Benjaymun
Benjaymun
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Moving to Paris with Crohns Disease
In January, I moved to Paris from Australia. I'm 24 years old and have had Crohns disease for 7 years now. Currently, I take Stelera injections, but have had prednisilone, Pentassa, and Azeothiporine in the past.
This video is meant to act as a form of encouragement if you are thinking about traveling or moving abroad with Crohns disease.
If you have any questions - please drop a comment down below.
My Instagram: bendroege_
Cheers!
Переглядів: 1 017

Відео

Travelling with Crohns Disease | My Experience
Переглядів 1,1 тис.Рік тому
Travelling whilst living with Crohns disease can be challenging - but it can be done! My Instagram: bendroege_ Cheers! Ben
Mental Health & Crohns Disease
Переглядів 968Рік тому
Talking all things mental health whilst living with Crohns disease. My Instagram: bendroege_ Cheers! Ben
Stelara Injections (Ustekinumab) for Crohns Disease | My Experience
Переглядів 3,8 тис.Рік тому
Stelera (Ustekinumab) is a treatment for Crohn's disease. This is the current medication that I am taking to treat Crohn's disease and comes in injection form. This video provides some information on side effects, dosages, and my overall thoughts on this treatment. The cooler/esky (I don't have this exact one, but it's similar): diabeteshq.com.au/products/medactiv-icool-medicube?variant=3228533...
Weight Lifting with Crohns Disease | My Experience
Переглядів 3,2 тис.Рік тому
I will be discussing my own personal experience with weight lifting or any kind of gym work whilst living with Crohn’s disease. Like a lot of people, going to the gym is a core part of our lives and when you’re dealing with a disease such as this one where your energy levels are impacted, sometimes exercise can be extremely difficult. My Instagram: bendroege_ Cheers!
Pentasa (Mesalazine) for Crohns Disease | My Experience
Переглядів 4,9 тис.Рік тому
Pentasa Mesalazine as a treatment for Crohn's disease. This is the first medication that is often prescribed to new patients with Crohn's disease as it generally has fewer side effects than some of the other treatments out there. Most of the comments I've gotten on my previous videos have asked about Pentasa Mesalazine to treat Crohn's disease, and it seems people are naturally concerned especi...
How to Deal with Your First Colonoscopy | My Experience
Переглядів 1,3 тис.3 роки тому
How to deal with your first colonoscopy and what to expect. I will be covering some of the preparations, some details on the procedures, and how you might feel afterward. None of this is medical advice, just my own personal experiences. So if if is your first colonoscopy, and you aren’t fully aware of what it is, as blunt as I can make it, they guide a tiny camera through the rectum into the bo...
Azathioprine (Immuran) for Crohns Disease | My Experience
Переглядів 6 тис.4 роки тому
I take Azathioprine or Immuran for my Crohns disease. This is my experience with this treatment for Crohns. So what is Azathioprine, well it’s an immunosuppressant drug that aims to lower your immune system which in turn, aims to calm the inflammation throughout the body. I obviously take it to treat Crohns disease, but it’s also used for Psoriasis and Eczema as they’re also classified as autoi...
My Crohns Disease Diet | Foods I Can & Can't Have
Переглядів 10 тис.4 роки тому
This is my Crohns disease diet. With Crohns disease, there are lot's of different foods that you may or not be able to handle. In this video I will be sharing what food choices work and don't work for me, to hopefully give you some guidance on what you could look into. These are just my own experiences, so what works for me might not work for you, so be careful. I will also be talking about dri...
Alcohol With Crohns Disease? My Own Experience
Переглядів 5 тис.4 роки тому
Can you drink alcohol with Crohns disease? This video will share my own experiences with alcohol as well as my recommendations for the best liquor of choice for Crohns patients. If you can avoid alcohol, then that's way better off for your health, but if you enjoy a drink, then fear not because there are options out there. I will be sharing my thoughts towards Beer, Cider, Wine and Spirits. Cro...
Living With Crohns Disease | My Experience After 4 Years
Переглядів 66 тис.4 роки тому
I've been living with Crohns disease for 4 years now, and there have been many ups and downs over that time. This video will cover my initial diagnoses, symptoms, the medication (Prednisolone Steroids, Azathioprine, Pentasa Mesalazine, Stelara) I've taken and my overall thoughts on handling this auto-immune disease. Crohns disease is a chronic inflammatory disease of the intestines, especially ...

КОМЕНТАРІ

  • @duckyorwell9416
    @duckyorwell9416 3 дні тому

    Alcohol is cringe, is worse then heroin. Just smoke some grass, you know the health way, instead of the poisonous legal way of alcohol ofc poison is legal. again CRINGE if you are a drinker.

  • @AdaTaropa
    @AdaTaropa 6 днів тому

    Soooo... In case of a zombie apocalypse, we are doomed 😮

    • @benjaymun
      @benjaymun 3 дні тому

      Sometimes I think about this ahaha and yes most likely 🥲🥲

  • @justnorway8950
    @justnorway8950 10 днів тому

    Im just a nurse. I expect to learn a lot!

  • @mdmoazzamhossain7455
    @mdmoazzamhossain7455 29 днів тому

    So you are taking only sterela and nothing else? I mean you don't need to take Pentasa or anything?

  • @mdmoazzamhossain7455
    @mdmoazzamhossain7455 29 днів тому

    Do you need to take Pentasa? now that you are taking Sterela?

  • @mdmoazzamhossain7455
    @mdmoazzamhossain7455 29 днів тому

    Diagnosed with Crohn's 4 months now. Affected only my intestine. I have watched all of you videos specially the medicine targeted one like Pentasa, Imuran and learned a lot. Thank you so much for making these videos and plz keep making them. I have also watched the gym video with Crohn's. Actually I am losing weights till this day. I am now so much frustrated and scared. Because I can't seem to stop the loss of weight. 65 kg to 51.5Kg today in 6 months. I am 26 years old now. 5 feet 9 inch height. I am a twig looking guy now.

  • @mindyg1960
    @mindyg1960 Місяць тому

    Got it at 18 right after I had my first son . Almost died twice from starvation...Now I'm 46!!! You got this! I get infusions now, changed my life!!! Doing so much better! Still some bad days because I have this. Please Never give up!!!

  • @arjitsingh5989
    @arjitsingh5989 Місяць тому

    I have chrons , i worked a remite job till i made my body back , studied diet took supplements, studied everything, i had the worse case and i cured it . Anyone watching , stop living with this horrendous disease , find cure took me 2 yrs to cure myself after 2 yrcsuffering. Vitamin d , b12 ,anti infamtory diet muktivitamin rest .lots of rest . I was cured. I studied hard , i know work remotely as a java developer earning descent amount . Life doesn't have to be like this . Be resilient. I can anything now , i know what caused me ,it was smoking. Even though i quit it smoking had decreased my vitamin d level in so much extent that i got chrohns.

  • @paulmiller7709
    @paulmiller7709 Місяць тому

    I have been having digestive health issues for YEARS! I would bring these concerns up to my primary care physician in high school, they said it was probably due to anxiety and they ran a test to make sure I had no infections and all that come back normal. I have made significant progress in managing anxiety and my digestive issue have been worsening. I got myself into a GI clinic and they ran a stool test which indicated I have some type of colon inflammation. My mother has mild crohns disease so I have a major suspension this is what is wrong with me but I wont know until I can get a colonsocpy. Thanks for sharing your story because it is nice to see others share their struggles with these types of issues!

  • @monishm5246
    @monishm5246 Місяць тому

    Trying Biological injections or treatment for 1 year would help put chron's into remission. Some of them are Adalimumab, Ustekinumab...etc

    • @benjaymun
      @benjaymun Місяць тому

      correct! It helped me :))

  • @kennymcewan7281
    @kennymcewan7281 Місяць тому

    Just being diagnosed aged 54 ma ass is leaking like fk ass pain is brutal waiting on op to chop out part of bowel fed up with it

  • @mdmoazzamhossain7455
    @mdmoazzamhossain7455 2 місяці тому

    Diagnosed with Crohn's for 3 months. I am here for the medicine names and thank you so much for sharing as most of the people doesn't share the name of the medications brand name. My life is upside down right now. Taking Pentasa 2g sachet (granules). I stay well for 5 days and sick for 2 days a week. I am sick of this. Crying right now. Age 26. Lost weight 10 KG in 4 months and still losing. Going through strick diet and feeling like eating nothing. Also I am having stools after 2 days. Not much constipation. I mean my stool goes down easily even after 2 days gap. But my stomachs growls a lot. So much growling happens with the pains come. Its like gas and water are recirculating same area over and over again. Makes huge sounds.

  • @mdmelbourne6076
    @mdmelbourne6076 2 місяці тому

    So happy for you being in remission, my daughter is getting tested for Crohn’s disease, had the colonoscopy but they couldn’t see past a section of her bowel just above the appendix, she’s having a special CT scan on December 6th , it’s ether a mess or Crohn’s, she’s also celiac, hopefully she’ll get answers soon, take care mate I’ve subscribed 👍

    • @PadmavathiVarma-yg3bo
      @PadmavathiVarma-yg3bo Місяць тому

      I also was recently diagnosed with Crohn's. But early identification is better hope and wish she will be fine.

    • @mdmelbourne6076
      @mdmelbourne6076 Місяць тому

      @ thank you for your support 🙏

  • @هيثممصر-ج3ع
    @هيثممصر-ج3ع 2 місяці тому

    i took stelara before 8 days and i am bleeding when it is work please tell me

  • @emilycurci1429
    @emilycurci1429 2 місяці тому

    Can you drink coffee now?

    • @benjaymun
      @benjaymun 2 місяці тому

      Yes everyday :)

  • @MargieNaidoo-s3f
    @MargieNaidoo-s3f 2 місяці тому

    I'm over 60 on Pentasa and prednisone and now on azathioprine as well. From your experience what can you tell me about using these 3 at the same time. Thank you for sharing with us. I've really benefitted from your videos as I was feeling so lost. Everything you mentioned I've been going through. May God bless for taking time to share.😊

  • @vishalchaudhary-nf6gr
    @vishalchaudhary-nf6gr 2 місяці тому

    Such a helpful video! I have Crohn’s disease, and it was tough managing flare-ups. Planet Ayurveda’s herbal supplements gave me the relief I had been looking for. A cousin dealing with the same issue also saw improvements with these remedies. If you’re struggling, these supplements can make a difference!

  • @namangarg8437
    @namangarg8437 2 місяці тому

    I am also suffering from severe hemorrhoids from last 10 years. Due to which i have very bad condition at this time.please pray for me.

  • @MargieNaidoo-s3f
    @MargieNaidoo-s3f 3 місяці тому

    My Doc has recommended pentasa,azathioprine and prednisone. Plus iron supplements. But still having constant flareups

  • @act110mort048
    @act110mort048 3 місяці тому

    I recently had a colonoscopy and gastroscopy. Doctor said it could either be mycrobacterium tuberculosis or Crohn's disease since the ulcers are located in my antrum, ileum, and rectum. I know that, in ulcerative colitis, the ulcerations are only in the large intestine. Watching your vlog helps me feel that I'm not alone in my struggles of digestive problems.

  • @therealamon
    @therealamon 3 місяці тому

    Ive gone through multiple meds since diagnosed and now im finally seeming to get healthier i had to quit a lot of drug abuse as well which of course helped but yes this does help crohns p well for me

  • @MargieNaidoo-s3f
    @MargieNaidoo-s3f 3 місяці тому

    Really appreciate your information. I've been scared to take pentasa because of direahea and other side effects

  • @MargieNaidoo-s3f
    @MargieNaidoo-s3f 3 місяці тому

    I was reluctant but you have put me at ease. Thank you

  • @MonkeyOnTheContrary
    @MonkeyOnTheContrary 3 місяці тому

    Hi, how are you doing now? Are you still taking Stelara? :)

  • @AyurvedicDoctor-y6q
    @AyurvedicDoctor-y6q 3 місяці тому

    Mimosa-Di Capsules and Belgiri powder of Planet Ayurveda are effective formulations to manage Crohn's disease.

  • @massimomarchese8619
    @massimomarchese8619 3 місяці тому

    Gastrointestinal doctors in Canada are the worst especially at Mount Sinani hospital.They get paid by the pharma companies. Relieve stress.calms chrons

  • @yashshaw9199
    @yashshaw9199 3 місяці тому

    Can anyone summarize the food list? Thanks

  • @eeddieedwards3890
    @eeddieedwards3890 4 місяці тому

    I've been taking Stelara since November 2023 and it really helped at first. Then about 6 months later it started acting like a LAXATIVE. It got so bad that I actually pooped my pants which I have never done in my entire life! So I am going to tell my Doctor to switch me back to BALSALAIZIDE DISODIUM.

  • @warmteacosy
    @warmteacosy 4 місяці тому

    I took it for two weeks and had to stop because i couldn't keep any food down with the diarrhoea and vomiting. Now I'm on Mercaptopurine instead and works like a charm! 😁👍

  • @duckyorwell9416
    @duckyorwell9416 4 місяці тому

    Remember you will never get the answers of so called 'professionals' they have been thought to make money, not cure people and run out of business, so what they are in is in the business of symptom-management , not health-care to find and heal the cause, that simply does not make money. Now go back to work minions, and do not ask questions.

  • @giorgostarnaras5658
    @giorgostarnaras5658 4 місяці тому

    I went to normal just taking pentasa after two weeks feel very lucky !! Diagnosed with UC but feel completely normal no need for diet changes this drug really did its job !!

  • @cris_aguila
    @cris_aguila 4 місяці тому

    I just watched a couple of your videos man. One from 4 years ago and this one from 6 months ago. Dude you look so healthy and had a huge glow up! Happy for you man 🫡

    • @benjaymun
      @benjaymun 4 місяці тому

      Ahh that’s so kind bro thank you!! Haha growing up sometimes works well aye, appreciate the comment dude and hope you’re staying healthy too!

  • @JohnVessely
    @JohnVessely 4 місяці тому

    Nice information , with this you can also use herbal remedies of planet ayurveda for crohn's disease

  • @aminsss
    @aminsss 4 місяці тому

    Hello friends, I have a question about the precautions that must be taken when taking Imuran. I read in the drug leaflet that taking the drug requires gloves, then sterilizing the hands, isolating the toilet from the rest of the family members, and isolating the laundry as well. Is this true? I hope that someone with experience will inform us.

  • @OmarCR7M10
    @OmarCR7M10 5 місяців тому

    That is very useful by the way I was diagnosed with ulcerative colon about 2 years ago and my doctor started me with Pentasa when I read the prescription I was afraid that I would die in two months maximum😅 but yeah I'm still alive with a good health.

  • @audichunes
    @audichunes 5 місяців тому

    I was just given this drug, and the pharmacist said that taking Balsalazide with this drug has some interactions. Not sure I see such information anywhere else on the Internet, so maybe good to ask a pharmacist if you're also taking Balsalazide (and of course, anything else, and/or call your doctor regarding taking anything else/balsalazide with this drug, which I will probably be doing, since I was given this drug by said doctor with strangely no information/reason given, except for the side profile of being able to do something regarding Crohn's disease treatment potentially).

  • @Hausofmalone
    @Hausofmalone 5 місяців тому

    Crohns is a beast. Remicade has saved my life x

  • @ishaan5117
    @ishaan5117 5 місяців тому

    yo benjaymun recently diagnosed with crohns now on prednisolone 40mg each day and azathioprine Currently 18 and dont want to continue on steroids but currently underweight by 12kgs Do you think stelara might be a be a good fit ill ask the doctor during the next consultation Also due to that ive got perianal fissures too so is it safe to take stelara?

  • @carlyvanharselaar3176
    @carlyvanharselaar3176 5 місяців тому

    I moved to finland this year and have just been diagnosed last week here it has been quite scary being diagnosed with this while speaking a different language to the doctors and not really understand anything free fluid in my Abdomen and a nasogastric tube still not knowing what my treatment is and having to have my partner translate everything for me wishing you all the best thank you for your video they have helped alot during this time ❤️

  • @brightlotus7824
    @brightlotus7824 5 місяців тому

    Thank you so much! My son is currently at the beginning of being possibly diagnosed and his doctor already thinks of putting him on Humira but there are serious side effects like triggering cancer. I haven’t heard of Stelara since now. I’ll mention to the doctor. ❤Thank u so much for helping us going thru this.

  • @yazanasad7811
    @yazanasad7811 5 місяців тому

    Could you keep doing that? Going back to Australia, picking up a years supply and then going back to Paris? Would that be allowable?

    • @benjaymun
      @benjaymun Місяць тому

      For sure! It would be annoying ofc but no reason why it can’t be achieved :)

    • @yazanasad7811
      @yazanasad7811 Місяць тому

      @benjaymun wouldn't the gov/hospital want you to be in the home country though? Do you have public healthcare like that in UK?

    • @benjaymun
      @benjaymun Місяць тому

      @@yazanasad7811 Potentially, however in my case it has been okay. I still do everything through the hospital and buy the medication in Australia so in theory there is no reason why they would deny it

  • @yazanasad7811
    @yazanasad7811 5 місяців тому

    Oh wow, so you took a year's supply

    • @benjaymun
      @benjaymun Місяць тому

      Yes! It made things so much easier :)

  • @Abhay-f8g
    @Abhay-f8g 6 місяців тому

    Hello. Do you know any disease which have all other symptoms of crohns. My doc said i have symptoms of crohs but he couldn't confirm it . I also have immense hairfall from all over the body

  • @pugglesprindle2698
    @pugglesprindle2698 6 місяців тому

    I had the worst reaction to stellara

    • @ladyk2679
      @ladyk2679 7 днів тому

      What’s that? 😢

  • @stanvav3277
    @stanvav3277 6 місяців тому

    My sister 77 has had Crowns since she was a teenager. She swears by Boswellia. I used to have IBS for many years (up to 7 bowel movements/day). I tried Boswellia (375 mg in morning) and I felt better in 3 weeks. One year later I am completely cured.

  • @bpgilmore
    @bpgilmore 6 місяців тому

    Great channel on living with Crohns. Also some very good looking videos? Curious what camera you use? How to you color grade/post-process?

    • @benjaymun
      @benjaymun 6 місяців тому

      Thanks very much!! Hahah so glad you noticed. I used a Cineprint16 film emulator and I’ve shot this on a BMCC 6K with a diffusion filter :)

  • @schpengler
    @schpengler 6 місяців тому

    Have you tried removing fiber from your diet?

    • @benjaymun
      @benjaymun 6 місяців тому

      Yes it was helpful when I did it!! These days I don’t have tonnes of fibre anyways out of laziness though haha

  • @favibezabh439
    @favibezabh439 6 місяців тому

    Fell good meto sufer with chrhons

  • @myselfself_-1
    @myselfself_-1 6 місяців тому

    i am 23 and i think something is going wrong with me i am scared to share it with my family i had a trauma and iam confused,

  • @chrisburke9932
    @chrisburke9932 6 місяців тому

    In the uk they give u local anesthesia; so your still awake. Its ok. Just had bit of pain after polyp removed; subsided after some peppermint tea.