Відео

How well do these handle hills?

I Love the analogy with the turtle. I've learned to prioritize what I give my strength to in dealing with "CFS", but at times still compare myself to what others can do. Thank you for this video, and for showing others that we still have a life to live in your videos despite our limitations. We all have limitations, some of us more than others.

ua-cam.com/video/aZ_BlFuhcdw/v-deo.html

I really wanted a robooter but you can’t get them on motability 😢 so this is a potential option

"What's wrong with you?" "I can't pull off a pixie cut. I've wanted to for ages but it wouldn't suit my face!"

Great vlog Pippa. I live in Bristol (on the outskirts) I am glad you had a relatively good time here, though the taxis do leave a lot to be desired. I am just getting started on my wheelchair journey, just got a basic self propelled wheelchair through the NHS, but looking at power add-ons to help out more, but finances are tight, so may be a little while yet. Having said that, I am so thrilled you showed the aquarium, I so want to visit it, as soon as I am able!! 😊

I've heard "ambulatory" pronounced differently in different countries - here in the U.S., it's am-byoo-luh-toh-ree.

I have POTS and EDS, but the main reason I use a wheelchair is because of an L5 incomplete spinal cord injury I sustained almost 9 years ago (no actual broken bones, but significant nerve pressure on my spinal cord that still frustratingly acts like it). I feel like I'm in an even rarer subset of ambulatory wheelies, because I can walk as far as I want on uneven surfaces without any issues (if uphill is involved, I might have to stop to catch my breath, but I'll be fine other than that), but on a smooth surface (like a sidewalk), my max is about 1/2 block before my left knee starts giving out on me (from the spinal nerve pressure). Thankfully my dr. has been great throughout this whole process, and I've found workarounds for some things, but there are times where my chair is my only way to get around even the house (usually I'm fine walking around the house without any aids).

For those unable to read these can you list them in a comment please?

I got ME after giving birth to my child. I spent the first three years at home, unable to do anything at all. In the end, I got a diagnosis and then a wheelchair. First a manual one, but it was immediatly clear that I can't manage a manual one, so I was placed on a wait list for a power wheelchair. The paperwork took forever to clear. So once I finally got mine, I cried. It was like I was finally free. I was finally able to be independent, go out and do stuff, but mainly save my energy so that I can do other things than just the very basic stuff. Today I can do a lot more, I'm no longer as fatigued as I used to, I'm not in as much pain as I used to and I don't feel trapped. It isn't just my physical health that improved with the wheelchair, my mental health got better. I also use a walker on the days I can walk or during the winter when I can't use the wheelchair due to the snow and ice. I have an Invacare Storm4, a huge all terrain beast. It can be adjusted in any way, including laying down like you would in a dentist chair. It does not have suspension though and it sucks big time. There's a newer model with suspension now. I'm going to try and have my occupational therapist to upgrade mine. I live in Sweden, so we get one chair from the government. Depending on where you live you can either get it for free or for a small annual fee (I unfortunately pay a fee). As for the financing: There are so many charities, foundations and organisations, both local and global that you can apply for mobility aid funds from. Just search for the ones that might work for you and apply. I don't know how it works in your country but in Sweden, a therapist can help you fill out an aplication. There's also so many accessories to get, so research what works for you and your chair. Power wheelchairs don't do well with cold weather, nor do they do well in snow. Keep that in mind and get winter weather options. There are raincoats for power wheelchairs that work wonders for rainy day weathers, and my favorite; the coldweather bag. It's basically a "sleeping" bag for wheelchairs designed to keep you dry and warm. Mine is lined with wool so it's warm even in really cold weather. Unfortuantely, my lungs hate cold air so I can't be outside at all during fall/winter or I cought my lungs out. I used to have a blanket but they don't really do much. A friend of mine made a cupholder for me in fabric. It can take a large water bottle, thermo mug, any bottle, cup or even snacks. I usually carry a plastic bag to cover the joystic with if it's just light rain. Since it's made of fabric it doesn't break when I hit a wall, or doorframe and it's really easy to push aside and clean. It does have it's perks knowing people who sew professionally.

I think you are great 👍 as a disable it can be same what hard. And in the Philippines it's impossible and even more so if you are non Philippineo. Craig Presnell ♿️

Cool vid and ship!

Thank you!

I had to come and watch, after enjoying your Málaga video! So wonderful about the accessible beach! Thanks for all the helpful information! 🙏❤

What a fun and informative episode! I loved it! ❤ I am very fortunate that I visited Spain ladt June, before my symptoms started. We flew into Málaga, but didn't stay there due to the expense of accommodation, but we had a fabulous time in many places that would be difficult for me to access now. At the moment I'm focusing on learning how to look after myself at home, but you've given me inspiration, that maybe I can travel again, with a bit of planning. Thanks so much!!! 🙏❤️

Please know that not all Christians believe you have to just believe in God harder or have a special prayer said over you in order to heal. I’m a Christian and severely chronically ill and no one in my church believes that. I wonder if Christians who believe that have ever read the book of Job or read 1 Corinthians 12:7-9 or John 9:2-3. God often allows us to suffer in order to bring us closer to Him and trust in Him alone for all things. The idea that the chronically ill and disabled just need to have more faith or that the illness or disability is always their fault due to sinfulness in their life is ridiculous. ❤ I highly recommend reading those Bible passages if you ever need comfort or guidance through the difficult days.😊 Great video as always!!!❤

Not that you need an excuse to return- but you could go for the purpose of visiting each accessible beach and doing a video guide. It would be so helpful to people planning their visit, and a fun excuse to play at beaches 😉

This was so helpful! First because I am absolutely living vicariously through you whilst bedridden - it is such a joy to see you out having adventures and being concious of energy expenditures. That hotel looks amazing and restful- and I loved your recharge sound, lol! Also because, if I can improve enough, I have a trip to Australia upcoming to visit my spouses aging parents and introduce them to their grandbaby. It looks like I won't get my power chair in time, so I will be looking into renting one upon arrival.

I really enjoyed this video!💚✨🥄 sending you spoons!🥄 I’m chronically ill and an ambulatory power chair user too!

Thank you for this informative and supportive video! ❤ I haven't got a diagnosis yet, a year after symptoms began, but now the symptoms are so chronic and disabling, that I'm pretty much housebound and struggling to care for myself. I have a walking stick, but that's it so far and it is a struggle to use when my arms are weak and painful. Definitely time to explore other mobility aids!

Thank you Pippa! I'm off to Greece tomorrow for the first time since a bad ME relapse a year ago. Although I know the area I'm travelling to well, it will be my first time with a power chair. Watching this vlog has really helped with the nerves!

I loooooove your travel vlogs!

I think this was one of your best videos so far. Very high production value and excellent and interesting content. It warmed my heart seeing you smile and having such a lovely time, you are well worth it. Can’t wait too see what you get up to next.

Not sure what's happening with your closed captions (might just be my device). Random sentences from later in video appearing alongside what you are saying in video at the time. Weird

Thank you Young lady! 👍👏💯

Thanks for sharing your trip with us!

If you did this trip again now, would you bring your Whill C2, or would you still rent?

I'm always watching for the local market, to buy some produce. Even for those without allergies, having access to a healthy snack like an apple or some good bread, can save you from buying a bag of snack food or sugary treats.

What do you think about freelancing or soloprenourship to skill up and rebuild confidence? Any thoughts? I also have M.E. (mild version of it)

You’re so much fun to listen to. No lie. I love your accent too

Thanks for watching everyone, really appreciate your kind words! If you've found yourself on this video recently, you might be interested in this updated video (2024) sharing my new power-chair, how I chose it, and how I accessed some funding: ua-cam.com/video/ZHtMX2HdM5s/v-deo.htmlfeature=shared And a tour of said powerchair here: ua-cam.com/video/6HnHaiYmZrA/v-deo.htmlfeature=shared 🥰👩‍🦼‍➡

Wow! I wish I’d seen this video years ago! Thank you Pippa for sharing this, it should be essential viewing for those muddling through Long Covid like myself. I spent far too long stubbornly resisting adaptations and regret not taking the plunge much sooner. I was searching for mobility scooters vs powerchairs when I found this video (I bought a 2nd hand scooter and it was a game changer, and although it splits into parts and just fits into the car boot, those parts are so heavy!) so am contemplating switching to a foldable electric chair and ramp (there’s so much to think about, more so because I’m tall and heavy so that might well be a limiting factor). I thought the questions raised and your answers to them were fantastic, the ones around ambulatory use and perception by others have been things that bother me, it’s good to know it’s not just me who feels that way! Thank you again for making this - Subscribed! 🙌🙌🙌

Hello Pippa. My Name is Adri and I found you this week. I have purchased your audio book and am working thru your journal prompts. Your book is one of the most comprehensive books I have ever found. I was born with spastic and ataxic cerebral palsy. It’s from birth though due to the country I grew up in and various other reasons I wasn’t diagnosed until I was 16 years old. I always knew I was disabled but never viewed it as significant. Now I have Neuro Physical therapy and medication that addresses spasticity. I have a complex manual wheelchair and I have a carer to help me live in my own apartment by myself. I also utilize my service dog and we make a great team. I just wanted to honestly tell you I was one of the people who was skeptical about chronic fatigue and if it was a real medical issue. You in one weeks time with your videos have shown me how closed minded and rude I had been before. I think it was when you said it’s so much worse when a disabled person doesn’t understand what you’re going through. I don’t want be someone who gate keeps or excludes anyone. Thank you for your eloquent videos and genuine caring you demonstrate in your videos and through your book. I hope other disabled people re consider our views and bias toward ambulatory wheelchair users and people with chronic fatigue. I think the real reason I was close minded is because I didn’t take the time to validate my own frustrations with my disability. It really is important to support anyone with visible or invisible disability because at the end of the day we are all just trying our best. If anyone says you’re faking including doctors or friends and family, it’s more about that person than you. Keep going Pippa. I really enjoy your personality and clearly deeply thought out and planed videos. Congratulations on your book. It’s a joy to see what you’ve accomplished.

You did a great job on your audio book! You sound lovely. Bought it today. Congrats hun

Just bought your book hun! Listening to your narrating. I love your voice. So excited to enjoy this book and will share with my few close friends.

Congratulations on writing a book!

You did a great job with this video hun. Have a lovely day. I was born with cerebral palsy and I didn’t know much about ME. You opened my mind to your experience and I admit I was sometimes skeptical. Thank you for your eloquence and energy and passion when you speak. This is the most engaging video I have seen on UA-cam. I really wish you well on your journey. One thing I wanted to tell you is you can get a smart drive put on a rigid manual wheelchair. That battery is 12 pounds only so I was wondering if you’d consider it for your transit chair if it’s compatible. Smart drive is made by perimobil I can’t spell it right. Thank you again. Wishing you a bright future. -Adri

My local theatre venues (two from same company) added the wheelchair spaces to their booking system for me. I go often enough that it saves me phoning every time. I can just book the same way as everyone else online. Unfortunately the other 3 venues i attend still require a phone call. Something annoying is that generally accessible seats and wheelchair spaces are never available at pre-booking (eg band releases seats early). Seems discrimanatory but I just phone immediately on general release day!

I don't know if I'll ever make it back into a theatre, but I still find your video to be encouraging. Thanks Pippa!

Im a 42 msle. i have CP and i get this alot. i use a walker but i walk indepednt at home. lots of imposter syndrom shame

Thank you! 😍

Hi Pippa! This is Jeff from the USA WHILL team and your video popped up on my feed. 😊 So glad you’re enjoying your Model C2!

My friend has a cavapoo named Ruby 😅

I have hEDS and I’m looking at getting a power chair, so I can go further and travel more.

It's interesting how much of a barrier stupid people can be. Logically, any of us could get sick any time but we assume we won't and statistically speaking, these things only occur to a small proportion of the population. Personally, I am aware invisible illnesses exist and aware that i have no clue about many of them. If someone needs accommodations, I am open to it

Really helpful 👍🏻 Thanks. Your suggestions have helped to boost my knowledge & confidence around this topic 😃

TYSM For making this video !!! My own disbaility, not invsiibile however easily hidden has been getting alot worst and walking has been getting more painful and harder, im gonna use a crutch to help me... however i am afraid of this exact sorta judgement because i dont """"look"""" disabled at first glance, i have been taught to hide it my entire life. This video has helped me gather the confidence :) Ima try using a crutch in public next time i go out. 7:34 Fr !!!

I completely understand how it feels to feel out of the loop with the world when feeling unwell in public, that’s a great way of explaining it! I reset my day in a similar fashion when I go to my family lake house. We leave in the mornings for church,I can’t travel and then go to church, so I wake up, travel an hour and a half, and then go back to sleep once I’m home. It actually helps a lot and I don’t feel so horrible. Out of curiosity how long is the train ride to London for you? I’m American and have never been on a train, considering America is so big and we travel far I was curious.😆

I love watching you go away and do things by yourself in car too anxious to ever do that! It gives me hope for independence but also what an amazing opportunity thanks for sharing your adventures xx

id do anything for a friend that would do my makeup for me while i regain spoons/energy. I hope one day i can meet my people. also you two are super pretty and funny!!