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I've been dealing with these same issues.. I've had Alpha Gal Syndrome for 13 years and about 4 years ago I started reacting to fumes and I started experiencing extreme fatigue along with major anxiety and waking up in the middle of the night in a complete panic..I just kept blaming it on my AGS, but one day I started having a pain sort of in my back and on the inside of me and I got so sick..I was throwing up for hours and finally went to the ER and the Dr on duty said it was kidney stones and gave me a shot for pain and a shot for nausea and sent me home..I started researching everything I could and came across problems with histamine intolerance and things in my mind started clicking..I had been eating tuna fish in a can daily and a lot of leftovers like chicken and turkey and I started realizing that I was poisoning myself with histamine..With my AGS, my diet was already very limited (no mammal or mammalian by products) so I have talked with my Dr about it and he agrees that it is MCAS that I'm dealing with..I take H1 and H2 Histamine Blockers daily, but I got a tick bite about a month ago and my mast cells went crazy..I get the feelings of passing out daily and I've been very fatigued.. Yesterday, my chest was hurting and my left hand was going numb and I could tell that my blood pressure was dropping... I've been having severe vertigo and my anxiety always follows close by.. I've been drinking distilled water only and I'm only eating Butterball Frozen Turkey Burgers because I can tolerate them..I have lost about 40 lbs in the last couple of months. I'm going to try to eat some sweet potatoes today..I just need something else that I can tolerate..I still wake up in full blown panic attacks where my body is literally vibrating and my heart rate is through the roof.. According to the Drs, there's nothing wrong with my heart..I do have frequent bouts with shortness of breath also.. Sometimes, I will get a itchy rash but it's not as common as it use to be..If I go outside while it's raining, I start having difficulty breathing and then the Anxiety tags along.. I'm trying to save money for SAAT Treatment, but since I'm not able to work, it may be a while before I can try it..MCAS is so much worse than AGS...If I get stressed, I react..If I get sad, I react..If I'm in the sun at all, I react..Some days I'm literally bed ridden..This is taking a toll on my mental health and I stay depressed all the time..I can't go in anyone's house because I react to the smells, and it's been 3 years since I was able to walk inside a restaurant.. There's a lot more I deal with, but it's just too much to type..I hope you continue to improve..

Praying for you.

You describe me 😢

Please do not focus on oils at all. This staff is not good for health. It is not sustainable and what is worse you will damage your metabolism. Every kind of fat make us sick and fat. Do not eat it :( Try to eat plant proteins (beans, legums...) with your salad instead of oils. Please, check the starch solution. Your body will need time for healing, but you will get healthy with starch diet and you will love it forever ❤

My heart goes out to you. Have you considered mold exposure. There is a connection. See Dr Becky Campbell article on the connection between mold and POTS.

Hi there. I have a suggestion for you. I've experienced the same thing and the only thing that allowed me to eat again without getting cold and feeling like my soul leaves my body was Kreon. It may be called different at your place. It's a pancreatic enzyme called pancreatin (consist of amylase, lipase, protease and lactase) and despite me not having any pancreas issues, I can not eat anything without it to this day. The "Aller pro" has Bromelain, which is a natural digestive enzyme that targets the same issue as pancreatin, but it's much weaker. I have a strong feeling that Bromelain is the exact thing that allows you to eat. And if it is so, I'm begging you to try Kreon 10000 and see if it makes you feel better. It allows me to eat what I want without feeling like I am dying, and while high histamine foods still case reactions, I started to live almost normally again. I also take Quarcetin and DAO for high histamine foods and they are working. I know that it is bizzare to take an advice from a stranger on the Internet, but please research it and try it, if you are willing. I truly believe that it will help you tremendously.

Hey Neels. I hope you are feeling better and have found more answers since publishing this video. Have you considered mold/fungus allergy? If you have mold in your home, auto, or workplace, exposure can cause a large number of the symptoms you are experiencing. Our immune system is dynamic, so its possible that you are in a hypersensitive state as a result of exposure to higher than normal levels of mold and mycotoxins. Check your place out. Mold can grow and thrive on just about anything, but its mostly going to be on cellulose. Look for damp or spots that may have been water damaged in the past.

Also look up oxalate poisoning from foods.

Pls look into candida /fungal & parasites, worms. Many are infested & these parasites are wreaking havoc in one’s bio system. Seek a good naturopath & get tested for candida & parasites. Stay strong sweetie……💜💜💜

The quack cines have been slowly & deliberately poisoning humanity. Health is NEVER injected. We were all created & born with a very beautiful & sacred immune system, that has been under attack. We the people are waking up. Stay strong & no fear, we are winning this battle. 💜💜💜

Thank you for sharing your story. There is a POTS healing story out there called “Wheelchair to Rollerskates” how she did brain retraining to heal herself.

Did you find out if you have hEDS too by chance? It goes along with pots and mcas.

Most of this caused by mold toxicity!All my symptoms are gone after the mold detoxification process!

Oh my god this happened to me!!!!!!!!

Thank you for sharing your story. This is a huge help to many. Even just letting people know they aren't alone does so much. Did you do any blood or urine testing to help with the diagnosis? Tryptase and histamine levels?

Was ever tested for Lyme?

I got polymyalgia rheumatica from Covid… another debilitating disease!

Going carnivore helped me a ton and have been getting more into coherent breathing. And I have to avoid histamines, cultured, cured, aged foods as well. Was doing good until I gave up my black tea and this has freaked my body out with crazy pvcs and tachycardia. But it is getting better…. It is an autonomic issue with cell damage (the mcas part) and a high fat and cholesterol diet can help heal the cell membranes. Might be worth looking into. I suffered my whole life and I can so relate to your story. I hate the heat also. Thinking of moving to Alaska. 😂

I contracted mono and covid in 2020 as a freshman in highschool, and went with POTS, MCAS, ME/CFS, and SVT undiagnosed for three years. My primary care doctor said that it was due to anemia. One day he was out of the office, and I came in for acute symptoms. He wasn't there, so another doctor saw me, and referred me to a specialist. Because of the time I missed being sick and sometimes bedridden, I failed chemistry and made low grades throughout highschool and missed out on my graduation, prom, etc. I had to give up sports when I used to play 2-3 at a time. I'm still trying to figure things out, but I have a team of doctors finally who are taking me seriously. It just sucks that I had to get "sick enough" (full body rashes, narcoleptic-like symptoms, asthma attacks+developing asthma, passing out, ER trips, etc.) until I got proper care. I hope the healthcare field can begin to SEE us before we are broken mentally from all this crap.

PENE is what you describe, which becomes PEM also. This is classic over exertion. The only resolution is to STOP everything. I have to lay down only on my stomach or right side and hold catatonic often for hours, sometimes days. Must get breathing down with hypoxic breath training, everyone is hyperventilating… The best food solution I found is going ruminant carnivore. No more gut pain no gas, and it provides optimal nutrition which I found is a huge factor. We are not making sufficient ATP on demand. UA-cam channels for Dr. Kenberry and Dr. Anthony Chaffee are great. I have a solid MCAS diagnosis as well, but I do much better when I eat red meat daily. Missing one day is not good, I will fall back, nutrition crucial. Finally, I found massive sunshine mandatory, enough to maintain a torso tan year-round. I live at 40 N. so I built a solarium to do my heliotherapy through Winter. It's been so amazing I'm designing solarium for Health hoping to market these. I now get far more functional days, and even at 65 and 16 years in with ME, I'm more hopeful that I'm still coming back to work again. it's so sad reading endless stories like this where simple overexertion either physical or mental and both is the worst must be recognized. My early triggers are vertigo and nausea, if I ignore this it hits my gut fast, if I ignore this I'm put down on the floor and can't move often for hours. I get hypothermic convulsions which my neurologist calls full body cramps, which might describe what you were trying to here. vagus nerve pain. You might try lying on your right side, holding so still your breath is imperceptible. I have to stop exerting… Exercise is not required to maintain proper weight. Indeed, it is carbs that I only put on fat, which interferes with everything. I wish everyone would try ruminant carnivore for even a month to see the incredible benefits. Nerves need animal fats. It is primary. I'm writing a book about the observation that these invisible chronic viral origin illnesses are not being dealt with properly by for profit medicine. drugs ought to be the last resort, not First… My proof is that I dropped dozens of supplements, once I found the proper human diet. Until this is addressed, it's a nightmare chasing symptoms. ATP is not made sufficiently! So, we must greatly reduce our energy demands, both physical and mental including emotional controls, crucial. It's frustrating that not a single one of my ME, MCAS, orthostatic hypotension, post polio etc. groups are aware that diet is primary. So I'm not as active because nobody wants to hear diet advice. I'm writing a book but slowly, as I found improvement through relentless testing over 16 years. Brain inflammation and microglia are the heart of this. I used to practice meditation, it helped me tons now. Helps to find the OFF switch..

Thank you for sharing your story. I identify with all your symptoms. Can you do an update on your health? I see you got your life back and that is amazing. ❤

I called an ambulance a week ago trying to move the entire time, I couldn't move, I could only look around. When I arrived at the hospital, they said "Stroke victims CAN'T talk, you can talk, you just don't want to." I was weak and had tremors and needed help to walk. The whole staff was trying so hard not to laugh and looking at each other. I cried while saying you guys are assholes. You're laughing at me. They said no we're not we're trying to see what's wrong with you." I cried so hard before leaving that room and had to have assistance from my bf. Walking away and being embarrassed, belittled, and treated like I was a drug addict. They laughed when I turned around the corner to leave, and I still see them til this day. All looking at me, and laughing. I was really scared... I do have EDS, and crohn's disease. This experience was the most traumatic for me. I still cry at random times...

I thank you for this video and I hope you know your story has truly shifted the lives of many others. Why we may not understand why these things happen to us. Why we wonder, “why us?” In this treacherous life, you have made others feel understood for once in their lives. Thank you for sharing your light for those who’ve felt most understood their whole life.

Did you have a tilt table test? Yours is an amazing story. I hope your health steadily improves.

This is me for 45 years dismissed, crazy, in your head. O m g I live in my air con bedroom!!!!’ It’s so isolating. You cry for all of us! I’m recovering from anaphylactic shock x 6 today.

What did you use as a natural antihistamine

All I can say is thank you for this video.

Testosterone will help build t cells. Most women have very low to no testosterone, especially during menopause. But unfortunately, for us to get the help we need for hormones, we 99.9% of the time have to pay out of pocket for a good doctor who specializes in hormones.

Yes Jesus help her and us with these terrible symptoms. ❤️🙏🏽❤️

I'm going through this 😢 My heart races, my parents say I'm lazy, because I don't work I have uterine cancer and this long haul Covid problem I go into panic mode, the Vagus Nerve massage helps a bit

I have only started my pots journey this year. I have never felt so ill in my whole life. I have suffered with ME/ CFS/ FIBROMYALGIA, G6PD... 2015, but this Pots on top has floored me in months.... I am seeing the best Pots professor in 3 weeks after numerous tests. I pray now i get an insight into healing as i can no longer walk. Something is seriously attacking my body. Yes, i believe gut health is everything now & just learning. Your video has been so informative 🙏 i have had one Trauma after another since 2015, 2018, 2024. Even this week lost my fur baby of 15yrs & my carer diagnosed same week with stage 4 cancer 🙏😞 Stress is my killer, knowledge is Everything. x2 Covid injections killed my immune completely. Thank you for giving me " Hope " 🙏 Sending healing hugs to you & other New sufferers 🫂 ( i have just joined every pots group in the World ) i no longer feel so alone.

Did you ever get tested for mold sickness?

Big (((HUGS)))) I hope so much that you are getting this figured out. I too am suffering with this mystery illness and it IS a comfort that someone else understands what it’s like to have life come to a screeching halt! It’s very hard when you’ve been an active person your whole life. Prayers for you!🙏💕

How are ypu now?

Hello! I just subscribed. I can relate to almost everything you talked about. I too have POTS and histamine intolerances as well as ME/CFS and fibromyalgia. It’s a nightmare. I’m sharing my journey here on YT as well just so people like us know they’re not alone. Your story made me cry. I’ve been doing the carnivore diet and it has helped immensely with so many symptoms, but the pots, and a handful of other symptoms still remain at this point. I’m hopeful that’ll I’ll regain my health one day, but it’s been years and years of suffering. I too am a Christian and I know God hears us. At the end of the day it’s his will and I try to surrender to that. Thank you for posting your story! Big hug from Tennessee!

Get a different cardiologist who will check your heart while you're having issues. Have you tried accupressure to help place you out of fight or flight? Eat vit C rich foods. Vit C helps modulate histamine issues ( not sure why any of your doctors didn't tell you this) . Yoga therapy is good too . Benadryl has lots of side effects.

my wife has the stairs..but no passing out...

I know your plight. I have had Lyme disease for 20 years. My relationship with God keeps me sane. You will be in my daily prayers.🙏

🙏May God bless you daily‼

Am sanm w long covid vax.gut dxsbiosis, celiac, mast cell, sinusitis, cfs, studied this 4 3 yrs, pots yes.see 11 drs who zreat 11 bidy parts, interested in wjat u take fir doa, natural, im alone + its hard,🙏❤️

Hi there my name is Mallory. I have never reached out to anybody on UA-cam before like this but your video on your diagnosis seems a lot like I’ve been going through for a long time. I feel weird asking this but is there a way you could reach out to me?? I really am in need.

I'm surprised no one is mentioning Long Covid. I got Covid April 2021, within 4 months I was diagnosed with POTS and felt more was going on. The science is finally starting to show that Mast cells play a huge roll in Long Covid. We have to stop the Covid cycling.

I'm crying because this is me. I want to go home to heaven now. I'm only 32, with a family that I love, but everyone else left me. My church family abandoned me. Thank you for this video. You have no idea how it feels to not be alone. I have prayed many times for the Lord to heal me. All of my elders, who have seen healings in other people have prayed for me as well. This is not living.

Can u pls add a list of your products in the description or here?

Vitamin B1 seems to be helping, along with my doc who does traditional and holistic medicine. My dysautonomia is very severe. Thx for the video, cuz I’m now really trying to work on my diet and supplements. I already was vegetarian.

What happens if you take Avocado??

Great video! Some friends doing it in November and think I’m going for it!

I appreciate the video but I kind of got lost on you saying You have to do it naturally I believe if you have to mostly managed your symptom yourself because doctors can suck But I was eating natural eating healthy but then i ended up with POTS and gastric and i find that conventional medicine has help me lots where natural WILL NOT work for me, I have to take a drug called regland often for my stomach to move the food into my intestines. If I do not, it sits there which is dangerous. I am of the faith as well and God has blessed me with a lot of good doctors. But I believe that you need to listen to what your body needs natural or conventional. It depends on the person but I am so happy. Natural is working for you. I wish it would for me because I really don't like taking a whole lot of drugs.

This sounds very similar to what my part is like when it's freezing. I'm okay, I have my limits when I exert myself but I'm okay but when it is hot, like anything above 70 I'm dead and I can't exert myself. I still have symptoms even in the cold. They're doing chores around our house and stuff, but man that he is a killer for me.