it's okay - there are downsides but it's also given me a lot of perspective and i've found this community and my job as an advocate/content creator! 🩷 we don't always need lots of sympathy, we just need understanding :)
Hi, I think that most of these should things that engineers and designers should work on. Adaptations could be things like playing Hide & Seek with music or background noise or white noises. Libraries should provide spaces like enclosed cubicles, or something similar, a Stylist could schedule a specific time where you'd be alone or with family etc. Everyone should be accommodated, and differences can make diverse spaces and experiences.
@SadBreadLoaf - They mostly can, its just different, anyone can so anything they set their mind to. Its not a “dis”ability, just a different ability :) you can be successful in anything you desire:)
i know why people say this, but disability isn't a bad word! we're no less just because we're disabled, and the label isn't a negative thing - it just tells people that we need accomodations and can't do things the same as able bodied people :)💖@@kaylasmusic
I’m a 73 year old man. When I was in elementary school in California, about 1957-58, there was a new girl came to my class. Without warning, she’d yell out, “NUTS,” repeatedly. After a few times of this, my teacher sent her to the principal’s office. The next day it would happen again with the same results. After about a week, I never saw the girl again. I would assume she was put in a “special” school. I later learned, while in high school, about Tourette’s. This was in the mid to late 1960’s. I would assume in the 1950’s Tourette’s was not very well studied. Now, I can only imagine how hard it must have been for that little girl. It makes me sad to think about it to this day. 😢 Bless you. You are probably helping so, so many kids and young adults deal with and understand. You’re a saint. ❤
My kiddo (aged15) also has Tourette’s, they go to a special needs / Autism friendly hairdresser, she’s fab works around the tics and doesn’t take offence to anything. ❤ Also we call hiccups that are tics.. ‘tic ups’
As a young teenager who has recently started severely ticing and is struggling a lot with it, your YT channel brings me so much joy and support as we figure out what is happening. I look up to you a lot. Ty ❤️❤️❤️
i have tourettes too and this video is something i can connect to, it’s really great to see I’m not the only one who cannot do these things, makes me emotional.
Omg so I drive and have tics and I get the flipping people off tic. I only have that tic on a bad day but it gets quite embarrassing seeing other drivers reactions. I'm so grateful that I can drive though because its a big hobby of mine. Can get a bit complicated though lol. I feel you on the library one. I'm at uni so the number of places I can study is quite low 😬
how are you allowed to drive when you can have these involuntary movements? asking this completely neutrally, as a fellow disabled person (neuromuscular disease). because it sounds highly dangerous
About the cinema thing: I’m not sure where in the UK you live, but the cinema chain Picturehouse does autism friendly screenings - I don’t know if it’s only for autistic people, you would most likely be allowed in if you asked, but it’s basically a movie screening where you are free to make as much noise as you need to, get up, walk around and do what you need! Hope this helps 💖
Thank you, I was just about to mention this. I go to the disability friendly screenings because of my epilepsy and it's great because the movie theater even has a nurse present and it's also amazing to meet people in the community :)
Thank you for talking about this. I have fnd also. So verbal and physical tics on top of the seizures, spasms and paralysis. It's so hard to help other people under what we go through. You're awesome!
Hi Zara. I'm a new subscriber and I love your videos. I'm living with a chronic illness too and it can be hard but I don't let that stop me. I'm 14 years old I wish I could meet you in real life especally your dog and cat I love animals. Keep up the good work. Love you.❤❤❤
Thanks so much for sharing your life and story. It's always interesting to learn what other Neurodivergent individuals go through in life. As humans it helps us to be more empathetic and understanding. 💜
When you mentioned bopping people on the head I remembered one time in college when I ticed and hit my professor on her behind when she walked past me at that time she didn't know I had tics and almost reported me. And I gave my dad a nosebleed on Christmas and he still teases me about how I gave him a bloody gift.
I was just diagnosed with Tourettes in August, but have struggled with tics since 7 years old. I love ur vids❤ I can relate to most of these, except I haven't gone to college yet tho. I rlly do look up to u and love u❤
Hi, im 16 year old i have this kind of problem im suffering from this from birth i have also same problem before now i even dont no i have have tics or any disoreder even my parents dont no about this they always angry with me they thought that this is my habit my tics got worsen while writing walking playing games and i did not know what was happening and always thought that im alone on the earth who is doing this and sucide thought was also came my teachers always ask in front of teachers when the tics happen but today I found your channel and watch this video and literally i got relief that im not alone found comments regarding this really i can relate your whole problem thank you so so much for making videos on this topic you are like my sister😭😭❤
As someone who has experienced Tourette's as a second hand a lot of my family and friend have Tourette's, I love watching your vids and seeing how positive you are towards it not letting it control you.
I watched a short of yours a few minutes ago and I immediately thought, she has Tourette's. The reason being, I also have Tourette's. So it was exciting to find that it was true. All that to say, I appreciate you sharing. It's always nice to hear from a fellow neurodivergent.😊
Today I've learned that UA-cam auto-captions have no idea what tics are. Most of the time it was spelled "ticks," like the bug, but it was spelled "tiex" at 9:23. *sighs at UA-cam auto-captions*
More videos like this will educate us more & which in turn will increase the tourette awareness globally. Don't stop😊. Thank you, from an old Canadian ❤ 🇨🇦 🍁 ❤
I am confident that everyone has a different and varying experience with Tourette’s so maybe mine just isn’t as bad (I have Tourette’s from PANDAS)or toned down by the monthly IVIG treatments (I go to because I can drive). Although it used to be absolutely awful for me. I have this pattern that all has to do with the number 5 I can try to explain it it’s pretty much I just say one over and over really fast in my head then I go to two then three then four then I go back to one I repeat this four times and say five in my head a bunch and if I don’t “mess up” I’m done” (it mixes with OCD). My motor tics were so bad that I had bruises on my knees. I would bang them into the metal bar under the desk at school over and over until my “process” is what I like to call it was over. I also used to dab (weirdly before dabbing was a thing or was known as dabbing) I would do it over and over then there was blinking excessively and sniffing like (it’s hard for me to describe it) but I guess it’s kind of like a dog. I also cleared my throat in a repetitive pattern. Now days though it’s more just blinking, jerking my head, and this weird movement of the foot that kind of like pops the bones in it over and over. But thanks for the video!
Your tics really want you to make music I have ADHD and doesn’t matter if it’s quiet or loud, I will be stimming a lot. I *CAN’T* be in libraries due to my stims making sounds or phrases such as a plane sound, the moai meme (don’t ask), popcat, wowza, or simply *bap* or *bonk* poggers,pog, pogchamp, live laugh lovejoy, yippe, and more..thanks to the Dream SMP and the bands I listen to. Much worse if my physical stims pop in, I will hit the books, me, my head, anything. I have like 100 stims- oh and I have OCD, I will stress a lot due to my unwanted thoughts, wanting to keep books even and to top it off and make it worse… *I HAVE HYPERHIDROSIS* which is a disorder making me sweat really easily, so I can’t really touch books because then I’ll sweat a lot and make the pages wet, I hate it, It’s the worse thing ever, if I’m gonna be in a library or somewhere that requires paper or metal, I NEED A SINK NEARBY. yes I type a lot, I’m a fast typer and ADHD will have me in so many topics, DEAL WITH IT. :D Yippe
I'm on the spectrum and i have ocd so can relate in a lot of ways about how my brain just takes over and makes me do things i often cannot understand why. I Like that mindset you have of not dwelling on what we can't control :) Go Zara we choose happyness. I write it with a Y because it your choice whether to live a happy life or a frustrated or unhappy one. I'm glad we both chose to pursue the happiness route in life.
I also had accommodations, but it was on my second time at university and I did so much better because I was actually well supported by a disabilities advisor who setup and allowed for the accommodation like a quiet room, with a computer, spell checker and extra time so I could understand the questions or take breaks if I was overwhelmed etc. Funny thing though one exam time I was in a room with another person who had an assistance dog, but I have severe allergies to dogs, where I can't breathe properly near them. So that day was let's just say difficult. I had to ask to be moved to another area/room.
I'm glad my one and only vocal tic is fairly discreet and doesn't cause me any problems. Although my facial tics almost got my ass kicked one time by a guy who thought I was making eyes at him.
I think school should teach us about neurodiversity. Honestly, our health education at school consisted of the teacher showing us pictures of private bits and that was about it. I'm now self-educating myself on UA-cam about neurodiversity, LGBTQ etc. But I feel like it should be a mandatory part of everyone's schooling to learn about human diversity.
Stay strong and live your best life and try not to live other people's way of life. You're doing great 👍 ps i am old now but have had neurological issues for 40 years. Stay strong, and don't get over tired. I have used a wheelchair on and off for 20 years my MSA charges. Your doing great god bless 🙏
Hello Zara I’m so happy to have discovered your channel. I don’t have Tourette’s but had a friend I worked with whose cousin has Tourette’s and would hang out with us. We would go to the mall together and out to eat or just generally go out places where her cousin would tick a lot. Your ticks are cute. Even when you swear, it’s cute but that’s because they are soft and quiet. I’m sure they aren’t always this way. My friend’s cousin on the other hand has very physical and loud mainly profane ticks. While we were walking through the mall, some people would laugh and point while others were quite cruel. When it happened, it would be very quick and we just carried on with no attention paid to it. It was quite embarrassing for her but she couldn’t help it. By sharing your experiences and how it has affected your life is such a cool thing for you to do because sooo many people don’t have a clue or haven’t encountered someone suffering from it. I have met other people whose ticks are totally nonverbal and they get just as frustrated by it but aren’t noticed because they don’t have ticks that draw attention to them. Thank you for what you are doing. It’s more valuable than you might think 😊
My parents have decided that for my birthday present they might get me driving lessons early! My dad has a friend who works with kids with TS and I’m so glad as my tics are bad in my arms and legs so it’s given me hope
I know tics can be really frustrating to people but I find your meowing tic fascinating. Not only does it sound adorable but it also sounds like the exact same sound every time (to me at least). I bark, howl, and meow on purpose as a way to vocal stim, but my meows sound very different from one another every single time. Also, anything health-related has been my special interest since I was a kid and it always surprises me to know that most of the general population don't seem to be aware of Tourette's. I thought it was a more well-known thing than it actually is.
Hi Zara I love that you are taking the time out of you busy day to make this video 😊 and thanks for the updates. Your room looks great. I love ya girl have a blessed day 💞
public places omg, i have to get the train back from work and if my tics are bad it’s literally terrifying, waiting for the day i offend the wrong person 😭
hey i know u mean well with ur comment, but calling someone’s tics cute can be uncomfy, it’s comes across as infantilizing us. i just wanted to let u know for the future! ^^
I knew a guy who had Tourette’s and worked as an insurance salesman (over the phone). He had adapted so well that apparently clients could not tell; ostensibly he was good at muting the call on his end when he tic’d. I’m nd too, just in a different, subtler way (so unless you talk to me for a long time I know to act pretty normal), but I think he was much better at communicating and appealing to other people that I could ever be.
I have TS and most people don’t know. I understand you are trying to be complimentary, but TS is often not noticeable to the casual observer and most of us can communicate perfectly fine.
i just found this channel thru a random short recommendation and I love it. i prefer the longer content like this. looking forward to seeing more of your content. cheers!
Going to movies is somehow amazing for my tics LMAO (only for certain movies tho) I love cinema its a hyperfixation, i wanna be a director or writer or something, so i get so engulfed in the film and my ADHD makes me so focused on the little tiny details. But also same, i do not go during a bad tic time cuz I don’t want to disrupt anyone. Also i do only go to a small theater near my home and nobody really is ever there so its chill sometimes and the workers all know me hahah
I have ADHD and OCD and it's not like Tourette's but sometimes I have an urge to make random noises. I can control it, but it's really fun for me to just randomly do it or just have the urge to just scream Iol.
Have you ever tried going to genetic counseling? I also have FND (seizures, tics, fainting, fatigue; all that), and I went to genetic counseling. At genetic counseling, they can tell you about all the things your genetics code for, and what conditions you are susceptible to getting. They can also give you diets based on your bloodwork/genetics that can help. Also, sometimes FND can be caused by inflammation of the brain (that's part of what I have). And I only have seizures/fainting when my brain is inflamed, and things get better when I avoid eating things that are outside my diet. For example, dairy and wheat are huge things that can inflame a persons brain (many of the times it can block the neurotransmitters in the brain; causing symptoms). I used to have paralysis, seizures lasting close to 15 mins, I fainted quite often (many times even if someone just touched me from behind or on the head; it was too much for my body to handle; causing the fainting). But, with getting genetic counseling and dieting; those things went away.
I might have Tourette’s because I keep ticking my parents say it might be caused of stress, but I don’t think that because even though I’m chilling, it’s kind of like there’s no off button of my ticks :P I got yelled at yesterday, because I had one of my ticks in class but get this I’m in fourth grade. It’s challenging when other people don’t know that this is happening I got bullied because on how many times I have meowed or barked in class or recess. She keeps calling me a furry and I just look at her like why, until I accidentally punched myself in the chest because my ticks are sometimes out of control and but they drive me crazy I feel you half of the time with my ticks❤😅
Bro I have a meowing tic too and I really like animals but I everyone calls me a furry and I hope I don’t meow at school- the one that usually happens at school is a loud clap or I hit a surface hard or I hit my head and it hurts so much
Number 8 I can relate to the most because I have to take two buses to school and back and I bonk people on the head too but when ever I’m behind them. Also similar to number 10 I can’t be in the passenger seat because I always touch the person driving but i still sit there ❤😂
not being able to drive is one of the things that upsets me the most in terms of things my ts stops me from doing. ive always loved cars and always wanted to drive. i got my permit at 16 and my own car at 17, one of my dream cars. but when it came time to actually doing the driving hours i needed to get my license i quickly learned that it wasn't going to work. being worried about tics while driving gave me so much anxiety which only made my tics worse.. my permit ended up expiring and in the year i had it i drove maybe 4 times. it crushes me to have to give up on a hobby that i looked forward to since i was a child
Ive hidden and mildly overt disabilities, its a challenge. I knew a guy, who I worked with who had Tourettes and he drove professionally, he didn't seem to tick when driving, but he was really challenged when he wasn't driving 🤔🤔💜💜💜✌️✌️ Im glad to hear that your college facilatated a different exam environment. My uni didnt care about my health and disabilities back in the day. Keep on keeping on though, youre doing good work 💜✌️😊
I work in a library in Germany and we actually have study rooms with chairs and a table inside. You can book them if you study at the university that the library belongs to. I guess that would be a good thing if you‘re ticing.
Felt this. But regarding haircuts, piercings and tattoos; I always tell the professional beforehand. They’re normally really understanding, especially if I warn them right before I think I’m going to tic so that they can pull away. I know the cinema (and theatre) pain. I suppress until a musical sequence or action scene. In the theatre, I warn the front of house so that they can pass along the information to the actors. I also had my exams in a separate room. Just me and an invigilator for 2 hours.
Thanks for sharing with us! Now we know and knowing is half the battle! The more people know about Tourette's, the more it won't freak them out! Have a wonderful weekend!
Hey Zara, your voice is so chill, I could fall asleep just listening to your repeating words…I am sorry you have to go through this but like yeah I hope you don’t hurt anyone massively!!! If you don’t mind me asking, what are all your disorders? Oh my god though the ‘meow’ tic is so cute
I love your videos you have such a good outlook I've been really struggling with my medical and psychiatric conditions and recently started having uncontrollable ticking stuttering and non-epileptic seizures particularly when they're stress-induced and you're right we have to look at the things we can do and not get hung up on the stuff that we can't it is very frustrating when I have proprioceptive deficits and walk into walls and drop things and go to grab things and they go flying across the room it's like stuff happens that I couldn't even do it if I tried it just ends up in the worst possible place where you can't get like between the car seats😂 anyway your videos really help me you are so beautiful inside and out actually made me laugh because your ticks were triggering my tics lol😅 i know it must be absolutely frustrating but you're meow singing is adorable. So just know that some of your ticks actually bring joy to people's hearts❤ even though it must drive you crazy cuz I know how I feel when my body won't do what I want to do
Thank you for this video. It definitely made me smile and think about the others who have tourettes that agree with those things. My friends look at me funny when I tell them things like you said that are hard or that we can’t really do having Tourette syndrome like hide and seek or being in a library setting.
I have minor Tourette’s and it's like I have tics and volcul tics and I try and hide them the best I can at school and the only people that know are the teachers and my 4 friends, and when ever I whistle or throw the bird up ppl look at me funny and it really hurts my feelings because sometimes I have to tell the other kids there is something wrong with me and some kids make fun of me for it, but I can do regular things but not for to to long, and I prefer the quite because for me when it's quite my tics are chill but when it gets a bit loud I start ticking more and I also have ADHD and autism so I like the loud to a point but if it's to loud and crazy I get scared and I can only handle 1-2 ppl at a time and it's really hard to focus in school to. So I know exactly how you feel and I hate it so much and I don't understand why people like to fack it on the internet just to get likes and follower
I have type one diabetes. I know Tourette’s isn’t anything like diabetes but we still have some places we can not go. Witch does suck but I know me and you have a healthy like and that’s all that matters. If people don’t like you, who cares? Just be you. God bless you have a good day! ❤
@@kass-831 I some times can’t go to the movies as well because of my alarms or my bag. Some people do understand about it but some just aren’t chill with it. That’s really the only place I can’t go right now
I too can’t drive not only because of FND but because I am deafblind from another rare syndrome. Didn’t stop me learning the NZ Road code from cover to cover 😂, in fact I probably could drive better than half the idiots on the roads! I am also Autistic and I have some vocal stimms that can be interesting, I love your meow tic!
My dad had seizures, and he didn’t learn to drive till he was like 30. When he does have one he can’t drive for 6 months. He had one when I was 9 , but still wanted to help my mom with picking me and my brother up from school, so we would take like 3 busses home. He is a very determined man.
Yes, he had brain surgery when I was eight and they were slowly taking him off the meds, and his doctor said he would never have a seizure again. Long story short they put him back on his meds.
Thank you for sharing this and it is so interesting how tics can be so different for people. Are there any medications or other therapies that help with tics or motor movements? Sincerely, I find the meow really sweet!
The hardest thing for me is driving. My tics make it extremely challenging, so at 28, I still avoid it. I also used to have a staring tic where I would have to stare at people or objects. It was such a nightmare. Obviously I got screamed at for it.
Interestingly enough, it's allowed to talk in most places in my (former by now) university library. There are a few rooms where you can't talk out loud or at all (designated for a small group or individual work and museum ones), but hollways (there are plansy of tables there) and some rooms are fair game. I can't say that no-one would stare at you (bachelor degree students are children, let's be honest), but I'm sure you would be allowed.
Note: I don’t have TS, but I’m neurodivergent 7 different ways… I’ve been in the presence of a couple with TS and I am fascinated with how there are so many things like this. I’m in tech and true random number generation is very hard to impossible, but I’ve observed with my dyspraxia that I have random noise in movement, but TS seems like the epitome of randomness. Thinking about the dishes carrying scenario, other than getting dishes that are hard or impossible to break (which doesn’t help much if they have food on them for messes) is I’m thinking some sort of rolling cart to pull along, perhaps a cart with a very heavy and low center of gravity, perhaps even a bit of a suspension system, so it can be pulled along. With the random physical movements that could be quite major, this makes sense to me. Not mentioned is about handling knives and other dangerous items like that. I could readily see that being problematic. I imagine that varies, but when carrying a glass results in random dumping or other things, knives seem perhaps less spill-prone but more dangerous. How is that handled?
Quick question. I have extreme tics that may or may not be Tourette’s but do your tics go away when you’re focusing intensely on something? I find that when i focus on something my tics pretty much go away. Love your Chanel ❤
yes! it's really common for people with tics for them to go away when they focus on something they love, that's why music or sports are so highly recommended for people with TS!
This makes me wonder what the relation between Seizures and OCD/Tics are. Cause after my Nocturnal Seizures ended I started developing repetitive movements(mainly from intrusive thoughts) in a numeric sequence. Which I'm not certain is OCD or Tics and need to get it treated. Also, I'm not sure what it is but it seems there's some weird link between these disorders, just like ADHD and Seizures have a link.
I'm wondering what it would be like going to the shops or on the bus with a shirt that just says in big on the front and back "I have tourettes". Like would people be more understanding or would it draw more attention? Not that it's a solution because that would still suck. I wouldn't really want to wear a shirt all day that says "I have bipolar" (that's what I have). But I mean it's invisible. Where as if people are going to see anyway would it make it better or worse.
That chicken bock at the end was too funny! I barely process what was happening before my body was like "that looks like a fun tic, lets try it out!" LMAO!
I am sorry about that. I was trying to remember one of you friends names. I was thinking that one of your friends could distract your ticks from happening while you were at the hairdresser.
The hide and seek is a funny one for me. I have a vocal tic that I don't hear, except on a recording. As a teenager I would try and creep up on my Mum. She would always say " Fi, I know you're there". 😂😂😂
Thank you 4 sharing Zara,i love your videos i have OCD and i maybe NEURODIVERGENT im in proces to get diagnosed for that,i just want you to know that i understand wath you go tru and how you feel 😉 sendig you all my love and understanding 😊❤😊
I like watching the longer form videos available on UA-cam as opposed to just the shorts here and 13:44 on TikTok. I mean, I like to watch the shorts too, but I feel like I get more out of the somewhat longer videos. Just my two cents.
This will be out of context. Thank you SO MUCH for your content about wheelchairs! I live in my wheelchair and your videos help! I appreciate the shit out of you.
just stumbled upon your channel through a suggested short and i really love your voice. also - as an outsider not affected by tourettes that booping thing sounds ridiculous... i'd be like, whoooot?, but i don't think i'd be majorly offended. but as you mentioned parties and champagne... is there anything about alcohol that affects your tics?
We can always use you like the army tank in kelly's heroes with the loud speaker on the tank playing songs on it and that part can always come in handy as well and this summer the tank museum is having a show going on as well
This may be random but could you make a more in-depth video of the stuff you use in your day to day life for managing your disabilities? (And also maybe a video on how to tell if something you’re experiencing is a tic?)
I am brand new here -your video came up in my recommendations. Thank you for sharing your life with us. I would imagine going to church would be difficult? I am not sure if that is true or not and would be interested in your thoughts and experiences with that. Anyway, I actually prefer longer videos and I’m not on any other social media sites. Anyway, thank you for posting and I will be watching your other videos. 👍
7:05 lol, is it bad that I thought to myself, what would happen to Zara in a zombie apocalypse though? Hehe, aww. Bless ye ya little cutie. I'm sorry for the things you can't do but at the same time, you're honestly not missing out on too much. :) The new cat-tune tic is interesting. I hope you're well love, it's always great to see your smiling face
I sometimes forget that when people have disabilities like Tourette’s they can’t do everything other people can. I am sorry you have to deal with that
it's okay - there are downsides but it's also given me a lot of perspective and i've found this community and my job as an advocate/content creator! 🩷 we don't always need lots of sympathy, we just need understanding :)
Hi, I think that most of these should things that engineers and designers should work on. Adaptations could be things like playing Hide & Seek with music or background noise or white noises. Libraries should provide spaces like enclosed cubicles, or something similar, a Stylist could schedule a specific time where you'd be alone or with family etc. Everyone should be accommodated, and differences can make diverse spaces and experiences.
@SadBreadLoaf - They mostly can, its just different, anyone can so anything they set their mind to. Its not a “dis”ability, just a different ability :) you can be successful in anything you desire:)
i know why people say this, but disability isn't a bad word! we're no less just because we're disabled, and the label isn't a negative thing - it just tells people that we need accomodations and can't do things the same as able bodied people :)💖@@kaylasmusic
@Zara_Beth what about music? Are there forms of music that You could listen to.
To help with torrett's.
Or does music?
Help with torrents?
I’m a 73 year old man. When I was in elementary school in California, about 1957-58, there was a new girl came to my class. Without warning, she’d yell out, “NUTS,” repeatedly. After a few times of this, my teacher sent her to the principal’s office. The next day it would happen again with the same results. After about a week, I never saw the girl again. I would assume she was put in a “special” school. I later learned, while in high school, about Tourette’s. This was in the mid to late 1960’s. I would assume in the 1950’s Tourette’s was not very well studied. Now, I can only imagine how hard it must have been for that little girl. It makes me sad to think about it to this day. 😢 Bless you. You are probably helping so, so many kids and young adults deal with and understand. You’re a saint. ❤
I'm sure you would be right. I was born in 1961 and only diagnosed at 27 years old.
How are you in high school from 57 to 58 but born 61
@@trud6346 ? What?
@@trud6346those are two different people
@@Somefellowhumanbeingoh sorry i didnt realize e it was different
My kiddo (aged15) also has Tourette’s, they go to a special needs / Autism friendly hairdresser, she’s fab works around the tics and doesn’t take offence to anything. ❤
Also we call hiccups that are tics.. ‘tic ups’
Tic ups is such a good word for them! I’m so using that for mine :)
As a young teenager who has recently started severely ticing and is struggling a lot with it, your YT channel brings me so much joy and support as we figure out what is happening. I look up to you a lot. Ty ❤️❤️❤️
Omg same, I've been feeling like a lack of support, but I'ma just do me, and I hope you can too! Just know you're not alone at all!
Same! You’re not alone at all 🫶🏼❤️
Same❤
same🤗🤗
SAME
i have tourettes too and this video is something i can connect to, it’s really great to see I’m not the only one who cannot do these things, makes me emotional.
Omg so I drive and have tics and I get the flipping people off tic. I only have that tic on a bad day but it gets quite embarrassing seeing other drivers reactions. I'm so grateful that I can drive though because its a big hobby of mine. Can get a bit complicated though lol. I feel you on the library one. I'm at uni so the number of places I can study is quite low 😬
Same I have really bad tic’s and I have the flipping off people and saying swear words to on bad days
That happened to me in the middle of class get this I’m in fourth grade and I accidentally flipped my teacher off 😭
how are you allowed to drive when you can have these involuntary movements? asking this completely neutrally, as a fellow disabled person (neuromuscular disease). because it sounds highly dangerous
About the cinema thing: I’m not sure where in the UK you live, but the cinema chain Picturehouse does autism friendly screenings - I don’t know if it’s only for autistic people, you would most likely be allowed in if you asked, but it’s basically a movie screening where you are free to make as much noise as you need to, get up, walk around and do what you need! Hope this helps 💖
Thank you, I was just about to mention this. I go to the disability friendly screenings because of my epilepsy and it's great because the movie theater even has a nurse present and it's also amazing to meet people in the community :)
Yeah, she has autism too if I remember correctly!
the things that you cant do just because you have a disorder honestly it's upsetting to me but i hope you dont take it to heart. ❤❤❤
Total Respect & Total Admiration. You are an exemple for all of us (having special condition). Keep it up! Looking forward to your next one... BZ!
You can do what ever you want in life and whatever you're dreams are go for it. I always support you Zara 🙂❤️
Thank you for talking about this. I have fnd also. So verbal and physical tics on top of the seizures, spasms and paralysis. It's so hard to help other people under what we go through. You're awesome!
Same here your not alone ❤
Hi Zara. I'm a new subscriber and I love your videos. I'm living with a chronic illness too and it can be hard but I don't let that stop me. I'm 14 years old I wish I could meet you in real life especally your dog and cat I love animals. Keep up the good work. Love you.❤❤❤
Stay strong hun ❤❤❤
Thanks so much for sharing your life and story. It's always interesting to learn what other Neurodivergent individuals go through in life. As humans it helps us to be more empathetic and understanding. 💜
We love you zara and I love watching all your videos keep slaying! ❤
THE MEOW TIC IS SO CUTE 😭😭💕
When you mentioned bopping people on the head I remembered one time in college when I ticed and hit my professor on her behind when she walked past me at that time she didn't know I had tics and almost reported me. And I gave my dad a nosebleed on Christmas and he still teases me about how I gave him a bloody gift.
😭😂
Your room is so pretty! ❤
I was just diagnosed with Tourettes in August, but have struggled with tics since 7 years old. I love ur vids❤
I can relate to most of these, except I haven't gone to college yet tho. I rlly do look up to u and love u❤
Hi, im 16 year old i have this kind of problem im suffering from this from birth i have also same problem before now i even dont no i have have tics or any disoreder even my parents dont no about this they always angry with me they thought that this is my habit my tics got worsen while writing walking playing games and i did not know what was happening and always thought that im alone on the earth who is doing this and sucide thought was also came my teachers always ask in front of teachers when the tics happen but today
I found your channel and watch this video and literally i got relief that im not alone found comments regarding this really i can relate your whole problem thank you so so much for making videos on this topic you are like my sister😭😭❤
As someone who has experienced Tourette's as a second hand a lot of my family and friend have Tourette's, I love watching your vids and seeing how positive you are towards it not letting it control you.
PS - Zara, we're missing an opportunity for some kind of comedy movie or novel here, the spy with tourrettes :D :D love you
THAT WOULD BE SUCH A FUNNY GRAPHIC NOVEL
I watched a short of yours a few minutes ago and I immediately thought, she has Tourette's. The reason being, I also have Tourette's. So it was exciting to find that it was true. All that to say, I appreciate you sharing. It's always nice to hear from a fellow neurodivergent.😊
Today I've learned that UA-cam auto-captions have no idea what tics are. Most of the time it was spelled "ticks," like the bug, but it was spelled "tiex" at 9:23. *sighs at UA-cam auto-captions*
tiex???!😂
I can't find any website that knows what it means which makes me think that it's not even a word
More videos like this will educate us more & which in turn will increase the tourette awareness globally. Don't stop😊. Thank you, from an old Canadian ❤ 🇨🇦 🍁 ❤
I am confident that everyone has a different and varying experience with Tourette’s so maybe mine just isn’t as bad (I have Tourette’s from PANDAS)or toned down by the monthly IVIG treatments (I go to because I can drive). Although it used to be absolutely awful for me. I have this pattern that all has to do with the number 5 I can try to explain it it’s pretty much I just say one over and over really fast in my head then I go to two then three then four then I go back to one I repeat this four times and say five in my head a bunch and if I don’t “mess up” I’m done” (it mixes with OCD). My motor tics were so bad that I had bruises on my knees. I would bang them into the metal bar under the desk at school over and over until my “process” is what I like to call it was over. I also used to dab (weirdly before dabbing was a thing or was known as dabbing) I would do it over and over then there was blinking excessively and sniffing like (it’s hard for me to describe it) but I guess it’s kind of like a dog. I also cleared my throat in a repetitive pattern. Now days though it’s more just blinking, jerking my head, and this weird movement of the foot that kind of like pops the bones in it over and over. But thanks for the video!
Your tics really want you to make music
I have ADHD and doesn’t matter if it’s quiet or loud, I will be stimming a lot. I *CAN’T* be in libraries due to my stims making sounds or phrases such as a plane sound, the moai meme (don’t ask), popcat, wowza, or simply *bap* or *bonk* poggers,pog, pogchamp, live laugh lovejoy, yippe, and more..thanks to the Dream SMP and the bands I listen to. Much worse if my physical stims pop in, I will hit the books, me, my head, anything.
I have like 100 stims- oh and I have OCD, I will stress a lot due to my unwanted thoughts, wanting to keep books even and to top it off and make it worse… *I HAVE HYPERHIDROSIS* which is a disorder making me sweat really easily, so I can’t really touch books because then I’ll sweat a lot and make the pages wet, I hate it, It’s the worse thing ever, if I’m gonna be in a library or somewhere that requires paper or metal, I NEED A SINK NEARBY.
yes I type a lot, I’m a fast typer and ADHD will have me in so many topics, DEAL WITH IT. :D
Yippe
I'm on the spectrum and i have ocd so can relate in a lot of ways about how my brain just takes over and makes me do things i often cannot understand why. I Like that mindset you have of not dwelling on what we can't control :) Go Zara we choose happyness. I write it with a Y because it your choice whether to live a happy life or a frustrated or unhappy one. I'm glad we both chose to pursue the happiness route in life.
I also had accommodations, but it was on my second time at university and I did so much better because I was actually well supported by a disabilities advisor who setup and allowed for the accommodation like a quiet room, with a computer, spell checker and extra time so I could understand the questions or take breaks if I was overwhelmed etc. Funny thing though one exam time I was in a room with another person who had an assistance dog, but I have severe allergies to dogs, where I can't breathe properly near them. So that day was let's just say difficult. I had to ask to be moved to another area/room.
I'm glad my one and only vocal tic is fairly discreet and doesn't cause me any problems. Although my facial tics almost got my ass kicked one time by a guy who thought I was making eyes at him.
I think school should teach us about neurodiversity. Honestly, our health education at school consisted of the teacher showing us pictures of private bits and that was about it. I'm now self-educating myself on UA-cam about neurodiversity, LGBTQ etc. But I feel like it should be a mandatory part of everyone's schooling to learn about human diversity.
Stay strong and live your best life and try not to live other people's way of life. You're doing great 👍 ps i am old now but have had neurological issues for 40 years. Stay strong, and don't get over tired. I have used a wheelchair on and off for 20 years my MSA charges. Your doing great god bless 🙏
Hello Zara I’m so happy to have discovered your channel. I don’t have Tourette’s but had a friend I worked with whose cousin has Tourette’s and would hang out with us. We would go to the mall together and out to eat or just generally go out places where her cousin would tick a lot. Your ticks are cute. Even when you swear, it’s cute but that’s because they are soft and quiet. I’m sure they aren’t always this way. My friend’s cousin on the other hand has very physical and loud mainly profane ticks. While we were walking through the mall, some people would laugh and point while others were quite cruel. When it happened, it would be very quick and we just carried on with no attention paid to it. It was quite embarrassing for her but she couldn’t help it. By sharing your experiences and how it has affected your life is such a cool thing for you to do because sooo many people don’t have a clue or haven’t encountered someone suffering from it. I have met other people whose ticks are totally nonverbal and they get just as frustrated by it but aren’t noticed because they don’t have ticks that draw attention to them. Thank you for what you are doing. It’s more valuable than you might think 😊
You’re the most adorable human I’ve ever seen
My parents have decided that for my birthday present they might get me driving lessons early! My dad has a friend who works with kids with TS and I’m so glad as my tics are bad in my arms and legs so it’s given me hope
you can do this!!
@@Zara_Beth thanks so much Zarah!
I know tics can be really frustrating to people but I find your meowing tic fascinating. Not only does it sound adorable but it also sounds like the exact same sound every time (to me at least). I bark, howl, and meow on purpose as a way to vocal stim, but my meows sound very different from one another every single time. Also, anything health-related has been my special interest since I was a kid and it always surprises me to know that most of the general population don't seem to be aware of Tourette's. I thought it was a more well-known thing than it actually is.
Hi Zara I love that you are taking the time out of you busy day to make this video 😊 and thanks for the updates. Your room looks great. I love ya girl have a blessed day 💞
public places omg, i have to get the train back from work and if my tics are bad it’s literally terrifying, waiting for the day i offend the wrong person 😭
I love you Zara ❤️❤️❤️ Your meow tic is so cute 🥰
Your tiks are cute af. I can only imagine how helpful these videos are for others. You're incredible to share so thoroughly.
hey i know u mean well with ur comment, but calling someone’s tics cute can be uncomfy, it’s comes across as infantilizing us. i just wanted to let u know for the future! ^^
I knew a guy who had Tourette’s and worked as an insurance salesman (over the phone). He had adapted so well that apparently clients could not tell; ostensibly he was good at muting the call on his end when he tic’d.
I’m nd too, just in a different, subtler way (so unless you talk to me for a long time I know to act pretty normal), but I think he was much better at communicating and appealing to other people that I could ever be.
I have TS and most people don’t know. I understand you are trying to be complimentary, but TS is often not noticeable to the casual observer and most of us can communicate perfectly fine.
I love how she is so brave ❤❤❤❤
i just found this channel thru a random short recommendation and I love it. i prefer the longer content like this. looking forward to seeing more of your content. cheers!
Going to movies is somehow amazing for my tics LMAO (only for certain movies tho) I love cinema its a hyperfixation, i wanna be a director or writer or something, so i get so engulfed in the film and my ADHD makes me so focused on the little tiny details. But also same, i do not go during a bad tic time cuz I don’t want to disrupt anyone. Also i do only go to a small theater near my home and nobody really is ever there so its chill sometimes and the workers all know me hahah
I have ADHD and OCD and it's not like Tourette's but sometimes I have an urge to make random noises. I can control it, but it's really fun for me to just randomly do it or just have the urge to just scream Iol.
Have you ever tried going to genetic counseling? I also have FND (seizures, tics, fainting, fatigue; all that), and I went to genetic counseling. At genetic counseling, they can tell you about all the things your genetics code for, and what conditions you are susceptible to getting. They can also give you diets based on your bloodwork/genetics that can help. Also, sometimes FND can be caused by inflammation of the brain (that's part of what I have). And I only have seizures/fainting when my brain is inflamed, and things get better when I avoid eating things that are outside my diet. For example, dairy and wheat are huge things that can inflame a persons brain (many of the times it can block the neurotransmitters in the brain; causing symptoms). I used to have paralysis, seizures lasting close to 15 mins, I fainted quite often (many times even if someone just touched me from behind or on the head; it was too much for my body to handle; causing the fainting). But, with getting genetic counseling and dieting; those things went away.
I just want to say thank you, for being you. Just watching your videos has taught me a lot from the information you have given me and others.
I might have Tourette’s because I keep ticking my parents say it might be caused of stress, but I don’t think that because even though I’m chilling, it’s kind of like there’s no off button of my ticks :P I got yelled at yesterday, because I had one of my ticks in class but get this I’m in fourth grade. It’s challenging when other people don’t know that this is happening I got bullied because on how many times I have meowed or barked in class or recess. She keeps calling me a furry and I just look at her like why, until I accidentally punched myself in the chest because my ticks are sometimes out of control and but they drive me crazy I feel you half of the time with my ticks❤😅
Bro I have a meowing tic too and I really like animals but I everyone calls me a furry and I hope I don’t meow at school- the one that usually happens at school is a loud clap or I hit a surface hard or I hit my head and it hurts so much
Number 8 I can relate to the most because I have to take two buses to school and back and I bonk people on the head too but when ever I’m behind them. Also similar to number 10 I can’t be in the passenger seat because I always touch the person driving but i still sit there ❤😂
not being able to drive is one of the things that upsets me the most in terms of things my ts stops me from doing. ive always loved cars and always wanted to drive. i got my permit at 16 and my own car at 17, one of my dream cars. but when it came time to actually doing the driving hours i needed to get my license i quickly learned that it wasn't going to work. being worried about tics while driving gave me so much anxiety which only made my tics worse.. my permit ended up expiring and in the year i had it i drove maybe 4 times. it crushes me to have to give up on a hobby that i looked forward to since i was a child
Ive hidden and mildly overt disabilities, its a challenge.
I knew a guy, who I worked with who had Tourettes and he drove professionally, he didn't seem to tick when driving, but he was really challenged when he wasn't driving 🤔🤔💜💜💜✌️✌️
Im glad to hear that your college facilatated a different exam environment. My uni didnt care about my health and disabilities back in the day.
Keep on keeping on though, youre doing good work 💜✌️😊
I work in a library in Germany and we actually have study rooms with chairs and a table inside. You can book them if you study at the university that the library belongs to.
I guess that would be a good thing if you‘re ticing.
This was so much fun to listen too. Very informative and very supportive post. You look like you are keeping well and i do hope thats the case
Felt this.
But regarding haircuts, piercings and tattoos; I always tell the professional beforehand. They’re normally really understanding, especially if I warn them right before I think I’m going to tic so that they can pull away.
I know the cinema (and theatre) pain. I suppress until a musical sequence or action scene. In the theatre, I warn the front of house so that they can pass along the information to the actors.
I also had my exams in a separate room. Just me and an invigilator for 2 hours.
Thanks for sharing with us! Now we know and knowing is half the battle! The more people know about Tourette's, the more it won't freak them out! Have a wonderful weekend!
Hey Zara, your voice is so chill, I could fall asleep just listening to your repeating words…I am sorry you have to go through this but like yeah I hope you don’t hurt anyone massively!!! If you don’t mind me asking, what are all your disorders? Oh my god though the ‘meow’ tic is so cute
I always enjoy your videos please do more. You’re positivity is inspiring so thank you for being you 😊x
You never back down. You stay strong. + you’re underrated. Who wouldn’t sub?
I love your videos you have such a good outlook I've been really struggling with my medical and psychiatric conditions and recently started having uncontrollable ticking stuttering and non-epileptic seizures particularly when they're stress-induced and you're right we have to look at the things we can do and not get hung up on the stuff that we can't it is very frustrating when I have proprioceptive deficits and walk into walls and drop things and go to grab things and they go flying across the room it's like stuff happens that I couldn't even do it if I tried it just ends up in the worst possible place where you can't get like between the car seats😂 anyway your videos really help me you are so beautiful inside and out actually made me laugh because your ticks were triggering my tics lol😅 i know it must be absolutely frustrating but you're meow singing is adorable. So just know that some of your ticks actually bring joy to people's hearts❤ even though it must drive you crazy cuz I know how I feel when my body won't do what I want to do
Thank you for sharing your honesty and bravery. It's opening to the diversity of diversity.
Thank you for this video. It definitely made me smile and think about the others who have tourettes that agree with those things. My friends look at me funny when I tell them things like you said that are hard or that we can’t really do having Tourette syndrome like hide and seek or being in a library setting.
I have minor Tourette’s and it's like I have tics and volcul tics and I try and hide them the best I can at school and the only people that know are the teachers and my 4 friends, and when ever I whistle or throw the bird up ppl look at me funny and it really hurts my feelings because sometimes I have to tell the other kids there is something wrong with me and some kids make fun of me for it, but I can do regular things but not for to to long, and I prefer the quite because for me when it's quite my tics are chill but when it gets a bit loud I start ticking more and I also have ADHD and autism so I like the loud to a point but if it's to loud and crazy I get scared and I can only handle 1-2 ppl at a time and it's really hard to focus in school to. So I know exactly how you feel and I hate it so much and I don't understand why people like to fack it on the internet just to get likes and follower
Inspiring young lady...
Keep shinning
I have type one diabetes. I know Tourette’s isn’t anything like diabetes but we still have some places we can not go. Witch does suck but I know me and you have a healthy like and that’s all that matters. If people don’t like you, who cares? Just be you.
God bless you have a good day! ❤
If you don’t mind me asking, what are the places you can’t go?
@@kass-831 I some times can’t go to the movies as well because of my alarms or my bag. Some people do understand about it but some just aren’t chill with it. That’s really the only place I can’t go right now
@@Jesus-is_king648 ah, I see. Thanks for explaining!
@@kass-831 no problem!!
I too can’t drive not only because of FND but because I am deafblind from another rare syndrome. Didn’t stop me learning the NZ Road code from cover to cover 😂, in fact I probably could drive better than half the idiots on the roads!
I am also Autistic and I have some vocal stimms that can be interesting, I love your meow tic!
My dad had seizures, and he didn’t learn to drive till he was like 30. When he does have one he can’t drive for 6 months. He had one when I was 9 , but still wanted to help my mom with picking me and my brother up from school, so we would take like 3 busses home. He is a very determined man.
is he on meds for them
Yes, he had brain surgery when I was eight and they were slowly taking him off the meds, and his doctor said he would never have a seizure again. Long story short they put him back on his meds.
Thank you for sharing this and it is so interesting how tics can be so different for people. Are there any medications or other therapies that help with tics or motor movements? Sincerely, I find the meow really sweet!
At least there are different severities of TS! I've not had any of the experiences you mentioned. I could go back through each one, but I won't.
The hardest thing for me is driving. My tics make it extremely challenging, so at 28, I still avoid it. I also used to have a staring tic where I would have to stare at people or objects. It was such a nightmare. Obviously I got screamed at for it.
I love watching your channel. You are interesting, creative and funny
Interestingly enough, it's allowed to talk in most places in my (former by now) university library. There are a few rooms where you can't talk out loud or at all (designated for a small group or individual work and museum ones), but hollways (there are plansy of tables there) and some rooms are fair game. I can't say that no-one would stare at you (bachelor degree students are children, let's be honest), but I'm sure you would be allowed.
Note: I don’t have TS, but I’m neurodivergent 7 different ways… I’ve been in the presence of a couple with TS and I am fascinated with how there are so many things like this. I’m in tech and true random number generation is very hard to impossible, but I’ve observed with my dyspraxia that I have random noise in movement, but TS seems like the epitome of randomness.
Thinking about the dishes carrying scenario, other than getting dishes that are hard or impossible to break (which doesn’t help much if they have food on them for messes) is I’m thinking some sort of rolling cart to pull along, perhaps a cart with a very heavy and low center of gravity, perhaps even a bit of a suspension system, so it can be pulled along. With the random physical movements that could be quite major, this makes sense to me.
Not mentioned is about handling knives and other dangerous items like that. I could readily see that being problematic. I imagine that varies, but when carrying a glass results in random dumping or other things, knives seem perhaps less spill-prone but more dangerous. How is that handled?
Quick question. I have extreme tics that may or may not be Tourette’s but do your tics go away when you’re focusing intensely on something? I find that when i focus on something my tics pretty much go away. Love your Chanel ❤
yes! it's really common for people with tics for them to go away when they focus on something they love, that's why music or sports are so highly recommended for people with TS!
This makes me wonder what the relation between Seizures and OCD/Tics are. Cause after my Nocturnal Seizures ended I started developing repetitive movements(mainly from intrusive thoughts) in a numeric sequence. Which I'm not certain is OCD or Tics and need to get it treated. Also, I'm not sure what it is but it seems there's some weird link between these disorders, just like ADHD and Seizures have a link.
I'm wondering what it would be like going to the shops or on the bus with a shirt that just says in big on the front and back "I have tourettes". Like would people be more understanding or would it draw more attention? Not that it's a solution because that would still suck. I wouldn't really want to wear a shirt all day that says "I have bipolar" (that's what I have). But I mean it's invisible. Where as if people are going to see anyway would it make it better or worse.
Yeah totally I enjoy this style of videos they are informative educational and can be relatable
That chicken bock at the end was too funny! I barely process what was happening before my body was like "that looks like a fun tic, lets try it out!" LMAO!
You have a great attitude.
I was wondering if doctors have suggested you consider “deep brain stimulation” to try to control tics.
I actually forget that you have anything at all when I see ur videos. I am a writer as well and I would really love to read your book. .
Interesting content, thanks for educating us!
Have you ever tried taking Beth with you to a hairdresser? Would she be a good enough of a distraction for you to get your hair cut?
my middle name is Beth?😂
I am sorry about that. I was trying to remember one of you friends names. I was thinking that one of your friends could distract your ticks from happening while you were at the hairdresser.
I have recently been diagnosed with Tourette's and I can relate to most of these except I can barley sit near my friends without hurting them
The hide and seek is a funny one for me. I have a vocal tic that I don't hear, except on a recording. As a teenager I would try and creep up on my Mum. She would always say " Fi, I know you're there". 😂😂😂
Bless you baby..
My mate has a tick where she sings the words win win windowsills.. ❤
Thank you 4 sharing Zara,i love your videos i have OCD and i maybe NEURODIVERGENT im in proces to get diagnosed for that,i just want you to know that i understand wath you go tru and how you feel 😉 sendig you all my love and understanding 😊❤😊
I like watching the longer form videos available on UA-cam as opposed to just the shorts here and 13:44 on TikTok. I mean, I like to watch the shorts too, but I feel like I get more out of the somewhat longer videos. Just my two cents.
This will be out of context. Thank you SO MUCH for your content about wheelchairs! I live in my wheelchair and your videos help! I appreciate the shit out of you.
At like 4:21 she is talking and one of her tics go meow I giggled.
(Not to be rude and I am sorry you have to deal with tics)
Absolutely gorgeous 😍
just stumbled upon your channel through a suggested short and i really love your voice. also - as an outsider not affected by tourettes that booping thing sounds ridiculous... i'd be like, whoooot?, but i don't think i'd be majorly offended.
but as you mentioned parties and champagne... is there anything about alcohol that affects your tics?
Me : sings in front of the whole school
My tics: ooh, may I join you???
Driving is over Rita, especially when you're in big cities or towns and have great public transport.
Your so good!! Sending love❤️
Hey Zara, good video.
Also, you're look looks good on you. 👍👍
i like the way your room is decorated😊
Acceptance & mindset help my epilepsy.
We can always use you like the army tank in kelly's heroes with the loud speaker on the tank playing songs on it and that part can always come in handy as well and this summer the tank museum is having a show going on as well
This may be random but could you make a more in-depth video of the stuff you use in your day to day life for managing your disabilities?
(And also maybe a video on how to tell if something you’re experiencing is a tic?)
great ideas! i will defintiely have to do these soon :)
My tics go down around most people, it's automatic suppression. They come out more severely at home.
I am brand new here -your video came up in my recommendations. Thank you for sharing your life with us. I would imagine going to church would be difficult? I am not sure if that is true or not and would be interested in your thoughts and experiences with that. Anyway, I actually prefer longer videos and I’m not on any other social media sites. Anyway, thank you for posting and I will be watching your other videos. 👍
7:05 lol, is it bad that I thought to myself, what would happen to Zara in a zombie apocalypse though? Hehe, aww. Bless ye ya little cutie. I'm sorry for the things you can't do but at the same time, you're honestly not missing out on too much. :) The new cat-tune tic is interesting. I hope you're well love, it's always great to see your smiling face