Great video. I'm a 34 year old male and was diagnosed after 3 years of hell and severe symptoms. After seeing dozens of doctors I finally found an allergist/ gi doctor who diagnosed me. We need more doctors who can diagnose this. Still in severe pain daily, no meds work. Only starving myself regularly for a few days seem and going glueten, dairy , nut, egg, chicken, free has helped. This disease sucks hard.
Sorry to hear that you are in constant pain. How are you feeling now ?have you got any cure/treatment for your EoE ?My son has the same problem .No medicine working for him...so much pain on daily basis.His condition is mild but still lot of belly pain .
@@mademen5234 i think she is dead. complicated, your allergy test could show you don't have it but you still can have it. try eliminate and see how you feel
What about infiltrated eosinophils? Bet they don’t tell you about that, been diagnosed with eoe for over 10 years and for me it’s now more clear than ever it had NOTHING to do with food
April 2009 was my diagnosis of EoE. It took twenty four years of suffering to get it. The gastroenterologist who did my scope perforated my esophagus, and I spent three days in a SICU. Put that it your case literature. You don't know pain until your chest cavity has been filled with air.
Very informative. Well presented. I have this condition for as long as i can remember, only that i didn't know what it was called. I called it; "esophagus spasms". I have had my esophagus dilated before. Though, i was told that my esophagus was *very* narrowed. That the adult scope wasn't going down, and had to use an infant device. That seem to have scratched the inner lining. And had to stop. No, hospital stay.. just very sore for the next few days afterwards. But i was NOT diagnosed. Since it was beyond that time of this knowledge information! There is so much that i didn't know.. other then the underlying problems and causes that i went through day in and out; emotionally and physically frustrating, and publicly embracing, when out an about! As you mentioned in your studies; it wasn't well known back then... so it has been a long road of dealing with my esophagus spasms, on my own. My doctor had never seen this. Nor knew how to help me... so. I fell through the cracks. But now, i know I'm not alone in this anymore... There's steps in the future for me.. to find out if this what i have. Thank you gor the research information. I have taken notes. Learning everyday something new! Now time for a few more appointments!
That's true doctor especially Gp's don't have an idea thats what's going in your body. Really agree with words people embracing and frustrating. I am going through the same situation.
I had a scope and dialation as a teen. Same thing. Way smaller than they thought. Ended up tearing esophagus. No fun at all. No lasting results. Extremely extremely extremely strict food choices are the only relief for me. I don’t want Rx or steroids so I have not used
Thank you so much for this video!! I was diagnosed with this a couple years ago but been dealing with it ever since I was a kid, never had any serious issues with it just 2 times had to get it surgically removed today actually being the second so taking it more seriously and doing some research thank u for your video
Thank you your lecture it is very informative. I’ve been struggling with symptoms of EoE for a long time. I’m now 60 and I’ve had trouble swallowing my entire life. I’m hoping you may have a suggestion for me. I started noticing food type allergies when I was in high school. Serum IgE tests are negative for food allergies. I have been diagnosed with GERD and been on Prilosec for 3 yrs with little to no relief. I vomit from eating at times and I have food and medication that gets impacted causing me to vomit as well. I just had a endoscopy done and my esophagus stretched. My dr said my muscles are really tight in my throat. Biopsies show 3 eosinophils per high power and mild focal esophagitis. My dr doesn’t plan to change my treatment and no further testing. I’m afraid at some point I will choke to death. Would you suggest I get a 2nd opinion on treatment and diagnosis?
I have problems specifically with food like rice and beef and my throat who CV I have to clear a billion times after eating. Reflux pills don’t help so I suspect eoe.
Hello, so I was recently diagnosed with EoE and I am awaiting a visit at the clinic, should I expect some further allergy tests to be done by my doctor?
I was diagnosed in 2012 ( I suspect I had it in 2009) and up to this day they tell me I do no fit the parameters of eoe NOW but I did in 2012, so I had a diagnostic, now the doctors tell me I do not, but I still suffer pain and eosinophilia. No positive igE, no food or skin allergies, I’ve done various tests, done the 6 element exclusive diet, still no answers... Also, my esophagus isn’t the only organ affected, all the way to my colon is as well and i had a miopericarditis, which I suspect it was due to eosinophilia as well.
There is another eosinophil disease called hypereosinophilic syndrome. Instead of just attacking the esophagus, the eosinophils begin to attack bodily functions, and bodily organs. HES can only be treated with prescription medications.
I have been diagnosed with EOE and just put on oral inhaler steroid and PIP and 6 food elimination (12 weeks) . I had Severe Asthma as a child, I am born with OI and fear that these meds will cause more bone issues??????? I have had 3 times that had to have food bolus removed (one time endoscopy done with out sedation and tore my esophagus and ended up in the hospital IV and heavy antibiotics for a week. My current Dr is the one finally that discovered that I have EOE. LA Grade D results
Thanks Kevin for a clear presentation. I realise this vid is getting dated now and more information may be coming available. I have been diagnosed with Lymphocytic Esophagitis or LE which is a similar condition a close cousin if you will. My gastro took biopsies twice and the pathology was properly determined. I am on 40mb of Nexium twice a day . That is 80mg per day a high dose. I do not have any other gastro symptoms like GERD or allergies. Not on any other medications and generally healthy. The Nexium is so far not working and I have had a couple of dilations to get esophagus back to more normal diameter. I was interested in what you said about genetic predisposition. By now there should be some data base set up so there can be some studies done for those with EoE and LE. If anyone has seen recent vids on LE treatment please link me to them Cheers
I am so glad I saw this!. I have asthma, eczema and allergies to certain foods. I am also experiencing many of the things you talked about and I have told my doctor and he put me on Prilosec for heartburn. I still get horrible chest pain that radiates to my jaw.
Hi all, I've been suffering from this for over a year and was only diagnosed today, lost about 40 KGs since I cannot swallow properly - my question is how do you manage to swallow the PPI tablets or capsules? in the UK they do not offer a liquid version. Thanks
I've got EoE so bad, that I've get to on a "astronaut" food diet, no other foods, just that one single shake with all the needs for a human, and than test for which proteins I'm allergic to. Also if I'm in that 35% of not only being allergic to food, but also to fruits, grass, trees, etc, I'll have to eat this for the rest of my life, because the medication doesn't help me enough to get the symptoms away.... Almost seems to me as if I'm allergic to life..
Yeah I find things to distract me like video games or TV or a dog my dog Emma has gotten me through a lot just in general find something you enjoy doing
@@shadowchaser2859 i have a cat , he is more than a month with me. I noticed lately I got nasal congestion everytime I stay near to him and these 3 days I started heartburn. Is it possible cat could caused EoE?
My son has eliminated milk products, is a hit and miss. Because lots of food has milk casen and whey. we had very hot days, so we only had cold foods like sandwiches. I noticed that he's acne got worse. Could he be allergic to milk AND gluten????
hi I was talking hcg drops to lose weight for like 7 days and I caught a reaction so when I went to the doc because I was feeling light tingling sensation in my face hands so I had like small acid reflex so I when to a gi and he he did and endoscopy said I have eoe I will like to know if hcg drops can do this to me because I been feeling like this since I had the hcg only for 7 days so I belive a have small inflammation in my face and hands or never inflammation in face hand so can hcg cause this eoe to start
I'm sorry to say this but I am so freaked out right now. I've had TERRIBLE dysphagia and now EXTREME FATIGUE!! I've been to the ER 4 times regarding most of these symptoms. All my blood work has come back normal. I had an endoscopy last Thursday in which he dilated my esophagus. But I'm still having terrible swallowing issues!! I wonder if I have EOE. Does fatigue go along with this condition???
This was a very thorough presentation. I had an appointment with a throat specialist today and she suspects EoE. I already had an appointment lined up with a GI doctor in a few weeks so he could assess the swallowing problems, esophageal issues and my Behcets disease .
I suffered with this for almost 10 years. I ended up cutting out all grains and dairy and my symptoms have resolved.
Excellent talk Dr Ghassemi, I'm trying to understand my condition and this video has been very instructive! Thank you
Great video.
I'm a 34 year old male and was diagnosed after 3 years of hell and severe symptoms.
After seeing dozens of doctors I finally found an allergist/ gi doctor who diagnosed me.
We need more doctors who can diagnose this.
Still in severe pain daily, no meds work.
Only starving myself regularly for a few days seem and going glueten, dairy , nut, egg, chicken, free has helped.
This disease sucks hard.
Sorry to hear that you are in constant pain. How are you feeling now ?have you got any cure/treatment for your EoE ?My son has the same problem .No medicine working for him...so much pain on daily basis.His condition is mild but still lot of belly pain .
@@bellona786 theres still o cure
Same here! Finally got a diagnosis. Only thing that seems to help is starving myself. This is hell!
Have you gotten better?
Many thanks Sir, that was very useful for me and I learned many new things about EOE.
naweed akbar Oscar's the
I want to thank you very much Dr. Kevin as a patient and as a physician.. very informative, updated, evidence based lecture.
Was just diagnosed with this today. Thanks for the information!
Thank you, I was diagnosed with EoE and a wheat allergy. I have eliminated wheat and my eosinophil count is now 0.
Cindy Beuoy hey did you find out your wheat allergy from a allergy test?
@@mademen5234 i think she is dead. complicated, your allergy test could show you don't have it but you still can have it. try eliminate and see how you feel
What about infiltrated eosinophils? Bet they don’t tell you about that, been diagnosed with eoe for over 10 years and for me it’s now more clear than ever it had NOTHING to do with food
@@PossibleBat Hi, could you elaborate on your findings? What was it if it wasnt food? Thank you for the help as I am having issues with eoe as well.
@@PossibleBat Please tell me what you found out because I have eliminated every possible food and still have it!
April 2009 was my diagnosis of EoE. It took twenty four years of suffering to get it. The gastroenterologist who did my scope perforated my esophagus, and I spent three days in a SICU. Put that it your case literature. You don't know pain until your chest cavity has been filled with air.
how are you today?
Amen….
Thank you for the great lecture it was very informative!!
After years of suffering,
I was diagnosed with EOE and Acid reflux.
Very informative. Well presented. I have this condition for as long as i can remember, only that i didn't know what it was called. I called it; "esophagus spasms". I have had my esophagus dilated before. Though, i was told that my esophagus was *very* narrowed. That the adult scope wasn't going down, and had to use an infant device. That seem to have scratched the inner lining. And had to stop. No, hospital stay.. just very sore for the next few days afterwards. But i was NOT diagnosed. Since it was beyond that time of this knowledge information!
There is so much that i didn't know.. other then the underlying problems and causes that i went through day in and out; emotionally and physically frustrating, and publicly embracing, when out an about!
As you mentioned in your studies; it wasn't well known back then... so it has been a long road of dealing with my esophagus spasms, on my own. My doctor had never seen this. Nor knew how to help me... so. I fell through the cracks. But now, i know I'm not alone in this anymore... There's steps in the future for me.. to find out if this what i have. Thank you gor the research information. I have taken notes. Learning everyday something new! Now time for a few more appointments!
That's true doctor especially Gp's don't have an idea thats what's going in your body. Really agree with words people embracing and frustrating. I am going through the same situation.
@@grilltown3235 how you deal with it??
I had a scope and dialation as a teen. Same thing. Way smaller than they thought. Ended up tearing esophagus. No fun at all. No lasting results. Extremely extremely extremely strict food choices are the only relief for me. I don’t want Rx or steroids so I have not used
Our son has EoE and this was very helpful information.
Thank you so much for this video!! I was diagnosed with this a couple years ago but been dealing with it ever since I was a kid, never had any serious issues with it just 2 times had to get it surgically removed today actually being the second so taking it more seriously and doing some research thank u for your video
Thank you your lecture it is very informative. I’ve been struggling with symptoms of EoE for a long time. I’m now 60 and I’ve had trouble swallowing my entire life. I’m hoping you may have a suggestion for me. I started noticing food type allergies when I was in high school. Serum IgE tests are negative for food allergies. I have been diagnosed with GERD and been on Prilosec for 3 yrs with little to no relief. I vomit from eating at times and I have food and medication that gets impacted causing me to vomit as well. I just had a endoscopy done and my esophagus stretched. My dr said my muscles are really tight in my throat. Biopsies show 3 eosinophils per high power and mild focal esophagitis. My dr doesn’t plan to change my treatment and no further testing. I’m afraid at some point I will choke to death. Would you suggest I get a 2nd opinion on treatment and diagnosis?
GI doc thinks I have EOE but I need to wait until Covid numbers ease up to have an endoscopy. This was helpful information.
I have really bad EoE and I was scoped yesterday
My daughter has been diagnosed with this and I’ve been trying to get answers and your video I come across as being very informative!
Thank you for the competent summary!
Very informative. Thank you. I feel much more educated about my options.
Just recieved this diagnosis, would antihistamines be effective?? I haven't found any answers
for me benadryl help a little
I have problems specifically with food like rice and beef and my throat who CV I have to clear a billion times after eating. Reflux pills don’t help so I suspect eoe.
This is such an awesome presentation, thank you
Hello, so I was recently diagnosed with EoE and I am awaiting a visit at the clinic, should I expect some further allergy tests to be done by my doctor?
Wheat and EoE here for record
I was diagnosed in 2012 ( I suspect I had it in 2009)
and up to this day they tell me I do no fit the parameters of eoe NOW but I did in 2012, so I had a diagnostic, now the doctors tell me I do not, but I still suffer pain and eosinophilia. No positive igE, no food or skin allergies, I’ve done various tests, done the 6 element exclusive diet, still no answers...
Also, my esophagus isn’t the only organ affected, all the way to my colon is as well and i had a miopericarditis, which I suspect it was due to eosinophilia as well.
There is another eosinophil disease called hypereosinophilic syndrome. Instead of just attacking the esophagus, the eosinophils begin to attack bodily functions, and bodily organs. HES can only be treated with prescription medications.
i have both colon and Esophagus affected so i believe it is the same disease
@ sadsheogre
You mentioned it effected all the way to your colon. Did you have blood in stools?
I have been diagnosed with EOE and just put on oral inhaler steroid and PIP and 6 food elimination (12 weeks) . I had Severe Asthma as a child, I am born with OI and fear that these meds will cause more bone issues??????? I have had 3 times that had to have food bolus removed (one time endoscopy done with out sedation and tore my esophagus and ended up in the hospital IV and heavy antibiotics for a week. My current Dr is the one finally that discovered that I have EOE. LA Grade D results
What is your treatment?
I really like your video my 7 year old has EOE do you have any other suggestions
Salieta Did you find trigger (s)
Thank you for this info.
Thanks Kevin for a clear presentation. I realise this vid is getting dated now and more information may be coming available. I have been diagnosed with Lymphocytic Esophagitis or LE which is a similar condition a close cousin if you will. My gastro took biopsies twice and the pathology was properly determined. I am on 40mb of Nexium twice a day . That is 80mg per day a high dose. I do not have any other gastro symptoms like GERD or allergies. Not on any other medications and generally healthy. The Nexium is so far not working and I have had a couple of dilations to get esophagus back to more normal diameter. I was interested in what you said about genetic predisposition. By now there should be some data base set up so there can be some studies done for those with EoE and LE. If anyone has seen recent vids on LE treatment please link me to them Cheers
Well, this seems to push me to go carnivore as it is the best (in my opinion) elimination diet. Great information here!!
I am so glad I saw this!. I have asthma, eczema and allergies to certain foods. I am also experiencing many of the things you talked about and I have told my doctor and he put me on Prilosec for heartburn. I still get horrible chest pain that radiates to my jaw.
carebear B Were you diagnosed?
Yes I have horrible chest pain radiates my jaw and down both arms and just take all the joy out of living
If it is in stomach and intestine as Well what would be the diagnoses?
Eosinophilic Esophagitis
I just found out I have EOE and I’m only 26 😭
Idont know if ihave eoe if i have eoe mine is worse im only 10 years old and im experiencing this
Thanks!
i got it too
Good information about EOE. Thank you for “caring” to explain the full spectrum of the disease.
Hi all, I've been suffering from this for over a year and was only diagnosed today, lost about 40 KGs since I cannot swallow properly - my question is how do you manage to swallow the PPI tablets or capsules? in the UK they do not offer a liquid version. Thanks
Get Lanzoprazole capsules, open it up and put it in apple sauce or mash potatoes
Great video.
Is EoE contagious by an adult to kids?
I have worked
Eoe
I've got EoE so bad, that I've get to on a "astronaut" food diet, no other foods, just that one single shake with all the needs for a human, and than test for which proteins I'm allergic to. Also if I'm in that 35% of not only being allergic to food, but also to fruits, grass, trees, etc, I'll have to eat this for the rest of my life, because the medication doesn't help me enough to get the symptoms away.... Almost seems to me as if I'm allergic to life..
Thijs van hulst do you have really bad stumache pain with EoE I do
Little_charmander Not that bad actually...
Thijs van hulst same
I have EoE, have had it since I was 4
How you deal with it? I think we are in the same boat😭. I hope you will reply me...
Yeah I find things to distract me like video games or TV or a dog my dog Emma has gotten me through a lot just in general find something you enjoy doing
@@shadowchaser2859 i have a cat , he is more than a month with me. I noticed lately I got nasal congestion everytime I stay near to him and these 3 days I started heartburn. Is it possible cat could caused EoE?
@@maricelamoy5803 oh dang that sucks what we do is we do tests for me, mine gets caused by certain foods, so see if there are any tests you can do
@@shadowchaser2859 As you know about EoE, pets could caused this or for what we intake only?
Thanks!
My son has eliminated milk products, is a hit and miss. Because lots of food has milk casen and whey. we had very hot days, so we only had cold foods like sandwiches. I noticed that he's acne got worse. Could he be allergic to milk AND gluten????
hi I was talking hcg drops to lose weight for like 7 days and I caught a reaction so when I went to the doc because I was feeling light tingling sensation in my face hands so I had like small acid reflex so I when to a gi and he he did and endoscopy said I have eoe I will like to know if hcg drops can do this to me because I been feeling like this since I had the hcg only for 7 days so I belive a have small inflammation in my face and hands or never inflammation in face hand so can hcg cause this eoe to start
I'm sorry to say this but I am so freaked out right now. I've had TERRIBLE dysphagia and now EXTREME FATIGUE!!
I've been to the ER 4 times regarding most of these symptoms.
All my blood work has come back normal. I had an endoscopy last Thursday in which he dilated my esophagus.
But I'm still having terrible swallowing issues!!
I wonder if I have EOE.
Does fatigue go along with this condition???
@@maryboyce5129 hi how's your health condition? Let me know because i think we are in the same boat.. i hope you reply me🙏😭
hes an incompetent doctor - and look for parasites if you have EOE
This was a very thorough presentation. I had an appointment with a throat specialist today and she suspects EoE. I already had an appointment lined up with a GI doctor in a few weeks so he could assess the swallowing problems, esophageal issues and my Behcets disease .