you and your baby and I believe that God will give you guys the miracle you pray for and I pray that your baby will be okay. I have been watching your videos a while now and you bothe are wonderful people. May God bless you and your family. xx
Prayers for your surgical team and your recovery! And for your sweet sons story to be as amazing as possible through prayers and your sharing he will change a lot of lives with his story ❤️🙏🏻❤️
God gives special babies to special people. I believe he would never give you any more than you can handle. Stay strong both of you. You have so many people praying for you and sending good thoughts!❤️‼️😇 I love how strong your faith in God is! You made me cry!😢. So beautiful!
My prayers will be with you both, and your baby. God will be with you, and remember he has the last word. Either way your child will be blessed, and I know he will be loved by you both, and prayed for by many. Much love from San Antonio, Tx. 💜
My thoughts are with you all. It’s such a challenging time to have a baby in the nicu and go through a challenging pregnancy. I’m so glad you have your faith through this
God didn’t change anything because those are HIS plans and he chose you two! You will learn a lot about each other and grow and your faith will be tested be ready! God is with you always he is the light in the darkness!!! Thanks for sharing ❤️
I am the parent of a disabled child, and I wouldn’t change a thing. You will love him regardless
Im the mom of a 1 yr old son born with hydrocephalus..... he has 3 siblings 16, 15 and 11 all born without any complications. And your right life wouldn't be the same without him being perfectly him!
This is so true. God is the ultimate healer. He is the ultimate intercessor. I am praying for you all. I am the mommy of two disabled children high functioning but definite disabilities and your life will be so enriched 🥰
You can love your baby with everything in you and STILL want your baby healthy
Sarah Meredith Absolutely! I don’t think they’re saying they wouldn’t rather their children had born healthy. Of course, for the child’s sake, you want them to be 💯 healthy. I think they’re saying everything happens for a reason, and this won’t affect how they feel about their baby. IMHO, Things like this deepen a persons relationship with God, and it strengthens, if not teaches, true compassion and empathy for others. On the faith side: As far as I know, no one in the Bible ever asked Jesus for healing and was turned away. He’s the same today, yesterday and forever. I believe it will happen, just not on their time.
Me too ❤️
Whether or not the baby has a lot of problems or no problems God gave you this baby for a reason.. this baby was meant to be with you guys..obviously every parent wants to hear that their baby is totally healthy and nothing is wrong.. but God made this baby for a reason and you will be great parents
Sara Brant you said this so perfectly. This baby is exactly as God has designed for him to be. Praying for these parents.
So beautifully said!
@Star
Wow...this is, obviously, not within your reach. Instead of the snark, I challenge you to spend some time getting to know God. If you do, I think you'll be amazed...
@Star: yes God designs us in our mothers womb, we are all perfectly made according to HIS plans, to bring HIM glory.
@Star yes believe it or not he does, He designs us all in his on way. You should pick up the bible and read, you would be amazed.
He will be more incredible than you can ever imagine. You’ll witness miracles. ❤️❤️
“My grace is sufficient for you, for My power is made perfect in weakness.” 2 Cor. 12:9
This verse was spoken over my life as I was born with Spina Bifida.
I speak this verse over baby boy :)...God will show himself in amazing ways to you all. ❤️
God will always be with you. I am 31yrs and I was also born with spina bifida. Acceptance is the most amazing cure for you guys & your baby. It will be a roller coaster of emotions I cannot lie but live day by day. Your baby will be amazing & will be loved for sure. God will never leave your side. Trust your hearts & you are in my prayers xxx
Thank you for being honest and saying that it's not always good and not always easy, but it's def worth it in the end since you can end up having a great life regardless of having difficulties, it's still worth carrying on and staying strong and believing and praying that everything will go fine and knowing that God's hands can be put on the surgeons hands and make this little guys life a little bit better now. Anyway I'm glad you have lived life and not doing so as a victim but rather living the best life that is right for you.
I was born with sb also.
Praying for your baby and your family! My godson (1.5yrs old) is going in for his 4th brain surgery tomorrow in Cincinnati and their doctors and hospital are AMAZING. The damage in his brain from the condition that he has caused him to have cerebral palsy and after his last surgery he started walking which was unsure of when/if he would but after each surgery he got closer! They are seriously the best! Praying for a safe surgery, recovery, pregnancy, and delivery for you guys! ♥️
I mean this in the kindest way possible. I know that no one wants their child to have a disability, that no one plans their life this way. But you guys will be the PERFECT parents for a special needs child. Not everyone has the same loving & kind hearts that you guys do. This baby is lucky to have you guys as his parents. Your love for God, and belief in him, yourselves & your child, is truly astonishing. I’m praying for y’all. That little boy will change your life, no matter his diagnosis. 💖
God gave us doctors for a reason. How the healing occures is up to him. Everyone is praying. The fact that you can get surgery for baby is a miracle!
YES! I believe God's healing can come in so many different ways!
My son at 16 was in a terrible car accident, most of his bones were broken and he had severe internal injuries. He was on his way home from work on a Sunday afternoon about 4:30. My husband drove up at the accident scene and followed them to the hospital, I began praying ceaselessly and arrived about 20 minutes after them. They let me see him on his way into emergency surgery and I got to tell him I loved him and I would be there when he woke up. During surgery a blood clot went into his lungs and caused a condition called ARDS, he had less than a 5% chance of surviving! He was unconscious for the next four weeks and God woke him up on Easter Sunday morning in April of 2000! He had several problems that he was not out of the woods, we prayed! We had church’s all over the world praying for him and I would update every Saturday, he would spend the next eight months in the hospital 6 were on a ventilator because he could not breath with the open hole in his chest. God healed the hole and blessed him with the courage to learn to walk again and to feed himself and become a beautiful human being. He is now a doctor and teaches about being the patient in the bed. He has had several accommodations, he is not boastful because he knows God saved him for a purpose! Never stop praying even when it seems hard or defeating God will always do a miracle with purpose! Love and prayers always!
Your son is the kind of doctor I'd love to go to because he understands what it feels to be a patient. Heavenly Father is real and true, regardless of what religion you are we are all from the same Heavenly Father, we truly are His children. Kudos for your fantastic faith and son!
Amen. Thank you for sharing your story, it really touched me. God bless you all.
I have a two friends who’s sons have Spina bifida, one had intrauterine surgery and the other could not due to mothers health, the one who had intrauterine walks completely unassisted with no braces, the other needs braces and crutches for both sides. The difference is really crazy- but both are loved and beautiful people.
Hi Lexie! I discovered your channel a little bit ago and usually do not comment or anything, but I felt the need to share this with you. I am a pre-nursing student at IU, and also was a swim instructor, and one period I had a beautiful little girl in my class who has spina bifida. She, to this day, is the brightest, happiest, funniest child I have ever met, and I fully believe God helps her challenge and conquer the world with every step she takes. She was so brave and willing to learn, and other kids followed HER example. I truly believe this child will be a blessing to you, that God willing he heals by God's plan. I would like to believe that God knew this little boy needs you both as his mommy and daddy, and that you both will be blessings to him as much as he'll be a blessing to you guys. I'll be praying for you! Thank you for sharing your story
I think it’s absolutely incredible that surgery can be done on babies now before they are born. It’s a very secure feeling knowing that babies don’t have to be born and go directly into surgery. You’re going to be so surprised when your baby is born and you realize just how perfect he really is. He’s going to do amazing when he’s born and as he continues to grow.
Direct from Puerto Rico I want to let you guys know that I admire your faith and courage. I will be praying for you guys and specially for the baby... God will come trough for you and show you his glory... God bless you...
I am impressed with you and your husband’s faith. My husband and I have been following your journey. Our baby was diagnosed with Spina bifida too, and we opted to do surgery at Children’s Hospital of Philadelphia. Our baby was born on July 12, 2019. He is doing great! His lesion was at L3 and is kicking his legs and moving his toes! God is great! We saw SO many miracles along our journey too. I’m glad you are recognizing the miracles that have happened for you already. Although the journey can feel overwhelming at times, God is with you and will get you through it. I’d love to share any insights to the surgery or answer any questions. Please reach out if you want!
Here’s a snippet of our story....good luck! You will do amazing!
www.deseret.com/utah/2019/9/3/20830332/miracle-baby-defying-spina-bifida-with-fetal-surgery-that-is-growing-in-popularity-across-the-u-s
Because I’m pregnant as well, this hits me so hard. I’m praying that God would heal yalls sweet baby boy through this surgery. He’s a miracle worker and I’ve experienced it first hand. I know He can and He will. Praying for peace and comfort for y’all as y’all walk through this journey. 💙how blessed this baby boy is already to have such sweet parents.
I happened to watch one of your videos that You Tube recommended to me and I just wanted to say that your faith in God at such a young age is amazing. You are inspiring this middle aged woman! Thank you and God bless you and your baby.
Prayers to you and your baby. Whatever the outcome, your baby will be a perfect gift from God.
God's timing and plan is perfect! Trust in Him and lean not on your own understanding! Praying for you guys and baby boy!
You guys are such lights to me in your commitment and dedication to the Lord. It’s such a beautiful thing to witness your faith. I’ll be praying for you guys and for little one.
Just found your channel on my feed which is no coincidence but I'm grateful that God is being glorified through this and it's encouraging to me as single Christian woman who's had infertility issues for almost 40+ years 🙏🙏 sending prayers and much much love from the Cayman Islands 💓💓
Lord, just by u explaining even I got overwhelmed so I completely understand your stance about this all. This is your baby and you are baby mom and u and dad take all the time u need and as well with your family. I’m pregnant 31w almost 32 and it’s a lot being pregnant so when there is something health wise with baby is well a lot. I know God is great and baby has THE best parents ever. My prayers are with you guys and my prayers will continue to be with you guys.
Surgery before birth will give your baby the best chance to come with as least complications as possible. My brother has SB and I wish my mom had the option to perform surgery before birth! You will be so inspired and in love with this baby.
I can’t even tell you how excited I am for the miracles that God has already blessed you with in this time!! Your amazing to be sharing your faith and belief so openly ❤️ Your story is going to change lives! ❤️ I’ll be praying for you daily❤️
Keep your faith up Lexie God can heal in so many ways we are in prayer at our church for 90 days where we come closer to God and seek he’s presence he will do super natural miracles I will keep you in my prayers God is our healer.
That is the same location of my spina bifida. L4-L5. My parents didn't know I was going to be born with spina bifida until after I was born. I've had 11-12 surgeries from the time I was born up until my early teen years. I am now 27 years old and very blessed I have still been able to live a normal healthy life. If you have any questions or concerns please reach out to me.
Star you’re disgusting
@@SpillTheTeapot I reported their comment.
meli I did the same
My husband and I were told yesterday at my 31 week appointment that our baby boy has spina bifida. Thank you so much for putting your heart and soul out for everyone to see. Watching all of your videos has blessed me. We know God heals and works miracles, and that God has blessed us with a special child regardless of the circumstance. Praying for you, your husband, and baby on this journey.
clicked on this so fast! i think you guys are making great decisions like the surgery now and how you are viewing your situation, your baby is so lucky to have you guys as parents!
I’m 29 weeks pregnant with our 4th child, a little girl. We were diagnosed 10 weeks ago with Spina Bifida Myelomeningocele at L5. I just want to let you know that our hearts and prayers are with you. Please let me know if you want to connect. I know that since the day we found out about this I have been looking for community with an understanding of what we are going through. I’m so grateful for your hearts. God is so awesome in this!!
Thank you so very much for sharing the update with us! Your little guy is so blessed to have you as his parents I think in terms of God he knows what hes doing when he brings babies that have difficulties down-to-earth this baby could not have better parents. You will be caring for him and loving him and educating people through this journey and I thank you with all my heart
I am from Serbia. Just want to say i will pray for you and you baby. Everything will be good, God is GREAT! Sending you so much love. You are sending so much positive messages and incouraging all of us its incredible.... Thank you! 💕💕💕💕💕🙋♀️🍀
God is amazing! This baby is so blessed to have two people like you,two believers as his parents. I am praying for all 3 of you morning and night. I know that whatever God's will is that you both will praise him. Sending lots of love and positive thoughts and a million prayers your way. 💗
As a fellow Christian, I admire your guys’ faith and fervency that you both have had in this tough time. I know this is not news that any parent wants to hear and it can be a hard reality to come to grips with. However, from a place of love and concern, you both need to be careful that you don’t make the desired miracle or outcome you’re praying for an idol. Yes, God does miracles and can fulfill the impossible, but you need to desire HIS will more than the will that you desire, even if what you want is good. Start thanking God for the diagnosis, pray for each individual circumstance or outcome positive or negative that could happen and ask that He would prepare your heart for whatever that is. I guarantee you if you approach God from that perspective, He will honor that selflessness far more than what you could possibly think and bless you even greater for it. Hope this helps!
I think you missed it because they do have that attitude already. What I do see is maybe you have an issue with the Lord and your projecting it on to them. Take care of the log in your own eye first.
Your faith is so inspiring. Regardless this baby will be an amazing gift and will be a light for so many. Positivity is key and you have that. Love your videos.
And I meant to say praying so much for your sweet baby and for you both!
Prayers are coming your way. The battle belongs to Him!
Y’all are so strong for doing this video!!! Period.......... Continue to pray, continue spreading love and understanding for ppl! You guys are eternally blessed for the blessing that GOD has bestowed on you!!
This is how I feel about my son and his journey!!! Thanks for sharing
I have been following your journey for awhile now. I am so happy that you have a option for surgery. Your baby is special and god choose you to be his parents. You can do it mama. I love you and your spittle family. Love from California
new subscriber,..... just ran across this video while searching down the worm hole of UA-cam. I will keep yall in my prayers. Having such strong faith at a young age even after the results is simply amazing. keep updating us at your leisure. be lazy. it's ok. lol
God Bless
so glad that you qualify for the surgery. my son didnt sadly because of how he was attached to the uterus. My son went to school with the next baby that did qualify for the surgery. they had the same opening and issues, and she came out so much better then he did. this baby will be better off with the surgery. it has shown to be great for the baby. i pray it works well for him and that you both come through it well! start looking at doctors and finding the ones that will care for him now. also check out the spina bifida clinic at Vanderbilt childrens hospital. best in the country!
Take all the time you guys need, you need to heal from the surgery and I can imagine how hard this must be for you both and your family. I already appreciate you guys keeping us updated on how it is going with you and your little bean. Good luck guys, 🤞🏼🤞🏼 for you that the surgery and recovery goes smoothly.
So many prayers still being spoken over you all! Your commitment to the Lord through this trial is a testimony in itself of how much of a world changer that baby boy is. He will be so loved no matter what the outcome is 💙
As a disabled child/adult you guys will grow strength from this. Don't let the disability define him. Life is what the baby would make it.
I have been waiting for this video for so long! Praying every day for you both and your little one!
Amen! The way you explained how you are still trusting in God even though the healing didn't come yet was well said. I know your baby boy will come out just the way God wants him to. He will be perfect. Stay blessed ❤️
I have Spina Bifida I am 29 & although I have had a few surgeries because of my SB (my last one was when I was 18) & I live a normal (as possible) life! Even tho this is a scary situation/diagnosis,your sweet baby will be a world changer through out his life!
I’m positive your child will be a perfect angel! God is good love you guys!
I have Spina Bifida. I watched your pregnancy announcement a long time ago cause I was just watching lots of pregnancy announcement videos that day and happened to click on yours. So crazy! I am 25 years old and in my senior year of college. Spina Bifida doesn't go away and is a lot to process but you can live a happy and good life with it. Mine is myelomeningocele and is L5 S1. I also have Hydrocephalus. I had the surgery after I was born because in '94 there was no other option. Praying for your growing family. I hope this comment can be an encouragement. Also this month is Spina Bifida Awareness Month
I live in Cincinnati too! My daughter was in the NICU there for a few days after she was born. Praying for you 💕
You guys are already so precious with your faith! All things are possible for those who believe! God is already working miracles through your messages. I pray for the most beautiful outcome for you all and that whatever way HE works, you will find peace in your hearts and continue to trust that HE always works for the best outcome, even if we do not understand what we see or what has happened, ever or for many years! May your work and love continue to be a blessing to your families and all who watch! Love, AJ
I love how much faith you have had in God! I also love that you continue to believe even though God did not heal your baby. God works in mysterious ways. Like you said in your video, God is blessing every step of the process, from guiding the hands of the doctors and surgeons, to providing the blessing of a home to stay in while needing to stay in Cincinnati. As long as you continue to praise His name, God will continue to bless you and your child. No matter the outcome this child is a blessing and his life has already made a great impact on the world as well as brought great praise to God's name because of the faith you both have shown through this trial.
He is going to be absolutely perfect no matter what and this is God’s timing!!❤️
Praying for a successful surgery and quick healing both physically and emotionally for all of you. I love how strong your faith in Our Father is...He works miracles every day and I know things will work out the way they're supposed to. ❤️🙏
What a blessing to have a place to stay! I had open fetal surgery with my now 2 yr old son, but I have friends who had fetoscopic surgery with their baby. I know your minds are in a whirlwind with all of the information and “facts” that you learned about your child, but God is in control. We’re praying God will work miracles through your surgeons and that others will be encouraged by watching you walk step by step in faith following the Lord! ❤️
The thing I keep thinking about watching this. I’m so grateful this baby is coming at a time where intrauterine surgery is even a thing. Like it blows my mind the technology we have. He is such an amazing God. Your going to be amazing parents! Still sitting in the edge of my seat waiting to see what happens.
God heals in many miraculous ways. Sometimes it is not always in the ways we see or what are looking for. I am sure his thoughts were on strengthening your baby for the upcoming surgery. Guiding doctor's hands so they can be steady on such a small little tiny baby. Yes many many prayers have come your way my dear, please don't think they do what you asked. For he knows what is to come. We just have to trust in him. Keep thinking positive. Keep praying.. praying for you and your family.
Everything happens for a reason. Your baby will teach you so much!
May God keep you both safe during the surgery and during recovery. Will have all 3 of you in my prayers.
Your faith is beautiful. Thank you for reminding me to be grateful like you both are during such a hard time. Praying for you and your baby boy🙏🏽
I love how you put that. Believing for healing, not in healing, believe in God and that he can heal. AMEN!!! ❤️
Hope your journey/settling to Cincinnati and surgery goes so well for you guys, take care of yourself and prayers for healing and health for you and your baby boy after the surgery ♥️
He’s gonna be a world changer, hang in their momma♥️♥️
Lexie you hang on & hold on tight! God has a special plan for that sweet baby boy! I’m believing that little precious blessing you’re carrying will be healed by our Great Physician. I’m praying for you guys!♥️
I end up crying with every video, God is so good, praying so much for you sweet, precious child💗
Oct 24th a good day. My daughter was born not breathing for 20 min on that day they brought her back and she is perfect. No issues what so ever. I have good vibes for you!
God is moving! I love it! Im praying for your family and you both seem so good... less emotional... more sure. Ive been praying for peace and strength for you guys and I could feel his presence over this and his hand working in the situation. Praise God. ❤
Cincinnati is a wonderful Hospital!
They are the best with special cases,transplants and just everything. I am praying for you and your family during everything.
I’m from Cincinnati my nephew in law has spina bifida you are in good hands with the doctors in Cincinnati. Good luck to all of you. Sending prayers.
My cousin has Spina Bifida and he is very active in his life. He has his own family, works, played on a national championship wheelchair basketball league, he can walk just not through places like Disney World but that is due to the fact that he had caught meningitis as an infant before he had is repairative surgery(he was born in the late 70's) so it messed with him a little more. Overall he has a very happy fulfilling life. He never let people tell him he can't do something and has always believed God will tell him when he has gone to far. Blessings to you and your little one.
You have such a wonderful understanding of how God works and he does things in his timing and his way. This in its self is describing something we as humans question all the time and pulls people always from God. We never understand "it's beyond our understanding" statement in the bible. How awesome you can explain this. God bless you and your new baby. I am a new subscriber just to hear his blessings and see the work in your lives thru this. There is power in prayer. I will be praying.
Thanks you for the update. I’ll definitely keep praying. God bless you three.
I am praying for you and the baby, dad too! I believe this baby will be healed God is always working thru everyone involved in your care. God Bless
Praying for you three everyday 💖
Everything is happening exactly the way it is supposed to right now. You two are already fantastic parents!
I'm 27 years old (soon to be 28!) and I was born with the worst form of Spina Bifida. I am also an L4 and L5. I am praying hard for you guys. I can't sit here and tell you it is an easy ride, but I can tell you that medicine is so much more advanced than when I was born and he has a good chance of living a fairly normal life. I am thankful that you found out so early on, so you can research and get doctor's advice. I will be praying for healing of your baby, but if that doesn't happen I pray for God's hand to guide your baby's life and your lives.
Lexi & Craig I am believing with you that God will heal your baby boy through whatever means He chooses to do so. He will have such a wonderful testimony to give when he grows up!! Just found you guys & I Love You already!! Praying for Your Little Family!!
i hope that everything with the surgery goes well and that lexie and the baby are okay after and god gave you this baby for a reason and what ever happens is for a good reason and just know that good is always with you and he will take care of you all and he will watch over you through everything!! i love you guys and stay strong!!❤️💗
You are in our prayers! God bless your whole family but especially the 3 of you. He’s a little miracle!!!
I have Spina Bifida. I broke my back in Middle School on a bike ride, there was talk of surgery, the day I was supposed to be admitted and prepped for surgery, they took X-rays and saw that my Spine had fused back together. I got to go home that day without surgery.
Y’all are so brave for speaking up about your situation, you’re truly an inspiration to everyone! 💘 I love you three!💋💋
Praying for you and this precious baby. I am so proud of you as a Christian,it is
So true that God does and will take care of this baby. God works in his timing and his ways. Every baby is a miracle and a God knows exactly how this baby is going to be and how he will be Blessing so many lives.
We love you Lexie!You are like my fave youtuber and we all love u and support you!!!
Hey Lexie,
I'm really sorry that you are going through this difficult time. It is great to hear that you are acknowledging how God is working in your life, even when it isn't the "ideal" outcome. I unfortunately just found out that I had a silent miscarriage at 8 weeks and even in that time of sadness we could see God working things together. Our hope and comfort is that God is good - all the time!
Praying for you all and the journey ahead - love your sister in Christ.
Your faith is inspirational! God is with you no matter what happens.
Gods timing is perfect. No matter what situation, God can STILL HEAL!! Continued prayers for you and your family!! ❤
YOU GUYS ARE AMAZING !! God has your baby in His hands ! Praying for you and your sweet babe ❤️
I have left a message before. My daughter has spina bifida and we found out when she was 18. She has 5 vertebrates missing. She can walk and doesn't have any disability. My question is...is the back open and can the baby move his legs. Was just curious if he could be totally functional without the surgery.
Join the “Spina Bifida parents” Facebook page! You’ll have a safe place to ask questions and get support!
I'll be praying for you and your baby. Just know that whatever happens, healed or not, God loves you and loves your baby, and he will always guide you to take care of him and be good parents. No matter what, this baby will fill your life with love and happy moments. Keep trusting and be patience, He is in control 😊 kisses from Argentina, blessings! 💕
God works in mysterious ways, I admire how strong you both are. We never will understand why some things happen but one thing is for certain, God never gives us something we can not handle. We might not handle it good in the beginning of finding out but as time goes by we get stronger and stronger everyday. I will pray for you and your baby and I believe that God will give you guys the miracle you pray for and I pray that your baby will be okay. I have been watching your videos a while now and you bothe are wonderful people. May God bless you and your family. xx
It does not matter if he has a disease/condition it matters that he is LOVED! I know he is!!! Prayers continuing!!!!
Prayers for your surgical team and your recovery! And for your sweet sons story to be as amazing as possible through prayers and your sharing he will change a lot of lives with his story ❤️🙏🏻❤️
God gives special babies to special people. I believe he would never give you any more than you can handle. Stay strong both of you. You have so many people praying for you and sending good thoughts!❤️‼️😇
I love how strong your faith in God is! You made me cry!😢. So beautiful!
Praying for your family, your baby and the medical professionals involved. May you know all of God's blessings in His time.
Your Faith is so inspiring!! Your sweet baby is so blessed already to have parents that love Jesus so much! My prayers are with you through this😊
My prayers will be with you both, and your baby.
God will be with you, and remember he has the last word. Either way your child will be blessed, and I know he will be loved by you both, and prayed for by many. Much love from San Antonio, Tx. 💜
My thoughts are with you all. It’s such a challenging time to have a baby in the nicu and go through a challenging pregnancy. I’m so glad you have your faith through this
I pray that God gives you strength to accept whatever outcome you have with your new baby boy. God bless you both.
Sending prayers and praying for the surgeon and guide his hands in the miracle to come 🙏🙏
I am in awe of you both! I am diligently praying for every part of your journey. 💞
Praying the surgery goes great and a full recovery for both you and the baby🙏
God didn’t change anything because those are HIS plans and he chose you two! You will learn a lot about each other and grow and your faith will be tested be ready! God is with you always he is the light in the darkness!!! Thanks for sharing ❤️