I love that you detail your journey. I've had this for a number of years...and got well. A good friend of mine is in the UK and knows us both! She and I started this MAV journey together. You are brave...you are a warrior! Again, wonderful job.
So good to see you better and you are lucky to be able to show your pretty eyes, I cannot go outside without glasses. It’s been 2.5 years since my first wild attack and after anticonvulsants and antidepressants journey and reading 5 different books. I’ve set on a vegan, gluten and sugar free diet plus HYH diet. I’ve been sooo much better. Drugs got me to my 60% but diet got me to almost my 100%.. now that I’m wearing the meds off it’s a bit different 80-90% but diet I believe is the key. Thanks for recommending heal your headache in one of your videos, that set me in the right path :) From the bottom of my heart, thank you!!!!
Thank you for the update!! Its something we do have to live with the rest of our lives but as long as now we can live our lives again and not be trapped in the chronic state, its all good. So glad you’re on the road to recovery. Yup, that brain fog is the worst. Sometimes it almost feels like dementia or something right? Hate it too. Yes I totally understand you not being on the group as much. I too try to stay on. Not only to help but I always get nervous I may relapse and I try to make sure I’m doing the right thing and it keeps me on tract to remind me to stay on my diet, supplements and medication. Thanks for always sharing your journey. I remember you were chronic about the same time as me and you’ve helped me a ton too. Stay healthy!❤️
I just found your videos and I’m thankful for you because I have been dealing with this for 6 months and I’m doctors don’t diagnose me yet they are still running test but can’t find anything there are days I am so depress and I’m tired everyday and this sensation of being on a boat 24/7 is the worse
I disagree with the ssri’s or use of benzodiazepines during the onset of a vestibular issue...granted they can make you feel like you have ‘’ reduce symptoms ‘’ when in fact they are still present plus they indefinitely SLOW HEALING and that’s NOT what anybody wants .
Thanks for all your videos I just watched your last one and even though it's been a long time it's encouraging you are down to just brain fog for me the brain fog and all the symptoms kind of rotate back and forth I'm 9 months in
You said in one of your more recent videos that your doctor mentioned going to vestibular physical therapy. He mentioned your ear was effecting your dizzy and balance issues. Just wondering if you went and did it help your vestibular system
Thanks for the vids! I have a question. I'm currently waiting for the doc to get diagnosed. I always have migraines but this time it's been a month of the vestibular symptoms. I get a bit dizzy when I stand up in the morning, super fatigued but the dizzyness is strange. When I walk in a hallway or supermarket I feel like the floor is tilting. I feel kind of like I'm on a boat and everything is slanted and it makes it hard to walk. This is all specifically with walking. But it's almost like my Brian has issues seeing things straight and not slanted.. does that sound like VM? I get other silent migraine symptoms too like sensitive to smells lights slight head pain, etc.
Hi Amy did you get rid of the depersonalization n deralization? Did it completely go away where you feel like you did before you got it where you feel back in your own body and aren't stuck in a dream like state, if so how long did it take to go away? And what did you do on your journey i hav these symptoms constant i feel like just giving up
I was just diagnosed in Feb/March....it's miserable....but I am starting to notice some patterns but not sure if it is just a coincidence or legit. One of the exercises that I think I am noticing a positive pattern with is flamingo stance and single leg deadlift with light weights....is that a thing? Could that be a coincidence or is it something that makes a connection with balance and vestibular migraine disorder? Have you heard of this helping?
Do you feel that talking about your derealization makes it worse? That’s how it is for me. Like when I start explaining how I’m feeling I just get deeper into this weird alternate spacey world.
I love that you detail your journey. I've had this for a number of years...and got well. A good friend of mine is in the UK and knows us both! She and I started this MAV journey together. You are brave...you are a warrior! Again, wonderful job.
So good to see you better and you are lucky to be able to show your pretty eyes, I cannot go outside without glasses.
It’s been 2.5 years since my first wild attack and after anticonvulsants and antidepressants journey and reading 5 different books. I’ve set on a vegan, gluten and sugar free diet plus HYH diet. I’ve been sooo much better. Drugs got me to my 60% but diet got me to almost my 100%.. now that I’m wearing the meds off it’s a bit different 80-90% but diet I believe is the key.
Thanks for recommending heal your headache in one of your videos, that set me in the right path :)
From the bottom of my heart, thank you!!!!
Thank you for the update!! Its something we do have to live with the rest of our lives but as long as now we can live our lives again and not be trapped in the chronic state, its all good. So glad you’re on the road to recovery. Yup, that brain fog is the worst. Sometimes it almost feels like dementia or something right? Hate it too.
Yes I totally understand you not being on the group as much. I too try to stay on. Not only to help but I always get nervous I may relapse and I try to make sure I’m doing the right thing and it keeps me on tract to remind me to stay on my diet, supplements and medication.
Thanks for always sharing your journey. I remember you were chronic about the same time as me and you’ve helped me a ton too. Stay healthy!❤️
I just found your videos and I’m thankful for you because I have been dealing with this for 6 months and I’m doctors don’t diagnose me yet they are still running test but can’t find anything there are days I am so depress and I’m tired everyday and this sensation of being on a boat 24/7 is the worse
Hi Amy! So glad you are doing better!
Question: were your rocking dizziness 24-7 at the beginning?
I’m currently suffering with VM. Hope you’re feeling better, beautiful 💕
I disagree with the ssri’s or use of benzodiazepines during the onset of a vestibular issue...granted they can make you feel like you have ‘’ reduce symptoms ‘’ when in fact they are still present plus they indefinitely SLOW HEALING and that’s NOT what anybody wants .
Thanks for all your videos I just watched your last one and even though it's been a long time it's encouraging you are down to just brain fog for me the brain fog and all the symptoms kind of rotate back and forth I'm 9 months in
Love your videos amy - thank you your looking so well - your an inspiration ❤️
Yes, I pray for a long sleep if it's going to continue on. Been rocking a year.
Thank you!!!
and.... you are beautiful!!!
Amy have you ever consider getting your hormones tested? Oestrogen and progesterone have been linked to migraine
Thank you for posting this.
You said in one of your more recent videos that your doctor mentioned going to vestibular physical therapy. He mentioned your ear was effecting your dizzy and balance issues. Just wondering if you went and did it help your vestibular system
Bonjour pourrait tu mettre des sous titres en francais dans tes vidéos 😊
Thanks for the vids! I have a question. I'm currently waiting for the doc to get diagnosed.
I always have migraines but this time it's been a month of the vestibular symptoms.
I get a bit dizzy when I stand up in the morning, super fatigued but the dizzyness is strange.
When I walk in a hallway or supermarket I feel like the floor is tilting. I feel kind of like I'm on a boat and everything is slanted and it makes it hard to walk. This is all specifically with walking. But it's almost like my Brian has issues seeing things straight and not slanted.. does that sound like VM?
I get other silent migraine symptoms too like sensitive to smells lights slight head pain, etc.
Hey Amy did you end up getting botox? If you did howd it go, was it a trigger?
Hi Amy did you get rid of the depersonalization n deralization? Did it completely go away where you feel like you did before you got it where you feel back in your own body and aren't stuck in a dream like state, if so how long did it take to go away? And what did you do on your journey i hav these symptoms constant i feel like just giving up
I was just diagnosed in Feb/March....it's miserable....but I am starting to notice some patterns but not sure if it is just a coincidence or legit. One of the exercises that I think I am noticing a positive pattern with is flamingo stance and single leg deadlift with light weights....is that a thing? Could that be a coincidence or is it something that makes a connection with balance and vestibular migraine disorder? Have you heard of this helping?
Atleast you have a diagnosis. My doctor is more concerned with his ego than actually helping.
Has anyone ever had a weird moving/crawling feeling under their ribcage???
Do you feel that talking about your derealization makes it worse? That’s how it is for me. Like when I start explaining how I’m feeling I just get deeper into this weird alternate spacey world.
Yeah when you think about it it will feel alot worse. I think if you take your mind of it and accept it then it will go away very gradually.
@@James-ip8xs hi could u help me please
@@James-ip8xs hey did u recover