Carla's Success Story: rapid recovery from vestibular neuritis, PPPD & endometriosis symptoms
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- Опубліковано 30 чер 2024
- This is the course that Carla took to recover thesteadycoach.com/free-course and this is the membership community where she got support: community.thesteadycoach.com
It is a joy to share with you this success story from Carla, whose vestibular neuritis occurred in mid 2022 and rapidly resulted in debilitating PPPD. It took a few months of increasingly debilitating symptoms, but fortunately Carla found this UA-cam channel in October of 2022 and was fully recovered in the beginning of 2023. Watch or listen to learn more about her experience and her story, the stress that led to symptoms, and how she recovered.
These are the Kristin Neff meditations Carla mentioned doing, especially the Soften, soothe, allow one.
self-compassion.org/guided-se...
These are in Spanish by a mindfulness based therapist:
cultivarlamente.com/meditacio...
Carla's VRT therapist:
www.physinmotion.com/ (located in Pontevedra, Galicia region of Spain)
00:00:00 Intro
00:01:44 Carla is 100% recovered!
00:02:33 About Carla
00:03:40 yes, “calm” people can get chronic dizziness too
00:07:22 Carla describes the stress in her life right before her symptoms & her bout of neuritis
00:13:07 She fully recovered from neuritis and went on vacation, but then symptoms returned
00:15:00 life at the worst of the symptoms- visual symptoms, panic attacks, derealization, anxiety, trampoline walking - 24/7
00:20:15 The doctors dismissed her & could not help; Facebook groups scared her even more
00:22:26 She found a wonderful VRT therapist who told her she could recover, and did 6 weeks of VRT
00:26:04 her thoughts on using an SSRI briefly; she was able to get off it without difficulty
00:30:14 The central role that psychotherapy played in her recovery; making space for feeling emotions
00:35:27 Self compassion and permanent changes in approach to self care
00:38:38 The importance of participating more in triggering activities & how to deal with fear
00:43:40 it’s never too late to recover & the importance of connection & correct education
00:47:29 this approach ALSO resolved Carla’s endometriosis symptoms
00:50:20 the choice felt like one between sitting with uncomfortable feelings or being stuck in symptoms
00:53:54 How important it is not to fear symptoms or symptoms returning
00:57:00 What Carla’s self care looks like now
01:02:51 Why Carla is thankful the dizziness happened to her
01:07:08 Carla’s advice to people going through chronic dizziness
01:10:10 How Carla used emotional expression to get better; how she is working with grief DISCLAIMER: Please note that Yonit Arthur, The Steady Coach and any of our other guests are not acting as an audiologist nor offering audiology or medical services services or advice on any public videos or on any other content. This channel provides wellness education and personal opinion only, and are not meant to be a substitute for medical or mental health instruction or intervention. Use any tools discussed at your own risk. - Розваги
What an incredible girl! So much insight and so much good advice. She really gets it! The part about self compassion, and not doing self care just to get better, which is another stressor, really gave me an a-ha moment. I have doing all my exercises and coping skills with one intention-get rid of my symptoms. Again, I am putting more pressure on myself. What a sneaky trap. This is really a life lesson. Your symptoms is your body crying for attention. Give your body the time and care it needs not because of the symptoms, but because it needs you. Be with yourself. Listen. Feel. Give yourself the space you need. SLOW down. Try to incorporate things into your life that you enjoy, CALMLY. I have been doing it all wrong. I am 14 years into this. During this time I just tried to get on with life, no matter how debilitating it was. I relied on family to drive or walk with me, but I would push myself to go out. And while I was out, I would just rush what I was doing so I could go back home or to a car, wherever I felt safe. I thought I was helping myself. Yes, pushing yourself to some degree is good, but pushing yourself while not understanding your bodies needs is not helpful. It has the opposite effect. I thought I was doing the right thing by not letting this "dizziness" beat me. I thought by ignoring the symptoms, my body would realize I wasn't afraid of them and calm down, and the symptoms would go away. I would notice the symptoms, I just wouldn't let them run my life. So I would just swallow them down. So here I am, an example of some one living with a condition because she thought she was stronger than they were. Well, let me tell you. This last year has been the hardest in my life, which I didn't think was possible. And if you are going through any chronic dizzy type situation, you know what I mean. I have ended up with a full blown nervous breakdown. The pit you don't want to fall into. The pit, in hindsight, I was afraid I would fall into if I stopped resisting. I really felt I would fall into despair if I "gave in". Well, here I am anyways. But everything happens for a reason. Had I not had a nervous breakdown, I would probably not have found this channel. You have to understand, I have been going at this for a long time. There wasn't any real information out there about dizziness or VRT, or UA-cam. I am one of those undiagnosed people. All tests done, all clean, no recommendations. I would mention the word vestibular and doctors would think I was outsmarting them. They actually made me feel that they had missed something, that I had some damage they couldn't find, and this was me for the rest of my life. Why else could I feel this bad and them feel so indifferent. And believe me, I tried everything. Eight years of my life was waiting for tests. I pushed for these. It was like pulling teeth. And every test was approached with hope, only to be met with despair. At this point I decided to step back and just live with this the best I could. I stopped everything, even all other therapies. They only gave me minimal relief for a very short time, and they were expensive. And with no diagnoses, I was out of ideas. So, here I am, recovering from a breakdown, which somehow led me to your channel while looking for ways to calm the nervous system, and I start reading things like PPPD and brain errors. I was literally shocked and elated. There is hope!
Yes, Bee, exactly! There is hope! You are not alone!
Another great interview Dr. Yonit. Such a sweet young lady. Thank you for all you do.
So happy for you Carla ❤
Thank you so much for sharing stories like these . Been struggling with MDDS diagnoses /triple PD symptoms as well now for months and every success story gives me so much insight and hope . Carla’s story really makes so much sense and shows the stress buildup that many people like me don’t realize we have until the dizziness! Thank you again for sharing these stories and being that person of hope for so many .
You're very welcome, Gabrielle! There is hope!
Wow, needed this today. Today has been a very tough one for me. PPPD now for 4 months with many “ups & down”. Identical story as this young women. Visually not quite right, swaying, disconnected from my environment, ext.
I loved the Facebook part, yes! I would read that “I have had PPPD for years” and the DREAD I would feel… awful. After watching this video… I KNOW I will recover & I know I can get past this and put this behind me so I can be on a recovery episode with Dr. Yo. Lol. Thank you so much 🙏🏽
Yes! I can't wait for that episode too, Austin!
I can’t get over the wisdom this young woman possesses and was able to articulate. I absolutely loved hearing from her and will be sharing with others because her words were so applicable to many people in dealing with emotions! Simply amazing and hope giving too! Thank you Dr. for all you do! I’m off to find more of your videos!
Carla is such a special person and I am so, so happy she agreed to do this interview. Thank you, Tracy!
It's funny that we had the symptoms at the same time! It's like living the same life in different places! Thanks Carla for sharing your story! Hope everything will go well for you. I hope I will get to your 100% recovery as well! and thanks Dr.Yonit!
YOU WILL!
I am very grateful for you both. So much of what you experienced I am going through now. Xx
We will see you on the other side as well!!
What a lovely and inspiring young woman. She is so insightful.
Right??? Thank you, Moreen! Lovely to see you!
I really saw myself in Carla's story, especially her childhood, and im happy that she has made a speedy recovery. I had a very codependent relationship with my father. I was terrified of him and was scared to express my needs or wants as a child, and as a consequence of that relationship, people have walked all over me my whole life. These patterns eventually led to having addictions and later labrinthitis and fibromyalgia. Thank you Dr Yo for your content it gives me so much hope for the future. ❤
"forcing yourself to take rest" is one more thing to add to your/my 'to-do' list which explains why that won't work...I have found the it is necessary to 'embrace' vs accept my condition b/c I can accept it and still resent it..vs embracing it which means I welcome it and in doing so it becomes less of an issue, I stop adjusting to it and just live as if it didn't exist and it fades into the background decreasing the 'hold' it has on me and eventually I will be free.
This is a really good point- there is a balance between honoring what your body is telling you and believing that there is something wrong with you that requires rest.
@TheSteadyCoach Thanks...when I finally realized that I had to embrace it, I began to improve and this was a year or more prior to a diagnosis of vestibular migraine. As I researched my symptoms and the causes I concluded I had vm about a year before I was finally 'believed' (for want of a better word) and was given a root cause evaluation to rule out brain tumors etc (b/c I am a cancer survivor). I never thought there was anything seriously wrong with me physically b/c I'd experienced BPPV episodically over a period of 20 years..I discovered back then, that the best thing I could do when I had BPPV episodes was to embrace it and keep moving. After the first few steps which were difficult b/c of rotational vertigo, the vertigo stopped until I moved again. These episodes at worst lasted a day and a half. It's possible I had extra crystals in my inner ear. I say that b/c I had chronic ear infections as a child and an adult and the BPPV episodes ALWAYS began when I woke up and moved my head...I'd start feeling the spinning sensation, like I was on a merry-go-round and felt like I'd be thrown of of it..when I sat up and got out of bed I had to hold the walls (well, I felt like I needed to) for the first few steps and I'd be ok until stopped and started moving again..a figurative case of 'wash, rinse, repeat'... When that all went away I thought I was 'done' with that phase of my life...only to move on to something worse in 2020...Dr. Michael Teixido, a neuro-otologist who has videos on youtube and who is considered a world expert on migraine, explained the progression of vestibular migraine amd when I heard his explanation I realized I had vm my whole life b/c my symptoms which began in childhood and continued into adult-hood were classis...that period of time included a 9 year period of traditional migraine that began in May 1981....the first headache was so excruciating, it lasted 9 days and I've never forgotten that date b/c the episode was horrific..I lived on Sprite and Pepto Bismol those nine days..after work I went home, went to sleep in a dark room where I could get some relief until the next morning .... Thankfully at that point, when I realized I'd had classic vm symptoms from child-hood, I got an appt with an ENT who was interested in and familiar with vestibular migraine and vestibular issues and he's the one who 'saved the day' in my book. A referral to a neurologist and working with the neuro nurse practitioner who had the time and expertise to deal with what I was experiencing was integral to finding out that anxiety played a major role in the continuation and exacerbation of my symptoms. It was a relief to be finally understood and to begin to get some relief from the most difficult of my current vm symptoms (roaring tinnitus and engine noises in my head; rocking, vibrations, bobbing, and walking on a trampoline sensations in my body, and balance issues when walking). Some days it was hard to keep 'living' esp on the days that were a 10, which were horrific. Now my days are on the 1-5 end of the scale. I have discovered this past month when we went on a car trip that was 12 hours in the car there and 12 hours back home that my 3 worst symptoms were ramped up like they were on steroids when we stopped for fuel or food..... Which, made me wonder about MdDS...there is some crossover in symptoms based on what I've read but I don't meet the diagnostic criteria for MdDS. Passive motion, ie when I'm in my car driving or riding all my symptoms go away. Driving is not difficult for me at all as it is for many with MdDs. I found your channel looking for ways to deal with the anxiety component of this NCD. I have realized that I've had VM since childhood AND that I've been chronically anxious my whole life. I think addressing the anxiety will help me get to the finish line. btw, I'm 73 and the current leg of my journey began when I was 70. I have wondered if I had covid in late Feb 2020 when this all started and b/c I'd had a virus b/c many long haulers have some of the same symptoms I currently have..when I had covid this year, in Feb 2023 my symptoms ramped up from 5 or less to a lot of 9 and 10 days. Another thing in common is that in Feb 2020 and Feb 2023 after being ill I lost my appetite and lost 20 pounds. Between those 2 times, I was on Ajovy for 4 months for VM which caused me to gain 10 pounds, which I lost without trying after I got covid (due to loss of appetite) ...and btw..after being on Ajovy, my IBS, which is a feature of the classic progression of VM, and in actuality is not IBS but abdominal migraine, disappeared and continued to be 'gone' after the Ajovy was discontinued. For the first time in my life the bloating, constipation, and abdominal pain, which had been diagnosed as diverticulitis b/c I had 3 pockets, found on a work-up when I had my first episode, are gone. I have been able to eat fiber and rebuild my gut microbiome. I want to tell everybody about my journey b/c it was so long and I know many people suffer similarly...I sum this journey up like this: This journey, the VM journey, is like traveling without a map, not knowing where you're supposed to go let alone how to get there, and along the way finding pieces of a map that when put together show you the next step and step by step you eventually get to the right place.
Hi Dr Yo!
After watching your live session today, I watched Carla’s story and her recovery is amazing nice advice and suggestions!
Watching videos like these is really giving me the motivation to move forward and hopefully heal soon completely from dizziness!
Thank you so much for this interview,really appreciate your efforts Dr.Yo!
You're very welcome! I am so glad that this resonated with you!
Thank you for sharing -I need hope
I believe in you, Kelly!
Oh Carla so happy for you!
I am so thankful that this “accidentally” 😉 popped up on my UA-cam feed. There are no coincidences!❤
This has been the most encouraging thing I’ve listened to since the “surprise hiccup “ of Vestibular Neuritis. So much insight and wisdom.
Thank you, Carla and Dr.
Stay blessed!❤
You're very welcome, Jan! ❤
Congratulations 🎊 so happy for you.
Seems the common theme is the dismissive medical world😢
I was told today by an audiologist when discussing my tinnitus that in our part of Australia there is only ONE counsellor who helps people with that condition! We also discussed the ED doctors reaction to me when I presented last month thinking i was Crazy and scoffing at me when I mentioned the nervous systems role in all of this.
Thankyou both ❤
There are sadly very few people familiar with PPPD. However there are many therapists trained in chronic pain treatment and they can help!! They just need training in the vestibular side of things and I’m working on getting in front of them! I am going to be presenting to SIRPA in the UK in a few months!
I had a doctor once told me it was just all in my head, And i believed him at one point.
So awful. The gaslighting people go through is shocking.
It’s been 10 yrs for me, chronic dizziness. It’s incredibly challenging. Years of therapies (VRT), supplements, providers, lots of diagnoses. It’s exhausting and I pray I can heal one day 🙏 I did your free course, thank you! Do you ever other suggestions that may help? Thank you so much.
Deanna, I know it's been a long and exhausting journey. Once people have done the course, they have options. I think the most helpful option is to get some outside help if you're still struggling- not from a VRT therapist, but a mindbody therapist or another therapist who uses experiential modalities of therapy. In the course, I gave lots of suggestions about the types of therapies and therapists who might be helpful. I also have coaching options but I am not currently taking on new one on one clients.
i feel the same way, even the facebook group did not help. I am so grateful of Carlas story. I had no help,not even my doctor (gp) I wont even say how much I spent, Hyperbaric oxygen chamber 172.00 stopped after 3 . Accupuncture stopped after 2 treatments. I realized that every one wanted my money. only 2 women that saw something else. one was a physiotherapist and another was my eye docter.l keep you posted.
You are so not alone there, Mirella. That is one big reason I put all this info out there for free. People have spent thousands by the time they find me.
@@TheSteadyCoach i would like to say thank you. You dont k ow how your videos have helped me. I dont mean to bash anybody. I just dont understand why i was not refferred to à proper neuro. Finally going to go snd see one on the 6 of june.been a long time. I dont drive amd have fallen too. I do use nordic walking sticks now.
Dr. Yonit. I have been with the symptoms of pppd for 6 months. In these last 15 days I am improving but I still have the visual sensation that everything bounces with me when I walk.
Hi Oscar! This is a common symptom. I talk more on this topic in this video ua-cam.com/video/6Jh8uBVm22w/v-deo.html
Omg, I am just now thinking I’m starting to feel normal again but still not 100% I’ve been dealing with this since June 17 2022.
You can do this!
Hi Carla! I am from Spain and I would love to talk to you!!
Experiencing the same for a year and a half😢
Hi Andrea, send us an email and we will forward it to Carla info@thesteadycoach.com
Bonsoir
Quelle leçon ! Merci à vous deux.Dommage que le corps médical ne soit pas aussi ouvert d'esprit !
Auriez vous des noms de praticiens en France qui aient la même approche que vous au niveau du mdds ?
Je vous remercie par avance et bravo pour votre humanité😊.😊😊 ❤❤
Bonjour Magalie, merci pour votre gentil commentaire. Je suis heureuse que mes vidéos vous aient été utiles ! Geneviève Choussy www.hypnotherapeute-choussy.fr/ pourra peut-être vous aider. Nous avons d'autres francophones ici dans la communauté ! Tu n'es pas seul.
@@TheSteadyCoach merci beaucoup pour votre retour et pour le contact en France.
Et encore bravo pour votre travail 👍😊❤
I’ve bean dealing with all this symptoms for over then 1,5 year and I’m not sure why is my VNG testing showing 26% dysfunction and my ENT thinks the results are all normal, no hydrops, vestibular migraines etc. I definitely have PPPD. Could this all disturb vestibular system, do something to vestibular nerve or my ENT doesn’t have a clue? Thanks dr. Yo!
Are u ok now