@@blackfootedferret thankfully I don't have epilepsy. But I do have schizophrenia symptoms, I get strong deja vu episodes. I really hate it. It's like a nightmare, that I'm stuck in eternity repeating the same thing over and over. It's the scariest thing I've ever experienced. It really makes me question my sanity. I don't do drugs because it makes it 20 times worst. In the meanwhile I work on ignoring those thoughts and try to stay positive, it doesn't come natural, I really have to work at it.
@@blackfootedferret 💜🦋We should be a little more compassionate since we all suffer with this very scary occurrence so we are sorry 💜🦋 sometimes its easier to make a joke about it, it is very traumatizing sorry honestly 💜🦋💜🦋 but it was a bit funny it was just that we were all probably thinking the same thing but someone said it firs.but really sorry 💜🦋
10 years ago when I was 17 I got assaulted in a dark alley. I got a traumatic brian injury to the left side of my brain. Ever since I had deja vu once a month but I didn't tell anyone because I was scared I was going crazy. As well as really bad migraines. On 2/15/2022 I woke up in the hospital from having a seizure for the first time. This video made me realize I'm not crazy 😔
I’ve been having them for about 10 years, my parents had no idea what I meant bc the way I explained it was basically “I get a strong wave of deja vu and I get a really sour taste in my mouth, get dizzy,nauseous,and then I forget everything that happened” them AND my doctor both looked at me like I was insane. I finally did some research and found out it was temporal lobe seizures
Just want to take a minute to thank the people who invest their time to make these videos and provide this information for people with dealing with these problems. Small or large, any amount of information it's always helpful and truly appreciated. Thank you for everyone who put in time and effort into making this.
It's common, but can spread over time. Not trying to scare you. Only saying this from my own experience and in hopes that you seek the right care to get yours under control. I had the same symptoms as you for 15 years. Mine started in 5th grade. It wasn't until after I graduated college and was working for a few years when I had my first generalized seizure. That was nearly 10 years ago. They've become more frequent since then as well. I'm currently now looking at surgical options. Good luck Eva.
I experienced thise things and eventually it did turn into a physical problem, temporary loss of motor skills, loss of conciousness. Talk to a doctor as soon as you can and they will very likely be able to help. Since going on Keppra I have improved dramatically
I just had another deja vu feeling, I've had 5 seizures n my life(which came out of no where) usually after a deja vu feelin. But my last like 5 feelings I haven't had a seizure (thank god!!)
You should see a neurologist. I started with Deja vu(auras) then it becomes seizures. I started with these and now I have clusters and psychotic episodes when I have more than 1. Hope you get treated this is why I’m looking into these videos now because I’m afraid of having bigger mental issues, the brain is essential ❤️
@@IamAileenDiaz me too. Had seizures for years but they were unexplainable. Got checked and turns out I had a brain tumour but got it removed and never had one since thankfully
I didn't know I had temporal lobe epilepsy til I had a seizure in 2021 and I've probably had this for years when I was in my mid 20s or 30s because I'm 48 yrs old now. I take meds for my epilepsy daily!
I think that's what I have. I'm never nervous or anxious. I am not afraid about anything. I've been having these bizarre episodes my entire life and it doesn't matter if I eat or starve or too much caffeine or none at all or what. They usually strike me while I'm sleeping then happen a few times daily for a day or two then go away and I feel like a million bucks when they stop. It almost seems like my mind is defragmenting itself
@@ameliaataba7074 every hour? Is that like every day or when they do happen it's hourly? I had one a couple days ago but not since. I think it's the f'd up times we're living in.
Muhammad Raza my daughter’s doctor wants to do surgery I’m not sure I’m ready because I didn’t want anything to be messed up... how is your memory and are you able to move all your ligaments basically is your whole entire body functioning properly
@@DanReed98 i am fine i dont feel aura. Amygdala hippocampus was damage in my brain and was remove from right side of my brain. I am seizure free its almost 7 seven years.
@@muhammadraza1240 that’s a relief you aren’t having auras and seizures anymore. I’m getting stressed because I really hate the auras I’m getting everyday because they feel horrible. I just really want to stop having these feelings. The MRI scan showed a slightly bulky hippocampus and left amygdala. I’m not sure if my daily lamotrigine tablets will fix all this, or if I need to have brain surgery.
I think this happened to me 2 weeks ago. 3 times in 2 days I had a feeling of INTENSE deja vu, which was accompanied by a sense of dread and feeling confused and light headed. I tried to make it to the restroom as I was not sure if I was going to vomit or what, but never did. Each time it hit I was in the kitchen cooking food. Thank GOD I had the foresight to step away from the stove when I felt it coming on. I tried to make it to the restroom each time but I never made it. I woke up 3 times in 2 days on the ground and I had hit my forehead in at least 2 spots on the hard tile floor. I am making an appointment to MHYMR in 2 days and I am going to mention this to them. I am trying to get treatment for severe social anxiety, bipolar and depression, but it seems to me that I might actually have TLE.
I have TLE but well controlled under my medication. Took 15 years to get diagnosed because the Doc's couldn't figure out what my confusion and dizziness problems were. Had a grand mal seizure in 2008 or 9 and then was diagnosed.
I've had these since my teenage years, they pretty much vanished throughout my twenties, only having one or two. Now I'm 30 and they've come back again, multiple times a week. I hate the way they make me feel 😩
Now u have me scared to turn 30. Cause I haven’t had it for a couple of years now…. It feels like the worst thing in the world, and it makes it 10 x’s worse when it happens to someone who over-think a lot. Hope u get better💪🏽
This is very interesting. I never thought I was having seizures until some symptoms prompted my doctor to send me for testing. Results are not back yet, but I believe in addition to the Auditory seizures I was referred for, I’m also having seizures that mimic anxiety. I feel very out-of-body, I look at myself and my hands look weird and huge and my eyesight is sort of fishbowled, and I sort of feel like I’m not a part of the fabric of the universe, and I am both overwhelmed by anxiety and stuck in place. It feels like anxiety, but not, at the same time... like a panic attack rising but never arriving.
Update, BTW... I was told that all of my results were normal except for one specific brainwave type, and that was due to medication interaction. However, I was not using the medication they mentioned. I was supposed to get a longer, slightly different epilepsy test, but my original neurologist retired and then COVID happened
@@QueerCripple plz update.. I need to talk to you..I had the exact same experience like stuck in time loop, dejavu and panic attacks loop but for me this happened when I smoked weed
I had my first seizure last year, at 23 years of age. I never got checked because of my financial situation, but I've been doing research and this is the closest to what I feel, the dejavu feeling that makes me nauseous, the anxiety. I was feeling that quite often last year until I had a seizure and then it stopped. Now it's coming back again and I had it like 4 times this week, and that's scaring me. I hate how those make me feel.
I have TLE and I have around 5-10 seizures a month. I had it for at least 7 years before I got my diagnosis, I’ve been on medication since last summer and it has decreased my seizure frequency somewhat but I don’t think I’ll ever get rid of them. My temporal lobe must be scarred as hell from all these years of untreated epilepsy. My memory is really really bad, even though I am only 20. so yeah this is my experience with TLE. The seizures themselves are... indescribable
I'm sorry you have to deal with them. I also have complex partial seizures. I have a very positive outlook, there is always some worse off than me. One day, All sickness will be gone. Do your best.
I am curious, do you know if anything sets these off? Mine have slowed down a lot since I was in high school and I am curious why? When I do get them, It seems random. I get a couple every few months now.
De javu, a weird taste of metal in you're mouth, excessive drooling, sweating excessively afterwards or during the episode, these are all the signs I showed before I was diagnosed with temporal lobe seizures. Don't take it for granted, if you notice these things GET to a doctor and have it looked at. Seizures are nothing to take lightly
This makes a lot of sense. I've always been anxious. Social anxiety particularly and only diagnosed with left temporal lobe epilepsy now I'm mid 30s. Still got the anxiety though 😒. And it's no better than it's ever been
I was misdiagnosed as bipolar but actually had TLE. It spread to other parts of my brain from being undiagnosed so long. If you are having hallucinations it's easy for doctors to jump to mental illness. I had a bad feeling in my gut before my episodes. Very strange feelings
Tortilla Chips I’m really sorry to hear that. I hate how now a days doctors just take out their book of mental illnesses and point at which sounds the most accurate instead of actually taking the correct precautions when diagnosing someone. What is the next step for you now?
Same thing happened to me … now I’m so messed up having them constantly. I’m going to try and spread awareness as when your labeled as Bipolar doctors don’t take you seriously and that stays with you for a long time
I've been diagnosed with temprol lobe seizers i feel scared the deja vu gets to feel so strong that I feel like I'm going to be sick and then ill start to twitch but the deja vu i feel starts with a nightmare that seems to be an impossible situation , i know im dreaming and then days weeks or even years later comes the deja vu and the seizers
My daughter developed sezziers after her two months vaccination and she had them back to back more than 100 times non stop and she passed away she was in so much medication injection for it and nothing worked she was only 9th months old she died in her sleep.
I've had episodes for YEARS where I get the deja vu feeling, then it leads to BAD nausea, BAD occipital/temporal pressure/tingling and it doesn't stop for minutes at a time. I can still function but it's all delayed, I've never been tested but NOTHING explains it !!!! I can get it up to 6 times a DAY for multiple days then it just stops for weeks or months. And then it repeats. I desperately want answers but I don't have the money for testing )):
i've had it for 10 years now and yesterday I was finally diagnosed. I relate very much to the part where you say you have bad nausea and temporal pressure. Mine also strike first time at night and than repet a few times in a day for 2 or 3 days. It lasts around 2 min
@@comi_ you might be some of the help that gets me a diagnosis if I need it. Still, no one takes me seriously and I just got it again after a month of Deja Vu. Thank you though, I appreciate you greatly.
Exactly like what I feel for when my seizures attack,for me medicinal plant like turmeric tea,is much a good benefits rather than anti- convulsive drugs.Base in my experience.When I'm studying I continue drinking turmeric every morning and night,but now instead i'm taking anti convulsive drugs,since I'm working now. Since 2011 when im suffer from seizures disorder due to pasmatic work after I graduated in high school,sad to say my MRI results mark that I have"👉 Mild left hippocampal attrophy or mesial temporal sclerosis... I have maintenance until now,penobartal,its been almost 12 years,but still my seizures attack me for unknown reasons, that's why I'm not capable for hardwork. According to research if someone are suffering from seizures,even she/he taken anti convulsive drugs in long period of time,but it's not useful tool to heal or to stop from seizures, Medical research suggests only lobectomy is the proper tool to stop his/her seizure, because during operation,Dr.eliminate vein where seizures give signal.. And that's what I pray for🙏🙏🙏🙏
I thought the Indians were pioneers in neuroscience... :P I don't think recipes will cure epilepsy, Raunak. In fact I don't think it can be "cured", just suppressed.
If you really have no symptoms at all except temporary deja vu that doesn't impact you, tell your neuro you want to stop taking lamotrigine. Unless they're necessary avoid AEDs like the plague as they're a rabbit hole you should stay out of.
AEDs produce all sorts of side-effects which might affect your life even more than the epilepsy itself. I refer to them as that because you'll keep being put on more of them if one doesn't appear to work, they'll keep altering your dosages and they can really make you miserable. Trying one medication may lead to ten other kinds. I can't count the number of AEDs I've tried, and while they're helping slow the frequency with the current hodgepodge of AEDs I'm on now my seizures are still uncontrolled. Since you asked, I'll talk about it, though it'll end up a few paragraphs. I was diagnosed with temporal lobe epilepsy a decade ago. It's ultimately stolen those years from me, which has nearly been the entirety of my twenties, or as one guy put it once, "the best years of your life". TLE has affected me in different ways at different times. At one time I was having multiple tonic-clonics every day and I didn't even know where I was for weeks at a time. Nowadays I have a tonic-clonic around once a month and usually at least one focal (also called partial) seizure every day. The focal seizures can leave me unable to talk or do just about anything and I have to rest and do something to calm me down and take my mind off it, else there's a chance it will develop into a tonic-clonic. Though I can't do many things to take my mind off the focal seizure, since I no longer have the cognition to read for example. I found some simple phone games that help me keep my mind off it all until I feel better. Because of these focal seizures I can't do a lot of things. Driving is one of them, but many jobs are out of the question like manual labour, operating machinery, or even customer service. I currently live on welfare and it's not something I'm proud of. The tonic-clonics are really something else. They're very nightmarish and very strangely affect my perception of things, sometimes burning distorted sounds I hear into my memory. But it isn't the seizure itself that's the biggest problem (though, to be fair I badly scarred my face once during a tonic-clonic) as when I wake up I experience something highly unusual that despite my wording, I couldn't reasonably expect anybody who doesn't experience this to understand. When I come to I have complete temporary amnesia and *know* that I am about to die. Of course I don't know any better as I'm so out of it, but I always feel my whole body shutting down (for a lack of better words) and have constant palpitations. This whole thing is sometimes referred to as an "impending sense of doom". Presumably in a panic I often get up and try to go somewhere (in some cases to get water as I'm very dehydrated) but usually fail, collapsing and injuring myself. If I'm not at home I often end up in an ambulance. I really hate hospitals but it's something I have to deal with. The epilepsy has made me afraid of going to many places as I have bad memories of seizures in shops, schools, on trains, so forth. Ended up developing agoraphobia so I'm just a hermit now, though I was a bit social before the epilepsy. It wouldn't be a stretch to say epilepsy has ruined me, but I'm expected to have surgery quite soon (called a temporal lobectomy), so if all goes well I hope I can finally start turning my life around.
i’ve never had a seizure but i keep having these déjà vu feelings several times a day it’s so intense and frighrening im just a teen. idk what’s going on, every time i describe how i’m feeling on google or youtube i get temporal epilepsy. i have all these symptoms.
Sweet heart, tell your parents this is how I started and so hard to explain the symptoms cus there’s no words to express the confusion.. Pls tell your parents… I was diagnosed 15 yrs later almost a s now there’s xk seques like have psychotic episodes after more than 1 seizure cluster . This is also emotional derived and stress.
I’m 22 and I started having these feelings and focal seizures for the past few months. This all came out of nowhere and I really want it to stop because I get at least one of these feelings a day and they’re horrible.
I don't have family history of epilepsy but I getting déjà vu many times but I also think that's my anxiety because one day I get déjà vu then I research about déjà vu and I also know about epilepsy then I saw a "real" video of temporal lobe seizure then I scared to get seizure then I getting déjà vu like feeling for some nanoseconds everyday like 2 to 3 times a day. I am scared because I also have anxiety disorder and Is anxiety can cause seizure? And sometimes I feel déjà vu like feeling continuously like about 2 min even what I am thinking that also! I am really scared i am 14.
let's see, Temporal Lobe Epilepsy, Schitzophrenia, Bipolar and Attention Deficiet Hyperactive Disorder. the only thing missing is the Autism but my cousin has that covered
been seeing my moments of my future and another reality since I was born..... so many times daily... " dejavu " ... while in traveling every three years to a new country . then seizure when 29 whilst working for a big company... its all like the Matrix... my old boss saw me experience dejavu... I had been there before....seen it so long ago... the moment she said something and the door shut and everything put itself into position... my mind my body.. felt like it was going to dissipate into another reality... the feeling is beautiful, overwhelming...exasperating.. sad... unbelievable...and when its over.... relieving... its the matrix lol... good luck to ya!
ME TOO!!!! I'm so glad I am not the only one going through this treachery! Cause for almost a year, I have been having sensations like I've been here before...or I having moment where it's familiar but I never been anywhere close and then it'll go away..it's so much that I can go too
i think i might have this except my seizures were pronounced in a... spacing out way. id space out and sit there unaware until someone snapped me back in, i dont get that much now but all the other symptoms are there, is it possible to have seizures without muscle spasms?
Would like more information about possible doctors to preform surgery and how you knew to pick the right Doctor best suited for your left temporal lobe removal brain surgery. I have been suffering from seizures sense the age of 13 and am now a 27 female in Michigan. I have transferred neurologist best suited for adults finally, and am hoping to one day carry a child. They say seizure medications are out of the question for bringing a child into the world, and I am a good candidate for receiving brain surgery they believe is in my left temporal lobe. (I do take 3different medications that control my grandmal seizures, but still don't stop my mini seizures occurring...they guessed after being in the EMU I have more seizures then possibly traced) I have only seen my new neurologists 3 times total and have been getting tests done like crazy to find a cure. My health rests in the judgment of a doctor of Henry Ford Hospital that don't/hardly even know and feel so un-easy about. WHAT WOULD YOU DO???
Amanda Pluskota I have epilepsy in my temporal lobe and I have safely carried and delivered a healthy baby. She is now 10 months old. There are medications that you can take that are safe for baby to but in very low dosages. Best of luck
Not to scare you at all, but it can be over time. Scarring can occur and it can lead to worse seizures and slowly developing cognitive issues over time. First step is being referred to a neurologist and get testing completed to try and find the cause and get the seizures under control with medication. If medicine doesn't work, surgery is also an option. I say this with 26 year's dealing worth of TLE myself. Hope you're doing well and wish you the best Latisha.
Yes, all seizures are serious because left uncontrolled they can become worse and cause brain damage or take your life. Hopefully you've gotten treated since you posted this.
I went ten years with temporal lobe epilepsy. Couldn't afford to see a doctor, thought it was anxiety and ignored it. Finally crashed my car. God bless America
This basically describes exactly how mine developed, I had an endoscopy a couple years before I was diagnosed because I kept having odd feelings in my stomach, then I noticed I was having dejavu. I never put it together until I started losing time, realizing I was blanking out.
Kevin Kays has it got any better now that you know what it is? And if medication even works? I think I have this I have a history in mental illness and psychosis and I get stuff like this especially stress :(
GOOD LORD ive been having jerking motions, and facial and arm spasms and it was just blamed on anxiety... they get worse after eating sugar and i cannot touch alochol anymore or i seize right up and jerk alot and the anxiety is scary and brutal. the thing is im aware and not unconcious so its more of a partial seizure i have. i think this is what i have.....
How to overcome partial temprl lobe which resulting symptom like_ middle & index finger rubbing & twiching involuntarily with a sound like a bird & moving right side lip to upside.please reply remedy .
It could be a panic attack, but it could also be a simple partial seizure in your temporal lobe. Both have very similar symptoms. If you don't have a neurologist, go to your family doctor, tell them what's going on and ask to be referred to a neurologist. They can do tests to determine if it is a seizure, and if so, what might be causing them and what to do to stop them. A lot of time, seizure disorders will worsen over time if they're not treated. Take care and good luck Rob.
@@r.lemmons9403 lasted like 10-20 second got strong and stronger then it just went away. Nothing else happened just that and I was all there in my mind because I was driving and had full control the whole time
I don't know if this is the same thing, but every once in a while, I will like remember a dream that I've had, and it's like I remember having this dream like I've had it before and I get a kinda dizzy and weird feeling. and then it goes away and I cant remember for the life of me anything about the dream and then my throat gets really dry and I have a hard time remember things or using my brain a few minutes after. any thoughts on if it's the same thing?
Same exact thing happens to me. I also feel nauseous afterwards for a couple seconds then it all goes away. Im also not sure if its TLE because i dont have the money to get tested.. but after so much research it seems that this is it
This is exactly what I was experiencing. Maybe 15 times in total and the actual seizure part would last only about 10 seconds or so followed by a few minutes of confusion and often times heavy sweating. I had the euphoric gastronomical feeling, dry throat, and often combined with deja-vu. I would also have dream-like episodes where I would speaking to someone and know what was going to be said, but then after the seizure I could not remember or recall the conversation. My family doctor referred me to a neurologist who arranged for me spend a week in the Cleveland Clinic Epilepsy Monitoring Unit. Long story short, I am now taking Lamotrigine (Lamictal) and the seizures are gone.
It might be the same thing, because that's how I feel too. Like trying to remember a memory so hard, a memory you're not sure where it comes from, or if it was a dream, or something. Then my face gets really warm, and I get nauseous and feel like I'm gonna vomit. I go back to normal pretty fast but a few seconds afterwardw I do feel like I just un-tensed all the muscles in my body.
Same. I did have a surgery on October 23rd of 2019 to remove scar tissue from my brain but still have seizures without my medication because some they had to leave there because that area could paralyze me they said. My brain still functions the way before. I was warned the seizures might still happen but I chose to roll the dice. At least it decrease the amount I have. I hope things go well for you and yours.
@@DishonestTrack6 I didn't mean to compare but to say I understand and can relate. Of course I hope the same for you, I wouldn't wish what we have on our worst enemies. It's hard to explain to others what it is like other than "It starts with flashing lights".
Have it it scares me that the cure could me it worse? I went to the 24 hour eeg my epidemiologist told me to quit taking another medication and my seizures have gone down so much. So now only taking one medication I’m not getting my hopes up
Wait, I think I've seen this video before
LOL 😂 👌
its not a joke you looser
😂😂
@@blackfootedferret thankfully I don't have epilepsy. But I do have schizophrenia symptoms, I get strong deja vu episodes. I really hate it. It's like a nightmare, that I'm stuck in eternity repeating the same thing over and over. It's the scariest thing I've ever experienced. It really makes me question my sanity. I don't do drugs because it makes it 20 times worst. In the meanwhile I work on ignoring those thoughts and try to stay positive, it doesn't come natural, I really have to work at it.
@@blackfootedferret 💜🦋We should be a little more compassionate since we all suffer with this very scary occurrence so we are sorry 💜🦋 sometimes its easier to make a joke about it, it is very traumatizing sorry honestly 💜🦋💜🦋 but it was a bit funny it was just that we were all probably thinking the same thing but someone said it firs.but really sorry 💜🦋
It was very hard to explain to my parents that I was having extreme deja vu. When I had the first seizure they started taking it seriously.
Same here. This is exactly what happened to me at age 16 and then I started having seizures
Hope you’re feeling better now
10 years ago when I was 17 I got assaulted in a dark alley. I got a traumatic brian injury to the left side of my brain. Ever since I had deja vu once a month but I didn't tell anyone because I was scared I was going crazy. As well as really bad migraines. On 2/15/2022 I woke up in the hospital from having a seizure for the first time. This video made me realize I'm not crazy 😔
I’ve been having them for about 10 years, my parents had no idea what I meant bc the way I explained it was basically “I get a strong wave of deja vu and I get a really sour taste in my mouth, get dizzy,nauseous,and then I forget everything that happened” them AND my doctor both looked at me like I was insane. I finally did some research and found out it was temporal lobe seizures
I had the same experience
Just want to take a minute to thank the people who invest their time to make these videos and provide this information for people with dealing with these problems. Small or large, any amount of information it's always helpful and truly appreciated. Thank you for everyone who put in time and effort into making this.
I have TLE, the exact deja vu feeling, fear, confusion, memory loss. But it never spreads and turns into anything physical. Is that common? Or strange
It's common, but can spread over time. Not trying to scare you. Only saying this from my own experience and in hopes that you seek the right care to get yours under control. I had the same symptoms as you for 15 years. Mine started in 5th grade. It wasn't until after I graduated college and was working for a few years when I had my first generalized seizure. That was nearly 10 years ago. They've become more frequent since then as well. I'm currently now looking at surgical options. Good luck Eva.
I experienced thise things and eventually it did turn into a physical problem, temporary loss of motor skills, loss of conciousness. Talk to a doctor as soon as you can and they will very likely be able to help. Since going on Keppra I have improved dramatically
I just had another deja vu feeling, I've had 5 seizures n my life(which came out of no where) usually after a deja vu feelin. But my last like 5 feelings I haven't had a seizure (thank god!!)
Antonio Underdue exact same here. Been on Keppra for a year now
You should see a neurologist. I started with Deja vu(auras) then it becomes seizures. I started with these and now I have clusters and psychotic episodes when I have more than 1. Hope you get treated this is why I’m looking into these videos now because I’m afraid of having bigger mental issues, the brain is essential ❤️
@@IamAileenDiaz me too. Had seizures for years but they were unexplainable. Got checked and turns out I had a brain tumour but got it removed and never had one since thankfully
I didn't know I had temporal lobe epilepsy til I had a seizure in 2021 and I've probably had this for years when I was in my mid 20s or 30s because I'm 48 yrs old now. I take meds for my epilepsy daily!
I think that's what I have. I'm never nervous or anxious. I am not afraid about anything. I've been having these bizarre episodes my entire life and it doesn't matter if I eat or starve or too much caffeine or none at all or what. They usually strike me while I'm sleeping then happen a few times daily for a day or two then go away and I feel like a million bucks when they stop. It almost seems like my mind is defragmenting itself
i’m the same, for me they happen almost every hour
@@ameliaataba7074 every hour? Is that like every day or when they do happen it's hourly? I had one a couple days ago but not since. I think it's the f'd up times we're living in.
mine also strike at night and than repet a few times a day for 1, 2 or 3 days
I had epilepsy seizures for past seventeen years in 2016 I had brain surgery of Mesial temporal lobe and I am seizure free from past three years.
Muhammad Raza my daughter’s doctor wants to do surgery I’m not sure I’m ready because I didn’t want anything to be messed up... how is your memory and are you able to move all your ligaments basically is your whole entire body functioning properly
Do you still get the aura feelings or have they also stopped?
@@DanReed98 i am fine but i am using one tablet since my surgery.
@@DanReed98 i am fine i dont feel aura. Amygdala hippocampus was damage in my brain and was remove from right side of my brain. I am seizure free its almost 7 seven years.
@@muhammadraza1240 that’s a relief you aren’t having auras and seizures anymore. I’m getting stressed because I really hate the auras I’m getting everyday because they feel horrible. I just really want to stop having these feelings. The MRI scan showed a slightly bulky hippocampus and left amygdala. I’m not sure if my daily lamotrigine tablets will fix all this, or if I need to have brain surgery.
I think this happened to me 2 weeks ago. 3 times in 2 days I had a feeling of INTENSE deja vu, which was accompanied by a sense of dread and feeling confused and light headed. I tried to make it to the restroom as I was not sure if I was going to vomit or what, but never did. Each time it hit I was in the kitchen cooking food. Thank GOD I had the foresight to step away from the stove when I felt it coming on. I tried to make it to the restroom each time but I never made it. I woke up 3 times in 2 days on the ground and I had hit my forehead in at least 2 spots on the hard tile floor. I am making an appointment to MHYMR in 2 days and I am going to mention this to them. I am trying to get treatment for severe social anxiety, bipolar and depression, but it seems to me that I might actually have TLE.
Hoping all is well. I've had those episodes of deja vu and dread for years. Recently started seizing in my sleep. Wouldn't wish it on anyone
I have TLE but well controlled under my medication. Took 15 years to get diagnosed because the Doc's couldn't figure out what my confusion and dizziness problems were. Had a grand mal seizure in 2008 or 9 and then was diagnosed.
My temporal lobe siezure started after I had intense chemotherapy as a child
I've had these since my teenage years, they pretty much vanished throughout my twenties, only having one or two. Now I'm 30 and they've come back again, multiple times a week. I hate the way they make me feel 😩
Now u have me scared to turn 30. Cause I haven’t had it for a couple of years now…. It feels like the worst thing in the world, and it makes it 10 x’s worse when it happens to someone who over-think a lot. Hope u get better💪🏽
This is very interesting. I never thought I was having seizures until some symptoms prompted my doctor to send me for testing. Results are not back yet, but I believe in addition to the Auditory seizures I was referred for, I’m also having seizures that mimic anxiety. I feel very out-of-body, I look at myself and my hands look weird and huge and my eyesight is sort of fishbowled, and I sort of feel like I’m not a part of the fabric of the universe, and I am both overwhelmed by anxiety and stuck in place. It feels like anxiety, but not, at the same time... like a panic attack rising but never arriving.
Yeah me too sir
Mine are like this too. Very relatable.
Update, BTW... I was told that all of my results were normal except for one specific brainwave type, and that was due to medication interaction. However, I was not using the medication they mentioned. I was supposed to get a longer, slightly different epilepsy test, but my original neurologist retired and then COVID happened
@@QueerCripple plz update.. I need to talk to you..I had the exact same experience like stuck in time loop, dejavu and panic attacks loop but for me this happened when I smoked weed
@@sameerkharel same here
I had my first seizure last year, at 23 years of age. I never got checked because of my financial situation, but I've been doing research and this is the closest to what I feel, the dejavu feeling that makes me nauseous, the anxiety. I was feeling that quite often last year until I had a seizure and then it stopped. Now it's coming back again and I had it like 4 times this week, and that's scaring me. I hate how those make me feel.
I have TLE and I have around 5-10 seizures a month. I had it for at least 7 years before I got my diagnosis, I’ve been on medication since last summer and it has decreased my seizure frequency somewhat but I don’t think I’ll ever get rid of them. My temporal lobe must be scarred as hell from all these years of untreated epilepsy. My memory is really really bad, even though I am only 20. so yeah this is my experience with TLE. The seizures themselves are... indescribable
I'm sorry you have to deal with them. I also have complex partial seizures. I have a very positive outlook, there is always some worse off than me. One day, All sickness will be gone. Do your best.
I am curious, do you know if anything sets these off? Mine have slowed down a lot since I was in high school and I am curious why? When I do get them, It seems random. I get a couple every few months now.
De javu, a weird taste of metal in you're mouth, excessive drooling, sweating excessively afterwards or during the episode, these are all the signs I showed before I was diagnosed with temporal lobe seizures. Don't take it for granted, if you notice these things GET to a doctor and have it looked at. Seizures are nothing to take lightly
This makes a lot of sense. I've always been anxious. Social anxiety particularly and only diagnosed with left temporal lobe epilepsy now I'm mid 30s. Still got the anxiety though 😒. And it's no better than it's ever been
I was misdiagnosed as bipolar but actually had TLE. It spread to other parts of my brain from being undiagnosed so long. If you are having hallucinations it's easy for doctors to jump to mental illness. I had a bad feeling in my gut before my episodes. Very strange feelings
Tortilla Chips I’m really sorry to hear that. I hate how now a days doctors just take out their book of mental illnesses and point at which sounds the most accurate instead of actually taking the correct precautions when diagnosing someone. What is the next step for you now?
how did they diagnose TLE for you
Same thing happened to me … now I’m so messed up having them constantly. I’m going to try and spread awareness as when your labeled as Bipolar doctors don’t take you seriously and that stays with you for a long time
I've been diagnosed with temprol lobe seizers i feel scared the deja vu gets to feel so strong that I feel like I'm going to be sick and then ill start to twitch but the deja vu i feel starts with a nightmare that seems to be an impossible situation
, i know im dreaming and then days weeks or even years later comes the deja vu and the seizers
theres no HOW in a Temporal Lobe Epilepsy how am I howing ???
My daughter developed sezziers after her two months vaccination and she had them back to back more than 100 times non stop and she passed away she was in so much medication injection for it and nothing worked she was only 9th months old she died in her sleep.
I have always gotten these as a kid but I’ve never had a seizure. It does make me very nauseous and I have vomited from it before.
Authority same I haven’t got a actual seizure, and I hope I don’t but I get the deja vu thing a lot
ッッ how often do you get them?
This IS a seizure.
I've had episodes for YEARS where I get the deja vu feeling, then it leads to BAD nausea, BAD occipital/temporal pressure/tingling and it doesn't stop for minutes at a time. I can still function but it's all delayed, I've never been tested but NOTHING explains it !!!! I can get it up to 6 times a DAY for multiple days then it just stops for weeks or months. And then it repeats. I desperately want answers but I don't have the money for testing )):
i've had it for 10 years now and yesterday I was finally diagnosed. I relate very much to the part where you say you have bad nausea and temporal pressure. Mine also strike first time at night and than repet a few times in a day for 2 or 3 days. It lasts around 2 min
@@comi_ you might be some of the help that gets me a diagnosis if I need it. Still, no one takes me seriously and I just got it again after a month of Deja Vu. Thank you though, I appreciate you greatly.
nothing worse then waking up in ICU
not knowing why your there.
that was second grand mal over 2 years ago ,
so far no probs with meds.
Locals Only happened to me more times than I’d like to say. I have them all the time.
Happened to me too!
OMG I'm not trying for it to get worse
I have TLE symptoms and seizures. But my EEG and MRI were normal
Ive had 3 of those in my entire life, one in 2018, 2019 and lastly a couple days ago
Exactly like what I feel for when my seizures attack,for me medicinal plant like turmeric tea,is much a good benefits rather than anti- convulsive drugs.Base in my experience.When I'm studying I continue drinking turmeric every morning and night,but now instead i'm taking anti convulsive drugs,since I'm working now.
Since 2011 when im suffer from seizures disorder due to pasmatic work after I graduated in high school,sad to say my MRI results mark that I have"👉 Mild left hippocampal attrophy or mesial temporal sclerosis...
I have maintenance until now,penobartal,its been almost 12 years,but still my seizures attack me for unknown reasons, that's why I'm not capable for hardwork.
According to research if someone are suffering from seizures,even she/he taken anti convulsive drugs in long period of time,but it's not useful tool to heal or to stop from seizures,
Medical research suggests only lobectomy is the proper tool to stop his/her seizure, because during operation,Dr.eliminate vein where seizures give signal..
And that's what I pray for🙏🙏🙏🙏
Had a 9cm carciniod lung tumor removed two years ago now I'm having complex seizure s so am shitin it wish me luck !
God bless you 🙏
I'm going to fight this
I have temporal lobe epilepsy! I get simple seizures almost every day.
I thought the Indians were pioneers in neuroscience... :P I don't think recipes will cure epilepsy, Raunak. In fact I don't think it can be "cured", just suppressed.
If you really have no symptoms at all except temporary deja vu that doesn't impact you, tell your neuro you want to stop taking lamotrigine. Unless they're necessary avoid AEDs like the plague as they're a rabbit hole you should stay out of.
AEDs produce all sorts of side-effects which might affect your life even more than the epilepsy itself. I refer to them as that because you'll keep being put on more of them if one doesn't appear to work, they'll keep altering your dosages and they can really make you miserable. Trying one medication may lead to ten other kinds. I can't count the number of AEDs I've tried, and while they're helping slow the frequency with the current hodgepodge of AEDs I'm on now my seizures are still uncontrolled.
Since you asked, I'll talk about it, though it'll end up a few paragraphs. I was diagnosed with temporal lobe epilepsy a decade ago. It's ultimately stolen those years from me, which has nearly been the entirety of my twenties, or as one guy put it once, "the best years of your life". TLE has affected me in different ways at different times. At one time I was having multiple tonic-clonics every day and I didn't even know where I was for weeks at a time. Nowadays I have a tonic-clonic around once a month and usually at least one focal (also called partial) seizure every day.
The focal seizures can leave me unable to talk or do just about anything and I have to rest and do something to calm me down and take my mind off it, else there's a chance it will develop into a tonic-clonic. Though I can't do many things to take my mind off the focal seizure, since I no longer have the cognition to read for example. I found some simple phone games that help me keep my mind off it all until I feel better. Because of these focal seizures I can't do a lot of things. Driving is one of them, but many jobs are out of the question like manual labour, operating machinery, or even customer service. I currently live on welfare and it's not something I'm proud of.
The tonic-clonics are really something else. They're very nightmarish and very strangely affect my perception of things, sometimes burning distorted sounds I hear into my memory. But it isn't the seizure itself that's the biggest problem (though, to be fair I badly scarred my face once during a tonic-clonic) as when I wake up I experience something highly unusual that despite my wording, I couldn't reasonably expect anybody who doesn't experience this to understand. When I come to I have complete temporary amnesia and *know* that I am about to die. Of course I don't know any better as I'm so out of it, but I always feel my whole body shutting down (for a lack of better words) and have constant palpitations. This whole thing is sometimes referred to as an "impending sense of doom". Presumably in a panic I often get up and try to go somewhere (in some cases to get water as I'm very dehydrated) but usually fail, collapsing and injuring myself.
If I'm not at home I often end up in an ambulance. I really hate hospitals but it's something I have to deal with. The epilepsy has made me afraid of going to many places as I have bad memories of seizures in shops, schools, on trains, so forth. Ended up developing agoraphobia so I'm just a hermit now, though I was a bit social before the epilepsy.
It wouldn't be a stretch to say epilepsy has ruined me, but I'm expected to have surgery quite soon (called a temporal lobectomy), so if all goes well I hope I can finally start turning my life around.
Mantis: Mega Outlaw Star Fan good luck
Thank you Debi.
i’ve never had a seizure but i keep having these déjà vu feelings several times a day it’s so intense and frighrening im just a teen. idk what’s going on, every time i describe how i’m feeling on google or youtube i get temporal epilepsy. i have all these symptoms.
Yess It’s the same for me, I’m 21 but its been happening to me since I was 13ish. Glad you have identified it, hope you get help!!
Sweet heart, tell your parents this is how I started and so hard to explain the symptoms cus there’s no words to express the confusion.. Pls tell your parents… I was diagnosed 15 yrs later almost a s now there’s xk seques like have psychotic episodes after more than 1 seizure cluster . This is also emotional derived and stress.
I’m 22 and I started having these feelings and focal seizures for the past few months. This all came out of nowhere and I really want it to stop because I get at least one of these feelings a day and they’re horrible.
I don't have family history of epilepsy but I getting déjà vu many times but I also think that's my anxiety because one day I get déjà vu then I research about déjà vu and I also know about epilepsy then I saw a "real" video of temporal lobe seizure then I scared to get seizure then I getting déjà vu like feeling for some nanoseconds everyday like 2 to 3 times a day. I am scared because I also have anxiety disorder and Is anxiety can cause seizure? And sometimes I feel déjà vu like feeling continuously like about 2 min even what I am thinking that also! I am really scared i am 14.
@@mauvebelly oh my gosh! i hope we can figure it out 💗💗
this is literally me
let's see, Temporal Lobe Epilepsy, Schitzophrenia, Bipolar and Attention Deficiet Hyperactive Disorder.
the only thing missing is the Autism but my cousin has that covered
Adam Hedley ???? I don't understand what you are saying. Who has all these conditions?
@@eb5857 i do
What type of meds do they give you? My nephew has autsim. Brother schito. It all runs in my family. Evey thing I mentioned. I hope you feel better.
@@eb5857 i only have meds for the schitz
been seeing my moments of my future and another reality since I was born..... so many times daily... " dejavu " ... while in traveling every three years to a new country . then seizure when 29 whilst working for a big company... its all like the Matrix... my old boss saw me experience dejavu... I had been there before....seen it so long ago... the moment she said something and the door shut and everything put itself into position... my mind my body.. felt like it was going to dissipate into another reality... the feeling is beautiful, overwhelming...exasperating.. sad... unbelievable...and when its over.... relieving... its the matrix lol... good luck to ya!
ME TOO!!!! I'm so glad I am not the only one going through this treachery! Cause for almost a year, I have been having sensations like I've been here before...or I having moment where it's familiar but I never been anywhere close and then it'll go away..it's so much that I can go too
i have this temporal lobe epilepsy when i fall down on head i'm tired but thnx god im alive
i think i might have this except my seizures were pronounced in a... spacing out way. id space out and sit there unaware until someone snapped me back in, i dont get that much now but all the other symptoms are there, is it possible to have seizures without muscle spasms?
sounds like petite mal seizure
Yea same rujbe
Yes it's possible. Not all seizures involve motor symptoms.
I have temporal lobe epilepsy 😑 so annoying haha
Luna Kwiii I hate having his condition
Would like more information about possible doctors to preform surgery and how you knew to pick the right Doctor best suited for your left temporal lobe removal brain surgery. I have been suffering from seizures sense the age of 13 and am now a 27 female in Michigan. I have transferred neurologist best suited for adults finally, and am hoping to one day carry a child. They say seizure medications are out of the question for bringing a child into the world, and I am a good candidate for receiving brain surgery they believe is in my left temporal lobe. (I do take 3different medications that control my grandmal seizures, but still don't stop my mini seizures occurring...they guessed after being in the EMU I have more seizures then possibly traced) I have only seen my new neurologists 3 times total and have been getting tests done like crazy to find a cure. My health rests in the judgment of a doctor of Henry Ford Hospital that don't/hardly even know and feel so un-easy about. WHAT WOULD YOU DO???
Amanda Pluskota I have epilepsy in my temporal lobe and I have safely carried and delivered a healthy baby. She is now 10 months old. There are medications that you can take that are safe for baby to but in very low dosages. Best of luck
Wanna know too
@amandofosho Did you try seeing the neurologists / epileptologists at the University of Michigan Ann Arbor for further medical evaluations?
are temporal lobe seizures serious?
I don't know maybe I have it but people around me always treat it as nothing
Not to scare you at all, but it can be over time. Scarring can occur and it can lead to worse seizures and slowly developing cognitive issues over time. First step is being referred to a neurologist and get testing completed to try and find the cause and get the seizures under control with medication. If medicine doesn't work, surgery is also an option. I say this with 26 year's dealing worth of TLE myself. Hope you're doing well and wish you the best Latisha.
Ive had 3 of those in the last 3 years, can this be a sign of an early stage?
Yes, all seizures are serious because left uncontrolled they can become worse and cause brain damage or take your life. Hopefully you've gotten treated since you posted this.
I went ten years with temporal lobe epilepsy. Couldn't afford to see a doctor, thought it was anxiety and ignored it. Finally crashed my car. God bless America
Thanks for this informative video.
I hate having TLE and I hate how much the medication has ruined my life
1:44 some of my favorites
EPILEPSY & CANNABIS (CBD OIL)
Billy Tolliver cannabis is the reason i have this!
YB -young blood weed caused you to have seizures?
My neurologist told me to never smoke weed or anything.
YB -young blood really?
YB -young blood me too
The way he keeps looking over at her as he’s explaining makes it look like he doesn’t know what he’s talking about
Mine started after I had intense chemotherapy as a child
This basically describes exactly how mine developed, I had an endoscopy a couple years before I was diagnosed because I kept having odd feelings in my stomach, then I noticed I was having dejavu. I never put it together until I started losing time, realizing I was blanking out.
Kevin Kays has it got any better now that you know what it is? And if medication even works? I think I have this I have a history in mental illness and psychosis and I get stuff like this especially stress :(
Lyla May have you ever had an EEG done?
GOOD LORD ive been having jerking motions, and facial and arm spasms and it was just blamed on anxiety... they get worse after eating sugar and i cannot touch alochol anymore or i seize right up and jerk alot and the anxiety is scary and brutal. the thing is im aware and not unconcious so its more of a partial seizure i have. i think this is what i have.....
I suffer from this disease and the dajavu side of it is very scary
How to overcome partial temprl lobe which resulting symptom like_ middle & index finger rubbing & twiching involuntarily with a sound like a bird & moving right side lip to upside.please reply remedy .
Keppra
Can it be cured or treated?
Treated
So can you just be driving a a feeling of fear hit you strong for no reason be this or just panick attack
It could be a panic attack, but it could also be a simple partial seizure in your temporal lobe. Both have very similar symptoms. If you don't have a neurologist, go to your family doctor, tell them what's going on and ask to be referred to a neurologist. They can do tests to determine if it is a seizure, and if so, what might be causing them and what to do to stop them. A lot of time, seizure disorders will worsen over time if they're not treated. Take care and good luck Rob.
@@r.lemmons9403 lasted like 10-20 second got strong and stronger then it just went away. Nothing else happened just that and I was all there in my mind because I was driving and had full control the whole time
I had one of these myself but I dont think it was a seizure
Well damn.
I have TLE on the left side
Me too! Just diagnosed. Are you on any medication yet, Dawn?
Me too
Me too
Me too ♡
Me too. I’m taking lamotrigine tablets everyday
uh oh
I don't know if this is the same thing, but every once in a while, I will like remember a dream that I've had, and it's like I remember having this dream like I've had it before and I get a kinda dizzy and weird feeling. and then it goes away and I cant remember for the life of me anything about the dream and then my throat gets really dry and I have a hard time remember things or using my brain a few minutes after. any thoughts on if it's the same thing?
Same exact thing happens to me. I also feel nauseous afterwards for a couple seconds then it all goes away. Im also not sure if its TLE because i dont have the money to get tested.. but after so much research it seems that this is it
This is exactly what I was experiencing. Maybe 15 times in total and the actual seizure part would last only about 10 seconds or so followed by a few minutes of confusion and often times heavy sweating. I had the euphoric gastronomical feeling, dry throat, and often combined with deja-vu. I would also have dream-like episodes where I would speaking to someone and know what was going to be said, but then after the seizure I could not remember or recall the conversation. My family doctor referred me to a neurologist who arranged for me spend a week in the Cleveland Clinic Epilepsy Monitoring Unit. Long story short, I am now taking Lamotrigine (Lamictal) and the seizures are gone.
It might be the same thing, because that's how I feel too. Like trying to remember a memory so hard, a memory you're not sure where it comes from, or if it was a dream, or something. Then my face gets really warm, and I get nauseous and feel like I'm gonna vomit. I go back to normal pretty fast but a few seconds afterwardw I do feel like I just un-tensed all the muscles in my body.
In fact I just had one now.
Thanks
Thank You
That's me.
Same. I did have a surgery on October 23rd of 2019 to remove scar tissue from my brain but still have seizures without my medication because some they had to leave there because that area could paralyze me they said. My brain still functions the way before. I was warned the seizures might still happen but I chose to roll the dice. At least it decrease the amount I have. I hope things go well for you and yours.
@@DishonestTrack6 I had gamma knife in Feb/2019, I have seizures even with medication and have Status Epilepticus.
@@astrofrk I honestly don't care who's condition is worse I just hope things go well for you.
@@DishonestTrack6 I didn't mean to compare but to say I understand and can relate. Of course I hope the same for you, I wouldn't wish what we have on our worst enemies. It's hard to explain to others what it is like other than "It starts with flashing lights".
how can I cure my seizures?? :(
+Majeed Ali CBD OIL should do a great job.
Re David weed caused me to have this
Either it will hopefully go away by itself, or you need to get brain surgery.
Have it it scares me that the cure could me it worse? I went to the 24 hour eeg my epidemiologist told me to quit taking another medication and my seizures have gone down so much. So now only taking one medication I’m not getting my hopes up