I have ET and i remember one of the covid vaccines (in England) gave me really bad shaky hands temporarily which was scary. My father gave me covid but I don’t think it has worsened my ET in any way.
I've had essential tremor for 50 years... I am now 66. After having covid and then the vaccine, my tremor became so bad I had difficulty brushing my teeth, eating, putting on chapstick... it was so bad I ended up on disability. After a couple of years, it was getting better. I wondered if I could get off disability. Then I got another bout of a virus I didn't get tested for but became super fatigued. That virus made my tremor exponetially worse even more than the first time and the vaccine had. I now pretty much feel crummy most of the time and tremor makes life a struggle. I pray it will recover some again. When I did have covid I never got it in my lungs, just felt fluish.
Omg I feel for u this condition is one of the worst possible things u can have however I urge u to get Deep brain stimulation, u will at least be able to live out the rest of ur days in some comfort. Also idk what u believe about God but I have seen some amazing testimonies of people getting healed in Jesus name what does it hurt to ask him for help regardless if u currently believe or not, he has helped and healed me without him I would be lost without no hope. But regardless I will pray for you.
Here’s the full story for me (mostly): It all started with me having a quasi-locked jaw late January 2022, alongside some mild pain in the masseter region. I was diagnosed with TMD (TMJ). Shortly after I felt pain in my right and left arm, alongside with my ankles. So, I went to a rheumatologist and neurologist to check if I had arthritis or a neurological condition. There was no arthritis in my blood work or X-ray, and my neurologist found that my cervical spine had mild-moderate stenosis. So, I thought that was what was causing some of my symptoms and took muscle relaxants and gabapentin for them. But a months later I tried getting off my muscle relaxants and gabapentin (after doing physical therapy and being on them for three months), and tremors started to develop in the back of my neck. Then they went to my shoulders, hands, and lower back. The muscle arounds the exterior hamstring region started getting stiff and weak. I had to get back on the muscle relaxants because without them the tremors would be extremely debilitating and cause severe panic attacks that woke me up - I had developed horrible nightmares too. My mouth suddenly got dry, my legs, arms and back got stiff, muscle twitching, I had heart palpations earlier in (recently stopped), night chills as well occurred (that now stopped), and head vibrations. During this treatment I also started on a CPAP machine originally thinking that I was clenching/grinding during night, causing the TMJ to get worse - and the sleep machine causing me to get even more tremors in the back of my neck when it presses on it overnight. The problems are just developing overwhelmingly fast. I did an EEG, EMG, a full blood panel, and even a DaTScan to check if I had Parkison’s disease. None of them showed anything. The only thing they’ve diagnosed so far is TMD and the cervical stenosis. The neurologist doesn’t know what’s going on but says it could be essential tremors. I now think it's long covid and heart and respiratory issues have started and it's getting very scary. I think the reason why I got TMJ was because of respiratory issues caused by long covid.
@@amarmeziani5987 I'm on hormonal therapy right now, which has helped with the joint-muscle pain, and should get be back to normal eventually, according to the doctor. The tremors and panic attacks have not stopped yet if Im unmedicated.
I wish I'd found you sooner! I was diagnosed with ET 20+ years ago. It was getting worse, but symptoms took a giant leap forward when I got COVID over the 2021-22 holiday (despite all due precautions!). I increased my reliance on daily 10 mg propranolol. Then in July neurologist put me on 60mg ER propranolol, which I could not tolerate. Then he told me my real problem is that I have Parkinson's. Several deep dives down winding rabbit holes later (relying primarily on PubMed), I discover that prolonged use of propranolol can in fact precipitate Parkinsonism! Long story short: I have an appointment with a movement disorder specialist in February and until then I will just live with my symptoms, eating vegan, exercising vigorously, getting back into meditation. It's a journey, Dr. Sullivan. Thank you for helping us along!
Most of my life (I'm 56) I have had ET that has been very occasional & mild. It's been made worse with caffeine & alcohol consumption. However, I noticed pretty quickly after contracting COVID back in October that my ET became worse and more evident 24/7. It hasn't gone back to what it was before but has lessened somewhat.
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I just came across your amazing video after googling if covid worsens tremors... I had covid the first of Aug. Tested positive 8.01 and actually had headaches and body aches prior with fatigue but thought it was my fibromyalgia flaring. I continued to test positive through 8.13.22. In the last week my just annoying hand tremors I've had for years with no diagnosis have worsened to the point its even hard for me to use laptop for work... granted my stress of life has increased as well but I've never experienced this in my 50 yrs here dealing with stress. My heart has also been racing pretty much all day as soon as I wake up. BP has been higher than normal and my pulse is averaging at 100. My restless leg syndrome has also worsened in the last month. Even during the day my legs shake. I may note that my covid just had a touch of respiratory symptoms..mine was EXCRUTIATING back and headache for 4 solid days and nights with very little sleep due to intense pain and severe diarrhea for 12 days straight. Now the only time of the day when I don't shake is when I come home and pour my glass of wine like I have for decades. I would love to find somewhere in Arkansas where I could sign up for research, etc. I feel close to desperate. TIA for any guidance and many thanks for your amazing video!!
I was put on propanolol and muscle relaxants for the tremors. Then I was told to begin hormonal therapy including taking vitamin D, C, and B12. Some of these eventually do help with the tremors, and the end goal is to make them go away after months. I'd go see a chronic illness specialist to start hormonal therapy if you haven't.
I'm not sure, but I think my cervical dystonia has to do with covid. I had symptoms of covid when the pandemic started, but couldn't get tested here in Germany, because I couldn't proof contact to someone positive. Then the headshaking began mildly and I thought it had to do with hormones (because of menopause) and started to take hormones. I got 3 vaccinations over the following 2 years and was tested positive in July 22. The head shaking got worse over the past 2 years. Who knows if it is due to covid, vaccination, hormones or genetics? Hopefully you and science will show one day.
Thank you, thank you. You have no idea how much relief listening to your lectures have given me as an Essential Tremor sufferer, all the other symptoms that I have noticed like insomnia and disappearing words are real and not the sign of early onset alzheimers . Yes, COVID did affect my ET deleteriously and definitely increased the amplitude of my tremor even though I had atypical COVID with none or very little cough and congestion but the worst stomach and bowel problems that I have ever had. ı was in agony for days but that is unimportant in relation to your work on ET but it has left me with a very delicate lower digestive tract. I did have the virus. Yes the embarrassment factor is huge especially being middle class British where the importance of good table manners is instilled at a very early age. I am one of your ET investigators and have read copiously on the subject but only recently has there been anything worth reading and as you suggest ET is very much the poor cousin to MS and Parkinsons. I would be interested on your thoughts on Gamma Knife and Focussed Ultrasound as treatments as I am considering having one or the other. I live in Turkey and Gamma Knife is available but not Ultrasound yet although it is slated to be available before the end of this year. do you think it is a step too far for preemptive surgery before my tremor amplitude increases as it is very likely to?
I suspect i have ET or something like it. I first noticed a tremor as I was recovering from my first covid infection. 6 months later, I had covid a second time and during that recovery, the tremor worsened to the point where i can no longer do my job or even stand for long periods of time. its been a month and a half with little to no improvement.
My ET started soon after my 4th booster vaccination for Covid. I’ve heard from 3 separate doctors who have been taking care of my health confirmed that they see patients complaining about ET that it started after being vaccinated, but not all get it. I wonder if there is any scientific study done for this.
Here, finding this video after concern and searching for anything related to sudden onset tremors related to COVID. ...2 years after this video was published. I came down with (began symptoms) covid a week and a half ago. Tested positive a couple days after symptom onset. negative test yesterday and starting to feel better without fever. Today, suddenly when I tried to lift something slightly heavy I noticed a sudden tremors in my hand and arm when I gripped. I figured I am just weak from being sick. I paused and tried again, tremor again. I waited a while and tried to forget about it then grabbed a half gallon of liquid, tremor again. So I sat down and tried a few things that didn't require lifting or strength, persay. The tremor is replicated when I simply squeeze my hand. I just did the postural tremor test, lifting my hands above my head...no tremor from that. Going to keep looking at info and keeping an eye on this sudden neurological sign. Thanks for your video!
I came to your video after noticing that my essential tremor has become worse over the last week as I've been dealing with COVID. I've never noticed an increase in the tremors with COVID vaccinations or other viral infections.
I have had mild ET for at least 20 years. On my 80th birthday, 4 months ago, I was diagnosed with Type “A” influenza and Rhino virus which lasted 8 weeks The ongoing symptoms of ET have been noticeable worse .
I’ve had a tremor in my hands (started in right and then left as well) since I was 18, I’m now 46. Around the age of 40, I got a bad case of hpylori, during this time my head tremor started, then after COVID my hand tremors got significantly worse alongside an increase in trying to find words. Thank you for the information, it’s great to learn more about something that has been in my life for so long!
I had COVID in early December of 2021. For me, aside from the fever, fatigue, confusion and GI issues, my primary symptom was back pain. I’ve never felt back pain so intense. By the end of January, most symptoms had declined, but I noticed my hands were shaking all the time now, getting worse when I tried working with them. I also frequently experience the sensation of holding on to a live wire in both hands, from fingertip to elbow. I went to the doctor and was diagnosed with ET. It has been this way ever since. Not worse, but not better. It’s just the new normal now.
I was put on propanolol and muscle relaxants for the tremors. Then I was told to begin hormonal therapy including taking vitamin D, C, and B12. Some of these eventually do help with the tremors, and the end goal is to make them go away after months. I'd go see a chronic illness specialist to start hormonal therapy if you haven't.
I truly hope you see this comment and are willing to do some research on SE of the “V” in PD patients. Long story short, my mom has PD. She immediately limited places she went when “C” started. She dutifully got the “P” “V” as soon as it was available for the Senior population. The first set (of two within the required timeframe) seemed to be fine. The second one caused severe fatigue, body aches/fever for about 24 hrs. After that she was fine. Then she got the 3rd “V” and within a few days, I witnessed a significant increase PD symptoms. Literally all the typical PD symptoms, walking much slower, freezing, problems getting up from a seated position, Dyskinesia etc. The only typical PD symptom that was impacted, but not as significant was her tremors. It’s important to note that her PD was managed pretty well through DBS that was done about 10 years ago and Lev/Carb long acting form. She has always exercised and and eaten very healthy, her Dr is recognized as one of the top PD doctors here and is always training interns whom she tells that my mom is the ideal PD patient. The issues described above haven’t subsided. I find the timing of the significant change of her PD pretty much right after the last V to be concerning and really struggle to believe it is just normal progression given the circumstances. I have tried to do research and have seen some stories of similar situation, but many resolved on their own within a week or two, to a couple months. I truly wonder if there isn’t a relatively high amount of “underreporting” given the age of the vast majority of PD patients age group. My mom didn’t put the two together and she is an extremely intelligent woman. PD is awful and I know at least for my mom, she has always struggled emotionally with having PD as well as thinking/talking about worsening symptoms. I would imagine others are like this as well. Anyway, I have been able to find a lot of info about what “C” does to some people in regards to PD but would really like to see someone that cares 😉 research whether 3rd “V” ( or more), has been found to negatively impact those with pre-existing PD.
Correlation is not causation. You have no real evidence that the symptoms are related to the shot. It could be something else. Time is not evidence especially as the same exact shots did not cause the symptoms the first two times. For all you know she got an asymptomatic case of Covid, and the virus caused the issue. Or it could be another virus. The only thing you really know is that you don't know.
I had ET from ages 18-38 (currently) with perhaps 20% progression the entire time. After contracting the virus a couple months ago (in an unusually light case of it, vs the first time I got it and it sidelined me for a week), the tremor suddenly became so bad, I sought medication treatment for the first time. The tremor has since stuck around, just as bad, for 2 months now. I don't think it will be going away at this point. The correlation with my illness was noteworthy.
So my head shakes occasionally now. I had covid last October (really bad, lost taste and smell) and again in January (more then likely omicron variant). These tremors started happening a few months ago. I figured it was from covid because I never had this before then. I can feel and notice it if I'm focusing on something intently. Glad to know there are others. I want to cry. I'm too young to be shaking my head like an old parkinson's patient. The government and these scientists who made this crap in a lab and are not held accountable are to blame.
post vaccine damage .The untested vaccine is what has made you ill. Have a look around you and see all the people who have taken the clot shot and see how many who have not taken it have the same symptoms you have and far worse than you . If you take another shot you will go down hill very fast .Dont do it !!
I'm sorry to hear about your experience. I just developed a tremor as well, and it's spreading. My head just started to as well, occasionally. I got back into running, and my core and neck feel stronger now. Less weak and wobbly, i want to encourage you to become your own nutritionist and address any health deficiencies. It helps me feel like I'm healing.
I just wanna say “yay”, I finally finished all the videos re ET and PTSD. Now I’ll join the live FB sessions. I’ve never appreciated a doctor more. And I truly feel your care. I think I should visit my friends in Fayetteville more often and become your patient 😊. Wishful thinking.
Thank you for the podcast. I too have an essential tremor and have had for year. Left hand and legs ( when bending knees) tremble. Hx of cervical fusion post MVA. Have always been very fit and did years of outdoor rock climbing. Am now 64 and do lots of Bushwalking and eat as healthy as is possible with minimal processed foods. Tremor is annoying but have not sought medical treatment for it. Great grandmother and grandmother both had Parkinson's Disease but mostly in their 80's so always presumed that this was what I was destined for but your podcasts have made me realise that this fits more with ET. I chose not to receive the vaccines as I had seen people online that had terrible, uncontrolled tremors post vaccine and this scared the hell out of me. Had Covid (mildl symptoms- phlegm and lost smell and taste for a few weeks) but no changes to tremors. Something that I found interesting recently ( thought you might be interested in but related to PD) was a lady by the name of Daphne Bryan who wrote a book about halting Parkinson's using B1!!! Only just listened to her today but appears to have some research backing. She certainly had good results. Thank you again. Live in Australia.
For anyone recently developing essential tremors, I recommend going to do hormonal therapy with a doctor that specializes in chronic disorders. I was told I have, Hypothyroidism, Adrenocortical Insufficiency, Testicular Hypofunction and Hypercalcemia from post-covid. So I'm now on medication for my thyroid and testosterone. Most doctors do not check for the hormones they need to, and when I talked to my doctors outside the specialist they didn't think anyone was wrong when they read my blood charts even after. You gotta get the right doctor. I ended up taking Clomiphene and Liothyronine and Vitamin C, D, and B12 to help reduce tremors and all muscle-joint pain. It is helping and the doctor told me if you get in early enough you can reverse this nightmare.
I was fine before COVID. However I did notice that my writing was deteriorating before COVID and I lost my balance about a year before COVID. But there was no tremor. I was writing and taking notes for work before COVID and was using the notes for reports. It was fine. I have had 2 bouts of COVID since and 1 flu symptom. About a year ago I noticed a slight tremor in my left hand that spread to my right hand. The right hand is slight but put a pen in my hand it becomes major. I have noticed that with anxiety my tremor becomes more pronounced. I don't think it is treatable since it is not a major problem. If I use a weighted pen, my writing improves so I can write a check. I have no problem typing. I don't want treatment but I am watching this thing progress. Though caffeine is bad for ET, when I drink coffee, my tremor is less. Coffee calms me down. Maybe that is why. It is a complex phenomenon and that is why it intrigues me. I am sure it will progress,
My partner was diagnosed with ET 5 years ago. He has DBS a year ago which has helped very slightly with tremors of his hands, but then he developed leg tremors and balance problems. 5 weeks ago he had covid (omicron ba4/5) and it has definitely affected the whole of his central nervous system. His hand shaking is much worse, sometimes lasting all day without respite, both shoulders shake, his yes yes head tremor is worse and his balance is dreadful. He can no longer climb stairs and often cannot feed himself at all. He becomes dehydrated due to being unable to drink due to tremors. Both he and I are hoping things will improve gradually, but most days we are quite despondent. He sleeps around 14 hours each day..the tremors wear him out but I think he’s also depressed.
Yes it’s worsened after Covid even though I was on Romeron which was helping at the time until I got infected. I’m 56. My head tremor is very bad . I’ve had it since age 5 after eating potatoes in a garden recently sprayed with pesticide between 1971-72
I have ET, I take Propranolol daily, and work as a Dental Hygienist. The propranolol has worked so wonderfully in controlling my tremor, and allowing me to continue working. Almost a month ago, I got Covid, and I’ve noticed that my tremor is not as controlled as it was with the propranolol. Hoping this gets better over time. Just checking if this is common.
Thank you for the update! Is it only viral infections or do bacterial infections such as strep, cause similar neurological issues? Also, I appreciated your video on ET and alcohol. Could you please research ET and cannabis? Thanks again for all you do AND many thanks to Ms. Carrie Frye in your office for emailing me some very helpful information. Blessings, Lesley Hall
Since having covid I have what feels like a constant current running through my body and now have been diagnosed with essential tremor. Its such a drag and exhausting to feel like you are ON all the time. Its either covid related or vaccine related me thinks.
post vaccine damage .The untested vaccine is what has made you ill. Have a look around you and see all the people who have taken the clot shot and see how many who have not taken it have the same symptoms you have and far worse than you . If you take another shot you will go down hill very fast .Dont do it !!
I got dx with ET after getting dx with long C. My partner said he had seen a super slight no shake when I focused two years before, off and on. But now, (I'm 4 months in to LC), it goes away when I am doing better and comes back obviously when I have a PEM. My doc says its just ET, but it is obviously tied to inflammation with LC.
Could you do a session on the full range of symptoms that go with ET please. I’ve had ET since childhood and always believed that the hand tremors were all there was to it. My tremors have definitely gotten worse over the years and now in my 60s it’s showing up in my head and the rest of my body.
post vaccine damage .The untested vaccine is what has made you ill. Have a look around you and see all the people who have taken the clot shot and see how many who have not taken it have the same symptoms you have and far worse than you . If you take another shot you will go down hill very fast .Dont do it !!
@@carmogil post vaccine damage .The untested vaccine is what has made you ill. Have a look around you and see all the people who have taken the clot shot and see how many who have not taken it have the same symptoms you have and far worse than you . If you take another shot you will go down hill very fast .Dont do it !!
I have a 18 month old daughter who post covid as been diagnosed with intentional tremors and ataxia and after weeks of waiting for a neuro appointment we were admitted to the hospital for 2 weeks within 10 min of meeting with him. But we were released from the hospital with no answeres and no actual diagnosis being told that they need to have second opinions and her checked out somewhere else.. We are leaving oklahoma for ft worth Texas to see another specialist in a few days to try to get answers. It has been 6 months and she is still having these issues with no idea how to help as a parent...how can all this be treated so lightly in a young child...
Speculatory: coming from someone with myalgic encephalomyelitis or mecfs, associated muscle and spinal chord inflammation, then the information as to the number of long covid that is actually mecfs - so thats my basis for potential connection. (Some) People with mecfs are finding an improvement with use of TVNS based on possible impact of mecfs on the nervous system and specifically the vagus nerve - which made me curious if there may also be a vagus nerve connection in ET and IF so would ET possibly benefit from tvns or similar ??
post vaccine damage .The untested vaccine is what has made you ill. Have a look around you and see all the people who have taken the clot shot and see how many who have not taken it have the same symptoms you have and far worse than you . If you take another shot you will go down hill very fast .Dont do it !!
I live in an over 55 community. A few months ago, a neighbor in her early 70s just started having tremors. Shes been going thru all kinds of tests and The doctors have not diagnosed her as having ET but, to me, her symptoms are very similar. I am not a doctor nor do I have any medical background. My first thought was, if theres a connection to Covid. I really appreciate this post of yours!! So, I'm curious: Since there questions being asked about a Covid connection, are there also questions being asked about connection to vaccines or boosters? It's a logical question to me. Thank you. Hope to hear some response to this.
Thank you very much. I just tested positive for covid a week ago. Now my body is shaking I feel like there is an earthquake inside of me. It’s hard to pick up or do anything without shaking.
Hi, I'm 61 and have delt with progressing ET since about 30. I had outstanding tremor control since DBS surgery in 2016. I noticed tremor worsening the past year... But since having covid my dormant hand, arm shakes worse than ever. (I can also hear a humming with any eye movements)... anyway I'm having a new battery (different manufacture) installed in 2 weeks. I pray it helps but fear it wont... I can't even write at this point. Anyway thank you.
My tremors started within a couple of months of me having covid. It could have been coincidence as I was already experiencing fatigue and heavy feeling limbs before but I've wondered if it made things progress. I'm waiting to see a neurologist now.
post vaccine damage .The untested vaccine is what has made you ill. Have a look around you and see all the people who have taken the clot shot and see how many who have not taken it have the same symptoms you have and far worse than you . If you take another shot you will go down hill very fast .Dont do it !!
Have occasionally dealt with ET over the years...my dad and grandfather had it. After the vaccine...definitely worse! I can't pick up glasses of liquid without shaking now.
Im 63 and have had a diagnosis of tremors since 17. They called them inherent tremors them. Family history of them in multiple relatives, grandfather, aunts, uncles, cousins. Dealt with them thru life, Drs tried the new biggest thing over the years, nothing worked. Was put on propanolol 20 mg about 10 yrs ago and that helped. Been on in since. Caught covid 2 weeks ago. 3 days ago the tremors from H*#% started. feels like I'm a bowl of jello on a vibrating water bed. Only thing helping me is medical marijuana in a hybrid, I can't hold a spoon, cup unless i want to wear it It's awefull and I'm scared. Sorry don't drink but if this keeps up I may start. Also have lyme that didn't go away so that complicates things but I'm in 3 yrs with that and I haven't had worsening symptoms from it, just now after covid. Thank you for your videos btw, they have helped not only me, but family who now have a better understanding of what I'm going thru.
Thank you Dr. Sullivan, for the heads up on the possibility of viral exacerbating ET....BTW, I have had some success in mitigating the effects of ET through neuro feedback....Have you or anyone else had experience in this area?
Thank you...Another good reason to be cautious about contracting viral diseases....BTW, have you had anyone comment on teeth chattering with ET?....I have mild ET and when I hold my teeth a hairs width apart they chatter....Also are you aware of any successful use of neurofeedback for mitigating ET?
Thanks for your video. I (57f) was just recently diagnosed with ET. I see a distinct line of before covid with absolutely no tremors to during and after covid with developing tremors (infection at the end of June 2022). As it turns out my father has a mild tremor in his hands that is not PD, but he never asked his doc about it. Could covid have triggered my ET? Could it have turned on the genes? In general the tremors are not bad. Some days I have barely any and other days are filled with them, but without a high amplitude. It becomes bothersome when I eat soup or cereals and don't ask me to spear peas with my fork. It first started with a buzzing feeling in my body during the acute phase of covid then tremors started to manifest themselves. Stress, both physical and mental, worsen the tremors. I will certainly keep masking to avoid any more covid infections as well as keeping other viruses at bay. I also keep up with my vaccines. I am bummed that I have to look forward to it progressing, but happy that it will not kill me any faster than life will.
ET can be triggered by covid. I was put on propanolol and muscle relaxants for the tremors. Then I was told to begin hormonal therapy (Hypothyroidism Adrenocortical Insufficiency) including taking vitamin D, C, and B12. Some of these eventually do help with the tremors, and the end goal is to make them go away after months. I'd go see a chronic illness specialist to start hormonal therapy if you haven't.
@@MartyMD we're starting to explore medication. My ET is not severe enough to warrant a neurologist according to the guidelines. She ran labs to rule out other potential issues. Currently the approach is try, evaluate, adjust.
Thank toy very much for this warning -- so far I have not gotten COVID and I will remain vigilant. I have enjoyed not having a cold or the flu in the last couple of years and had come to the same conclusion -- that masking and hand washing are some practices that I will retain. I have purchased your longer ET seminar. When I was diagnosed I was having a swallowing problem (almost daily choking on water or saliva but not food). The neurologist said this was one aspect of ET. So far I have not heard anyone else bring swallowing problems up. Any thoughts? Thanks for your ongoing interest in ET.
After having COVID ( I have had all 3 variety’s), noticed a slight tremor in my right hand after the Delta variant. I play Pickelball and noticed I could not control my forehand shot with a cocked grip and have had to modify. My mom had tremors in her later years..
I have the same issue with tennis which were mild ET. In the past year, it has gotten MUCH worse, particularly noticeable when I “cock” the grip. Same with holding a cup at that angle. It’s much worse in the past year, to the extent that I may have to quit tennis. I don’t think I’ve had Covid - but I have 3 of the shots. Wonder if the vaccine has an impact?
post vaccine damage .The untested vaccine is what has made you ill. Have a look around you and see all the people who have taken the clot shot and see how many who have not taken it have the same symptoms you have and far worse than you . If you take another shot you will go down hill very fast .Dont do it !!!
After getting Covid very early in pandemic I lost tase and smell developed welts on my lip which left scarring also inner vibration feelings insomnia I have auditory sensitivity cold patches on my face and had very tight band feeling round my head land forehead for a year I still refused any injection so also got the omicron variant which wasn’t as bad after 2 years I’m about 90% normal it’s been difficult but has taught my a lot about my mind I take supplements now for calming effects Covid pushed my mind to dark places but the inner me new something was wrong I do believe this is man made and attacks the central nervous system to incapacitate creativity and production output
My partner was diagnosed with ET 5 years ago. He has DBS a year ago which has helped very slightly with tremors of his hands, but then he developed leg tremors and balance problems. 5 weeks ago he had covid (omicron ba4/5) and it has definitely affected the whole of his central nervous system. His hand shaking is much worse, sometimes lasting all day without respite, both shoulders shake, his yes yes head tremor is worse and his balance is dreadful. He can no longer climb stairs and often cannot feed himself at all. He becomes dehydrated due to being unable to drink due to tremors. Both he and I are hoping things will improve gradually, but most days we are quite despondent. He sleeps around 14 hours each day..the tremors wear him out but I think he’s also depressed.
My partner was diagnosed with ET 5 years ago. He has DBS a year ago which has helped very slightly with tremors of his hands, but then he developed leg tremors and balance problems. 5 weeks ago he had covid (omicron ba4/5) and it has definitely affected the whole of his central nervous system. His hand shaking is much worse, sometimes lasting all day without respite, both shoulders shake, his yes yes head tremor is worse and his balance is dreadful. He can no longer climb stairs and often cannot feed himself at all. He becomes dehydrated due to being unable to drink due to tremors. Both he and I are hoping things will improve gradually, but most days we are quite despondent. He sleeps around 14 hours each day..the tremors wear him out but I think he’s also depressed.
I have ET and i remember one of the covid vaccines (in England) gave me really bad shaky hands temporarily which was scary. My father gave me covid but I don’t think it has worsened my ET in any way.
I've had essential tremor for 50 years... I am now 66. After having covid and then the vaccine, my tremor became so bad I had difficulty brushing my teeth, eating, putting on chapstick... it was so bad I ended up on disability. After a couple of years, it was getting better. I wondered if I could get off disability. Then I got another bout of a virus I didn't get tested for but became super fatigued. That virus made my tremor exponetially worse even more than the first time and the vaccine had. I now pretty much feel crummy most of the time and tremor makes life a struggle. I pray it will recover some again. When I did have covid I never got it in my lungs, just felt fluish.
Omg I feel for u this condition is one of the worst possible things u can have however I urge u to get Deep brain stimulation, u will at least be able to live out the rest of ur days in some comfort. Also idk what u believe about God but I have seen some amazing testimonies of people getting healed in Jesus name what does it hurt to ask him for help regardless if u currently believe or not, he has helped and healed me without him I would be lost without no hope. But regardless I will pray for you.
Here’s the full story for me (mostly): It all started with me having a quasi-locked jaw late January 2022, alongside some mild pain in the masseter region. I was diagnosed with TMD (TMJ). Shortly after I felt pain in my right and left arm, alongside with my ankles. So, I went to a rheumatologist and neurologist to check if I had arthritis or a neurological condition. There was no arthritis in my blood work or X-ray, and my neurologist found that my cervical spine had mild-moderate stenosis. So, I thought that was what was causing some of my symptoms and took muscle relaxants and gabapentin for them. But a months later I tried getting off my muscle relaxants and gabapentin (after doing physical therapy and being on them for three months), and tremors started to develop in the back of my neck. Then they went to my shoulders, hands, and lower back. The muscle arounds the exterior hamstring region started getting stiff and weak. I had to get back on the muscle relaxants because without them the tremors would be extremely debilitating and cause severe panic attacks that woke me up - I had developed horrible nightmares too. My mouth suddenly got dry, my legs, arms and back got stiff, muscle twitching, I had heart palpations earlier in (recently stopped), night chills as well occurred (that now stopped), and head vibrations. During this treatment I also started on a CPAP machine originally thinking that I was clenching/grinding during night, causing the TMJ to get worse - and the sleep machine causing me to get even more tremors in the back of my neck when it presses on it overnight. The problems are just developing overwhelmingly fast.
I did an EEG, EMG, a full blood panel, and even a DaTScan to check if I had Parkison’s disease. None of them showed anything. The only thing they’ve diagnosed so far is TMD and the cervical stenosis. The neurologist doesn’t know what’s going on but says it could be essential tremors. I now think it's long covid and heart and respiratory issues have started and it's getting very scary. I think the reason why I got TMJ was because of respiratory issues caused by long covid.
How are you doing now
@@amarmeziani5987 I'm on hormonal therapy right now, which has helped with the joint-muscle pain, and should get be back to normal eventually, according to the doctor. The tremors and panic attacks have not stopped yet if Im unmedicated.
I wish I'd found you sooner! I was diagnosed with ET 20+ years ago. It was getting worse, but symptoms took a giant leap forward when I got COVID over the 2021-22 holiday (despite all due precautions!). I increased my reliance on daily 10 mg propranolol. Then in July neurologist put me on 60mg ER propranolol, which I could not tolerate. Then he told me my real problem is that I have Parkinson's. Several deep dives down winding rabbit holes later (relying primarily on PubMed), I discover that prolonged use of propranolol can in fact precipitate Parkinsonism! Long story short: I have an appointment with a movement disorder specialist in February and until then I will just live with my symptoms, eating vegan, exercising vigorously, getting back into meditation. It's a journey, Dr. Sullivan. Thank you for helping us along!
How are you doing now
Most of my life (I'm 56) I have had ET that has been very occasional & mild. It's been made worse with caffeine & alcohol consumption. However, I noticed pretty quickly after contracting COVID back in October that my ET became worse and more evident 24/7. It hasn't gone back to what it was before but has lessened somewhat.
Natural herbs have cured so many illness that drugs and injection cant cure. I've seen the great importance of natural herbs and the wonderful work they have done in people's lives. i read people's testimonies online on how they were cured of herpes, HIV, diabetics etc by Dr Oje Abacha on his UA-cam channel.
It became worst after your covid shot, not before .
@@sandyseale1 not the shots, after actually having Covid
Same!!!
I just came across your amazing video after googling if covid worsens tremors... I had covid the first of Aug. Tested positive 8.01 and actually had headaches and body aches prior with fatigue but thought it was my fibromyalgia flaring. I continued to test positive through 8.13.22. In the last week my just annoying hand tremors I've had for years with no diagnosis have worsened to the point its even hard for me to use laptop for work... granted my stress of life has increased as well but I've never experienced this in my 50 yrs here dealing with stress. My heart has also been racing pretty much all day as soon as I wake up. BP has been higher than normal and my pulse is averaging at 100. My restless leg syndrome has also worsened in the last month. Even during the day my legs shake. I may note that my covid just had a touch of respiratory symptoms..mine was EXCRUTIATING back and headache for 4 solid days and nights with very little sleep due to intense pain and severe diarrhea for 12 days straight. Now the only time of the day when I don't shake is when I come home and pour my glass of wine like I have for decades. I would love to find somewhere in Arkansas where I could sign up for research, etc. I feel close to desperate. TIA for any guidance and many thanks for your amazing video!!
I was put on propanolol and muscle relaxants for the tremors. Then I was told to begin hormonal therapy including taking vitamin D, C, and B12. Some of these eventually do help with the tremors, and the end goal is to make them go away after months. I'd go see a chronic illness specialist to start hormonal therapy if you haven't.
I'm not sure, but I think my cervical dystonia has to do with covid. I had symptoms of covid when the pandemic started, but couldn't get tested here in Germany, because I couldn't proof contact to someone positive. Then the headshaking began mildly and I thought it had to do with hormones (because of menopause) and started to take hormones. I got 3 vaccinations over the following 2 years and was tested positive in July 22. The head shaking got worse over the past 2 years. Who knows if it is due to covid, vaccination, hormones or genetics? Hopefully you and science will show one day.
Thank you, thank you. You have no idea how much relief listening to your lectures have given me as an Essential Tremor sufferer, all the other symptoms that I have noticed like insomnia and disappearing words are real and not the sign of early onset alzheimers . Yes, COVID did affect my ET deleteriously and definitely increased the amplitude of my tremor even though I had atypical COVID with none or very little cough and congestion but the worst stomach and bowel problems that I have ever had. ı was in agony for days but that is unimportant in relation to your work on ET but it has left me with a very delicate lower digestive tract. I did have the virus. Yes the embarrassment factor is huge especially being middle class British where the importance of good table manners is instilled at a very early age. I am one of your ET investigators and have read copiously on the subject but only recently has there been anything worth reading and as you suggest ET is very much the poor cousin to MS and Parkinsons. I would be interested on your thoughts on Gamma Knife and Focussed Ultrasound as treatments as I am considering having one or the other. I live in Turkey and Gamma Knife is available but not Ultrasound yet although it is slated to be available before the end of this year. do you think it is a step too far for preemptive surgery before my tremor amplitude increases as it is very likely to?
I suspect i have ET or something like it. I first noticed a tremor as I was recovering from my first covid infection. 6 months later, I had covid a second time and during that recovery, the tremor worsened to the point where i can no longer do my job or even stand for long periods of time. its been a month and a half with little to no improvement.
I was diagnosed with ET after my second vaccination. My quality life has not been the same since 😔
My ET started soon after my 4th booster vaccination for Covid. I’ve heard from 3 separate doctors who have been taking care of my health confirmed that they see patients complaining about ET that it started after being vaccinated, but not all get it. I wonder if there is any scientific study done for this.
Here, finding this video after concern and searching for anything related to sudden onset tremors related to COVID. ...2 years after this video was published. I came down with (began symptoms) covid a week and a half ago. Tested positive a couple days after symptom onset. negative test yesterday and starting to feel better without fever. Today, suddenly when I tried to lift something slightly heavy I noticed a sudden tremors in my hand and arm when I gripped. I figured I am just weak from being sick. I paused and tried again, tremor again. I waited a while and tried to forget about it then grabbed a half gallon of liquid, tremor again. So I sat down and tried a few things that didn't require lifting or strength, persay. The tremor is replicated when I simply squeeze my hand. I just did the postural tremor test, lifting my hands above my head...no tremor from that.
Going to keep looking at info and keeping an eye on this sudden neurological sign. Thanks for your video!
I came to your video after noticing that my essential tremor has become worse over the last week as I've been dealing with COVID. I've never noticed an increase in the tremors with COVID vaccinations or other viral infections.
I have had mild ET for at least 20 years. On my 80th birthday, 4 months ago, I was diagnosed with Type “A” influenza and Rhino virus which lasted 8 weeks The ongoing symptoms of ET have been noticeable worse .
I’ve had a tremor in my hands (started in right and then left as well) since I was 18, I’m now 46. Around the age of 40, I got a bad case of hpylori, during this time my head tremor started, then after COVID my hand tremors got significantly worse alongside an increase in trying to find words. Thank you for the information, it’s great to learn more about something that has been in my life for so long!
I had COVID in early December of 2021. For me, aside from the fever, fatigue, confusion and GI issues, my primary symptom was back pain. I’ve never felt back pain so intense. By the end of January, most symptoms had declined, but I noticed my hands were shaking all the time now, getting worse when I tried working with them. I also frequently experience the sensation of holding on to a live wire in both hands, from fingertip to elbow. I went to the doctor and was diagnosed with ET. It has been this way ever since. Not worse, but not better. It’s just the new normal now.
I was put on propanolol and muscle relaxants for the tremors. Then I was told to begin hormonal therapy including taking vitamin D, C, and B12. Some of these eventually do help with the tremors, and the end goal is to make them go away after months. I'd go see a chronic illness specialist to start hormonal therapy if you haven't.
@@MartyMD do you have et tremor now? How you get better. I have et after covid.
Do you have et tremor now. How you cure? Please let me know. My et bother me a lot after I got covid.
@@xiaoyichen177 Yes, I unfortunately still have the tremors. I’m sorry to hear yours are bothering you so much. I definitely know how you’re feeling!
@@angrybatvoice do you know any therapy for this. My doctor do nothing about it. How you handle the job now?
I truly hope you see this comment and are willing to do some research on SE of the “V” in PD patients. Long story short, my mom has PD. She immediately limited places she went when “C” started. She dutifully got the “P” “V” as soon as it was available for the Senior population. The first set (of two within the required timeframe) seemed to be fine. The second one caused severe fatigue, body aches/fever for about 24 hrs. After that she was fine. Then she got the 3rd “V” and within a few days, I witnessed a significant increase PD symptoms. Literally all the typical PD symptoms, walking much slower, freezing, problems getting up from a seated position, Dyskinesia etc. The only typical PD symptom that was impacted, but not as significant was her tremors. It’s important to note that her PD was managed pretty well through DBS that was done about 10 years ago and Lev/Carb long acting form. She has always exercised and and eaten very healthy, her Dr is recognized as one of the top PD doctors here and is always training interns whom she tells that my mom is the ideal PD patient.
The issues described above haven’t subsided. I find the timing of the significant change of her PD pretty much right after the last V to be concerning and really struggle to believe it is just normal progression given the circumstances. I have tried to do research and have seen some stories of similar situation, but many resolved on their own within a week or two, to a couple months. I truly wonder if there isn’t a relatively high amount of “underreporting” given the age of the vast majority of PD patients age group. My mom didn’t put the two together and she is an extremely intelligent woman. PD is awful and I know at least for my mom, she has always struggled emotionally with having PD as well as thinking/talking about worsening symptoms. I would imagine others are like this as well.
Anyway, I have been able to find a lot of info about what “C” does to some people in regards to PD but would really like to see someone that cares 😉 research whether 3rd “V” ( or more), has been found to negatively impact those with pre-existing PD.
Correlation is not causation. You have no real evidence that the symptoms are related to the shot. It could be something else. Time is not evidence especially as the same exact shots did not cause the symptoms the first two times. For all you know she got an asymptomatic case of Covid, and the virus caused the issue. Or it could be another virus. The only thing you really know is that you don't know.
I had ET from ages 18-38 (currently) with perhaps 20% progression the entire time. After contracting the virus a couple months ago (in an unusually light case of it, vs the first time I got it and it sidelined me for a week), the tremor suddenly became so bad, I sought medication treatment for the first time. The tremor has since stuck around, just as bad, for 2 months now. I don't think it will be going away at this point. The correlation with my illness was noteworthy.
So my head shakes occasionally now. I had covid last October (really bad, lost taste and smell) and again in January (more then likely omicron variant). These tremors started happening a few months ago. I figured it was from covid because I never had this before then. I can feel and notice it if I'm focusing on something intently. Glad to know there are others. I want to cry. I'm too young to be shaking my head like an old parkinson's patient. The government and these scientists who made this crap in a lab and are not held accountable are to blame.
post vaccine damage .The untested vaccine is what has made you ill. Have a look around you and see all the people who have taken the clot shot and see how many who have not taken it have the same symptoms you have and far worse than you . If you take another shot you will go down hill very fast .Dont do it !!
I'm sorry to hear about your experience. I just developed a tremor as well, and it's spreading. My head just started to as well, occasionally.
I got back into running, and my core and neck feel stronger now. Less weak and wobbly, i want to encourage you to become your own nutritionist and address any health deficiencies. It helps me feel like I'm healing.
Same
I just wanna say “yay”, I finally finished all the videos re ET and PTSD. Now I’ll join the live FB sessions. I’ve never appreciated a doctor more. And I truly feel your care. I think I should visit my friends in Fayetteville more often and become your patient 😊. Wishful thinking.
Thank you for the podcast. I too have an essential tremor and have had for year. Left hand and legs ( when bending knees) tremble. Hx of cervical fusion post MVA. Have always been very fit and did years of outdoor rock climbing. Am now 64 and do lots of Bushwalking and eat as healthy as is possible with minimal processed foods. Tremor is annoying but have not sought medical treatment for it. Great grandmother and grandmother both had Parkinson's Disease but mostly in their 80's so always presumed that this was what I was destined for but your podcasts have made me realise that this fits more with ET. I chose not to receive the vaccines as I had seen people online that had terrible, uncontrolled tremors post vaccine and this scared the hell out of me. Had Covid (mildl symptoms- phlegm and lost smell and taste for a few weeks) but no changes to tremors. Something that I found interesting recently ( thought you might be interested in but related to PD) was a lady by the name of Daphne Bryan who wrote a book about halting Parkinson's using B1!!! Only just listened to her today but appears to have some research backing. She certainly had good results. Thank you again. Live in Australia.
For anyone recently developing essential tremors, I recommend going to do hormonal therapy with a doctor that specializes in chronic disorders.
I was told I have, Hypothyroidism, Adrenocortical Insufficiency, Testicular Hypofunction and Hypercalcemia from post-covid. So I'm now on medication for my thyroid and testosterone. Most doctors do not check for the hormones they need to, and when I talked to my doctors outside the specialist they didn't think anyone was wrong when they read my blood charts even after. You gotta get the right doctor. I ended up taking Clomiphene and Liothyronine and Vitamin C, D, and B12 to help reduce tremors and all muscle-joint pain. It is helping and the doctor told me if you get in early enough you can reverse this nightmare.
I was fine before COVID. However I did notice that my writing was deteriorating before COVID and I lost my balance about a year before COVID. But there was no tremor. I was writing and taking notes for work before COVID and was using the notes for reports. It was fine. I have had 2 bouts of COVID since and 1 flu symptom. About a year ago I noticed a slight tremor in my left hand that spread to my right hand. The right hand is slight but put a pen in my hand it becomes major. I have noticed that with anxiety my tremor becomes more pronounced. I don't think it is treatable since it is not a major problem. If I use a weighted pen, my writing improves so I can write a check. I have no problem typing. I don't want treatment but I am watching this thing progress. Though caffeine is bad for ET, when I drink coffee, my tremor is less. Coffee calms me down. Maybe that is why. It is a complex phenomenon and that is why it intrigues me. I am sure it will progress,
My partner was diagnosed with ET 5 years ago. He has DBS a year ago which has helped very slightly with tremors of his hands, but then he developed leg tremors and balance problems. 5 weeks ago he had covid (omicron ba4/5) and it has definitely affected the whole of his central nervous system. His hand shaking is much worse, sometimes lasting all day without respite, both shoulders shake, his yes yes head tremor is worse and his balance is dreadful. He can no longer climb stairs and often cannot feed himself at all. He becomes dehydrated due to being unable to drink due to tremors. Both he and I are hoping things will improve gradually, but most days we are quite despondent. He sleeps around 14 hours each day..the tremors wear him out but I think he’s also depressed.
Is a mri with or without contrast best
Is there a recording of the four hour conference?
yes! Its on our web page: www.icfyb.com/webinar
Yes it’s worsened after Covid even though I was on Romeron which was helping at the time until I got infected. I’m 56. My head tremor is very bad .
I’ve had it since age 5 after eating potatoes in a garden recently sprayed with pesticide between 1971-72
Any treatments?
I have ET, I take Propranolol daily, and work as a Dental Hygienist. The propranolol has worked so wonderfully in controlling my tremor, and allowing me to continue working. Almost a month ago, I got Covid, and I’ve noticed that my tremor is not as controlled as it was with the propranolol. Hoping this gets better over time. Just checking if this is common.
Thank you for the update! Is it only viral infections or do bacterial infections such as strep, cause similar neurological issues?
Also, I appreciated your video on ET and alcohol. Could you please research ET and cannabis?
Thanks again for all you do AND many thanks to Ms. Carrie Frye in your office for emailing me some very helpful information. Blessings, Lesley Hall
I had Covid 3 months ago and my tremors have definitely got worse. x
Thank you for your comment. I have such bad tremors after covid.
Since having covid I have what feels like a constant current running through my body and now have been diagnosed with essential tremor. Its such a drag and exhausting to feel like you are ON all the time. Its either covid related or vaccine related me thinks.
post vaccine damage .The untested vaccine is what has made you ill. Have a look around you and see all the people who have taken the clot shot and see how many who have not taken it have the same symptoms you have and far worse than you . If you take another shot you will go down hill very fast .Dont do it !!
How can i contact you?
I got dx with ET after getting dx with long C. My partner said he had seen a super slight no shake when I focused two years before, off and on. But now, (I'm 4 months in to LC), it goes away when I am doing better and comes back obviously when I have a PEM. My doc says its just ET, but it is obviously tied to inflammation with LC.
Could you do a session on the full range of symptoms that go with ET please. I’ve had ET since childhood and always believed that the hand tremors were all there was to it. My tremors have definitely gotten worse over the years and now in my 60s it’s showing up in my head and the rest of my body.
I have covid et. shaking inside and outside. what can I do?
I am too... about 5 week ago...
post vaccine damage .The untested vaccine is what has made you ill. Have a look around you and see all the people who have taken the clot shot and see how many who have not taken it have the same symptoms you have and far worse than you . If you take another shot you will go down hill very fast .Dont do it !!
@@carmogil post vaccine damage .The untested vaccine is what has made you ill. Have a look around you and see all the people who have taken the clot shot and see how many who have not taken it have the same symptoms you have and far worse than you . If you take another shot you will go down hill very fast .Dont do it !!
I am similar, about 5-6 weeks of it and no improvement to speak of
@@SleepyPurpleFox you got vaccinated?
I have a 18 month old daughter who post covid as been diagnosed with intentional tremors and ataxia and after weeks of waiting for a neuro appointment we were admitted to the hospital for 2 weeks within 10 min of meeting with him. But we were released from the hospital with no answeres and no actual diagnosis being told that they need to have second opinions and her checked out somewhere else.. We are leaving oklahoma for ft worth Texas to see another specialist in a few days to try to get answers. It has been 6 months and she is still having these issues with no idea how to help as a parent...how can all this be treated so lightly in a young child...
I don't see the link to the webinar on ET?
Speculatory: coming from someone with myalgic encephalomyelitis or mecfs, associated muscle and spinal chord inflammation, then the information as to the number of long covid that is actually mecfs - so thats my basis for potential connection. (Some) People with mecfs are finding an improvement with use of TVNS based on possible impact of mecfs on the nervous system and specifically the vagus nerve - which made me curious if there may also be a vagus nerve connection in ET and IF so would ET possibly benefit from tvns or similar ??
I have had Covid twice and then had shingles in my head since December 2021 and still hurts. Yes my shakes doubled! Primidone does not work .
post vaccine damage .The untested vaccine is what has made you ill. Have a look around you and see all the people who have taken the clot shot and see how many who have not taken it have the same symptoms you have and far worse than you . If you take another shot you will go down hill very fast .Dont do it !!
I don't see the link to the webinar??
I live in an over 55 community. A few months ago, a neighbor in her early 70s just started having tremors. Shes been going thru all kinds of tests and The doctors have not diagnosed her as having ET but, to me, her symptoms are very similar. I am not a doctor nor do I have any medical background. My first thought was, if theres a connection to Covid. I really appreciate this post of yours!! So, I'm curious: Since there questions being asked about a Covid connection, are there also questions being asked about connection to vaccines or boosters? It's a logical question to me.
Thank you. Hope to hear some response to this.
Thank you very much. I just tested positive for covid a week ago. Now my body is shaking I feel like there is an earthquake inside of me. It’s hard to pick up or do anything without shaking.
Hi, I'm 61 and have delt with progressing ET since about 30. I had outstanding tremor control since DBS surgery in 2016. I noticed tremor worsening the past year... But since having covid my dormant hand, arm shakes worse than ever. (I can also hear a humming with any eye movements)... anyway I'm having a new battery (different manufacture) installed in 2 weeks. I pray it helps but fear it wont... I can't even write at this point. Anyway thank you.
Covid last year Christmas
My tremors started within a couple of months of me having covid. It could have been coincidence as I was already experiencing fatigue and heavy feeling limbs before but I've wondered if it made things progress. I'm waiting to see a neurologist now.
Any update of medicine
since after covid i have my head shaking randomly where i cant control it. but doctors seem to say they got no idea the issue
Any better now? Et gonna go way? Sometimes I feel whole my body is shaking.
@@xiaoyichen177 been going for over 6-8 month uncontrollable and my doctors cant figure whats the issue.. best is to see specialist about it
@@naju332 really? I have same sintoms and others...
Any better?
@@carmogil not at all i stopped paying attention as it comes and goes and trying see specialist. you should see someone about it if it lasts
post vaccine damage .The untested vaccine is what has made you ill. Have a look around you and see all the people who have taken the clot shot and see how many who have not taken it have the same symptoms you have and far worse than you . If you take another shot you will go down hill very fast .Dont do it !!
Have occasionally dealt with ET over the years...my dad and grandfather had it. After the vaccine...definitely worse! I can't pick up glasses of liquid without shaking now.
Im 63 and have had a diagnosis of tremors since 17. They called them inherent tremors them. Family history of them in multiple relatives, grandfather, aunts, uncles, cousins. Dealt with them thru life, Drs tried the new biggest thing over the years, nothing worked. Was put on propanolol 20 mg about 10 yrs ago and that helped. Been on in since. Caught covid 2 weeks ago. 3 days ago the tremors from H*#% started. feels like I'm a bowl of jello on a vibrating water bed. Only thing helping me is medical marijuana in a hybrid, I can't hold a spoon, cup unless i want to wear it It's awefull and I'm scared. Sorry don't drink but if this keeps up I may start. Also have lyme that didn't go away so that complicates things but I'm in 3 yrs with that and I haven't had worsening symptoms from it, just now after covid. Thank you for your videos btw, they have helped not only me, but family who now have a better understanding of what I'm going thru.
Thank you Dr. Sullivan, for the heads up on the possibility of viral exacerbating ET....BTW, I have had some success in mitigating the effects of ET through neuro feedback....Have you or anyone else had experience in this area?
Thank you...Another good reason to be cautious about contracting viral diseases....BTW, have you had anyone comment on teeth chattering with ET?....I have mild ET and when I hold my teeth a hairs width apart they chatter....Also are you aware of any successful use of neurofeedback for mitigating ET?
Any better now?
Does it go away?
@@xiaoyichen177 No
@@xiaoyichen177 No
@@ronaldscott3807 I guess we have to lived like this forever.
Thanks for your video. I (57f) was just recently diagnosed with ET. I see a distinct line of before covid with absolutely no tremors to during and after covid with developing tremors (infection at the end of June 2022). As it turns out my father has a mild tremor in his hands that is not PD, but he never asked his doc about it. Could covid have triggered my ET? Could it have turned on the genes? In general the tremors are not bad. Some days I have barely any and other days are filled with them, but without a high amplitude. It becomes bothersome when I eat soup or cereals and don't ask me to spear peas with my fork. It first started with a buzzing feeling in my body during the acute phase of covid then tremors started to manifest themselves. Stress, both physical and mental, worsen the tremors. I will certainly keep masking to avoid any more covid infections as well as keeping other viruses at bay. I also keep up with my vaccines. I am bummed that I have to look forward to it progressing, but happy that it will not kill me any faster than life will.
ET can be triggered by covid. I was put on propanolol and muscle relaxants for the tremors. Then I was told to begin hormonal therapy (Hypothyroidism
Adrenocortical Insufficiency) including taking vitamin D, C, and B12. Some of these eventually do help with the tremors, and the end goal is to make them go away after months. I'd go see a chronic illness specialist to start hormonal therapy if you haven't.
@@MartyMD I have just started on P yesterday. My doc is quite well versed in this condition as she also has it. 😁
@@WhatNoKaboom good to hear!
@@WhatNoKaboom what did she suggest for you?
@@MartyMD we're starting to explore medication. My ET is not severe enough to warrant a neurologist according to the guidelines. She ran labs to rule out other potential issues. Currently the approach is try, evaluate, adjust.
Thank toy very much for this warning -- so far I have not gotten COVID and I will remain vigilant. I have enjoyed not having a cold or the flu in the last couple of years and had come to the same conclusion -- that masking and hand washing are some practices that I will retain. I have purchased your longer ET seminar. When I was diagnosed I was having a swallowing problem (almost daily choking on water or saliva but not food). The neurologist said this was one aspect of ET. So far I have not heard anyone else bring swallowing problems up. Any thoughts? Thanks for your ongoing interest in ET.
Same😊
After having COVID ( I have had all 3 variety’s), noticed a slight tremor in my right hand after the Delta variant. I play Pickelball and noticed I could not control my forehand shot with a cocked grip and have had to modify.
My mom had tremors in her later years..
I have the same issue with tennis which were mild ET. In the past year, it has gotten MUCH worse, particularly noticeable when I “cock” the grip. Same with holding a cup at that angle. It’s much worse in the past year, to the extent that I may have to quit tennis. I don’t think I’ve had Covid - but I have 3 of the shots. Wonder if the vaccine has an impact?
post vaccine damage .The untested vaccine is what has made you ill. Have a look around you and see all the people who have taken the clot shot and see how many who have not taken it have the same symptoms you have and far worse than you . If you take another shot you will go down hill very fast .Dont do it !!!
After getting Covid very early in pandemic I lost tase and smell developed welts on my lip which left scarring also inner vibration feelings insomnia I have auditory sensitivity cold patches on my face and had very tight band feeling round my head land forehead for a year I still refused any injection so also got the omicron variant which wasn’t as bad after 2 years I’m about 90% normal it’s been difficult but has taught my a lot about my mind I take supplements now for calming effects Covid pushed my mind to dark places but the inner me new something was wrong I do believe this is man made and attacks the central nervous system to incapacitate creativity and production output
My partner was diagnosed with ET 5 years ago. He has DBS a year ago which has helped very slightly with tremors of his hands, but then he developed leg tremors and balance problems. 5 weeks ago he had covid (omicron ba4/5) and it has definitely affected the whole of his central nervous system. His hand shaking is much worse, sometimes lasting all day without respite, both shoulders shake, his yes yes head tremor is worse and his balance is dreadful. He can no longer climb stairs and often cannot feed himself at all. He becomes dehydrated due to being unable to drink due to tremors. Both he and I are hoping things will improve gradually, but most days we are quite despondent. He sleeps around 14 hours each day..the tremors wear him out but I think he’s also depressed.
My partner was diagnosed with ET 5 years ago. He has DBS a year ago which has helped very slightly with tremors of his hands, but then he developed leg tremors and balance problems. 5 weeks ago he had covid (omicron ba4/5) and it has definitely affected the whole of his central nervous system. His hand shaking is much worse, sometimes lasting all day without respite, both shoulders shake, his yes yes head tremor is worse and his balance is dreadful. He can no longer climb stairs and often cannot feed himself at all. He becomes dehydrated due to being unable to drink due to tremors. Both he and I are hoping things will improve gradually, but most days we are quite despondent. He sleeps around 14 hours each day..the tremors wear him out but I think he’s also depressed.