Hey man! So glad you like these videos. But also sorry to hear about your tough time. Things will get better in the future just have to remain positive and push through. Cheers!
I've been lifting consistently and eating right for about 6 years. Last summer I got diagnosed with severe ulcerative colitis/pancolitis at 28 years old. I was flaring hard and lost 16 kg of mostly muscle in a few weeks. It sucked but I accepted my situation and focused on getting better. After struggling to find the right meds I'm now doing good on infliximab and balsalazide. I've since gained back all of my muscle and I'm stronger now than I was before I got sick. It's crazy how quick you bounce back after losing everything. Lifting was always a huge part of my life but now it really has become a way to prove to myself and the world that I thrive despite this awful disease.
Thanks so much for sharing your story! Damn 16kg is so much muscle lost, that must’ve been so frustrating. But for real, getting a disease such as this one really gives you perspective. Once you get back to a good stage, the motivation is so high to be the best version of yourself and never take it for granted. Best of luck with your journey! Sounds like you’re on a really good path with your meds
great video mate. definitely align with your thoughts on it all. i’ve spent 3+ years in the gym training hard and eating well but never able to stomach supps and get enoigh calories in to be “jacked”. recently after my diagnosis it’s given me a lot of clarity and i’ve been shifting my energy and focus more onto the running/triathlon side as that’s what i find my body is better suited torwards. cheers again for the video ben !
Thanks Dom! It’s such a hard thing to juggle and especially when people don’t know about the condition it can be extremely frustrating when people don’t understand why you’re not making progress. Yeha man that’s awesome!! So glad you’re into running too, I’ve found my body is thanking me for it and the pressure of wanting to look swole has gone away
My son (21)is currently going through checks for this disease. We waited so long for colonoscopy but finally had it last week. There are ulcers on his large intestine and also on the small one. They took biopsies so we are now in waiting process to see if it's ulcerative colitis or Crohn's. . It's nerve wracking. He needs MRI scan as well to investigate bowel.. I feel so bad for him. I am trying to stay positive by thinking that the medical team reassured me it's not cancer. That's what I was dreading so much. When I hear you talking about your weight and how you gained it, I get hope for my son. Keep well!
Glad to hear this video helped! I really hope your son is doing okay, I promise that it will get better, and eventually he will be healthy once again. From my own experience, the first year is the hardest then you begin to learn so much and realise that it’s not so bad. All the best!
It is very useful for me, a parent of a boy with Crohn's, to hear your story, to see you well, hoping that my boy will go on the same path. Three months ago when symptoms appeared my world collapsed, I have been devasted and now I need to put myself toghether and go on. Your videous help me a lot in this respect. My son got some weight, probably part due to steroids, part due to Modulen milk recommended by doctors. I'm a little bit more confident that we will find a way to live with that and I will see my son growing adult. Thank you!
@@vladavolya2242 I know Russian just a little but I think I undestand what you said. What I can tell you is that indeed it will be a tough period for you and the child but the child will be ok. There are quite effective treatments and will be ok. I know what you feel as parent, my eyes are full of tears when I write is the hardest thing to be parent of an ill child. I hug you and your child, I tell you than will be all right. My boy is ok now, unfortunately still very thin and now in Romania there is flue epidemic and Friday came from school tired and with fever. We take a test and he has flue type A. Which is your country when you stay? Wish you and your child hope, strong, health! I pray for you from all my heart!🙏
@@vladavolya2242 I know what you feel, is the hardest thing to be parent of an ill child but I tell you that everything will be all right. There are some very effective treatments and your child will be better in 3-4 months. I have tears in my eyes when I write to you, I will pray for you and your child from all my heart! Wish you to be strong, optimistic and confident that your child will be all right! 🙏
@@vladavolya2242I know what you feel, I was in the same situation seven months ago and my eyes are full of tears when I write. I pray for you and your child, wish you to be strong, there are treatments quite effective and I hope your child will be ok in 2-3 months. 🙏
I appreciate your honesty in presenting your Crohn's disease journey. Many are selling programs of natural IBD healing. We know that medicine is mandatory, while diet, lifestyle, and environmental factors can help. Finding and affording the proper medication is still a problem.
Thanks so much! Couldn’t agree more, I’ve seen a few of those videos and it always makes me nervous when people suggest the natural way as it’s not always best for a lot of people with severe symptoms. And agreed especially in developing countries having access to these drugs is the biggest problem sadly
Another youtuber with Crohn's said he doesn't eat food that mechanically irritate the gut. For example nuts. Do you have experience with whether this is tolerable? I don't know if I have Crohn's, but I have low tolerance off gluten and fructose ..and I am unsure about nuts. I enjoy your videos, they are so informativ!
Yes that’s very true and makes sense! Nuts specifically I eat in small doses because I like them and they’re quite good for you - but never more than a handful especially almonds. Glad you like the videos thank you!!
Thanks for these videos. I am still waiting for my results after my colonoscopy, but it is a foregone conclusion what I have due to fam history, other tests, etc. Do you know how long it takes to get the tests back and for them to put me on treatment? Too many painful days.
Glad you’ve found them helpful! It’s tough to say, for me it was literally 1 hour after the procedure they said it’s most likely crohns and I was put on meds right away, but that was because my gastroenterologist did the procedure. Hope it’s not too much longer for you :)
Hi Benjamin, I have a question, so do you remember when you take azathyoprine, your blood tests, specialy amylase, were in range? My son’s blood tests show a amylase increase beyond superior limit( 134 vs 100).
Hello friends, I have a question about the precautions that must be taken when taking Imuran. I read in the drug leaflet that taking the drug requires gloves, then sterilizing the hands, isolating the toilet from the rest of the family members, and isolating the laundry as well. Is this true? I hope that someone with experience will inform us.
Damn I'm so sorry. There are several medications that treat IBD, like mesalamine and azathioprine. A lot of people go their entire lives without needing biologics, but I hope you get the meds that you need.
Im got diagnosed at 12 and now im in high school and as a girl with weight its hard because if im not gaining of even loseing a bit of weight the doctors think im sick 😅 Also ive been on seroids and stuff for chrons have you every been on infusions im having them for two year and i feel a bit like crap afterwards
Do you take whey protein.. Because protein is important to build muscles.. Also to gain weight you have eat a lot.. Do you face any difficulties when it comes to be in calories surplus Hope you doing well
Hey bro! No whey anymore, it upset my stomach really bad. But now I take collagen powder and it’s so much better. And yes! Getting in calories was very hard, because the more you eat the more you have to go to the toilet. So I just try to prioritise protein trsllt
If you don't mind me asking, are you taking any medication from the hospital? I was told that I need to take Humira but I also heard all the side effects that it could cause. Would it be better to just eat healthier and heal it on my own or should I take the Humira pen that the doctors are recommending me to take? Also its super expensive so if I ever need to quit taking it, wouldn't my pain come back even stronger. Its all too much
yes I have stelera injections which is very similar to humira. If you're doctor has suggested for you to take it, it would be a great idea, it's meant to be very effective :)
Hope you enjoyed this weeks video! If you have any thoughts please feel free to leave a comment :)
Your videos are really inspiring my friend. Without realizing it you're helping a LOT of people dealing with this disease! Thank you ❤️🙏
That's very kind thank you!! Glad to hear they are helpful :)
Hey man! Keep making these videos. As a 16 year old, Crohns has pretty much F'ed up my life. But, now I am able to better cope with it . Thanks!
Hey man! So glad you like these videos. But also sorry to hear about your tough time. Things will get better in the future just have to remain positive and push through. Cheers!
I've been lifting consistently and eating right for about 6 years. Last summer I got diagnosed with severe ulcerative colitis/pancolitis at 28 years old. I was flaring hard and lost 16 kg of mostly muscle in a few weeks. It sucked but I accepted my situation and focused on getting better. After struggling to find the right meds I'm now doing good on infliximab and balsalazide. I've since gained back all of my muscle and I'm stronger now than I was before I got sick. It's crazy how quick you bounce back after losing everything. Lifting was always a huge part of my life but now it really has become a way to prove to myself and the world that I thrive despite this awful disease.
Thanks so much for sharing your story! Damn 16kg is so much muscle lost, that must’ve been so frustrating. But for real, getting a disease such as this one really gives you perspective. Once you get back to a good stage, the motivation is so high to be the best version of yourself and never take it for granted. Best of luck with your journey! Sounds like you’re on a really good path with your meds
great video mate. definitely align with your thoughts on it all. i’ve spent 3+ years in the gym training hard and eating well but never able to stomach supps and get enoigh calories in to be “jacked”. recently after my diagnosis it’s given me a lot of clarity and i’ve been shifting my energy and focus more onto the running/triathlon side as that’s what i find my body is better suited torwards. cheers again for the video ben !
Thanks Dom! It’s such a hard thing to juggle and especially when people don’t know about the condition it can be extremely frustrating when people don’t understand why you’re not making progress. Yeha man that’s awesome!! So glad you’re into running too, I’ve found my body is thanking me for it and the pressure of wanting to look swole has gone away
My son (21)is currently going through checks for this disease. We waited so long for colonoscopy but finally had it last week. There are ulcers on his large intestine and also on the small one. They took biopsies so we are now in waiting process to see if it's ulcerative colitis or Crohn's. . It's nerve wracking. He needs MRI scan as well to investigate bowel.. I feel so bad for him. I am trying to stay positive by thinking that the medical team reassured me it's not cancer. That's what I was dreading so much. When I hear you talking about your weight and how you gained it, I get hope for my son. Keep well!
Glad to hear this video helped! I really hope your son is doing okay, I promise that it will get better, and eventually he will be healthy once again. From my own experience, the first year is the hardest then you begin to learn so much and realise that it’s not so bad. All the best!
It is very useful for me, a parent of a boy with Crohn's, to hear your story, to see you well, hoping that my boy will go on the same path. Three months ago when symptoms appeared my world collapsed, I have been devasted and now I need to put myself toghether and go on. Your videous help me a lot in this respect. My son got some weight, probably part due to steroids, part due to Modulen milk recommended by doctors. I'm a little bit more confident that we will find a way to live with that and I will see my son growing adult. Thank you!
So glad to hear it! Yes I’m sure in a few years time he will be very healthy and will live a normal life :)
Моему мальчику на прошлой неделе поставили тоже этот диагноз...я вся в слезах уже неделю😢
@@vladavolya2242 I know Russian just a little but I think I undestand what you said. What I can tell you is that indeed it will be a tough period for you and the child but the child will be ok. There are quite effective treatments and will be ok. I know what you feel as parent, my eyes are full of tears when I write is the hardest thing to be parent of an ill child. I hug you and your child, I tell you than will be all right. My boy is ok now, unfortunately still very thin and now in Romania there is flue epidemic and Friday came from school tired and with fever. We take a test and he has flue type A. Which is your country when you stay? Wish you and your child hope, strong, health! I pray for you from all my heart!🙏
@@vladavolya2242 I know what you feel, is the hardest thing to be parent of an ill child but I tell you that everything will be all right. There are some very effective treatments and your child will be better in 3-4 months. I have tears in my eyes when I write to you, I will pray for you and your child from all my heart! Wish you to be strong, optimistic and confident that your child will be all right! 🙏
@@vladavolya2242I know what you feel, I was in the same situation seven months ago and my eyes are full of tears when I write. I pray for you and your child, wish you to be strong, there are treatments quite effective and I hope your child will be ok in 2-3 months. 🙏
I appreciate your honesty in presenting your Crohn's disease journey. Many are selling programs of natural IBD healing. We know that medicine is mandatory, while diet, lifestyle, and environmental factors can help. Finding and affording the proper medication is still a problem.
Thanks so much! Couldn’t agree more, I’ve seen a few of those videos and it always makes me nervous when people suggest the natural way as it’s not always best for a lot of people with severe symptoms. And agreed especially in developing countries having access to these drugs is the biggest problem sadly
Thank you ❤️
No problem!
Another youtuber with Crohn's said he doesn't eat food that mechanically irritate the gut. For example nuts. Do you have experience with whether this is tolerable?
I don't know if I have Crohn's, but I have low tolerance off gluten and fructose ..and I am unsure about nuts.
I enjoy your videos, they are so informativ!
Yes that’s very true and makes sense! Nuts specifically I eat in small doses because I like them and they’re quite good for you - but never more than a handful especially almonds. Glad you like the videos thank you!!
@@benjaymun Thank you for your answer, very helpful!
Thanks for these videos. I am still waiting for my results after my colonoscopy, but it is a foregone conclusion what I have due to fam history, other tests, etc. Do you know how long it takes to get the tests back and for them to put me on treatment? Too many painful days.
Glad you’ve found them helpful! It’s tough to say, for me it was literally 1 hour after the procedure they said it’s most likely crohns and I was put on meds right away, but that was because my gastroenterologist did the procedure. Hope it’s not too much longer for you :)
Hi Benjamin,
I have a question, so do you remember when you take azathyoprine, your blood tests, specialy amylase, were in range? My son’s blood tests show a amylase increase beyond superior limit( 134 vs 100).
Hey! Unfortunately I really can’t remember as it was 6 years ago :((
@@benjaymun no worry, thank you for your answer. My son’s gastro doctor does not answer to my questions, I am just the dad, not important.
Hello friends, I have a question about the precautions that must be taken when taking Imuran. I read in the drug leaflet that taking the drug requires gloves, then sterilizing the hands, isolating the toilet from the rest of the family members, and isolating the laundry as well. Is this true? I hope that someone with experience will inform us.
i make a banana ,amaranth and peanut butter shake with coconut milk or water to gain weight
Sounds great!!
I am from india we cannot afford biologics is there any treatment which will help for long time apart from biologics
I’m not too sure sorry! There’s definitely other medications out there though :)
Damn I'm so sorry. There are several medications that treat IBD, like mesalamine and azathioprine. A lot of people go their entire lives without needing biologics, but I hope you get the meds that you need.
Sodium butyrate has helped me with my crohns symptoms, its used by colon cells to fuel and heal your gut. Might be worth a try 🤟🏽
Yes i am from india too. And i gaining back
Im got diagnosed at 12 and now im in high school and as a girl with weight its hard because if im not gaining of even loseing a bit of weight the doctors think im sick 😅
Also ive been on seroids and stuff for chrons have you every been on infusions im having them for two year and i feel a bit like crap afterwards
Hope you get better soon! Only had 1 infusion...I've heard its normal to feel tired after, but then it should be okay the next day :)
@@benjaymun thank you :)
You can take protein powder ?
Yes for sure!! I just have a dairy-free one
Bro are black stools symptom of crohn disease
Hey man, it’s possible but it could be many other things too!
Do you take whey protein.. Because protein is important to build muscles.. Also to gain weight you have eat a lot.. Do you face any difficulties when it comes to be in calories surplus
Hope you doing well
Hey bro! No whey anymore, it upset my stomach really bad. But now I take collagen powder and it’s so much better. And yes! Getting in calories was very hard, because the more you eat the more you have to go to the toilet. So I just try to prioritise protein trsllt
Hi brother. Does blood test show any sign of crohn's? Or sodium, potassium levels?
It can show inflammation markers! And if they’re high they’re it may indicate something is wrong and then you would probably have a colonoscopy
If you don't mind me asking, are you taking any medication from the hospital? I was told that I need to take Humira but I also heard all the side effects that it could cause. Would it be better to just eat healthier and heal it on my own or should I take the Humira pen that the doctors are recommending me to take? Also its super expensive so if I ever need to quit taking it, wouldn't my pain come back even stronger. Its all too much
yes I have stelera injections which is very similar to humira. If you're doctor has suggested for you to take it, it would be a great idea, it's meant to be very effective :)
Its 0 problems unless one dont have a stomi
Correct
Hey, I've DM'ed you on insta, I had a few questions, and would love to chat there if possible. Thanks!
Hey Sanya! For sure just replied :)