Tysabri 9, CCSVI Update, and POOT!
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- Опубліковано 28 бер 2010
- Sorry i haven't made a video in a while, i should have made it earlier. :(
STANFORD IS BACK ON, THEY JUST HAD TO RE-ORGANIZE, THATS ALL. YAY!
Inclined bed therapy:
www.thisisms.com/ftopict-8535....
MRV in Chicago forum:
www.thisisms.com/ftopict-10359...
Response to MSVlogSupport:
• Miscommunication.wmv
Dear Maria,
this was a fun video with lots of great smiles!
It's always so good to see you and it's good to know that you are doing well and that you have a very cute cat that loves plastic bags!!!
He is so funny!!!
Take care!
Angela
Neurologists who do not take the time to investigate CCSVI have no business treating people with MS. PERIOD.
I am getting so sick of tests performed just to placate a patient when they are not even the right test.
Rant over.
Maria.
It is great to see you. You look well and I laughed at your crazy cats again!
God bless.
Mark
Hi, great to see u again after so long.
I have 4" blocks under the legs of my bed.. i feel so much better when i get up in the mornings..
Take care..
Heya !! excellent to see a video from you and that you are getting to walk more. and YAYE POOOOOOT!! Mickey gives a paw wave.
Boston University vascular is also starting up with CCSVI research. My advice . . make an appointment with a vascular person, not a neurologist. If he or she is not familiar with CCSVI send them my really news site before you go.
Vascular depts are going to be interested, not neurology depts. :) Huggles! Yaye! POOOT!
I like bag kitty! Thanks for the update. Great news on your walking.
Christine
@MsGirlOnline How frustrating! Sounds like there's a bit of education and research still to be done before it's safe to get things done anyway, be patient, it will happen. Amanda.
Hey Maria, good to see youre doing well. There was no follow up after your doppler? Wall walking really works (good for strength - and ego!) watch youre not arching your back too much. Gorgeous cat!
@tazscott14 HEY :) seriously, bypass the neurologist and start talking to a vascular specialist. Make an appointment, and print out a ton of stuff on CCSVI, send it to them, and then tell them that is what you wish to discuss when you come in. Find a good Vascular person and mention that Dr. Byung-boong Lee is working on this and that he was the Chair at the world conference on ccsvi. This dude is BIG and they will know who he is. It will make them take note! - Hugs, Judy
Hi Maria :o) Nice to see you. I think the rule is never perform with animals and children - they never do what you want at that crucial moment!! hahaha cute. Glad to hear you are doing well. Kerri x
Thanks for the video. I have been sleeping with my pillows set up on a slant for a while now. You say- MRV in Chicago? My doctor says that they don't do that here. I wonder why he says that, I am still waiting for my neurologist's response to my results from my specialist visit. Dragging their feet for sure.
Add Georgetown University and Johns Hopkins to that list for CCSVI. Their vascular departments. I now have the mindset that neurologists really will not support this as making money from patients is their livelihood.
Think vascular!! =D And Yaye Pooot! :) heh sorry he is so cute. its fun just to say his name. lol.
Hi..........I know why Stanford canceled its CCSVI procedures - its because a couple of patients died from it (maybe 1 died and 1 disabled after an emergency heart surgery ? not sure) . Please do a google for it, I recall a "Dr. Drake" as being involved.
Sorry to be bearer of bad news ! But it is true, I saw it a few weeks ago, and I thought everyone would know soon enough.
I love your cat ....super cute.
Best to You,
Steve
Neurologists who do not take the time to investigate CCSVI have no business treating people with MS. PERIOD.
I am getting so sick of tests performed just to placate a patient when they are not even the right test.
Rant over.
Maria.
It is great to see you. You look well and I laughed at your crazy cats again!
God bless.
Mark