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Adventures With Neels
United States
Приєднався 6 лют 2022
Expect to see my quirky humor in videos on fun things to do. The videos include adventures on land of cool places to visit to shimmery lakes, flat water and rapids rivers. Anywhere I adventure I will take you with me. Everything is filmed on my GoPro or close ups with my current phone camera.
You will see videos from Minnesota, Iowa, Wisconsin and beyond!
This channel will give you information on the places I go so you too can go if you can! I give the address/locations of the adventures, you'll see what to expect as well as gorgeous views of nature. I will do my best to show you where the unique things are on my trips.
My goal is to bring smiles to your face and share my love of nature with you. If you are not able to venture out, my goal is to bring the adventures to you! I hope you find my videos fun and/or relaxing.
Thank you for your support, see you on the next adventure!
You will see videos from Minnesota, Iowa, Wisconsin and beyond!
This channel will give you information on the places I go so you too can go if you can! I give the address/locations of the adventures, you'll see what to expect as well as gorgeous views of nature. I will do my best to show you where the unique things are on my trips.
My goal is to bring smiles to your face and share my love of nature with you. If you are not able to venture out, my goal is to bring the adventures to you! I hope you find my videos fun and/or relaxing.
Thank you for your support, see you on the next adventure!
Rice Creek 11-2-2024 6.7 miles -Beautiful fall paddle on this super curvy creek.
Come along with me as we paddle Rice Creek on this GORGEOUS fall day. We went about 6.7 miles with consistent paddling it took about 2 hours and 45 min. I had to use my Google Pixel phone for video shots since I forgot my Gopro! I still managed to capture the beauty though while holding the paddle and steering with one hand. (Like a pro!!!) lol
We put in at Golden Lake Park Beach in Lexington/Circle Pines MN. We took out at County Rd H parking lot just after going under the 35W bridge in Mounds View, MN.
Often seen are ducks, geese, Osprey and other birds, frogs, muskrats and otters on this creek.
We put in at Golden Lake Park Beach in Lexington/Circle Pines MN. We took out at County Rd H parking lot just after going under the 35W bridge in Mounds View, MN.
Often seen are ducks, geese, Osprey and other birds, frogs, muskrats and otters on this creek.
Переглядів: 81
Відео
Kayaking Lake Byllesby with beaver footage in the fall 10-9-2022
Переглядів 1419 місяців тому
Come join me as we explore the amazing cliffs in the fall season with a surprise, up close encounter with a beaver. I was able to get some fun, closeup under water footage of him. I was blessed enough to capture video of a Virginia Rail bird just hanging out, flaunting its feathers as well! Thanks for watching, I appreciate you! KAYAKING MERCH and more: www.etsy.com/shop/neelysgingerbits?ref=us...
Iona's Beach, Change settings to 4K
Переглядів 1449 місяців тому
Come explore with me as I take you on a sunny walk to Iona's famous pink rock beach on the amazing shores of Lake Superior. This is just north of Two Harbors, the entry sneaks up on you so be sure to put that address in your mapping device! 3548 MN-61, Two Harbors MN 55616 Thanks for watching, I appreciate you! KAYAKING MERCH and more: www.etsy.com/shop/neelysgingerbits?ref=usf_2020 Kayaking Gr...
AMAZING French River Trail 2022
Переглядів 9910 місяців тому
I take you on a short stop on the French River that empties into Lake Superior. This is just outside the big city area of Duluth on the Scenic Route up the north shores of MN. This is a great spot to stop and swim for those few hot days in Duluth. (wink wink) The water is warmer here since the warmer water from the river is mixing with the chilling Lake Superior water. Thanks for watching, I ap...
Boom Site 10 22 2023
Переглядів 11911 місяців тому
Come along with me as I show you down below the wayside rest at the Boom Site Wayside stop on the St. Croix River. This wayside rest you can actually go DOWN to the water! This is a very fun area to hang out and play in or near the water or hike along the shores. There is a fun little cave to venture in and so much beauty to behold along the sandstone walls. When we are not in a drought, there ...
St Croix River, kayaking this AMAZING section in Grantsburg WI 9-30-2023
Переглядів 21611 місяців тому
Facebook page : Kayaking Group Events MN to sign up for river trips. What fun surprise river run this was!!! Incredible beauty on the water with the the last of the fall colors on the trees. We had NO wind this day which made the waters just dreamy! We saw a beaver, King Fisher's, swans and an eagle. This transformed the small class 1 to high class 1 and some class 2!!! (These are regular rapid...
Kayaking Cuyuna Mine Pits 10-30-22
Переглядів 203Рік тому
Come along with me on this insanely clear lake in Ironton MN. I will show you around the 4 mine pit lakes I explored in the fall after the leaves left. :-) I found a skeleton which scared me! The crystal clear water is so wonderful and mysterious as you look down and see the trees that were once growing in these pits. You will glide along perfectly smooth waters as the sunsets you will feel the...
Chimney Rock Park - October 22, 2023
Переглядів 50Рік тому
What a treat this was! Take a super short walk with me as I discover these beautiful rock formations in the middle of nowhere. These were a delightful surprise to see. The fall leaves were in their peak of colors. It was just about a perfect day. This would be a great place to come, sit and solve the world's problems. :-) This was found on a country road in Hastings, Minnesota. If you put Chimn...
My Adventures in Las Vegas on the main strip 7-28- 2023
Переглядів 66Рік тому
What a fun time on my Las Vegas mini visit on the main strip! I really thought of it so differently from what I saw in movies and video clips. It was really fun to see all the different things. The water show at the Bellagio hotel was amazing - we got to see 2 water shows! The new sphere was so cool when it was lit up like the moon! There were street performers and so many lights! My acute sens...
My adventure on Fremont Street 7-26-2023
Переглядів 90Рік тому
Come along with me as I fly over Fremont street superman style on Slotzilla. Walk the strip with me and see the man that defies gravity, come on the moving bar with me and catch a little of the great band that was playing. We will sing a little karaoke at the Cats Meow and be dazzled by the incredibly HUGE LED screen!!! Kick back and enjoy this little mini show!
Kayaking Colorado River - Hoover Dam to Willow Beach 7-28-23
Переглядів 614Рік тому
Join me on the emerald waters of the Colorado river! It was a HOT, HOT, HOT trip down the river in the summer! I went with Adventure Child outfitter, which is the only way you can get a permit to enter the water at the base of Hoover dam. You get a WOW feeling as you drive into the Black Canyon. I dipped in hot springs, we dodged falling rocks from mountain goats, smiled at lizards, dunked in t...
BEST Mini Golf EVER!!! Big Stone Art park and mini golf
Переглядів 166Рік тому
www.bigstoneminigolf.com/ What a SUPER FUN place to go for adults and/or kids!!! The sculptures are so cool, everything is kid friendly - they can climb on everything except the ones that say don't. The mini gold course is full of art and fun as well. It is a great way to spend a full day! Pack a lunch, there are tables throughout the park. There is bag toss and bocci ball as well. Worth every ...
The Bridges of Bassett Creek, kayaking 5-8-23
Переглядів 405Рік тому
THEE funnest creek I have paddled so far!!! There were SO MANY bridges and LONG, fun tunnels! It starts out slow meandering behind buildings in towns, then picks up a swift current as you roam quickly through back yards, through neighborhoods having to make quick decisions which path to choose. There is such a short window of time you can paddle creeks in the spring time before they get too low...
Minnehaha Creek Kayaking- We FINALLY got on it!!! 4-13-2023
Переглядів 537Рік тому
The ever elusive, dreamy, Minnehaha Creek. After long years of trying - we finally got on it before it dried up! This creek is such a treasure to paddle, from small waterways squeezing by or under trees to scary dark tunnels to gorgeous homes from a creek's eye view. We had to portage a few times, which we already knew ahead of time. I do not know the flow rate on this date, we just looked at i...
The AMAZING St Croix River, Kayaking William O'Brien State Park to Stillwater 7-16-2022
Переглядів 315Рік тому
(4k settings for best viewing) We saw SO MUCH!!! Byozoans, eagles, muskrats, deer, waterfalls, natural springs, a cave, a bird rookery and glass like water THE WHOLE WAY!!!! This is one of my favorite sections on the St. Croix River due to all the waterfalls and the beauty along the way. The back waterways are so filled with wildlife and total peace. We started in Marine on St. Croix at William...
Kayaking the Beautiful Kickapoo River on 4th of July weekend! 🇺🇸 7-2-2022
Переглядів 437Рік тому
Kayaking the Beautiful Kickapoo River on 4th of July weekend! 🇺🇸 7-2-2022
Kayaking Cottonwood River 6-25-2022 View in 4K for best experience.
Переглядів 316Рік тому
Kayaking Cottonwood River 6-25-2022 View in 4K for best experience.
Kinnikinnick River Kayaking 6-19-2022 4K viewing
Переглядів 360Рік тому
Kinnikinnick River Kayaking 6-19-2022 4K viewing
My Story - My Diagnosis - My recovery #POTS #MCAS
Переглядів 17 тис.Рік тому
My Story - My Diagnosis - My recovery #POTS #MCAS
Straight River Kayaking, Medford to Faribault June 11 2022
Переглядів 326Рік тому
Straight River Kayaking, Medford to Faribault June 11 2022
Rum River Kayaking, North Park with Central Park 6-4-2022
Переглядів 492Рік тому
Rum River Kayaking, North Park with Central Park 6-4-2022
Indian Slough Backwater Kayaking 8-7-2022
Переглядів 154Рік тому
Indian Slough Backwater Kayaking 8-7-2022
It's interesting how, when it comes to complex diagnoses like MCAS, there seems to be a convenient pattern of ignorance, doesn’t it? It feels like the medical system is designed to avoid certain uncomfortable truths, especially when they might disrupt massive industries like the food market. Blaming everything on "anxiety" feels like a lazy way out. It’s frustrating because behind that label are real people dealing with real, neglected conditions. Hopefully, voices like yours will continue to push back and demand the answers and care you truly deserve. Stay strong. ✊
This breaks my heart because I know that pain and exactly what you were going through. I hope and pray you’re doing well. And just wanna thank you so much for this video.., I was once an elite athlete, body builder, MMA, etc. haven’t been able to work out in over two years now.., was bed ridden al summer.., it’s been unbearable at times. Drs cardiologist pulmonologists etc had no answers.., “anxiety” but we all know that’s bs.., just know you are not alone. And THANK YOU so much for this. God 100% put your message in front of me today, I needed this
Co-signed 🙏🏻🙏🏻🙏🏻🫡
Thank you for this video. I feel your frustration. Women get gas-list ALL the time by doctors!
My natural pathic dr told me about quercetin and stinging nettle too. Did it also help with the heart racing with pots? How are you now can you eat more foods now? Also do you take b1 thiamine?
I have MCAS and POTS. I also went to the emergency room when it first occurred. One hour prior, I had a cup of broccoli cheddar soup from a restaurant. I became very jittery, my heart rate was 156 and blood pressure was was 220/110, my throat felt full. Of course, nothing came of my visit. Thankfully, my holistic NP diagnosed me with MCAS.I disagree that there isn’t anything you can do. I too became sensitive to all foods basically. My heart rate would increase by 30-40 beats after eating. I take Propranolol ER daily which controls my POTS and has given me my exercise tolerance back. I think you should look into that as I believe it will help you climb your hills. Also, I am on compounded Chromolyn and LDN which has greatly helped both my over all well being but all my food intolerance. To this day, I absolutely can not have any artificial sweeteners,including Stevia or high sugar foods. Interestingly enough, if I would have a can of ginger ale during the day, I would be woken up at night with palpitations and high heart rate despite being on a beta blocker. It just goes to show you food triggers are not always immediate. I would also encourage you to have a EPI pen. People can die from this! It is no joke. I also want to suggest you check out Dr. Paul Anderson’s channel.
5:47 oh my God this is literally the story of my life right now 😭😭😭 I don't know how in God's name to get the doctors to listen to me 😭😭😭
I feel this exact same way! I have been suffering for 4 years now due to mold and heavy metals and numerous times thought about taking my own life becasue i couldnt handle all of the dozens of symptoms and no money left to go to doctors...its the hardest thing I've ever been through no doubt!
I can so relate, I have been Dx with MCAS. I really never realized how sick I was for so long.
I didn't either! I would have started taking steps long before to heal my body if I would have known. BUT we can only do what we can with the knowledge we have. We move onward and upward daily!
Its crazy you explained exactly what I have been going through. My entire nervous system freaks out with most foods. I am so glad you’re doing better! I am slowly on my way. Im gonna get Liposomal Gluthione. I didnt know about that one. Praying for all of us! 🙏🏻
@@Android.Paranormal lifting you up in prayer. It is a journey for all of us! Everyone has to find their own way and what works for them. Healing IS possible 💪🙏. Best wishes for you. 🫂
@@adventureswithneels5014 thank you! I just got back from acupuncture! I'm trying basically everything! It's a relief to see people doing better! Gives me a lot of hope & motivation!
@@Android.Paranormal YES! Hang onto hope for sure. I can eat almost anything without having to take anything. But if I get cocky and do that for too long I start getting symptoms. Low histamine foods is a good rule of thumb for the majority of our food with cheats here and there when we want once you are doing better.
B1 thiamine😮😮
B-¹ helped me a lot also.😮😮😮
Awesome! So glad people are finding help and healing.
So sorry what you're going through.ive had terrible problems since cvid. I'm 83.lived my life.😮😮😮❤❤❤❤
These doctors need to stop gaslighting people!!! It’s so invalidating making you feel crazy is so terrible
Thank you for your story. My daughter started getting sick at age 9. For 6 years they made her feel crazy. I started changing her diet. Finally she blacked out and went into severe body tremors at the hospital just after they told her that she probably had low blood sugar. She finally saw a cardiologist who diagnosed her with POTS. She’s still miserable but recently we switched to a low histamine diet. My daughter became suicidal and was in such a dark place. I had her journal everyday about what she was going through and what she feels. I made her write 3 reasons for living every day and she said that was the only thing that kept her from taking her life. She’s 18 1/2 now and her symptoms are getting worse. She suffers the same symptoms you have. Her doctor thinks I’m crazy for asking about this MCAS. I need to find someone who can help her with this
I've been dealing with these same issues.. I've had Alpha Gal Syndrome for 13 years and about 4 years ago I started reacting to fumes and I started experiencing extreme fatigue along with major anxiety and waking up in the middle of the night in a complete panic..I just kept blaming it on my AGS, but one day I started having a pain sort of in my back and on the inside of me and I got so sick..I was throwing up for hours and finally went to the ER and the Dr on duty said it was kidney stones and gave me a shot for pain and a shot for nausea and sent me home..I started researching everything I could and came across problems with histamine intolerance and things in my mind started clicking..I had been eating tuna fish in a can daily and a lot of leftovers like chicken and turkey and I started realizing that I was poisoning myself with histamine..With my AGS, my diet was already very limited (no mammal or mammalian by products) so I have talked with my Dr about it and he agrees that it is MCAS that I'm dealing with..I take H1 and H2 Histamine Blockers daily, but I got a tick bite about a month ago and my mast cells went crazy..I get the feelings of passing out daily and I've been very fatigued.. Yesterday, my chest was hurting and my left hand was going numb and I could tell that my blood pressure was dropping... I've been having severe vertigo and my anxiety always follows close by.. I've been drinking distilled water only and I'm only eating Butterball Frozen Turkey Burgers because I can tolerate them..I have lost about 40 lbs in the last couple of months. I'm going to try to eat some sweet potatoes today..I just need something else that I can tolerate..I still wake up in full blown panic attacks where my body is literally vibrating and my heart rate is through the roof.. According to the Drs, there's nothing wrong with my heart..I do have frequent bouts with shortness of breath also.. Sometimes, I will get a itchy rash but it's not as common as it use to be..If I go outside while it's raining, I start having difficulty breathing and then the Anxiety tags along.. I'm trying to save money for SAAT Treatment, but since I'm not able to work, it may be a while before I can try it..MCAS is so much worse than AGS...If I get stressed, I react..If I get sad, I react..If I'm in the sun at all, I react..Some days I'm literally bed ridden..This is taking a toll on my mental health and I stay depressed all the time..I can't go in anyone's house because I react to the smells, and it's been 3 years since I was able to walk inside a restaurant.. There's a lot more I deal with, but it's just too much to type..I hope you continue to improve..
Praying for you.
@@alyssakellhofer224 Thank you. ♥️. It is through prayer I've gotten through this all!
You describe me 😢
@@SamiMusic4you my heart goes out to you. I'll be making another video soon. I've gained lots of Forward movement in my healing. Do not give up. There is hope! We just definitely have to change our diet to low histamine foods and if you're a female, especially watch before you get your period. Then you really have to be careful of what you eat! Hormones are a huge part of the MCAS issue. There are so many natural doctors that are learning so much more about this and there is hope! Research natural healing for MCAS. I found a really good new doctor on UA-cam. That's super knowledgeable about it. I'll be linking his page to my next video. 🫂 Sending hugs. Hang on. You've got this!!!
Please do not focus on oils at all. This staff is not good for health. It is not sustainable and what is worse you will damage your metabolism. Every kind of fat make us sick and fat. Do not eat it :( Try to eat plant proteins (beans, legums...) with your salad instead of oils. Please, check the starch solution. Your body will need time for healing, but you will get healthy with starch diet and you will love it forever ❤
@@katik268 thank you for your message. I've worked and the natural health field for a very long time. Olive oil good quality is very good for us. Along with coconut oil and avocado oil. Our brain needs oil and healthy fats to stay healthy. But you are correct, there are bad fats. But oil does not make us sick and fat, only the bad unnatural oils.
My heart goes out to you. Have you considered mold exposure. There is a connection. See Dr Becky Campbell article on the connection between mold and POTS.
@@MichelleOstler Thank you. Yes that is when it kicked into high gear was after black mold exposure. I only had mild symptoms of things before that. Very irregular. The mold brought things in bad. The. I had a break and then covid itself brought things back with a vengeance. Not the shots. I didn't get any, just the virus itself.
@@adventureswithneels5014what did you do about the mold exposure ? I left the old house but what do I do ?
@@ManuelVega-x1e I am not a doctor, I can only tell you what I did NurtiDyn daily detox shakes, I did Liposomal Vit C and Glutathione. (these are liquids that are listed at the end of this video.) I also did intermittent fasting. Your body has to detox and heal those cells. Remaining on a low histamine diet is very important. Everyone is different in what they can tolerate. I needed to also do 24 hour allergy tabs and generic benadryl just to eat. Listen to your body and JOURNAL all you eat and drink until you find patterns of what you can and cannot handle. Don't eat after 6:00 so you sleep better and don't get those "histamine dumps" in the middle of the night. You don't want to stay on anything permanently because everything has side effects. Work on healing your cells. Big hugs and good luck.
@@ManuelVega-x1e Nutridyn detox shake once a day, other nutrition and time. Intermittent fasting was a huge help as well.
Hi there. I have a suggestion for you. I've experienced the same thing and the only thing that allowed me to eat again without getting cold and feeling like my soul leaves my body was Kreon. It may be called different at your place. It's a pancreatic enzyme called pancreatin (consist of amylase, lipase, protease and lactase) and despite me not having any pancreas issues, I can not eat anything without it to this day. The "Aller pro" has Bromelain, which is a natural digestive enzyme that targets the same issue as pancreatin, but it's much weaker. I have a strong feeling that Bromelain is the exact thing that allows you to eat. And if it is so, I'm begging you to try Kreon 10000 and see if it makes you feel better. It allows me to eat what I want without feeling like I am dying, and while high histamine foods still case reactions, I started to live almost normally again. I also take Quarcetin and DAO for high histamine foods and they are working. I know that it is bizzare to take an advice from a stranger on the Internet, but please research it and try it, if you are willing. I truly believe that it will help you tremendously.
Hey Neels. I hope you are feeling better and have found more answers since publishing this video. Have you considered mold/fungus allergy? If you have mold in your home, auto, or workplace, exposure can cause a large number of the symptoms you are experiencing. Our immune system is dynamic, so its possible that you are in a hypersensitive state as a result of exposure to higher than normal levels of mold and mycotoxins. Check your place out. Mold can grow and thrive on just about anything, but its mostly going to be on cellulose. Look for damp or spots that may have been water damaged in the past.
That is what initially kicked this all off into high gear and chaos was black mold in a leak that was unknown behind my dishwasher. It was behind all the cupboards and walls at my old place. Once it was discovered they told me I had to move out immediately so they could renovate it. My home now does not have any mold. And I did pretty good here for a while but slowly things got worse again when I made this video. I have never thought about my car (you mentioned auto) And I just heard coffee has mold....? I suppose everything adds up. I think the stress effects it too. Such a complicated thing!!! I won't give up until I am healed or at 90% better!!!! Thanks for your input.
@@adventureswithneels5014 Well, that's good news in a way, as I had a similar exprience and perhaps my lessons learned my be of value. What kind of floors do you have? Do you have fabric curtains? Anything that might hold dust, could continue to contaminate the air every time it gets disturbed. Do you experience stuffy or runny nose when you are at home? Microfiber towles are great for keeping dust under control. ( here's a wholesome video of two dudes geeking out about microfibre and dust removal: ua-cam.com/video/3gsuUxqxLbg/v-deo.htmlsi=of_gQHPyw_PANCyC. ) Are you aware of changes in your body as they happen? Do you feel the onset of symtoms? If its airebore you may feel changes immediately. If you are reacting to food, that's a bit harder to connect, given the time delay between consumption and the onset of symtoms. This part is trial and error. I would recommend a water filtration system, to at least start with a good foundation. Foods that have been dried, stored in bulk, fermented, aged, etc. all caused problems, this includes, seeds, nuts, grains., legumes, chocolate, coffee. I did have a friend who roasted coffee fresh, and i was able to drink that without having a reaction, so perhaps where it comes from and what its been in contact with, is important. Foods grown in the ground live symbiotically with fungi and always caused a reaction, these include, carrots, potatoes, onions, garlic, ginger. Beverages or foods which contain citric acid, as citric acid is actually produced by fermenting black mold. So, basically, any soft drink. Fruits almost always caused problems, perhaps due to the high sugar content and delay between harvest and consumption. So, yeah, basically alot of stuff. What are you currently eating? My theory is that fresh foods minimize opportunity for microbial life to get in and leave proteins or metabolites that can cause a reaction. Leafy greens and brocolli are pretty much alive until you eat them, so they are actively resisting microbial intrusion, fresh is best. Eggs come in a convenient antimicrobial package, so those were always ok to eat. Meats may be fine, like chicken. But without condiments. Hope this information is helpful.
Also look up oxalate poisoning from foods.
I will. Thank you for the tip!
Pls look into candida /fungal & parasites, worms. Many are infested & these parasites are wreaking havoc in one’s bio system. Seek a good naturopath & get tested for candida & parasites. Stay strong sweetie……💜💜💜
I have thought about doing a parasite detox. I do kayak on many rivers. I can't afford to go to a naturopath right now. I am only one income by myself. The economy is TOUGH right now for us middle class single people. :-( But I can find good info on how to detox it on my own I am sure of it. Better than doing nothing. I will put candida on my list too. Thank you!
The quack cines have been slowly & deliberately poisoning humanity. Health is NEVER injected. We were all created & born with a very beautiful & sacred immune system, that has been under attack. We the people are waking up. Stay strong & no fear, we are winning this battle. 💜💜💜
Thank you for sharing your story. There is a POTS healing story out there called “Wheelchair to Rollerskates” how she did brain retraining to heal herself.
Oh interesting! I will look for the book or video. Thank you!
Did you find out if you have hEDS too by chance? It goes along with pots and mcas.
I have looked up the symptoms and nothing seems to fit. I don't have any skin issues or hyper moving joints. (I wish they moved better! LOL) I don't have aching joints on a regular basis. I don't bruise anymore than the next person. I just don't think I have EDS. Thank you though.
@@adventureswithneels5014 that’s great news!
Most of this caused by mold toxicity!All my symptoms are gone after the mold detoxification process!
I am so happy to hear you have found healing. This makes me happy. Maybe I will do a very specific mold detox again.
@@adventureswithneels5014 Looks like you’re already in the process of removing toxins from your body,but if you’re leaving in the house that’s having mold,then it’s not possible to remove all the toxins! You can test for mold mycotoxins at real time labs! I used Jill Crista’s Brake the mold book for the protocol,worked perfectly! Don’t need expensive specialist,just follow the instructions! The final step was for me is brain retraining by Gupta protocol,this is absolutely critical for the full recovery! Happy healing!
@@akosnagy9652if I moved out from the home that had mold and my symptoms got worse but I’m not near the mold anymore 😭
Oh my god this happened to me!!!!!!!!
I'm so sorry you had to go through any of this stuff. I hope you have found healing.
Was ever tested for Lyme?
No, i never had a bit mark with a circle of any kind. All my reactions are brought on by food most definitely after food journaling. If I eat a perfect low histamine diet I feel good now days. I am rarely perfect though.
I got polymyalgia rheumatica from Covid… another debilitating disease!
Going carnivore helped me a ton and have been getting more into coherent breathing. And I have to avoid histamines, cultured, cured, aged foods as well. Was doing good until I gave up my black tea and this has freaked my body out with crazy pvcs and tachycardia. But it is getting better…. It is an autonomic issue with cell damage (the mcas part) and a high fat and cholesterol diet can help heal the cell membranes. Might be worth looking into. I suffered my whole life and I can so relate to your story. I hate the heat also. Thinking of moving to Alaska. 😂
@@lr1732 sorry you are going through any of this! Glad you are learning things that work. Soooo hard when things don't work and we get reactions. 😭. The heat is finally starting to let up in MN. Fall is a season I can handle. 😊
I contracted mono and covid in 2020 as a freshman in highschool, and went with POTS, MCAS, ME/CFS, and SVT undiagnosed for three years. My primary care doctor said that it was due to anemia. One day he was out of the office, and I came in for acute symptoms. He wasn't there, so another doctor saw me, and referred me to a specialist. Because of the time I missed being sick and sometimes bedridden, I failed chemistry and made low grades throughout highschool and missed out on my graduation, prom, etc. I had to give up sports when I used to play 2-3 at a time. I'm still trying to figure things out, but I have a team of doctors finally who are taking me seriously. It just sucks that I had to get "sick enough" (full body rashes, narcoleptic-like symptoms, asthma attacks+developing asthma, passing out, ER trips, etc.) until I got proper care. I hope the healthcare field can begin to SEE us before we are broken mentally from all this crap.
@@carolinecorneliaa I'm so sorry you had to go through all that. Medical doctors Don't go to school to heal the body though, all they know are " patches ." Try to look for natural doctors to help you actually heal your body . You have a story to tell and to help others now become more educated. Heal your cells best you can. Focus on that. When our mast cells are not functioning well everything goes crazy. Eat the least amounts of processed foods as you can. Things can get better and manageable. Hugs from MN. 🫂
But did you ever fix your iron deficiency/ anemia? What are your levels at now?
@@angelinepepper8815 my levels are normal now. im 18 and they kinda just leveled out, i was anemic only during adolescence really. i took iron supps for a while though
@@angelinepepper8815 I don't go back to the doctors anymore. I may have had only SLIGHTLY low iron level, not anemia. Nothing that needed major attention. I tried to add more red meat into my diet.
PENE is what you describe, which becomes PEM also. This is classic over exertion. The only resolution is to STOP everything. I have to lay down only on my stomach or right side and hold catatonic often for hours, sometimes days. Must get breathing down with hypoxic breath training, everyone is hyperventilating… The best food solution I found is going ruminant carnivore. No more gut pain no gas, and it provides optimal nutrition which I found is a huge factor. We are not making sufficient ATP on demand. UA-cam channels for Dr. Kenberry and Dr. Anthony Chaffee are great. I have a solid MCAS diagnosis as well, but I do much better when I eat red meat daily. Missing one day is not good, I will fall back, nutrition crucial. Finally, I found massive sunshine mandatory, enough to maintain a torso tan year-round. I live at 40 N. so I built a solarium to do my heliotherapy through Winter. It's been so amazing I'm designing solarium for Health hoping to market these. I now get far more functional days, and even at 65 and 16 years in with ME, I'm more hopeful that I'm still coming back to work again. it's so sad reading endless stories like this where simple overexertion either physical or mental and both is the worst must be recognized. My early triggers are vertigo and nausea, if I ignore this it hits my gut fast, if I ignore this I'm put down on the floor and can't move often for hours. I get hypothermic convulsions which my neurologist calls full body cramps, which might describe what you were trying to here. vagus nerve pain. You might try lying on your right side, holding so still your breath is imperceptible. I have to stop exerting… Exercise is not required to maintain proper weight. Indeed, it is carbs that I only put on fat, which interferes with everything. I wish everyone would try ruminant carnivore for even a month to see the incredible benefits. Nerves need animal fats. It is primary. I'm writing a book about the observation that these invisible chronic viral origin illnesses are not being dealt with properly by for profit medicine. drugs ought to be the last resort, not First… My proof is that I dropped dozens of supplements, once I found the proper human diet. Until this is addressed, it's a nightmare chasing symptoms. ATP is not made sufficiently! So, we must greatly reduce our energy demands, both physical and mental including emotional controls, crucial. It's frustrating that not a single one of my ME, MCAS, orthostatic hypotension, post polio etc. groups are aware that diet is primary. So I'm not as active because nobody wants to hear diet advice. I'm writing a book but slowly, as I found improvement through relentless testing over 16 years. Brain inflammation and microglia are the heart of this. I used to practice meditation, it helped me tons now. Helps to find the OFF switch..
Thank you for sharing your story. I identify with all your symptoms. Can you do an update on your health? I see you got your life back and that is amazing. ❤
@@dulcesadicciones I did get my life back. It's not perfect but it is not the depths of hell that I felt I was in. Yes I know I need to do an update. It's very hard for me to turn a camera on myself and talk. But I know I need to do it for the sake of others. I will try soon! I don't have all the answers but I have the answers that worked for me. I'm lifting you up in prayer right now and sending you big hugs. I'm so sorry you're having to go through all of this. 🫂
I called an ambulance a week ago trying to move the entire time, I couldn't move, I could only look around. When I arrived at the hospital, they said "Stroke victims CAN'T talk, you can talk, you just don't want to." I was weak and had tremors and needed help to walk. The whole staff was trying so hard not to laugh and looking at each other. I cried while saying you guys are assholes. You're laughing at me. They said no we're not we're trying to see what's wrong with you." I cried so hard before leaving that room and had to have assistance from my bf. Walking away and being embarrassed, belittled, and treated like I was a drug addict. They laughed when I turned around the corner to leave, and I still see them til this day. All looking at me, and laughing. I was really scared... I do have EDS, and crohn's disease. This experience was the most traumatic for me. I still cry at random times...
I’m so sorry you were treated so badly. My God bless and heal you. In Jesus name. Amen
I went through a very similar time of trial . 🙌prayers for your continued healing. In Jesus name ✝️🕊amen
@@lindarose8668 thank you for your prayers.
I thank you for this video and I hope you know your story has truly shifted the lives of many others. Why we may not understand why these things happen to us. Why we wonder, “why us?” In this treacherous life, you have made others feel understood for once in their lives. Thank you for sharing your light for those who’ve felt most understood their whole life.
Did you have a tilt table test? Yours is an amazing story. I hope your health steadily improves.
This is me for 45 years dismissed, crazy, in your head. O m g I live in my air con bedroom!!!!’ It’s so isolating. You cry for all of us! I’m recovering from anaphylactic shock x 6 today.
Aircon would've killed me years ago! Do you ever think to try something different after 45 years?
I pray you will be able to find answers with natural doctors online, even youtube! There are so many more discoveries about our disorder even since I made this video! Find a way to heal your autoimmune system, it isn't fighting properly but it can be healed. Love and hugs and best wishes sent your way.
What did you use as a natural antihistamine
All I can say is thank you for this video.
Testosterone will help build t cells. Most women have very low to no testosterone, especially during menopause. But unfortunately, for us to get the help we need for hormones, we 99.9% of the time have to pay out of pocket for a good doctor who specializes in hormones.
Yes Jesus help her and us with these terrible symptoms. ❤️🙏🏽❤️
I'm going through this 😢 My heart races, my parents say I'm lazy, because I don't work I have uterine cancer and this long haul Covid problem I go into panic mode, the Vagus Nerve massage helps a bit
I'm so sorry you are going through this. Try to stay away from sugar and processed food and high histamine food. This should help you greatly. Praying for you.
@@adventureswithneels5014 Thanks sis, I will, I'm doing Fasting
@@casta9172 Yes! The intermittent fasting helped me A TON!!! Find a community online that has MCAS. They can help support you, they understand.
I have only started my pots journey this year. I have never felt so ill in my whole life. I have suffered with ME/ CFS/ FIBROMYALGIA, G6PD... 2015, but this Pots on top has floored me in months.... I am seeing the best Pots professor in 3 weeks after numerous tests. I pray now i get an insight into healing as i can no longer walk. Something is seriously attacking my body. Yes, i believe gut health is everything now & just learning. Your video has been so informative 🙏 i have had one Trauma after another since 2015, 2018, 2024. Even this week lost my fur baby of 15yrs & my carer diagnosed same week with stage 4 cancer 🙏😞 Stress is my killer, knowledge is Everything. x2 Covid injections killed my immune completely. Thank you for giving me " Hope " 🙏 Sending healing hugs to you & other New sufferers 🫂 ( i have just joined every pots group in the World ) i no longer feel so alone.
My heart goes out to you!!! Stress, lack of sleep, our immune system.....so much comes against us sometimes. Glad you are working on gut health. The inflammation in the body is so bad. I am doing round two of the liquid C and Glutathione. I am doing so much better but still struggle from time to time. Hormones play a HUGE roll in it too!!! I want to get my life back to the fullest and be able to hike again. GOALS. I am so glad you found support groups. That is huge as well to know we are not alone! hugs and prayers sent your way. I'm so glad you are getting the help you need. Stay strong. You've got this!
Did you ever get tested for mold sickness?
Mold trigger that MAJOR onset of all this. But I can remember way back to symptoms on/off in my life. I got some better after detoxing and moving out of that home. Then after Covid (no shots just the virus) it when things exploded on me.
Big (((HUGS)))) I hope so much that you are getting this figured out. I too am suffering with this mystery illness and it IS a comfort that someone else understands what it’s like to have life come to a screeching halt! It’s very hard when you’ve been an active person your whole life. Prayers for you!🙏💕
How are ypu now?
I have come a long way and and MUCH better! I will make an update video when I have time. Antihistamines and quercetin along with intermittent fasting, glutathione all helped heal my body. I have learned what to do for myself through trial and error any paying close attention to my body's signals to me.
Hello! I just subscribed. I can relate to almost everything you talked about. I too have POTS and histamine intolerances as well as ME/CFS and fibromyalgia. It’s a nightmare. I’m sharing my journey here on YT as well just so people like us know they’re not alone. Your story made me cry. I’ve been doing the carnivore diet and it has helped immensely with so many symptoms, but the pots, and a handful of other symptoms still remain at this point. I’m hopeful that’ll I’ll regain my health one day, but it’s been years and years of suffering. I too am a Christian and I know God hears us. At the end of the day it’s his will and I try to surrender to that. Thank you for posting your story! Big hug from Tennessee!
Thank you for sharing. It is AMAZING to me how many people suffer from this. I think TIME, allowing our bodies to heal, giving it rest from toxic food (like you doing the carnivore diet) helps so much. Yes I too have lingering things that I learn to manage. That darn POTS in the summer time makes it impossible to do exertion things I love doing like hiking. But that is ok. We deal with it and like I always say.......it can always be worse!!!! Count out blessings. It is really hard when you are at rock bottom though! Hugs back from Minnesota!!! 🫂
@@adventureswithneels5014 💕
Get a different cardiologist who will check your heart while you're having issues. Have you tried accupressure to help place you out of fight or flight? Eat vit C rich foods. Vit C helps modulate histamine issues ( not sure why any of your doctors didn't tell you this) . Yoga therapy is good too . Benadryl has lots of side effects.