Vestibular migraine ... 10 months in and improving :)
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- Опубліковано 5 жов 2024
- Hi guys I’m so sorry I left it such a long time to give an update , but this is where I’m at 10 months in to this journey . I hope by sharing this video it raises awareness and helps many people going through the same thing :) please share to anyone this may help
Thx so much for this video. I've struggled for years off and on w symptoms but last year after a head injury it catapulted me into a 24/7 vestibular nightmare. Driving is my hardest part I'm having to let go of from motion and light sensitivity, down to only driving local on "good" days. Im coming into acceptance, working w new drs soon and keeping a positive outlook but of course noone understands my sitiation since us who suffer from this look fine on the outside. Your description of it was spot on and I'll use it w my loved ones . Knowing I am not alone helps and I wish you more progress. I am going to start a channel to uplift others soon hopefully myself and you are an inspiration. Thx and keep up the good work!
Wow this is crazy, this sounds exactly what I went through! Everything that you said in this video is exactly how I felt when I was diagnosed with vestibular migraine. The floating, out of it, hard to be out in crowds feeling, is just so hard to tell people and hard for them to understand. Thank you for sharing this video it is so important to spread awareness about this chronic illness, and I love what you said about us having a migraine brain. I hope you're feeling better!!!
Laura Madeline thanks so much Laura ! God it’s nice to know it isn’t just you that’s having these crazy symptoms :) I’m def better my lasting symptoms seems to be the out of it spacey feeling it is soooo hard to explain ! How r u doing these days ? :)
You definitely will get there Amy! Great video, and it just shows that this condition can be controlled and we can get our lives back ♥️
Jen E Lines aww thanks so much lovely I know we’ll get through this !! :) and be stronger for it I hope the nort is starting to help you :) xx
You look better!!!! Sound better!!!! This brings me hope! Thank you so much.
Minnie M thank you so much and so sorry ur going through this ! It does improve be kind to yourself and ask for help and understanding. Most importantly find a good doctor and be patient xx
Awareness about this is SO important. Thx for making the video. 5 years ago when this all went super crazy for me there was very little about it out there so the more the better! At first I thought it was a brain tumor as some similarities. I used to get the head pain migraine parts rarely with it but now they're almost daily pain on top of the rest😢 Unfortunately I've tried 25 meds to no avail. Hard not to give up but I won't!
Roshan Wright I’m so sorry to hear this roshan something will work for you just so hard to get the right combo for everyone keep going x
for once and your headache will be relieved within 2 minutes. My clients who are using this products, either their Migraine attacks are mild or less frequent.
My fb - Headache Herbal remedy@notoHeadache - or Migraine Nomore. Hope to see you there!
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I briefly remember some of your first videos and one when you explained your symptoms I sat and cried as I was the exact same I'm 9/10 months on and I'm getting there to so there is hope! Xxxx
Kerry m aww Kerry thank you the fact I could bring any relief to you that your not alone makes me greatful I made these videos ! I’m 10 months on and improving we will both get there it’s just a bloody long ride ! Xxx
Amy Shockett you defiantly bought me some relief I was in a very dark place and honestly watching your videos gave me hope xxxx
I was when I made the first video I am so greatful to not be back there we wil def both get there :) xx
Thank you for your honesty about drugs. I have tried MANY and nothing works. In fact, makes it worse and makes me very ill. I have changed my diet immensely. But now I am going to change to no avocado, no nuts, no bananas, no citrus fruits. Hopefully that helps. I resonate with your video so much. It makes me have anxiety really bad. I just don't want to take anything because drugs have given me dangerous and scary side effects.
Bless u and everyone else who is going through this... We definitely need more awareness and understanding of this condition the whole 6 years I've had this no-one has ever once understood me or my symptoms apart from those who I have spoken to online. My brother is a doctor and still till this day doesn't fully understand it. I did see a neurologist who confirmed I had migraine associated vertigo but more awareness is needed as its definitely life altering.
Sumra Aslam I completely agree it is truly one of the worst things I’ve ever been through. I don’t think anyone could possibly get it unless they’ve lived it . I do hope after 6 years your getting some relief 🙏🏼
@@amyshockett1662
thank you..in the 6 years I've had this it has improved alot so to anyone reading this it will get better it's just changed recently in the form of painful migraines I hope to get out of this cycle of painful migraines. Hope everyone and yourself get better xx
Hopefully the ami works for you soon hun I sometimes wonder if pain migraine would be easier than dizzy ones 😬
@@amyshockett1662
I've experienced both the awful daily dizziness and the derealisation feelings and just feeling so uncomfortable doing anything as it upset my vestibular system and now v painful migraines that have left me crying at times I often think what would i prefer but truly I think they are both just as bad as the other. My migraines now aren't like the classic migraine it's a vestibular migraine I get times I'm dizzy and feel horrendous but with added pain and I'm totally out of order till it passes and they usually last 3 full days. The ami has helped but not entirely eliminated them I am trying to go up to 20mg currently on 15mg the higher dose gave me head pressure so hopefully if I wait and then go up slowly I can see more benefits of this med. Sorry for the long post.
I’m so sorry to hear that :( tbh your probably right both are debilitating and horrible however I truly hope you find some relief it passed before so I am sure it will pass again :)
Last July (2019)I was diagnosed with permanent vestibular nerve damage to the right side of my brain supposedly due to Lyme disease.It has now been 5 months and I feel my conditions are getting worse. Depression is definitely kicking in. I was told recovery can be anywhere from 2 months to two years. Hoping for the best for the future. Sitting here with a splitting migraine as I type this. Balance and vision is off every day. Just sucks....
Awesome video that touches on the harsh realities of this condition and finding the right treatment which isn't easy. I was wrongly diagnosed for 15 year's. Told me balance organ wasn't working very well. You mentioned driving I was managing some driving till GP asked me to stop Nov 2018 but at that time I was avoiding flyovers and going over motorway bridges. Can't visit a shopping mall would fall over all the time. I'm 55 now and had to stop working at 45 because of this was falling over all the time. But looking back I was getting some of the symptoms in my 20,s but in a fragmented way. Let's hope we all improve some
I feel like you talking about my symptoms and how I feel...very similar..I can understand and feel your pain. This issue make person feel disable. Even with medication you not 100% feel good.i hope you will feel better and there will be some cure for that vertigo.
@Lara Mamriev , please tell me you feel better! I need hope! As I’m suffering with this sh*t too!! 😕😖 I’m desperate! Currently on a pill called Flunarizine...hope it will work...
Just wanna say thank you for everything 💙
I’ve been dealing with headaches with the same symptoms for 4 years and now I think I have an answer. Can i get disability for this disorder because I have so much of pain I can’t do anything.
Hi, my mum has this condition and she is in a terrible state, cant leave the house literally cannot see or focus properly at all, constant dizzyness, over bright eyes ear ringing etc. I dont know what to do for her she has even been suicidal with it saying she cannot go on like this.. its really tough
How is your mother doing now?
Hi Amy, I suspect I have this or similar. Did you experience tinnitus and did it calm down when your symptoms were more controlled? X
I tried nortryptiline, clonazepam, kinda worked, then cinnarizine, pizotifen. Been a month now but no noteworthy improvement. I get sound intolerance, migraine vision, static vision, head pressure, dizziness, etc. Drugs arent working and Im loosing it.
Toaha Sunny I’m honestly with you on this it’s so hard I’m on my 5th med I think it’s so trial and error I’m gonna do an update soon as I’m 13 months in with this crap now!
@@amyshockett1662 thank you, do let us know how are you holding up. Hope you find the right treatment.
How much Klonopin? I needed about 1.5mg.
I need help. My Dr. Diagnosed me with Meniere's Disease but I align almost perfectly with vestibular migraines. I'm miserable and lost. In need of a doctor who knows what they're talking about. I don't want to do this anymore. Desperate here
Thought for years i had occipital neuralgia....which i still think i have to some degrees...but i had never heard of Vestibular migraine
I may be onto something here....Had vertigo for 18yrs + along with right sided ear pain....tmd..and neck ,temple ,eye pain
Did you ever get muscle twitches, especially in legs?
I do
Thank you for sharing this video.
Hi do you have ear symptoms?
How r u now?
its seems this occurs in women more than men ? If you google "what does a vestibular migraine feel like" those are my symptoms. Still haven't had a solid diagnosis, I also cant sleep....
What worked?
Sounds just like me. I too saw Dr S last month... He's great. Strange illness but just about ok if acceptance is given. X
Anthony Hall glad you got to see dr S Anthony what was his advice ?
@@amyshockett1662 fairly similar to yours. Brain stem migraine variant balance etc. 6 Cs elimination diet. All mav stuff really. All you say is true. Especially about getting anxiety with it
Anthony Hall that’s great did he give you any meds ... hope ur doing better ?
@@amyshockett1662 yes, nort was suggested but I won't take anything, so I'm doing the migraine diet and a bit better now.
Anthony Hall well good luck !
Love your hair..fabulous
Am from Belize...love it...do more videos
how's your anxiety?? get better?? how's your panic attack????
Wan Nurfatin I have done a lot of therapy so I don’t have any anxiety atm
*_I m from Algeria and peace like u 🇩🇿_*
Did you take any medication to help get better ?
You described me to a T!
Can you please spell the name of the medication you are on. I'm having a hard time with nortriptyline also.
Did you stick with it?
I just want yo know how we can work like this because i am ay the university??!
Did you have tinnitus?
Did you also have body aches ?
I'm also having vestibular migraine
Nice
Hi Amy! Could you please give me your doctors contact? I have seen 10 different doctors and no one can diagnose me with what i have and I feel this could be me, anxiety is killing me, maybe he could help me? thank youuu!!!
Try Dr. Stephen J Wroe, if you are in the Cambridge/Norwich area.
Olá podes me dizer se tens nistagmos?
Cumprimentos
Amy, when you've tried tranquillisers do the symptoms go away?
think i know why it happens. Maybe able to help!
How?
Bonjour