Excellent information. Thank you! How do we find the resources for ME/CFS for these services, locate PT & OT providers who are trained in helping those of us with ME/CFS? I was diagnosed 10+ years ago, seeing various practitioners, holistic, functional, integrative, osteopathic, psychiatrists, therapists; who knew I had it, but not one ever gave me ANY advice on pacing or how to "manage" this debilitating illness. It's like we're 🦄 Like many I was left with -0- support from the medical community. How can patients help change this narrative with our practitioners?
Excellent information. Thank you! How do we find the resources for ME/CFS for these services, locate PT & OT providers who are trained in helping those of us with ME/CFS?
I was diagnosed 10+ years ago, seeing various practitioners, holistic, functional, integrative, osteopathic, psychiatrists, therapists; who knew I had it, but not one ever gave me ANY advice on pacing or how to "manage" this debilitating illness. It's like we're 🦄 Like many I was left with -0- support from the medical community. How can patients help change this narrative with our practitioners?