I like this video but I wish they would mention that when people come around they are often confused and disoriented. They might not be able to speak and /or they might speak in jibberish. It's helpful to be calm with them but also treat them as respectfully as possible. I'll always remember when I woke up in an ambulance after having a seizure while biking with my toddler child. I kept asking where my son was and they kept telling me to "be calm, everything was fine". This made me upset and worried. He was in a car seat behind my head, I was in a stretcher. He was happy to have the ride in the ambulance. Sometimes people would like to be filled in on what happened since the seizure, especially if they're in a different place and definitely if their children are involved! I always want to be assured of the safety of my kids.
I hate that feeling. It feels like I was gone for days. When I was able to stand I looked at a clock but I couldn't read it, the digital clock just looked like strange symbols. I know of a new medication which is valium in a nasal spray. Its pretty good.
Agree I have not been diagnosed and still don't know what happened but fainted. When I woke up in an ambulance at the hospital all the paramedic kept asking me was I taking illegal drugs, tell him the truth and I needed to calm down. I had no idea where I was and how I got there. I am missing about an hour of my life with no memory and scrolling UA-cam trying to figure out what happened. I hate after being discharged from the hospital to be given a packet of paperwork to call doctors for appointments without knowing why to be told the wait is 2 months from now. For over 50 years I have been rather healthy minus the 50 extra pounds to lose according to the new weight guidelines to whatever this is.
@@caramelcandy4595 I'm in a similar situation. I've had two seizure or seizure-like events now and we still don't know for sure if they were seizures or fainting spells. After the first one it was about two months before I could even talk to a doctor or get any tests done because no one at the ER took it very seriously. After those first two months of me freaking out and trying to figure out what had happened, things had settled down and it was looking more like a fainting spell (syncope) as was suspected by several doctors. But then I had another one nine months later that seems to point more now to a seizure. At least this time I have had quicker follow up tests and doctors appts. but it's still all very frustrating. Plus now they have me on anti-seizure meds that make my brain even foggier and my memory worse. And it may not even be needed, but we don't know. I recommend researching POTS and Vasovagal Syncope as they cause events that can look a lot like seizures. Also look into PNES. God bless and I hope you are able to get some answers.
Epilepsy re-introduced itself into my life in 2019 due to the immense stress I was going through as my closest relatives were passing away and my work place at the time was less than sympathetic. For 11 years I succeeded in stopping my Tonic Clonic seizures without medication but moral and psychological support from family.. from 2008-2019 I was living a life without fear of having an attack... but they have almost caused me to meet my demise on numerous occasions... from having a seizure behind the wheel of my car and crashing, a seizure which resulted in falling 70ft down a steep cliff, one that resulted in me nearly drowning in my own vomit, to one where I nearly fractured my skull.. Epilepsy is hard to accept, but when you do it opens your mind to the fact you can continue doing what you love and living life... but you also learn to respect it's unpredictability.. Godbless all those out there who have it, we're all in this together.. ❤#epilepsyawareness
What I have learned As a Epilepsy Patient • It’s hard to bear, but we cannot lose hope to get healthy one day. • We can reduce ratio of attacks, if we follow doctor’s advices in our daily routine. • We have to spread awareness about epilepsy, and show the world that nothing is impossible in life. • There are many people who are suffering from epilepsy, but they are living their lives very happily. • It’s a continuous struggle to keep Yourself focus on your goals rather then worry about your disease.
This is a great video with many helpful tips. I would only add that sometimes it's important to help the person to their side even while they are having the seizure when there's a risk that they may aspirate on their saliva.
I thought it was only enough to turn their head to the side so they don’t bite their tongue and putting the entire body to the side may cause restraint with the arm or restrain them.
Guys I have see in my country when someone has Epilepsy they give his iron like some kind of unharmable metal pcs your door KEY or raw iron pcs etc anyone heard about it ? Once I saw it by myself with my eyes few min later patient was back to normal condition
This has actually happened to me before on multiple occasions almost just like this according to people that saw me fall out. And when you come to it's a crazy thing because you don't know what exactly happened and you are extremely disoriented and that doesn't even count what happens afterwards for the next three or four days of the constant pain and everything else that comes with the aftermath. I'm so glad this video is out there to teach how to help somebody!!! Believe me having a seizure is no joke!!!
I know what you mean on Jan 28th my new job I really dont know what happened. I could heat but can't respond. One lady who was supposed to be training me was saying get up you have work to do. When I broke out I didn't know where I was so one of the co workers drove me home. I someone called 911. I was in the ER mainly checking up. My boyfriend came over on Saturday I had another one. I called off from work today. My body just so out of it. Mentally I am afraid of people who work where I work now would ask me questions.
I really needed this. I’ve been doing everything wrong. My dad keeps having these seizures ever since his stroke 3 years ago. My mum was usually the one with him but now she’s passed. At least I know what to do now. Thank you
When a seizure like this occurs, the person will likely drool profusely. If their on their back like the woman in the video, they will be in danger of choking on their saliva. They will need to be positioned so that the saliva has a way of exiting. As hard as it will be to do, you must find a way to turn them on to their side or at least turn their head if at all possible. Or, depending on where they fall, find a way to elevate their head. Some people will fall and land on their side or on their front which will help the saliva escape. Also, right after a seizure, the person won't be responsive. Then, when their eyes open and it seems as though they will function normally, they will usually be in a state of disorientation and speaking will be difficult, often jibberish. Hope this adds to what you all saw. I'm the niece of a wonderful soul who has had Epilepsy he whole life.
This is great to know! I have a boyfriend who has seizures a lot, actually just witnessed one of them a couple days ago. I wish I would’ve know this before this time. Glad I was able to remember some things my aunt taught me from her work (she works with disabled/mentally challenged people) when I was a kid. Thank you for this informational video.
I just had my first seizures about a week ago (that we know of). They were tonic clonic, incredibly violent, and the spams likely fractured my arm. I'm still not fully recovered. I'm lucky in the sense that I get auras, but I didn't know what they were until after the fact. I'm just lucky that my spouse is smart and knew what it was right away. We have been together for 10 years and I have not once had a seizure the entire time. Then a week ago, I had 6 in one night. I now share this video with everyone that is around me often, so they know what to do if/when I have another one. I'm heavily medicated for it, so I hope and pray it lasts a long time.
This is insane! I’m sorry you have had so many. I just experienced my first seizure two weeks ago at the age of 40. My teenage son usually has his headphones on but luckily he heard my fall in the bathroom and I didn’t lock the door. He was able to call an ambulance, and was terrified because I have never had one before, this is such a great video.
@@adamunoz567 agreed, but i cant even remember when my first one was but i believe it was before I was 5 and im 23 now...im glad these videos are around to show how to deal with them.
I just had my first seizure while serving on a jury! I swear it was not an elaborate ruse to get out of jury duty! @SunshineBaby is spot on. As the shaking ended and I started to come around I was quite hostile to the paramedics. It was like me totally unfiltered. I was telling the EMTs to fuck off and dont touch me and said they're not taking me anywhere. I'm glad they didnt listen.
How are you now ?? First and only ?? Did they figure out why ?? I'm in the same boat. First one at 27 years old , MRI and 2 EEGS and they stj can't figure out why ! Did they ever figure yours out ??
My husband, during recovery from one of his first seizures, actually punched a co worker who was trying to help him! (This is wildly uncharacteristic behavior for him) When he has a seizure in my presence, I continually say, "honey, you''ve had a seizure," over and over until I know he is completely conscious. This helps dispel the confusion and hostility.
Great Experience I had with you DOC OKOUGBO UA-cam channel after using his herbal product & get cured from Epilepsy totally. Thanks so much DOC OKOUGBO UA-cam
i have been combating seizures since 1988--I've been quite fortunate as I've been able to go long periods of time without having a seizure (at one point over 10 years.) but the spector of that next episode is always lurking. Take good care everyone 🙏
Same here - I was frequent until age 18ish and after that went 10 years but once I hit 45 - they started up again but still few and far between. I have had 2 in the past 3 years. Very scary for me and for those looking on but thankfully, the 2 I had in the past 3 years did not result in injury. I have banged my head and gotten stitches in the past.
This is incredibly helpful, thank you so much! I recently hired a new employee with epilepsy and I want to make sure we all know what to do and how best to help him, if it happens at work. 💖
As a person who has had tonic-clonic seizures for well around 10 years, this is useful information for those who are with a friend or relative who have them. My mom and brother are very well-aware of what to do, like lay me on the side, take me to bed once the seizure ends and I can take the time to recover. However, for me, the recovery takes longer because even after I come around, my limbs feel weak after all the jerking around and shaking.
@@mohammedhusain6446 Seizures are not based on diseases, no. At least, not for the most part. They're often caused by elevated blood sugar levels, a misfire of neurons in the brain and/or trauma. They can be controlled with good sleep, singing(stimulating the vagus nerve helps) and/or prescription drugs(which only made my seizures worse). My tonic-clonic seizures are hormone-based, so they're not exactly curable.
💜💜💜 i do apologize for bringing You back here after 2 months but... just a question, if You're okay with answering... do You hear what people are saying when You're going through it? Are You aware of what's going on around You? Can You see those around You?... if not, is it like 'You suddenly fall asleep' & wake up all tensed-up & not sure what happened the past minutes?... how is it like?💜
@@farahlajeennoural-deen4599 I hear, see and know things just before the blackout suddenly occurs and I try to speak before the seizure itself happens. When I wake up, however, it's oftentimes very hard to swallow properly, the mouth and throat feel dry and your limbs feel weak, again due to tensing up so much. The convulsions also cause headaches. It's absolutely not a pleasant sensation at all, especially if you try to stand up only to fall down again because you're so weak.
I have Epilepsy, and I have not been able to tell people how to handle it when I have seizures. Thank you for this video, I plan on sharing it with all of my friends.
I was incredibly lucky. I was on my own at home, when I had my first seizure. The pain when I came around was like nothing I've ever felt before. My back and arms looked like a bruised banana for weeks.
Very instructive. I got epilepsy myself since childhood and was seizure-for a while but it started again in 2012. I'm on medication. But what I know from my own experience is that it started in the pre-birth foetal phase of brain development where some of the cells were not in their proper place which causes electric waves, manifesting themselves as seizures. It's called heterotopia nodularis.
Coming around isn’t that easy. Speech is hard at first; you don’t just sit up and start answering questions. The confusion can last for a couple of days, taking into account that part of that may be due to concussion and lack of oxygen. Someone so rigid and shaking isn’t going to be breathing.
I had a seizure while driving. When the police arrived they started questioning me and asking what drugs I'm on. It gets me so angry that they were trying to make me admit that I was using drugs instead of letting the paramedics help me. I was so out of it when they were questioning me.
I have never seen a seizure patient and experience for the first time that happened to my friend this afternoon. I was so afraid and had no idea what to do so i tried to help by putting my finger to prevent her from bitting her tongue as i didnt know that it cannot be stopped. She nearly bit my finger off for more than 3mins. I thought i would lose my finger. Its still painful and numb. Thanks for this informative video. Really appreciate and get the ideas how to treat the person suffering from it🙏🙏
I have epilepsy, I showed this to my friend so she knows what to do when I have a Tonic clonic seizure, this helped me a lot because I had four seizures when I was around her in the past month
My sister has has seizures her entire life. She once had a tonic clonic so bad that it triggered hundreds of clusters. We rushed her to the hospital. They had to re-teach her how to walk and talk. She was only seven at the time. It was scary.
First seizure I had was in a room full of family members, apparently when I came round I started telling my husband off and I then tried to fight the paramedics omg how embarrassing 🙈 I've got no memory of anything until I was getting wheeled into a&e. I'm not epileptic but I have random occasional seizures for no apparent reason. It's so horrible coming round and being told about my weird behaviour 😕
There is a pretty famous pastor who is also a martial arts world champion. He had a seizure and was combative (I gather during and after). So they tried to put him in restraints when wheeling him into the ER on the gurney. But they couldn't keep him down because he's so good at getting out of them, being basically a ninja, lol!! I imagine he was very apologetic afterwards. Thankfully my seizures (if that's what they are. We don't really know for sure yet) just make me mellow and wiped out, so I'm not too combative when I start coming to. I can totally imagine getting super cranky with my husband while in that state, though, haha!
What makes ppl have bad reactions afterwards? I always hear of ppl yelling or punching someone and/or cussing. I hope I don’t ever have one but my small child is the only one in the house with me. I’m on a new mood stabilizer that can potentially cause seizures according one websites listed side effects. I’m only asking because he is 4 and I’m all he has so I would like to educate myself on the matter.
I've had epilepsy for 24 years.. flip them on their side from the start in case of vomiting or even spitting. NEVER keep them on their back at any time
Wonderful video, thank you. I have epilepsy and was diagnosed just over a year ago, and I would just like to add a few extra things in case it could help someone who comes across this video. If possible, you want to turn the person onto their side *during* the seizure (not just after), as to keep their airway clear from saliva and/or blood (if they bite their tongue). Second tip, another time to call an ambulance is when the person does not regain consciousness soon after the seizure, or if they are violent and/or combative when they regain consciousness. When I had my first ever seizure, I apparently seemed to regain consciousness in the ambulance, but I was extremely violent and combative and screaming like an absolute maniac, probably because of the immense immense confusion and panic my brain was still under at the time. I still have no memory of any of it. Lastly, a person may be extremely confused for minutes, hours, or even days after a seizure. My seizure last year, it happened at about 8pm at night, did not have any memory of anything whatsoever until I walked out of the hospital doors in the morning, but i was still extremelyy confused and out of it for another few hours couldn’t even follow a conversation still, and then had very heavy brain fog for a week after that. Yet my second seizure ever, totally different recovery process. But just know that it’s normal.
People get combative in a postical state. It’s very common so don’t think you’re a bad person. You don’t have control and anyone who knows anything about seizures knows this. EMS knew for sure. I’m sorry you went through that, it sounds like a lot of stress how it affects you for days/weeks after and you are in pain for days after.
Just finished my semester thankfully suffered two seizures . Just had one two days ago early in the morning i which I bite my tongue black and blue :/ and I had one during midterms aug 31st I’m not sure why my seizures are so spaced out . But I sure wish I didn’t have them . Here I am now watching more videos on grand mal seizures because once again I suffered one
If this is acting, this is incredible. I believe it is because of the subtitles at the start. Even though I have never, ever had a generalized epileptic seizure, I can't imagine how traumatic this must be for the person suffering it. Possible ways to get rid of epilepsy may be, removing the lesion causing them, use anti-epileptic drugs, and stay hydrated. I sometimes jerk my arms a few times during the day, and I am thinking if I have myoclonic seizures. Not too sure though...🤔 Poor Alex.. 😔💔 Keep up the good work, Epilepsy Action.😎 thanks for spreading awareness in our amazing society. Cya!😎
I am a caretaker. And a lot of the individuals in my care are prone to seizures. A lot of them have a VNS, or a Vagus Nerve Stimulator. Which is an implant that uses a magnet to help seizures, or even stop them. This comes in very handy in many situations. Because seizures can often happen out of nowhere and it's easy to get overwhelmed when it happens. It's also very important that the person responding to the person having a seizure to be calm. It allows for a better outcome, I've noticed
At 33 years of age I just had my first seizure -- wouldn't wish it upon anyone; fortunately it happened when I was in the back seat of the car with my parents, incredibly lucky. My body is still incredibly sore, never knew I was that flexible apparently o.O. I wish nothing but the best for those who live through this
My mother had Grand mal epilepsy. She was on heavy narcs that didn’t help much. The worst part growing up, was the lack of knowledge about epilepsy, and trying to explain it to trained emergency responders, that she didn’t need an ER visit. Countless wasted hours spent at hospitals.
this such an amazing help I work at a school with kids and had three seizures at work already. and my coworkers had to help me to the floor and hit my head
I’m so thankful my tablets work it only comes on if any extreme stress occurs for me I’ve only had 2of these seizures in my life so far as I’m a epileptic my heart really goes out to those who have this condition as it’s very distressing 😪
When I was 6 years old, I had a tonic-clonic seizure. Before the seizure I started vomiting, then I lost consciousness. I had been in a coma for a week. Whenever I think about seizures or vomiting or headaches, I start crying because (unfortunately) I remember everything that happened that night. There should be more videos like this on the internet.
I have these seazures and i have found out over the years that sugar can throw you into the seazure. And it's best to roll the person onto their side asap. But you have to be very carefull
Perhaps your brain stopped functioning when the seizure came along. When you feel the aura, a way to prevent them may be: Going on your knees onto the ground. It should help. Sometimes, these things happen. You may have a sign of Epilepsy. Cya!😎
A childhood friend had these more than 50 years ago. Our instructions were much like this except we had not been told to turn her on the side afterward. Once, she was very near the porch steps and we worried she might fall, so my sister and I slid her back from the edge. Afterward, she would be tired, so we took her to her house and made sure her mom knew what happened.
1:41 I have epilepsy and something I’ve been told by my neurologist to tell others is in situations where there isn’t something to protect my head with, kneeling down and setting my head between your legs is safe and good so long as you aren’t restricting movement and simply cushioning my head.
had these for ab 6 years now, completely ruined my life hit me at the age 15, was athletic, very popular throughout high school… when they first started i was at a concert and i saw my friend turn blue and black out, we brought her w ems and 30 mins after she passed out i started feeling very weird, still don’t know how to explain it but if u have them you know what i mean. weird part is, it started in just my left hand, was never rlly that bad and out of control to the point where i could still continue normal life activities. as the years go on sophomore and jr. year they gotten worse, to the point i had to drop out of school because i would have one every 10 mins or everytime i would get up from my desk. got checked by doctors…not only reg docs THE BEST around me and i get told by 1 hospital it’s all physiological and that makes me boil… another hospital said i have these tonic seizures, so i looked into this vid, i recently just got diagnosed after 6 years of being told i WAS DOING IT TO MY SELF, and all in my “head”. i don’t take any meds, ik i’m stupid but ppl jus don’t get it. these ruined MY life! i lost all my friends from me distancing myself and staying inside my house for the last 6 years of my life depressed and stuck in a hole. i don’t have my License bc of it, i can’t get a job because i have these everyday at least 20-25 times throughout the day. i am 21 now and still a loser who doesn’t do shit normal ppl do, i feel like i failed and rlly wish i could go back to the days where i could jus be myself again man! i don’t talk to anyone don’t take any meds for anything etc, i have a rlly sad life and i feel like it’s coming to an end. i cannot go on another 1+ year let alone my whole life with this. it stops me from living my daily life when that’s all i want to do is go live my life. it is my teen years it ruined and now my early 20’s. i have so much going on i rlly don’t think there is such thing as being normal anymore, these tonic seizures have obliterated my life and ripped it in pieces, they also caused so many more problems w my life, now i have social anxiety, can’t leave my house, severe depression, no income at all, all that stuff i never had b4, i had anxiety but who doesn’t but was always very social and embarrassed myself most the time lmao, now i jus hide and stay locked up in my room, sorry i never talk to anyone i’m sorry for writing this long ass paragraph! i appreciate whoever read it all:) stay strong my #epilepticgang
Im sorry man, i just hope you'll go through all this one day, such that your life will be normal once again.... have also had these seizures for 2 years now and have marks all over my body from injuries caused through falling.... have these seizures once every 6 days.... i wish there was a way to stop them
It is hard I just try to tell myself I've got epilepsy but I'm no less of a person finding work with epilepsy is hard its more so finding a role that is suitable and an employer that is familiar with the condition that isn't terrified that somthing is going to happen to you at work I wear a beanie almost 24/7 now to cushion my head when it happens I do get a lot of people ask why or how can I wear a beanie during summer time in Queensland Australia as it gets warm but its well worth it got enough eggs and scars as for a licence the price of fuel is enough to scare me away from that lol 😆
I am here because for years my loved one has had complex partial seizures. About a week ago they suffered a tonic clonic seizure and required an ambulance. They were currently on medication. It was friightening but their carers did the right thing, kept calm and called the ambulance. It appears that this may become an issue which is so distressing. We are learning alll we can so we can do what is best for them.
High humidity and low atmospheric pressure is the reason why people get seizures! I found out because my previous seizure was during when the hurricane and I googled it and found out. And you are in jolly old England with high humidity.
people have know idea how nasty this really is i've had 3 in one day due alcohol withdraw was gonna die them back to back don't even remember the 3rd one when i was in the ER, i've had heart attacks, pancreatitis a lot, but this is unforgettable , let tell you something there is something thats way worse than pain, nasty of the nasty.. i'd rather cut my arm off then to go through that again..
What’s with “tonic clonic”? That’s a really bizarre, unwieldy name for a type of seizure. Grand mal had a dignified, regal-sounding ring to it…tonic clonic sounds like a “cleanse” involving hoses, spa music and a practitioner who says stuff like “ok, this part might feel a little funny”.
That’s scary! I nearly jumped when I saw this happened in the video to this woman. Actually I saw this happened to a fellow student who’s a diabetic, and I had no idea what to do except when I was with a group of people who were there when it happened. It was at the dining room at the cabin during s ski trip to Kirkwood Ski Resort. Her name was Sheila.
I’ve had a couple of these seizures, you never really appreciate what they look like from third person point of view. This video was difficult to watch for me especially after you experience one.
I saw my cousin have a seizure & it was the first one I ever witnessed. I now have them, ever since 2015. My most recent one was yesterday & before that, almost a year ago. Just when you think they're gone...
My daughter had a tonic clonic seizure (first seizure) today. I don’t know much at all about seizures and wasn’t sure if I was doing the right thing, but she was in the shower and I held her head up so she wouldn’t get water in her lungs while my husband called 911.
How is she doing ?? Did they figure out why ?? May I ask how old ?? I am a 27 year old female and just had my first , had an MRI and 2 EEGS done but still can't find anything . I hope she is doing well
@@GG-jiggles she is doing better. It’s been 3 weeks, but that was the absolute scariest day of our lives. She’s had a CT, MRI, and is waiting for the visit to the neurologist. We’re praying it was a fluke and she never has one again. We’ll be keeping you in our prayers too if that’s alright. 🙏
@@PanBread54 I would talk to her general Dr about it right away. We called 911 and went straight to the ER because she wasn’t breathing during the seizure.
Considering that the seizure in this video went on as long as it did it may lead you to believe that this was a real seizure. It if was acted out, kudos to that woman for being able to keep it going for so long.
@@danielledewitt1 I am well aware that tonic clonic seizures are real. I'm just wondering if this was someone actually catching video/film of a real seizure in this case. or was it acted out.
This was a very helpful video. I wanted to ask you something though. In movies and shows (because i have never witnessed a seizure in real life) they roll the person to their side during the seizure. What is the difference and which is best during such a situation?
My mom suffered her second tonic clonic seizure after a TBI that happened 6 months ago. Hope the medication can get her seizures under control. She had her second one yesterday and is now in hospital with a fever :(
Hi Thanks for your comment. This would be a difficult and scary situation. We're not aware of any official guidance on this in the UK. So, you would have to do what you think is right for the situation. You may be able to guide the car to a safe stop and use the car's hazard lights to alert other road users to an issue. And then follow seizure first aid advice as best as you can. However, you may not be able to put the person into the recovery position, for example. Regards Jess Epilepsy Action Helpline Team
I girl I know at work is temporarily out bc of these it’s really really sad. The worst part is her seizures are so long now she might have to collect disability despite her dreams of being a nurse. She worked too hard anyhow.
Every time I have a seizure I bite my tongue and pee my pants. I have had 3 in Walmart. I think I get overwhelmed in there. I am on Gabapentin now and it’s helped me a lot!
@@candacedawn357 that's a great idea! I'm blessed because I can send my husband or one of my sons. They're older and out of the house but they didn't have grocery delivery back when I was a single mom having seizures. I would have signed up in a heartbeat back then. Either way, I pray you do what's in God's will. God bless you!
@@josieshoxx Thank you! I appreciate the kind thoughts. May I ask if you have your seizures under control where you're able to drive? I just started having seizures and what I find the most difficult is being stuck at home. (My mother has been the one driving me to the store lately but we don't always stick together.)
I started having Grand Mal seizures in my early 20's and the doctors could not determine what was causing them. I even ended up having brain surgery to remove a large cyst they had found on my temporal lobe, however, the seizures returned shortly after the surgery. Now I was in complete desperation mode, losing hope and tired of feeling like a zombie with all the sedative drugs I was being prescribed. I then realized that God was the only one who could help me and after praying for about 8 months or so, his answer came to me at a 711 convenience store early in morning. I had purchased a coffee and added a non-dairy creamer to it and after only a couple of sips it started to give me my usual pre-seizure warning signal, which was a weird deja vu feeling. I then realized that it had to be something in that creamer since coffee itself had never given me any problems. It was the preservatives in the creamer(since it was non-dairy it required something to preserve it). So, long story short, I no longer eat anything with food preservatives, take no medication of any kind and 30 years later I am still seizure free! I thank God every day for giving me this insight because when I told my medical doctors about my discovery all of them ridiculed me and said that the acids in my stomach would destroy the preservatives. This was apparently not the case and later through my research on food preservatives I also found out that most of them are even carcinogenic. I hope this can possibly help at least one person out there as I know the horrible situation it is to have seizures.
Just watched an acupressure video about seizures and some people are saying it's helped them out of a seizure (pressure points in thumbs and big toes). Curious to try it next time
Thank you for your comment. During a tonic clonic seizure it is likely that someone’s breathing will become irregular and they may stop breathing at points. This can result in someone’s lips turning blue. After a tonic clonic seizure has finished the person's breathing should go back to normal. If they are still having trouble breathing after a seizure, or if a seizure lasts longer than 5 minutes, then our guidance says you should call for an ambulance. Rosie Helpline team
@@epilepsyaction Thank you so much Rosie. Your video has clarified exactly what I have witnessed. We were first diagnosed as hyperventilation but this was surely not the case. Our relative had her first seizure on the day she recovered from covid. There's very limited knowledge on whether this is covid related.
I started having seizures a year ago. I'm curious about everybody's after effects, because for me it's like waking up in a hellish alternate reality. I can't even explain it to people. It's the worst anxiety and just terror that doesn't even seem of this world. Are anybody else's that bad?
What's the best medicine or things you recommend so this doesn't happen? My sister does exactly the same as this when she has a seizure and this happens everyday. Lucky for her, it happens mostly at night when she's lying on the bed
Please do not use any sort of anti epileptic drug without a doctor's consultation. The doctor will firstly diagnose the type of seizure your sister is having. And then prescribe the appropriate drug. Don't be discouraged if the drug doesn't show the desired result, the doctor will make adjustments so he can find an appropriate drug regime for the patient.
You should visit a neurologist who can properly assess and diagnose your sister's seizures. They will provide an appropriate treatment plan, whether that be medicine, surgery, or even a possible diet change.
I thought we were supposed to make sure not to leave the person on their back because usually drooling occurs, sometimes foamy, and so does blood and so there is a real choking hazard. I experience this, and my loved ones turn me on my side to make sure those liquids drain, and at the same time they carefully put a rubber spoon handle (which they also say were not supposed to do) between my teeth to keep me from chewing my tounge all up, simultaneously fishhooking their finger on the side of my mouth to assist with the dangerous droolings. The spoon also prevents me from chewing the person's fingers all up. Unfortunately being in this side position has caused shoulder and elbow injuries, but I'd rather heal from that than choking, or a chewed tounge that prevents me from speaking and prevents me from eating solids for weeks. Anywho.
I’m in a tough spot. I’m in the military and have recently been diagnosed with narcolepsy and may have seizures associated with it. The thing is, I’ve had 6 incidents in the past 8 months, and three within the last 2 weeks. I live alone, and cannot tell if I had a seizure, but when I come too, I’m extremely fatigued/tired, sore, and many times incoherent. The last two incidents I had, there were people present, saying I was seizing. My neurologist has me scheduled for a 3 day EEG, but said that it still does not guarantee that a seizure(s) will be detected. Furthermore, I cannot drive, and have to be incident free for no less than 6 months before I can even me looked at retaining my driving privileges back. Every incident that happens, starts my 6 month clock back at 0. To make things worse, I’m coming up on the last leg of my Medical Board, and the VA has only rated me at 10% for the narcolepsy, stating that the medication I was on puts me in a stable position and controls my epilepsy, when in fact that is false. If there is anyone that can help me in any, I’m all ears.
Ask someone that loves you and ia a Christian if they can fast and pray for you. ( It wouldnt hurt) and I believe a magnesium supplement might be good.also see if u have a fever when u feel.confused see if thats any relation. I know God can heal us of anything.
After I read that scripture of the epileptic child I fasted and prayed for my son and I heard a voice in my sleep say " Give him magnesium". I dont know if its just for him but I know God hears our prayer. Also he used to get them. For no apparent reason now he only has gotten them when he had a fever. I believe soon he will not have them at all. This my suggestion as someone that cares. Regular healthy meals regular sleep pattern, if u feel.stressed ask God to take it away and magnesium supplemet.
They did a good video for beginners. But you should also call and ambulance if you notice any noticeable injuries on the head and injuries now on the rest of the body should be serious injuries. If its just a scratch or a normal boo boo just slap a bandaid on it after the seizure stopped.
Thank you so much...my boyfriend had tonic clinic seizure...can seizure be cure or prevent? I want to know this,if you had another idea, please tell me..I need your help,
There's no cure for epilepsy. It's usually controlled by meds, diet, surgery etc but it depends on the person. U can limit your chances by avoiding your triggers but it's not guaranteed. Unfortunately this is an unpredictable disorder
Had a tonic clonic seizure on saturday night. Cut my head in 3 places and the biggest cut had to be glued together. Far from epilepsy is where I want to be. Somewhere out there free and running.
I just experienced my first seizure 2 weeks ago at the age of 40. There were a total of 3 back to back and had my son not heard my fall, I would have died. I still have memory problems, can’t focus, confused etc.
I had my 3rd one in 10 years just the other day. I'm terrified of seeing the Auras again. I am traumatised. Overcome with a feeling of dread and every little thing I see I freak out thinking it's an aura. I'm so scared that if they appear they will never go away. And the long process of coming back to reality is so awful. Please help. I always fall unconcious.
I have POTS and it causes seizures. I have multiple seizures without coming round, it can last up to half an hour. My school always called an Ambo but luckily my work place realise I don't need one. I just need room and a fan
The video states you can't bring someone out of a seizure. My brother has seizures often in the tub. We take cold showers on a regular basis. I have hit him with short bursts of cold water, and it has instantly interrupted the tonic clonic seizure. I'm not a doctor. So I cant recommend this, just sharing my brother's experience.
People with Epilepsy were forbidden to marry in 17 states until 1956. The last state to repeal this law did so in 1980. < that's wild. I didn't know that until - now, after reading on the Epilepsy Foundation website.
But as a guy who has the generalize tonic clonic seizure I feel bad yesterday I had one in front of my 18 month old grandchild and she freaked out bad i hit the kitchen floor and she just balled crying 😢
I’m getting a protective helmet for my poor head that my epilepsy keeps battering. Got my head measured today and the lovely lady said it will be about a month and they are going to do something to avoid my bone anchored hearing aid being touched by the helmet. It can’t have anthing touching it.
i had a tough epileptic episode four years ago while i was in the car , and i made an accident , which resulted in head injury and irreversible neuropathic pain in the crown area , i was given lamotrigine and I've been on lamotrigine ever since , i never had even slight episode since that time, my EEG looks normal , it is kinda strange that doctors considered that what i might had was a stroke not a seizure because of the strength and the effect caused , my doctor will tamper off the medication once i get graduated from Pharm D next year and see the results ):
I like this video but I wish they would mention that when people come around they are often confused and disoriented. They might not be able to speak and /or they might speak in jibberish. It's helpful to be calm with them but also treat them as respectfully as possible. I'll always remember when I woke up in an ambulance after having a seizure while biking with my toddler child. I kept asking where my son was and they kept telling me to "be calm, everything was fine". This made me upset and worried. He was in a car seat behind my head, I was in a stretcher. He was happy to have the ride in the ambulance. Sometimes people would like to be filled in on what happened since the seizure, especially if they're in a different place and definitely if their children are involved! I always want to be assured of the safety of my kids.
I hate that feeling. It feels like I was gone for days. When I was able to stand I looked at a clock but I couldn't read it, the digital clock just looked like strange symbols. I know of a new medication which is valium in a nasal spray. Its pretty good.
I thought you are suppose to put something in their mouth because they could bite their tongue off. Hmm
Never stick anything in the mouth during any seizure plz
Agree I have not been diagnosed and still don't know what happened but fainted. When I woke up in an ambulance at the hospital all the paramedic kept asking me was I taking illegal drugs, tell him the truth and I needed to calm down. I had no idea where I was and how I got there. I am missing about an hour of my life with no memory and scrolling UA-cam trying to figure out what happened. I hate after being discharged from the hospital to be given a packet of paperwork to call doctors for appointments without knowing why to be told the wait is 2 months from now. For over 50 years I have been rather healthy minus the 50 extra pounds to lose according to the new weight guidelines to whatever this is.
@@caramelcandy4595 I'm in a similar situation. I've had two seizure or seizure-like events now and we still don't know for sure if they were seizures or fainting spells. After the first one it was about two months before I could even talk to a doctor or get any tests done because no one at the ER took it very seriously. After those first two months of me freaking out and trying to figure out what had happened, things had settled down and it was looking more like a fainting spell (syncope) as was suspected by several doctors. But then I had another one nine months later that seems to point more now to a seizure. At least this time I have had quicker follow up tests and doctors appts. but it's still all very frustrating. Plus now they have me on anti-seizure meds that make my brain even foggier and my memory worse. And it may not even be needed, but we don't know. I recommend researching POTS and Vasovagal Syncope as they cause events that can look a lot like seizures. Also look into PNES. God bless and I hope you are able to get some answers.
I’ve been having these seizures for over 20 years. I can’t stand to even watch a full video without crying.
Wow that's horrible...
Im so proud of you you faced this for 20 years you are the bravest
I have grand mal seizures too. Ive been to the hospital by ambulance so many times....
@@rjvowels you are strong and i wish only positive energy follow you and your health take your meds at time and stay safe
@@tathagatabasu3559 thanks 👍.
Epilepsy re-introduced itself into my life in 2019 due to the immense stress I was going through as my closest relatives were passing away and my work place at the time was less than sympathetic. For 11 years I succeeded in stopping my Tonic Clonic seizures without medication but moral and psychological support from family.. from 2008-2019 I was living a life without fear of having an attack... but they have almost caused me to meet my demise on numerous occasions... from having a seizure behind the wheel of my car and crashing, a seizure which resulted in falling 70ft down a steep cliff, one that resulted in me nearly drowning in my own vomit, to one where I nearly fractured my skull..
Epilepsy is hard to accept, but when you do it opens your mind to the fact you can continue doing what you love and living life... but you also learn to respect it's unpredictability..
Godbless all those out there who have it, we're all in this together.. ❤#epilepsyawareness
What I have learned As a Epilepsy Patient
• It’s hard to bear, but we cannot lose hope to get healthy one day. • We can reduce ratio of attacks, if we follow doctor’s advices in our daily routine. • We have to spread awareness about epilepsy, and show the world that nothing is impossible in life. • There are many people who are suffering from epilepsy, but they are living their lives very happily. • It’s a continuous struggle to keep Yourself focus on your goals rather then worry about your disease.
I've had epilepsy my entire life and ironically have never seen a seizure. This was helpful.
This is a great video with many helpful tips. I would only add that sometimes it's important to help the person to their side even while they are having the seizure when there's a risk that they may aspirate on their saliva.
Check on Dr OLUMU via UA-cam! He got cure for seizure/epilepsy.
You can get in touch with him directly on e-mail or WhatsApp
(drolumusolutioncenter1@gmail.com)
I thought it was only enough to turn their head to the side so they don’t bite their tongue and putting the entire body to the side may cause restraint with the arm or restrain them.
Guys I have see in my country when someone has Epilepsy they give his iron like some kind of unharmable metal pcs your door KEY or raw iron pcs etc anyone heard about it ? Once I saw it by myself with my eyes few min later patient was back to normal condition
Yes
This has actually happened to me before on multiple occasions almost just like this according to people that saw me fall out. And when you come to it's a crazy thing because you don't know what exactly happened and you are extremely disoriented and that doesn't even count what happens afterwards for the next three or four days of the constant pain and everything else that comes with the aftermath. I'm so glad this video is out there to teach how to help somebody!!! Believe me having a seizure is no joke!!!
I know what you mean on Jan 28th my new job I really dont know what happened. I could heat but can't respond. One lady who was supposed to be training me was saying get up you have work to do. When I broke out I didn't know where I was so one of the co workers drove me home. I someone called 911. I was in the ER mainly checking up. My boyfriend came over on Saturday I had another one. I called off from work today. My body just so out of it. Mentally I am afraid of people who work where I work now would ask me questions.
So like cellular damage from electrocution?
Memory loss, too?
Witchcraft are causing this to victims.Witchcraft must be found and terminated
You can terminate it by listening to the holly Quran
I really needed this. I’ve been doing everything wrong. My dad keeps having these seizures ever since his stroke 3 years ago. My mum was usually the one with him but now she’s passed. At least I know what to do now. Thank you
When a seizure like this occurs, the person will likely drool profusely. If their on their back like the woman in the video, they will be in danger of choking on their saliva. They will need to be positioned so that the saliva has a way of exiting. As hard as it will be to do, you must find a way to turn them on to their side or at least turn their head if at all possible. Or, depending on where they fall, find a way to elevate their head. Some people will fall and land on their side or on their front which will help the saliva escape.
Also, right after a seizure, the person won't be responsive. Then, when their eyes open and it seems as though they will function normally, they will usually be in a state of disorientation and speaking will be difficult, often jibberish.
Hope this adds to what you all saw. I'm the niece of a wonderful soul who has had Epilepsy he whole life.
Thank u❤
@@kellyddramaq8766
❤
Thank you for showing this my son is epileptic and I’m shocked just how many people don’t know what to do
This is great to know! I have a boyfriend who has seizures a lot, actually just witnessed one of them a couple days ago. I wish I would’ve know this before this time. Glad I was able to remember some things my aunt taught me from her work (she works with disabled/mentally challenged people) when I was a kid. Thank you for this informational video.
No problem Taylor. If you ever have any questions just let us know
I just had my first seizures about a week ago (that we know of). They were tonic clonic, incredibly violent, and the spams likely fractured my arm. I'm still not fully recovered. I'm lucky in the sense that I get auras, but I didn't know what they were until after the fact. I'm just lucky that my spouse is smart and knew what it was right away. We have been together for 10 years and I have not once had a seizure the entire time. Then a week ago, I had 6 in one night. I now share this video with everyone that is around me often, so they know what to do if/when I have another one. I'm heavily medicated for it, so I hope and pray it lasts a long time.
are you all good now?
This is insane! I’m sorry you have had so many. I just experienced my first seizure two weeks ago at the age of 40. My teenage son usually has his headphones on but luckily he heard my fall in the bathroom and I didn’t lock the door. He was able to call an ambulance, and was terrified because I have never had one before, this is such a great video.
@@adamunoz567 agreed, but i cant even remember when my first one was but i believe it was before I was 5 and im 23 now...im glad these videos are around to show how to deal with them.
I just had my first seizure while serving on a jury! I swear it was not an elaborate ruse to get out of jury duty! @SunshineBaby is spot on. As the shaking ended and I started to come around I was quite hostile to the paramedics. It was like me totally unfiltered. I was telling the EMTs to fuck off and dont touch me and said they're not taking me anywhere. I'm glad they didnt listen.
How are you now ?? First and only ?? Did they figure out why ?? I'm in the same boat. First one at 27 years old , MRI and 2 EEGS and they stj can't figure out why ! Did they ever figure yours out ??
my brother had his first seizure 2 years ago and he also told the paramedics to f*ck off 😭
My husband, during recovery from one of his first seizures, actually punched a co worker who was trying to help him! (This is wildly uncharacteristic behavior for him) When he has a seizure in my presence, I continually say, "honey, you''ve had a seizure," over and over until I know he is completely conscious. This helps dispel the confusion and hostility.
Wow interesting stories thanks for sharing
Great Experience I had with you DOC OKOUGBO UA-cam channel after using his herbal product & get cured from Epilepsy totally. Thanks so much DOC OKOUGBO UA-cam
i have been combating seizures since 1988--I've been quite fortunate as I've been able to go long periods of time without having a seizure (at one point over 10 years.)
but the spector of that next episode is always lurking. Take good care everyone 🙏
Same here - I was frequent until age 18ish and after that went 10 years but once I hit 45 - they started up again but still few and far between. I have had 2 in the past 3 years. Very scary for me and for those looking on but thankfully, the 2 I had in the past 3 years did not result in injury. I have banged my head and gotten stitches in the past.
What do you take for them? What is your protocol. Thank you
@@heatherdeaton2223 Vimpat 350mg daily
This is incredibly helpful, thank you so much! I recently hired a new employee with epilepsy and I want to make sure we all know what to do and how best to help him, if it happens at work. 💖
Link 👇ua-cam.com/channels/yCqbnbSgsco3rij1o_BTlQ.html
NEVER keep them on their back. Flip them on their side in case of vomiting or spitting.
@@daniellemims9384 👍
In the “recovery” position on their side, right?
wish you were my boss, no one i have ever worked for has done this. you sound like a great boss, your employee is lucky!!
I always know when it’s gonna happen and can sit down before I fall... I always feel the aura.
Me too...
Well get clobazam prescribed.
Same
Thank you for this video.
I also appreciate the description of what is going on.
As a person who has had tonic-clonic seizures for well around 10 years, this is useful information for those who are with a friend or relative who have them.
My mom and brother are very well-aware of what to do, like lay me on the side, take me to bed once the seizure ends and I can take the time to recover.
However, for me, the recovery takes longer because even after I come around, my limbs feel weak after all the jerking around and shaking.
Is it curable? Is it happen bcuz of genetics or some kind of viral or bactirial or neural disease?
@@mohammedhusain6446 Seizures are not based on diseases, no. At least, not for the most part. They're often caused by elevated blood sugar levels, a misfire of neurons in the brain and/or trauma. They can be controlled with good sleep, singing(stimulating the vagus nerve helps) and/or prescription drugs(which only made my seizures worse).
My tonic-clonic seizures are hormone-based, so they're not exactly curable.
I’ve had seizures since I was 5 and I still have them at 33
💜💜💜 i do apologize for bringing You back here after 2 months but... just a question, if You're okay with answering... do You hear what people are saying when You're going through it? Are You aware of what's going on around You? Can You see those around You?... if not, is it like 'You suddenly fall asleep' & wake up all tensed-up & not sure what happened the past minutes?... how is it like?💜
@@farahlajeennoural-deen4599 I hear, see and know things just before the blackout suddenly occurs and I try to speak before the seizure itself happens.
When I wake up, however, it's oftentimes very hard to swallow properly, the mouth and throat feel dry and your limbs feel weak, again due to tensing up so much. The convulsions also cause headaches.
It's absolutely not a pleasant sensation at all, especially if you try to stand up only to fall down again because you're so weak.
I have suffered with epilepsy for 15 years and very helpful tips to share with my friends when I'm out and about with them
Oooo my God thanks for this video...having breakthrough seizures hold down my life its so hard 🙏😭
I stand and embrace all my brothers and sisters with this illness just had one 5/4 of this month lacerated my eyelid and got a black eye stay safe
I have Epilepsy, and I have not been able to tell people how to handle it when I have seizures. Thank you for this video, I plan on sharing it with all of my friends.
I was incredibly lucky. I was on my own at home, when I had my first seizure. The pain when I came around was like nothing I've ever felt before. My back and arms looked like a bruised banana for weeks.
😮🥹
Very instructive. I got epilepsy myself since childhood and was seizure-for a while but it started again in 2012. I'm on medication. But what I know from my own experience is that it started in the pre-birth foetal phase of brain development where some of the cells were not in their proper place which causes electric waves, manifesting themselves as seizures. It's called heterotopia nodularis.
Coming around isn’t that easy. Speech is hard at first; you don’t just sit up and start answering questions. The confusion can last for a couple of days, taking into account that part of that may be due to concussion and lack of oxygen. Someone so rigid and shaking isn’t going to be breathing.
I had a seizure while driving. When the police arrived they started questioning me and asking what drugs I'm on. It gets me so angry that they were trying to make me admit that I was using drugs instead of letting the paramedics help me. I was so out of it when they were questioning me.
@@hoofhearted7671 That’s terrible! You can’t communicate clearly in a post-ictal state.
I have never seen a seizure patient and experience for the first time that happened to my friend this afternoon. I was so afraid and had no idea what to do so i tried to help by putting my finger to prevent her from bitting her tongue as i didnt know that it cannot be stopped. She nearly bit my finger off for more than 3mins. I thought i would lose my finger. Its still painful and numb. Thanks for this informative video. Really appreciate and get the ideas how to treat the person suffering from it🙏🙏
I have epilepsy, I showed this to my friend so she knows what to do when I have a Tonic clonic seizure, this helped me a lot because I had four seizures when I was around her in the past month
My sister has has seizures her entire life. She once had a tonic clonic so bad that it triggered hundreds of clusters. We rushed her to the hospital. They had to re-teach her how to walk and talk. She was only seven at the time. It was scary.
First seizure I had was in a room full of family members, apparently when I came round I started telling my husband off and I then tried to fight the paramedics omg how embarrassing 🙈 I've got no memory of anything until I was getting wheeled into a&e. I'm not epileptic but I have random occasional seizures for no apparent reason. It's so horrible coming round and being told about my weird behaviour 😕
same. i was very nasty lol. i felt so bad.
If you have random seizures for no apparent reason, then you are having epileptic seizures, and by extension, therefore have epilepsy.
There is a pretty famous pastor who is also a martial arts world champion. He had a seizure and was combative (I gather during and after). So they tried to put him in restraints when wheeling him into the ER on the gurney. But they couldn't keep him down because he's so good at getting out of them, being basically a ninja, lol!! I imagine he was very apologetic afterwards. Thankfully my seizures (if that's what they are. We don't really know for sure yet) just make me mellow and wiped out, so I'm not too combative when I start coming to. I can totally imagine getting super cranky with my husband while in that state, though, haha!
What makes ppl have bad reactions afterwards? I always hear of ppl yelling or punching someone and/or cussing. I hope I don’t ever have one but my small child is the only one in the house with me. I’m on a new mood stabilizer that can potentially cause seizures according one websites listed side effects. I’m only asking because he is 4 and I’m all he has so I would like to educate myself on the matter.
Avoid alchohol and/or any pills, if you can?
I do have child who have epilepsy so i like to save this video because we always took him to clinic
Also call the paramedics if the person is diabetic, pregnant or it happened in water. I'm with the epilepsy foundation and an epileptic
This is terrific! Very well done. Good not to put something in some ones mouth. Carole
I've had epilepsy for 24 years.. flip them on their side from the start in case of vomiting or even spitting. NEVER keep them on their back at any time
Relate this much...my husband 15 years suffering also generalized epilepsy
Wonderful video, thank you. I have epilepsy and was diagnosed just over a year ago, and I would just like to add a few extra things in case it could help someone who comes across this video.
If possible, you want to turn the person onto their side *during* the seizure (not just after), as to keep their airway clear from saliva and/or blood (if they bite their tongue).
Second tip, another time to call an ambulance is when the person does not regain consciousness soon after the seizure, or if they are violent and/or combative when they regain consciousness. When I had my first ever seizure, I apparently seemed to regain consciousness in the ambulance, but I was extremely violent and combative and screaming like an absolute maniac, probably because of the immense immense confusion and panic my brain was still under at the time. I still have no memory of any of it.
Lastly, a person may be extremely confused for minutes, hours, or even days after a seizure. My seizure last year, it happened at about 8pm at night, did not have any memory of anything whatsoever until I walked out of the hospital doors in the morning, but i was still extremelyy confused and out of it for another few hours couldn’t even follow a conversation still, and then had very heavy brain fog for a week after that. Yet my second seizure ever, totally different recovery process. But just know that it’s normal.
Great info sir.. 👍
People get combative in a postical state. It’s very common so don’t think you’re a bad person. You don’t have control and anyone who knows anything about seizures knows this. EMS knew for sure. I’m sorry you went through that, it sounds like a lot of stress how it affects you for days/weeks after and you are in pain for days after.
Just finished my semester thankfully suffered two seizures . Just had one two days ago early in the morning i which I bite my tongue black and blue :/ and I had one during midterms aug 31st I’m not sure why my seizures are so spaced out . But I sure wish I didn’t have them . Here I am now watching more videos on grand mal seizures because once again I suffered one
qaa
If this is acting, this is incredible. I believe it is because of the subtitles at the start. Even though I have never, ever had a generalized epileptic seizure, I can't imagine how traumatic this must be for the person suffering it. Possible ways to get rid of epilepsy may be, removing the lesion causing them, use anti-epileptic drugs, and stay hydrated. I sometimes jerk my arms a few times during the day, and I am thinking if I have myoclonic seizures. Not too sure though...🤔 Poor Alex.. 😔💔 Keep up the good work, Epilepsy Action.😎 thanks for spreading awareness in our amazing society. Cya!😎
You all know this but the most important step KEEP CALM DONT PANIC
I am a caretaker. And a lot of the individuals in my care are prone to seizures. A lot of them have a VNS, or a Vagus Nerve Stimulator. Which is an implant that uses a magnet to help seizures, or even stop them. This comes in very handy in many situations. Because seizures can often happen out of nowhere and it's easy to get overwhelmed when it happens. It's also very important that the person responding to the person having a seizure to be calm. It allows for a better outcome, I've noticed
At 33 years of age I just had my first seizure -- wouldn't wish it upon anyone; fortunately it happened when I was in the back seat of the car with my parents, incredibly lucky. My body is still incredibly sore, never knew I was that flexible apparently o.O. I wish nothing but the best for those who live through this
I'm sending this to my friends this is so helpful
Natural herbs are the best a herbal man help me with his medicine that help me
He can also help you
I appreciate this video very much, now I can help my dad with his seizures. I really love him very much and I hope this will help me
My mother had Grand mal epilepsy. She was on heavy narcs that didn’t help much. The worst part growing up, was the lack of knowledge about epilepsy, and trying to explain it to trained emergency responders, that she didn’t need an ER visit. Countless wasted hours spent at hospitals.
this such an amazing help I work at a school with kids and had three seizures at work already. and my coworkers had to help me to the floor and hit my head
I’m so thankful my tablets work it only comes on if any extreme stress occurs for me I’ve only had 2of these seizures in my life so far as I’m a epileptic my heart really goes out to those who have this condition as it’s very distressing 😪
When I was 6 years old, I had a tonic-clonic seizure. Before the seizure I started vomiting, then I lost consciousness. I had been in a coma for a week. Whenever I think about seizures or vomiting or headaches, I start crying because (unfortunately) I remember everything that happened that night. There should be more videos like this on the internet.
I have these seazures and i have found out over the years that sugar can throw you into the seazure. And it's best to roll the person onto their side asap. But you have to be very carefull
I had one of these today for the first time. It was strange. Never had one of those before
Perhaps your brain stopped functioning when the seizure came along. When you feel the aura, a way to prevent them may be: Going on your knees onto the ground. It should help. Sometimes, these things happen. You may have a sign of Epilepsy. Cya!😎
@@JackWinn-zh7gd I have been tested for epilepsy but don't have it
A childhood friend had these more than 50 years ago. Our instructions were much like this except we had not been told to turn her on the side afterward. Once, she was very near the porch steps and we worried she might fall, so my sister and I slid her back from the edge. Afterward, she would be tired, so we took her to her house and made sure her mom knew what happened.
1:41
I have epilepsy and something I’ve been told by my neurologist to tell others is in situations where there isn’t something to protect my head with, kneeling down and setting my head between your legs is safe and good so long as you aren’t restricting movement and simply cushioning my head.
Thank you for sharing this information with the world. #epilepsyawareness
Thank you for this informative & helpful video
As a tonic clinic, thank you!
Good Video, thank you! This looks so scarry and if you are not prepared for sth. like that I think people around can get really nervous...
had these for ab 6 years now, completely ruined my life hit me at the age 15, was athletic, very popular throughout high school… when they first started i was at a concert and i saw my friend turn blue and black out, we brought her w ems and 30 mins after she passed out i started feeling very weird, still don’t know how to explain it but if u have them you know what i mean. weird part is, it started in just my left hand, was never rlly that bad and out of control to the point where i could still continue normal life activities. as the years go on sophomore and jr. year they gotten worse, to the point i had to drop out of school because i would have one every 10 mins or everytime i would get up from my desk. got checked by doctors…not only reg docs THE BEST around me and i get told by 1 hospital it’s all physiological and that makes me boil… another hospital said i have these tonic seizures, so i looked into this vid, i recently just got diagnosed after 6 years of being told i WAS DOING IT TO MY SELF, and all in my “head”. i don’t take any meds, ik i’m stupid but ppl jus don’t get it. these ruined MY life! i lost all my friends from me distancing myself and staying inside my house for the last 6 years of my life depressed and stuck in a hole. i don’t have my License bc of it, i can’t get a job because i have these everyday at least 20-25 times throughout the day. i am 21 now and still a loser who doesn’t do shit normal ppl do, i feel like i failed and rlly wish i could go back to the days where i could jus be myself again man! i don’t talk to anyone don’t take any meds for anything etc, i have a rlly sad life and i feel like it’s coming to an end. i cannot go on another 1+ year let alone my whole life with this. it stops me from living my daily life when that’s all i want to do is go live my life. it is my teen years it ruined and now my early 20’s. i have so much going on i rlly don’t think there is such thing as being normal anymore, these tonic seizures have obliterated my life and ripped it in pieces, they also caused so many more problems w my life, now i have social anxiety, can’t leave my house, severe depression, no income at all, all that stuff i never had b4, i had anxiety but who doesn’t but was always very social and embarrassed myself most the time lmao, now i jus hide and stay locked up in my room, sorry i never talk to anyone i’m sorry for writing this long ass paragraph! i appreciate whoever read it all:) stay strong my #epilepticgang
I feel u my brother feel the same way it's so frustrating to see him suffer no normal life
Im sorry man, i just hope you'll go through all this one day, such that your life will be normal once again.... have also had these seizures for 2 years now and have marks all over my body from injuries caused through falling.... have these seizures once every 6 days.... i wish there was a way to stop them
It is hard I just try to tell myself I've got epilepsy but I'm no less of a person finding work with epilepsy is hard its more so finding a role that is suitable and an employer that is familiar with the condition that isn't terrified that somthing is going to happen to you at work I wear a beanie almost 24/7 now to cushion my head when it happens I do get a lot of people ask why or how can I wear a beanie during summer time in Queensland Australia as it gets warm but its well worth it got enough eggs and scars as for a licence the price of fuel is enough to scare me away from that lol 😆
I am here because for years my loved one has had complex partial seizures. About a week ago they suffered a tonic clonic seizure and required an ambulance. They were currently on medication. It was friightening but their carers did the right thing, kept calm and called the ambulance. It appears that this may become an issue which is so distressing. We are learning alll we can so we can do what is best for them.
High humidity and low atmospheric pressure is the reason why people get seizures! I found out because my previous seizure was during when the hurricane and I googled it and found out. And you are in jolly old England with high humidity.
people have know idea how nasty this really is i've had 3 in one day due alcohol withdraw was gonna die them back to back don't even remember the 3rd one when i was in the ER, i've had heart attacks, pancreatitis a lot, but this is unforgettable , let tell you something there is something thats way worse than pain, nasty of the nasty.. i'd rather cut my arm off then to go through that again..
I have epilepsy and have tonic conic seizures as well and it sucks
What’s with “tonic clonic”? That’s a really bizarre, unwieldy name for a type of seizure. Grand mal had a dignified, regal-sounding ring to it…tonic clonic sounds like a “cleanse” involving hoses, spa music and a practitioner who says stuff like “ok, this part might feel a little funny”.
Tonic clonic is a grand mal seizure.
That’s scary! I nearly jumped when I saw this happened in the video to this woman. Actually I saw this happened to a fellow student who’s a diabetic, and I had no idea what to do except when I was with a group of people who were there when it happened. It was at the dining room at the cabin during s ski trip to Kirkwood Ski Resort. Her name was Sheila.
I’ve had a couple of these seizures, you never really appreciate what they look like from third person point of view. This video was difficult to watch for me especially after you experience one.
I saw my cousin have a seizure & it was the first one I ever witnessed. I now have them, ever since 2015. My most recent one was yesterday & before that, almost a year ago. Just when you think they're gone...
My daughter had a tonic clonic seizure (first seizure) today. I don’t know much at all about seizures and wasn’t sure if I was doing the right thing, but she was in the shower and I held her head up so she wouldn’t get water in her lungs while my husband called 911.
How is she doing ?? Did they figure out why ?? May I ask how old ?? I am a 27 year old female and just had my first , had an MRI and 2 EEGS done but still can't find anything . I hope she is doing well
@@GG-jiggles she is doing better. It’s been 3 weeks, but that was the absolute scariest day of our lives. She’s had a CT, MRI, and is waiting for the visit to the neurologist. We’re praying it was a fluke and she never has one again. We’ll be keeping you in our prayers too if that’s alright. 🙏
@@GG-jiggles she is in her early teens
it happens to my 13 year old sister too. do you recommend taking her to urgent care clinic? we are not sure about our first step.
@@PanBread54 I would talk to her general Dr about it right away. We called 911 and went straight to the ER because she wasn’t breathing during the seizure.
Considering that the seizure in this video went on as long as it did it may lead you to believe that this was a real seizure. It if was acted out, kudos to that woman for being able to keep it going for so long.
Tonic clonic seizures are very real.
@@danielledewitt1 I am well aware that tonic clonic seizures are real. I'm just wondering if this was someone actually catching video/film of a real seizure in this case. or was it acted out.
@@84953 It wasn’t that long.
This was a very helpful video. I wanted to ask you something though. In movies and shows (because i have never witnessed a seizure in real life) they roll the person to their side during the seizure. What is the difference and which is best during such a situation?
My mom suffered her second tonic clonic seizure after a TBI that happened 6 months ago. Hope the medication can get her seizures under control. She had her second one yesterday and is now in hospital with a fever :(
I hope she was home and well very soon after.
What if you are in the car with the person and they start having a seizure at the wheel?
Hi
Thanks for your comment. This would be a difficult and scary situation.
We're not aware of any official guidance on this in the UK. So, you would have to do what you think is right for the situation. You may be able to guide the car to a safe stop and use the car's hazard lights to alert other road users to an issue. And then follow seizure first aid advice as best as you can. However, you may not be able to put the person into the recovery position, for example.
Regards
Jess
Epilepsy Action Helpline Team
Thank You!@@epilepsyaction
I girl I know at work is temporarily out bc of these it’s really really sad. The worst part is her seizures are so long now she might have to collect disability despite her dreams of being a nurse. She worked too hard anyhow.
Every time I have a seizure I bite my tongue and pee my pants. I have had 3 in Walmart. I think I get overwhelmed in there. I am on Gabapentin now and it’s helped me a lot!
I fear having one in Wal-mart and someone running off with my purse.
@@candacedawn357 that's happened to me!!
@@josieshoxx Yikes! I'm sorry to hear that. How do you get your groceries now? I was considering grocery delivery.
@@candacedawn357 that's a great idea! I'm blessed because I can send my husband or one of my sons. They're older and out of the house but they didn't have grocery delivery back when I was a single mom having seizures. I would have signed up in a heartbeat back then. Either way, I pray you do what's in God's will. God bless you!
@@josieshoxx Thank you! I appreciate the kind thoughts. May I ask if you have your seizures under control where you're able to drive? I just started having seizures and what I find the most difficult is being stuck at home. (My mother has been the one driving me to the store lately but we don't always stick together.)
I started having Grand Mal seizures in my early 20's and the doctors could not determine what was causing them. I even ended up having brain surgery to remove a large cyst they had found on my temporal lobe, however, the seizures returned shortly after the surgery. Now I was in complete desperation mode, losing hope and tired of feeling like a zombie with all the sedative drugs I was being prescribed. I then realized that God was the only one who could help me and after praying for about 8 months or so, his answer came to me at a 711 convenience store early in morning. I had purchased a coffee and added a non-dairy creamer to it and after only a couple of sips it started to give me my usual pre-seizure warning signal, which was a weird deja vu feeling. I then realized that it had to be something in that creamer since coffee itself had never given me any problems. It was the preservatives in the creamer(since it was non-dairy it required something to preserve it). So, long story short, I no longer eat anything with food preservatives, take no medication of any kind and 30 years later I am still seizure free! I thank God every day for giving me this insight because when I told my medical doctors about my discovery all of them ridiculed me and said that the acids in my stomach would destroy the preservatives. This was apparently not the case and later through my research on food preservatives I also found out that most of them are even carcinogenic. I hope this can possibly help at least one person out there as I know the horrible situation it is to have seizures.
Just watched an acupressure video about seizures and some people are saying it's helped them out of a seizure (pressure points in thumbs and big toes). Curious to try it next time
When the person is having seizures, will he/she be able to breathe during? And what to do if that occurs? Thanks in advance.
Thank you for your comment.
During a tonic clonic seizure it is likely that someone’s breathing will become irregular and they may stop breathing at points. This can result in someone’s lips turning blue. After a tonic clonic seizure has finished the person's breathing should go back to normal. If they are still having trouble breathing after a seizure, or if a seizure lasts longer than 5 minutes, then our guidance says you should call for an ambulance.
Rosie
Helpline team
@@epilepsyaction Thank you so much Rosie. Your video has clarified exactly what I have witnessed. We were first diagnosed as hyperventilation but this was surely not the case. Our relative had her first seizure on the day she recovered from covid. There's very limited knowledge on whether this is covid related.
I started having seizures a year ago. I'm curious about everybody's after effects, because for me it's like waking up in a hellish alternate reality. I can't even explain it to people. It's the worst anxiety and just terror that doesn't even seem of this world. Are anybody else's that bad?
When I have my seizure all that I had not one could I even remember the seizure at all I most the time won't remember much before either
0:38 Normal Brain Activity
1:10 Staring Spells
1:11 Unconscious
2:32 Seizure Stops
What's the best medicine or things you recommend so this doesn't happen? My sister does exactly the same as this when she has a seizure and this happens everyday. Lucky for her, it happens mostly at night when she's lying on the bed
Please do not use any sort of anti epileptic drug without a doctor's consultation. The doctor will firstly diagnose the type of seizure your sister is having. And then prescribe the appropriate drug. Don't be discouraged if the drug doesn't show the desired result, the doctor will make adjustments so he can find an appropriate drug regime for the patient.
You should visit a neurologist who can properly assess and diagnose your sister's seizures. They will provide an appropriate treatment plan, whether that be medicine, surgery, or even a possible diet change.
I thought we were supposed to make sure not to leave the person on their back because usually drooling occurs, sometimes foamy, and so does blood and so there is a real choking hazard. I experience this, and my loved ones turn me on my side to make sure those liquids drain, and at the same time they carefully put a rubber spoon handle (which they also say were not supposed to do) between my teeth to keep me from chewing my tounge all up, simultaneously fishhooking their finger on the side of my mouth to assist with the dangerous droolings. The spoon also prevents me from chewing the person's fingers all up.
Unfortunately being in this side position has caused shoulder and elbow injuries, but I'd rather heal from that than choking, or a chewed tounge that prevents me from speaking and prevents me from eating solids for weeks. Anywho.
I’m in a tough spot. I’m in the military and have recently been diagnosed with narcolepsy and may have seizures associated with it. The thing is, I’ve had 6 incidents in the past 8 months, and three within the last 2 weeks. I live alone, and cannot tell if I had a seizure, but when I come too, I’m extremely fatigued/tired, sore, and many times incoherent. The last two incidents I had, there were people present, saying I was seizing. My neurologist has me scheduled for a 3 day EEG, but said that it still does not guarantee that a seizure(s) will be detected. Furthermore, I cannot drive, and have to be incident free for no less than 6 months before I can even me looked at retaining my driving privileges back. Every incident that happens, starts my 6 month clock back at 0. To make things worse, I’m coming up on the last leg of my Medical Board, and the VA has only rated me at 10% for the narcolepsy, stating that the medication I was on puts me in a stable position and controls my epilepsy, when in fact that is false. If there is anyone that can help me in any, I’m all ears.
Ask someone that loves you and ia a Christian if they can fast and pray for you. ( It wouldnt hurt) and I believe a magnesium supplement might be good.also see if u have a fever when u feel.confused see if thats any relation. I know God can heal us of anything.
After I read that scripture of the epileptic child I fasted and prayed for my son and I heard a voice in my sleep say " Give him magnesium". I dont know if its just for him but I know God hears our prayer. Also he used to get them. For no apparent reason now he only has gotten them when he had a fever. I believe soon he will not have them at all. This my suggestion as someone that cares. Regular healthy meals regular sleep pattern, if u feel.stressed ask God to take it away and magnesium supplemet.
Thank You so much for sharing this video information!!
Rx tab epiford cr 500mg, tab albendazole 400mg , tab folvite 5mg, epilepsy stop medicine is ferrissium 5mg.
They did a good video for beginners. But you should also call and ambulance if you notice any noticeable injuries on the head and injuries now on the rest of the body should be serious injuries. If its just a scratch or a normal boo boo just slap a bandaid on it after the seizure stopped.
0:06 good to see Jaime Lannister helping a lady having a seizure
If you start the video at the moment he looks through her wallet, it looks like he's robbing her whilst she kicks it Gangnam style
I have a girl in my class with epilepsy and I will do this when and if she’s has one..
Thank you for this video.
Thank you so much...my boyfriend had tonic clinic seizure...can seizure be cure or prevent? I want to know this,if you had another idea, please tell me..I need your help,
There's no cure for epilepsy. It's usually controlled by meds, diet, surgery etc but it depends on the person. U can limit your chances by avoiding your triggers but it's not guaranteed. Unfortunately this is an unpredictable disorder
Videos could tell you what to do when someone is not feeling well
Great video!
Check on Dr OLUMU via UA-cam! He got cure for seizure/epilepsy.
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Had a tonic clonic seizure on saturday night. Cut my head in 3 places and the biggest cut had to be glued together. Far from epilepsy is where I want to be. Somewhere out there free and running.
I just experienced my first seizure 2 weeks ago at the age of 40. There were a total of 3 back to back and had my son not heard my fall, I would have died. I still have memory problems, can’t focus, confused etc.
I had my 3rd one in 10 years just the other day. I'm terrified of seeing the Auras again. I am traumatised. Overcome with a feeling of dread and every little thing I see I freak out thinking it's an aura. I'm so scared that if they appear they will never go away. And the long process of coming back to reality is so awful. Please help. I always fall unconcious.
1:09 if you just wanna skip to the seizure. Bye!😎
I have POTS and it causes seizures. I have multiple seizures without coming round, it can last up to half an hour. My school always called an Ambo but luckily my work place realise I don't need one. I just need room and a fan
The video states you can't bring someone out of a seizure. My brother has seizures often in the tub. We take cold showers on a regular basis. I have hit him with short bursts of cold water, and it has instantly interrupted the tonic clonic seizure. I'm not a doctor. So I cant recommend this, just sharing my brother's experience.
Started to have seizure this year at 19 and started epivale and didnt had any yet
People with Epilepsy were forbidden to marry in 17 states until 1956. The last state to repeal this law did so in 1980. < that's wild. I didn't know that until - now, after reading on the Epilepsy Foundation website.
But as a guy who has the generalize tonic clonic seizure I feel bad yesterday I had one in front of my 18 month old grandchild and she freaked out bad i hit the kitchen floor and she just balled crying 😢
White lights are like me always living my most ideal life perfectly no matter what.
I’m getting a protective helmet for my poor head that my epilepsy keeps battering. Got my head measured today and the lovely lady said it will be about a month and they are going to do something to avoid my bone anchored hearing aid being touched by the helmet. It can’t have anthing touching it.
i had a tough epileptic episode four years ago while i was in the car , and i made an accident , which resulted in head injury and irreversible neuropathic pain in the crown area , i was given lamotrigine and I've been on lamotrigine ever since , i never had even slight episode since that time, my EEG looks normal , it is kinda strange that doctors considered that what i might had was a stroke not a seizure because of the strength and the effect caused , my doctor will tamper off the medication once i get graduated from Pharm D next year and see the results ):
My little brother passed a few hours ago from one and its terrible to see what they go through
Sorry for your loss.