@@akifhussain9047 major, you need blood transfusion every 3 weeks to boost haemoglobin level. Meanwhile minor doesn’t need blood transfusion but need to maintain well beings to make sure the hb not below par the standard.
You are an Angel to help those with the major form. I think you are amazing. Thank you.May I make a suggestion in your talks? Please do not say that Thalassemia minor is nothing and has no symptoms because it does. It is not life-threatening, but our blood cells are tiny too, and we do not carry oxygen really well. We are anemic also maybe less but it affects our life. Just like depression is an illness and is not easily seen, that minor and intermedia suffer too. My Mother said I slept so much as a baby she had to wake me up to feed me to keep me alive. I moved slow and talked slow to conserve energy, I was always tired and sleeping. My father the same. When I was pregnant my hemoglobin was dangerously low and I had to be watched weekly, having blood tests and having to talk huge double prenatal vitamins, and I was still low. My baby was born with fetal hemoglobin. I deal with low energy levels all the time. If I did not take B vitamins and multiple vitamins I would be very low energy, which causes depression. So PLEASE b=neever say it is nothing, it has some side effects, please say that it does, because no one will listen to us and see we have a problem.
I can feel you.. I have thalassemia minor .. extremely low on energy .. everybody feel like I'm excusing to not work .. but I can feel the pain..can you please share what supplements are you taking ?? I really need to know .. ❤️
@@ammu9295 I have this disease to but only minor may the Lord be with you and may love incompass you now that I'm getting older I find myself pulling off to the side of the road just to rest for 15 minutes after driving try to eat right and exercise I was diagnosed a few years ago I'm nearly 60 years old now I often wondered how come sometimes I would just faint going to the bathroom in the morning and I've lost my hearing for over a year
My child also suffering from thalesmia mager it true and I am facing lots of problems for blood some time I really appreciate for those who gave blood donation
Absolutely touched by your efforts and commitments. May God abundantly bless you with happiness. We too at Rotary club in Navi Mumbai have started an End Thallesemia movement. You are an inspiration to all of us
Two time pregnancy tests found as Thalesemia Major Is it possible that third time bring happiness to parents both having Thalesemia Minor 😥😥😥😥😥😥😥 Should we try third time
I am Thalassemia major patient and every single word she said is true.
Where r u from
@@ayeshaazmath2441 I have this disease also, but minor, Lord God be with you. And love encompass you.
@@ChosingGod what is the difference between minor and major?
@@akifhussain9047 major, you need blood transfusion every 3 weeks to boost haemoglobin level. Meanwhile minor doesn’t need blood transfusion but need to maintain well beings to make sure the hb not below par the standard.
Ap ko bachpan sy hai kya
I could sense that pain of those children in your voice when you were speaking. Hats off to your efforts ma'am.
You are an Angel to help those with the major form. I think you are amazing. Thank you.May I make a suggestion in your talks? Please do not say that Thalassemia minor is nothing and has no symptoms because it does. It is not life-threatening, but our blood cells are tiny too, and we do not carry oxygen really well. We are anemic also maybe less but it affects our life. Just like depression is an illness and is not easily seen, that minor and intermedia suffer too. My Mother said I slept so much as a baby she had to wake me up to feed me to keep me alive. I moved slow and talked slow to conserve energy, I was always tired and sleeping. My father the same. When I was pregnant my hemoglobin was dangerously low and I had to be watched weekly, having blood tests and having to talk huge double prenatal vitamins, and I was still low. My baby was born with fetal hemoglobin. I deal with low energy levels all the time. If I did not take B vitamins and multiple vitamins I would be very low energy, which causes depression. So PLEASE b=neever say it is nothing, it has some side effects, please say that it does, because no one will listen to us and see we have a problem.
I can feel you.. I have thalassemia minor .. extremely low on energy .. everybody feel like I'm excusing to not work .. but I can feel the pain..can you please share what supplements are you taking ?? I really need to know .. ❤️
@@ammu9295 my mother used to think I was lazy, but I'm not I just had a lot of problems with energy, always tired
@@ammu9295 I have this disease to but only minor may the Lord be with you and may love incompass you now that I'm getting older I find myself pulling off to the side of the road just to rest for 15 minutes after driving try to eat right and exercise I was diagnosed a few years ago I'm nearly 60 years old now I often wondered how come sometimes I would just faint going to the bathroom in the morning and I've lost my hearing for over a year
🎂🎉🎊
@@ChosingGod Sorry to ask this, but how was life with this condition? Were you able to keep a job? Have children?
m bhi ek thalassemia warrior hu...😇 nd im proudly say im very strong❤️
Plz mujhy btyn m bi minor hon
@@hareem3653 ji kya janna h btaiye kya help kru
I literally cried after listening your story. I will do this test before marriage.
Hate of to your courage
You're an absolute inspiration mam! It was great to attend your talk
True bro
My child also suffering from thalesmia mager it true and I am facing lots of problems for blood some time I really appreciate for those who gave blood donation
Did you marry your cousin?
👏👏👏👏👏👏( clapping)....
Thank you very much for the eye opening presentation
Absolute inspiration. Thank you for sharing maam.
Public health care in india must needed topic to discuss
Absolutely touched by your efforts and commitments. May God abundantly bless you with happiness.
We too at Rotary club in Navi Mumbai have started an End Thallesemia movement.
You are an inspiration to all of us
You’re a lovely person. To all of you having babies outside of marriage, still get tested.
I am a Thalassemia patient..so TRUE
Where r u from
Thank you so much for all you do! I have thalassemia intermedia and can relate.
This speech makes me cry!
Thank you all very much
Very commendable to accomplish so much
You are great!!
Great video :) Very inspirational.
Last line 🔥🔥🔥🔥🔥🔥
Pls maam my daughter is thalamessia major she had to give blood frequently in the gap of 15 days pls arrange for blood donors no donors are available
Where r u from
Now government provide
Meree ko khud Hain
Two time pregnancy tests found as Thalesemia Major
Is it possible that third time bring happiness to parents both having Thalesemia Minor
😥😥😥😥😥😥😥
Should we try third time
Did you try for the third time? I have similar question.
welldone.
She was at my college during my freshman year.
Can I just get her contact because we have same aims and I am a thalaseemia patient too and want to see thalaseemia free india
Blood donation camp ki tarah iska awareness keliye camp / miking karna jaruri hai.. logo ko awareness karna hai...
My eight year old daughter is Thalasseamia, I desperately need your help! Please help me!
Devi🙏
I am a Thalassemia major patient.
Please get tested for HPLC before marriage.
I have thalassemia minor ..can feel the pain 💔
Hlo tell me minor me Kitna mushkil hai
@@MohitKumar-yl6px good diet and regular checkups SE you can maintain health .. don't neglect your health
i also have thalessemia minor
I also
@@ranika5305 same
I have thalassemia Major
25% is true but it tests continuous 2 time as Thalesemia Major 😓
I have thalassemia minor, I feel so bad for that little girl
Monir ke bare me hmme batao meri gf ko nikla h
Fathers abandon children ? Are you serious ?
I have minor