How Long Can I Go Without Ticcing?
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- Опубліковано 5 вер 2024
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TikTok ▹ / zeezee25
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FAQs ▹
1.What conditions do I have?
‣ I have Tourette's Syndrome, FND and suspected POTS
2. How tall are you?
‣ 5'4"
3. How old are you?
‣ 17
3. Am I in school?
‣ I'm currently studying art, music tech and English at college!
4. What is FND?
‣ fndhope.org/fn...
5. What is Tourette's?
‣ www.cdc.gov/nc...
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Tourette's syndrome is a neurological condition and disability which causes involuntary movements called tics. I use my platforms on social media such as TikTok, UA-cam and Instagram to advocate and raise awareness for the condition and show what it is like living with a disability as a teen in school.
My name is Zara Beth (zeezee25 on tiktok) and I post videos about tics, tic disorders and what its like to be a teen living with Tourette's syndrome, Functional Neurological Disorder (FND) and a seizure disorder (NEAD/NES).
I show what its like having tics and Tourettes in class and in school and college, vlog, and I also bake, do other challenges and answer all your questions in Q and A videos.
I am also an ambulatory wheelchair user so I show what life looks like using various mobility aids and how needs change from day to day!
I am also a musician! My newest release is my first single (original song) called "She's Mine" which is now available on all streaming services - I sing and play piano, guitar, ukulele and I write, produce, mix and master all my own songs and content myself!
My record is 34 minutes. No meds. During an exam and it was hell suppressing my tics for that long.
that's a long time
Omg, suppressing my tics during tests is TORTURE!
I can go about an hour without ticing, but then I get thinking about ticking in class or during a test. I had a tic attack during a test and had to leave the room till it was over. 😩
Good job bud!
You are so beautiful. And your acceptance of the Tourette's is amazing. You never seem bitter, you just handle it. God bless.
👏👏👏
So true!
People are allowed to be bitter about being disabled. Let's stop this toxic positivity where everyone has to accept it so they dont make others uncomfortable, and instead promote learning to live with it.
@@whatsthislmaoo thats what they were doing.
@@whatsthislmaoo this isn't toxic positivity. It's encouragement. I get the impression that it doesn't bother her what other people think. And that's the way it should be. It takes a really brave person to feel that way. She's living her life the way that she wants. If someone doesn't like her or accept her disease, there's a hundred people who love her for who she is. The others don't know what they are missing.
Go find some Billy goats to torment.
And,YES, Zora, I'm talking about you like you aren't here!
:-)
I literally just had somebody tell me I didn’t have Tourette’s because I did a video without ticing for three minutes… thank you for spreading awareness.
This is why it’s also unhelpful if people are constantly treating you differently or reminding you that you have tics. then you’re thinking about the tics and trying to suppress them which just makes everything worse.
I know, people need to remember things like this (I was thinking this: If she suppresses her tics it'll make them worse) there Is a girl in my guides unit that has tourrettes and she help out in rainbows so she usually holds in her tics so she doesn't scare the little ones so later that day when guides started her tics were worse since she'd been suppressing her tics so they got worse this shows that they can get worse
Gosh I didn't realise I typed that much .-.
I swear you’re so beautiful 🤩 I think that it is amazing how accepting you are. Honestly I can’t get over beautiful you are.
Question: what is the worst tic that u have had
Yea
I’m not Zara, but most people would say the tics that injure us, injure others, or slurs are the worst ones. Some people don’t have any of these types of tics though so ofc it’s different for everyone.
Probably the neck ones (I would guess but idk)
@@ToasteezYTYea that’s fair those suck especially when you have them a lot, she said she hates the neck ones in a video before. I have a lot of neck tics and boy am I sore at the end of the day, plus I already have a messed up neck😭
She hates the neck ones but one of her most common bad ticks is anything with the word f*ck
How dose a tic feel like? I understand if you don’t know how to describe it❤
It’s very different from person to person, but for me i get an urge before i tic. It’s almost a tingling electrical uncomfortable feeling. Then when i tic, the urge goes away, wich gives some satisfaction in most cases. Sometimes i can’t satisfy the urge, and i have to tic multiple times in a row. Hope this helps a bit :’)
its different for everyone, but a good way to describe it is that it feels like a sneeze!
personally it feels like a build up of anxiety if I'm trying to suppress them, if not its more like a urge/knowledge of what's going to happen
For me, I'm not medically examined (I haven't been to doctors for check-ups since I was very young), but I do kinda twitch or tic(?) When I'm either tired or very anxious. It kinda feels like a building pressure somewhere, and it happens then it goes away, but if I can't, my body does this weird thing where it does multiple small ones until the bigger one comes out. Idk if that helps, tho.
A girl described that for me ...she said it feels like when u have hiccups 😒.. like u can't stop it and kind of know it's coming. Interrupts you but you can still continue a conversation or do your cooking 🍳 or whatever you are doing.... that's the simple way to explain it for us that don't have it
You know UA-cam is on crack when it says 0 comments
Omg happens all the time 🤦♀️😭
@kittycatandfloppa5182 or ur just lagging 🙄
Omg innit 😂😂
Absolutely inspiring you trying to spread awareness of a relatively misunderstood illness. I hope you find your happiness in life and get everything you want. Love from the US❤
I love your bedroom I think you should do a tour ❤
I love the noise that you make it is ADORABLE
Thank you for your revelations. Do you have tics while sleeping?
nope! no one tics in their sleep! :D
I don’t have turrets but as far as I know it’s impossible to tic in your sleep because tics can only occur if your mind is conscious.
Actually it’s not impossible to tic in your sleep, it’s a more recent scientific discovery though. Studies showed anywhere from 13-100% of participants had tics during sleep (I can provide a source if anyone wants). It seems to be more likely during active sleep phases and if you have moderate-severe tics, but a lot of people don’t realize it happens because they’re asleep. (Also my partner told me I tic in my sleep a little bit, and I’ve seen one of my friends tic in their sleep, so I’m pretty sure it’s not impossible😂)
Oh and I’m not trying to attack anyone, I just find this newer discovery fascinating tbh, and it did used to be thought that it was impossible.
@@SystemError1466 no that was really imformative! thank you!
Do you tic when you sleep? ❤
I've always wondered this, I hope she sees this and answers it for you!! 💕
No, i waatched a video on an australian girl with HORRIBLE tics, her mom said "When she is asleep, she is like an angel" so that is her saying she doesn't tic at ALL. Hope this helps
@@kylevarney-pg5sj thank you!! That's really helpful, tysm for answering! 😇
I sounded sarcastic, sorry! I genuinely mean it!
It’s possible (studies show around 13-100% of participants tic in their sleep) but plenty of people don’t and the tics are usually mild compared to when you’re awake from what I’ve seen/heard/experienced. Zara has said she doesn’t know if she does since she’s sleeping😂
(Not trying to attack anyone btw, it’s a very new discovery, I just find it fascinating😂)
I love your videos and I found it very interesting, like I love learning about illnesses and for me is really cool to know about it, your tics wont ever change what you are, because you are amazing and its incredible how you lead with it, ly❤
You are beautiful and amazing keep living your best life and love every moment of it
You are so pretty. But also wanted to share that I somewhat know how you feel, some of the symptoms before you faint are what happen to me when I have panic attacks. You have really helped me through all of this! So I think you should keep going and keep posting I love all of your videos.
OK, I'm sorry but like I've seen your videos on my fyp for a while now, and I just want say your honestly so pretty!
You're so beautiful and I love you and your videos
Have a great day!
Don’t worry I know what your going through. I have ticks to.
It goes and come but when I have it I feel that people think I’m a weirdo. God is with you. I wish u the best
another question over hereee:
Can you feel when your tics are coming??
someone with tics here: some people can't, some people can, but with therapy you can learn to recognise when they are coming and do things called 'repeating responses'. So once you are trained to regonise when its coming, you can then do something like stretching your arms or fixing your posture which usually can satisfy the urge, and greatly reduce the amount of tics you have (sometimes the repeating reponse doesn't work but its a useful way to keep your tics in control in public spaces and stuff like that)
Personally i can :)
You are drop dead gorgeous like I don’t understand how you don’t see yourself as perfect (I know your not supposed to) but if I were you I would have thought I was perfect 🤩
Honestly she is probably the only influencer that I believe actually has tics because it’s just so believable and she films herself in all of these weird places you would ever Al want to fill but she does it just when she has a tic not “ whenever she wants to”
I❤u ur just amazing and beautiful
Question: do you use a Tourette’s tic tracking app?
I started getting ticks a month ago, and today it has been really bad and I had a yoga class so I couldn’t stop shouting and making noises. I find it hard to control it but being distracted is helping me so much and you have been a life saver
We tried this with my dad a while ago as he also has To it and it's true that when you're not actually thinking about suppressing it. It takes a lot longer but it isn't as verbal. It's more physical meaning. He could go about 5 minutes without a shoulder twitch or Neck twitch. If you get what I'm saying, but I suppose it's different for everyone. This is severe in a way that he can accidentally cause physical harm to himself by dis locating something. Ultimately, try to suppress it for too long. so ultimately I find it quite interesting. Help different everybody's to write screenacts and how some people can suppress it for a long. of time. And some people just can't.
I love your clips but I struggle with paying attention because I just love you decor so much. Do you have an Amazon-list with the tapestries behind you? Thank you for sharing, love following your journey
i have to admit that i kinda love your little nosie noises...they're cute❣️
My tics are always so aggressive 😂
I tic constantly all day, but my work colleagues look out for me. I feel that if I hold it back, I'm more fatigued, so I just let it happen... sometimes it's funny, sometimes not, but either way, it's me, who I am now, and I I just take it in my stride...😊
I also get tics but it's not as bad as you. I can hold in a tic but I have to let it out eventually but when I do it's really bad and it's kinda hard to hold in so I kind of understand stand your life it's just that my tics aren't as bad as you but it's getting worse the older I get
The tic sounds are NGL adorable
That’s kind of a really weird thing to say
Dude I’m the same way, and when I realize that I haven’t ticced for a while, it makes me tic
WHY R U SO DAM PRETTY
You are a beautiful person and tourettes are a unique part in you❤❤
Will You do other drawing videos? You are one of my favorite UA-camr 👍
You are soooooooooooooooooooooo lovely you made me understand tics more and how you juggle tics school and music I find it crazy you are s hero
her ticks (in this clip) is like a small sneeze, i wouldn't think anything of it
if was next to her in public.
The tic you have is cute, it sounds like my smallest dog when she’s dreaming🐶
I have lots of respect for you being so open about ticks and not getting inbarest about your tick I’ve known people with ticks and they get inbarest a bit so you have respect from me
That "wow" was brutal 😂
You are extremely beautiful! And your tics make you look cuter ❤
I think your tics are cute!
Aw you cope so brilliantly with your touretted and your fainting and dizzy spells, you're a true inspiration to so many and such a lovely genuine down to earth person. Lots of love from Liverpool ♥️♥️💖♥️💖♥️💖♥️💖♥️💖♥️💖💖♥️♥️💖♥️💖♥️💖💖♥️💖♥️💖♥️♥️💖
We have the same chairrr
Your really pretty I envy you
This is intriguing. I love learning about people in the world and how we are all the same yet very different. 😊 ...you say though you can edit videos without ticcing...what about if you ticc in the video you are editing? If you see yourself ticc will you do it in reaction or is focusing on editing busy enough to keep your mind off of it? ❤
I wanted to ask a question but I am kinda worried if it’s offensive, but the question is.. does ur school know about your Tourette’s? And do they accept it? Cause for me in my school the teachers don’t really accept anything they don’t even accept autism.
Yea her school definitely knows she has Tourette’s. Legally they have to “accept” it, disability discrimination is illegal in most countries. If you or someone you know is experiencing issues with teachers discriminating, I’d speak to a counselor or principal and get the parents involved, most schools will want to avoid a lawsuit. Good luck, I’m sorry your school is like that❤
@@SystemError1466 thank you for answering and it’s ok, the teachers at my school always defend eachother and need evidence if they did something wrong even tho they ripped an autistic person’s notebook
@@rainining No problem! I hope you and the other students will be okay until you get out of there. Have a good day!❤️
@@SystemError1466 thank you so much. I really hope I can vent more abt my teachers cause they really are cruel, and hopefully soon all of us well be out of this school just 5 years more! 🤍
@@rainining Yea I’ve had some pretty rough experiences throughout school, me and the school system just don’t mix very well. My best advice would be to try and find those ride-or-die friends who will treat you right, and find the things you’re passionate about, and hold on to them with everything you’ve got because they’ll keep you sane. And I know it’s been said a million times before, but it really does get better and you will get out of there one day. Best wishes to you and all the other kids at your school, hang in there and it’ll be over sooner than you think!❤️
“I can kind of do it” *immediatly has a big one* lol anyway you’re gorgeous omgg at a church camp there was this girl there that looked just like you, not even kidding she was a doppelgänger
I love your vids so much quick question do Young kids think your weird if you tic in public 🤔
The END IT was hilarious "ahi Wow Ah"
I love your video and I hope you get better ❤❤❤❤❤❤💌
I have a tic to it’s when sometimes when I’m not doing anything I make this hum noise and if I think about not doing it then I do it but if am busy doing thing like u said it goes away but it’s gotten a lot better over the years
You're so cute, I freaking love you ❤
You are amazing
❤😂🎉
Do you have tics while sleeping?
Nope!
I was gunna ask that too!
Some people do (around 13-100% of participants in Tourette’s sleep studies had tics during sleep) but Zara has said she doesn’t know since she’s asleep😂
(This is a newer discovery btw, so a lot of people were taught that it’s impossible)
@@SystemError1466 oh I guess that makes sense😂 when I am sleep I obviously wouldn't know but I just assumed I don't, maybe I twitch though
Awww your tics are so cute 🥰
Yes this is true, I don't have tourettes but stress being cold and thinking about it are the things that make my tics worse, along with sensory issues due to autism, like paper mache, I ca t touch it without my right arm throwing across the room whatever it is holding, I also bonk my head on my headboard alot, rip
Your tiks are beautiful 😍
As someone who has tics it can be very frustrating, But I try to suppress mine 99% of the time when I'm out places so, they end up just coming back to bite me lol
So like you know the nervous tics? I get those a lot, when I was younger I had them bad but it’s like little now. My friend was diagnosed with tics last year.But girl you stronger are than me
My tics on different days are like i wont try annoy her but somedays (today) are like im going to annoy her so today i just had 5 minutes when i didnt tik
I just went through a period of like a week without any tics, and they're coming back for revenge XD
These past few days I've ticced double what is normal for me.
I find they're like sneezes, you can try to hold them in but it will not be pretty.
Also they get worse with stress so when I'm on phone calls with friends or in class its a lot more often than when I'm alone.
Do you get tics while your asleep pls answer
Some people do (studies showed around 13-100% of participants had tics during sleep) but most people don’t even realize it happens. Zara here has said she doesn’t know since she’s sleeping😂
I HAVE A QUESTION:
Do you ever tic midway through a word?
Hi!
Ur so pretty❤❤❤❤❤❤❤
Omg you’re so pretty 😁
hey so I need some advice
my friend has recently been diagnosed with toretes after having symptoms for a while. one of her tics is putting her middle finger up and she gets super upset with herself. so I want to know how I can reassure her that its not her fault. ❤
Maybe showing her videos of other creators with Tourette’s? So she can see that it’s not her fault, she’s not alone, it’s ok etc. Also make sure that she knows that you know she can’t do anything abt it. The worst feeling is thinking others think you’re doing it intentionally :’)
would check back through both this channel and ticcingtogether. 90% sure one or both creators has the middle finger tic too, but it's early morning so can't remember which.
Glue her fingers
How do you fall asleep? Ive been curious about it 🤔
i’ve never had experience with Tourette’s
but watching this video made tics kind of seem like a sneeze. you can try to hold it i. but it’ll come out eventually
U are probably one of the cutest things out there ❤
You're gorgeous! I absolutely love you! Question, though... to you... how long is "quite a while" without a tic? Like 3-10 minutes? Half hours? Hours? Just very curious...
I have a question i tryed to ask on live, how do you sleep with tics?
How do u do make up with tics
Thank you for helping me with minor Tourette’s
Do tics still affect you while you’re sleeping? I know you won’t be conscious to know but like have you ever woken up because of them?
You are cute. With or without tic. Maybe tics bring you more cuteness.
I feel interested in touched byTourette, Autism, RSL, or Alzheimer. I wish I could help in any way!
God bless you child
Ur so pretty 😍
Just wondering, how do your parents feel about your swearing tics?
You are the most beautiful girl I've ever seen
Sorry if it’s too off-topic and super late compared to how long ago this video was posted. But I really love the flags(?) hanged on your walls, where did you get them ? I see so many people with similar ones but I don’t know where to buy them
“I can kind of do it”
*immediately has like 5 tics at a time*
I also have Tourette’s and in my experience you can hold in tics and suppress but eventually they build up and always come out
I have tics too and it’s really annoying
I have too tics 😌😌 you are Not alown
You are beautiful ❤❤❤❤
“I can kind of do it-WOW” so close but so far lmao
Heyyy❤
Not to be rude or anything (sorry if it comes that way) but why do Ur tics come forward more when u make vids on tics? Is it because your more conscious of them?? (That's me with eye contact lol so I kind of get it). Also love ur content btw
That happens to me too! Like when if focused on something I don’t really tend to tic as much? Is that normal tho 😅?
Just to let u know that tics are the naturalist thing a human can have? So don’t be embarrassed❤🎉😊
I’ve had tics for a long time. but your are somehow very attractive
How do tics makes a difference to appearance..?
@@DizzyfrogLiterally wtf
I kind of realize now I’m a bit luckier with my tics all I do is roll my eyes especially when I’m tired oh nervous
Your “wow” tic is asmr to me 😂 😅
I have tourettes and i totally i understand u❤
I'm confused about a tic. Like why does it involves sounds, and what can cause a tic.
You are so Cute, 😢😍 and so strong person, love ya.
God bless tHat you won't get hurt from your tic