CCCA | Early Scarring Alopecia | A Protein That May Affect Hair Loss and Regrowth ?!?
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- Опубліковано 24 сер 2024
- #alopeciatreatment #CCCA #hairloss
This video explores the results connected to a research study that uncovers potential treatment options for women dealing with CCCA. This video also explores how this protein may impact hair loss and regrowth.
Nourish Your Crown Daily Wellness Journal
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CCCA Facebook Group
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Email: lynn@rlynnepps.com _______________ Disclaimer: Everything that I share in this video covers things that I am learning on my personal journey. I am not providing medical advice, treatment options, or diagnoses. Please talk to your medical doctor, dermatologist, nutritionist, and hairstylist for guidance and treatment. Be sure to talk with your doctor before trying any new foods or supplements.
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About Me | Faith | Married Mom of 3 Adult Children | Author | Work in Higher Ed | Doctoral Student | Coffee Lover | Food Geek | Lover of Books | Always down for a good laugh
Hair loss is affecting so many of us and we all have unique stories to share. If you are seeing some success (whatever success looks like to you!) or progress on this journey and want to share your experience to encourage others, I would love to interview you! My email address is in the description. Thank you in advance for your courage! 💛👑
Just subscribed. Intermittent fasting works for me, a person who suffered with pancreatitis starting last year. When you said a doctor and a nutritionist had some different views I'm not surprised. I never click on videos by MDs or nutritionists. I always look for more natural approaches and it always works out for me. I've been through some major illnesses, taken a natural approach and watched as the condition miraculously disappeared. Every time I overcome an illness w/o med intervention it makes me know the body really can heal itself. I've lived with hair loss by using wigs but this year I decided I'm going to grow my hair back and watch, it will happen.
Welcome! Yes, I agree with you that it will happen! Thanks for sharing! (We're going to have an amazing nutritionist visit the channel in a few weeks 🙂 and it's someone that I think will bring a common sense approach!)
@nourishyourcrown Ok. because they usually keep with the norm i.e., eat from all the food groups, etc, but nowadays due to gmo foods so many people's digestive systems are off, even little kids. So someone telling me to eat grains/carbs is not going to work for me. I'd end up in the ER with morphine (for pancreatitis). These days people need to know what works for their bodies and proceed accordingly.
Do you think Pancreatitis is linked. I had it in 1999 but also a thyroid condition and iron deficiency caused by Beta Thalessimeia Trait
Your hair is really beautiful❤ I’ve been following you & your journey & you are one person I need to follow because of your improvements.
Thank you so much!! You will get through this! 💛
Great video and congrats on your journal. I am a big journal writer . I journal every day. I have been stressing out from losing my hair where it was seriously affecting my mental wellness. I finally decided to stop stressing myself out over it. I am one of those people who was struggling with extreme burning and itching on the scalp. I am grateful not to have anymore burning and itching and hoping I never have to deal with flaring up again. Changing my diet has help me.
Hi @SweetWithEnvy! Glad to hear that those symptoms are gone! Interested in doing a collab video in the future? If so, let's connect!
Love your natural look,so refreshing and beautiful !!
Well explained, and well spoken!!
So glad it was helpful and thank you for your kind words!
Hi Lynn, thank you for being so thorough and offering many options to consider with CCCA or Alopecia. I have done extensive research and the more I know the more I'm confused! I have tried the Metformin, which was prescribed by my dermotologist and used it for a few months -- I saw no difference. I've been Keto for over a year , do IF , in menopuse, but exercise and in great health, but this hair thing is baffling and extremely frustrating!🤷🏾♀🙏🏾
You're welcome! I hear you on the confusion part. Sending a virtual hug! 💛
Hi! I am going to through it as well. How were you directed to apply the Metformin gel?
Great video on many levels, but I thank you mostly for the encourgement. It is so easy to get depressed with alopecia. I will purchase your journal because it will be helpful.
You are welcome! Glad you were encouraged! Thank you for purchasing the journal too!
Hello @nourishyourcrown! New to your channel. I was dx with CCCA in 2020 via exam by a dermatologist, which was later confirmed by a scalp biopsy. While I've worn my hair natural since '98, I've had braids a few times here and there, but rarely. Never was one to overdo it with silk presses. Since being dx, I've had every possible test done and ALL THE BLOOD WORK, but other than learning I had candida overgrowth and was slightly low in zinc, everything has been normal. The point is, I initially didn't attribute the hair loss / CCCA to any styles and thought it might be something internal going on (infection, nutritional deficiency, hormones, etc). I also don't have PCOS, so I know that's not a cause in my case.
HOWEVER, about 8 months prior to the diagnosis, I had goddess locs installed for about 3 months. I had them installed by a well-known trichologist who does celebrity hair. I specifically chose her because of her training as a trichologist, thinking that her technique would ensure my hair was protected.... literally never had any issues with my hair or scalp until *after* those locs were taken out. Maybe 3-4 months later, I started having burning sensations on my scalp, which, again, I didn't think was because of the extensions because they had been out for months, and I never had problems while they were installed. A few months after that, my hairdresser noticed a bald spot in my crown and encouraged me to see a dermatologist. I went the next day. Ultimately, I believe these locs which take 2 forms of hair just weighed too heavily on my scalp and set off the inflammatory response. All it took was 1 hairstyle in my case and I truly f---- regret it.
It's been a long journey these past 4 years trying figure out what it will take to restore my crown. I've seen numerous doctors, dermatologists, and functional doctors and haven't found anyone to be entirely helpful. Sometimes I feel so discouraged. Steriod injections did nothing. PRP did nothing. Clobetasol did nothing. Oils irritate my scalp so I can't use those daily. Yet, I refuse to believe that my hair follicles are "dead" or "destroyed" and can't come back. *Something will work to restore my scalp health.*
Based on extensive research that I've done during this time, I think many CCCA sufferers might indeed have a genetic predisposition. Were you told you were tender-headed growing up? I was. Maybe I always had a 'sensitive scalp.' I also had eczema & allergies growing up, and I've encountered others with alopecia who said they also have allergies. That said, it seems like something external -- hairstyle (even the weight of natural locs) may turn on the inflammatory cells (cytokines) in CCCA and that inflammation is essentially like a fire going on under your scalp; while there's a fire, no - your hair won't come back. But once you put out the fire, your hair will grow back again.
The more I learn about AMPK activators and JAK inhibitors, the more I think natural remedies like berberine, quercetin, curcumin, green tea (EGCG), burdock root, etc. might hold the key for those with CCCA.
Has anyone here found success using any of these methods -- or something else?
Thank you SO much for sharing your thoughts! I agree with you on so many levels! I also think there is a genetic component that might be triggered by a host of issues (stress, gut issues, hair styles, insulin resistance, hormones, etc.) leading to inflammation that then leads to hair loss. Also, like you, I agree that there is hope!
Apologies if you covered this already and I missed it, but what do you think was the cause in your case?
I think there are multiple factors at play including stress, food intolerances (lactose), hormonal (perimenopause/menopause), low vitamin D, hair styling, etc. I also still think that there is probably some genetic predisposition that when triggered (by the things listed here and more) causes the body to go into overdrive and the excess inflammatory response. By managing the things that I can "control" like eliminating dairy, adding in vitamin D and supplements, medicine when necessary, increasing anti-inflammatory foods, etc. it's been in "remission" for a little while now.
Your hair looks good/healthy.
Thank you! It’s getting there one day at a time! 🙂
Thanks so much for such indepth videos on alopecia. I have alopecia areata and I'm not losing more hair but praying and working to regrow my hair back completely.
You are so welcome!
Thanks so much for this. And, your hair looks great!!
Hey Karen! You're welcome and thank you so much!
Hello from Los Angeles. I'm a new subscriber 😊 I appreciate all of the information you are sharing. I am dealing with alopecia at this time. Peace and blessings to you all.
Welcome @eleanorcollins388! So glad to have you here and you're welcome! Peace, blessings, and healing to you as well! 💛
I use the metformin topical treatment that is compunded with a few other ingredients. It has been about 7 months and I am seeing regrowth. I also take Help Hair vitamins. I'm interested to see what happens once I no longer use the cream. I never had any symptoms and was diagnosed with CCCA through a biopsy.
Thanks for sharing!!
Where did you get the metformin cream
@florenceaso9538 It was prescribed by my Dermatologist.
could you share what other ingredients? are you using minoxidil, too?@@naturalnubbie
How is your hair doing now?
Thank you for sharing what you learn! I am interested in the other medication you mentioned.
You’re welcome! It may take some time but I’ll work on it! I’ll either do a video or a community post.
@@nourishyourcrown 😊❤️
I am in the UK and was diagnosed in 2020. I had a biopsy and was prescribed shampoo but little else. I have flare ups, getting sore spots on my scalp which has left me with bald spots. I have tried red light therapy etc but nothing from my doctor. I feel that people of colour experiencing this here in the UK has no where to go for help with this. I am going to go back to my doctor to request trying topical metformin.
Hi Lynn, You look very pretty! I really love your frames and the gray in your hair. It looks very healthy. I too suffer from alopecia (hair line). I have learned a lot from watching your videos. You have great information and guest speakers. Could you have a discussion about tattooing in the scalp to fill in bald areas I believe it's called micro pigmentation. Again thank you so much❤
Hi! Thank you so much! So glad the content is helpful! That’s a great topic idea and I’ll keep my eye out to see if I can find someone.
Very interesting.
Unfortuantly, these drugs usually have so many side effects.....
You are right! That's why I am so interested in learning about and using the options that are more natural as much as possible.
It’s definitely an epidemic. I’m the moderator of the Fb group and I’ve been adding 20-30 women weekly. Which lets me know it’s definitely inflammatory related.
What is the name of your group? I would like to join.
Hi @JeannetteAbrahamson I'm in that group and so appreciate the community!! I've been sharing it on this channel too. 💛
Here's the link to the group: facebook.com/groups/ccca.alopecia/ @JeanetteAbrahamson is a great moderator too!
I'm in the group too and I am so glad. I encourage everyone with CCCA to join. You will find so much support there.
I use Rogaine once a week, don't wanna get completely dependent on it and use daily. Jus enough to keep in system. 4 months so far with no problems.
Thanks for sharing! I hear you!
you know what, i appreciate you sharing this because if i ever use minoxidil, i will definitely not be using it daily! i see no reason why you couldn't use it maybe 3x a week and get the same benefits
Never knew metformin was available topically?
Through a compound with your Derm
Please make a video about wigs and hair pieces and how does it affect the scalp.
That’s a great topic! Will try to get a professional to talk about this.
You didn’t tell us one thing that you would do it naturally that one tip, just a lot of information, which is good information, I have CCA, while like you, I am not opposed to using pharmaceutical medication, because I have really I’ve been diagnosed with really severe Superache dermatitis, and the pharmaceutical drugs do work to extent, my only concern is that my dermatologist does not like these natural things because they can’t only because they’re not able to monitor what’s working they want to know what the drug companies are selling that they can continue to push I have found that a mixture of all of the above works for me the natural products as well as what they are pushing but I actually had a doctor. Tell me once that unless I told her I was not going to use aloe vera or coconut coconut oil, or anything else that was natural on my scalp. She would not buy prescription for me anymore, so currently in Atlanta, Georgia I’m looking for a new dermatologist outside of the Emory practice, I’m not for the Pusherman.🤦🏽♀️😏
Are there any over the counter topical metformin products?
That's a great question! I'm not aware of any but check with your dermatologist as they will have more detailed information.
My granddaughter have a spot that refuse to grow what’s that call she only 26 year old
A dermatologist or trichologist will be able to provide a diagnosis for your granddaughter.
Where can i get the topical metformin
From what I've read, a dermatologist has to prescribe it (if you're in the U.S.).