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Jacob's IBD
United Kingdom
Приєднався 5 жов 2017
Your hub for IBD insights, tips, advice, and assisstance for living with Inflammatory Bowel Disease. My name is Jacob and I have been living with Ulcerative Colitis for almost 10 years.
Ulcerative Colitis robbed your purpose? Watch this video
Start thriving with IBD: kneecapmedia.eo.page/bn5h5
Finding a reason to live is of paramount importance. Let's discuss.
Today I wanted to talk about finding a reason to exist, a reason to keep going. All while living with a chronic disease. Although this doesn't just extend to those suffering with chronic illness. I feel that a lot of people all over feel this way, I have for most of my life. So join me today and let's talk about it.
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Check out my main channel: www.youtube.com/@kneecapjake
Business Enquiries: Hello@jacobsibd.com
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Support my channel - these are affiliate links which means if you buy something we'll receive a small commission.
Tea I use that helps me sleep: amzn.to/44YEeTi
Earplugs I use for sleep: amzn.to/3x0edGE
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#ulcerativecolitis #crohnsdisease #ibd
Finding a reason to live is of paramount importance. Let's discuss.
Today I wanted to talk about finding a reason to exist, a reason to keep going. All while living with a chronic disease. Although this doesn't just extend to those suffering with chronic illness. I feel that a lot of people all over feel this way, I have for most of my life. So join me today and let's talk about it.
-----------------
Check out my main channel: www.youtube.com/@kneecapjake
Business Enquiries: Hello@jacobsibd.com
----------------
Support my channel - these are affiliate links which means if you buy something we'll receive a small commission.
Tea I use that helps me sleep: amzn.to/44YEeTi
Earplugs I use for sleep: amzn.to/3x0edGE
Nose strips I use for sleep: amzn.to/3US0SZ2
Vitamin D I take: amzn.to/4dS8y6p
--------------
ulcerative colitis,colitis,ulcerative colitis treatment,ulcerative colitis (disease or medical condition),ulcerative colitis symptoms,ulcerative colitis ayurvedic cure,ulcerative colitis cure,ulcerative colitis pathology,crohn's disease and ulcerative colitis,heal ulcerative colitis naturally,treat ulcerative colitis naturally,exercising with ulcerative colitis,ulcerative colitis diet,ulcerative colitis bones,ulcerative colitis ayurvedic home remedies
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#ulcerativecolitis #crohnsdisease #ibd
Переглядів: 50
Відео
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Переглядів 22020 днів тому
Start thriving with IBD: kneecapmedia.eo.page/bn5h5 Despite having Ulcerative Colitis, i've been able to deadlift 240kg, build a body that I am proud of, and get in the best shape of my life. My name is Jacob, and I've been diagnosed with Ulcerative Coitis for 10 years, and i've been in the gym for 6 years. Over this time i've been able to build my strength and physique, despite numerous flares...
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How Ulcerative Colitis Improved My Life
Переглядів 158Місяць тому
Dealing with a lifelong illness teaches you a thing or two about health. I wanted to share these lessons with you today, I have learnt how to take better care of my health in various aspects. Living with ulcerative colitis has shown me the importance of focussing on diet, physical health, and mental health. Check out my main channel: www.youtube.com/@kneecapjake #ulcerativecolitis #crohnsdiseas...
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Переглядів 2562 місяці тому
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Переглядів 1402 місяці тому
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Переглядів 592 місяці тому
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Переглядів 332 місяці тому
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Living with an Incurable Disease
Переглядів 3572 місяці тому
Fear, anxiety and uncertainty. If you live with an incurable, lifelong disease, then you may have felt this. Today I wanted to discuss what this is like, and share my feelings with having Ulcerative Colitis. Check out my main channel: www.youtube.com/@kneecapjake #ibd #ulcerativecolitis #crohnsdisease
They’re so many natural remedies you can do without any medication. I’ve seen several gastroenterologists and they didn’t help and just wanted to push all the drugs and/or remove my colon. Being disciplined and doing my own research has helped me tremendously to learn how to fix myself and stay into remission. Good luck to you 🙏
I am also suffering from the same issue but i just want to know can a lady conceive if she is having uc… if u have any knowledge about it pls share… can i conceive and will it effect to baby and what if all good but in between of the pregnancy if symptoms again flare up that what can i do ? Pls share if u have any knowledge about it plssss
A more natural and more effective long-term approach to Crohn's and Colitis than the standard medical treatment is presented in an excellent evidence-based book by Galina Kotlyar: Crohn’s and Colitis the Flare Stopper System: A Step-by-Step guide based on 30 years of Medical Research and Clinical Experience. Also see You Tube video: Full Cabbage Juice routine for ulcers by Dr Garnett Cheney
It is definitely possible to manage UC effectively and restore the quality of life. Planet Ayurveda's herbal medications will help a great deal to achieve this: Vatsakadi Choorna, Kutajghan Vati, Pitta Balance and Arjuna Capsules.
Many people said in comments under carnivore diet videos that their UC got better or healed. I would listen to them and give it a go
Try the carnivore elimination diet immediately!!!!!!!!!!!!!!!!!!!!!
Now my bleeding didn't stop doctor prescribed me azithioprine can this stop blood
Sounds like your on the right path, trying out medications to see what works is a good idea. Hang in there, I know the bleeding can be scary but you will get through it.
I would say my UC is being managed because i have a Freedom Time Window in my day, usually in the afternoon when i can go out and do my shopping, meet friends.....etc where i am not worried about having to rush to the bathroom. There has never been Pain....and only in the beginning, B4 diagnosis that i was getting a lot of blood come out ! It is amazing Jacob how fit & strong you have become, despite this CRAZY disease. I am just thankful I haven't got bowel cancer !
I'm curious, what does your diet look like? Maybe you could make a video about it?
Good idea! I will add it to my list.
I do have some details on my diet in my free PDF if you are interested: kneecapmedia.eo.page/bn5h5 I list an example of what I typically eat day to day.
❤️🙏🙏🙏🙂😴
It does make me feel depressed sometimes but it's good to laugh about it and accept this condition.😊😂😢❤
Thanks, Jacob for this video. It is very relevant to my immediate situation.
Glad you found it helpful!
Recently found your channel Jacob, hoping to watch all your content! If I can ask, what do you think about IBD and Cannabis? Have you ever had any experiences with it? Would you ever do a video about it? - Thanks!
Hey thanks for the comment, I actually talked about it in my first live stream yesterday! This should take you to when I answer the question. ua-cam.com/users/liveKHXU8CHjlcQ?si=ggH2dHSDCHYNTMiU&t=6032 But I would definitly talk about it in more depth in a dedicated video in the future.
Turns out I just talk about smoking in general there. I definitly talked about cannabis at some point in this stream, I am struggling to find it now😅
Inflixmab
Funnily enough, my weight and muscle is more than it ever was pre-Crohns. I think having had weight that is barely even existing anymore, I really started loving food and my body fat afterwards
I've had UC for 27 years your information is great, keep going with it. thanks
Thank you so much. My flares are much milder than yours, but I understand a lot of the feelings you’ve had.
Why do you think that IBD is incurable when there are many who have recovered. They have been on remission for years. Diet along with exercise and a healthy lifestyle are the medicines. It may take a while but patience and consistency is the key. Keep fighting . A positive mindset can also accelerate healing.
My healthcare provider is a useless gastroenterologist. This is my fourth one!!!
I just made a donation. I hope Mihail can get the treatments he needs to recover. My hope is that Mihail will recover, and he will use the pictures of him in such a bad condition as motivation for other people to not give up. -Btw, I really like your channel Jacob. I agree with all of your advice!
Thanks for showing Mihail & the channel support! I am hoping I can update you in the future with positive news from Mihail.
It's tough to see when he couldn't even get a clear diagnosis to find a solution to his issues.
Yea not know what is happening is scary
I agree with your point of getting enough sleep. I think it's one of the most important things to do for IBD. I sometimes get into a really deep sleep when I have a flare and feel very fatigued and when I wake up I usually feel loads better.
Thanks for watching! Sleep really is the key to healing, I truly believe it.
I just got out of hospital with full pancolitis and I am so scared of all of this. Thank you so much for this resource it really means a lot to me and my family (had my first son about 1 week before the hospitalization).
Thanks for leaving a comment! I hope you feel better soon, it’s totally understandable to be fearful, it’s a whole new world to learn about.
I m hope less you gave me hope
Bro i have alsarative colitis I'm 20 years old its been 2 months. When should i start gym and i am 5 feet 9 inches my weight is getting lesser day by day. How can i go at best in this joirney.
Do what you feel you have energy to. If it’s just a walk that’s ok. Slowly add new exercises as you feel you can.
I’ve had Chrohns for almost 10 years now. Been in a flare the past 2 after prednisone stopped working. Appreciate you telling your story. Let me know if you ever want to podcast and talk about this or anything along those lines!
Thanks! I may take you up on that in the future. I did try some podcasts talking with other IBD patients on my other channel, but my other channel is quite broad and it did t really get watched. So perhaps it may work better here! I may even reupload that first podcast here now you mention it 😅
@@jacobsIBD perfect, let me know. I’m always looking to branch out and try new things. I’ve got plenty to tell lol.
@@projecteat51Let's organise a time over discord, hit me up on my new server and we can arrange a time that works for both of us. discord.gg/3hATUR2hdZ
Thank you for sharing 🙏 i am also going through the same problem. Hope it will get better
Stay strong, things will improve.
@@jacobsIBDi am in uk (international student) i got my appointment and it is after 2 months in august and previously they had given me prednisone for 2 months and now i am on octasa but with steroids i was fine now again i am facing the same problem going to washroom 5 6 times a day… what should i do to stop this bleeding… till 2months i think my condition will be more worse
Hi, Jacob.my child is suffer with uc she had taken pentasa that is mesamiline for a two month after she finished the pill she was get relief for two or three weeks,after a while she saw blood and begain the pain again .I don't know what to do ,now I am trying to help her by reading books focusing on best food for uc .Jacob will u advices me fo my child.she is nighteen yrs old.
You should contact the IBD specialist and tell them everything. They can make an judgement whether its time to try another medication to stop the flare.
My advice would be to speak to your healthcare provider about what other medications she could use. I feel pentasa never really fully got me out of my flare. In the mean time, sleep, exercise and nutrient dense foods will help.
Thanks for documenting your experiences it makes me feel normal 😅I was also worried about catching colds and virus’ but I haven’t had one yet. It’s my 1 year anniversary of starting Infliximab. I was so poorly, this time last year I was 49kg I’m now 60kg. I lift weights and lost all of my muscle when poorly 💪🏻 I was in a bad way from the illness and also the IV and oral steroids which have horrific sides. I’ve been watching a lot of IBD content lately just remembering the trauma that was last year 😂 I’m so grateful and lucky that the Infliximab has worked for me
That’s amazing to hear it’s had such a life changing impact for you! I’ve experienced a similar effect from it too. We can rebuild, my video coming out Sunday details how I rebuilt my muscle and got into the shape I am in now. It might be of interest to you.
I just got diagnosed with UC a month and a half ago still in my 1st flare..thanks you im feeling so validated in what has been going on with me physically and mentally... ....And you've managed to make me laugh about it. 😅 Subscribed!! Peace & blessings from the USA
Thanks for the comment! Hope you will get out of your flare soon! There will be better days.
Hi Jake - thank you for your great work and time taken to explain more about the condition. It’s good to know that it’s possible to change meds if needed in order to reduce the side effects. We have been told that people with UC are unable to join the army - our son was actually pleased to hear this! He stated that the UC may save his life in this instance 😂 he was dreading the idea of conscription as threatened recently. God works in mysterious ways ❤😂
I wouldn’t be accepted in the army either! Not that I want to anyway 😅Conscription doesn’t sound fun, but the physical training and social camaraderie does sound like it would be great! I think seeking these things out in life is a great way to heal.
Everybody suffering from ulcerative colitis needs to see your account of your experiences. You've described exactly how I felt and thought before and after I was diagnosed recently. I'm 74 and have been pretty free of illness all my life. You're right - it's tough. Thanks, Mate.
Thank you so much for the comment and joining us here on the channel! I hope things aren’t too unforgiving for you at the moment, there will be better days ahead.
Have you tried carnivore diet? How long did you eat only meat for?
I haven’t gone full carnivore, but I definitely eat a lot more animal products than I ever have. Feeling a lot more energized from it.
Unfortunately carnivor did not work for me. Bodies are not same. What might work for someone else doesn’t mean it will work for me or for you. You have to try and see what works for your body. I am free from Crohns now for 3 consecutive weeks.
@@zinebjalal1628 For how long have you been trying it? What was the fat to protein ratio? Trying it right now. So far struggling
@@ghost_of_a_dead_poet I eat about 50-60g of protein but a lot of cooked low fiber vegetables with little bit of olive oil. I tried red meat and I got sick , even fish or chicken breast I get sick when I eat it. That’s why you have to try and see what works for your body.
Hi thank you very much for your excellent explanation your of IBD, I have just been diagnosed with the same problem I am 72 years old, Healthy all my life suddenly after my wife died I have the same symptoms you describe and I did not understand what was going on, fearing the worst I had the sense to go to the doctors who sent me for the camera up the rear, She explained why, but not in laymen’s terms. I found your experience and the way you explained it (in understandable English) in a weird way a comfort I now know its not the end just an obstacle and containable. Thank you again
Hi Colin, Thank you for your comment. I am grateful you found my video useful. I hope you manage to get out of your flare soon! Sorry to hear about your recent unfortunate circumstances, there will be better days ahead.
Hi Jacob, I was diagnosed with ulcerative colitis 3 months ago. It’s nice to know I’m not alone in this. I’ve just come out of hospital the last week. I took myself to A&E, I was kept in for week. I’m now on steroids and mesalazine. Thankfully the bleeding has stopped, it feels like I have to keep my gut calm and quiet. Sorry to ramble on but thank you
Hey thanks for the comment, no worries at all! Good to hear the bleeding has stopped!
Thank you Jake for sharing your ulcerative colitis story. My story was similar to yours in many ways. I also received inflectra while in the hospital, and within 12 hours I started to feel dramatically better. Two months later I was hiking and playing basketball again. But after the stressful Christmas Holidays, I experienced a minor flare. I haven't produced antibodies to inflectra, so I'm still receiving inflectra infusions. Thankfully, prednisone pills and mesalamine enemas put me back in remission. I'm a big fan of the liquid mesalamine enemas because they work directly on the inflammed tissue. My long term hope is to eventually replace inflectra with occasional hyperbaric oxygen treatments, and continue to use a maintenance treatment of mesalamine enemas. I think this would most safely treat the body both locally with the enemas, and entirely with the hyperbaric oxygen. We'll see! Anyway, I wish you continued good health!
I was shocked when my body was reacting to the IV so fast. From talking to others, they mentioned it could take weeks to start seeing any effects. You could always try altitude training in the mean time. It will have a similar effect to a hperbaric treatment. It's pretty much reduced oxygen whilst doing some cardio. It can increase your red blood cell count and help with recovery!
@@jacobsIBD Hiking in the mountains is great for recovery and hiking helps to maintain a positive spirit. Thankfully I live in Southern California which is close to many mountains. I've already been hiking Mt Baldy, a 10,000 ft mountain. (There's still some snow at the top!) Later this summer I hope to hike and fish in the Sierra Nevada Mountains. And maybe I'll catch and eat some trout from one of the alpine lakes. -I'm sure that will make my gut happy! Take care!
@@markmcla That sounds like an amazing hike! It's all seafront around me, a bit hilly but nothing like being in the mountains! I love the sound of your plan later this summer. Sounds exciting!
Ahh brilliantly said Jake. Thank you so much for putting your experience with UC out there. You really don’t know how much you are appreciated here😅 Everything that you have described is what our son has been experiencing. The blood… oh my goodness… the blood and trying to provide a stool sample when it’s just liquid! Also the fear of not knowing what is causing the pain. So glad that you are doing well on the meds and healthy lifestyle. You look really well! Our son is being weaned from the prednisone by tapering down and has started a routine of Pentasa and Aza meds. He’s also been lifting weights and has gone back to playing tennis for the first time since last October 👍 Quite a journey!
Thank you so much! I am happy my experiences can be of help. Hope your son is feeling ok. I know how rough prednisone can be. That's great he is been keeping active during this time!
Start thriving with IBD: kneecapmedia.eo.page/bn5h5 This will take you to a free information pack detailing how I stay healthy and productive with IBD.
Learn how I thrive despite IBD: kneecapmedia.eo.page/bn5h5
Another booty-full video😂 very cheeky indeed 😂 you are cracking us up 😅 ❤
😛
Better out than in!
Hi, Jacob. You’re awful young. I’m sure this disease is very scary for you, as it is progressive. I’m 56 now. I had IBS in my 20’s and 30’s and progressed to IBD/colitis is my late 30’s early 40’s after getting a bout of altitude sickness that took well over a year to clear up. That’s when I got my first colonoscopy. I think at 36. I was officially diagnosed with colitis at 46. It is getting worse. I started on rectal Lialda, progressing to additional oral once a day to four times a day with steroids. Injected Humira didn’t work for me - after fistula diagnosis. I’m now on Renvoq. Been on this two weeks, so it’s undetermined if it’ll work. Honestly, I don’t know if people are really healing themselves. If they are, I don’t think it’s the same disease. I’ve tried everything. Not taking meds is risking further disease and cancer. I think best to take the meds - even tho I too would like to get off them. Biologics are scary. Maybe they’ll find a cure. Thanks for the videos. It’s nice to know what someone else is thinking/feeling.
Hey thanks for the comment, glad you found the video helpful! There was some positive news recently regarding steps towards a potential cure so fingers crossed🤞. Can only focus on what’s best for ourselves in the mean time.
So, what has helped you?
I have some videos answering exactly that.
Just done 12 days in the hospital, second time this year. Refused pred this time, that really is the bloody devil. did accept. Bude, at least I can sleep on this one. I’ve done all the diets in the world to fix it, vegan, flexitarian, fasting, fruitarian,,, fruitarian had the biggest success, but not sustainable going into the winter especially. But now on animal-based diet, which is basically fruit and meat. Getting great results, think I’ll be able to stick at this one. But it’s different for everybody, finding your own answer with this disease is a nightmare. good luck.
The Budenofalk is that foam, they just started me on that. they're saying I had a 2000 reading in tests.. but I've been on animal diet for the last few months. Did you get any side effects from it
Funnily enough I’ve been eating more meat and fruit too, deffo feeling more full of energy since.
I've been on remicade/inflectra since March 2023. This medicine worked miraculously on me, and saved my colon. I recently flared, but I have not developed antibodies to inflectra. My gastroenterologist said that sometimes inflectra doesn't reach the rectum. I share your concerns about the long term risks of staying on inflectra. As long as you're feeling healthy, perhaps its best to assess your inflectra routine on a yearly basis, or even every five years. And try not to worry too far into the future... And certainly try not to worry on a daily basis. (But of course stay as healthy as you can, which I know you will do!) Good luck!