Відео

Hoping adjustments by doctor helps.

Ampyra not working the best for me. Makes me more sleepy on the weekend. That is only taking it once a day. Definitely helps walking when taking those potassium pills.

Dr Terry Wahls reversed her MS through diet (deficiencies). She was wheelchair bound, tried every modern medical treatment, then found the natural cure. Do the research. Our healthcare system has been corrupted by greed.

ua-cam.com/video/JjH-WYTs9KY/v-deo.html

Interesting that your video metions nothing about the possibility of leads migrating, or pain from infection. Those were my two major concerns. I had a consultation with my Urologist where I asked at least twenty questions which she addressed for me. At first I had decided to go with Axoincs, but she persuaded me that both brands were very similar. The remote of Intrastim has been improved considerably. I would say that being comfortable, and confident in the abilities of one's surgeon is important to me, because to have Axonics I would have had to go to a different Urologist, one who was not recommended by my Oncologist, so therefore an unknown quantity. I love my Oncologist to death, so decided to go with her advice, because she has never steered me wrong!

You Tube Alan MacDonaldMS is a parasitosis ua-cam.com/video/EHVXJpDBcmU/v-deo.html

You Tube Alan MacDonaldMS is a parasitosis ua-cam.com/video/EHVXJpDBcmU/v-deo.html

Hello gorgeous! Great update, sorry I am so late. Going to try and keep up with everyone.

Thank you for your update Maria. I have a request for another video. If you are on Social Security Disability, can you tell us about your experience please?

It’s lovely to see you again, Maria. I’m glad you’ve found meds that seem to be keeping things in check, and a PT routine which works better for you..good effort 😊

great to see u..

Hello Maria thanks for the update. I think it's great that you're been feeling better from your ups and downs. Keep posting it helps. Christine

Happy Belated Birthday! Thank you for sharing because it is a battle. How are you liking the new meds,any changes with your symptoms?

Happy Birthday :) Thanks for the update, take care

thankyou so much for sharing your personal journey . im considering self cath. its good to not feel alone and that your not the only one. xx

hi how's things going

People say "It's been a minute" currently, actually! So you're not too far off. Please update us soon if possible, I hope you do very well :' )

You might find the book and website Overcoming Multiple Sclerosis interesting.

Maria you have a progressive disease. When i was 30, after 7 years diagnosed, i was about where you're at - I'm 46 now, i've had it half my life. i tried various meds, healthy diet, exercisee but it has still progrssed. What info do you want from a spine MRI, it will only confirm you have MS. looking back i wish i had not wasted time fixating on trying to stop the inevitable. just enjoy life

Good to see you. They're close just hang on

I know this is 2016 and im on tysabri and this is my 3rd infustion and I love looking at your videos the week of my treatment I feel bad but two weeks before the treatment I feel great that crazy but thank you for your videos

after 3 infusions I had a horrible MS relapse. got CDiff while in rehab hospital. tysabri bad for me.

Unfortunately, your are now "progressing". It is not that you are going backward, rather, progressing/traveling further down the road of MS. Tysabri, if it is working for you, (just as with any other of the MS-specific drugs) simply slows the rate of progression that otherwise *would* be occurring. Similarly, any off-label drug usage, if it works at all, will be not have all that much different outcome. Doctors are rather aloof and/or nonchalant because they really can't offer anything more. But, you are still young (30 IS young), beautiful, sexy, and wonderful.

Hey there Maria! GLAD to see you.

Glad to see you back :-)

Awesome to see you!! :) I hope you do keep making videos! I've had a lot happen to me :( so have not been up to doing a video. I should though. Thanks for making this. I'd like to be inspired again.

I have one for nuerogenic bladder= SUCCESS :)

well, Maria still with the same boyfriend. She is not a happy person. It causes a lot of tension between her and her real family.

IF TYSABRI TOOK LESSIONS AWAY,,I WOULD TAKE IT TOO...PHARMACEUTICAL COMPANY DIDNT SAY IT TAKES LESIONS AWAY...ITS TO TRY SLOW PROGRESSION

AFTER AN EPISODE EVERY ONE RECOVERS TO A POINT..AS YOU GET OLDER DISABILITY SETS IN...JUST WAIT AND SEE ,,,OBVIOUSLY UTUBE ISNT THE BEST TO LOOK AT .

Ellinidaa....i proforaa...afti eine

Did lesions shrink because of Tysabri? That is Great!

Christodoulou is such a cool last name, it's a Greek name I suppose.

lord you're so beautiful both inside and out .. would love to know how things are going with u now .. I felt a little weakness on my left side and I started searching MS , then I saw u //

Thanks for your video I have been considering this

I have cp with a nerogebic bladder and have been wanting to do this

IF THIS WAS CURE I WOULD DO IT TOO..BUT DOESNT MAKE SENSE,MORE BLOOD,,,WE NEED SOMETHING TO GET RID OF BRAIN LESSIONS.. LESSIONS ARE SCARES THAT DONT GO AWAY..

everyone slowly deteriorates..ITS NOT ABOUT RELAPSES ,,ITS ABOUT GRADUAL DETERIORATION,,OVER MANY YEARS ..YOU GET WEAKER OVER DECADES

HI Maria! I know you got this done quite sometime ago, but I am curious to see how your doing with it now?.. (I start a trial in Aug.) I am pretty nervous, but sure in hell want to have the sensation of having to PEE again and knowing when I have to! I too have retention, cathing absolutely is terrible, but not the end of the world I suppose... Any who I hope it has been working well with you!

Hi, thanks for sharing your experience! Although I know Interstim is widely used, noone wants to do a video. I can figure out why. I am scheduled to have the trial in about a month. Which I'll be counting the minutes since my bladder symptoms have gotten worse in the last 6 months. I plan on doing a video for the interstim experience and also regarding the baclofen pump I have. I got that 3 years ago but never posted videos. So, if you see this, wish me luck!

Hi, I was wondering if you could answer some questions about the surgery and nuergenic bladders.

I'm doing fairly well. Today I just happened to be super, duper tired but I'm sure I've just over done it the previous 2 days getting ready for a rummage. Other than that nothing really new happening. How are you?

hey! lol Ive been away from the computer for some time, I'm thinking about making a video soon!

how are you doing?

hey how have you been?

That was the trial. My story is a weird one, my doctor doesn't even really know what to do. I got the interstim for retention, but now I wet myself at least a few times a week. I'm looking for the right program for right now.

It is stable for now, not much has changed. Ive been the same for a while, just with some back pain that I've been getting IDD for.

Oh, my aunt has the same name as I do, but married into another family.

No, I live in the states. Missouri.

my dad has Multiple sclerosis and my two aunts and i have the same name and surname like you