Відео

What percentage of recovery did you have?

I'm doing the carnivore diet, taking 80mg propanolol a day and 50mg sertraline for 3 weeks and attacks have practically stopped completely. I have had ibs for 19 years now and can't eat fruit or much vegetables but I also don't want to stay on the carnivore diet for long as it's incredibly boring and anti social and I don't know what foods I can live on and not trigger migraines but I do want to figure it out soon because I own a busy bar and have a good social life.

Hi Amy my symptoms are the same my head feels like a washing machine it's awful I've tried all the meds but like you not gave them a chance to work it's sending me insane thank you for your video they are very helpful

Thanks for the vids! I have a question. I'm currently waiting for the doc to get diagnosed. I always have migraines but this time it's been a month of the vestibular symptoms. I get a bit dizzy when I stand up in the morning, super fatigued but the dizzyness is strange. When I walk in a hallway or supermarket I feel like the floor is tilting. I feel kind of like I'm on a boat and everything is slanted and it makes it hard to walk. This is all specifically with walking. But it's almost like my Brian has issues seeing things straight and not slanted.. does that sound like VM? I get other silent migraine symptoms too like sensitive to smells lights slight head pain, etc.

Thank you for sharing, so helpful 🙏🏼❤️ Dealing with vm and pppd 3 years now. It’s really sucks. But I’m sure soon I’ll be fully healed. ❤️

What worked?

You sound like you have Menieres Disease as well?

Hey Amy! Awesome to actually listen to you describe all of “our” symptoms vs just reading them on our mutual platforms. I was diagnosed with VN mid 2020 and the Dr. (Otolaryngologist) added PPPD later that year. You are so spot on how this is always with us, it just varies in intensity on a daily or weekly basis. So many different symptoms, it’s just crazy! Based on what you have said Dr’s have told you about VM, that may be part of my situation as well. I, on fairly rare occasion will get Aura with wavy lines in my peripheral vision. I can usually tell when that is coming on because my vision changes where letters start missing when I’m trying to read. Usually lasts 30 to 40 minutes. My worst symptom has to be feeling “off” or dizzy just about 24/7. As you said, it varies in its intensity though. My other symptoms include: neck pain, ear fullness, balance issues (if I ever get pulled over by cops and they want me to do field sobriety test I will tell them forget it, let me blow instead. I would so fail field sobriety tesr🤣). ---- thank you again for sharing your story! Have you ever checked out PPPD and Life on FB? Take care! Wish you the best!

I got a dog 🐶 that has been a trigger for me but I think 🤔 it’s due to head movement , I get it in summer time but I did do vistibular exercises & it cured me

I’m so grateful for your videos as a fellow sufferer Amy!!

Thank you Amy!!!

This is my experience, thank you for sharing

Was diagnosed with VM after 2 years of hell.. this shit nearly cost my life. Luckily I had my wife& Kids by myside they keep me going threw this Bs .. only now I have gotten on medication . I hope everyone that has this condition get better soon. stay strong people .

Bonjour

You said in one of your more recent videos that your doctor mentioned going to vestibular physical therapy. He mentioned your ear was effecting your dizzy and balance issues. Just wondering if you went and did it help your vestibular system

Thank you for this video. I have never been ANYWHERE near as depressed as going through vestibular migraine. Extremely suicidal as well. Bedridden, extremely anxious and agitated. Absolute living hell. I’ll keep trying. This all feels like a bad dream

Hi great video. Inspirational! Can I contact you for some advice on Botox? Rich

This video is still helping someone! Me! So thank you haha, it’s been a wild time lately. It’s good knowing I’m not alone or crazy. Thanks again. Best of luck to all of us.

And read the gospels and find your truth. The Holy Spirit will lead you there if you ask

They said To me and it helped...when the dizziness starts Focus on a fixed point on the wall until you brain works out the horizon.

Thank you for sharing your struggles with this terrible condition. I’m so sorry you are going through this but please know that by sharing your story you are helping others like me feel less alone. I admire your courage. My own rollercoaster journey with dizziness and vertigo started this past April. I was initially told by my ENT that I was probably dealing with Ménière’s disease but have since been told that it’s vestibular migraines. I’m experiencing photophobia right now and chronic dizziness 24/7 along with severe attacks of vertigo that can last anywhere from 10 minutes to 6 hours! Thankfully the vertigo attacks are less frequent than before but their randomness and unpredictable nature makes them really frightening! Compared to other illnesses I realize that VM is not a terminal condition but it is certainly life altering. I’m really struggling to stay positive right now but I haven’t given up hope that things can get better. 😔

Sharing the fact that 2 years later you are 70% recovered will encourage many people. It encourages me. I'm a year and a half into this, and just knowing that in time, I too may get better keeps me hanging on. I have not had a formal diagnosis by doctors, but I've seen several doctors...they think the rocking dizziness, balance issues and gait issues, as well as the tinnitus are caused by stress. It is assuredly stressful dealing with all of this and it does make it worse, but stress did NOT cause this. I listened to Dr. Teixido and his explanation of the progression of vestibular migraines and I realized based on my medical history that my symptoms are classic for vestibular migraine. ( Finding out that my IBS is prob. not IBS at all but instead abdominal migraine was hard to wrap my braini around, but it made perfect sense when looking at all the puzzle pieces. The next step, I think for me, is to see a neurologist. I realize the limitations of getting the correct diagnosis b/c VD is misunderstood by most doctors imo. Knowing that people do get better gives me hope; so thank you for sharing your experience.

Bonjour pourrait tu mettre des sous titres en francais dans tes vidéos 😊

You poor dear. I see this video is 3 years old. I hope your VM condition has improved. I was in a motorcycle accident 4 1/2 yrs. ago. Lost my left leg (below knee), torn aorta (stent), traumatic brain injury (TBI)(my helmet, among other things, saved my life). It was because of the TBI that I started to get debilitating vertigo. Went to neurologists, ENTs (2), vestibular therapy (3 practices), a neuro-opthamologist, had the 4 hour vestibular diagnostic testing (twice-once right after my accident, and just last month). Have had multiple Epley maneuvers. BPPV has pretty much been ruled out (although I would contest this as there are times when I spin around quickly preparing a meal in the kitchen or bend sideways tilting my head to look at something and would set off my vertigo). My 2nd go around with VT they asked what type of glasses I wore. I said progressive lenses. They said, “Oooh!” and suggested going to the neuro-opthamologist. Now they say I have “Visual Vertigo”. No more progressive lenses (which I had been wearing for years although I had just recently had a new Rx and my vertigo frequency had increased). The Neuro-Opth has me using Brinzoamide eye drops off label use normally for glaucoma patients to relieve pressure in the eyeballs. My neurologist has me on a once-a-month (epi-pen like) migraine injection Ajovy. New VT practice, asked if I had ever had high resolution imagery of my inner ear and referred me to an ENT. Had an MRI of my brain, inner ear, vestibular diagnostic testing. All looked normal. His diagnosis-Vestibular Migraine. He put me on 25mg of Topiramate (an anti-convulsant drug). I just started it about 2 weeks ago. We’ll see what happens. So I’ve been trying to crack this nut for 4 1/2 years. It would be nice if the different doctors would collaborate. Each one has a different approach! Once again, I hope your condition has improved! Cheers!

How are you feeling lately?

I started to get dizzy spells about 3 years ago.Many times it was brought on by my PC monitor.At my worst I was 12 hours on the floor after an hour of vomiting.I remember crawling on the floor ,eyes shut, to reach the bathroom.Once or twice I was out when I suffered attacks.Absolute nightmare.Eventually it all faded away but it took many months.I remember wondering if I could face it again...basically contemplating suicide.Anyway it is back again but not as acute as previously.Just had 10 days of fluctuating dizziness.I spend many hours lying down wondering if I will be able to get to the shop.I do have tinnitus and partial deafness in one ear but my attacks always seem to start with my vision.

I recommend everyone a functional medicine neurologist. With neuroplasticity you can get better.

Thanks for all your videos I just watched your last one and even though it's been a long time it's encouraging you are down to just brain fog for me the brain fog and all the symptoms kind of rotate back and forth I'm 9 months in

Hi Amy did you get rid of the depersonalization n deralization? Did it completely go away where you feel like you did before you got it where you feel back in your own body and aren't stuck in a dream like state, if so how long did it take to go away? And what did you do on your journey i hav these symptoms constant i feel like just giving up

Did your depersonalization n deralization go away im absolutely fed up 😢 so disconnected from me own body and reality, this is unbelievable feel like im giving up

Hi Amy i have the depersonalization and deralization terrible with this had it constant 3 months now, will the depersonalization and deralization go away or not im absolutely fed up, feel so disconnected from me own body and reality

Hey i have vestibular migraine and i have depersonalization through it, regardless of the vestibular migraine going away will this depersonalization go away or not? Its an absolute night mare am loosing hope 😔💔 do you know anything i can do etc? Have no support

Anyone has any opinions on oxygen tanks or oxygen concentrators when flying?

I'm exactly lthe same as you!! Only thing that keeps me negative feeling about it all is because my hobbies are quite physical and involve running 🤦🏼‍♀️ but I do love the gym!!! Had to give it up completely for 8months after I'd worked so hard to get in shape. Now I'm starting from scratch getting motivation back is hard, also because I know an hour of weights really works on the brain and I have to kinda rest the remainder of the day. So sorting my schedule around it is difficult. But I truel appreciate your full honesty x

I disagree with the ssri’s or use of benzodiazepines during the onset of a vestibular issue...granted they can make you feel like you have ‘’ reduce symptoms ‘’ when in fact they are still present plus they indefinitely SLOW HEALING and that’s NOT what anybody wants .

Everything you said I’m Experiencing this all day .. going on 2 months in..seen 16 doctors and no help.. I’m learning more from UA-cam then the doctors 🤦🏾‍♀️ thanks for sharing

Olá podes me dizer se tens nistagmos? Cumprimentos

Has anyone ever had a weird moving/crawling feeling under their ribcage???

I feel exactly how you feel its aweful full of cotton and auras pain not so much....

Thanks i know this is an old video now but im 2 years in and yes it really helps to hear other stories and hear the similarity and progress Cheers Neil sydney Australia

So good to see you better and you are lucky to be able to show your pretty eyes, I cannot go outside without glasses. It’s been 2.5 years since my first wild attack and after anticonvulsants and antidepressants journey and reading 5 different books. I’ve set on a vegan, gluten and sugar free diet plus HYH diet. I’ve been sooo much better. Drugs got me to my 60% but diet got me to almost my 100%.. now that I’m wearing the meds off it’s a bit different 80-90% but diet I believe is the key. Thanks for recommending heal your headache in one of your videos, that set me in the right path :) From the bottom of my heart, thank you!!!!

Your videos are helpful. Thx

Great video Amy. Hope you keep getting better.

I just found your videos and I’m thankful for you because I have been dealing with this for 6 months and I’m doctors don’t diagnose me yet they are still running test but can’t find anything there are days I am so depress and I’m tired everyday and this sensation of being on a boat 24/7 is the worse

Did it feel like you had a stroke one night?

Do you feel that talking about your derealization makes it worse? That’s how it is for me. Like when I start explaining how I’m feeling I just get deeper into this weird alternate spacey world.

Amy have you ever consider getting your hormones tested? Oestrogen and progesterone have been linked to migraine

Hey Amy did you end up getting botox? If you did howd it go, was it a trigger?

Helpful. Thank you. I have been having increasing symptoms and have gained weight. I am afraid of going on walks and have decreased my physical regime markedly. Comforting to hear the effects it has had on you as well. Continued progress to you.

Maleine I can relate to you all of your symptoms. I have been having migraine for many years too. Most of the time I feel like it is taking over my life completely. I want to thank you for sharing and making an effort to make this video. You are not a lone.