Hi, Thank you! This video is so very helpful and encouraging. I am at the same stage in my recovery as you. I started in Oct of 2018. You have covered everything I am feeling and think about with this video amazingly. To anyone reading my comment - you WILL get better. Let go of a timeline. Everyone is different. Just do your rehab exercises. They absolutely help!
My dad who is 83 has been going through this for the last 2 years. I was so excited just to find your video that explains sooo much. No one has diagnosed him. I plan to start him on some of the exercises you have explained helped you. Is there a printable checkered exercise sheet like you use? Thank you for sharing your experience with all of us. You have been so helpful! I wish you the best in your full recovery.
Thank you for the up date!!! My V.N. started May 2019. It is a long road for most of us.I'm still at 90% most of the time, I have good days& bad.mostly good.The anxiety is the worst!!!But I think back to when this started& how far I've come!!! I can walk now,go places,do everyday things.Not able to go back to work yet!!!Must be 100% for that!!! I'm slowly getting there!!!Again thank you so much for posting!!! This made my day!!!No one can understand unless you have gone through this!!! I knew exactly what you were saying& felt when walking into a darker room/area,the offish feeling ,the eye thing going on!!!Take care Sean👍😎👍😎
Bertha Emerson good to hear from you and hopefully things continue to get better. I went back to work at line 80%. I would even say you wouldn’t have to wait til 100%. It might seem scary but it might help. Just my two sense. All the best
My 12 year old son was just diagnosed with this. He has been sick for a month that started with a virus and led to this. Your first video about this was extremely helpful as is this one. He just started today on steroids. Will def be using some of the tools in these vids to help him! Thanks so much!
Love your updates!! Very inspiring! I was diagnosed w/ VN (first they diagnosed me with bppv vertigo- which i did not have) last December 4th and was back to 85-90% about 2 months later. Physical therapy is definitely what helped me ,.. soo many exercises & my therapist was the one that discovered I had VN & not bppv. My only issues nowadays are anxiety (like u said)... I panic if I have any signs of symptoms,..right away I'm like "omgggg its coming back". ..., but it hasn't., thank God 🙏🏻. From time to time I get that floating notion when rolling from side to side in my bed or in the dark., but i can't even complain about that, because I never thought I would even be back to "this normal again".
AJ_Zidare that’s good to hear you recovered-ish so quickly. Yup I totally feel that anxiety part.. but again that gets better with confidence. Honestly, try walking in the dark more to get rid of that feeling. I walked with my eyes closed for a while and the dark doesn’t bother me anymore
@@seanpangs7131 I'm gonna try that 🙂. Even when I was first diagnosed, my hardest exercises were with eyes closed, ..right away i was falling. I was a trained ballerina for 20 + years & to have no balance was the most bizzare feeling for me.
@@seanpangs7131 hey Sean Hope all is well brother!! Do you know how long the floating /trampoline feeling lasted for you ? I remember you said in your video the floating type feeling went away ?
@@AdriZidare hey AJ! Hope all is well!! Any advise on getting rid of the floating feeling ? I get that when walking and also like trampoline feeling . I asked Sean also so let’s see
Your words are very encouraging and inspiring. I have been dealing with this since February with the more intense symptoms as I do believe my symptoms were gradual over the last 7 months. Non spinning vertigo over a month, the anxiety and panic attacks are hard to deal with as mine comes mostly during the evening. The whole thing does require change but like you said that willingness to get our lives in balance. Thank you 🙏🏾
Thanks again. The health service havn't got a clue?! I'm glad you're getting there, healing yourself. I would be willing to do anything, if I just knew what to do? I'm classed as disabled now and written off by society. I will never give up trying. I've given up with doctors, they don't know! It's people like you who are the only hope. Thanks.
I just in my 2 months, started the first sympton in March 2021 and it really gets to me and affects my life. Thanks for the videos opened up my mind and lower my anxiety.
GUYS it does get better but it takes time and work. I’m close to 2 years and I can tell you that when I flare up a little or have a bad few days it’s because of ANXIETY. It’s hard to tell yourself it is just you being anxious and I don’t have all the answers but my anxiety medication has helped. Keep fighting
Hi could you help me please i have VN and VM doctor isn't helping me, what should I do for this please i have intense depersonalization and deralization with it 24/7 for last 3 months does the depersonalization always go away or is it not gaurenteed taking over my life
@@laurenbaldwin6068 sorry I don’t have a confirmed answer for this that will work for everyone, but just getting out, going for walks and always challenging my brain to become normal again, is what helped me
Hi Sean, thanks for sharing your experience with us. Sure sounds like you are on the right track. I found running on the treadmill changed my dizziness by about 30%. After running, if i move in slow motion I fell much ore stable. I went from hanging on for dear life to a very fast running pace. It’s not so easy outside though. Thought I would share this. Best Regards and hope you are doing well now.
I can confirm this. Within a month of having vestibular issues, cardio 3+ times a week has significantly trained my brain to adapt. Dizziness is still there but its becoming less noticeable. But the biggest change by far is my ability to concentrate and visually scan screens without getting severe mental strain/exhaustion by the end of work or the day. I recommend though that people take cardio at their own pace, your symptoms should not be getting worse after sessions-- if this is the case, you need to adjust the activity.
Have your headaches gotten better? I believe you mentioned you had headaches in your last video. You are to correct in saying doctor don't know much about this illness. Thank you so much
Amazing video.great information. I wish I found this 5 years ago. It has been that long. I do live my life but at time it’s very difficult because I have the same issues with my eyes and the swaying. It’s very hard. Can you please make a video with all the exercises you do every day. Or at least few of them. It will be very helpful for me as I am trying so hard to improve and stay there. Sometimes I get better and then all of a sudden back back, so scary. Anyway, you are such an amazing person to take the time and help others. So greatly appreciated. Thank you again and hopefully you do the video with the exercises 🙏🏻💝
Hello! Can you please provide a link to the exercise list that you used to recover? My wife is recently diagnosed with vestibular neuritis and I want to help her. Love your videos btw they are very inspiring!
Thank you Sean. I was chasing diagnosis and all testing hasn't led to anything. I'm still having all the symptoms you mention and I had decided no matter what I just had to find a way to fix it myself. VRT helps. It's been 1.5 years and I know that I've made progress. Thanks for your video. It's just what I needed to hear!
I had a doctor say it was likely psychosomatic without looking at any test at all. My ENT got me confused when she asked me "Why do you find it so hard, is it emotionally challenging?" I thought... I mean everything is spinning when I go to the supermarket and I'm afraid I might fall and hit my head badly or never recover again since it's been months and still though I get progress sometimes it get substantially worse (although not as bad as originally) and you feel like you're back to 0 even though you're not. I find I often struggle when I visit those specialists and make questions like that, I rarely have a clear answer to advocate for my health because you just don't expect them to be that ignorant to be honest. I mean, of course it's emotionally challenging but that's not the root cause of my issue. I'm glad the Neurologist didn't just dismiss my symptoms, I don't quite agree with everything but at least I knowing that one specialists believes your symptoms exist helps.
Psychosomatic? I find doctor’s can swing between two extremes, arrogance and ignorance. Rarely do they ever land in the middle, which is sensibility. I am glad that you chose to advocate for yourself. I am a fellow VNer, I stand in solidarity with you. I am currently 8 weeks in and struggling a bit, but like Sean said, we have to fight to get our lives back. I wish you all the best on your road to recovery, take good care and be kind to yourself my friend.
Hi there I’ve been Diagnosed VN three weeks now, believe me it’s so hard, it’s only when I put head on the pillow I feel ok, but as so I get up my head feels so feels so heavy, Maybe I suffer from migraines, form before, and this makes it worse. Of course the dizziness is there. Just can’t take this pain and my anxiety goes top of the roof.
I feel you man. My anxiety is tremendous. I’m a 33 year old man. I’ve never felt like this before. Such a feeling of terror. We will get through this. You will get through this. ❤️
Hope you get well soon this seems a new type of phenomenon I suppose after the mobile 0hone were made this is affecting all the people sorry such young boy with so much of life to live thanks for sharing your problems so others can benifit
Thanks for the motivation. I'm 4 months in and feel better but have good and bad days too. I felt 90% better just a few weeks ago and had a setback. The problem was that I felt great for 3 weeks straight stopped VRT and then the weather trigerred me and I had a set back. I'm back doing it again. I also dont have a diagnosis but went right to a physio therapist from the start who assessed me with VN. I had my first phone ENT consult 2 weeks ago ( 3 mins in total) and he discounted VN without ever seeing me or hearing my symptoms and the PT report. Anyways I am booked for VNG testing on Sept 10 and then audiology testing and from there will see what is going on. Did you have an MRI /CT scan? I haven't had any yet.
True, I was so obsessed with knowing whether it was VN, VM, or Meineres and the Truth is not even specialist know because what sets them apart is how it progresses. Theres more overlap between the 3 than the book descriptions of the conditions make them sound like and they rarely come without other symptoms. It's not the diagnosis that determines how it will progress or what you'll deal with long-term but it's how it progresses what determines the diagnosis if that makes sense.
I get dizzy when I try to sleep on my right side. In the video you say lean into it - or do the things that cause the symptoms. I feel scared to even try to sleep on my right side now. How did you get the courage to try that?
I’m not sure how I managed the courage to do it.. I couldn’t sleep in my left side, I’d get weird head sensations and feel dizzy. I just did it in progression. I mean, I’ve always eluded to like a figure skater spinning around and around and not getting dizzy. Took practice. So whatever made me dizzy, I just did more of hah. I can sleep on my left side now with no issues really
@@seanpangs7131 that’s good to hear. I’m just scared, I think. I like the figure skater analogy. It’s such a terrible feeling that I tend to avoid it. The symptoms sound similar. I appreciate the responses & video updates.
Thank you soooo much for all this. I have every symptoms you had still yet to be diagnosed with anytning 😭😭😭 my ent said vestibular migraine but without pain. But I feel more as if it's vestibular neuritis. My pcp blames anxiety. Er blames anxiety... like you said feeling these symptoms makes your anxiety go up Bc who wouldnt?! Especially worrying what ppl think of you. It's so hard to stand in stores without swaying left and right... and the lights kills me soo much... and it seems like the room is shimmering... and I lose balance. It's so tough with this. And I still have any answers. But this video helps me So much thank you.
Yeah I definitely went through all of that. It definitely took time, patient.. and for me a lot of exercises like practicing balancing. But all of that, pretty much has gone away. Also, I would say not to focus so much on what the particular diagnosis is.. they're all so similar, but focus on the recovery, cuz again, it also is similar
Super glad I found your videos. Now I don’t feel like I’m going nuts anymore. That “I feel practically normal” line 😂, I totally can relate, but I’m at the completely not normal phase
Thank you for your videos! I’ve actually been waiting for an update I’m so glad to hear you are doing better. It gives the rest of us hope. I’ve been dealing with this for almost 2 yrs now. & I just want my life back! All my doctors have said something different as well. My anxiety has been through the roof. & this illness can take you to a dark place & it’s scary sometimes with little answers. I’m glad your you & the fb groups that’s such a big help. I get migraines so some days are just horrible. I’m currently doing VRT. But I’m definitely going to focus & be more consistent with that. I know you said you didn’t take meds but do you take any supplements?
Fav Ooo I think VRT helped me so much to where I am today. I take tumeric, fish oil, magnesium, l Lysiene, co q10. I’ve experimented with many throughout the journey but these are the ones I’ve stuck with
@@aliyaaahhhlps ah i get them too.. 😒 and the worst part is that people dobt realise how hard is this, they think you look normal but inside its just a mess... well hopefully we vestibular warriors will feel better soon x
The black and white pattern is kind of similar to the Dai theory! I was signed up to fly to another state for a trial of this (a chamber created with the black and white lines, spinning in the chamber) and EMS therapy too, but it was cancelled due to covid, so I'm excited to try this at home!
Hi Sean, thank you so much for your videos. For the first time I feel like I’m not going crazy. I wanted to ask you about going to the gym. I’m still having ocasional moments of dizziness but it comes in waves. Been dealing with this for 9 weeks. I want to ask you about resuming exercise, were you able to strength train or did you have to modify what you would normally do? I’m itching to get back to some routine and i feel like exercise will help my mental state but I’m also scared. Thanks again
Hi Sean I saw you comment in Vestibular Hope saying you would take a low dose of klonopin for a time during your recovery. I am currently 18 months and I still have debilitating 24/7 symptoms. I do VRT 3 times a day. I'm wondering how often you took klonopin?
Amna Masood I can, but honestly, over time, I followed the basic vestibular rehabilitation videos that you find on UA-cam. Once I had a solid foundation, I started to just create my own that I struggled with. If I struggled with walking diagonally, I’d walk diagonally etc.
Hi. So were you able to drive a car? I have this and 4 months into it, I can drive but I feel a little woozy when I get out of the car...like the car was moving. Also, I can ride motorcycles.
Hi. Omg you made me feel so much better. I developed vestibular neuritis symptoms a week before Haloween. It was so sudden and for few days was so so severe. Its nearly 4 weeks with this illness. I been admitted twice to the hospital. All my tests were good, ct scan were fine.. all my symptoms, like you mentioned bouncy vision and floating sensation. And horrible anxiety 😔😔😔 so with my own research i definitely know its vestibular neuritis. Because there is no other logical explanation. So yes its nearly back to normal, but yes once my eyes closed i have zero balance and when i am in the bed and roll over feels so weird. Its like sleeping on the cloud.. my eyes feels still jumpy when the room is dark.. so i am waiting for my physiotherapy here in Ireland. Yes and i keep leaning towards my weak side too! Doctors here seems don't really care about vestibular neuritis at all, they prescribed cerc medication and thats all. But many thanks 😊 🙏 but yes mindfulness and positive thinking makes keep me going and appreciate my body and my soul! its amazing what our brain can learn!! But people like you makes our world better!! Yes it can be worst! Life is never easy! So i am so thankful for this illness!! I learned so much about myself! Thanks for sharing it 😊
I’m glad you’re doing much better and I’m glad you’ve narrowed down (with your research) what it could be. I felt the same way. Definitely listen to what your physio recommends but feel free to reach out if you’re not seeing improvement. All the best!
So my updates are, i went to the private clinic, so one month later i am feeling a lot better. My physio therapist made a huge difference, got my balance back !! The best feeling to feel the ground again. But yet my vision is still shaky sometimes, however i am doing these eye tracking exercises too. They are brilliant! Again many thanks!!! Looking forward for your new video!
@@r.r8314 hey that’s awesome that you’re feeling better! Stay the course and keep up with the exercises, it’s what helped me. I’ll probably make a new video soon!
Sean how did you control the anxiety? I find that it's a big part of the recovery.. I feel like anxiety stress caused this disorder.. Taxing the central nervous system.. Can't take meds..
Janice Ince I think just getting better and gaining more confidence helped with the anxiety. Again, just going out and challenging myself. It’s hard but it can be controlled. Breathing techniques..
Hi, you mentioned shimmers on the side of your eyes. Are they flashes of lights that last a few seconds? I have been getting these light flickers mostly when I go into a darker place. Luckily they last seconds. Not sure what they are. Thank you
Germana Guarnaccia yeah that’s kinda it, more like shakes. I’m not sure why, I think it’s almost like my brain is using my eyes a lot for balance and when it gets dark it almost seems like it panics. It’s definitely better tho
@@seanpangs7131 yes, exactly me. I have these weird eye shimmers. Specially in the dark room. But i applied warm teabag and actually really relaxing for your eyes.
Natasha Black nothing crazy.. smoothie morning, as much greens throughout the day + chicken. And then whatever else. In my acute stages (first few months) I was pretty strict with just healthy food
@@seanpangs7131 when did you start to feel like it was finally getting better rather then the up and down Rollercoaster of better then worse? Also did you get headaches with your symptoms?
Natasha Black Umm probably 5-6 months after onset did the recovery start versus feeling like shit all the time. I did get headaches yes, probably over a year and a half
Hey there, I stopped maybe a month and a half in.. it's effectiveness wore off and it gave me stomach aches. it's been a journey but I'm pretty much back to normal now
Hey! Your videos have helped me so much so thank you. Quick question. I’m 11 months into VN improving but my lingering symptom is really bad head pressure, did you have this also? I’m worried that this is a symptom of vestibular migraine and not neuritis and with that you shouldn’t do VRT as it could make it worse (I do VRT) everyday, basically just wanted to see if you or anyone else had head presssure with VN and eventually got rid of it so that I know I’m on the right track to recovery and not hindering myself with the exercises. Long message sorry! But thanks for reading. Have a great day
Hey there.. I definitely had head pressure as well. I do get asked that quite a bit, but I’m not sure how I would’ve got rid of it, I feel it just kinda went away with time (no longer have it).
I'm in month 10 post acute phase of vestibular neuritis. I too have head pressure. The head pressure was intense and constant for about 6 months. It does lesson as time goes on. My understanding is that the head pressure is a stress response. I also ended up with a very tight neck. I am currently receiving neck mobilization therapy from a physiotherapist along with neck exercises. This has helped immensely with the neck tightness and head pressure. I also recently saw a neuro optometrist. She advised me that I have a weakness in my vestibular ocular reflex in my left eye. She gave me additional eye exercises as well as advised me to wear my glasses all of the time. This eye issue is common with vestibular neuritis. The good news is that the eye can be strengthened which should reduce or eliminate remaining symptoms. I also complete VRT exercises daily. I hope this helps answer your question. I have been told many times that recovery takes time, patience and perseverance.
Hey, I'm doing very good, just been busy doing normal stuff. Keep staying active, I hope to make a video in 2023.. but overall things are good and Normal on my end
Yeah I'd love to see an update also you were an inspiration to me during the dark days. I'm living normal also now seems like the better I get the longer it takes for the smaller symptoms to go away
Pls help me am suffering vestibular disorder my inner ear got week so often vertigo and imbalance and leading very hard lifestyle and always at home can’t walk almost I reach out all doctors and they keep on send me eply maneuver but not helping much
Sean Pangs thank you! I do have it, and its been like that for 4 months now 🙈 it’s awful and bothers me a lot! I don’t think its Menieres because I have no hearing loss. Most likely VM.
@@karlinhahf do your ears ever itch? I've been going through this for 5 1/2 months now. Only been to ER and they told me I have labrynthitis. I have all these symptoms but my ears constantly itch like crazy!
@karlabarr - I am on month 7 of VN and I still have ear fullness and clogging, especially with changes in elevation. As a female, I've noticed these symptoms flare up more when approaching and at the beginning of my menstrual cycle.
Hey im sad because no one knows what im talking about or dont believe me but did you ever see words moving bouncing or shaking on a computer screen im suffering from vestibular neuritis as well and if you can reply i will be so happy thank tou for making this video.
Hi Sean, Im a month and a half into this and my head feels heavy specially when i move it up and down or tilt it and then i feel fainty. Did you suffer from that too?
Anxiety and panic attact is the main problem to me im struggle to face it properly that cause my body become weak and increase my heart rate and feel dizzy.
Yes. Deep down I believe this is a nervous system disorder and yes anxiety/panic can cause this. I recommend you start praying a lot. God is the only true healer of the mind. Getting over anxiety should be on of the main goals during the battle. I'm planning to make a video about this after I fully recover..
Bro can you share your date of birth time of birth and place. I found few people with same planetary position including me dealing with this. This is actually to search for out of body experiences in birth charts.
This is absolutely a hard journey. I pray everyone is healed. Thankyou for these videos
It is. Hardest thing I've been they. How are you doing?
Hi, Thank you! This video is so very helpful and encouraging. I am at the same stage in my recovery as you. I started in Oct of 2018. You have covered everything I am feeling and think about with this video amazingly. To anyone reading my comment - you WILL get better. Let go of a timeline. Everyone is different. Just do your rehab exercises. They absolutely help!
Thank you! Glad to hear this has helped and glad to hear you’re doing better!
My dad who is 83 has been going through this for the last 2 years. I was so excited just to find your video that explains sooo much. No one has diagnosed him. I plan to start him on some of the exercises you have explained helped you. Is there a printable checkered exercise sheet like you use? Thank you for sharing your experience with all of us. You have been so helpful! I wish you the best in your full recovery.
@@seanpangs7131I'm 5 years on and my symptoms to abe for worse again, has anyone else had this?
@@tanyaford9886hi, how are you feel now?
Thank you for the up date!!! My V.N. started May 2019. It is a long road for most of us.I'm still at 90% most of the time, I have good days& bad.mostly good.The anxiety is the worst!!!But I think back to when this started& how far I've come!!! I can walk now,go places,do everyday things.Not able to go back to work yet!!!Must be 100% for that!!! I'm slowly getting there!!!Again thank you so much for posting!!! This made my day!!!No one can understand unless you have gone through this!!! I knew exactly what you were saying& felt when walking into a darker room/area,the offish feeling ,the eye thing going on!!!Take care Sean👍😎👍😎
Bertha Emerson good to hear from you and hopefully things continue to get better. I went back to work at line 80%. I would even say you wouldn’t have to wait til 100%. It might seem scary but it might help. Just my two sense. All the best
My 12 year old son was just diagnosed with this. He has been sick for a month that started with a virus and led to this. Your first video about this was extremely helpful as is this one. He just started today on steroids. Will def be using some of the tools in these vids to help him! Thanks so much!
Love your updates!! Very inspiring! I was diagnosed w/ VN (first they diagnosed me with bppv vertigo- which i did not have) last December 4th and was back to 85-90% about 2 months later. Physical therapy is definitely what helped me ,.. soo many exercises & my therapist was the one that discovered I had VN & not bppv. My only issues nowadays are anxiety (like u said)... I panic if I have any signs of symptoms,..right away I'm like "omgggg its coming back". ..., but it hasn't., thank God 🙏🏻. From time to time I get that floating notion when rolling from side to side in my bed or in the dark., but i can't even complain about that, because I never thought I would even be back to "this normal again".
AJ_Zidare that’s good to hear you recovered-ish so quickly. Yup I totally feel that anxiety part.. but again that gets better with confidence. Honestly, try walking in the dark more to get rid of that feeling. I walked with my eyes closed for a while and the dark doesn’t bother me anymore
@@seanpangs7131 I'm gonna try that 🙂. Even when I was first diagnosed, my hardest exercises were with eyes closed, ..right away i was falling. I was a trained ballerina for 20 + years & to have no balance was the most bizzare feeling for me.
AJ_Zidare oh wow. Best of luck.. for me it seemed like I had to start from scratch with balance and everything. Hopefully it won’t be long for you!
@@seanpangs7131 hey Sean
Hope all is well brother!! Do you know how long the floating /trampoline feeling lasted for you ? I remember you said in your video the floating type feeling went away ?
@@AdriZidare hey AJ! Hope all is well!!
Any advise on getting rid of the floating feeling ? I get that when walking and also like trampoline feeling . I asked Sean also so let’s see
Your words are very encouraging and inspiring. I have been dealing with this since February with the more intense symptoms as I do believe my symptoms were gradual over the last 7 months. Non spinning vertigo over a month, the anxiety and panic attacks are hard to deal with as mine comes mostly during the evening. The whole thing does require change but like you said that willingness to get our lives in balance. Thank you 🙏🏾
Sorry you're going through this. It's a tough ride and it's a mindset adjustment, but I hope you can find your answers and get better
Thanks again. The health service havn't got a clue?! I'm glad you're getting there, healing yourself. I would be willing to do anything, if I just knew what to do? I'm classed as disabled now and written off by society. I will never give up trying. I've given up with doctors, they don't know! It's people like you who are the only hope. Thanks.
For sure.. for me I had to accept that I had to retrain my brain and it’s worked for me. Hope you find your answers!
@@Ackermann634 hey yeah I had that, I just had to keep walking (or try walking properly) and it eventually got better
I just in my 2 months, started the first sympton in March 2021 and it really gets to me and affects my life. Thanks for the videos opened up my mind and lower my anxiety.
Hey fellow VM'er! So relatable and glad for the update. Peace!
Thank you so much for doing these videos. They have been incredibly important to me in my recovery.
Love the video. I just was diagnosed with VN. This video gives me hope that I will get better. It's going to be a journey.
GUYS it does get better but it takes time and work.
I’m close to 2 years and I can tell you that when I flare up a little or have a bad few days it’s because of ANXIETY.
It’s hard to tell yourself it is just you being anxious and I don’t have all the answers but my anxiety medication has helped.
Keep fighting
Thanks for sharing Nathan! Glad you’re on the right path and getting well
Hi could you help me please i have VN and VM doctor isn't helping me, what should I do for this please i have intense depersonalization and deralization with it 24/7 for last 3 months does the depersonalization always go away or is it not gaurenteed taking over my life
Hi there Nathan I’m not a doctor or anything but finding out about PPPD helped me.
Good luck
@@seanpangs7131 hi Sean what's the best way to fully getting rid of DPDR t feel completely normal again
@@laurenbaldwin6068 sorry I don’t have a confirmed answer for this that will work for everyone, but just getting out, going for walks and always challenging my brain to become normal again, is what helped me
Hi Sean, thanks for sharing your experience with us. Sure sounds like you are on the right track. I found running on the treadmill changed my dizziness by about 30%. After running, if i move in slow motion I fell much ore stable. I went from hanging on for dear life to a very fast running pace. It’s not so easy outside though. Thought I would share this. Best Regards and hope you are doing well now.
I can confirm this. Within a month of having vestibular issues, cardio 3+ times a week has significantly trained my brain to adapt. Dizziness is still there but its becoming less noticeable. But the biggest change by far is my ability to concentrate and visually scan screens without getting severe mental strain/exhaustion by the end of work or the day. I recommend though that people take cardio at their own pace, your symptoms should not be getting worse after sessions-- if this is the case, you need to adjust the activity.
Have your headaches gotten better? I believe you mentioned you had headaches in your last video. You are to correct in saying doctor don't know much about this illness. Thank you so much
Amazing video.great information. I wish I found this 5 years ago. It has been that long. I do live my life but at time it’s very difficult because I have the same issues with my eyes and the swaying. It’s very hard. Can you please make a video with all the exercises you do every day. Or at least few of them. It will be very helpful for me as I am trying so hard to improve and stay there. Sometimes I get better and then all of a sudden back back, so scary. Anyway, you are such an amazing person to take the time and help others. So greatly appreciated. Thank you again and hopefully you do the video with the exercises 🙏🏻💝
Hello! Can you please provide a link to the exercise list that you used to recover? My wife is recently diagnosed with vestibular neuritis and I want to help her. Love your videos btw they are very inspiring!
Thank you Sean. I was chasing diagnosis and all testing hasn't led to anything. I'm still having all the symptoms you mention and I had decided no matter what I just had to find a way to fix it myself. VRT helps. It's been 1.5 years and I know that I've made progress. Thanks for your video. It's just what I needed to hear!
winstonty Im glad this helped! I’m a firm believer we can retrain our brains and get our lives back. All the best to you!
I had a doctor say it was likely psychosomatic without looking at any test at all. My ENT got me confused when she asked me "Why do you find it so hard, is it emotionally challenging?" I thought... I mean everything is spinning when I go to the supermarket and I'm afraid I might fall and hit my head badly or never recover again since it's been months and still though I get progress sometimes it get substantially worse (although not as bad as originally) and you feel like you're back to 0 even though you're not. I find I often struggle when I visit those specialists and make questions like that, I rarely have a clear answer to advocate for my health because you just don't expect them to be that ignorant to be honest. I mean, of course it's emotionally challenging but that's not the root cause of my issue.
I'm glad the Neurologist didn't just dismiss my symptoms, I don't quite agree with everything but at least I knowing that one specialists believes your symptoms exist helps.
Hi, how are you? One quuestion did you have hyperacusis or ringings in your ears?
Psychosomatic? I find doctor’s can swing between two extremes, arrogance and ignorance. Rarely do they ever land in the middle, which is sensibility. I am glad that you chose to advocate for yourself. I am a fellow VNer, I stand in solidarity with you. I am currently 8 weeks in and struggling a bit, but like Sean said, we have to fight to get our lives back. I wish you all the best on your road to recovery, take good care and be kind to yourself my friend.
Had it for almost 4-5 month, still struggle a little. Archupuncture and exercises helped a lot
That floaty feeling walking outside drove me insane.. did you ever get dizzy getting off of a treadmill? Thanks for this
Hi there I’ve been Diagnosed VN three weeks now, believe me it’s so hard, it’s only when I put head on the pillow I feel ok, but as so I get up my head feels so feels so heavy, Maybe I suffer from migraines, form before, and this makes it worse. Of course the dizziness is there. Just can’t take this pain and my anxiety goes top of the roof.
I feel you man. My anxiety is tremendous. I’m a 33 year old man. I’ve never felt like this before. Such a feeling of terror. We will get through this. You will get through this. ❤️
Hope you get well soon this seems a new type of phenomenon I suppose after the mobile 0hone were made this is affecting all the people sorry such young boy with so much of life to live thanks for sharing your problems so others can benifit
Great Presentation this video and others similar are so helpful.
Great job 👍🏼
Thanks for the motivation. I'm 4 months in and feel better but have good and bad days too. I felt 90% better just a few weeks ago and had a setback. The problem was that I felt great for 3 weeks straight stopped VRT and then the weather trigerred me and I had a set back. I'm back doing it again. I also dont have a diagnosis but went right to a physio therapist from the start who assessed me with VN. I had my first phone ENT consult 2 weeks ago ( 3 mins in total) and he discounted VN without ever seeing me or hearing my symptoms and the PT report. Anyways I am booked for VNG testing on Sept 10 and then audiology testing and from there will see what is going on. Did you have an MRI /CT scan? I haven't had any yet.
Des pet what did u get back
I get you nothing stops me the computer doesnt affect me any more
Joey Emanuel yeah that’s really good to hear. How have you been feeling?
Think you are so right,getting a "specialist" to categorise, or locate the exact condition, doesn't really help, working on the symptoms does.
True, I was so obsessed with knowing whether it was VN, VM, or Meineres and the Truth is not even specialist know because what sets them apart is how it progresses. Theres more overlap between the 3 than the book descriptions of the conditions make them sound like and they rarely come without other symptoms.
It's not the diagnosis that determines how it will progress or what you'll deal with long-term but it's how it progresses what determines the diagnosis if that makes sense.
So encouraging, thank you
I get dizzy when I try to sleep on my right side. In the video you say lean into it - or do the things that cause the symptoms. I feel scared to even try to sleep on my right side now. How did you get the courage to try that?
I’m not sure how I managed the courage to do it.. I couldn’t sleep in my left side, I’d get weird head sensations and feel dizzy. I just did it in progression. I mean, I’ve always eluded to like a figure skater spinning around and around and not getting dizzy. Took practice. So whatever made me dizzy, I just did more of hah. I can sleep on my left side now with no issues really
@@seanpangs7131 that’s good to hear. I’m just scared, I think. I like the figure skater analogy. It’s such a terrible feeling that I tend to avoid it. The symptoms sound similar. I appreciate the responses & video updates.
Thank you soooo much for all this. I have every symptoms you had still yet to be diagnosed with anytning 😭😭😭 my ent said vestibular migraine but without pain. But I feel more as if it's vestibular neuritis. My pcp blames anxiety. Er blames anxiety... like you said feeling these symptoms makes your anxiety go up Bc who wouldnt?! Especially worrying what ppl think of you. It's so hard to stand in stores without swaying left and right... and the lights kills me soo much... and it seems like the room is shimmering... and I lose balance. It's so tough with this. And I still have any answers. But this video helps me So much thank you.
Yeah I definitely went through all of that. It definitely took time, patient.. and for me a lot of exercises like practicing balancing. But all of that, pretty much has gone away. Also, I would say not to focus so much on what the particular diagnosis is.. they're all so similar, but focus on the recovery, cuz again, it also is similar
Super glad I found your videos. Now I don’t feel like I’m going nuts anymore. That “I feel practically normal” line 😂, I totally can relate, but I’m at the completely not normal phase
Thank you for your videos! I’ve actually been waiting for an update I’m so glad to hear you are doing better. It gives the rest of us hope. I’ve been dealing with this for almost 2 yrs now. & I just want my life back! All my doctors have said something different as well. My anxiety has been through the roof. & this illness can take you to a dark place & it’s scary sometimes with little answers. I’m glad your you & the fb groups that’s such a big help. I get migraines so some days are just horrible. I’m currently doing VRT. But I’m definitely going to focus & be more consistent with that. I know you said you didn’t take meds but do you take any supplements?
Fav Ooo I think VRT helped me so much to where I am today. I take tumeric, fish oil, magnesium, l Lysiene, co q10. I’ve experimented with many throughout the journey but these are the ones I’ve stuck with
Sean Pangs would you get headaches/migraines also?
Fav Ooo I used to, really bad, but not so much now a days.. it just kinda went away
That’s great! I feel like that’s still one of my worst symptoms. & the brain fog/derealization. Besides all the other symptoms.
@@aliyaaahhhlps ah i get them too.. 😒 and the worst part is that people dobt realise how hard is this, they think you look normal but inside its just a mess... well hopefully we vestibular warriors will feel better soon x
The black and white pattern is kind of similar to the Dai theory! I was signed up to fly to another state for a trial of this (a chamber created with the black and white lines, spinning in the chamber) and EMS therapy too, but it was cancelled due to covid, so I'm excited to try this at home!
Sarah Pont that’s really interesting.. give an update if you ever try it. All the best to you :)
Hi Sean, thank you so much for your videos. For the first time I feel like I’m not going crazy. I wanted to ask you about going to the gym. I’m still having ocasional moments of dizziness but it comes in waves. Been dealing with this for 9 weeks. I want to ask you about resuming exercise, were you able to strength train or did you have to modify what you would normally do? I’m itching to get back to some routine and i feel like exercise will help my mental state but I’m also scared. Thanks again
Thank you Sean!!!👍👍👍👍
Hi Sean I saw you comment in Vestibular Hope saying you would take a low dose of klonopin for a time during your recovery. I am currently 18 months and I still have debilitating 24/7 symptoms. I do VRT 3 times a day. I'm wondering how often you took klonopin?
Can you please make a video of your VRT...I mean all that you did or suggest some videos that you followed
Amna Masood I can, but honestly, over time, I followed the basic vestibular rehabilitation videos that you find on UA-cam. Once I had a solid foundation, I started to just create my own that I struggled with. If I struggled with walking diagonally, I’d walk diagonally etc.
Btw I was diagnose early as I went to Ear Throat Nose Doctor specialist in Vestibular issue. She helped me a lot with understanding the VN.
Sorry this is happening to you but on the brightside, glad the ENT was able to identity it early. All the best to you
Hi. So were you able to drive a car? I have this and 4 months into it, I can drive but I feel a little woozy when I get out of the car...like the car was moving. Also, I can ride motorcycles.
Thanks Sean! Can you possibly help share all your VRT? Thanks so much
Hi. Omg you made me feel so much better. I developed vestibular neuritis symptoms a week before Haloween. It was so sudden and for few days was so so severe. Its nearly 4 weeks with this illness. I been admitted twice to the hospital. All my tests were good, ct scan were fine.. all my symptoms, like you mentioned bouncy vision and floating sensation. And horrible anxiety 😔😔😔 so with my own research i definitely know its vestibular neuritis. Because there is no other logical explanation. So yes its nearly back to normal, but yes once my eyes closed i have zero balance and when i am in the bed and roll over feels so weird. Its like sleeping on the cloud.. my eyes feels still jumpy when the room is dark.. so i am waiting for my physiotherapy here in Ireland. Yes and i keep leaning towards my weak side too! Doctors here seems don't really care about vestibular neuritis at all, they prescribed cerc medication and thats all. But many thanks 😊 🙏 but yes mindfulness and positive thinking makes keep me going and appreciate my body and my soul! its amazing what our brain can learn!! But people like you makes our world better!! Yes it can be worst! Life is never easy! So i am so thankful for this illness!! I learned so much about myself! Thanks for sharing it 😊
I’m glad you’re doing much better and I’m glad you’ve narrowed down (with your research) what it could be. I felt the same way. Definitely listen to what your physio recommends but feel free to reach out if you’re not seeing improvement. All the best!
@@seanpangs7131 thanks 😊 i am going this Friday to a private clinic, so please God they will be able tk help!
So my updates are, i went to the private clinic, so one month later i am feeling a lot better. My physio therapist made a huge difference, got my balance back !! The best feeling to feel the ground again. But yet my vision is still shaky sometimes, however i am doing these eye tracking exercises too. They are brilliant! Again many thanks!!! Looking forward for your new video!
@@r.r8314 hey that’s awesome that you’re feeling better! Stay the course and keep up with the exercises, it’s what helped me. I’ll probably make a new video soon!
Hi Sean. Did you ever decompensate since your recovery?
Sean how did you control the anxiety? I find that it's a big part of the recovery.. I feel like anxiety stress caused this disorder.. Taxing the central nervous system.. Can't take meds..
Janice Ince I think just getting better and gaining more confidence helped with the anxiety. Again, just going out and challenging myself. It’s hard but it can be controlled. Breathing techniques..
any tips with nystagmus? Like Vision Exercises?
Hi, you mentioned shimmers on the side of your eyes. Are they flashes of lights that last a few seconds? I have been getting these light flickers mostly when I go into a darker place. Luckily they last seconds. Not sure what they are. Thank you
Germana Guarnaccia yeah that’s kinda it, more like shakes. I’m not sure why, I think it’s almost like my brain is using my eyes a lot for balance and when it gets dark it almost seems like it panics. It’s definitely better tho
I got my eyes checked out today because of the side eye shimmer. Doctor said its not a retina tear which I was happy about.
@@seanpangs7131 yes, exactly me. I have these weird eye shimmers. Specially in the dark room. But i applied warm teabag and actually really relaxing for your eyes.
Great video thank you for the update
Natasha Black no problem. All the best to you
@@seanpangs7131 are you sticking to a diet?
Natasha Black nothing crazy.. smoothie morning, as much greens throughout the day + chicken. And then whatever else. In my acute stages (first few months) I was pretty strict with just healthy food
@@seanpangs7131 when did you start to feel like it was finally getting better rather then the up and down Rollercoaster of better then worse? Also did you get headaches with your symptoms?
Natasha Black Umm probably 5-6 months after onset did the recovery start versus feeling like shit all the time. I did get headaches yes, probably over a year and a half
Are you still on the Serc? Or did you stop? When did you stop it if you ever did? Thanks!
Hey there, I stopped maybe a month and a half in.. it's effectiveness wore off and it gave me stomach aches. it's been a journey but I'm pretty much back to normal now
Hey! Your videos have helped me so much so thank you. Quick question. I’m 11 months into VN improving but my lingering symptom is really bad head pressure, did you have this also? I’m worried that this is a symptom of vestibular migraine and not neuritis and with that you shouldn’t do VRT as it could make it worse (I do VRT) everyday, basically just wanted to see if you or anyone else had head presssure with VN and eventually got rid of it so that I know I’m on the right track to recovery and not hindering myself with the exercises. Long message sorry! But thanks for reading. Have a great day
Hey there.. I definitely had head pressure as well. I do get asked that quite a bit, but I’m not sure how I would’ve got rid of it, I feel it just kinda went away with time (no longer have it).
I'm in month 10 post acute phase of vestibular neuritis. I too have head pressure. The head pressure was intense and constant for about 6 months. It does lesson as time goes on. My understanding is that the head pressure is a stress response. I also ended up with a very tight neck. I am currently receiving neck mobilization therapy from a physiotherapist along with neck exercises. This has helped immensely with the neck tightness and head pressure. I also recently saw a neuro optometrist. She advised me that I have a weakness in my vestibular ocular reflex in my left eye. She gave me additional eye exercises as well as advised me to wear my glasses all of the time. This eye issue is common with vestibular neuritis. The good news is that the eye can be strengthened which should reduce or eliminate remaining symptoms. I also complete VRT exercises daily. I hope this helps answer your question. I have been told many times that recovery takes time, patience and perseverance.
Yo tomo theorato de magnesio me ayudo a mi niebla mental y presión en ma cabeza
Inspiring
Hi Sean, can you gives us another update now in late 2022?
Hey, I'm doing very good, just been busy doing normal stuff. Keep staying active, I hope to make a video in 2023.. but overall things are good and Normal on my end
@@seanpangs7131 would love to see an updated video in 2023
Yeah I'd love to see an update also you were an inspiration to me during the dark days. I'm living normal also now seems like the better I get the longer it takes for the smaller symptoms to go away
Pls help me am suffering vestibular disorder my inner ear got week so often vertigo and imbalance and leading very hard lifestyle and always at home can’t walk almost I reach out all doctors and they keep on send me eply maneuver but not helping much
Hi, how are you feel now?
Why this posted 2 times? I don't know! Sorry!
Where do you get the checkered paper?
Same
Thank you Sean! Im on my 4th month. Quick question: Did you ever got your ears clogged/ fullness feeling?
karlinhahf hmmm if I did it wasn’t very long. I do recall slight earfullness
Sean Pangs thank you! I do have it, and its been like that for 4 months now 🙈 it’s awful and bothers me a lot! I don’t think its Menieres because I have no hearing loss. Most likely VM.
@@karlinhahf do your ears ever itch? I've been going through this for 5 1/2 months now. Only been to ER and they told me I have labrynthitis. I have all these symptoms but my ears constantly itch like crazy!
@karlabarr - I am on month 7 of VN and I still have ear fullness and clogging, especially with changes in elevation. As a female, I've noticed these symptoms flare up more when approaching and at the beginning of my menstrual cycle.
@@laurenfieman9869 have you been tested for intracranial pressure?
Hey im sad because no one knows what im talking about or dont believe me but did you ever see words moving bouncing or shaking on a computer screen im suffering from vestibular neuritis as well and if you can reply i will be so happy thank tou for making this video.
Hey I experienced that, look up eye gaze stabilization exercises to help with that. All the best
Did you ever experience a falling feeling in your head? Like a quick drop
Yes I did, maybe throughout when it was bad.. not anymore tho
Hi Sean. Did you have neck stiffness at any point during your journey?
Germana Guarnaccia yes I did
Hi Sean,
Im a month and a half into this and my head feels heavy specially when i move it up and down or tilt it and then i feel fainty. Did you suffer from that too?
hmm, if it did, it was for a very short stint. It wasn't that stood out to me too big, sorry
@@seanpangs7131 thanks Sean, no problem..it has eased off a little this week
Hi Fatima. I had this too. It eased when i stress less and get some sleep. Also the head pressure lessened over time
@@annam5057 thank you so much for replying. It does get better yes.
I had a stroke, and that is what is stopping me
Hlo sir I am suffering from same problem is there any need to decrease the quantity of salt and sugar intake or can I continue with 2 cup of tea daily
Anxiety and panic attact is the main problem to me im struggle to face it properly that cause my body become weak and increase my heart rate and feel dizzy.
ean ean yeah I battled that for a long time and I feel it makes it worse. Build your confidence and it helps. It’s all a big cycle
Yes. Deep down I believe this is a nervous system disorder and yes anxiety/panic can cause this.
I recommend you start praying a lot. God is the only true healer of the mind. Getting over anxiety should be on of the main goals during the battle. I'm planning to make a video about this after I fully recover..
Hi sean really would like to know that dis your nystagmus go away by itself?
No I had to do eye exercises, mainly gaze stabilization
@@seanpangs7131 ok will do them too. Thanks for the reply.
Did you have the symptoms of being on a rocking boat
I do and its a stuggle especially the lonely feeling with your symptoms that no one seem to understanding not even Dr
@@Nawel86 are u taking meds
Megan rosseanne do u still have that
Do you feel like you are living your life or do you feel like your life is on hold while you recover?
robmitc7 id day the first year my life is on hold.. living life now
Sorry.. id day the first year of my life was on hold for sure, but I’m living my life now
Bro can you share your date of birth time of birth and place.
I found few people with same planetary position including me dealing with this.
This is actually to search for out of body experiences in birth charts.
Biharat how so
Would love to know more about this
How are uhh now