Відео

Amazing, unique suggestions! Thank you :D

Thank you for sharing your experience! I've been living undiagnosed with a complex neurological illness for over 20 years. My health finally got to the point where I can't get out of the house without a chair. My PT pushed for me to get a wheelchair which was very validating. I'm still in the process of getting a power chair, but hearing your experience and advocacy makes me more confident this is the right choice for me. ❤

Awwwwwwwwwwww🥹

Hi Pippa hope you're ok. Just found your channel think your great. Hope you have a lovely weekend. X

This looks like a perfect place for me to chill and rest while mum cycles and explores the area. Website gives no indication of prices per night.

Youre pretty ❤

I'm struggling too in this cold weather

Well done

Great to have a quiet room!

She looks so cute I could rub her belly and cuddle with her all day except my cavapoo doesn’t care about me unless I’m giving him belly rubs or feeding him or coming back from school so I can feed him😭😭

Really enjoyed another travel vlog! This sounds like such a lovely short vacation and definitely something I'd want to do down the line - I've been trying to make a list of vacation sites in the uk we can go to and have a nice time. This seems like it would fit our vibe nicely

He is so cute that he looks like a doll

Im 65 got me 5 yers ago, probably moderate, can walk a bit, need a wheelchair. I was refused PIP and Blue Badeg 2 years ago. Should I apply again as I think I am currently not eligible for VAT relief?

Yes! The cold weather determines how severe my ME/CFS will become not only for the cold months but how it will permanently affect me moving forward. My doctors have a hard time for some reason understanding how the winter affects ME/CFS, which I cant figure out what is so hard to understand. I live on a farm with black angus cows in the US. We own chickens, but I can no longer have eggs. I will admit when you have so much eggs you do get sick of them so I don’t miss eating them.😅

Whenever the weather changes... Auch! Everything hurts.

Fantastic! As always, thanks for sharing! I hate it when I get dizzy too. As you said, not very often, but I've had the whole world turn sideways on me a few times.

Lovely place. Glad you had fun! 😊 I'm also currently going though that difficult adjustment period with worse ME symptoms and lower energy that comes with autumn/winter 😞 I thought it was only me who experiences this marked change...

Aah loved this vlog. Love seeing the autumn colours and the Highland cows. I find too that the start of colder weather is hard on the ME. I can relate also to dizzy spells. Did you buy any books?

That was lovely!!! ❤ I do love animals and those highland cows are so adorable!!! 🥰 This past winter (southern hemisphere) was incredibly painful for me and I just kept dreaming of winning lotto and moving somewhere warm! 😭 But heading towards summer soon and Spring weather has been a lot easier. Probably my energy levels were affected too, but it's hard to tell as I was already declining. It's only been 15 months since symptoms started, so a lot of learning to do. Thanks so much for sharing your adventure in the Scottish country! 🙏❤️

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So glad I found your channel. My reasons are similar to yours. Still learning

Great video. Thanks for your travel insights.

I don't think you've ever shown which camera you use to record your videos - is it all with your phone?

Thank you so much for this video. My dad is new to his chair, only uses it to travel has been on two trips so far. He was very nervous taking a chair to Europe and this video was gold in easing his nerves. Also I am so happy you had such a wonderful time at the beach. ❤❤

LOVE this!!! It brought me to tears because I know in my heart that this is so true, and I am my own worst enemy. It’s incredibly challenging to balance advocacy with professional expectations, and the lack of awareness about dynamic disabilities only makes it harder. Sensitivity training should be a standard for all workplaces to ensure that people, especially those with disabilities, feel seen, valued, and supported.

I absolutely love your travel vlogs. You're showing that chronically ill people can also travel and enjoy life. If they adapt the travel plans to their issues.

Ah I love your travel vlogs! It's always so nice to see what you're getting up to and all the accessibility of these destinations. It's lovely to see and fun to daydream about 😊

You're a really good travel vlogger! You're funny, the places you visit are interesting and all the tips you have for people with disabilities and dietary restrictions are pure gold! I like how you do the tips last, it's a format that has a good flow. Thanks for everything that you share with us! 🙏❤ Side note: I highly recommended the 2008 comedy, "In Bruges," for those who haven't seen it, it shows the beauty of Bruges and is hilarious!

Hi what is the disabled bathroom in your hotel like? I know what it is like to zipping with a wheelchair you do need 2 people because you do need to take the wheelchair away

Aw Pippa, Bruges looks stunning. I love watching your travel vlogs and am excited to see where your next few trips will be.

i'm staying in the exact same london hotel for my eurostar journey next month 😂 i'm really nervous (only been abroad once when i was young) but this is such a helpful video Pippa!!

You can watch the vlog from Ruby's first few weeks at home here: ua-cam.com/video/mErJH2VUM9o/v-deo.htmlfeature=shared

Thank you for this video. Until a few years ago my ME was always very mild, to the point I often was confused and not 100% sure I had it. It's since become more mild-moderate, so I'm more sure that I have it, which my gp has always agreed with but because it was always so mild we never persued a specialist or formal diagnosis. I've never been at a point of need mobility aids, but recognise it potentially is in my future, specially as I'm now being tested for arthritis aswell & have pelvic issues & plantar fasciitis 😢 so this video has been useful for me, thank you 😊

I spent my 21st Birthday in Bruges in October 2005 we did the boat trip and a horse and cart tour then went up the tower which I will never do again I hated it was too hight but we had started drinking at like 11. o'clock clock that day and ended up in a super nice Irish Bar. thats was before I injured my neck. I do wanna go back at some point maybe next year for my 41st. glad u both had fun and that Izzy can do stuff while u are sleeping.

She is the cutest! Ive got a cavapoo called Minnie, she’s new aswell but she’s darker coloured

Now that I've had my chair for a bit, I had to come back to see which accessories you have. I think I need a different cup holder, as the one I have sits lower than it should. I have the higher back, which is GREAT, as it supports my back and shoulders better, so I'm not as fatigued by holding myself upright. If anyone's finding that you're getting shaken around, and tiring out your core, the higher back really helps. I have the arms on my chair up fairly high too, so I can rest my elbows and forearms on them easily, taking strain off my shoulders. Thanks for providing a list of the accessories you have - I don't have easy access to some of those specific items here in Canada, but at least I can look up what you've found useful, and aim for similar.

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How well do these handle hills?

ua-cam.com/video/aZ_BlFuhcdw/v-deo.html

I really wanted a robooter but you can’t get them on motability 😢 so this is a potential option

"What's wrong with you?" "I can't pull off a pixie cut. I've wanted to for ages but it wouldn't suit my face!"

Great vlog Pippa. I live in Bristol (on the outskirts) I am glad you had a relatively good time here, though the taxis do leave a lot to be desired. I am just getting started on my wheelchair journey, just got a basic self propelled wheelchair through the NHS, but looking at power add-ons to help out more, but finances are tight, so may be a little while yet. Having said that, I am so thrilled you showed the aquarium, I so want to visit it, as soon as I am able!! 😊

I've heard "ambulatory" pronounced differently in different countries - here in the U.S., it's am-byoo-luh-toh-ree.

I have POTS and EDS, but the main reason I use a wheelchair is because of an L5 incomplete spinal cord injury I sustained almost 9 years ago (no actual broken bones, but significant nerve pressure on my spinal cord that still frustratingly acts like it). I feel like I'm in an even rarer subset of ambulatory wheelies, because I can walk as far as I want on uneven surfaces without any issues (if uphill is involved, I might have to stop to catch my breath, but I'll be fine other than that), but on a smooth surface (like a sidewalk), my max is about 1/2 block before my left knee starts giving out on me (from the spinal nerve pressure). Thankfully my dr. has been great throughout this whole process, and I've found workarounds for some things, but there are times where my chair is my only way to get around even the house (usually I'm fine walking around the house without any aids).

For those unable to read these can you list them in a comment please?

I got ME after giving birth to my child. I spent the first three years at home, unable to do anything at all. In the end, I got a diagnosis and then a wheelchair. First a manual one, but it was immediatly clear that I can't manage a manual one, so I was placed on a wait list for a power wheelchair. The paperwork took forever to clear. So once I finally got mine, I cried. It was like I was finally free. I was finally able to be independent, go out and do stuff, but mainly save my energy so that I can do other things than just the very basic stuff. Today I can do a lot more, I'm no longer as fatigued as I used to, I'm not in as much pain as I used to and I don't feel trapped. It isn't just my physical health that improved with the wheelchair, my mental health got better. I also use a walker on the days I can walk or during the winter when I can't use the wheelchair due to the snow and ice. I have an Invacare Storm4, a huge all terrain beast. It can be adjusted in any way, including laying down like you would in a dentist chair. It does not have suspension though and it sucks big time. There's a newer model with suspension now. I'm going to try and have my occupational therapist to upgrade mine. I live in Sweden, so we get one chair from the government. Depending on where you live you can either get it for free or for a small annual fee (I unfortunately pay a fee). As for the financing: There are so many charities, foundations and organisations, both local and global that you can apply for mobility aid funds from. Just search for the ones that might work for you and apply. I don't know how it works in your country but in Sweden, a therapist can help you fill out an aplication. There's also so many accessories to get, so research what works for you and your chair. Power wheelchairs don't do well with cold weather, nor do they do well in snow. Keep that in mind and get winter weather options. There are raincoats for power wheelchairs that work wonders for rainy day weathers, and my favorite; the coldweather bag. It's basically a "sleeping" bag for wheelchairs designed to keep you dry and warm. Mine is lined with wool so it's warm even in really cold weather. Unfortuantely, my lungs hate cold air so I can't be outside at all during fall/winter or I cought my lungs out. I used to have a blanket but they don't really do much. A friend of mine made a cupholder for me in fabric. It can take a large water bottle, thermo mug, any bottle, cup or even snacks. I usually carry a plastic bag to cover the joystic with if it's just light rain. Since it's made of fabric it doesn't break when I hit a wall, or doorframe and it's really easy to push aside and clean. It does have it's perks knowing people who sew professionally.