Hello there. I have commented on some of your other videos where I have recounted my experience with UC. I have been sign and symptom free for eleven years and my twice yearly blood tests are normal. I changed my diet after diagnosis and I am sure that has helped as it includes many anti inflammatory foods. I am not med free however as I take a non steroidal anti-inflammatory drug daily. Although I feel my diet is very helpful I don't want to risk a flare so I will continue to take my medicine every day.
@@helenhucker346 hey thanks for commenting! sound approach, I am doing the same, since recording this video I have mostly focused on diet and exercise and feeling pretty great! Still take my meds but it’s in the back of my mind.
Best things to do is stay on infliximab, prioritise sleep, diet, and some exercise. As long as you feel good and don’t flare then you can’t suddenly get something else… plus your monitored very closely with meds. Would be tough doing this naturally med free. Something such as a viral infection in the gut could trigger a flare and that’s it. The medication will keep you at bay. The disease is encoded in the DNA so it can’t be cured even if people are off meds and feeling good. Healing is the goal.
It is sad that we all spend too much time and energy focused on the negative and possible futures but sometimes it is helpful to prepare us, other times however it is needles worry that we lose energy and opportunity to.
Hi Jacob. My 14 year old son has just been diagnosed with UC. 3 trips to a&e and got meds. He was amazingly healthy before this and it’s been a bit of a challenge. I heard somewhere that if you have regular ish scopes they can detect any changes into cancer and sort it out quickly. Also, if you do have to have surgery, it can help to lead a reasonable life without all the pain. It feels like such a crazy illness. Thank you for your vids. Hope you stay well and they find a cure soon ❤
Hey thanks for watching! Sorry to hear your son is going through such a hard time right now. Wishing him all the best. Yea regular scopes would be advised, it gives a good picture of what is going on.
I've been on remicade/inflectra since March 2023. This medicine worked miraculously on me, and saved my colon. I recently flared, but I have not developed antibodies to inflectra. My gastroenterologist said that sometimes inflectra doesn't reach the rectum. I share your concerns about the long term risks of staying on inflectra. As long as you're feeling healthy, perhaps its best to assess your inflectra routine on a yearly basis, or even every five years. And try not to worry too far into the future... And certainly try not to worry on a daily basis. (But of course stay as healthy as you can, which I know you will do!) Good luck!
Hi, Jacob. You’re awful young. I’m sure this disease is very scary for you, as it is progressive. I’m 56 now. I had IBS in my 20’s and 30’s and progressed to IBD/colitis is my late 30’s early 40’s after getting a bout of altitude sickness that took well over a year to clear up. That’s when I got my first colonoscopy. I think at 36. I was officially diagnosed with colitis at 46. It is getting worse. I started on rectal Lialda, progressing to additional oral once a day to four times a day with steroids. Injected Humira didn’t work for me - after fistula diagnosis. I’m now on Renvoq. Been on this two weeks, so it’s undetermined if it’ll work. Honestly, I don’t know if people are really healing themselves. If they are, I don’t think it’s the same disease. I’ve tried everything. Not taking meds is risking further disease and cancer. I think best to take the meds - even tho I too would like to get off them. Biologics are scary. Maybe they’ll find a cure. Thanks for the videos. It’s nice to know what someone else is thinking/feeling.
Hey thanks for the comment, glad you found the video helpful! There was some positive news recently regarding steps towards a potential cure so fingers crossed🤞. Can only focus on what’s best for ourselves in the mean time.
Hello there. I have commented on some of your other videos where I have recounted my experience with UC.
I have been sign and symptom free for eleven years and my twice yearly blood tests are normal. I changed my diet after diagnosis and I am sure that has helped as it includes many anti inflammatory foods. I am not med free however as I take a non steroidal anti-inflammatory drug daily. Although I feel my diet is very helpful I don't want to risk a flare so I will continue to take my medicine every day.
@@helenhucker346 hey thanks for commenting! sound approach, I am doing the same, since recording this video I have mostly focused on diet and exercise and feeling pretty great! Still take my meds but it’s in the back of my mind.
Pleased to hear it! Keep up the good work and take care.
Best things to do is stay on infliximab, prioritise sleep, diet, and some exercise.
As long as you feel good and don’t flare then you can’t suddenly get something else… plus your monitored very closely with meds.
Would be tough doing this naturally med free. Something such as a viral infection in the gut could trigger a flare and that’s it. The medication will keep you at bay. The disease is encoded in the DNA so it can’t be cured even if people are off meds and feeling good. Healing is the goal.
It is sad that we all spend too much time and energy focused on the negative and possible futures but sometimes it is helpful to prepare us, other times however it is needles worry that we lose energy and opportunity to.
Hi Jacob. My 14 year old son has just been diagnosed with UC. 3 trips to a&e and got meds. He was amazingly healthy before this and it’s been a bit of a challenge. I heard somewhere that if you have regular ish scopes they can detect any changes into cancer and sort it out quickly. Also, if you do have to have surgery, it can help to lead a reasonable life without all the pain. It feels like such a crazy illness. Thank you for your vids. Hope you stay well and they find a cure soon ❤
Hey thanks for watching! Sorry to hear your son is going through such a hard time right now. Wishing him all the best.
Yea regular scopes would be advised, it gives a good picture of what is going on.
I've been on remicade/inflectra since March 2023. This medicine worked miraculously on me, and saved my colon. I recently flared, but I have not developed antibodies to inflectra. My gastroenterologist said that sometimes inflectra doesn't reach the rectum. I share your concerns about the long term risks of staying on inflectra. As long as you're feeling healthy, perhaps its best to assess your inflectra routine on a yearly basis, or even every five years. And try not to worry too far into the future... And certainly try not to worry on a daily basis. (But of course stay as healthy as you can, which I know you will do!) Good luck!
brother do you have h pylori
I believe medical science will have a solution in the coming next 10 to 15 years.
I hope so!
Hi, Jacob. You’re awful young. I’m sure this disease is very scary for you, as it is progressive. I’m 56 now. I had IBS in my 20’s and 30’s and progressed to IBD/colitis is my late 30’s early 40’s after getting a bout of altitude sickness that took well over a year to clear up. That’s when I got my first colonoscopy. I think at 36. I was officially diagnosed with colitis at 46. It is getting worse. I started on rectal Lialda, progressing to additional oral once a day to four times a day with steroids. Injected Humira didn’t work for me - after fistula diagnosis. I’m now on Renvoq. Been on this two weeks, so it’s undetermined if it’ll work. Honestly, I don’t know if people are really healing themselves. If they are, I don’t think it’s the same disease. I’ve tried everything. Not taking meds is risking further disease and cancer. I think best to take the meds - even tho I too would like to get off them. Biologics are scary. Maybe they’ll find a cure. Thanks for the videos. It’s nice to know what someone else is thinking/feeling.
Hey thanks for the comment, glad you found the video helpful! There was some positive news recently regarding steps towards a potential cure so fingers crossed🤞. Can only focus on what’s best for ourselves in the mean time.