Shopping as a Wheelchair User ✨
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- Опубліковано 3 лис 2023
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⭐️ instagram ▹ / zara.bethx
⭐️ all socials ▹ linktr.ee/zarabeth
⭐️ discord server ▹ / discord
BUSINESS EMAIL ▹ enquiries@zarabeth.co.uk
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⭐️ stream my music ▹ distrokid.com/hyperfollow/zar...
⭐️ where i get my music (1 month free!) ▹ share.epidemicsound.com/g31jc...
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⭐️ FAQs ▹
1.What conditions do I have?
‣ I have Tourette's Syndrome, FND and POTS along with some mental health disorders.
2. How old are you?
‣ 18
3. What is FND? 🧠
‣ fndhope.org/fnd-guide/
4. What is Tourette's?
‣ www.cdc.gov/ncbddd/tourette/f...
5. What do I use to edit videos? 🖥️
‣ Final Cut Pro X
6. What filming equipment do I use? 📸
‣ main camera - amzn.to/3MW7v8w
‣ tripod - amzn.to/3P7G8Ly
‣ vlogging camera - amzn.to/42CBQ1G
‣ mic - amzn.to/3qD5gjg
‣ wireless mics - amzn.to/3X2RxOE
⭐️ UA-cam Setup + Equipment ▹ amzn.to/42QmxCN
⭐️ Recommended Products ▹ amzn.to/41wXJPX
(not sponsored! but these are af links so i make a cut from any purchases💕)
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My name is Zara Beth (zeezee25 on tiktok) and I post videos about disability, neurodiversity and what its like living with Tourette's Syndrome, Functional Neurological Disorder (FND) and a chronic illness called Postural Orthostatic Tachycardia Syndrome (POTS). Tourette's syndrome is a neurological condition causing involuntary movements called tics.
I use my social media (TikTok, UA-cam and Instagram) to advocate and raise awareness for my conditions and show what it is like living with a disability as a neurodivergent person.
I am also autistic and share my sensory struggles along with my experiences with mental health disorders.
I show what its like having a disability and the accomodations I have to help my daily life. I am also an ambulatory wheelchair user showing my life using mobility aids and how symptoms change from day to day!
I am also a musician with a popular song called "She's Mine" available on all streaming services - I wrote, produced, mixed and mastered all my songs myself! I am also an artist and a writer. I love reading and I'm currently writing a novel and a book about my life!
For anyone who thinks someone would use a wheelchair just for the heck of it or for attention, you’ve never had to use one. They’re HARD to use. Especially on your arms/hands. People really take walking for granted.
Fr! My godmother uses a wheelchair and has to use gloves to move around so they don’t get dirty from the wheels, I still love her very much though🥰
i’d much rather be able to walk 24/7 and do everything active 😅
There is a hell of a lot of cases where people faked being in mobile for either attention or money. Simply look it up.
Very true
Yep. I remember this one time we went to a kind of science museum, and in the outdoors area there was a sort of obstacle course for wheelchairs with slopes, gates, tight spaces, and cobblestone. Can confirm, it is difficult to go about in a wheelchair at least when you're not used to it. I remember getting stuck in a few bits.
People don’t understand me either. I can run,jump,dance and walk. That’s on my good days. If I’m bad. My legs are in severe pain
What kind of pain are you experiencing?
@@Meatsquatch69420 when I was younger I was a severe toe walker. It affected my legs. Causing the muscles to tighten really bad at times and it would hurt so much. I has surgery to correct it. Botox injections in the legs. It’s been a year .But for some reason when I walk to much it still hurts . Not a tightning feelung but an aching . I don’t know how to explain it but it just hurts if I walk or do stuff to much. One time I walked a bunch and I was bed bound the next day and couldn’t go to college. I don’t think it’s normal😭😭😭
@@Imgaezzhave you tried walking 1 mile one day, 2 miles the next day and so on? When I started running 5 years ago my legs hurt so much after running I could barely move them but I kept running anyways always in pain I managed to develop stamina and strength. It takes months/years to take the body to a healthier level. Im not trying to lecture you just wanted to understand what kind of pain this is.
@@elpelicanojiji I’m bed bound the next day! I’ve tried. I walk quite a lot for college. It’s hard but I try . It’s not even a normal pain. It’s a shooting stabbing pain
@@elpelicanojiji This is the kind of well-meaning question abled people are constantly asking disabled people. I mean no offense, but if it were that easy to solve our medical issues, they would be solved. People only end up being disabled longterm when their issues are hard/impossible to solve, to the point that a team of doctors and physical therapists can't figure out how to make them better. Also, the fact that you used 1 mile one day and 2 miles the next day cracks me up because I once walked 2 miles and couldn't walk for 9 months. Walking 1 mile is super dangerous for me. I guess it's just interesting to see how differently disabled and abled people conceptualize distance. Again, I mean no hate/disrespect. Just trying to communicate how most disabled people feel when these kinds of comments are made.
When you go to the coffee shop, ask for a "steamer" in your favorite flavor. It's just flavored warmed milk and you can have a warm treat too! Salted caramel or vanilla are delicious!!
peppermint n white chocolate is great
Was Gonna say something similar.
Some places also have hot chocolate if that's something you like.
@@dancerdog508 Not sure how much caffiene she can't have, but there is a small amount of caffiene in chocolate :)
@@LibbyRoseITM True, I didn't think about that! Some places also have herbal teas which are naturally caffeine free that may be an option. Also you may be able to get plant/nut milk steamers if you can't have dairy but it depends on the place.
I love your style and how you're not afraid to express yourself! 💓💖
I love your dungarees, I want one of those too but I can't find them anywhere. I look for them in every store but can't find them🙁
@@ninaschnabl9694oh yes, love the dungarees, I find them super comfortable. :) they are from lucy and yak, you can find them online or they also have some shops (Brighton, Bristol and 2 or 3 others as well or so) :)
They are from Lucy & Yak
Thanks 🙏😄
I have a wheelchair to. I do use it sometimes only when I need it. it’s nice to see someone who goes through the same as me!❤❤
idk how to fully explain what im asking but im kinda confused like what is the medical problem that needs this? hopefully this doesnt sound rude im genuinely curious 🫶
@@josie.- chronic pain or fatigue, seizures things like that
I have arthritis so sometimes it’s hard to walk and run. On my bad days I can hardly walk that’s technically why I need a wheelchair. If Im going out on long days I will need it sometimes I don’t need it.❤
@@Simplyxliayes! My grandma has severe arthritis and it's very painful for her to walk.
Aaa omg I love the pink wheels! Also your style of clothing is so pretty
Thank you so much!
So I have spinal nerve damage and it has progressively gotten worse and My doctors are saying if it gets any worse I might have to use a wheelchair I'm taking that news harder than I thought I would and this video has made me feel a lot better about that whole situation thank you for making this
I don't have the same condition as you, but I started using my chair 2 years ago, I started with an nhs chair and then moved to a custom one. I had family say I was giving up and that it was for attention or a tragedy, but all of those things were wrong. Choosing a mobility aid is choosing to live, it's a hard choice to make and when you're not paralysed you'll always have people that say you don't need it. But I can tell you that however much life my illness has taken away, my wheelchair is the biggest thing that has given me my life back. I hope it will do the same for you. Xx
I've been in a wheelchair since I was 3. Please don't let anyone make you feel bad about needing a wheelchair. They can provide so much more freedom than you think.
How about surgery?
@@22-abqariyahyakheen59credit card please
@@22-abqariyahyakheen59 bestie doctors ALWAYS do surgery before considering someone use a wheelchair longterm. To the point that I have a disease that it's very dangerous to do surgery with, yet I've still had doctors suggest that maybe I should try it on the off-chance it might maybe make me a little bit better in the short term. Every disabled person has considered all the options and decided that using a mobility aid is the best option for them.
i just wanted to say that i love your content and it makes me happy seeing you being happy ❤️❤️
This confidence u ooze out is very much needed for ppl who fear being mocked or get mocked by ignorant folks.
The “I didn’t crash” was relatable! I had to use a wheel chair for five months when I was seven due to a MAJOR back surgery because I have cerebral palsy, I also use a wheelchair when I go to big building or when I went to Disney or universal because I get fatigued EXTREMELY easy! Anyways love your vids keep up the good work and have a good day!
I’m also an ambulatory user! I used to feel so much shame using my wheelchair knowing I could walk, even if it meant I was in pain. My parents used to pressure me to pretend I was “more disabled” so people didn’t think I was faking. I don’t do that anymore because I shouldn’t have to justify it to anyone! I’m disabled and my wheelchair helps me when I need it, I would much prefer to be able bodied but thats not an option for me!
that outfit with that wheelchair is just perfecttion☺
so beautiful💖🌿
I got my first mobility device recently (crutches) and I’m just glad to be able to do stuff even when every chronic illness decides to act up! It’s really cool to se someone else like me on here and sharing it just makes me happy to see I’m not alone 😊
I actually enjoyed seeing you be confident out in public with what you wear and your disability, it’s really inspiring ❤
Oh, your mum is supercute, too 💗
Have you/anyone watching ever had someone try to take your bag off the back of the wheelchair?
It’s happened to me, but luckily I had family with me to see it happen and stop them.
I can’t self propel much so mainly have someone to help me when I’m out.
Went to a shop, and wheeled myself a little way to look at something more interesting, because it was on the handles I didn’t really even feel it, until my dad and seen and shouted which made me turn.
They didn’t manage to take it, as my dad saw, and unfortunately the police didn’t do anything because the person didn’t manage to actually take it, and stated they were “just making sure it wasn’t rubbing on the wheels” so there was no real evidence.
You’d have to be a pretty gross person to steal from a disabled person lol
I am always so paranoid of this whenever I use my wheelchair. What I do is I will put my backpack on the chair with the zipper facing my back, so it's on 'backwards', and then I take the waist strap and clasp it around the back of my chair. That way even if someone tried to grab my bag and run, they wouldn't be able to get it off my chair.
There was a point where my feet were in so much pain I couldn't even stand, let alone walk. I ended up just staying home a lot and missing events
But my husband was determined to give me a good time at a theme park and rented me a wheelchair. It was LIFE CHANGING. Being able to go out and have fun without suffering was eye-opening. Most people think having a chair is basically an end to freedom, but its actually the opposite. If I had the money, I would buy a chair just so I don't have to cancel plans on bad days!
I took one on a cruise that everyone assumed I was just going to cancel. Bad days don't have to mean no fun. Sidenote, I found an affordable option off Amazon and I actually was able to do a payment plan for it to get it right away.
My wheelchair also has pink spokes (I'm also am ambulatory wheelchair user), so cool to see others also use fun colours on their chairs
There's a bar in Liverpool where the disabled toilet is up a flight of stairs
I actually don't use my wheelchair even when I need it often because shoppings SO HARD in it
May I just say, that is a very pretty wheelchair you have there. The pink accents make it look so nice and the matching pink overalls really make it a part of the outfit (love when things are super useful and fashionable at the same time)
I just learned from your channel a few days ago that people can sometimes be in a wheelchair and sometimes not, so thank you for educating me, I just educated someone else about it. Thank you for explaining this. Sincerely.
I fell down a flight of uneven concrete stairs when I was 17. I was holding my baby sister at the time, so I wasn't paying attention to how I fell, only on protecting her, so when I landed, I wound up on top of my left ankle and my knee was splayed out in a weird direction. I didn't realize anything was wrong for around 2 years. Turns out when I fell, I broke my foot, damaged the supporting tendons in my ankle, and damaged the meniscus in my knee. I went to physical therapy for several months, but they basically told me that it wasn't going to get any better and that I could only salvage what was left. Nowadays, I walk with a cane and am about to get a wheelchair due to the amount of pain that I'm in, so I'm excited to be seeing videos of other ambulatory wheelchair users! Especially the comments on this video, so many people sharing in similar situations where on their good days they can walk and on their bad days they can't. It makes me really happy to see that I'm not alone, lol
It's honestly so absurd that people refuse to believe that illnesses and disabilities and injuries can vary from day to day, even with people like you telling your story. Thank you for sharing and I hope you get all the help, accomodations and lovely people around you you need to feel good 💛💛💛
I use a wheel chair because I have arthritis and M.E. But sometimes I can’t walk around no problem.
I took it on holiday because traveling is really hard and exhausting, but I stood up at the airport, and everyone was aghast.🎉
I’m having to consider becoming an ambulatory wheelchair user in the next few years. I have chronic pain that mostly acts up when I am standing, and sitting once I’m in pain only causes a temporary break for the pain right now, and it returns when I stand up again (the longer I stand, the more pain I’m in). The pain will get so bad that it will feel like my back, feet, and hips are broken at the same time. I want to go to med school when I finish college (thankfully my college I doesn’t require much standing), and then go into residency that will require a lot of standing. As a result a wheelchair would greatly help me, and I’ve used one before a few times by renting them at zoos and museums when I’ve gone to help combat the pain (when I first tried that, the lack of pain was almost life changing). Thank you for making the content you do
Similar here, would say truly consider an electric folding lightweight one as it is less exhausting and less painful.
Chronic pain too. I'm the same.
As someone who experiences leg pain and fatigue, I really wish I had a wheel chair for my hard days. Or even a cane for extra support on my hips and knees. Awesome that you get to be independent and do what you want to do ❤️
maybe look into a rollator? they can be found fairly cheaply and they offer support while walking and can also be used as a seat if you get tired :)
@@smelly4498Found one at Goodwill for $10
Having a seat available is so helpful on flares
Im really glad people like you are willing to share your life and educate others. Glad you had a good trip!
I love it!
Esp your explanation about ambulatory use ❤
That's a beautiful little chair on wheels! 😊 What a blessing for you to get to hold onto that lovely energy all day long, and enjoy hanging out with your mum!
I’m glad more ambulatory users are sharing these things on social media! There is so much misunderstanding about it. People think just because we don’t ALWAYS need to be in a wheelchair, that we must not need it at all. Not all wheelchair users are paralyzed and there are so many reasons someone might need a wheelchair part-time. I use one for fatigue, chronic pain, and if I’m anticipating a lot of walking. Most of the time I walk using leg braces, but I do use my wheelchair occasionally. I’m actually looking into getting a more custom wheelchair (My current one is kind of a nightmare to use because I’ve had it for years and it’s not very custom), so if anyone has any advice, I’d love to hear it!
Yeah I'm glad too. There's just so much stigma surrounding ambulatory wheelchair users and anyone with an invisible disability in general.
Your outfit's so cute and i love how it matched the spokes.
I really appreciate this post and today I learned the word ambulatory, thank you!
I'm an ambulatory wheelchair user too. My Ehlers-Danlos flareups combined with my other health issues have been limiting me a lot over the last few years. I usually use a cane when I go out on the day to day (quick stops at the grocery store or the doctor) but shopping or going out for extended period of time has become out of question. My wheelchair is giving me back life and fun. I can spend my whole day at the mall again (not all stores since wheelchair accessibility is still sparse, but still) and go to the zoo or the museum and on adventures with my family. And it's all with a Canadian Tire 150$ chair. Is it comfortable? Not really. Is it ergonomic on my bad arm joints? No. But it's so much better than the alternative of not doing anything. I hope to eventually be able to afford a good, quality, wheelchair which will keep me going for years, but until then, I'm just happy to have more freedom again.
bestie. Kenji is literally the best shop
Yesss. I have so much stuff from it.
I cannot express how much I love that jumper!! Its adorable and it suits you so well!
her voice is so calming
Your mum looks so incredibly nice and like a good person ❤
That wheelchair is adorable! We love a pink moment! ❤ ✨
Hi, also an ambulatory wheelchair user here 😊. I really love your chair, mine definitely needs an upgrade
as a part time wheelchair person myself, I only pretty much use my wheelchair while going to school (don’t use it at school) I get picked up by my mum at the bus station and she brings along my wheelchair or if I’m out and about with family or when I’m on holiday, due to me having a wheelchair I have a disability (hip dysplasia) so I get bullied and not been able to move schools but Idrc about the bullies anymore I just ignore them and carry on with life, I’m in yr10 now and I first got bullied in nursery back in 2011.
Zara Beth, I was so happy when I started watching your videos because you educated me on abulatory wheelchair use. I have disabilities that can affect me in some similar ways as it affects you. At times I will also have extreme fatigue and debilitating physical and menatl health symptoms and this prevents me from going out often. There are many times where I cant even leave the house to buy groceries and necessities and on days like this I am unable to really do things like dishes, preparing food, any everyday activity. This also keeps me from many social interactions, family gatherings for holiday days and birthdays, going out in the woods or hike up a mountain, hang out with friends (I dont have many since my disability can get in the way of hanging out and even talking on the phone at times). Thank you so very much for everything you do. Now I will be able to approach my medical team regarding getting my own wheelchair. The hope of being able to live a "normal" life again is back in full swing. I'm tired of missing out on so much
Get a seamstress to add some snap tabs on the sides of the bottom seam of your jacket so you can leave it full length when standing, but can fold the bottom inside and snap the tabs to hold the bottom about the height of your hips and keep from sitting on the end and creating pressure points that causes bruises. The mods are not expensive or difficult and it makes fashion much more wheelchair adaptable.
I love cute stationary and home stuff!
Bury Millgate? It looks vaguely familiar. Also an ambulatory wheelchair user. Loving your posts.
I love how positive you are about everything,whenever i watch u u make my day!❤
I LOVE that your wheelchair handles fold down. That’s so awesome!
Most places offer decaffeinated coffee options (if you ever want to be able to grab a drink with friends/family)
I love the fit, I’ve always liked the watermelon vibe🩵
Ur wheelchair actually cute with the pink wheels
I love seeing this especially since I'm going to start to use a wheelchair off and on and its been hard because I'm younger and it feel weird for me to do but its nice to see others do it without fear hopefully I can too.
You are amazing❤❤❤
Same...do what you need to do!!
I'm a part time wheelchair use too because of EDS. I love your wheelchair, mine is hot pink and I named her Priscilla!
I’m glad you had a fun trip! Thank you for sharing with us ❤
my cousin has low muscle tone and people always question why he walks sometimes and sometimes he uses a wheelchair, some people even think he does it for sympathy so thank you for this
bro i am in love with your room and your outfit 😭😭 and your mom seems so pleasant 🩷
I'm an ambulatory wheelchair too but I can't push myself along like you do because I have alot of pain, weakness and stiffness in my hands. I'm not independent at all. I can't afford a motorised one so I heavily rely on others to wheel me around 😔
What caused your weakness?
@@22-abqariyahyakheen59is that any of your business? Do you walk up to complete strangers in the street and ask them personal questions?
i love your wheelchair! what kind is it? i love my chair, but i would love to save up for one that folds and has handles and places for bags and stuff ahah. i cant tell if yours folds but it looks like it has folding handles which is super useful!
the seat folds down yeah! it’s a Tiga Sub4 from @rgkwheelchairs
I love that your so confident In yourself and your always happy 😊
The joy that you have everyday ❤
Merry Christmas btw
May God Bless You! ✝️
You have your mums gorgeous eyes ❤
Sometimes my legs feel like they're gonna break in half, I went to the doctor and he said that I might need a wheelchair 4 the days like that. I thought only ppl who didn't have a leg or neither and 4 disabled ppl
that outfit is so cute!!
I love the wheels on your wheelchair they're such a nice colour :] and also I love the vibes of this video it's so cute and sweet
😮 dude ur wheelchair is so pretty
love ur voice! It‘s so nice listening to you
I have to use a wheelchair when I walk longer distances, i get bullied in school sometimes because of it. I bring it to school because there’s different buildings so it’s a long walk to lessons most the time. People always stare and make comments when I stand up from it but it’s like I’m not parallysed 😂
Suggestions on the chair! Really curious what type you have and what exactly you look for. I love the angle of the wheels and how much easier it seems to make it! Most of my friends in wheelchairs have electric ones, but I need to need self propelling and, I had a super cheap one that worked not badly, but it wasn’t fit for me at all. Then I got a drive one that at least I could measure for, but it is hell to push! Can’t take myself anywhere at all.
Shopping in a wheelchair is hard! I definitely don’t enjoy it as much in a wheelchair but it’s nice to not have to worry about crashing.
Thanks for sharing your outfit and chair are super cute. I am happy you have the tools you need to make your life safer for you.
that looks so fun! you and your mum are both beautiful
Friend of can't walk a lot without support but she still likes to take the stairs sometimes. When that happens she'll all be too bring the wheelchair up the stairs.
The types of looks we get when i drag up the empty chair up the stairs while she walks up in front of it
I looove the pink beams on your wheelchair!
Your mom has a very kind and beautiful smile ❤
U go girl!!!❤
Her waving is the best❤
I too use a wheelchair only part of the time, sometimes walking takes too much of a toll on me and it's not worth it to keep up the act of being "strong" or "healthy" when I can barely make it through most days
You are very inspiring. I really like your videos. Keep it up!
Dang your wheelchair looks super cute and so did that outfit! Glad you had a successful day! 😊 shopping is always a hit or miss, no matter where you go…. (Walmart changing their food isles every other week 🙄)
The pink wheelchair is so cute!!
Love the pink
Your mom was so startled to be on camera lol Y'all are adorable!
My sister who has ostoegenis imperfecta sometimes uses a wheel chair aswell
If you can't have caffeine and are at a cafe you can order a steamer. It's essentially a latte but without the espresso. (So milk and flavoring) if you're dairy free they usually have options for that. Oat milk is the non dairy go to where I work for us. (Except for when I use coconut milk to make knock off Pina coladas). You can also usually get whipped cream or other toppings to go with it. Never feel like you can't enjoy yourself if you have dietary restrictions. There's often ways to work with it! (My list of dietary restrictions is hella long. I have become VERY creative when out and about) there's also often apple juice available and you can ask them to steam it and add cinnamon and caramel sauce to it for another fun treat!
And I hope with summer around the corner that some of your pain eases. In my house we often find that the weather greatly impacts our chronic pain (I have rhumatoid arthritis, my sis has scoliosis, my mom was in a bad car accident that wrecked her jaw and back, my dad also has RA, my grandma has arthritis from her cancer. We got a full house of shit-sometimes literally with my lactose intolerance and my sister's IBS lol) I hope the same goes for other where warmer weather allows you greater mobility. But not so hot that wearing mobility aids becomes disgusting.
I really enjoy your bright cheerful smile your high energy your great inspiration you are truly a gorgeous lady and magnificent woman I enjoy all your videos they make my day so much brighter I can relate to your situation cuz sometimes I use a power chair
I hope you have a fabulous day a great week and a marvelous weekend I love you Zara for all the hard work that you do and I'm sending you a hug, I hope you don't mind 😊😊😊❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤
Those spokes on your wheelchair are so cute!
OMG , I didn’t know you were British I go to that shopping place all the time ❤😊
I'm so curious what wheelchair she uses! My fiancé is also an ambulatory wheelchair user and his wheelchair is perfectly fine. Hers is so cool though! I love that the handles fold down!!
I think her wheelchair is a TI-LITE like the one I use
I struggle with chronic knee pain (which my parents don't understand), and when I'm older, I'm getting myself a wheelchair because on some days walking is genuinely excruciating and exhausting.
I have that as well. I actually have kind of walking sticks for bad days. I don't really care who likes it or not.
The pink wheels are so cute!
i love the jean jacket I always wore mine back in the day. Glad you had a good day
I love the style and the wheel chair. You are very strong and I am very proud of you for all you do and you are very helpful and always happy 🙂 always stay happy and be yourself Zara 🙂
love your wheel spokes!!
Your smile is so pretty! I love your wheelchair ❤
your outfit is SO cute AHHHHHHHHHHHHHH
I had to be in a wheelchair just for a week as my knee stopped swelling and I can't imagine having to deal with it and the stupid people that think just because your legs work means you're using a wheelchair without a disability. I couldn't physically get up but the amount of people that looked at me like I was disgusting for getting special treatment was mad. I had people literally huff at me because we went to a museum when it was raining in London (the line was doubled up and went outside the museum gates) and me and my family were allowed to slip the line*.
*not completely but so we weren't at the back in the rain bc when we got there we had already been waiting about 30 minutes in the rain in the line. Ppl were just wanting to go in so they didn't have to be in the rain not actually to visit the museum.
My best friend gets her chair felivered on Monday!!! She hasn't been able to do much for the last several months while she was in insurance purgatory. We are all so excited that she'll be able to do more!
It's pink!!!!! 😍
I love watching these kidns of videos, they are so informative and fun. I also have been trying to learn how to draw wheelchairs latley, so I'm gonna be using this video as a reference. :)
I love how cute your wheel chair is
Beautiful wheelchair, i use one too the worse bit is when someone catches you with there bag and then says omg im so sorry i dint see you there xx
I love your color combo outfit. Your chair wheels so easily. I need one of those. Mine is a clunker
Looking amazing and giving the best positive vibes like always!! 😎🙏
Ur awesome hun keep being strong and u x