2014 Anaheim - The Causes and Treatment of Pain in Scleroderma with Dr. Daniel Furst

Pain is persistent and difficult problem in scleroderma, affecting function in multiple ways. Dr. Daniel Furst of UCLA presented this workshop to examine the many ways pain arises, from our muscles, tendons, joints, internal organs and brain. The treatments are as varied as the causes, and we will try to approach some of the ways to deal with living with scleroderma, both with medicines and non-medicinal approaches.
Video Production:
Magnus Media Group
www.magnusmediagroup.com
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[@judithhaliasz5894]

Thank you for your talk My pain manager has been working with me for 15 years of Limited Scleroderma . Arthritic pain has increase 100 fold since my DX. replacement joints in hands, neck is bad. I am hoping for drugs for osteoporosis . thank you Judith

[@rahc57]

Di you used to be a resident at Northshore Hospital in NY? This question is for Dr. Furst.

[@richardpezdir5261]

i have scleroderma. no test was ever done to check my organs. No dr will give me a referal to go see dr varga in chicago, illinois. i was diagnoised in 2004. bc a bruise on my left quad area kept spreading and turned hard. my bruise started in 2002. my primary care was aware of the bruise and did nothing about it. i had to seek my own oppinion. i know i have kidney involvement and my esophagus is backing up. i have trouble chokeing, and im also very fatigued. i have been having pain in my muscles, joints and my lower back. i dont trust pain clinics. i had a tumor on my L5 and a pain clinic did injections which caused it to grow causing an unrepairable anular tear from my L5 to my S1. I give up on fighting. i lost my family bc of my pain. im tramatized by pain clinics. since my new primary care dr moved in june of 2015th i tossed all my meds away. i have tried to kill myself twice in the last year. i cant take the pain anymore. i lost 40 lbs in 6 months. i would rather die than to suffer with pain the rest of my life. i have no family support. lost.

[@mrnobody4147]

im in pain of scleroderma and my crazy relatives dont believe me.my bones,my neck is burned and my voice is fuct up.my skin is dark and some spots.my fingers are white and my feet fingers are in pain the big one finger is like i hit it somewhere.my spine in pain,my lugs and my heart,burning heart symptom(this mothafucka) and anxcious ,my hourine system ,my muscles some of them are in pain and get shrinking,im skinny.i have no appetite for food,my colon is fuct up,i have pain in my sexual organs sometimes and i have scars in my ears also fungus in my mouth,ears,terrible fungus in my feet that dont goes away with some medicines i used,my immune doesnt helping me,also my eyes are red and black and i cant see clear some times,are completely wet and my mouth doesnt have too much saliva.my face im 36 and i seem like 40 and my symptoms i have them many years ,but the last one year or two is increased.im taking suboxone and it helps but it does damage to me also,but i cant guit it because i cant stand the symptoms,getting worst and my arythmia explodes,im addicted to it.so i stay to this medicine and im thinking to end my life,i m fighting everyday.doctors doesnt even yet diagnosed it,except one patologist who told me i might have it.my symptoms are coming for some month or more and then most of them are dicreasing,but it is there all the time.my enviroment doesnt help me,i cant work,its too hard and im not working .im dealing also other problems.but if they get worst i dont know if i dont try to end my life.my organs ,my system has a big problem.a misterious i say disease...im wishing you luck my friend and fight for those they love you,but to me people who love me do me alot of harm,have also problems they dont admit and they think im getting paranoid and im dieying.what to say,im alone and the only way for me is the end in a sertain way ,the sertain time...im not paranoid but i becoming one

[@artisticwhistleblower1756]

Richard Pezdir i hope you are still coping with these tremendous losses. I can relate. I have had scleroderma since childhood and Drs have COMPLETELY MISTREATED ME. Now I am in menopause and my scleroderma is causing terrible pain. Just want you to know that you are not alone.