What it feels like to be paralyzed and how phantom sensation tricks you

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  • Опубліковано 21 жов 2024
  • Have you ever wondered what if feels like to be paralyzed and lose sensation of the bottom half of your body? Well if you have, you're not alone. I get asked this question a lot and the answer might surprise you!
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КОМЕНТАРІ • 192

  • @aam50
    @aam50 Рік тому +14

    You absolutely do make sense. I’m not paralysed but your videos have done so much to help me understand what life feels like if you are. You are a great communicator and a true inspiration. Keep it going xx

    • @EmpoweredPara
      @EmpoweredPara  Рік тому +1

      Thank you! That really means a lot ❤️💙!

  • @dubcat4204
    @dubcat4204 Рік тому +10

    Wow... there's so much more to being paralyzed than I ever knew or even imagined. Thank you for explaining this.

  • @endtimeawakening5557
    @endtimeawakening5557 Рік тому +4

    When I try explaining it to perfectly healthy people, I tell them to strap a 100-pound weight to each leg and then enjoy the rest of their day. It's literally like being nailed to the surface of the earth. Add all the bowel and bladder issues, nerve pain, etc., and you're getting close to what this nightmare is all about. I was completely whole and healthy for 38 years prior to my accident, and took it all completely for granted. I'm now Spiritually "born again" in my Spirit and can't fully grasp what it would be like to be "born again" in my body. To regain all that I've lost in my physical body would be a physical "born again" experience for sure. I'm not sure if I'd ever "sit down" ever again if made whole. God bless you all!!! ❤️

    • @EmpoweredPara
      @EmpoweredPara  Рік тому +2

      For some reason my legs don't feel heavy to me... interesting that we are all so different!

  • @ronunderwood8099
    @ronunderwood8099 Рік тому +14

    The way the neurologist explained it to me when I was diagnosed with peripheral neuropathy is that the brain is expecting signals to be coming up those nerves and when they don't arrive it turns up the volume chemically until it starts seeing the electrical noise on the nerves and tries to make sense of that.

    • @cfalkner1012
      @cfalkner1012 Рік тому +2

      Ooh, that’s an excellent description, and makes lots of sense.

    • @EmpoweredPara
      @EmpoweredPara  Рік тому +2

      That's makes so much sense for why I have nerve pain!

  • @jacobistrash5621
    @jacobistrash5621 Рік тому +2

    You explained that perfectly I'm not paralyzed but stumbled on your videos I'm losing my hearing but this is so inspiring to me your so strong keep making videos this could saves someone's life :)

    • @EmpoweredPara
      @EmpoweredPara  Рік тому

      Thanks for watching! It's tough to lose your hearing because it's challenging to communicate with people if you can't hear them. Sending you positive energy!

  • @richardoliver8174
    @richardoliver8174 Рік тому +2

    I lost an eye to an autoimmune disease and you explained phantom sensation perfectly. I had a cataract and never saw out my eye after surgery then had it enucleated because it atrophied. It’s hard to explain my missing eye wanting to see but unable to. Thank you for sharing valuable experiences and information.

  • @anthonygalentine7281
    @anthonygalentine7281 Рік тому +1

    I completely understand what you are saying. I'm a t4 t6 complete and below my level of injury it constantly feels like my legs are asleep..great video!!!

    • @EmpoweredPara
      @EmpoweredPara  Рік тому

      I had no idea so many people felt what I do!

  • @TonyHuddlestonholycow
    @TonyHuddlestonholycow Рік тому +4

    Great video.
    I'm glad someone else out there has the same sensations. I've only known a couple other paralyzed people and we never really talked about it.
    You're absolutely right about the sensation getting worse when you think about it. It's crazy that I can affect my phantom sensation just by thinking about it. At least it is in my mind.
    I also used to laugh when other people would stumble or fall. Nowadays it makes my phantom pains get worse, so I try not to watch when that happens. That may be from age and experience.
    I used to take Valium for the pains but they don't give out that med for spasms and phantom pain in Florida these days.
    Take care and stay warm.

    • @EmpoweredPara
      @EmpoweredPara  Рік тому +1

      I have never asked any other paralyzed people about whether they have phantom sensation either lol! I am glad I'm not the only person that laughs when people fall lol.

  • @cpr58
    @cpr58 6 місяців тому +1

    Thats it!!! I feel like I am balancing on a pinhead. I could explain it before. That explains why I still feel my old knee braces. I had them on the day of the accident Like I did every day. I couldn't walk without them. I wore them for a few years. I get that falling asleep feeling that drives me nuts. Thank you I never knew how to explain this. I know that game. You would have died laughing at me the day I fell. One day I will laugh at it

  • @a2blaz
    @a2blaz Рік тому +1

    You are an awesome lady. Not only you explain it so well, but you made me eat the garlic 3 times a day like you did. I’m on the way to experience a kind of neuropathy in my legs. So far, only one leg goes numb over night and causes me to fall. It feels like I’m staying up on my leg, but it is so numb that I fall. Thank you for making me feel normal. God bless you and your family.

    • @EmpoweredPara
      @EmpoweredPara  Рік тому

      I would never make anyone do anything lol. But I'm so glad you find value in the things I suggest and feel compelled to try them! Of course you're normal lol! Or maybe we're all weird together ❤️

  • @keyup2626
    @keyup2626 Рік тому +3

    Brittney you did a super job explaining. The neuropathic pain sucks the most, mine gets like I took gasoline in a syringe and injected it under my skin and lit it.

    • @EmpoweredPara
      @EmpoweredPara  Рік тому +1

      Yeah it's awful isn't it 😕 😞 😢.

    • @keyup2626
      @keyup2626 Рік тому

      @@EmpoweredPara it sucks, but somehow we get through it.

  • @caz3895
    @caz3895 Рік тому +1

    I don't laugh when other people fall but if I fall out of my wheelchair, I can't stop laughing 😂. Great video.

  • @westiepower2020
    @westiepower2020 Рік тому

    It freaks out my wife and I that you have “pins and needles” sensation all of the time, and a burning sensation some of the time. It was our main topic of conversation amongst ourselves and with a number of friends this afternoon. We never would have thought that any pain would still be with you 20 years after the fact. We always assumed that within a year or so after the accident, that you would be free of all pain. This video was a huge eye-opener. We are glad you have some coping mechanisms. IMHO, you bring lots to the world!

    • @EmpoweredPara
      @EmpoweredPara  Рік тому +3

      Most people in wheelchairs are in some level of discomfort at all times. We just live with it!

  • @JimBunton
    @JimBunton Рік тому

    I’ve been watching your videos for a while now and I like them. I find them informative and entertaining. As for your comment that you feel like your rambling. You are looking into a camera and speaking into a microphone, I don’t think many of us could do that as well as I think you do. So I say, keep rambling and keep helping and inspiring others who enjoy your company.

    • @EmpoweredPara
      @EmpoweredPara  Рік тому

      Awe thank you so much. I pretend I'm speaking directly to you all, so that makes talking to the camera much easier!

  • @kellyjarrett1408
    @kellyjarrett1408 Рік тому +1

    Thank you Brittany for the video. I have had 4 amputations throughout my life and I'm now an above knee amputee. I have phantom sensation and pain with neuropathy. Instead of having the sensation of a leg I feel my stump when I was below knee. It was interesting to learn that you have these sensations being paralyzed. You taught me some things about how those sensations occur. Thank you for sharing! When I fall I try to make a joke. I usually say " Hey I thought I'd just drop in. " Falls can be funny and I just can't help but laugh either as long as I know they are ok. Thanks again! I think you are amazing!!

    • @EmpoweredPara
      @EmpoweredPara  Рік тому +2

      Interesting that you got phantom sensation from the second amputation, but not the original amputation.
      Falling is just funny lol. I love that you make a joke out of it even when you fall yourself!

  • @DroopyMoo
    @DroopyMoo Рік тому +4

    There was a study about why some laugh when other people fall or get hurt.
    The reason is that we can relate to the pain so much, that the brain automatically release the happy hormones to level out the adrenaline rush we get.

  • @melaniechmiel1739
    @melaniechmiel1739 Рік тому +3

    It's crazy how every injury level is different. My daughter has a t12 spinal cord injury. She can feel a little below her injury. She can feel the top of her left leg and some areas around her bottom. So if she sits to long she gets sore in those areas on her bottom. Thank you for sharing your videos. They do help me and my daughter. She is still learning a lot 2 years post injury.

    • @cfalkner1012
      @cfalkner1012 Рік тому +1

      I got hurt in a car accident two years ago. T-12 SCI. I have a bit of sensation on my thighs, but I have a LOT of nerve pain and hyper sensitivity in my left thigh. I have a very similar amount of sensation in my butt. By the end of the day I’m very uncomfortable, even though there’s no red spots or pressure issues. My best wishes to your daughter, and you. It may not seem like it, but hopefully knowing that others are going through similar issues will help you get through your own.

    • @melaniechmiel1739
      @melaniechmiel1739 Рік тому

      Thank you, my daughter had really bad nerve pain the first year. She has muscle spams more now. I'm so sorry to hear about the nerve pain. It was really hard on my daughter. I will be praying for you.

    • @EmpoweredPara
      @EmpoweredPara  Рік тому +1

      It's a challenging first few years but if we can keep the righ perspective there are many blessings to be had, even with a spinal cord injury!

    • @EmpoweredPara
      @EmpoweredPara  Рік тому

      @@cfalkner1012 Not feeling alone is very comforting indeed!

  • @patrickcooper6074
    @patrickcooper6074 Рік тому +1

    Great information that really makes me think about "stuff"! I've always considers pain, either physical or emotional, as existing in the brain. If we injure a foot, the nerves in the foot send the information to the brain so we can react. So, if there is no communication between the foot and the brain, there isn't any pain.
    I think I registered for your e-mail list so I'm watching for your e-mail! LOL.
    Have a great weekend.
    Denise

    • @EmpoweredPara
      @EmpoweredPara  Рік тому

      Totally correct! Without the brain there is no pain (look at that rhyme lol)! You should have gotten an email Friday if you signed up correctly! If not let me know!

  • @SharonNolfi
    @SharonNolfi Рік тому +1

    Your explanation was very clear. You mentioned that at first the tingling bothered you, but didn't say what it's like for you now. Are you constantly aware of the feeling? Is it uncomfortable?

    • @EmpoweredPara
      @EmpoweredPara  Рік тому

      I'm constantly aware, it's just stopped bugging me. It can be uncomfortable at times but mostly not too bad.

  • @susietopspin
    @susietopspin Рік тому +3

    I’m able bodied right now. I say right now because we never can know what will happen and I get so much out of your content. I’m learning so much and have a better understanding of being paralyzed and what goes along with it. Keep up the great work.

    • @EmpoweredPara
      @EmpoweredPara  Рік тому

      I hope you never need the information lol!

  • @westiepower2020
    @westiepower2020 Рік тому +1

    I would have voted for the “floating” sensation before I watched this video, but I was too scared to ask you. I now understand this so much better Brittney! Gawd, as someone with vertigo and I lose my balance often, I hope it is never in front of you because apparently you will be busting a gut laughing at me.

    • @EmpoweredPara
      @EmpoweredPara  Рік тому +2

      100% I'll be laughing at you 🤣. And also asking if you're ok!

    • @sarahdore7884
      @sarahdore7884 Рік тому

      I fall all the time too but find it hilarious. Even when I break my leg. Then it’s annoying being on crutches. I find it funny when others fall though, too. Like hahaha for once it’s not me 😅

  • @kevinlstephenson6759
    @kevinlstephenson6759 Рік тому +1

    As a 12+ year t4/t5 para I have never heard this explanation of phantom sensation in paras but it makes a lot of sense. And I have the exact same feelings below level of injury as what you described.

  • @CinkSVideo
    @CinkSVideo Рік тому

    Love the, “I’m right about me.” That should be on a tshirt.

    • @EmpoweredPara
      @EmpoweredPara  Рік тому

      I'll put it on a shirt for you lol. But you have to promise to buy one and then take a picture and tag me!

    • @CinkSVideo
      @CinkSVideo Рік тому

      @@EmpoweredPara agreed.

  • @westiepower2020
    @westiepower2020 Рік тому

    So charming, forthright, and educational! Amazing!!

  • @RE7Hazuki
    @RE7Hazuki Рік тому

    Really interesting subject and fascinating how the body works. Especially the brain and nervous system. Thanks for sharing!

    • @EmpoweredPara
      @EmpoweredPara  Рік тому +2

      You're welcome! Definitely a fascinating topic for sure!

  • @aguyinnc2865
    @aguyinnc2865 Рік тому +1

    It makes me happy to see that you didn't give up on life, that you make the most of it and continue to move forward. I also have neuropathy in my feet and lower legs, which is nothing compared to what you have, but fortunately everything still works, it's just I can't feel sensations on my skin. Push hard enough, or stick a pin in a certain depth and yea, I feel it! But I wondered, I'm sure you work to maintain your health and go for regular check ups with your doctor. With today's technology and advances in the medical world, have you heard of anything on the horizon that might help you regain some of your lower feeling and strength? I have heard of advances in stem cell research, I hope something will come along that will help you. Best wishes, you are an inspiration to everyone, God Bless.

    • @EmpoweredPara
      @EmpoweredPara  Рік тому +1

      Stem cell research is more for newly injured people. I have my eye on Neurolink that Elon Musk is working on, but I'm not waiting around for a cure.

    • @aguyinnc2865
      @aguyinnc2865 Рік тому

      @@EmpoweredPara I understand.

  • @johnhunter1296
    @johnhunter1296 Рік тому

    Thanks as ever Brittney - don't fall over!!

  • @spookiey
    @spookiey Рік тому

    Hello. I love your description of phantom sensation. its a weird thing I am not paralyzed but have all the same weird pain and everything you explain. I have liver failure but that effected my nerves you so true on that feeling. Anyways new viewer but will watch

  • @brucekerl5139
    @brucekerl5139 Рік тому

    What a crack up! You are too much fun. I think that was a great description! Love the vids.

  • @westiepower2020
    @westiepower2020 Рік тому

    “Balancing on a Noodle” is such a unique phrase, and certainly gets the image across to someone who has not experienced that. When you described how the therapist would push on your upper body, and you said you would be like a bobblehead, I wondered what your reaction was. I know when I teased/tested my disabled wife this morning about her lack of depth-of-field and her absolutely no peripheral vision, I got a sharp - and deserving - reaction - she punched me! So my wife told me “I hope Brittney slapped or punched her physical therapist!”

  • @the_bowiekid
    @the_bowiekid 7 місяців тому

    She definitely didn’t lose her personality ! Like most women, she is a yapper. But indeed, a character for sure 👍🏽 I like it. That Kristen Wig energy

  • @buster531000
    @buster531000 Рік тому

    Another good explanation of something I know very little about. Your the best.😀

  • @cfalkner1012
    @cfalkner1012 Рік тому +1

    My injury feels much the same. Pins and needles from about waist down. I also have a lot of nerve pain. Some days are worse than others, but every once in a while I get what I call quiet time, where I have no pain and my legs are just numb. Ahhh, good stuff.

  • @TheGLOSSette
    @TheGLOSSette Рік тому +1

    Do you have autonomic dysreflexia to help you notice certain things that happen to the paralyzed parts of ur body? I subscribe to another youtuber (a quad not para) and he says he sometimes gets that and it helps him signal like if a room is too hot or cold.

    • @EmpoweredPara
      @EmpoweredPara  Рік тому

      Not really. I get mild AD but not that is even noticeable sometimes..I get spasms though that alert me!

  • @morgancalvi6675
    @morgancalvi6675 Рік тому +1

    LOL...I like hot water with lemon. I'm a fairly fresh amputee and I'm also a quadriplegic. MY sensation was more affected than my movement...and I'll tell you...I have had more feelings of my leg and foot since I have been without the leg...than I ever did when I had the leg. Phantom sensation is really geared toward amputation...not paralysis.

    • @EmpoweredPara
      @EmpoweredPara  Рік тому

      That's almost comical lol. You had to lose the leg to feel it haha

  • @GoFishOffice
    @GoFishOffice Рік тому

    This was great information, thank you

  • @TecumsehChris49286
    @TecumsehChris49286 Рік тому +1

    I agree. I feel the same pins and needles all the time in my legs but my core (I’m T4/T5) usually I just feel pain, sadly ironic. And I have always found people falling funny, since I was a little kid (as long as I know they are okay.

    • @EmpoweredPara
      @EmpoweredPara  Рік тому

      yeah, it's never funny anymore when people are actually hurt badly lol. I'm pretty amazed that so many of you feel just like me in your legs! This is the first time I've ever really heard from other paralyzed people what their legs feel like. Funny that this conversation has never come up with friends over the years!

  • @LALALA20222
    @LALALA20222 Рік тому +2

    I really identify with a lot of what you said. It's weird to hear someone articulate how I feel.
    The only thing I've never had is burning pain. Also for me, thinking about my paralysed parts doesn't make the tingling etc worse.

    • @EmpoweredPara
      @EmpoweredPara  Рік тому +1

      But you have tingling like me? I have lots of friends in wheelchairs and have never asked any of them this question lol.

    • @LALALA20222
      @LALALA20222 Рік тому

      @@EmpoweredPara yes, I have tingling!

    • @carriesaurer9446
      @carriesaurer9446 Рік тому

      I am a t4/5 spinal cord injury from transverse myelitis. I have tingling all the time just like you. I get it from just above my waist and all the way down. I also get the burning and just like you if I think of a part of my legs or foot the tingling gets more intense in that spot.

  • @johnyashm4191
    @johnyashm4191 Рік тому

    I watched this video as I thought it would help educate me on what the title says although might also leave me feeling sad. Ok It did educate me and I do feel a bit sad thinking of the challenges she must of had to deal with to get so far but I'm subscribing as I love her sense of humour and we all could do with a few more laughs so keeping my fingers crossed theres more like it to come.

    • @EmpoweredPara
      @EmpoweredPara  Рік тому +1

      Welcome! I'd rather laugh my way to the grave than cry all the way there lol. I promise to try and bring more laughs!

    • @johnyashm4191
      @johnyashm4191 Рік тому +1

      Thats a great outlook to have may your chanel bring you as much enjoyment as you give to others.
      Not sure if your cup of tea but guessing you may like to watch a clip approx 6 minutes from Boemerang tv where Erik Hartman laughs at his guest who has sadly had his voice damaged.
      It's really sad when you take it seriously and the host did get fired but it is what happened.

  • @FreddotheWheelchairGuy
    @FreddotheWheelchairGuy Рік тому +2

    That's so interesting, I have been doing NSDR or Yoga Nidra recently, which is a practise that makes you focus on different parts of your body for deep relaxation, and I can really feel my right foot when I focus on it, the sole of my foot, my toe etc - it's bizarre. When I actually can't "feel" it at all.
    Weirdly enough, I *can* feel my left foot, but I don't get the same sensation.
    It's nice to hear your thoughts and I look forward to chatting soon 😁✌

    • @EmpoweredPara
      @EmpoweredPara  Рік тому +1

      I'm afraid we can no longer be friends lol. Yoga, meditation, and a gratitude practice? You're gonna make me look bad lol. I have to step up my game to keep up with you!

    • @janetheard4357
      @janetheard4357 Рік тому

      I’m not paralyzed, but practice Yoga Nidra for anxiety and self-soothing. I’ve been slacking off, so thank you for reminding me to bring it back into my daily routine.❤

  • @katecart8790
    @katecart8790 Рік тому +1

    I am an amputee and your explanation of phantom sensation rings true for me. I don’t have it constantly but it is that buzzy, tingling sensation most of the time with an occasional sharp, shooting lightening bolt every now and then. Nerves are weird.

    • @EmpoweredPara
      @EmpoweredPara  Рік тому

      so weird lol

    • @Jaggededge112
      @Jaggededge112 Рік тому

      I had a friend that was a double amputee he had polio he’s passed away by now, but he always talked about the pain of phantom pain.

    • @Jaggededge112
      @Jaggededge112 Рік тому

      Do you have pain? I lose all use of my legs at random times it’s sucks and the nerves start to tingle after about three hours it’s awful.

    • @EmpoweredPara
      @EmpoweredPara  Рік тому +1

      @Jaggededge112 do you mean nerve pain or pain in general?

    • @Jaggededge112
      @Jaggededge112 Рік тому

      @@EmpoweredPara nerve. I assume you must have regular pain above your injury level?

  • @TaraLyz
    @TaraLyz Рік тому +1

    I've been paralyzed from birth, so I don't have phantom sensation, but my feet do spasm rendomly which is interesting to watch when it happens. I also only notice it happening when I'm bare foot, but I'm sure it still happens when my shoes are on. My upper body also spasms at times, but I attribute that to multiple head injuries over the years. They've gotten more noticable as I've gotten older too. I only know this because some people around me have seen them happen and have expressed concern when they happen. I just brush it off and tell them it's something that's normal for me and that I'm not worried about it. One cool thing I've discovered I can do even though I'm paralyzed is that I can move my right foot slightly, not enough to be able to walk though. I used to make it move just to prove to people that I could do it too and it freaked some of them out to see it happen. It's gotten weaker over the years just because I don't practice doing it anymore and it's not something that was easy to do to begin with either anyway. It was just a fun "magic trick" I discovered I could do when I was a kid and thought it was cool to show people.

    • @EmpoweredPara
      @EmpoweredPara  Рік тому

      It's always fun to freak people out lol. So if you don't have phantom sensation what does it feel like to feel nothing below your paralysis level? Is it weird or just normal for you?

    • @TaraLyz
      @TaraLyz Рік тому

      @@EmpoweredPara I only feel down to about my waistline & I just find it to be normal because it's all I've ever known.

    • @sarahdore7884
      @sarahdore7884 Рік тому +1

      If it’s not too personal, what caused you to be paralyzed from birth? Spina bifida?

  • @BasicParaStuffwithCoachVic
    @BasicParaStuffwithCoachVic Рік тому

    Exactly the way I’d describe the below injury sensation. I call my days hot burn days, cold burn days, and the easy days, when the intensity is low. Btw… my legs were on FIRE watching this video!!😂😎

    • @EmpoweredPara
      @EmpoweredPara  Рік тому

      My friend sings the Alicia Keys song "This Girl is on Fire" when her legs burn and now I do the same lol

  • @tonywhite8635
    @tonywhite8635 Рік тому

    I am not handedcap but I really enjoy your videos. Lol I am a able body as you say. God loves you and so do I

  • @lolabear3230
    @lolabear3230 Рік тому +1

    💙💚 my cousin lost a leg and can still feel it sometimes , she has stood up a number of times and fallen over having forgotten she only has one leg because of the phantom sensation 💚💙

  • @johnvelas70
    @johnvelas70 Рік тому

    I know a blind woman who had both eyes removed. One as an infant, the other about a year ago. She said for about 2 months after that operation, she'd still "see" the pinhole of light she would have if she looked into sunlight.

    • @EmpoweredPara
      @EmpoweredPara  Рік тому

      What! omg that is so interesting. Like the brain interpreting phantom light! Whoa!

    • @johnvelas70
      @johnvelas70 Рік тому

      @@EmpoweredPara what's more interesting is she said said being a "total" is more exhausting because her brain isn't receiving the stimulus it craves.

  • @walterhunter4011
    @walterhunter4011 Рік тому

    You are so funny. Thank you for the laughs. You make a lot of sense becase I have nerve pain in my feet from diabetes and my feet go numb all the time. Some time it’s hard to walk when they are extremely numb and I fall. I bet you would laugh 😊.

    • @EmpoweredPara
      @EmpoweredPara  Рік тому +1

      lol I would probably laugh! But then I'd make sure you were ok!

  • @ericherman5413
    @ericherman5413 9 місяців тому

    Made sense to me!

  • @johnreinard
    @johnreinard Рік тому +1

    I feel like I'm sitting on a ball. I also don't have any core muscles. I'm lucky enough to be an incomplete and had feelings below my injury level until I developed a cyst above my injury level. Now I've lost all of that

    • @EmpoweredPara
      @EmpoweredPara  Рік тому

      Have you lost anything above your level of injury?

  • @suewinter3693
    @suewinter3693 Рік тому

    Fascinating!

  • @elen5871
    @elen5871 Рік тому +1

    tommy wiseau, director of that awful film "the room," is a hot water connoisseur apparently. like, he orders it at restaurants and shit.
    makes perfect sense to me, and is relatabel to how my lower half feels, like right now i'm sitting on a couch lounging kinda like a roman or whatever and the whole lower half of me just kinda feels like a singular lump of pins nad needles, like i can THINK about my legs as separate things but i have no conception of where they are or whatver like i do my arms? idk. it's so hard to explain. like sitting on a fleshy mound. gross lmao. i described my relationship to them to my doctor as like quantum physics bc as long as i'm not really thinking about or observing them i'm mostly fine but if i start to think too much about what's going on i get a lot of really bad nerve pain or whatever. shcrodinger's legs.
    prolly the grossest self-injury i've done recently was at the range, i ended up with hot brass down my shoe and was wondering what smelled like bbq. it's me! me smell like bbq! that's bad!

  • @gBalldevelopmentllc
    @gBalldevelopmentllc Рік тому

    I laugh too when people fall - it's so embarrassing but I can't control itt!

  • @jamesstevens4795
    @jamesstevens4795 Рік тому

    I’m a T4 complete and often times still forget my limitations…. Grocery shopping one day and I reached up to get a gallon of milk off the shelf…as soon as the milk left the shelf the weight toppled me right out of the chair to the floor. Ya just gotta laugh 😂

    • @EmpoweredPara
      @EmpoweredPara  Рік тому

      lol that's only funny after you make it back in your chair haha.

  • @grant4176
    @grant4176 Рік тому

    ThankQ for explaining this to all of us. I understand what you are saying. My dad lost his leg in WW2. He would talk about his phantom pains. Cheers Darlin'!! Have a great day!! 😎
    Email list?? *perk*

    • @EmpoweredPara
      @EmpoweredPara  Рік тому

      Cheers! The link to join my email list is in the video description!

    • @grant4176
      @grant4176 Рік тому

      @@EmpoweredPara Cool!! Thanks Dear One! I'll sign up so I can harrass you over there too! 😂🤣😂🤣😂😎🤭

    • @EmpoweredPara
      @EmpoweredPara  Рік тому

      @@grant4176 Looking forward to it 😉

    • @grant4176
      @grant4176 Рік тому

      @@EmpoweredPara You have a message in a bottle waiting in your inbox! 😜

  • @lopezv1315
    @lopezv1315 Рік тому

    I have a question, might be dumb. But saw a video on tiktok about a paralyzed woman and in her video she says she can’t remember what it feels to run.
    Do paraplegics forget what it feels like to have legs??

    • @EmpoweredPara
      @EmpoweredPara  Рік тому

      I remember things but I'm sure it's different for everyone!

  • @baseerehsan
    @baseerehsan Рік тому

    3:36 so sad 😢

  • @lannybailey4871
    @lannybailey4871 Рік тому

    I think I'm going to ask you questions this week sometime about phantom pains. Soon!

  • @davecummings6170
    @davecummings6170 Рік тому

    I am a right below the knee amputee. Luckily I hardly ever have phantom pain. I do however have phantom sensation. I can “feel” that my heel is touching the ground or the side of my foot or the balls of my feet. Weird but helpful.

    • @EmpoweredPara
      @EmpoweredPara  Рік тому

      It blows my mind how much we can "feel". The amount of memory in the nerves is pretty cool.

  • @donaldwildgrube5544
    @donaldwildgrube5544 Рік тому

    I had my right leg amputated above the knee and I don't have the sensation of pins and needles at alll but I can feel wearing flip flops, the strat between my big toe and the first toe. I do get pain occasionally where something grabs my ankle and it bothers me. My lest leg was amputated below the knee and I haven't had any phantom pain so far. Also the reason for the amputation is diabetes.

    • @EmpoweredPara
      @EmpoweredPara  Рік тому

      Interesting that that the phantom sensation is only in one leg! The human body is a mystery lol

  • @DesMowadeng
    @DesMowadeng Рік тому

    This was a kool video! I've mentioned before in comments I was born with a birth defect called spina bifida which falls under a spinal cord injury so the question is always hard for me to answer because it's all I've ever known. In a way it's like a game of Simon says. If someone was to say Simon says touch your nose several times in a row and then dropped the Simon says only saying touch your nose then asked if you can feel your nose...can you? When I put my hand to my leg, can feel it?...yes I can...am I actually able to feel it? probably not, because I've done all sorts of random stuff to my legs, even have had cats climb up them, but don't know they clawed me until I see the marks so it's only really when I pay attention!

    • @EmpoweredPara
      @EmpoweredPara  Рік тому

      Thanks interesting! So the question is: do you actually feel or do you just have sophisticated phantom sensation?

    • @DesMowadeng
      @DesMowadeng Рік тому

      @@EmpoweredPara I have no clue... In most images ive seen of what the spinal cord looks like in SB there can be a few strands of the cord intact but some look like noodles spliced from it staying attached to the top and bottom intact cord waving around. After watching this, I'm wondering if the reason I can feel my leg is from feeling the sensation of it under my hand that my brain determines is my leg or is it because my deformity is so low down (right around mid back around where a bra closes from behind.) Then again can anyone really feel all their toes separately or just their foot in general unless they stub their toe?
      It's generally awkward to be asked, at least by adults, because there's no real answer it seems but they expect us to have one!

    • @EmpoweredPara
      @EmpoweredPara  Рік тому

      @DesMowadeng Now there's a question! Can people actually feel their whole body all at them same time? Or is the brain only capable of interpreting the sensory input from a few places at once when we pay attention? Haven't really thought about it before lol!

    • @DesMowadeng
      @DesMowadeng Рік тому

      @@EmpoweredPara this is gonna sound horrible...and might depend on whether you have lived longer injured than you were able bodied, but you'd be better able to answer that than I would. I do know that for people who are blind or deaf if theyve been blind or deaf longer than sighted or hearing that they have no memory of sight or sound. With us I'm not sure! Feeling everything all of the time sounds overwhelming as all get out to me!

    • @EmpoweredPara
      @EmpoweredPara  Рік тому

      @DesMowadeng Yeah I was thinking feeling everything, all the time, would be overwhelming too lol!

  • @GumbyPW
    @GumbyPW Рік тому

    Mine is A slow progression to paralysis, getting worse week by week "Syringomyelia" Always seems weird to say I can't feel my legs, but they hurt so bad. I'm 72 now & lost use of my legs & most of my arms & hands now

    • @EmpoweredPara
      @EmpoweredPara  Рік тому

      I have syringomyelia too!

    • @GumbyPW
      @GumbyPW Рік тому

      @@EmpoweredPara Mine kicked off at 36 with A fall, left me A complete quad. but 2 years later I made it back to work (Auto mechanic) for 15 years. Then started back down that hole. Cervical lamination C2 - C7 made it A bit better but didn't last. 1999 had to retire & settle in for the ride. I have never known anyone else with Syringomyelia (most Dr's I've had aren't even familiar with it.) Thank you for responding to me.

  • @junedye4226
    @junedye4226 Рік тому

    Sometimes it feels like my phone is vibrating in my pocket when I don't even have it with me.

    • @EmpoweredPara
      @EmpoweredPara  Рік тому +1

      phantom phone lol. My husband gets this too 😆

  • @grantroy5349
    @grantroy5349 Рік тому

    What does it feel like wen you try to move your legs

    • @EmpoweredPara
      @EmpoweredPara  Рік тому +1

      It feels like thinking really hard about moving your hair or an inanimate object lol

  • @gjj1
    @gjj1 Рік тому

    Is there not any medication to alleviate the pain?

    • @cfalkner1012
      @cfalkner1012 Рік тому

      Not really. There are neuro inhibitors like Gabapentin and Lyrica, but for some people they don’t do much. Conventional pain medication, including opioids, does nothing for nerve pain.

    • @EmpoweredPara
      @EmpoweredPara  Рік тому

      yeah unfortunately medicine options aren't great

  • @jennettesaxberg6528
    @jennettesaxberg6528 Рік тому

    Does it feel like the same thing as when you’re having an Eppy dural?

    • @EmpoweredPara
      @EmpoweredPara  Рік тому

      Never had an epidural when I could feel my legs so I'm not sure!

  • @zerofox1551
    @zerofox1551 Рік тому

    So, I'm a hemi (stenosis,c5), but still have feeling on that side, but you're right everyone's unique. Love your vids.

  • @Speekors
    @Speekors Рік тому

    I feel like I could move my hands, and flex my legs and calf’s. And can wiggle my toes but they don’t move

    • @EmpoweredPara
      @EmpoweredPara  Рік тому +1

      lol yeah me too!

    • @Speekors
      @Speekors Рік тому

      @@EmpoweredPara I just wish my fingers could move 🤦🏽‍♂️

  • @Jaggededge112
    @Jaggededge112 Рік тому

    I uploaded a video showing the new hoodie!

  • @mikebledsoe3279
    @mikebledsoe3279 Рік тому

    I tell people it feels a lot like whenever you hit your funny bone a lot, just at different places like your legs

  • @charles_wipman
    @charles_wipman Рік тому

    Must be weird, sounds weird to me.. , have a good weekend!.

    • @EmpoweredPara
      @EmpoweredPara  Рік тому +1

      lol weird that I laugh at people when they get hurt? Or weird that I have phantom sensation?

    • @charles_wipman
      @charles_wipman Рік тому

      @@EmpoweredPara the phantom sensation, must be a weird to feel it, laugh at people that get hurt it's really common.

    • @EmpoweredPara
      @EmpoweredPara  Рік тому +1

      @charleswipman897 it used to feel weird, now it's just normal to me lol!

  • @1013tenthirteen
    @1013tenthirteen Рік тому

    I laugh at people falling also! It’s terrible they get hurt and I’m not laughing about that. It’s their face and body movements as they’re falling that’s the hilarious part. I’m definitely not laughing because they’re hurt

    • @EmpoweredPara
      @EmpoweredPara  Рік тому

      Yeah I'm not laughing because they're hurt either lol. I think it's normal to laugh when people fall, that's how funniest home videos was such a hit lol!

  • @Pawslifeforever
    @Pawslifeforever 6 місяців тому

    Do you get paralyzed by a sleep paralysis???

  • @TeethToothman
    @TeethToothman Рік тому

    🫀❣️🫀

  • @philcarter3789
    @philcarter3789 Рік тому

    Hi I also laugh when someone is hurt Cheers Phil

  • @christomasjames6620
    @christomasjames6620 Рік тому

    a question to you and others in the comments do your legs ever feel heavy? my do all the time my segon said its just a normal feeling with nerve damage. yeah u are right seeing someone get hit in the B***s is alway funny.

  • @HeroInTheSun
    @HeroInTheSun Рік тому

    You are talking to us or to the screen? ffs

    • @EmpoweredPara
      @EmpoweredPara  Рік тому

      I'm not exactly sure what you're asking lol. I'm technically talking to a camera, I guess, but I pretend I'm talking to you!

  • @IamTheOnlyCHILIDOG
    @IamTheOnlyCHILIDOG Рік тому

    YOU are WRONG! 😀

    • @Richard-uu5is
      @Richard-uu5is Рік тому

      It would be nice to have someone around to laugh at me when I fall. I had a stroke that paralyzed my left side 7 years ago and since that time I fall a lot.

    • @EmpoweredPara
      @EmpoweredPara  Рік тому

      I hope you don't hurt yourself when you fall:)

    • @Richard-uu5is
      @Richard-uu5is Рік тому

      @@EmpoweredPara thanks so far the worst has been 13 stitches in one of my ears. I could no imagine being paralyzed more than I was back then I could not do anything for my self the nurses had to help me

  • @Rolf-farmedfacts-supervisor

    Hot water?! Isnt that an asian thing?

  • @MrOGREATWISEONE
    @MrOGREATWISEONE Рік тому

    Is it possible that hypnosis could relieve the tingling sensation? It’s just a thought that I had Brittany. 🤗 🐨 🦘🦘