CCSVI FTW??
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- Опубліковано 24 лис 2009
- CCSVI for the win?? we will see.
Paper:
jnnp.bmj.com/content/80/4/392....
CCSVI Forum:
www.thisisms.com/forum-40.html
Irishbear79's video:
• Multiple Sclerosis: Co...
angelusa73's video:
• CCSVI: The Liberation ...
It is so good to see you and to hear you talking about this! I hope that everybody will find out about Dr. Zamboni and his wonderful work! I agree with you when you say that it is important to be mini experts of our own disease. Unfortunately, my doctor had Hopkins already told me that he doesn't support it, so I wish I would be in Italy at this moment, so I can to go to Ferrara and get it done!...and I wouldn't pay a thing because we have free healthcare! :)
You did a good job!
Hugs,
Angela
I hope we can all get a hold of this Paper when it does come out I will put it on my blog and website :) and that goes for the rest of you if you have one!
I am so going to get on the exercise bike and see if I have a tomato head!! lol I agree with you about the no drugs thing - too good to be true - time will tell. I just hope not too much time! Kerri xo
I don't seem to get tomato head but I don't sweat very much either. Something tells me we are born with this. As we get older it gets worse. What causes it? Maybe simply a lack of vitamin D through childhood. If this operation cures MS. This will cost the drug companies not millions, but Billions of dollars!!!
You make sense. My doughter with MS not swet at all.
that would be cool!
It amazing news, i saw Mark (irishbear76) videos yesterday and i was sooooo happy.. i have always got a cranp like feeling in my neck and my head is always hot and my body is always cold.. i wish this is it.. i wish this is the news to finnally say bye bye to MS.. Im praying and good luck..
Omario
Thank you for your video post MS Girl.
Like you I'm hopeful and skeptical at the same time. I won't let drug company profits stop me! Like you, I think CCSVI makes sense...sign me up now!!
everyone slowly deteriorates..ITS NOT ABOUT RELAPSES ,,ITS ABOUT GRADUAL DETERIORATION,,OVER MANY YEARS ..YOU GET WEAKER OVER DECADES
My name is Andy, I'm 35 and was dx 8/08. I don't get tomato head and used to sweat really bad when I worked out when I was in my mid 20's. Now when I work out I only sweat on my head. I can't run so I can't really sweat.
Hey there, I'm just hearing about this. I do not get tomatoe head, and I sweat everywhere. I do have MS though.
I have tomato head at least 10 times a day. People at work are constantly asking me if I am pissed LOL.
I also have a new vein that stands out on my forehead. It is a Y branch right at the hairline.
ANyway. There is no money in cures only treatments.
THE MS society is just being wary because of the nature of the current paradigm. You cannot say that something is autoimmune and started by a virus for over a decade and then switch to CVD overnight.
Zamboni is right.
Mark
Have you been following my research into posture and CCSVI ms?
Google inclined bed therapy to find more info and watch the videos on my site.
We have a study rining on thisisms forum also for people with ms.
Andrew
Hi Maria,
Well I do get tomato head but I am also a sweat pig. Any execrise causes me to sweat A LOT.
Don't know if that means anyting? I do know all my relapses have been in the spinal cord or the cervical cord. Anyone know if they are looking at anyting but the brain??
Great video as usually and to do your research.
As always be your own best advocate!
Andrea
BTW, youre looking great girl!
When I exercise, my head gets really hot (I dont know if it's red, ill check next time) but only under my eyes actually sweats, my neck gets very damp, and so does my back, but not like how I see other people sweat - I'll be watching these exercise videos and everyone is sweating - like dripping, but not me. I just dampen hehe, that's kinda weird hmm? Because I dont really mind not sweating, I never looked into it.
Im very, very cautiously optimistic *fingers crossed*
thanks for the info msgirl here is to just
girl online!
I have tomato head, all my life!
Thanks.
what about sonograph or tompography - you think they do that also?
IF THIS WAS CURE I WOULD DO IT TOO..BUT DOESNT MAKE SENSE,MORE BLOOD,,,WE NEED SOMETHING TO GET RID OF BRAIN LESSIONS.. LESSIONS ARE SCARES THAT DONT GO AWAY..
What could have caused my vein to get kinked though?
What if you never grew hair under your arms? but had tomatoe head? I am not trying to be sily but it is really my life ! no underarm hair am 51 yrs of age... I can not regulate my body temp! its always been and issue since I can remember? gott any ideas? love your posts! happy turkey! suz
Girl, don't expect neurologist to test you for it.
Instead try going to a cardiovascular doc like I will. I am still dealing with my neurologist but those assholes will probably do anything in order to avoid admitting that MS is caucused by vascular impairment.
btw. Do you know what tests they gotta do to determine whether your veins are narrowed?
MRI? ( or did you say mrv??)
what else?
omg That is like me I always tell my mom and sister that I don't have to wear deoderant. lol (I do if I go somewhere to smell good but not at home) I could live without buying it.
hey, sorry i could only use that video as a response only to one person.. its on irishbear76's responded videos... im sorry
Omario
Hi Sweetie! remember me? I'm sooo sorry it has taken sooo Long to write you :( Allot has happened. To begin with I'll say I had surgary that tossed me into a long drawn out flare up! skype me soon and I'll catch you up! HUGSSS hope you are doing well now on Tysabri! Violet