@@daniellekramer93 There’s people with Spina Bifida that can walk?? Since when?? Not that I don’t believe you but I have NEVER heard that before . 🤷🏼♀️
We just went through this in April-Cincinnati and everything. All of the scary stuff they say about being born premature happened to us. I got an infection from the surgery and my baby came a week later at 25 weeks. We were in the NICU there for a few months while he grew, but even with prematurity and negative things that came with that, the surgery was still worth it for us. His defect was a bit higher, at L3, but he is able to move his toes, has made it this long without a shunt, and had a complete reversal of the Chiari II malformation. God did a lot for our baby. We’ll pray for you guys. Spina Bifida becomes a new normal and once you get to the other side of all of this, it truly isn’t nearly what you were imagining when you got the diagnosis.
When i was pregnant I was told my Son only had 1 kidney. I prayed and left it in Gods hands. Later in an ultrasound we found out he has 2 just ones in his pelvic. But I stressed so much and hes a blessing because he has a huge heart and is happy. So you're doing all the right things.
You guys just light up my heart, I have a disabled son and have physical challenges as well. I am glad you do not feel strong because then your strength is found in Jesus . Your answers are spot on. Blessings
It’s more like God chose you two to take care of and raise this little baby boy! He knew before he gave him life that he would have problems so what a privilege it is to be chosen to be parents to this little one! Will be praying for you all!
Your son is a warrior and will grow up to be a mighty man of God. Praying for your little family! I myself have a warrior and was given his gender and name in a dream when I was 8 to 9 weeks pregnant. The hand of God has always been (and will always be) on my son, Jacob Cade. It is just amazing to me that the name Jacob has been said to mean "protected by God" and Cade means "warrior or fighter" and that could not be more true about my son. While there were many emotions when dealing with Jacob's congenital heart defects, open heart surgery, and subsequent hospitalizations, I have always had the peace that passes understanding, knowing that my Father would work all things for the good. Each and every day, every time I look at my sweet boy, I am reminded of God's power, love, faithfulness, and grace.
Praying for you guys! You are such an inspiration! I cant imagine what your going through exactly but I know the fear of a momma and you are showing such Grace and spiritual Maturity far beyond your years💗💗💗 I feel the presence of the Lord in every video!
Praying so very much for you guys!! God is going to get you through this and I am so overjoyed that you are taking a stand for life! That alone is a testimony. God is going to bless this baby and has ALREADY blessed this baby immensely. You are in the hands of the never-failing King of the universe! And He loves you. You most certainly know that! It is beautiful. Keep shining and know that we have this Hope as an anchor for our souls.
Praying for baby T and your little family every step of the way. 🙏❤️ I can't even fathom how difficult this time is for you and Craig. Your faith in Christ is truly inspiring and your baby boy is going to see these videos one day and have no doubt about how much his parents and Christ love him and believe in him 💗
I AM SO EXCITED TO SEE HIM. You guys will be amazing parents to and for this precious baby boy❤️🥰 you are trusting in God and that's the most important thing you guys can do❤️❤️❤️
Praying for all of you I have a friend with this disease and I have to tell you she walks and functions completely normally and at the time there was no surgery for this. God bless all of you
Kayla Whitmire Disease, any harmful deviation from the normal structural or functional state of an organism, generally associated with certain signs and symptoms and differing in nature from physical injury The point is god has his hands on this baby and there is hope because of that Pray for that child and don’t worry about what others say
@Kayla Whitmire I have arthrogryposis multiplex congenita it makes all the joints in the limbs have contractors club feet I've been disabled all my life it is a condition not a disease I've had friends with spina bifida they were wheelchair users this surgery is often performed after birth this is high risk because she could go into labor any time after surgery their is no cure for me however I'm glad they want their child to have a chance of less paralysis 💓
@Kayla Whitmire yes that's what I said it's a congenital birth defect condition not a disease as I said in my reply to someone else I'm in a wheelchair myself I also have a congenital birth defect called arthrogryposis I never said it was a disease it's kinda along the same lines of calling a disabled person a cripple I get it I couldn't understand if you were saying I said it was a disease I was just agreeing with you saying it's a condition I couldn't quite understand your reply 💓
Hi, I found you through someone in my mom group... I am going through this now. I was just a week and a half ago that they found something wrong with my baby. HIs heart, legs and brain... However I went to a high risk OB yesterday and he has Spina Bifida, and we have opted for fetal surgery now. I did the amniocentesis, now I go for an MRI and then consultation for the hospital two hours away in Orlando... My husband has maintained his faith through this, I am ashamed to admit that I faltered. I felt like it was my fault, I grew his this way, how could this happen? My mind is spinning, I am hurt for my child, but God will see him through. Thank you for this video, thank you for your attitude about this
Angela Allred I have so much faith in you and the baby as I can see you are working towards and realizing that you must bring God into this to help you and therefore He will answer. You got this! I’ll be praying an abundant amount of prayers for you((: 💛
@@LexieThiery the problem is your shoulder strap should be between your breast not under your arm in an accident the belt under your arm could compress on your belly and cause harm ;)
@@ashleyandsassy no to mention that her upper body and head is not protected either and bumping into the exploding air bag without properly fastened seatbelts... Deadly
I'm so happy to see your both doing well. Turning your burdens into blessings and knowing ultimately God is in control is what it's all about. Will be continuing my prayers for baby boy and you both. Thank you for letting us share your journey. ❤️
I just started following you & wanted to let you know. I have a daughter (through adoption) that has the exact same spina bifida as your son. My daughter is 13! Shes in 8th grade & only our family & her extremely close friends know that she has this. You can’t tell from looking at her! She’s had 2 back surgeries since birth, the first to close her defect & the 2nd at age 3 to untether her cord. Her cord has actually begun to re-together so we may be looking at another surgery soon. I say all this to let you know, that God does have your son in his hands & EVERYTHING is going to be just fine! I can’t wait to watch y’all grow!
I came across your vidoes & liked what I saw... You have an amazing attitude about this whole situation & your relationship with Jesus will get you through it all. God sees the future & he will bring something beautiful through all of this. It makes all the difference how we can except this, because of ones relationship with Jesus. It's hard for me to imagine how people get through difficulties in life without Him. Keep on being strong in your love for Jesus! You both will be wonderful parents! I have a nephew with spina bifida & he has lived with a shunt all his life ( 45 yrs )...he lived a normal life. I'm praying for you!
I love your big faith in our BIG God! You’re an inspiration and encouragement to all. You must have some amazing parents bc y’all are both so strong in your faith. Y’all are seriously the cutest couple ever. Stay strong and keep pointing everyone to Him. You’re right. God is ALREADY using this sweet boy to build people’s faith. Thank you for sharing your story. 💙💙💙💙💙
I was really blessed that so many people out there and around the world who are total strangers are upholding you and Craig and your precious little baby in prayer and being so positive and encouraging you both. I too am putting my faith together with all the believers praying for total healing of your baby. We prayed for your baby at church Sunday morning and evening and I know we touched the throne of God. It does not matter wether you are born with a condition or you Aquire it later on in life, it makes no difference to God, He still wants to heal and deliver. Jesus healed many people who were blind or crippled since birth and He still healed them. God is the same yesterday,today and forever. His promises will never fail. All we have to do is believe. There are many versus in the bible about Gods promises about asking anything in His name that He will do. Even if it's through the doctors hands and wisdom, God is still in control. Keep your heads up high, keep believing and thanking God and God will do the rest. Lots of love and blessings.
whatever the outcome is, I truly believe that God will use your child despite his/her disability. if I may share my story a little bit, I was born with Spina Bifida and I can tell you that it certainly hasn't stopped me from doing what I believe God has called me to do. Your child is gonna do amazing things for God's glory even if it's with a disability!!
Your outlook is wonderful. Choosing joy and pushing through is the right path, although difficult at times. This baby is a blessing and will bring such joy to everyone. Of course surgeries and challenges are all hard to handle but you are put in this position for a reason. Just speaking out and sharing is so helpful to others. God bless.
I seriously just love you two..well you three! Praying for you and your sweet family and your sweet baby boy! Thank you for keeping us so updated on your journey. Sending love and prayers your way! ❤️🥰
I also have Spina Bifida / Hydrocephalus , I am 61 so got to the stage where I CANT have a BABY , I COULD WALK at one time but unfortunatly NOT NOW due to a BAD FALL in 200/ 1 . I F you want to believe in GOD then it's up to you and your husband , I have an OPEN mind . GOD really has NOTHING to do with your baby as YOU made it NOT GOD . What type of Spina Bifida do yo have ? You dont have to explain to ME what SPINA BIFIDA IS as I know I personally I have Spina Bifida Occulta , Hydrocephalus they DONT NECESSARILY go together , Have you contacted the Spina Bifida Association ? Just because the mother has Spina Bifida , I DOES''NT necessarily follow that the BABY WILL , Did they EVER sugest you had an abortion ?
I have already seen spiritual growth in each of you on this journey. God clearly in allowing this test also uses it to grow us in Him. I now pray that this journey not only blesses you but others that don't know God as you do that you come in contact with each and everyday. Isn't He wonderful!!!
I was so happy with y'alls answer to the abortion question...my brother in law and sister in law were pregnant several years ago and their baby had SB and they CHOSE to abort the baby. This was mid second trimester 17/18 weeks but they didn't wait to find out any real information...they just aborted it. I was sooo disappointed because I'm personally a STRONG WOMAN OF FAITH and I can't even begin to conceive the thought of abortion. ALL babies are gifts from our HEAVENLY FATHER...it just broke my heart that they didn't even give it a chance. 💔😢😇
I am praying for you guys! God is definitely the way maker continue to trust in him throughout your journey. This too shall pass. God is good all the time.❤🙏🙏🙏
You’re such a cute couple. Praying for you daily🙏 When I was researching spinal bifida I learned John Cougar Mellencamp was born with it and I ran across other videos of people born with it. There was one younger kid ( youngish lad? teenager? no disrespect meant) that has had multiple surgeries, but he walks fine and has been a drummer in marching band all of high school. He said he occasionally gets a backache from the weight of the drum and marching so much, but I would think that’s common for a lot of stand up drummers. Anyway I’m praying your little guy has a similar, if not better, outcome. They’ve came a long way medically since most of the videos I found. Extra prayers for you on surgery day. I’m not a fan of surgeries either, but the doctors were aware and made sure I breezed right thru. You’ll be in great hands.
Cincinnati raised and uh I wouldn’t stay IN Cincinnati ever ! Hope y’all are safe !! My fiancé’s dad is a cincy cop! Just stay closer to town square and don’t ignore your gut !! Love you all ❤️
Just wanted to let you know that our small group ladies are all actively praying for you tonight and will be throughout the day tomorrow and post op until we hear from you - and then beyond...we've got some great prayer warriors who really understand feeling despair and fear in the midst of HIs peace and joy - and will pray you comfort accordingly while we pray for a miraculous outcome of the surgery.
Come through Faith!!!!!!!!! I absolutley love and appreciate your Faith in our God Jesus Christ❤🔥💯!! And I know you don't think of your spirit being uplifted while going through this.... but believe when I tell you, Jesus is using this for his GLORY and a witness to his spirit!! Be encouraged children of God. Jesus is on the throne ❤
God bless you, your wonderful husband and the precious baby you are already loving and carrying. My daughter is 36 weeks pregnant and we are waiting for our precious baby boy to come. Stay with God, talk with God, he will be steadfast in being with all of you as long as you ask and receive! I am praying for all of you, and wish you the very, very best!
I am young, healthy, and I have never been hospitalized for anything nor do I have any health conditions. I dont drink, smoke, do drugs, never took baths/went into hot tubs/saunas (one of the things they tell you to avoid when you are pregnant), never ate any of the foods they tell you to avoid (deli meat, foods high in mercury, etc), and never took meds other than my vitamins and maybe an occasional tylenol or colace when I was pregnant or thought I could be pregnant. I am also a nurse, and I started taking my prenatals a year before I got pregnant and all the way through my pregnancy. I also enjoy foods high in folic acid. My husband is also young and healthy like yours. With all this said, I STILL had a baby with spina bifida. God is sovereign and he is in control. My heart aches for you when you talk about mom guilt or blame because I too have been in that dark place. You are already an amazing mom and its obvious from your channel that you take your health, nutrition, and pregnancy very seriously! Prayers for you momma and your precious gift from God!
The question was why God for me once...but a very wise lady asked me..hunny why wouldn't god choose you an this child??..why wouldn't he?..as UNSTRONG AS UR FEELING RIGHT THIS MOMENT..Just know God new you were strong enough to go through this journey together for his angel sent to you....so yes why wouldn't he ?..hugs to you both...God's beside you helping get through daily struggles..
Praying for you and your husband and the baby. Praying for the doctor's hands to go where they are supposed to. I love you very much guys and praying every day. Yes he is a blessing.
Thru your story I am understanding a lot more about Gods word. I clicked on your video as it was sugested probably because I follow Earlsfam a young christian couple also. I started watching them as I was coping with my Son going off to college. 3 years have past and he is going to mary the love of his life and she is a very dedicated church going christian. I have also shared this video with her. I learn more all the time about things in the bible and being a good Christian thru others stories so as I am praying for y'all and waiting to see gods work and miracles thru your son I love hearing the references made to the bible. Honesty loyalty and religion will make for a great marriage.
We had picked two names and it was not till our son was born and we saw what he looked like that we gave him his name. I feel God gives us these trials, because he uses each and every one of us to spread his word. Your son or you may become a puzzle piece in Gods plan.
I love LOVE love old creaky wood floors. At 1 of the Dr offices that I go to I always use the stairs to go back down to the main floor... I use these stairs because of the smell and sound. I know. I'm an odd duck. But, it brings me back to simpler times when I was little. You guys are in my thoughts and prayers!
I'm praying for you and your little family and I know that you and the baby will be fine and will do fine in the future love you guys and your videos they are so fun to watch and I love the faith in God you guys have through the hard times
I'm praying for u and have others praying for u as well I used to be terrified of surgery but being put under isn't bad and it turned out it wasn't scary at all dont be scared you'll be fine
You wouldn’t be in a situation that you cannot handle. You and your family will only become stronger and closer. Keep your head up everything will be ok. I also just realized that you live in Ft Wayne. I live in south bend right around the corner from Notre Dame! We’re so close to each other other!
You have to take it one day at a time . Jesus will be with you . You can choose to be happy or bitter . I choose to be happy . My daughter who has spina bifida is one of the most happiest people you will ever meet .
Everything is pre destined. It's all a test, this life is all a test. We are tested with good health to see if we are grateful and with bad health to see who is patient. May we be of those who are patient when tested with adversity and those who are grateful for our countless blessings, ameen X
I have Spina Bifida! I was adopted. My biological mother was a drug addict! I tested positive for crack and was a heroine addict baby & a failure to thrive!! I was 5 weeks early! I had my back closed at birth I have a lower lumbar Lesion I walk with leg braces and have incontinence issues! I’m 31 now!
Your boths faith and the way you both speak is so inspiring. I have a question...why when u get surgery can he stay with u or does he have to go back to ur house?
Claiming in Jesus name yalls baby boy is extremely healthy everything goes wonderful with surgery and he is 100 percent healed.. when I was pregnant with our handsome little boy they told us he would have down syndrome and we should think about aborting him which is crazy just because of down syndrome and I knew God would use this to glorify Him I am like yall and would never abort such a precious blessing he was born very healthy no down syndrome and a huge blessing he is about to be 3 and he is such a boy and I know God has huge plans for him and huge plans for yalls baby and all babies out there
No, it’s not fine. In an accident it would cause you and your baby more harm than good. You were going to all this trouble and expense to have surgery, yet that seatbelt could cause you even more damage.
wow. it was the first time i responded to a reply on utube, and honestly, people's comments need to be posted with love and compassion. if you can't, then don't..........
@@LexieThiery gosh! i do that too! They need to do some engineering to create a better system with seatbelt! what are we suppose to do when they are choking us! jeez! just sayin..........
I believe, God uses strong people, who HE knows, that they will go through a difficult situation, to be a living proof for other people. These may get hopeless, if they wouldn’t see people, who have lived though it. HE uses you as proof of HIS love, strength and hope. Greetings from Salzburg, Austria 🇦🇹, Europe
I commented on another video but there is a GREAT group on Facebook for people with Spina Bifida and parents and family members of someone with Spina Bifida that is an amazing community and resource. The group is called United By Spina Bifida.
Hey I’m from Cincinnati! My niece had Down syndrome and 2 open heart surgeries before she was one year. I have a great church up there if you guys want some where to feel at home. My family has spent a lot of time at Cincinnati children’s, let me know if you want some tips and tricks. For one ask about the Cookie Monster......
something that is really bugging me. This kind of surgery is soo amazing. It hasnt even been done for that long . It is incredible to think that they can actually operate on a baby while still in the womb. And yet they never mention this? Not once have they said they are soo grateful for the fact these doctors can do this surgery. How amazing these doctors are?How would you feel if this surgery wasnt even an option?
Listen as your explaining to us all these things of what the doctors have told you every single thing u mentiin modified bed rest, the location of the spinal bifida etc.. I 100% SEE GODS HANDS this WHOLE situation on BOTH the baby and you. I know that I know that God is in control and everything WILL go well in the Mighty name of Jesus Christ our Lord and Saviour. I CLAIM THE PRECIOUS BLOOD OF JESUS CHRIST OVER EACH OF YOU sending hugs filled with love.
I do have a question how do they put your baby to sleep to do surgery on them in the womb? I can't see pain medication being strong enough to have surgery awake pretty much through it? Leaving a traumatic door open? Or do they give anesthesia to baby threw mom in the womb? Really curious...
You might be interested in checking out Roman Dinkel's Facebook page. He is a little boy with Spina Bifida. His mom and he had the same surgery that you are about to have.
our son has spina bifida. He is 9 and defeated all of the doctors' expectations. He runs, jumps, rides his bike, plays soccer. God's work is awesome.
Claudia Thompson How??? My cousin has spina bifada and she’s in her 50s and still can’t walk. She’s had 23 operations.
@@marysnook98 Through prayer and Jesus will. He has his problems but like I said he can walk and run
Claudia Thompson Thank you 😊
@@claudiad1808 Amen 🙏
@@daniellekramer93 There’s people with Spina Bifida that can walk?? Since when?? Not that I don’t believe you but I have NEVER heard that before . 🤷🏼♀️
“Fear is a liar” don’t be afraid. Your Heavenly Father is a good good Father. He will help you and your baby through this surgery.
Sundee Perry love that song
We just went through this in April-Cincinnati and everything. All of the scary stuff they say about being born premature happened to us. I got an infection from the surgery and my baby came a week later at 25 weeks. We were in the NICU there for a few months while he grew, but even with prematurity and negative things that came with that, the surgery was still worth it for us. His defect was a bit higher, at L3, but he is able to move his toes, has made it this long without a shunt, and had a complete reversal of the Chiari II malformation. God did a lot for our baby. We’ll pray for you guys. Spina Bifida becomes a new normal and once you get to the other side of all of this, it truly isn’t nearly what you were imagining when you got the diagnosis.
When i was pregnant I was told my Son only had 1 kidney. I prayed and left it in Gods hands. Later in an ultrasound we found out he has 2 just ones in his pelvic. But I stressed so much and hes a blessing because he has a huge heart and is happy. So you're doing all the right things.
My son has Spina Bifida and he’s the happiest and best thing that could’ve happened to me! Best of luck 🎗💛
I just went on watched your videos and Alex is adorable😍 SO cute!!
nameinuse22 aw Thank you! ♥️
Kayla Whitmire 🎗💛 where are you from
Kayla Whitmire that’s our plan to go visit next year Myrtle beach
You guys just light up my heart, I have a disabled son and have physical challenges as well. I am glad you do not feel strong because then your strength is found in Jesus . Your answers are spot on. Blessings
It’s more like God chose you two to take care of and raise this little baby boy! He knew before he gave him life that he would have problems so what a privilege it is to be chosen to be parents to this little one! Will be praying for you all!
Your son is a warrior and will grow up to be a mighty man of God. Praying for your little family! I myself have a warrior and was given his gender and name in a dream when I was 8 to 9 weeks pregnant. The hand of God has always been (and will always be) on my son, Jacob Cade. It is just amazing to me that the name Jacob has been said to mean "protected by God" and Cade means "warrior or fighter" and that could not be more true about my son. While there were many emotions when dealing with Jacob's congenital heart defects, open heart surgery, and subsequent hospitalizations, I have always had the peace that passes understanding, knowing that my Father would work all things for the good. Each and every day, every time I look at my sweet boy, I am reminded of God's power, love, faithfulness, and grace.
Amen!!!!
Praying for you guys! You are such an inspiration! I cant imagine what your going through exactly but I know the fear of a momma and you are showing such Grace and spiritual Maturity far beyond your years💗💗💗 I feel the presence of the Lord in every video!
Yes!! The point y’all brought up is so true, God uses the situations from this broken world for His Glory 🙏🏼
Praying so very much for you guys!! God is going to get you through this and I am so overjoyed that you are taking a stand for life! That alone is a testimony. God is going to bless this baby and has ALREADY blessed this baby immensely. You are in the hands of the never-failing King of the universe! And He loves you. You most certainly know that! It is beautiful. Keep shining and know that we have this Hope as an anchor for our souls.
Praying for baby T and your little family every step of the way. 🙏❤️ I can't even fathom how difficult this time is for you and Craig. Your faith in Christ is truly inspiring and your baby boy is going to see these videos one day and have no doubt about how much his parents and Christ love him and believe in him 💗
Amen!
I AM SO EXCITED TO SEE HIM. You guys will be amazing parents to and for this precious baby boy❤️🥰 you are trusting in God and that's the most important thing you guys can do❤️❤️❤️
You’re doing great! Filter out any negativity from people or the enemy and stay faithful!
'the enemy' what do you mean by that?
Alice Roche sometimes people call the devil the enemy!😊
@@malloryhowell7378 oh man, that's crazy.
Praying for all of you I have a friend with this disease and I have to tell you she walks and functions completely normally and at the time there was no surgery for this. God bless all of you
Same
Kayla Whitmire Disease, any harmful deviation from the normal structural or functional state of an organism, generally associated with certain signs and symptoms and differing in nature from physical injury
The point is god has his hands on this baby and there is hope because of that
Pray for that child and don’t worry about what others say
@Kayla Whitmire I have arthrogryposis multiplex congenita it makes all the joints in the limbs have contractors club feet I've been disabled all my life it is a condition not a disease I've had friends with spina bifida they were wheelchair users this surgery is often performed after birth this is high risk because she could go into labor any time after surgery their is no cure for me however I'm glad they want their child to have a chance of less paralysis 💓
@Kayla Whitmire yes that's what I said it's a congenital birth defect condition not a disease as I said in my reply to someone else I'm in a wheelchair myself I also have a congenital birth defect called arthrogryposis I never said it was a disease it's kinda along the same lines of calling a disabled person a cripple I get it I couldn't understand if you were saying I said it was a disease I was just agreeing with you saying it's a condition I couldn't quite understand your reply 💓
No matter the out come, in God all things are beautiful!!!!
Hi, I found you through someone in my mom group... I am going through this now. I was just a week and a half ago that they found something wrong with my baby. HIs heart, legs and brain... However I went to a high risk OB yesterday and he has Spina Bifida, and we have opted for fetal surgery now. I did the amniocentesis, now I go for an MRI and then consultation for the hospital two hours away in Orlando... My husband has maintained his faith through this, I am ashamed to admit that I faltered. I felt like it was my fault, I grew his this way, how could this happen? My mind is spinning, I am hurt for my child, but God will see him through. Thank you for this video, thank you for your attitude about this
Angela Allred I have so much faith in you and the baby as I can see you are working towards and realizing that you must bring God into this to help you and therefore He will answer. You got this! I’ll be praying an abundant amount of prayers for you((: 💛
It makes me so nervous that you aren’t wearing your seatbelt properly! Safety over comfort while car rides even if you are filming please!
Laura Pav I am wearing my seat belt 😊💕
If you don't wear it right it unfortunately does nothing, that's why they commented it.
By any chance is your dad a Vietnam veteran? Because children of agent orange can have kids with spina bifida
@@LexieThiery the problem is your shoulder strap should be between your breast not under your arm in an accident the belt under your arm could compress on your belly and cause harm ;)
@@ashleyandsassy no to mention that her upper body and head is not protected either and bumping into the exploding air bag without properly fastened seatbelts... Deadly
I'm so happy to see your both doing well. Turning your burdens into blessings and knowing ultimately God is in control is what it's all about. Will be continuing my prayers for baby boy and you both. Thank you for letting us share your journey. ❤️
I just started following you & wanted to let you know. I have a daughter (through adoption) that has the exact same spina bifida as your son. My daughter is 13! Shes in 8th grade & only our family & her extremely close friends know that she has this. You can’t tell from looking at her! She’s had 2 back surgeries since birth, the first to close her defect & the 2nd at age 3 to untether her cord. Her cord has actually begun to re-together so we may be looking at another surgery soon. I say all this to let you know, that God does have your son in his hands & EVERYTHING is going to be just fine! I can’t wait to watch y’all grow!
I came across your vidoes & liked what I saw... You have an amazing attitude about this whole situation & your relationship with Jesus will get you through it all. God sees the future & he will bring something beautiful through all of this. It makes all the difference how we can except this, because of ones relationship with Jesus. It's hard for me to imagine how people get through difficulties in life without Him. Keep on being strong in your love for Jesus! You both will be wonderful parents! I have a nephew with spina bifida & he has lived with a shunt all his life ( 45 yrs )...he lived a normal life. I'm praying for you!
I was born and raised in Cincinnati....I now live in Lawrenceburg, IN. I've been following you journey and praying for baby boy on the daily!!!!!
I love your big faith in our BIG God! You’re an inspiration and encouragement to all. You must have some amazing parents bc y’all are both so strong in your faith. Y’all are seriously the cutest couple ever. Stay strong and keep pointing everyone to Him. You’re right. God is ALREADY using this sweet boy to build people’s faith. Thank you for sharing your story. 💙💙💙💙💙
Yesssssss
They're using their faith as a coping mechanism I think.
I was really blessed that so many people out there and around the world who are total strangers are upholding you and Craig and your precious little baby in prayer and being so positive and encouraging you both. I too am putting my faith together with all the believers praying for total healing of your baby.
We prayed for your baby at church Sunday morning and evening and I know we touched the throne of God.
It does not matter wether you are born with a condition or you Aquire it later on in life, it makes no difference to God, He still wants to heal and deliver.
Jesus healed many people who were blind or crippled since birth and He still healed them. God is the same yesterday,today and forever. His promises will never fail.
All we have to do is believe. There are many versus in the bible about Gods promises about asking anything in His name that He will do. Even if it's through the doctors hands and wisdom, God is still in control.
Keep your heads up high, keep believing and thanking God and God will do the rest.
Lots of love and blessings.
I have had 16+ surgeries, I know lots of people have had more. But being put under is the least scary part of surgery. Waking up is rough
whatever the outcome is, I truly believe that God will use your child despite his/her disability. if I may share my story a little bit, I was born with Spina Bifida and I can tell you that it certainly hasn't stopped me from doing what I believe God has called me to do. Your child is gonna do amazing things for God's glory even if it's with a disability!!
Your outlook is wonderful. Choosing joy and pushing through is the right path, although difficult at times. This baby is a blessing and will bring such joy to everyone. Of course surgeries and challenges are all hard to handle but you are put in this position for a reason. Just speaking out and sharing is so helpful to others. God bless.
I seriously just love you two..well you three! Praying for you and your sweet family and your sweet baby boy! Thank you for keeping us so updated on your journey. Sending love and prayers your way! ❤️🥰
I'm praying for your family and hope for the best! Gods plans are perfect and amazing❤🙏❤
I also have Spina Bifida / Hydrocephalus , I am 61 so got to the stage where I CANT have a BABY , I COULD WALK at one time but unfortunatly NOT NOW due to a BAD FALL in 200/ 1 . I F you want to believe in GOD then it's up to you and your husband , I have an OPEN mind . GOD really has NOTHING to do with your baby as YOU made it NOT GOD . What type of Spina Bifida do yo have ? You dont have to explain to ME what SPINA BIFIDA IS as I know I personally I have Spina Bifida Occulta , Hydrocephalus they DONT NECESSARILY go together , Have you contacted the Spina Bifida Association ? Just because the mother has Spina Bifida , I DOES''NT necessarily follow that the BABY WILL , Did they EVER sugest you had an abortion ?
@@shaneluke346 were you talking to me or Lexie?
I have already seen spiritual growth in each of you on this journey. God clearly in allowing this test also uses it to grow us in Him. I now pray that this journey not only blesses you but others that don't know God as you do that you come in contact with each and everyday.
Isn't He wonderful!!!
I praise Jesus for both of you. Your testimony, faithfulness to God and each other will be far reaching and bless many people!
Continued prayers for safe surgery and healing of you and baby 💙 God puts the right doctors in place and let's them be His hands.
I was so happy with y'alls answer to the abortion question...my brother in law and sister in law were pregnant several years ago and their baby had SB and they CHOSE to abort the baby. This was mid second trimester 17/18 weeks but they didn't wait to find out any real information...they just aborted it. I was sooo disappointed because I'm personally a STRONG WOMAN OF FAITH and I can't even begin to conceive the thought of abortion. ALL babies are gifts from our HEAVENLY FATHER...it just broke my heart that they didn't even give it a chance. 💔😢😇
I am praying for you guys! God is definitely the way maker continue to trust in him throughout your journey. This too shall pass. God is good all the time.❤🙏🙏🙏
You’re such a cute couple. Praying for you daily🙏
When I was researching spinal bifida I learned John Cougar Mellencamp was born with it and I ran across other videos of people born with it. There was one younger kid ( youngish lad? teenager? no disrespect meant) that has had multiple surgeries, but he walks fine and has been a drummer in marching band all of high school. He said he occasionally gets a backache from the weight of the drum and marching so much, but I would think that’s common for a lot of stand up drummers. Anyway I’m praying your little guy has a similar, if not better, outcome. They’ve came a long way medically since most of the videos I found.
Extra prayers for you on surgery day. I’m not a fan of surgeries either, but the doctors were aware and made sure I breezed right thru. You’ll be in great hands.
praying for ur baby boy!! he’s gonna b a world changer💚💚 much love from jersey
Love you Lexus so much. Thank you for being such an inspiration to me. May God bless y'all and the baby boy!💙 Keep strong I will be praying for you.
Cincinnati raised and uh I wouldn’t stay IN Cincinnati ever ! Hope y’all are safe !! My fiancé’s dad is a cincy cop! Just stay closer to town square and don’t ignore your gut !! Love you all ❤️
Just wanted to let you know that our small group ladies are all actively praying for you tonight and will be throughout the day tomorrow and post op until we hear from you - and then beyond...we've got some great prayer warriors who really understand feeling despair and fear in the midst of HIs peace and joy - and will pray you comfort accordingly while we pray for a miraculous outcome of the surgery.
Come through Faith!!!!!!!!!
I absolutley love and appreciate your Faith in our God Jesus Christ❤🔥💯!!
And I know you don't think of your spirit being uplifted while going through this.... but believe when I tell you, Jesus is using this for his GLORY and a witness to his spirit!!
Be encouraged children of God. Jesus is on the throne ❤
Prayers for a smooth surgery 🙏 mine was 6 hours but totally worth it in the end!
God bless you, your wonderful husband and the precious baby you are already loving and carrying. My daughter is 36 weeks pregnant and we are waiting for our precious baby boy to come. Stay with God, talk with God, he will be steadfast in being with all of you as long as you ask and receive! I am praying for all of you, and wish you the very, very best!
Prayers. My daughter was born with spina bifida 29 yrs.agoa. She is an enormous gift. God bless.
I am young, healthy, and I have never been hospitalized for anything nor do I have any health conditions. I dont drink, smoke, do drugs, never took baths/went into hot tubs/saunas (one of the things they tell you to avoid when you are pregnant), never ate any of the foods they tell you to avoid (deli meat, foods high in mercury, etc), and never took meds other than my vitamins and maybe an occasional tylenol or colace when I was pregnant or thought I could be pregnant. I am also a nurse, and I started taking my prenatals a year before I got pregnant and all the way through my pregnancy. I also enjoy foods high in folic acid. My husband is also young and healthy like yours. With all this said, I STILL had a baby with spina bifida. God is sovereign and he is in control. My heart aches for you when you talk about mom guilt or blame because I too have been in that dark place. You are already an amazing mom and its obvious from your channel that you take your health, nutrition, and pregnancy very seriously! Prayers for you momma and your precious gift from God!
Prayers for you and baby boy tomorrow. Stay strong 💪 This will all be a story you can tell him one day
Praying for you and your precious family! God bless ❤️
I've had Spina Bifida myelomeningocele for the past 28 years.
I’ve had it for about that long too, I’ll be 28 in January
The question was why God for me once...but a very wise lady asked me..hunny why wouldn't god choose you an this child??..why wouldn't he?..as UNSTRONG AS UR FEELING RIGHT THIS MOMENT..Just know God new you were strong enough to go through this journey together for his angel sent to you....so yes why wouldn't he ?..hugs to you both...God's beside you helping get through daily struggles..
My prayers are with you 3 always! God is always working thru us to be seen by those who may doubt, keep smiling and never stop believing!
Needlepoint is a great hobby. Stay strong, trust in God, and God Bless. Thanks for sharing 💖
Prayers for you guys! GOD Bless! ❤️
Major prayers to all of you guys.... following your journey all the way....
Sending hugs,lots of love and many prayers. Keep your faith & strength. You guy's are amazing.
Praying for you and your husband and the baby. Praying for the doctor's hands to go where they are supposed to. I love you very much guys and praying every day. Yes he is a blessing.
Praying for all of you and your safety
Thru your story I am understanding a lot more about Gods word. I clicked on your video as it was sugested probably because I follow Earlsfam a young christian couple also. I started watching them as I was coping with my Son going off to college. 3 years have past and he is going to mary the love of his life and she is a very dedicated church going christian. I have also shared this video with her. I learn more all the time about things in the bible and being a good Christian thru others stories so as I am praying for y'all and waiting to see gods work and miracles thru your son I love hearing the references made to the bible. Honesty loyalty and religion will make for a great marriage.
We had picked two names and it was not till our son was born and we saw what he looked like that we gave him his name. I feel God gives us these trials, because he uses each and every one of us to spread his word. Your son or you may become a puzzle piece in Gods plan.
I love LOVE love old creaky wood floors. At 1 of the Dr offices that I go to I always use the stairs to go back down to the main floor... I use these stairs because of the smell and sound. I know. I'm an odd duck. But, it brings me back to simpler times when I was little.
You guys are in my thoughts and prayers!
I'm praying for you and your little family and I know that you and the baby will be fine and will do fine in the future love you guys and your videos they are so fun to watch and I love the faith in God you guys have through the hard times
I'm praying for u and have others praying for u as well I used to be terrified of surgery but being put under isn't bad and it turned out it wasn't scary at all dont be scared you'll be fine
You wouldn’t be in a situation that you cannot handle. You and your family will only become stronger and closer. Keep your head up everything will be ok.
I also just realized that you live in Ft Wayne. I live in south bend right around the corner from Notre Dame! We’re so close to each other other!
You couldn’t have said it any better. Prayers for you all
You have to take it one day at a time . Jesus will be with you . You can choose to be happy or bitter . I choose to be happy . My daughter who has spina bifida is one of the most happiest people you will ever meet .
Prayers for you and your baby🙏🏻🙏🏻
Everything is pre destined. It's all a test, this life is all a test. We are tested with good health to see if we are grateful and with bad health to see who is patient. May we be of those who are patient when tested with adversity and those who are grateful for our countless blessings, ameen X
Zakiya AbdurRahman ameen
I have Spina Bifida! I was adopted. My biological mother was a drug addict! I tested positive for crack and was a heroine addict baby & a failure to thrive!! I was 5 weeks early! I had my back closed at birth I have a lower lumbar Lesion I walk with leg braces and have incontinence issues! I’m 31 now!
I have spina bifida. It’s a hard journey but you guys got it.
Have been keeping y’all in my prayers :)
Also, listen to Joy by For King and Country ❤️ and Fear is a Liar by Zach Williams ❤️ GOD has got you, you’re gonna be alright ❤️❤️❤️
Praying for you and your family 🙏🏻❤️
Your boths faith and the way you both speak is so inspiring.
I have a question...why when u get surgery can he stay with u or does he have to go back to ur house?
Claiming in Jesus name yalls baby boy is extremely healthy everything goes wonderful with surgery and he is 100 percent healed.. when I was pregnant with our handsome little boy they told us he would have down syndrome and we should think about aborting him which is crazy just because of down syndrome and I knew God would use this to glorify Him I am like yall and would never abort such a precious blessing he was born very healthy no down syndrome and a huge blessing he is about to be 3 and he is such a boy and I know God has huge plans for him and huge plans for yalls baby and all babies out there
amen!! and praising God for your son's healing in your womb! what a testimony
@@christianmamadiaries452 Thank you God is amazing!
do you know the severity of the SB?! my brother had it and had no idea until he was well into his 30s
Was waiting for an update I love you guys sending prayers
And yess god sent this path to you because you are very strong and you will get through it and he knows it.! 🙏☝️
🧩 jigsaw puzzles are your friends they pass the time excellently
You all are in my prayers
please where your seatbelt! We need for you to be safe cuz we love u both!
Emily Gruber she isn’t wearing in correctly. If they were in an accident it would not do its job and could cause more injuries.
Thanks for your concern, but it is on. And your right, it should have been over my chest but it was choking me so I moved it 😊 it’s fine.
No, it’s not fine. In an accident it would cause you and your baby more harm than good. You were going to all this trouble and expense to have surgery, yet that seatbelt could cause you even more damage.
wow. it was the first time i responded to a reply on utube, and honestly, people's comments need to be posted with love and compassion. if you can't, then don't..........
@@LexieThiery gosh! i do that too! They need to do some engineering to create a better system with seatbelt! what are we suppose to do when they are choking us! jeez! just sayin..........
God bless you!!
Love y'all!
My heart hurts for you guys. I have so much love for you! Also Lexie, put your seatbelt on hahahah ☺️
Kelsey Cayer it is on ☺️
I’m wondering if you meant that you are against abortion for all people under any circumstances? Sending prayers for your whole family
Praying for all of you!
Im one of five with spina bifida!
I believe, God uses strong people, who HE knows, that they will go through a difficult situation, to be a living proof for other people. These may get hopeless, if they wouldn’t see people, who have lived though it. HE uses you as proof of HIS love, strength and hope.
Greetings from Salzburg, Austria 🇦🇹, Europe
I commented on another video but there is a GREAT group on Facebook for people with Spina Bifida and parents and family members of someone with Spina Bifida that is an amazing community and resource. The group is called United By Spina Bifida.
Is a result of sin! Thank you for putting my opinion into words!
Just found your channel and already love you guys. I will be praying for your family continuously.❤️🙏🏻
Hey I’m from Cincinnati! My niece had Down syndrome and 2 open heart surgeries before she was one year. I have a great church up there if you guys want some where to feel at home. My family has spent a lot of time at Cincinnati children’s, let me know if you want some tips and tricks. For one ask about the Cookie Monster......
And if you need a family for thanksgiving. Let me know. Like I said we’ve walked through some of this kinda stuff with a young baby.
I have fluid around my brain. So if you want more info on that I’m here
I have hydrocephalus too....
something that is really bugging me. This kind of surgery is soo amazing. It hasnt even been done for that long . It is incredible to think that they can actually operate on a baby while still in the womb. And yet they never mention this? Not once have they said they are soo grateful for the fact these doctors can do this surgery. How amazing these doctors are?How would you feel if this surgery wasnt even an option?
catherine moore hi. Just so you know, we ARE incredibly grateful for the surgery. 😊
I am confused. I thought there was a huge miracle at church and baby was healed.....
Listen as your explaining to us all these things of what the doctors have told you every single thing u mentiin modified bed rest, the location of the spinal bifida etc.. I 100% SEE GODS HANDS this WHOLE situation on BOTH the baby and you. I know that I know that God is in control and everything WILL go well in the Mighty name of Jesus Christ our Lord and Saviour. I CLAIM THE PRECIOUS BLOOD OF JESUS CHRIST OVER EACH OF YOU sending hugs filled with love.
Follow peace, if Peace is in it it’s God if there’s no peace it’s Satan. Always follow peace because Satan can only bring fear
I do have a question how do they put your baby to sleep to do surgery on them in the womb? I can't see pain medication being strong enough to have surgery awake pretty much through it? Leaving a traumatic door open? Or do they give anesthesia to baby threw mom in the womb? Really curious...
The baby gets anesthesia through her plus a little of his own
@@craigthiery1623 thanks I was thinking this but wasn't sure if anesthesia worked threw the mother like other drugs. Thanks again for letting me know
I had 11+ surgeries on my legs
You are in my prayers. Hugs
You might be interested in checking out Roman Dinkel's Facebook page. He is a little boy with Spina Bifida. His mom and he had the same surgery that you are about to have.
Sending prayers and hugs 🙏🤗🙏
Do you feel him kick? Or can he not because of his spine
Some cannot but most can. And i think she has said he does move his legs
Not to be mean but why aren't you wearing a seatbelt?
I think it is tucked under her armpit. At the end of the video you can see it
She is wearing it.
She does have it “on” but she isn’t wearing it correctly. If they were in an accident it would not do its job and could cause more injuries.
Leah Lynch ok but not in the right way!!
I’ll never understand why people feel the need to comment stupid stuff like this. Does it personally affect you Judy? So annoying!