I have had PPPD since i was 16, i’m 20 now. i’ve fallen out with most of my closest friends because they’ve failed to care to understand my condition, and have told me to just ‘deal with the dizziness it’s not that bad’ …i’ve felt so lonely and isolated. Knowing that other people similar to my age are experiencing what i have gone through and continue to struggle with, brings me a lot of comfort. Thankyou ❤️
Feeling like I’m going to the side is how my relapse has presented itself (along with the normal dizzy feelings) it’s absolutely awful and causing me so so so much anxiety. Thank you- these videos have been my life line because it’s SUCH a lonely and frightening thing 😢xxx
Eugh I had this it sucks, wouldn’t wish it on anyone! Aww I know how you feel but honeslty you are far from alone, there are thousands who are going through this, try and surround yourself with supportive people ♥️
I've been dizzy for about 3 years now. It was march before my 20th birthday and i got up off a chair, and i just felt like i was at sea during a storm in a tiny boat. literally the scariest experience of my life. i'm at the point now (and have been for over a year) to literally being bed ridden because of the dizziness, and it's gotten so much worse lately. I'm so sick of it and your channel has finally given me hope! people always tell me "you'll get better" "it just takes time" and I never believed them. My doctor didn't believe me and no tests came back with anything alarming so I was never treated. But now I finally believe I will get better. Thank you sososossososo much
Hi it’s me commenting again today was my day 1 of doing ur exercises and I just rlly hope they work out in the end because I’m rlly tired of this my family calls me lazy because I’m in bed all the time but they don’t understand what I’m going through so it’s really nice to hear so many peoples stories and it makes me feel like I’m not alone I’ve been struggling for 10 months for me I struggle with feeling tired all the time and sometimes shortness of breath as well as the dizziness and it’s a terrible feeling just yesterday I found out about you and I’m really grateful I did I just pray that hopefully my dizziness will go away :( also my heart goes out to the people who’ve been struggling for years I hope u recover as well just don’t give up and I’ll try not to as well
Awww bless you I know how rubbish it can feel when you can’t get others to understand the struggles, it’s like they don’t take you seriously because they can’t relate- but the main thing is you’re aware of what you’re going through and making an effort to get better, you’re very strong for that and there are hundreds/thousands of people here who have your back😊
Thank you so much for making another video on PPPD. This video has come at a good time because I'm currently struggling with a really bad relapse of PPPD, and this video is honestly so motivating and reassuring. Thank you for everything you do.
I'm so glad they are of use:) Relapsing is not fun, but try to remain positive and remember it's never going to be as bad as what we've already been through!! We got thisss
I am experiencing everything you've described and I am glad I am not alone in this. One thing i noticed is if you "confront" whatever that is making you dizzy, for example doing the dishes.... keep doing it and your body will habituate and get used to it. The biggest hurdle is not doing anything and then this will start to eat you up. Another example is walking. I would go for a walk and feel off balance but the more I do it, the better it gets. Breathing helps and Ashwagandha has helped me to stay calm.
Prasanna, yes, I love your post. I used to feel so bad laying on my right side, but after I start to do it now, I keep my eyes shut, put my hand on my stomach and only focus on my breathing and my stomach (and not my head), it eases up!
@@jeannes.356 wow, I had the same issue too. I couldn’t sleep on my right. I wonder why this happens but now I am able to sleep on my right. I feel like when we “solve” one aspect of it, another challenge pops up and then you have to try solve it. We just have to keep fighting.
@@PrasannaKumarMokshaBase yes, for quite awhile I wouldn’t sleep on my right side (avoidance), but then my left ear hurt so much because I was on it too much! So I finally did and did the technique I mentioned, and now it’s not feeling weird anymore! My brain adjusted. But yes, other head movements still do. But with the right side laying position, I had stayed there. Where, looking down for example, I haven’t tried continuing to keep my head down, while breathing etc. But yeah, I understand the dishes issue and love how you said to keep doing it! An excellent book is Rock Steady by Joey Remenyi.
Thank you for this video. My pppd has come back even after it went away from doing the exercises so this video was very helpful and motivating. It’s crazy how everything you say is exactly what happens to me. It makes much more sense now. Thank you.
@@EMJAYstyles I’m in setback 2 Guys because of exams & financial pressure & taking on way 2 much ! So back to basics & exercise from your old vlog begin now & slowly down is the biggest challenge because when we slow down so does the brain 🧠 il come back to let you know how I’m getting on plus I do think high impact aerobics classes was a trigger, anyone here experience this ? Great work on here girl thank you 🙏
Sorry you're dealing with this. For anyone experiencing the same issue, consider looking into "Cleanse To Heal" (book) by Medical Medium Anthony Williams. The dizziness may be caused by a virus or toxic metals in your brain. I hope this helps anyone feeling lost 🙏
Hey! Mine are very short term so I'll only really have them for a couple of days and then will be okay again for a couple weeks! They're never as intense as my flare ups used to be (so it doesn't make me bedbound), but it does bring back the familiar fear of being in busier environments etc. But I've found that on the weeks that I'm out the house more I don't notice symptoms as much so think the key is keeping active and getting out there:)
E M J A Y styles thank you ☺️ i haven’t yet been fully ‘healed’ so I guess this is just a bad period. Gonna start VRT soon! Hoping that will help me :)
@@Megan_Jennifer Put yourself in all the situations that make you feel symptoms. I found my symptoms worse at home this this relapse. Idk how to deal with that.
Hi again, Emjay (Megan). I love this video. I’m the one who had brain surgery. Yay. I literally have thought of you when I was in the hospital and outside of it. If Emjay can do it, so can I! You give me hope. Thank you.
Jean omg!!! How are you? I hope your surgery went well and you’re recovering quickly- this is the sweetest comment ever really made my day 🥹 wishing you all the best!
@@EMJAYstyles hi back!! You’re so sweet! So I believe I’ve had pppd for the past 6 years. But then there was a cyst in my brain found recently that was growing and bleeding. So they removed it in April and I went from being able to walk (just pretty drunk feeling, etc), to post surgery where I’ve only used a walker. I was expected to have dizziness (major increase for me), but it’s still there. A side note, stay away from those dizzy patches hospitals put behind your ear for nausea. It adds to the dizziness.). So there’s confusion about if it’s the brain issue or not. My surgeon has not heard of pppd. I had another mri yesterday - I’m always put out because of anxiety) and there’s more issues now and I have to wait to have the report explained to me. Anyway, (this is getting long!) I’m going to treat it as if it’s pppd because it probably is, with your program, and I have a new PT. I know I can heal with work. Also, I’ve been super inactive for months, so when you said that, and how challenging it was for you and you got better, it makes me feel like I can too.
I have bppv and have had it since I was 12 or so after a skateboarding head injury. It started as me feeling this intense spinning sensation when looking up or looking down. It settled after a couple of years, but definitely always lingered very minimally for sure. Hit you head again last year lmao and here I am again at step one 😔. I get dizzy when laying in certain position, i do the eply manuever and that type of dizziness went away, but the subtle like feeling unbalanced dizziness remained. It’s terrible and can sometimes be debilitating. Hate it I’d rather lose my leg than feel this
SSRI medication can really help, if you’re interested in trying medications for it. i was on Citalopram for 10 months and i honestly felt complete symptom free.
I just got diagnosed with PPPD so you have really helped with knowing more about it and stuff and I really want to be able to play netball but I obviously can’t at the moment because of it so it would be awesome if I could get rid of it completely
My PPPD has been through the roof as of now because of separation anxiety, stress, lack of sleep and other flare of emotions. It’s been a hard journey especially when my insurance doesn’t want to approve vestibular therapy testing and appointments with specialists take around a month of waiting
Yes it sucks it definitely does get triggered by external factors/emotions. Try and focus on breathing techniques and trying to keep busy to distract you. There are also some exercise guides online that you can follow/my vestibular rehab video and whilst they aren't a specialized routine for you they are still effective general exercises you can do while you're on the waiting list!
Wow, I think I may have this. My story began back in 2017. I randomly caught Glandular Fever a week later I started to feel off balance 24/7. Kept having severe anxiety over silliest things like walking on the pavement next to cars in case I fall over etc. However I could cycle to work and the dizziness wasn't there. Eventually I was diagnosed with Hypothyroidism. Put on Levothyroxine and the dizziness faded. No exercises etc. Was fine for three years last year I became dizzy again. Blood test showed dosage needed to be raised. So I was put up 125mcg again dizziness faded. Now in march just gone dizziness returned they are saying I am now overmedicated. Yes its a awful condition to have. Im sure I have this as the anxiety cycle is there as well. Thinking you will pass out or embarass yourself while out then that fear stays and makes you more dizzy. since lowering my dose my dizziness has improved but is still there. Yes when lying or sitting it feels like your body has waves going through it. When walking at my worst I was having to judge every step I made. In case I fell over.
Hey! Mine hasn’t returned and I’m living my life normally :) only time I can feel a lil dizzy is if I’m under the weather or I haven’t had enough sleep but tbh I’d say that’s normal for most people, even those without PPPD. Hope that’s reassuring !
@@EMJAYstyles thank you ! I’m really happy and it gives me hope. May I ask how long you’ve had the feeling of floor moving or walking on a boat? It got better after doing VRT ?
Thank you for the video could you make one about your experience with the anxiety part of pppd? I have both and have been have crazy symptoms. Like sensations that I am not breathing correctly almost suffocating. Not sure if you experienced this in the past. If it’s related? Could it be our brain sending wack signals? 🤔
All of your videos on this is spot on me. Could you explain more about what you do to manage anxiety ? I know you said something about CBD in another video
Am I crazy or is PPPD just another diagnosis for the symptoms caused by the release of adrenaline that's being caused by an flaming anxiety attack. One thing our failing health care system loves to do is make up new diseases. I guess what I am trying to say is PPPD is one of the symptoms our bodies exhibit with chronic anxiety and that we have now become afraid to experience.
Yessssss! This is the comment I've been looking for. I think the same tbh if I sit and deep breathe and meditate and relax a lot, my dizziness goes away almost 100%. It's more of an anxiety issue than a purely vestibular issue.
@@JRAP47 if you sit and breathe and that make your diziness go away, then you DO NOT have pppd. Pppd is a functional neurological disorder, not an anxiety disorder.
Have you had symptoms since you decided to regularly do these exercises? I haven't had dizziness in the last two years as it went away the same year I got it (I did hours of walking everyday). I've been able to drive for hours without getting symptoms, it seems like moving around keeps you off the dizziness. Have you been able to ride an airplane or train when you've been stabilized?
I don’t really get dizziness anymore no, and I haven’t actually done the exercises in over a year now but because I now work in an office I’m getting my movement in by walking/travelling etc which I think stops it from returning. Yes I do get on trains but it’s only a short journey. I haven’t been on a plane in a couple years and am terrified of flying in general, but when I last went on holiday I did struggle on the flight, but my dizziness was still persistent at the time. I’d say I struggled most in the actual airport though because of so much open space
Thank you for your videos on this subject! I realize this was awhile ago but you are the first person who mentioned nausea with pppd that I have seen. Is that a common symptom for you? I ask because it is for me, and I was actually wondering if pppd would be the wrong diagnosis because of it. Thank you again! You are helping a lot of people!
Hey!! So I think the nausea was a bi-product of the general anxiety the disorder had given me. I only had the nausea some mornings and then when I was in lecture theatres as I developed a weird fear of not being okay in front of a group of people- so for me as this was the environment that triggered it I wouldn’t say it was just random nausea in most cases, onlt really when I was anxious♥️
@@EMJAYstyles thanks so much for getting back to me! I've been reading that there is a connection between digestive issues and pppd which could also explain nausea. It is quite an adventure 🙃😥😊
@@EMJAYstyles No!!! Its just a herb, not a medicine!!! Its jist all natural herb that helps the body to deal with physical and emotional stress. I dont feel any effect of it until i get into a stressy situation, then i just feel like I cant get stressed out. Ashwaganda and rhodeola rosea or what are the two herbs Im taking
Hey from Birmingham!! Goodness so sorry you’ve had to deal with it for such a long time, I wish you an amazing recovery so you can get back to living life to the max☺️☺️
Hey I am in London , have you got any doc / physio or anything to be recommended ? I find I may have pppd through the dr Paul Montgomery website he is based in Mayfair and so expensive ! But his website really is amazing . Thanks for your recommendation if you have any 😊
@@magrets hey lovely yes - the UCLH in kings cross is the best place in the whole country! It’s nhs - so ask your GP to refer you to the Neuro-ontology (Dr Nandi) for vestibular testing etc xxx
@@meltsinthecity5211 oh that’s very close to me Thank you so much , I am so glad I have find your comment . Have you got this under control now ? What course of treatment as the dr recommended for you ? Thank you will try and get my GP to refer me , it will be though though
@@magrets that’s great for you then hun! :-) well I did with my physio, walking, vitamins and a LOT of self care xxxx however I’ve got other heart issues in the last year due to Covid, so not sure what symptoms are what now! Xx good luck and let me know how you get on xx
Hii Emjay I started doing your exercises and they helped a lot until September 21 I started feeling slightly dizzy again and now it’s the 29th and the dizziness has gradually gotten worse since the 21st I’m so confused now because I was and still am doing the exercises 2 times a day and I thought everything was fine but all of a sudden it feels like my hope has crashed once again and I don’t know why it not working so I was just wondering has this ever happened to you? Also my stress and anxiety has gotten better as well and I’ve been working on it I’m just so exhausted and confused
Hey, there are a lot of factors that can affect your dizziness recovery process which will vary from person to person. I myself actually used to experience flare ups in my symptoms like once a month, and gradually these got less and less. In the short term your body is still adjusting to these movements and naturally will create anxiety and sometimes temporary worsening of symptoms- but stick with them because they are effective exercises but the results are often shown over a longer period of time :)
I had this last year and now dealing with it agin i feel so much anxiety and keep being told im fine by doctors this is the 1st time anyone has made since about what iv been feeling 😢thank god im not crazy i was starting to feel like noone understood
Hi! I was wondering if you could explain your dissociation and derealization symptoms, they’re honestly terrifying how was your experience with them and how did you make it better? I think the lightheadedness really makes me dissociate and feel floaty/ like I’m in a dream.
The dizzyness, nausea, weights in head pushing you, feeling unable to get to the bathroom or go outside.... all the things my son is suffering with. I'm wondering did you have any type of wabbling vision, just when everything is slightly moving although you're keeping your head/body still? He's experiencing this every waking moment. We try to walk but he's very cautious, the nausea is overwhelming outside. How did your mum cope? I'm managing to hold it together but there have been a few times I've nearly broken down over it. I'm 99% of the time positive and upbeat but it is hard.
I wouldn't say I felt like things around me were moving, but I did feel like I was shifting/moving when I wasn't. Especially if I was sat still or laying down the movement sensations became more obvious. Tbh she was really supportive throughout although I was living in a university house at the time so she wasn't seeing me go through it everyday. But I just pushed through it and didn't show people how much I was struggling so it probably didn't look that bad to people from the outside perspective if that makes sense! Just offer him reassurance and help him develop coping mechanisms such as breathing, rational thinking etc and keep exploring treatment options as there is definitely a light at the end of the tunnel:)
Has he been tested for everything and / or seen a neurologist? He may have vestibular migraine or it could be pppd. The worst thing he can do is sit still apparently even though it’s very hard. I’m sorry your struggling also I can understand why. I have bad anxiety and a lot of these symptoms and my husband was having to do everything for a while. It puts a lot of pressure on the family that’s for sure. Just try your best to be supportive but encouraging
Its not just hard, but its _very_ hard. I have the blurring vision - to confirm your son's experience beside the dizziness. Usually I always blink several times then to get a better view, and sometimes it does help for me. 🚩
I’ve had this for three years, but I haven’t gone to a Doctor. It’s very rarely the room spinning. Mine can be feeling like someone has picked me up by head and dropped me on my feet, feeling like I’m on a chair that’s being flipped (that pulling feeling), and feeling like I’m lurching forward but I’m still. We have a tiny sink in the downstairs bathroom and I can’t use it because the depth perception of it sets off my dizziness. Also, if I’m in a lift, I can’t zone out, otherwise it won’t register what’s going on and start up dizziness.
Erm I can’t say there’s a way to actively get out of one once you’re in one, but it helps to pick up your exercises again, focus on breathing, getting out the house and keeping positive. No I don’t I saw a hearing and balance therapist who gave me the exercises like 2 years ago and since then I’ve battled it myself😂
Laying down or getting sleep is very hard for me it's been one year floating,swaying side to side,dragging. I don't know how to stop this I think my brain telling my body to move when I'm not moving. I'm always palpatate because of this anxiety.
I used to be the same!! And now thanks to vestibular exercises I haven’t had that feeling in bed for over a year, so hopefully they can be effective for you too as I know how horrible that feeling used to be🥺
Does it feel like gravity is literally pushing you? Did you get it after a panic attack? I'm experiencing this and it's hell... Literally rocking on a boat even when I'm still
No I wasn’t but I’ve heard the main difference between that and PPPD is that VM is more of a spinning/vertigo style sensation which I’ve never personally had! mines more lightheaded/foggy Vision/feeling faint ☺️
VM is not spinning sensation in all cases and also no need to have headaches to suffer from VM and mostly of people who has Has VM also Has PPPD watch The dizzy cook lady on UA-cam her symptoms are the same as pppd but as well VM you need to get the right diagnostic to be able to get in the right treatment
Thanks so much for your videos - I realized that i had PPPD from you. Doctor confirmed and did some therapy exercises. Do you take calls to discuss? Thanks again
Been dealing with this for 5 years and no doc has diagnosed me with it but I swear that’s what it is cause I’ve had every test under the sun and it all comes back normal so i tried your exercises and the X one makes me very dizzy I’m assuming it’s normal? And yes I have very high anxiety
Sorry to hear you’ve had it for such a long time! and yesss it’s very normally for all the exercises to make you feel dizzy at first as your body needs to get used to them so don’t worry:)
Same. Been doing exercises for a month now and I have to say I've noticed a difference!! I'm so happy, I now have hope. Went to Dr's too and no one ever said anything ...I lost hope.
I feel like my legs arnt connected with my body and I feel like I could faint any second and I get really sensitive to touch I'm afraid to leave my house or even walk to the bathroom did you get this also??
Yes I did get this, it would get this bad during my flare up periods which initially happened for like a week at a time every month, but as I did the vestib exercises these flare ups became less and less frequent/long to the point where I stopped having such extreme symptoms. The fear element has strong links to your mindset also though, a mix of physical and psychological
@@EMJAYstyles I have 3 different panic disorders and multiple phobias and when I feel this way 24/7 I think of the worst that could happen to me I get so scared
@@AlisonNorton. yeah I feel you, it’s a hard habit to break out of but a key part of recovering is changing your mindset from ‘omg I’m going to die, or I’m never going to get better’, to ‘ I’m fine my symptoms are a lot scarier than the actual cause and they will improve with patience’, wishing you a good recovery!
Hi Megan. I have a quick question, please. Did you used to have a major increased dizzy feeling when you were sitting down and looking ahead and slowly moved your head from left ear down to left shoulder? (The right one too).
Did you ever think your getting pppd from computer screens I was getting these flare ups then I got blue light blocking glasses it seems like it’s helping me for now also you said that you got flare ups when being at home -indoors which you were probably on your phone , laptop etc Just a thought
I don’t believe so! I started experiencing symptoms when I wasn’t in a screen heavy job, and sometimes found that screens were a good distraction from my symptoms unless they had an overload of movement on them. The main thing I got from screens personally was just headaches which got fixed when I had glasses- it might be a cause for others though!
Hey just stumbled across your videos just a question did you have vision issues along with your other symptoms? Bad depth perception fatigued eyes etc?
Just wondering if going in a lift or on an escalator triggers anyone pppd? It triggers mine so bad I'll get off the lift or escalator and feel like the ground is falling away underneath me and like I'm floating up and down
? I had covid in January of this year. I got vertigo as an onset two days in. I had a VNG test in March showed 33 percent damage went back in May to check again they said they showed nothing. Still dizzy woozy feeling in head weird when walking ex specially outside walking. I feel like a bobble head eyes feel really weird. Last VNG test showed oculomotor abnormality. Been to many drs. Know one seems to know what’s going on. I have suspicious idea it might be pppd now. Anxiety is high. Just want to feel better. I walk and stay active. Had light sensitivity wore glasses and hat for a while. Don’t have to anymore. I had migraines really bad but been two months since my last major ones. I get headaches on occasion but short lived. Eyes feel like a camera. Pt showed both eyes skip a bit to each side. What is a timeframe for recovery? Thanks Eyes are the worst. Feel like they jump like a visual vertigo. This sound right From what I am getting this is all common with vm and pppd. Also it seems recovery is about a 1year to 1.5 years. Is this about right?
Hey! sorry to hear that, I’ve been getting a lot of comments related to covid and dizziness, ah yeah you may have VM then if you have a history of migraines- I’m starting to think I may have a mixture of PPPD and VM as I have had migraines too in the past but equally some of the PPPD symptoms are still so specific to what I went through! Yeah the timeframe can really range I’ve had people comment that they’re better in 2 months, it probs depends on a number of factors like how long you’ve had the dizziness, your mindset, anxiety levels, commitment to recovery etc- for me it was 7-8 months but then I relapsed, a lot of it is your lifestyle too! Wow eyes feeling like a camera is such a good way of explaining it!!
Hey! sorry to hear that, I’ve been getting a lot of comments related to covid and dizziness, ah yeah you may have VM then if you have a history of migraines- I’m starting to think I may have a mixture of PPPD and VM as I have had migraines too in the past but equally some of the PPPD symptoms are still so specific to what I went through! Yeah the timeframe can really range I’ve had people comment that they’re better in 2 months, it probs depends on a number of factors like how long you’ve had the dizziness, your mindset, anxiety levels, commitment to recovery etc- for me it was 7-8 months but then I relapsed, a lot of it is your lifestyle too! Wow eyes feeling like a camera is such a good way of explaining it!!
What did your eyes feel like? Mine I know skip a bit to each side. They say it will work it’s way out which is good. Today has been a decent day. I have to look at the small progress knowing these are good signs. No more glasses no ball cap. Starting to walk more and more. We will recover just takes time. Just weird they said I had damage from nueritis then go back and nothing odd. We have to trust the system and we will get better that I know
Hello Meg - Do you find that Caffeine (Coffee, GreenTea) made the PPPD symptoms worse? Or no impact either worse or better? You have some great fashion photos.
I think I’m struggling with this. I don’t have vertigo it feels like I’m on a boat or going side to side. I went to the ER because I felt like I was dying /maybe had a stroke. I ruled all that out. I have fluid in my right ear so I’m really hoping these exercises help me
Yes that sounds very much like what I went through- and considering you have fluid in your right ear dizziness is very expected as it’s your balance organ :)
@@kyraterry8080 I never went back to the doctor so idk if it’s better. But I ended up thinking I had pppd and got on Zoloft and the boat feeling went away 99% of the time. I’ve been on the Zoloft for 1 month.
I don’t drive so I can’t really comment on this!! But when I had a few lessons I found driving actually distracted me from my symptoms as I was so focused on the road, but I completely get you as I’ve heard mixed perspectives on it so you definitely aren’t alone with that one 🥰
I have been so close to stop driving, but avoiding it will make it worse. I usually slow down when I feel the"passing out"sensation and open the windows for fresh air. I have never passed out.
At first I felt a lil dizzy when driving, but nothing too bad where I couldn't drive. Then I felt better when driving, better than when u was walking. Never stopped driving, and I've had this for almost 5 years now
I actually do sometimes and used to get it quite often a few years back but I wasn’t ever sure if it was PPPD related as it doesn’t say so online! I’m not too sure 😩
My symptoms just start few weeks ago February 7 then since that day i had this dizzy,pressure in my head and pulling or floating feeling while walking and bad part is having panic attack because of this symptoms. How many time u do the exercise?
When I do exercise in which a ❌ is hanged on wall while moving my head from left to right or right to left I feel like wall is moving did u also experienced that?????
Hey! I can’t fully remember but I don’t think so, but it’s very normal to experience this I’ve had a lot of comments about it, many people perceive motion that isn’t actually happening and with you moving your head in directions you usually don’t, it’s normal for your head to get a bit confused initially by the movements
I’d like to suggest two things for you, as I have this too. Put the cross on a wall with nothing else near it, so on a totally blank wall. If it’s already a blank wall, move your head slower than you’ve been doing it before. Nod yes slower and then no slower and see if that helps.
Would this be picked up by a professional as I went to the opticians who said I was fine and also had some eye alignment tests done in audiology which were also fine! Thanks for sharing this will help someone☺️
The doctor who diagnosed me with PPPD says that he has seen so many new patients coming in with PPPD. It’s very new but growing massively it’s so weird. He prescribed Lexapro so I will be starting that soon. Has anyone on here tried that or another ssri?
Yes I did! Sometimes I'd look down at my legs and the floor felt really far away from me (I think it's called Alice in Wonderland Syndrome). Deffo felt the weak legs when I was struggling with my balance
Not dizziness specifically no, but calming down feelings of anxiety yes- although tbh I can't tell if it's a bit placebo haha but I take it on the odd night where I don't feel well/am struggling to settle or before a day where I have quite intense social plans:) x
Once day to begin with, then after a month or whenever you feel comfortable up to twice a day (morn and night), I discuss it more in my VRT video but also write down an example routine you can follow in my dizziness guide that I’ll be releasing on 1st July!
Ermmmm tbh sometimes it would come back when I was subconsciously stressed too which made it hard to know when it was coming, I’d say it kinda depends what’s causing the stress and where I am at the time! If it’s like fear of having loads of social plans in a week I’m more likely to feel dizzy because I over worry about feeling ill and not being able to make the plans, whereas other things like work stress may not make me dizzy
Thanks so much fot these video's... i am experiencing more symptoms lately and now know i have PPPD. I was wondering, 1: can you live a "normal" live again? Or are there so many bad days always, also when you recover, that normal is never again? 2: when i go and do the exercices every day, and can manage to not be afraid anymore...do you think it will still can go worse than it is now? Or do you think it will be the same or better? 3: They say and i noticed that sometimes after the night in the morning, it is worse (the balance problems) and then after a few hours it feels much beter... also when i lay down an hour during the Day, after getting up, the balance is a little bit less ok...and after some time, its better... do you have an idea why is that? I know i have this problem PPPD because of a long time focus on all weird sensations i felt in my head, and not wanting this, and focussing more and more on it and also getting more fear about it..so i understand trying to embrace all the sensations i feel during the Day...but why i have more balance problem after laying down a While...i dont really understand why this is... Do you? And did you also have this? Thanks so much!!! Greets from NL
You will overcome the fear and able to enjoy life again. I did for years with occasional flare ups. The flare ups will feel just as bad but they get easier to manage.
Does anyone work while having PPPD or VM how do you deal with it, I am currently applying for jobs, and I am always wondering what if I can't make through my shift? Although my condition has improved significantly since the beginning.
I wasn’t able to work for 4 years. I started working in December of 2022. I have to work remotely and I do work on a computer. I only work 4-hours a day. The computer upsets my dizziness, and I usually have to sleep after my shift. I say try and if you can’t, you can’t. You’re not alone in this.
It took me 7 months to feel normal again but saw improvements after about 4, for some people they see improvements within weeks though everyone is different!
Hey! Yes I do from time to time, i can’t say that it impacted my dizziness but it did help take the edge off my anxiety on days where I knew I’d have a lot of stress such a social events etc- hope that helps!☺️
I don't think so, but can't say 100% I imagine if left untreated it just stays the same but through naturally becoming more anxious and developing avoidance behaviour symptoms could become more intense/functioning becomes harder
Hi mam ,for pppd require some medication support or not require if I am able to handle stress .I had ear issue tinnitus ,in covid then doctor gave me steroid .that I had panic attack due to this tinnitus.not able to sleep that time due anxiety.later developed some symptoms , something like I am in boat floar is bouncing,but not any visual change and also no any pain in body. I did mri of my brain it's normal.now I am feeling like floor is jumping, something is pudding me one side to anather.it increase when I do more activity.when walking it's intensity is high,if I only stand then it becomes low as walking and when sitting then it's belothat standing.and when laying some time I feel that some not.but more after heavy work.when I am driving bike thier is no any symptoms.can you tell what is this?
Hi, unfortunately I'm not a doctor so can't diagnose you with anything. But no I didn't take any medication to recover, I just did the Vestibular rehabilitation exercises at home which got rid of my dizziness after about 7 months. First thing to do is get tests done to rule out other conditions
What you describe is exactly what I'm experiencing... The boat floating floor bouncing hell... After the panic attack.... Did you take any medications like benzodiazepines / xanax?
I have had PPPD since i was 16, i’m 20 now. i’ve fallen out with most of my closest friends because they’ve failed to care to understand my condition, and have told me to just ‘deal with the dizziness it’s not that bad’ …i’ve felt so lonely and isolated. Knowing that other people similar to my age are experiencing what i have gone through and continue to struggle with, brings me a lot of comfort.
Thankyou ❤️
I am 23 have PPPD + Anxiety which makes it worse😭
I got it and I’m 16 im scared I don’t want to have this forever
I’m 17 and I’ve had it since I was like 7 and never really knew what it was until now and I just got diagnosed it’s so good to finally know
Feeling like I’m going to the side is how my relapse has presented itself (along with the normal dizzy feelings) it’s absolutely awful and causing me so so so much anxiety. Thank you- these videos have been my life line because it’s SUCH a lonely and frightening thing 😢xxx
Eugh I had this it sucks, wouldn’t wish it on anyone! Aww I know how you feel but honeslty you are far from alone, there are thousands who are going through this, try and surround yourself with supportive people ♥️
I've been dizzy for about 3 years now. It was march before my 20th birthday and i got up off a chair, and i just felt like i was at sea during a storm in a tiny boat. literally the scariest experience of my life. i'm at the point now (and have been for over a year) to literally being bed ridden because of the dizziness, and it's gotten so much worse lately. I'm so sick of it and your channel has finally given me hope! people always tell me "you'll get better" "it just takes time" and I never believed them. My doctor didn't believe me and no tests came back with anything alarming so I was never treated. But now I finally believe I will get better. Thank you sososossososo much
this is exactly how mine started, gettin off of a dang chair.
@@abigailrivera9985 I was standing when mine started. All of a sudden I felt so dizzy I had to hold on to my mom
Hi it’s me commenting again today was my day 1 of doing ur exercises and I just rlly hope they work out in the end because I’m rlly tired of this my family calls me lazy because I’m in bed all the time but they don’t understand what I’m going through so it’s really nice to hear so many peoples stories and it makes me feel like I’m not alone I’ve been struggling for 10 months for me I struggle with feeling tired all the time and sometimes shortness of breath as well as the dizziness and it’s a terrible feeling just yesterday I found out about you and I’m really grateful I did I just pray that hopefully my dizziness will go away :( also my heart goes out to the people who’ve been struggling for years I hope u recover as well just don’t give up and I’ll try not to as well
Awww bless you I know how rubbish it can feel when you can’t get others to understand the struggles, it’s like they don’t take you seriously because they can’t relate- but the main thing is you’re aware of what you’re going through and making an effort to get better, you’re very strong for that and there are hundreds/thousands of people here who have your back😊
Have you tried an SSRI? That’s what my doctor has prescribed for my pppd
How u r feeling now
fight that pppd, we can do this.
Thank you so much for making another video on PPPD. This video has come at a good time because I'm currently struggling with a really bad relapse of PPPD, and this video is honestly so motivating and reassuring. Thank you for everything you do.
She helps so much, I always feel like people don’t take it seriously and don’t understand it at all.
Do you have the elevator drops and bad imbalance? They got worse last week
I'm so glad they are of use:) Relapsing is not fun, but try to remain positive and remember it's never going to be as bad as what we've already been through!! We got thisss
@@altprotestant8108 Ye I sometimes get those symptoms
Sameee
I am experiencing everything you've described and I am glad I am not alone in this. One thing i noticed is if you "confront" whatever that is making you dizzy, for example doing the dishes.... keep doing it and your body will habituate and get used to it. The biggest hurdle is not doing anything and then this will start to eat you up. Another example is walking. I would go for a walk and feel off balance but the more I do it, the better it gets. Breathing helps and Ashwagandha has helped me to stay calm.
Hit the nail on the head!! The more you challenge it the better it gets as hard as it is- I’m glad you’re improving :)
Prasanna, yes, I love your post. I used to feel so bad laying on my right side, but after I start to do it now, I keep my eyes shut, put my hand on my stomach and only focus on my breathing and my stomach (and not my head), it eases up!
@@jeannes.356 wow, I had the same issue too. I couldn’t sleep on my right. I wonder why this happens but now I am able to sleep on my right. I feel like when we “solve” one aspect of it, another challenge pops up and then you have to try solve it. We just have to keep fighting.
@@EMJAYstyles thank you so much. Your videos have helped me tremendously. I hope you are feeling ok.
@@PrasannaKumarMokshaBase yes, for quite awhile I wouldn’t sleep on my right side (avoidance), but then my left ear hurt so much because I was on it too much! So I finally did and did the technique I mentioned, and now it’s not feeling weird anymore! My brain adjusted. But yes, other head movements still do. But with the right side laying position, I had stayed there. Where, looking down for example, I haven’t tried continuing to keep my head down, while breathing etc. But yeah, I understand the dishes issue and love how you said to keep doing it! An excellent book is Rock Steady by Joey Remenyi.
Thank you for this video. My pppd has come back even after it went away from doing the exercises so this video was very helpful and motivating. It’s crazy how everything you say is exactly what happens to me. It makes much more sense now. Thank you.
I know it can feel really disheartening, I hope you find a way to keep your symptoms at bay! You're welcome:)
@@EMJAYstyles I’m in setback 2 Guys because of exams & financial pressure & taking on way 2 much ! So back to basics & exercise from your old vlog begin now & slowly down is the biggest challenge because when we slow down so does the brain 🧠 il come back to let you know how I’m getting on plus I do think high impact aerobics classes was a trigger, anyone here experience this ? Great work on here girl thank you 🙏
Sorry you're dealing with this. For anyone experiencing the same issue, consider looking into "Cleanse To Heal" (book) by Medical Medium Anthony Williams. The dizziness may be caused by a virus or toxic metals in your brain. I hope this helps anyone feeling lost 🙏
This sounds amazing!! Thank you for recommending this☺️
@@EMJAYstyles here's to your health pretty lady! 🖤
Is it a drink?
Have you followed the book recommendation and how are you feeling now ? Thank you
Thank you for this! Had a bad relapse for the last 2 months 👎🏼 did your relapses ever last that long? I’m SO happy to hear you feel normal again
Hey! Mine are very short term so I'll only really have them for a couple of days and then will be okay again for a couple weeks! They're never as intense as my flare ups used to be (so it doesn't make me bedbound), but it does bring back the familiar fear of being in busier environments etc. But I've found that on the weeks that I'm out the house more I don't notice symptoms as much so think the key is keeping active and getting out there:)
E M J A Y styles thank you ☺️ i haven’t yet been fully ‘healed’ so I guess this is just a bad period. Gonna start VRT soon! Hoping that will help me :)
@@Megan_Jennifer Put yourself in all the situations that make you feel symptoms. I found my symptoms worse at home this this relapse. Idk how to deal with that.
Hi again, Emjay (Megan). I love this video. I’m the one who had brain surgery. Yay. I literally have thought of you when I was in the hospital and outside of it. If Emjay can do it, so can I! You give me hope. Thank you.
Jean omg!!! How are you? I hope your surgery went well and you’re recovering quickly- this is the sweetest comment ever really made my day 🥹 wishing you all the best!
@@EMJAYstyles hi back!! You’re so sweet! So I believe I’ve had pppd for the past 6 years. But then there was a cyst in my brain found recently that was growing and bleeding. So they removed it in April and I went from being able to walk (just pretty drunk feeling, etc), to post surgery where I’ve only used a walker. I was expected to have dizziness (major increase for me), but it’s still there. A side note, stay away from those dizzy patches hospitals put behind your ear for nausea. It adds to the dizziness.). So there’s confusion about if it’s the brain issue or not. My surgeon has not heard of pppd. I had another mri yesterday - I’m always put out because of anxiety) and there’s more issues now and I have to wait to have the report explained to me. Anyway, (this is getting long!) I’m going to treat it as if it’s pppd because it probably is, with your program, and I have a new PT. I know I can heal with work. Also, I’ve been super inactive for months, so when you said that, and how challenging it was for you and you got better, it makes me feel like I can too.
I have bppv and have had it since I was 12 or so after a skateboarding head injury. It started as me feeling this intense spinning sensation when looking up or looking down. It settled after a couple of years, but definitely always lingered very minimally for sure. Hit you head again last year lmao and here I am again at step one 😔. I get dizzy when laying in certain position, i do the eply manuever and that type of dizziness went away, but the subtle like feeling unbalanced dizziness remained. It’s terrible and can sometimes be debilitating. Hate it I’d rather lose my leg than feel this
SSRI medication can really help, if you’re interested in trying medications for it. i was on Citalopram for 10 months and i honestly felt complete symptom free.
I just got diagnosed with PPPD so you have really helped with knowing more about it and stuff and I really want to be able to play netball but I obviously can’t at the moment because of it so it would be awesome if I could get rid of it completely
My PPPD has been through the roof as of now because of separation anxiety, stress, lack of sleep and other flare of emotions. It’s been a hard journey especially when my insurance doesn’t want to approve vestibular therapy testing and appointments with specialists take around a month of waiting
Yes it sucks it definitely does get triggered by external factors/emotions. Try and focus on breathing techniques and trying to keep busy to distract you. There are also some exercise guides online that you can follow/my vestibular rehab video and whilst they aren't a specialized routine for you they are still effective general exercises you can do while you're on the waiting list!
Have you tried an SSRI? I was given Lexapro for my PPPD and am going to start it soon
@@AJ88874 How are you ?
@@AJ88874how are you now
Found your video a few nights ago I’m goi g to my doctor ASAP I finally feel like I have an answer
Wow, I think I may have this. My story began back in 2017. I randomly caught Glandular Fever a week later I started to feel off balance 24/7. Kept having severe anxiety over silliest things like walking on the pavement next to cars in case I fall over etc. However I could cycle to work and the dizziness wasn't there. Eventually I was diagnosed with Hypothyroidism. Put on Levothyroxine and the dizziness faded. No exercises etc. Was fine for three years last year I became dizzy again. Blood test showed dosage needed to be raised. So I was put up 125mcg again dizziness faded. Now in march just gone dizziness returned they are saying I am now overmedicated. Yes its a awful condition to have. Im sure I have this as the anxiety cycle is there as well. Thinking you will pass out or embarass yourself while out then that fear stays and makes you more dizzy. since lowering my dose my dizziness has improved but is still there. Yes when lying or sitting it feels like your body has waves going through it. When walking at my worst I was having to judge every step I made. In case I fell over.
Hi. I’m happy you are recovered. Would you please give a update, are you 100% recovered? I hate when people say it may never go away …
Hey! Mine hasn’t returned and I’m living my life normally :) only time I can feel a lil dizzy is if I’m under the weather or I haven’t had enough sleep but tbh I’d say that’s normal for most people, even those without PPPD. Hope that’s reassuring !
@@EMJAYstyles thank you ! I’m really happy and it gives me hope. May I ask how long you’ve had the feeling of floor moving or walking on a boat? It got better after doing VRT ?
Love your videos on PPPD find them so helpful ❤
Aww I’m so glad, I will keep making them!😊
Thank you for the video could you make one about your experience with the anxiety part of pppd? I have both and have been have crazy symptoms. Like sensations that I am not breathing correctly almost suffocating. Not sure if you experienced this in the past. If it’s related? Could it be our brain sending wack signals? 🤔
Hey, ooh yes this is a really good idea I will do! They are extremely interlinked so it really is a vicious cycle 🙄
@@EMJAYstyles awesome I’d love to hear your experience with it & how you managed it.
or a feeling like your brain isn't getting enough oxygen 😑
@@rosamariona8385 how do u feel now? Hope is gone for u
All of your videos on this is spot on me. Could you explain more about what you do to manage anxiety ? I know you said something about CBD in another video
Am I crazy or is PPPD just another diagnosis for the symptoms caused by the release of adrenaline that's being caused by an flaming anxiety attack. One thing our failing health care system loves to do is make up new diseases. I guess what I am trying to say is PPPD is one of the symptoms our bodies exhibit with chronic anxiety and that we have now become afraid to experience.
Yessssss! This is the comment I've been looking for. I think the same tbh if I sit and deep breathe and meditate and relax a lot, my dizziness goes away almost 100%. It's more of an anxiety issue than a purely vestibular issue.
I’ve wondered this too
@@JRAP47 if you sit and breathe and that make your diziness go away, then you DO NOT have pppd.
Pppd is a functional neurological disorder, not an anxiety disorder.
Have you had symptoms since you decided to regularly do these exercises? I haven't had dizziness in the last two years as it went away the same year I got it (I did hours of walking everyday). I've been able to drive for hours without getting symptoms, it seems like moving around keeps you off the dizziness. Have you been able to ride an airplane or train when you've been stabilized?
I don’t really get dizziness anymore no, and I haven’t actually done the exercises in over a year now but because I now work in an office I’m getting my movement in by walking/travelling etc which I think stops it from returning. Yes I do get on trains but it’s only a short journey. I haven’t been on a plane in a couple years and am terrified of flying in general, but when I last went on holiday I did struggle on the flight, but my dizziness was still persistent at the time. I’d say I struggled most in the actual airport though because of so much open space
This was so interesting!
Thanks soo much for watching!! xx
November-March/April my symptoms are through the roof.
Thank you for your videos on this subject! I realize this was awhile ago but you are the first person who mentioned nausea with pppd that I have seen. Is that a common symptom for you? I ask because it is for me, and I was actually wondering if pppd would be the wrong diagnosis because of it. Thank you again! You are helping a lot of people!
Hey!! So I think the nausea was a bi-product of the general anxiety the disorder had given me. I only had the nausea some mornings and then when I was in lecture theatres as I developed a weird fear of not being okay in front of a group of people- so for me as this was the environment that triggered it I wouldn’t say it was just random nausea in most cases, onlt really when I was anxious♥️
@@EMJAYstyles thanks so much for getting back to me! I've been reading that there is a connection between digestive issues and pppd which could also explain nausea. It is quite an adventure 🙃😥😊
For my PPPD related anxiety I take Ashwaganda and it works like a "i dont give a shit" pill for me
I need that!!😂 did it give you any side effects?
@@EMJAYstyles No!!! Its just a herb, not a medicine!!! Its jist all natural herb that helps the body to deal with physical and emotional stress. I dont feel any effect of it until i get into a stressy situation, then i just feel like I cant get stressed out.
Ashwaganda and rhodeola rosea or what are the two herbs Im taking
@@gegreta5503 Oh amazing I'll deffo get some and see how I get on- thanks for sharing!
Awww hello from london 👋 I’ve had vestibular migraine and PPPD for 8 years it’s tough x
Hey from Birmingham!! Goodness so sorry you’ve had to deal with it for such a long time, I wish you an amazing recovery so you can get back to living life to the max☺️☺️
Hey I am in London , have you got any doc / physio or anything to be recommended ? I find I may have pppd through the dr Paul Montgomery website he is based in Mayfair and so expensive ! But his website really is amazing . Thanks for your recommendation if you have any 😊
@@magrets hey lovely yes - the UCLH in kings cross is the best place in the whole country! It’s nhs - so ask your GP to refer you to the Neuro-ontology (Dr Nandi) for vestibular testing etc xxx
@@meltsinthecity5211 oh that’s very close to me Thank you so much , I am so glad I have find your comment . Have you got this under control now ? What course of treatment as the dr recommended for you ? Thank you will try and get my GP to refer me , it will be though though
@@magrets that’s great for you then hun! :-) well I did with my physio, walking, vitamins and a LOT of self care xxxx however I’ve got other heart issues in the last year due to Covid, so not sure what symptoms are what now! Xx good luck and let me know how you get on xx
Thank you so much for this video, you help so much x
You're so welcome!
Hii Emjay I started doing your exercises and they helped a lot until September 21 I started feeling slightly dizzy again and now it’s the 29th and the dizziness has gradually gotten worse since the 21st I’m so confused now because I was and still am doing the exercises 2 times a day and I thought everything was fine but all of a sudden it feels like my hope has crashed once again and I don’t know why it not working so I was just wondering has this ever happened to you? Also my stress and anxiety has gotten better as well and I’ve been working on it I’m just so exhausted and confused
Hey, there are a lot of factors that can affect your dizziness recovery process which will vary from person to person. I myself actually used to experience flare ups in my symptoms like once a month, and gradually these got less and less. In the short term your body is still adjusting to these movements and naturally will create anxiety and sometimes temporary worsening of symptoms- but stick with them because they are effective exercises but the results are often shown over a longer period of time :)
I had this last year and now dealing with it agin i feel so much anxiety and keep being told im fine by doctors this is the 1st time anyone has made since about what iv been feeling 😢thank god im not crazy i was starting to feel like noone understood
I relate it's definitely hard when you're trying to explain to people who just don't get it!
Hi! I was wondering if you could explain your dissociation and derealization symptoms, they’re honestly terrifying how was your experience with them and how did you make it better? I think the lightheadedness really makes me dissociate and feel floaty/ like I’m in a dream.
The dizzyness, nausea, weights in head pushing you, feeling unable to get to the bathroom or go outside.... all the things my son is suffering with. I'm wondering did you have any type of wabbling vision, just when everything is slightly moving although you're keeping your head/body still? He's experiencing this every waking moment.
We try to walk but he's very cautious, the nausea is overwhelming outside.
How did your mum cope? I'm managing to hold it together but there have been a few times I've nearly broken down over it. I'm 99% of the time positive and upbeat but it is hard.
I wouldn't say I felt like things around me were moving, but I did feel like I was shifting/moving when I wasn't. Especially if I was sat still or laying down the movement sensations became more obvious. Tbh she was really supportive throughout although I was living in a university house at the time so she wasn't seeing me go through it everyday. But I just pushed through it and didn't show people how much I was struggling so it probably didn't look that bad to people from the outside perspective if that makes sense! Just offer him reassurance and help him develop coping mechanisms such as breathing, rational thinking etc and keep exploring treatment options as there is definitely a light at the end of the tunnel:)
Has he been tested for everything and / or seen a neurologist? He may have vestibular migraine or it could be pppd. The worst thing he can do is sit still apparently even though it’s very hard. I’m sorry your struggling also I can understand why. I have bad anxiety and a lot of these symptoms and my husband was having to do everything for a while. It puts a lot of pressure on the family that’s for sure. Just try your best to be supportive but encouraging
Its not just hard, but its _very_ hard. I have the blurring vision - to confirm your son's experience beside the dizziness. Usually I always blink several times then to get a better view, and sometimes it does help for me. 🚩
I’ve had this for three years, but I haven’t gone to a Doctor. It’s very rarely the room spinning. Mine can be feeling like someone has picked me up by head and dropped me on my feet, feeling like I’m on a chair that’s being flipped (that pulling feeling), and feeling like I’m lurching forward but I’m still.
We have a tiny sink in the downstairs bathroom and I can’t use it because the depth perception of it sets off my dizziness. Also, if I’m in a lift, I can’t zone out, otherwise it won’t register what’s going on and start up dizziness.
What do you do to get out of a relapse? Also do you see a neurologist?
Erm I can’t say there’s a way to actively get out of one once you’re in one, but it helps to pick up your exercises again, focus on breathing, getting out the house and keeping positive. No I don’t I saw a hearing and balance therapist who gave me the exercises like 2 years ago and since then I’ve battled it myself😂
Laying down or getting sleep is very hard for me it's been one year floating,swaying side to side,dragging. I don't know how to stop this I think my brain telling my body to move when I'm not moving. I'm always palpatate because of this anxiety.
I used to be the same!! And now thanks to vestibular exercises I haven’t had that feeling in bed for over a year, so hopefully they can be effective for you too as I know how horrible that feeling used to be🥺
@@EMJAYstyles happy to hear that😊 hope i will heal soon same as you thank you for inspiring us❤
How long you did vistibular exercise?
Does it feel like gravity is literally pushing you? Did you get it after a panic attack? I'm experiencing this and it's hell... Literally rocking on a boat even when I'm still
@@k.baller5140 yes until now i felt that but now not that much bigger
@@rehambamba1373 Hey, how u doing now? Hope it got better!
This is a major symptom of Hypochondria.
i’ve had contestant dizziness now for 10 months and no one can figure out what is causing it. With your PPPD did you ever get really hot or sweaty ?
I’d feel like I was overheating a lot yes but wouldn’t say it made me feel sweaty!
I've been feeling like I am overheating lately, I have vm.
@@tasneemali11 I overheat all the time.
Did you have balance issues? And did you ever recover your balance ??
Yes and yes!
Can totally relate. We're you ever assessed for vestibular migraines?
No I wasn’t but I’ve heard the main difference between that and PPPD is that VM is more of a spinning/vertigo style sensation which I’ve never personally had! mines more lightheaded/foggy Vision/feeling faint ☺️
VM is not spinning sensation in all cases and also no need to have headaches to suffer from VM and mostly of people who has Has VM also Has PPPD watch The dizzy cook lady on UA-cam her symptoms are the same as pppd but as well VM you need to get the right diagnostic to be able to get in the right treatment
Thanks for the video!! How are you right now? Did you also feel like you are not coordinated with your brain and legs? Feeling unbalanced
I do legs and hands
Thanks so much for your videos - I realized that i had PPPD from you. Doctor confirmed and did some therapy exercises. Do you take calls to discuss? Thanks again
Been dealing with this for 5 years and no doc has diagnosed me with it but I swear that’s what it is cause I’ve had every test under the sun and it all comes back normal so i tried your exercises and the X one makes me very dizzy I’m assuming it’s normal? And yes I have very high anxiety
Sorry to hear you’ve had it for such a long time! and yesss it’s very normally for all the exercises to make you feel dizzy at first as your body needs to get used to them so don’t worry:)
@@EMJAYstyles awesome! I’m gonna keep at it everyday!
Same. Been doing exercises for a month now and I have to say I've noticed a difference!! I'm so happy, I now have hope. Went to Dr's too and no one ever said anything ...I lost hope.
I feel like my legs arnt connected with my body and I feel like I could faint any second and I get really sensitive to touch I'm afraid to leave my house or even walk to the bathroom did you get this also??
Yes I did get this, it would get this bad during my flare up periods which initially happened for like a week at a time every month, but as I did the vestib exercises these flare ups became less and less frequent/long to the point where I stopped having such extreme symptoms. The fear element has strong links to your mindset also though, a mix of physical and psychological
@@EMJAYstyles I have 3 different panic disorders and multiple phobias and when I feel this way 24/7 I think of the worst that could happen to me I get so scared
@@AlisonNorton. yeah I feel you, it’s a hard habit to break out of but a key part of recovering is changing your mindset from ‘omg I’m going to die, or I’m never going to get better’, to ‘ I’m fine my symptoms are a lot scarier than the actual cause and they will improve with patience’, wishing you a good recovery!
Hi Megan. I have a quick question, please. Did you used to have a major increased dizzy feeling when you were sitting down and looking ahead and slowly moved your head from left ear down to left shoulder? (The right one too).
Did you ever think your getting pppd from computer screens I was getting these flare ups then I got blue light blocking glasses it seems like it’s helping me for now also you said that you got flare ups when being at home -indoors which you were probably on your phone , laptop etc Just a thought
I don’t believe so! I started experiencing symptoms when I wasn’t in a screen heavy job, and sometimes found that screens were a good distraction from my symptoms unless they had an overload of movement on them. The main thing I got from screens personally was just headaches which got fixed when I had glasses- it might be a cause for others though!
Hi, how are u now? Thnk u for ur inspirational story
It is curable
Yeppp
Hey just stumbled across your videos just a question did you have vision issues along with your other symptoms? Bad depth perception fatigued eyes etc?
Hiii yes I had eye strain, struggles focusing, light sensitivity and visual floaters
Oh wow you have eye floaters as well ? I developed them also from this condition do you still have them ?
Just wondering if going in a lift or on an escalator triggers anyone pppd? It triggers mine so bad I'll get off the lift or escalator and feel like the ground is falling away underneath me and like I'm floating up and down
? I had covid in January of this year. I got vertigo as an onset two days in. I had a VNG test in March showed 33 percent damage went back in May to check again they said they showed nothing. Still dizzy woozy feeling in head weird when walking ex specially outside walking. I feel like a bobble head eyes feel really weird. Last VNG test showed oculomotor abnormality. Been to many drs. Know one seems to know what’s going on. I have suspicious idea it might be pppd now. Anxiety is high. Just want to feel better. I walk and stay active. Had light sensitivity wore glasses and hat for a while. Don’t have to anymore. I had migraines really bad but been two months since my last major ones. I get headaches on occasion but short lived. Eyes feel like a camera. Pt showed both eyes skip a bit to each side. What is a timeframe for recovery?
Thanks
Eyes are the worst. Feel like they jump like a visual vertigo. This sound right
From what I am getting this is all common with vm and pppd. Also it seems recovery is about a 1year to 1.5 years. Is this about right?
Hey! sorry to hear that, I’ve been getting a lot of comments related to covid and dizziness, ah yeah you may have VM then if you have a history of migraines- I’m starting to think I may have a mixture of PPPD and VM as I have had migraines too in the past but equally some of the PPPD symptoms are still so specific to what I went through! Yeah the timeframe can really range I’ve had people comment that they’re better in 2 months, it probs depends on a number of factors like how long you’ve had the dizziness, your mindset, anxiety levels, commitment to recovery etc- for me it was 7-8 months but then I relapsed, a lot of it is your lifestyle too! Wow eyes feeling like a camera is such a good way of explaining it!!
Hey! sorry to hear that, I’ve been getting a lot of comments related to covid and dizziness, ah yeah you may have VM then if you have a history of migraines- I’m starting to think I may have a mixture of PPPD and VM as I have had migraines too in the past but equally some of the PPPD symptoms are still so specific to what I went through! Yeah the timeframe can really range I’ve had people comment that they’re better in 2 months, it probs depends on a number of factors like how long you’ve had the dizziness, your mindset, anxiety levels, commitment to recovery etc- for me it was 7-8 months but then I relapsed, a lot of it is your lifestyle too! Wow eyes feeling like a camera is such a good way of explaining it!!
What did your eyes feel like? Mine I know skip a bit to each side. They say it will work it’s way out which is good. Today has been a decent day. I have to look at the small progress knowing these are good signs. No more glasses no ball cap. Starting to walk more and more. We will recover just takes time. Just weird they said I had damage from nueritis then go back and nothing odd. We have to trust the system and we will get better that I know
Hello Meg - Do you find that Caffeine (Coffee, GreenTea) made the PPPD symptoms worse? Or no impact either worse or better? You have some great fashion photos.
omg Yess!!! its cause of the caffeine.
Yes me too!! I stopped caffeine anoutva yr ago.
@@abigailrivera9985 Are you fine now?
I think I’m struggling with this. I don’t have vertigo it feels like I’m on a boat or going side to side. I went to the ER because I felt like I was dying /maybe had a stroke. I ruled all that out. I have fluid in my right ear so I’m really hoping these exercises help me
Yes that sounds very much like what I went through- and considering you have fluid in your right ear dizziness is very expected as it’s your balance organ :)
How are you now? I have fluid in my right ear as well . Did you fluid drain & things got better
@@kyraterry8080 I never went back to the doctor so idk if it’s better. But I ended up thinking I had pppd and got on Zoloft and the boat feeling went away 99% of the time. I’ve been on the Zoloft for 1 month.
Does SSRi help in dizines
@@kunalpuri3432 yes it helped so much
Did you ever stop driving because it was so bad?? Wondering if you’re driving now too since I’m so scared to drive again! Thank you
I don’t drive so I can’t really comment on this!! But when I had a few lessons I found driving actually distracted me from my symptoms as I was so focused on the road, but I completely get you as I’ve heard mixed perspectives on it so you definitely aren’t alone with that one 🥰
@@EMJAYstyles stopped driving because im scared as well. Im scared of being unbalanced wile driving and also my anxiety triggering
loretta janka me too
I have been so close to stop driving, but avoiding it will make it worse. I usually slow down when I feel the"passing out"sensation and open the windows for fresh air. I have never passed out.
At first I felt a lil dizzy when driving, but nothing too bad where I couldn't drive. Then I felt better when driving, better than when u was walking. Never stopped driving, and I've had this for almost 5 years now
how did deal with anxiety during pppd? I am so much affected by anxiety issues!!!
Hello . Just wondering if you ever got numbness? Or if that’s a symptom of pppd .
I actually do sometimes and used to get it quite often a few years back but I wasn’t ever sure if it was PPPD related as it doesn’t say so online! I’m not too sure 😩
Can also be anxiety symptom! I get it too
Thanks for the reply !
Hello. Did you guys also have eye floaters?
My symptoms just start few weeks ago February 7 then since that day i had this dizzy,pressure in my head and pulling or floating feeling while walking and bad part is having panic attack because of this symptoms. How many time u do the exercise?
I have PPPD until February also, how do u feel now?
Are you healed?
When I do exercise in which a ❌ is hanged on wall while moving my head from left to right or right to left I feel like wall is moving did u also experienced that?????
Hey! I can’t fully remember but I don’t think so, but it’s very normal to experience this I’ve had a lot of comments about it, many people perceive motion that isn’t actually happening and with you moving your head in directions you usually don’t, it’s normal for your head to get a bit confused initially by the movements
I’d like to suggest two things for you, as I have this too. Put the cross on a wall with nothing else near it, so on a totally blank wall. If it’s already a blank wall, move your head slower than you’ve been doing it before. Nod yes slower and then no slower and see if that helps.
Check your eyes for vertical heterophoria, misalignment of the eyes might be a cause for some. Prism glasses could give relief
Would this be picked up by a professional as I went to the opticians who said I was fine and also had some eye alignment tests done in audiology which were also fine! Thanks for sharing this will help someone☺️
@@EMJAYstyles How many years you have had experiencing lightheadedness before you were cured? I'm really curious.
Does this dizziness ever stop 🥺😭😭
The doctor who diagnosed me with PPPD says that he has seen so many new patients coming in with PPPD. It’s very new but growing massively it’s so weird. He prescribed Lexapro so I will be starting that soon. Has anyone on here tried that or another ssri?
This is soo interesting to hear!! I haven’t tried it personally but hopefully someone else in the comments has :)
Hi, how are you now?
Did the lexapro help?
Do you feel dizzy when walking?.. like weak legs or feel like uneven floor?
Yes I did! Sometimes I'd look down at my legs and the floor felt really far away from me (I think it's called Alice in Wonderland Syndrome). Deffo felt the weak legs when I was struggling with my balance
@@EMJAYstyles you are always helpful becuase i feel that everyday.. when im sitting or on bed i feel ok. Are you okay now EM?
Do you find the cbd helps with dizziness? X
Not dizziness specifically no, but calming down feelings of anxiety yes- although tbh I can't tell if it's a bit placebo haha but I take it on the odd night where I don't feel well/am struggling to settle or before a day where I have quite intense social plans:) x
How often and how many exercises do you do?
Once day to begin with, then after a month or whenever you feel comfortable up to twice a day (morn and night), I discuss it more in my VRT video but also write down an example routine you can follow in my dizziness guide that I’ll be releasing on 1st July!
In your experience, any time you felt stress did the PPPD reappear or only in times of severe stress?
Ermmmm tbh sometimes it would come back when I was subconsciously stressed too which made it hard to know when it was coming, I’d say it kinda depends what’s causing the stress and where I am at the time! If it’s like fear of having loads of social plans in a week I’m more likely to feel dizzy because I over worry about feeling ill and not being able to make the plans, whereas other things like work stress may not make me dizzy
Thanks so much fot these video's... i am experiencing more symptoms lately and now know i have PPPD. I was wondering, 1: can you live a "normal" live again? Or are there so many bad days always, also when you recover, that normal is never again?
2: when i go and do the exercices every day, and can manage to not be afraid anymore...do you think it will still can go worse than it is now? Or do you think it will be the same or better?
3: They say and i noticed that sometimes after the night in the morning, it is worse (the balance problems) and then after a few hours it feels much beter... also when i lay down an hour during the Day, after getting up, the balance is a little bit less ok...and after some time, its better... do you have an idea why is that? I know i have this problem PPPD because of a long time focus on all weird sensations i felt in my head, and not wanting this, and focussing more and more on it and also getting more fear about it..so i understand trying to embrace all the sensations i feel during the Day...but why i have more balance problem after laying down a While...i dont really understand why this is...
Do you? And did you also have this? Thanks so much!!! Greets from NL
You will overcome the fear and able to enjoy life again. I did for years with occasional flare ups. The flare ups will feel just as bad but they get easier to manage.
Does anyone work while having PPPD or VM how do you deal with it, I am currently applying for jobs, and I am always wondering what if I can't make through my shift? Although my condition has improved significantly since the beginning.
I wasn’t able to work for 4 years. I started working in December of 2022. I have to work remotely and I do work on a computer. I only work 4-hours a day. The computer upsets my dizziness, and I usually have to sleep after my shift. I say try and if you can’t, you can’t. You’re not alone in this.
How was it going back to work ?
Does watching phone for a long time makes u dizzy even. For me it is..screen time makes me more more dizzy..does anybody goin through same?
yepppp. me
Yes
Can I ask you how long exercise work I mean 2 weeks or long I am very trouble plz
It took me 7 months to feel normal again but saw improvements after about 4, for some people they see improvements within weeks though everyone is different!
Do you notice if magnesium glycerate helps.
I’ve not heard of it but will look into it! Has it helped you?
Do you have nausea with the dizziness aswell?
I have nausea frequently with the dizziness
Hiii will u tell me relapsing process is coming with low intensity
Yes much lower intensity than how I experienced it before I recovered :)
Did you use CBD oil at all? I think you had mentioned that in a past video. Please and thank you! 😁
Hey! Yes I do from time to time, i can’t say that it impacted my dizziness but it did help take the edge off my anxiety on days where I knew I’d have a lot of stress such a social events etc- hope that helps!☺️
E M J A Y styles yes, helps ALOT! Thank you kindly. ☺️
I have pppd and I have dreams every night
Ooh are they vivid dreams? and are they good dreams or bad? I can’t remember if I dreamt more when I was suffering with it but it doesn’t surprise me!
Does pppd affects the brain if left untreated
I don't think so, but can't say 100% I imagine if left untreated it just stays the same but through naturally becoming more anxious and developing avoidance behaviour symptoms could become more intense/functioning becomes harder
Do you have vision problems
I did yes, visual floaters and struggles focusing!
Hi mam ,for pppd require some medication support or not require if I am able to handle stress .I had ear issue tinnitus ,in covid then doctor gave me steroid .that I had panic attack due to this tinnitus.not able to sleep that time due anxiety.later developed some symptoms , something like I am in boat floar is bouncing,but not any visual change and also no any pain in body. I did mri of my brain it's normal.now I am feeling like floor is jumping, something is pudding me one side to anather.it increase when I do more activity.when walking it's intensity is high,if I only stand then it becomes low as walking and when sitting then it's belothat standing.and when laying some time I feel that some not.but more after heavy work.when I am driving bike thier is no any symptoms.can you tell what is this?
Hi, unfortunately I'm not a doctor so can't diagnose you with anything. But no I didn't take any medication to recover, I just did the Vestibular rehabilitation exercises at home which got rid of my dizziness after about 7 months. First thing to do is get tests done to rule out other conditions
What you describe is exactly what I'm experiencing... The boat floating floor bouncing hell... After the panic attack.... Did you take any medications like benzodiazepines / xanax?
@@k.baller5140 my anxiety is out of control for that doctor gave me klonopin.I also have terrible insomnia since last 6 month
@@gorakhchavan2215 I am suffering from vision change... And gravity is literally pushing me
@@k.baller5140 mine also but sometime blur
sameeeeee
Did you ever get brain fog?
What CBD products do you use? Xx
I use the love hemp oils! I have a raspberry spray one and an orange oil in 600mg (medium strength) xx