Copaxone was supposed to be the safest modifying medication but unfortunately, if you're on it for awhile you can end up with "dead skin." It has been 2 years without this medication and I have had no flare ups and no steroids. I believe in order to fight this disease, you have to have a healthy lifestyle. I have had MS for 11 years now...
Thank you for all the quality information you’re posting! It helped me explain the effects to my wife whose been dealing with seizures from her MS for the past 9 months or so. We are praying this will help her flare up(s).. to calm for a while. I appreciate the videos you’ve made to help others find answers and to cope!
I have been on Copaxone for 22 years! Starting with daily injections! Alternating injections daily. Arm muscles atrophied, leg muscles held up hip areas just hard to reach. Best and least painful shots for shots in the stomach area. Recently the state agency I retired from switched insurance companies which also changed pharmacies. Now they are refusing me my medication after 22 years of use! But my most important question is is the price ever going to go down?'
I am about to start my Copaxone treatment and i wanted to listen to that. Thanks for talking about good effects. WTF. All you say are the side effects and etc.
I was diagnosed 6 years ago and I just experienced my first MS relapse. It wasn't bad but a little scary. I am looking for a medication that has the least side effects but the a good overall health benefit. I am suppose to start my Copaxone In a week but still have reservations regarding treatment.
@@amydascalos3964 Thanks for the info. I actually started on it but came off it because ibhad no more injection sites left. They were all bruised and sore from me taking copoxane. I mean big huge knots. The other side effects were crazy the burning at the injection site was hell and lasted for more than an hour. I literally had to start taking it at night so I could jut lah down afterwards.
What can be done if anything with the cost to insurance companies? To make it more acceptable and covered? For those with insurance.? And more affordable for those with no insurance.?
I get a tightness in the chest and a sense of panic at times. I hadn't associated it with the injections because they can happen multiple days in a row. Can MS hugs feel similar to what was described in the video?
Copaxone was supposed to be the safest modifying medication but unfortunately, if you're on it for awhile you can end up with "dead skin." It has been 2 years without this medication and I have had no flare ups and no steroids. I believe in order to fight this disease, you have to have a healthy lifestyle. I have had MS for 11 years now...
That’s interesting. It exacerbated my eczema (now I have it in my eyebrows) and I swear it caused hair loss.
It also made me totally unable to exercise because of heart palpitations
@@kbellmurray God bless you in Jesus Christ Almighty name!
Some people have shown great improvement with copaxone and their MS symptoms.
Thank you for all the quality information you’re posting! It helped me explain the effects to my wife whose been dealing with seizures from her MS for the past 9 months or so. We are praying this will help her flare up(s).. to calm for a while. I appreciate the videos you’ve made to help others find answers and to cope!
I have been on Copaxone for 22 years! Starting with daily injections! Alternating injections daily. Arm muscles atrophied, leg muscles held up hip areas just hard to reach. Best and least painful shots for shots in the stomach area. Recently the state agency I retired from switched insurance companies which also changed pharmacies. Now they are refusing me my medication after 22 years of use! But my most important question is is the price ever going to go down?'
I am about to start my Copaxone treatment and i wanted to listen to that. Thanks for talking about good effects. WTF. All you say are the side effects and etc.
I was diagnosed 6 years ago and I just experienced my first MS relapse. It wasn't bad but a little scary. I am looking for a medication that has the least side effects but the a good overall health benefit. I am suppose to start my Copaxone In a week but still have reservations regarding treatment.
don't start this...it's not strong enough..try lemtrada or cladribine and keep walking.
@@amydascalos3964 Thanks for the info. I actually started on it but came off it because ibhad no more injection sites left. They were all bruised and sore from me taking copoxane. I mean big huge knots. The other side effects were crazy the burning at the injection site was hell and lasted for more than an hour. I literally had to start taking it at night so I could jut lah down afterwards.
What can be done if anything with the cost to insurance companies? To make it more acceptable and covered? For those with insurance.? And more affordable for those with no insurance.?
Nothing...this is healthcare for profit. Cancer and MS drugs cost a fortune.
I get a tightness in the chest and a sense of panic at times. I hadn't associated it with the injections because they can happen multiple days in a row.
Can MS hugs feel similar to what was described in the video?
I got lipoatrophy from injecting one time in the front of my thigh. So, watch that location. Try the abdomen.
Even with insurance Copaxone is way too expensive. No one can afford thousands out of pockets every month.
Smh liars