Shopping With Tourettes Syndrome || Disabilities In Society

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  • Опубліковано 24 кві 2022
  • hi everybody!
    i filmed this a couple weeks ago showing what its like being in public when my tics are more severe. i had been having a more calm spell so this was a pretty vocal day for me compared to the past few weeks. i just wanted to show how it can take a toll on my mindset, i manage pretty well but its difficult having attention drawn to myself that i have no control over, i'd rather just shop in peace!
    not every shopping trip is like this, some days i dont really have any issues and can go by unnoticed, but the severity of tourettes waxes and wanes.
    if you see someone in public with a visible difference, please try not to stare. smile at us, it makes me feel so accepted.
    hope you learnt something xx
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КОМЕНТАРІ • 598

  • @sk-gr6yv
    @sk-gr6yv 2 роки тому +1829

    "do you want me to shout with you" your mum is an actual angel omg

    • @Nico-rf1ov
      @Nico-rf1ov 2 роки тому +17

      She is aswell

    • @TattooedPink
      @TattooedPink 2 роки тому +20

      Aww I didn't gear that bit, her mums gorgeous ♡ such beautiful ladies

    • @masterroshi2158
      @masterroshi2158 2 роки тому +11

      She truly is the best mom no matter how bad things get moms always there with her love

    • @MysticSynergy
      @MysticSynergy 2 роки тому +4

      I think she said that in a past video too and it made Mr smile. My mom would never be this supportive.

    • @Nico-rf1ov
      @Nico-rf1ov 2 роки тому +1

      @@MysticSynergy no but i would 😉😂

  • @Julie-xg5iu
    @Julie-xg5iu 2 роки тому +873

    If I saw a person ticcing in public, I would only smile kindly at them. You never know what a person goes through, so the least we can do is show kindness ;) Btw I love how supportive your mom is

    • @flameepidemic4839
      @flameepidemic4839 2 роки тому +6

      Same! To all of this! If someone thinks rudely of something thats clearly hard/impossible to control or supress like fuck them i had someone in my class in highschool with a head turning eyebrow raise tic i knew he wasnt doing it on purpose but I forgot about tourettes till later and i assumed thats what it was (eventually his girlfriend told me in a normal conversation) idk if he had any other tics but i know he was self conscious about it and if i someone who didnt even think about tourettes can come to the conclusion its a medical problem he cant control idk why others cant do that yknow? Sorry i just hate others feel like they cant leave the house because of their tics

    • @masterroshi2158
      @masterroshi2158 2 роки тому +6

      I just wanted to say thank you for understanding having tics is very stressful on the body I don't have tourettes but do have autism and when I get excited I have tic that cause me to squeak witch I can hold back most time but I can't control motor tic were I will hit the left side of my head on the top of my shoulder and yes it's as painful as it sounds sometimes depending on how much I may not able to move as it causes a great deal of pain to my eyes and 80% results in some kind of a headache ranging from mildly to extreme depending on how many times I've hit my head

    • @mmeje650
      @mmeje650 2 роки тому +1

      i wish people were this nice to me

    • @emilynixon6706
      @emilynixon6706 Рік тому +1

      @@mmeje650 i would be

    • @Fennec574
      @Fennec574 3 місяці тому +2

      As someone with tics could u not- I would be scared…. Just ignore us pls 😭 that’s my opinion I mean don’t listen to me if u don’t want to like of u want smile at them. It just makes me feel like they’re looking and trying to not be rude by smiling-

  • @cherry-may1768
    @cherry-may1768 2 роки тому +739

    looks exhausting and you still manage to keep a smile! inspirational 🥰 you're mum offering to shout with you was so sweet ☺ can't imagine that the staring eyes makes it any better - keep your head up high!

    • @SuttonHobbyFarm
      @SuttonHobbyFarm 2 роки тому +9

      I loved when she said that too! 😍 Moms are the best!

    • @anapalacinka6953
      @anapalacinka6953 2 роки тому +7

      God it does look exhausting the hiccup one because there's a lot of contraction like you must be so sore afterwards 😣

    • @Fennec574
      @Fennec574 3 місяці тому +2

      As a person with tics sometimes I feel like I can’t relax- 😅

  • @raysofrosie
    @raysofrosie 2 роки тому +1304

    I hate the staring too. I have a complex tic where I wolf whistle, wink and point at people (mostly women) and I never feel it coming. I’ve stopped going out in public entirely cuz we haven’t found a good med combo yet and my tics are getting worse and I hate it. You make me feel almost normal so please please PLEASE don’t ever change or listen to any ridiculous people on the internet trying to bring you down. You give me strength and make me feel like I deserve a place in this world and I thank you deeply for that 🤍🤍

    • @UrgirlEzOG
      @UrgirlEzOG 2 роки тому +7

      How nice ❤️❤️ have a great day/night

    • @charlotteb2442
      @charlotteb2442 2 роки тому +10

      I’m so sorry you’re struggling with this so much. Sending you my love and really hope that you can find something that helps you the way you need it to. Please know that you have a place in this world and are so worthy with or without the tics❤️

    • @brillity_official4601
      @brillity_official4601 2 роки тому +7

      I am blind girl and she is my inspiration) And I found many talants in myself thanks to living in the dark!

    • @Safiyahalishah
      @Safiyahalishah 2 роки тому +16

      God damn that's a rough tic. The worst part is that I can easily see myself being uncomfortable if it was directed at me in public. This is a good reminder for me that not every inappropriate act is meant maliciously - or indeed is even within someone's control.

    • @ksusha_kaban
      @ksusha_kaban 2 роки тому +1

      You are normal. Just like person with diferent coloured eyes for example. Glow and dont care simple ppl

  • @rinwesley3092
    @rinwesley3092 2 роки тому +348

    Teddy is so precious, supporting mummy when she’s having a rough day.

  • @OinksworthTheThird
    @OinksworthTheThird 2 роки тому +391

    The thing I absolutely love about dogs, they don't judge.
    You're just their human that makes noises, twitches and loves them you know? I'm glad you have Teddy and Teddy has you :D
    Seems to be quite grounding for you that pupper

    • @whatgenderami
      @whatgenderami 2 роки тому +14

      SO TRUE.
      we didn’t intentionally plan it like this, but my family got our dog when my FND was particularly awful. i had a lot of involuntary movements in my body and they were so painful, but my dog always greeted (and still greets) me with a wagging tail regardless. even though she’s not a service dog, she has seemed to recognize ways to “interrupt” when some of my disabilities are interfering and it’s so cute how she interacts with me differently in those moments

    • @OinksworthTheThird
      @OinksworthTheThird 2 роки тому +10

      @@whatgenderami that's so amazing! They're just so in tune with us.
      My boy isn't trained as a service dog but when I'm having a panic attack or an episode with my borderline personality disorder he comes running over to me acting silly trying to make me laugh. But also when I have the panic attack or episode I disassociate and my body goes all limp and my breathing gets all shallow he licks my hands and face to try and bring me back around.
      Dogs are just the best and I'm so sorry for your bunny loss.
      I really hope you can get all your diagnoses and get the right help. You seem like such a bright and shiny person and it is so hard to see you struggle

    • @taylora7397
      @taylora7397 Рік тому +1

      they also reduce my tics so win win. very calming

  • @fia9845
    @fia9845 2 роки тому +175

    I think you're so strong for still going out in public even though you get anxious from people staring and judging. It takes alot of strength mentally and emotionally to defy the thought of "oh..I might just stay home, it's too embarrassing, what if people look at me weird" and such. Props to ya for doing this and educating people on the internet.

  • @lydiajomua8022
    @lydiajomua8022 2 роки тому +203

    I have breathing and facial tics and sometimes I swing my arms like I’m trying to hit something out of the air. Usually it only happens at home where I don’t have to repress them anymore but I had a moment the other day when I was in public where I just couldn’t hold it in anymore and I couldn’t leave. I luckily had a fidget ring in my purse and that helped a little bit but my faces couldn’t be stopped and I got stared at by this woman. I apologized for disrupting her day and told her it doesn’t usually happen in public and she said well maybe you should just stay home next time then. I was appalled. I cried the whole way home. It was more embarrassing than the tics.

    • @annab.3952
      @annab.3952 2 роки тому +57

      Thats unbeliveable! Especially when you appologised for something you cant even control 🙁

    • @opheliawoods
      @opheliawoods 2 роки тому +55

      That lady is plain mean and disrespectful. Instead of her asking someone to stay at home she should learn to shut her mouth entirely if there isnt anything better to say jeez.
      I hope you wont need to meet those kind of people and you could have more understanding kind people around you.

    • @electricwolfy6567
      @electricwolfy6567 2 роки тому +45

      She was disrupting her own day by choosing not to mind her own business and be a decent human being. She should stay home if she’s too sensitive to handle the fact that not everything can be what she wants it to be. If something like that effects random strangers, it’s their problem.

    • @MeoCulpa
      @MeoCulpa 2 роки тому +25

      As politely as possible, to hell with that woman. She does not know what it’s like to be you and at times like this, I can only hope karma teaches her a lesson in humility and understanding others. She’s “lucky” to live life where problems can go away by sweeping them under rugs and locking them behind doors but the way she chooses to live her life is not the way you have to live yours. For all we know, her life may be full of valid miseries that she feels she can’t share with the world. Maybe not. Either way, we all deserve compassion, even if we’re ignorant buttheads like that woman. I pity that she feels so little for others.
      Please don’t be afraid to go out again. This is your world too.

    • @shellyoss8754
      @shellyoss8754 2 роки тому +6

      I'm so sorry that happened to you 🥺❤ that is incredibly unfair.
      You are a human being like anyone else, you deserve to be able to do whatever it is you put your mind to.
      That lady sounds incredibly ignorant.

  • @simcomark
    @simcomark 2 роки тому +56

    I couldn't help but smile everytime your glasses fell off your head onto your face 😎

  • @erykac6146
    @erykac6146 2 роки тому +51

    I love that your mom asked if you wanted her to shout with you 🥰 certain tics my fiance can get away with "copying" as it won't trigger them worse. And she'll always do it with me if it's getting bad because she knows it'll take as much attention off me specifically. We live in a very small town so there is definitely a lot of eyes on me when we go out. Thanks for sharing, we deserve to be seen in public too 🥰

  • @mrsspeechless86
    @mrsspeechless86 2 роки тому +62

    Once a woman behind me made a very loud noise, I got SO scared, so I obviously turned around to look what happened as a reflect. I then realised that she had tics/tourettes and I just gave her a smile. Afterwards I wondered if I reacted the "right" way, or if it was annoying to her that I turned around to look 🤷‍♀️😔

    • @sufferinsilence5817
      @sufferinsilence5817 2 роки тому +32

      I would say there's nothing wrong with your reaction. You were startled, looked around for what happened, found out it was a person with tourette's and you proceeded not to judge, stare, talk about them under your breath/to other people or anything of the sort. I mean yeah it's not nice when people turn to look at you all the time, but at the same time if the tics are sudden and take people by surprise then there's not really anything anyone can do, y'know? That's how I see it, at any rate.

    • @mrsspeechless86
      @mrsspeechless86 2 роки тому +8

      @@sufferinsilence5817 I would never judge people like that, not at all. I was just surprised/shocked, so hopefully she didn't mind 😊🤞

    • @sufferinsilence5817
      @sufferinsilence5817 2 роки тому +6

      @@mrsspeechless86 I think at some point, people with tourette's or something that otherwise "stands out" in public is pretty used to that, to be honest

    • @nocturnalrecluse1216
      @nocturnalrecluse1216 10 місяців тому

      You're fine.

    • @Idiot337
      @Idiot337 9 місяців тому +2

      You did a great job being kind

  • @ot9825
    @ot9825 2 роки тому +64

    I have tics too, and when I read the comments I don’t feel so alone! Thank You Evie for spreading so much awareness! You have made things easier for so many people ❤️

  • @Kaye09MNchick
    @Kaye09MNchick Рік тому +7

    As someone with invisible disabilities, thank you. I feel like videos like these help people without disabilities see how society is not build for people like us. Thank you for showing what even just a "simple" errand like shopping can look like for someone with a disability. I feel like we need to be more vocal about things like this. My family doesn't understand so when I say things like, "I need a shower, but I'm not sure I can take one" they don't understand that it's literally because my body has no energy to be able to do the task. So frustrating. I'm not some slob that can't take care of themselves...it's actually really difficult and takes so much energy. Prioritizing what needs to get done now is how I typically use my energy. But it's still a struggle.

  • @janeeden1004
    @janeeden1004 2 роки тому +51

    You're honestly such a sweetheart, I can't imagine how hard it is, sending love

  • @multiplekiwi3294
    @multiplekiwi3294 2 роки тому +51

    Unrelated to your tics, but I’ve never seen you with that hairstyle and it looks so cute on you! 💞 I might try it out for myself sometime

  • @Tom-vk6ij
    @Tom-vk6ij 2 роки тому +22

    I would proudly shop with you anytime! You have taught us all so much...recently I did see a young man with ticks - because of you, I smiled and had a quick conversation with him and it was so rewarding to see the gratefulness in his eyes...I want you to know, you make a difference and touch people!

  • @wintermourning
    @wintermourning 2 роки тому +6

    Evie, I just adore you. I've been watching you since I was pregnant and my son turns 2 this year.
    Idk why but lately your long-form videos like this (I mean as opposed to the tiktoks bc I know you have much longer videos than this too) make me tear up almost every time I watch them! I can't even tell what kind of crying it is, happy or sad because I have so many feelings as I've watched your progress for better or worse over time, but I just feel so proud that I get to see you/be a part of your community. I also find myself actually worrying if you're doing okay mentally (well physically sometimes too!!) after I see videos like this where you're super active or having a really hard day. I've been through a lot in my life and I just can't believe the strength and positivity you exude at the young age you're at.
    I'm probably at least 10 years older than you and I just feel like I can't even compare to your peaceful and positive energy. Anyway I don't know that you'll ever even see this, but I just wanted to tell you how amazing I think you are, and how lucky I feel that you share as much with us as you do. It's not like we deserve or you owe us as much as you even do share, but I'm so glad you do.
    I just wanted to say thank you for somehow making life a little better for so many people. Even when I'm watching through a lump in my throat blinking back tears half the time, everything you put out leaves me feeling better than I did when I clicked it, and that's more than I can say about pretty much everything else on the internet right now.
    We don't deserve you, Evie 💕

  • @saraschneider6781
    @saraschneider6781 2 роки тому +170

    How long do your tics usually last when they're continuous like this? These seem really hard on your throat and body in general.😔 I hope you were able to relax with some hot tea and a cozy blanket after this.

    • @saraschneider6781
      @saraschneider6781 2 роки тому +1

      @Kevin 24/7 like this for a week? Ugh

    • @haveythewavey1936
      @haveythewavey1936 2 роки тому +14

      For me when my tics are pretty frequent like this it only lasts for 20 minutes to a couple hours but I've had it where my tics flare up for several hours/days. But again it all depends on the person, some people can get flare ups for way longer!

    • @Brainjoy01
      @Brainjoy01 2 роки тому +2

      She’s actively triggering tic attacks she’s said in a video she’s getting worse but she keeps filming and leaving the house when they start…there are ways to shorten attacks like resting, keeping to yourself or doing really focused activities and exercise. Tics can and will get worse if you are tired and stressed all the time

    • @finn_luvsu
      @finn_luvsu 2 роки тому

      i personally have on and off days with my tics, today i’m very vocal like she was in this video, my teachers don’t really understand but many people are sued to it so- but anyway, they can usually last from all morning to all day

  • @bethbailey6418
    @bethbailey6418 2 роки тому

    I get so exited when you post a video. It reminds me that I’m not alone in my condition and brightens my mood (especially on a bad tic day like today). You really bring joy to me and so many others. Thank you.

  • @kittyassassin
    @kittyassassin 2 роки тому +3

    *I have mild-severe Tourettes*
    And the staring and judgemental looks make me feel so self concious and makes my tics more active which makes people stare more. You are so brave and give me the strength to go out in public even on my worst days. Bless your kind heart and all the love you have for the world. You are such an inspiration and I hope you continue to share your experiences and to help educate people on our disability further into the future. MUCH LOVE xxxx also ps. Teddy is such a darling!!

  • @lavenderblood4390
    @lavenderblood4390 2 роки тому +6

    your mom is so understanding and sweet about it. I have Tourette’s syndrome and on days where it’s very vocal I get a lot of weird stares from people. My dad gets mad at me because I have coprolalia and he doesn’t quite understand how tics work so he thinks that I can control what I say when I tic.

  • @kaiden104
    @kaiden104 2 роки тому +1

    I love how positive you stay throughout everything you are going through. You are such a huge inspiration to me! 😊❤

  • @dr.thomasmaximilianhalbing5086
    @dr.thomasmaximilianhalbing5086 2 роки тому

    I am overwhelmed by your videos. The way how you manage your disease, with some beautiful support in background, is amazing and that unfiltered view of daily life with an invisible disability is so important to see. Especially because you educate so many people like me with the PANDAS and Tourette disease. Well, I think there are some false role models in society today - in my eyes, you and that channel have so much more value than any football player or Rockstar. Thank you!

  • @nonabonn
    @nonabonn 2 роки тому +2

    it's lovely to see your mum be so supportive! She's right, whenever people stare it says way more about them than it does about the person they're staring at

  • @oliviamilitello5752
    @oliviamilitello5752 2 роки тому

    I’m so sorry that going out in public is hard. I can relate in a sense. I have very bad anxiety and panic attacks and I’m terrified of people hiding me. I know it’s a completely different condition, and I also know the pain of shame and fear when having to go out in public. You’re such an inspiration to me and so many others.

  • @geniaadvincula2705
    @geniaadvincula2705 2 роки тому +2

    Everyone is a freaking angel in her household, her mom and family, her friends, her dog and herself!!
    Her videos is so beautiful and sometimes sad to watch.. But- I love every bit of it..

  • @BeautyInTheMagic
    @BeautyInTheMagic 2 роки тому +12

    I don’t have Tourette’s, but I do have really rough anxiety tics. I’ll have periods where they’re not really existent, and others where I can feel my brain going haywire. I know it’s not the same in the slightest, but I can completely sympathize and understand them getting worse in certain conditions (mine usually get worse in temperature changes, when my anxiety is high, or when I’m stressed.) I really enjoy you make real world content. It makes me feel less alone when I’m going through a rough patch. ❤️

    • @sukatidi
      @sukatidi Рік тому

      same here, started getting them about a year and a half ago, was really weirded out by it at first, so far (apart from one person) no one's said anything to me, i just do weird facial expressions especially with my eyebrows and weird long or fast blinks, sometimes leg jerks but those might just be spasms. hopefully it doesnt get any worse! if it does, oh well ill have to live with it/get used to it. im really proud of her for how far she's come and i appreciate the effort she puts into her videos and into informing us about the different symptoms etc she goes through

  • @alisongandee8230
    @alisongandee8230 2 роки тому

    My so likes your videos. They encourage him to be who he is and not judge himself because of his tics. Thank you for what you do. We love you.

  • @misteral1083
    @misteral1083 2 роки тому +1

    Brings back memories of the supermarket trip from "John's Not Mad". That was a fair while back, when people in general had no idea about Tourette's. How to say my next bit correctly....his mother had great difficulty figuring out how to navigate the his condition and the situation.
    Your mother absolutely leads with her heart, as do you. Faith in humanity restored. Once again.
    Thinking about John, and seeing the moment when someone recognised you, it reminded me again of what an impact your videos have. There will be so many more people now who would recognise tics as a possible symptom of Tourettes, understand better and stare less.
    Briefly, and I swear this is not a humblebrag but instead an example. In the compound where I live there is a guy who shouts/screams somewhat regularly. I never saw him, only ever heard him. I thought it was odd, as did my wife. At some point she saw him going into the building and realised that he has some kind of condition which compels him to shout when entering/exiting the building. Might be in the area of Tourettes or might be OCD. But once she told me that, it completely changed the way I internally react to his shouting. There's no friction now, no "does he HAVE to do that?" because of course, now I know the answer is "Yes. He does."
    So awareness of this really does make a real difference. Thank you, as always, for sharing your experience and your incredibly positive outlook.

  • @Ash-animal-addict
    @Ash-animal-addict 2 роки тому +1

    You are so strong and brave. Your family is so supportive. I feel in today's age, people should be used to others being different. Tourette's is out there and needs to be understood. Thank you for bringing knowledge to everyone. I love your videos! 💖

  • @MonkeyQueen39
    @MonkeyQueen39 2 роки тому

    Dogs are just amazing...I am glad to see you have one that cares for you so much and doesn't even leave you when you are moving so much..As well as your mom...I can't say that enough..she is so special.

  • @zannaxz
    @zannaxz 2 роки тому +18

    thank you for posting your experience and helping us understand of how it is being in public with tourettes! your channel is so useful for education on tourettes for me, and many others. ❤

  • @josiefeldmann1835
    @josiefeldmann1835 Рік тому

    Your mom's comment was so sweet! Sending positive thoughts

  • @nicholasashley2172
    @nicholasashley2172 Рік тому +2

    The vast majority of people know it is something you have no control over so they won’t think bad of you. I like your mum offering to shout with you lol that was very sweet of her

  • @aperson7648
    @aperson7648 2 роки тому +1

    It’s cute seeing your dog chill around you when you tic. My dog used to run away but this one time I was having a tic where I would hit my chest and I was getting it a lot that day and she kept sitting on me so I couldn’t hit myself. It was unusual for her to stay on my lap without running off to get a toy or something but she was just calmly sitting, it was a very sweet moment. Since then she’s been a lot calmer around the tics. I find it interesting that dogs can kinda tell when you’re not doing ok and try to help, I love them :)

  • @bill4632
    @bill4632 2 роки тому

    Bless you Evie. Love your personality. You are amazing. Your mom & Teddy seem really sweet. Thank you for sharing how difficult it can be.

  • @TheGeekMonster
    @TheGeekMonster Рік тому

    I can't imagine how exhausting this must be for you. I love your channel, and how educational it's been for me personally. Keep your chin up! You're beautiful, bright, sweet, and fun!

  • @MsLoma1212
    @MsLoma1212 2 роки тому

    You are so strong, girl! Hope you get all your diagnosis soon and the process of healing will start🙏🤍

  • @reginaheck5720
    @reginaheck5720 2 роки тому

    Hello! You are a beautiful person inside and out. Anyone who has the pleasure to be in your presence is very blessed. Your mom is also a beautiful person ❤️ Really admire the two of you.

  • @bored._.wilder9949
    @bored._.wilder9949 2 роки тому +2

    I just love how your mom offered to yell with u like that the sweetest thing ever🥺💙

  • @gennamang9280
    @gennamang9280 2 роки тому +5

    I really love this vlog style video, seeing some of what it's really like "out in the world" for you. I have disabilities too and really struggle in public, your videos always bring me some hope and a smile.

  • @luna_moth_mars
    @luna_moth_mars 2 роки тому +3

    Man this looks so frustrating, I'm sorry that people don't always understand that you can't control it or that they stare at you funny. You're an amazing person and I very much look up to how strong you are, as a chronically ill person.

  • @crystalwigglesworth4525
    @crystalwigglesworth4525 2 роки тому

    Evie, you see an amazing human. Your. Courage and strength ste comendibie. Thank you got allowing us to see your vulnerability..although it appears that it upsets you because people stare or are scared and run away, you continue to do life out loud. Thank you for allowing facebook to be your platform to educate people. You are a light in this darkened world.

  • @CrazyDuckie94
    @CrazyDuckie94 2 роки тому

    Your smile after your glasses fell down just brightened my day

  • @davidlester7066
    @davidlester7066 2 роки тому +37

    Evie you are such a strong character and stepping out in a every day routine and living with tourettes with people unaware is a inspiration to me with your character shining through and been a fairly new sub i had no hesitation voting for your national award because your not only educating me you stand out as a person that has inspired me with your many fine qualities you'll go far in life .Evie your a star and thank you for making me more aware of Tourette's and how you cope daily.Evie 100%

  • @1969Grizzly
    @1969Grizzly 2 роки тому +3

    Stay strong beautiful! Sending love and hugs from Saskatoon, Canada.
    You are so brave to share this to the world. A true inspiration to everyone!

  • @nobbystyles4807
    @nobbystyles4807 2 роки тому

    youre doing a great service to people please keep doing it with your vids. its educating for all people. the more people see the more normalised it becomes and so we can accept each other. respect!!

  • @pink-dinosour4814
    @pink-dinosour4814 2 роки тому +1

    I would be terrified to go out in public if I had tics, Your so strong I would start crying- Your strong and really inspiring, continue doing what you do and stay positive

  • @jaetothemax8371
    @jaetothemax8371 2 роки тому +1

    “Do u want me to shout with you?” Ur mum is so precious😢

  • @liliana-kay
    @liliana-kay 2 роки тому

    i know what it’s like to be scared of the staring. It really sucks but your very strong, and brave, and a huge inspiration to me! Your so amazing and make me feel okay with my tics.

  • @hanskonings248
    @hanskonings248 2 роки тому +1

    It must be hard for you, when people stare at you but he , you still the lovely person. That does not change ❤. Greetings from the Netherlands

  • @lovejoylover3529
    @lovejoylover3529 Рік тому +1

    I could never do this, your so brave for going into public and not getting scared from being stared at.

  • @mrsspeechless86
    @mrsspeechless86 2 роки тому +23

    I just remembered that a friend I had many years ago had compulsive behaviour (is that what it's called in English 🤔) and she would space out and do things over and over again. One time at a festival, she was so embarrassed cause she had a really bad day. I ended up jumping up and down and waving my arms like crazy next to her, so people would stare at me instead 😅

    • @sukatidi
      @sukatidi Рік тому

      heavy case of OCD? had to repeat movements to calm down?

  • @animationsorcererh346
    @animationsorcererh346 2 роки тому +1

    love your vids!!! soo happy you posted!

  • @kessiagrace
    @kessiagrace 2 роки тому +12

    i’m really proud of you Evie 💗

  • @rickparkinmoto
    @rickparkinmoto 2 роки тому +1

    Having a tic attack in public must be frustrating, but hopefully the more people who see the effects of Tourettes, the more they will understand. I can't imagine the aches and pains you must get from your tics. Your personal strength and humour is incredible.

  • @garythomas4431
    @garythomas4431 5 місяців тому

    Thank you for this. My seven year old son has tourettes. This has been the first year. His tics began with throat noises and have now progressed to body jerks and swearing.
    His school teacher has been very helpful and understanding.
    He has been to a neurologist and had EEGs run. He is taking medication, which helped for a short period of time.
    Your video is helpful to we parents because of the variety of tics Nikolas has that come and go. Some even appear painful.
    Bless you on your journey.
    Gary T.

  • @ashlewismartin4339
    @ashlewismartin4339 2 роки тому +3

    1:04 smooth 2:02 smooth 2:12 smooth

  • @n35753
    @n35753 2 роки тому

    I wish I could show my son this video. He is so nervous going in public and people seeing his tics. He says his Tourette’s “makes me do weird movements that you shouldn’t do, like a little kid.” He doesn’t mind small twitches that people won’t notice, but he fights so hard to suppress bugger ones. He ends up with a massive headache. 😔 I keep telling him all about you and Ellie. I tell him that you both go out and live your lives. You don’t let your Tourette’s control your entire life. Thank you for being such an inspiration to younger kids with Tourette’s. ❤️

  • @mettehindhede1531
    @mettehindhede1531 2 роки тому

    I dont’t have a diagnose, but I am a paedagog in a pre-School. Sometimes there are children with diagnosises. I love that you make awareness of Tourettes. You all need that we understand your struggles and don’t judge!

  • @intheory9772
    @intheory9772 2 роки тому +4

    Honestly, I would be staring at you for your outfit. Your sense of colour and style is beyond bizarre, for someone of your age and the time we are currently living in, and in the truest fashion, a reflection of old world hippy lifestyle, but it is also one of the things that I truly adore about you. Fun times!🤍

  • @MrZiva82
    @MrZiva82 11 місяців тому

    Have to say, that glasses drop was pretty bad ass. Mighty brave thing being in public with it, you are an inspiration if I ever saw one

  • @ashlynn1652
    @ashlynn1652 2 роки тому +1

    I can't imagine the strength it takes to do this & I admire you so much for it🥰.

  • @nataliefoxmartin9764
    @nataliefoxmartin9764 2 роки тому

    Your dog at the end 😭😭😭😭😭😭😭 oh my goodness what a good dog. Said, “I love you Mama, it’s okay, I’m here.” Made me bawl. 💜💚

  • @jennysanimations4181
    @jennysanimations4181 2 роки тому

    Oh Evie I am so happy you uploaded, you always just make me so happy just by seeing you 🥰🥰🥰🥰

  • @YourCo-workerAlbedo
    @YourCo-workerAlbedo 2 роки тому

    Your fashion sense is actually impeccable. You look so goooood 😩

  • @dayswithangeline
    @dayswithangeline 2 роки тому +3

    Hi Evie! Ilysm, you inspire me sm, stay strong, I hope u're doing well!🥰

  • @michaelpagano7819
    @michaelpagano7819 2 роки тому +1

    It’s always great to see you post! 🤗🤗.

  • @nonyabiness4838
    @nonyabiness4838 2 роки тому +99

    A thought I had while watching... Does it make you more comfortable if someone recognizes you in public (as in they know your situation)? I feel like it would make me feel a bit more at ease... Just wondering. Hope you have a good day =)

    • @Amused_Comfort_Inc
      @Amused_Comfort_Inc 2 роки тому +12

      After having talked to people with tourettes I've been told it's much nicer and easier when people smile, giggle, acknowledge, VS stare, purse lips half smile and look down, or blatantly ignore and make it awkward. Hope that helps ♡

  • @audreemaurice4899
    @audreemaurice4899 2 роки тому

    To see you like this make me feel so sad 🥺😢
    And don’t feel bad about them looking or judging at you they just don’t understand your struggle you lIving every day with this disease.

  • @AthanKaiAltair
    @AthanKaiAltair 2 роки тому

    my heart when your mum asked if you wanted her to shout with you 💗🥺 and then when anxiety kicked in because of the person who you thought was staring 😟 You're a legend and mum (Sam) you rock! 🤟🏽

  • @rosewater3
    @rosewater3 2 роки тому +1

    "Do you want me to shout with you?" Oh be still my heart 💖 your Mum is absolutely sublime 🥰 🕊️🌟
    Evie, you're very admirable! The tics appear extremely exhausting, but you handle it with such grace! You radiate🌈 such strength, beauty 🦋and positivity❣️ You're a rare bird 🐦 a complete ray of sunshine 🌞 Don't ever let anyone stifle that! 💜🌺
    Thank you for sharing your impeccable and brilliant life with all of us 🙏💚🌻🧡🌼
    Bunches of hugs from across the pond 🤗🌅💫🧚‍♀️💐💎
    Much love from one Hippie to another ✌️💙✨

  • @cheekyskitty7971
    @cheekyskitty7971 2 роки тому

    Your mum is sooo sweet and sooo right❤

  • @TattooedPink
    @TattooedPink 2 роки тому +3

    Have to say it was cute when your sunnies first landed on your nose XD I dont have tourettes but have extreme anxiety/panic attacks in public and think people are looking at me so I can kind of understand how you feel ♡ must have been an exhausting outing! You looked so tired with your gorgeous doggo at the end xx

  • @jlet4ever
    @jlet4ever 2 роки тому +4

    I’ve seen her in a store. My sides still hurts! So sweet. So funny! Accept no one but the best.

  • @saaki20yearsago57
    @saaki20yearsago57 2 роки тому

    I can imagine how stressful it has to be. I AM stressed as fuck being in public/speaking in front of a group of people and sometimes i try to act silent as not to be spotted. And I don't have turrette's syndrome. Couldn't imagine how would i behave if i were you. You're so strong, ty for showing us your perspective in public.
    Also, that "yelping/screaming" sound seems like something too productive to suffering from it everyday. Nah. Stay healthy

  • @not_el.
    @not_el. 2 роки тому +1

    Hey Evie! I just wanted to tell you I hope you have a lovely day! And your book is absolutely amazing! I love your content and everything you do for us! Thank you! (And IM SO HAPPY YOU GOT NOMINATED EEEEEEE! GO EVIE)

  • @tamaramcgee3493
    @tamaramcgee3493 2 роки тому

    You possess a bravery I adore and admire so much. You are inspirational to anyone else who has Tourette's.

  • @fordism.01
    @fordism.01 2 роки тому +1

    I get involuntarily ticks physically jump like being electric shocked . it must be a bloody nightmare sometimes for you.
    your videos are really cool it's great how you document your every day life warts n all. .
    I think your both incredibly brave and an inspiration to.other people suffering with the same thing.

  • @WalkmanYT
    @WalkmanYT Рік тому

    Awesome to see how you always have a smile on your face!

  • @AquaPeet
    @AquaPeet 2 роки тому

    So happy that your doggy is used to it and it won't run away! He or she is adorable :D

  • @CrazyD5539
    @CrazyD5539 2 роки тому

    You ROCK young lady you deal with so well and that is so good to see!!! Please keep posting more!!!!!!!!!

  • @francesbale1409
    @francesbale1409 2 роки тому

    Your mum is literally amazing

  • @SpamfromAmsterdam
    @SpamfromAmsterdam 2 роки тому

    You're so lovely, thanks for just being you and being brave.

  • @India.H
    @India.H 2 роки тому +3

    I knew a girl in college ("high school") who has Tourette's and went to work in Tesco (large supermarket chain). She had vocal tics, including a similar sound to the squeaking noise you were making. It didn't bother the locals after they realised what/who it was, but I live in a tourist area and it used to scare the heck out of the tourists.

  • @miguelangeltlapalcoyoamend4102

    hello Evie my name is Miguel Ángel I am from Mexico, and I also have Tourette Syndrome and post-traumatic stress and obsessive compulsive disorder (OCD) and all of us in the world understand what it feels like to suffer from this condition in our own flesh, but we must never give up and it is time not to remain silent and raise awareness about all these disorders, and tell our experiences we admire you Evie we are not alone and please never stop dreaming. 💞👏

  • @chiaraantonj102
    @chiaraantonj102 2 роки тому

    Baby you are so BRAVE! I will never stop to tell you how incredible you really are!!!
    Thank you for sharing as always!
    Hope you're ok! Give a huge hug to Teddy for me!

  • @brittanywhitmire3235
    @brittanywhitmire3235 2 роки тому

    I love your tic where your sunglasses end up being over your eyes. You are so beautiful!

  • @idalundborg1131
    @idalundborg1131 Рік тому

    Your mom is an angel ❤❤❤❤❤

  • @chantaluys8727
    @chantaluys8727 2 роки тому +8

    Your vids have educated me so much about tourettes. The other day a man came into my work place with tourettes and needed help with something and he was embarassed at first and apologizing for his tics but i wasn't phased at all, and we had a great chat. The only person I ever met before him with tourettes was Pete from big brother. lol.

  • @mybrokenmindddd
    @mybrokenmindddd 2 роки тому +9

    It's hard when my tics are active in public but surprisingly I get lovely smiles n ppl ask if I'm ok n I'm like yes I'm ok it's just my TS acting up as always n their like awweee well if u need anything let us kno n I'm like ookkk🥰☺️

  • @RC-nb3cy
    @RC-nb3cy 2 роки тому

    To #*$* with what others think, glad to see you out. I tried the recluse life for a long time because I was more worried about what others thought. It sucked plus I was missing out on a whole world out there. If I wasn't an ocean away i would be honored to take you anywhere you wanted to go in public and if somebody couldn't deal with it well their loss on meeting a wonderful person.

  • @nocturnalrecluse1216
    @nocturnalrecluse1216 10 місяців тому +1

    The "cvnt" was pretty funny but that whistle had me dying!!😂
    From someone who has had this condition since childhood, i can honestly say that when i was first diagnosed, that i had it this bad. Fortunately over the years, I've learned how to control it in public, mostly. I admire your bravery.

  • @Deaf2TheWorld5177
    @Deaf2TheWorld5177 2 роки тому +128

    I'm sure this has already been answered - but do you find that when you try to control/contain your tics, that they are in fact worse? Thank you so much for sharing your journey!

    • @RockStar_Bryan
      @RockStar_Bryan 2 роки тому +19

      I have experience with trying to suppress certain tics and they just get more aggressive once it actually happens, idk if this happens to anyone else tho

    • @happy.hybrid1675
      @happy.hybrid1675 2 роки тому +6

      @@RockStar_Bryan yea, that happens to me as well

    • @RockStar_Bryan
      @RockStar_Bryan 2 роки тому +9

      @@happy.hybrid1675 they also usually repeat more once i do it aswell, like last night i tried to stop a tic where my leg jerks and tenses up, so it basically kept repeating (im surprised it didnt hurt lmao)

    • @Jade-mu5hf
      @Jade-mu5hf 2 роки тому +4

      for me, focusing on not doing my tics only makes it so much worse. it is better for me to distract myself

    • @Brainjoy01
      @Brainjoy01 2 роки тому +1

      She has stated just recently she’s not taking a break or containing them and yes they do get worse. It’s sad she does that to film. Her regular attacks are bad enough, we don’t have to see the off the wall stuff to care about her

  • @Bunny_194
    @Bunny_194 4 місяці тому

    The glasses falling onto your face is so iconic. i think you seem like such a great person. i would love to meet you. you are very strong and very brave . going out in public wouldn't be easy. People are very judgmental. so congrats. your very strong

  • @rih.x
    @rih.x 2 роки тому

    She's honestly so pretty

  • @RileyCastille622
    @RileyCastille622 2 роки тому

    When you said "fuck off" louder mine said it back . But it's okay and I love you so much and understand it is hard to go out in public but let people stare your still beautiful and worth so much evie! Sending love you ways!!

  • @candalalala
    @candalalala 2 роки тому

    I understand people being confused at first and looking. But they don't need to stare. I think you on the internet and educating people will change the way to respond! Ever so slowly people will be more understanding ❤️

  • @FreeSki4Life720
    @FreeSki4Life720 2 роки тому +81

    If I saw you in public I'd be staring too...
    Because you're super cute and your outfits are incredible

    • @Apexsilverevo
      @Apexsilverevo 5 днів тому

      Beat me to the line I was thinking of, however I'd replace cute with absolutely beautiful! Added bonus my name is also Teddy :) I applaud your courage and the only part that saddens me is how it can deter you from wanting to even go out in public. Best wishes from sunny California! Stay up love 💯🥰