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Detours: Understanding Acquired Brain Injury
Приєднався 30 січ 2022
The purpose of this channel is to educate Survivors that are new to the world of brain injury and family members about Acquired Brain Injury and the pathophysiology of trauma and disease that leads to brain injury.
We will discuss non-invasive imaging and how it works and what is shows. There will be videos on the different techniques used in rehabilitation to help Survivors through the recovery process and various agencies to whom they may turn for assistance.
There will be some interviews from Survivors and they will share their experiences. We will address symptoms of various disorders that emerge after ABI such as CTE and post traumatic seizure disorder and post-concussive syndrome and SIADH. We will also be discussing medications used to treat ABI and alternative treatments and new research which is providing hope for the future. Its a broad topic and we
We will discuss non-invasive imaging and how it works and what is shows. There will be videos on the different techniques used in rehabilitation to help Survivors through the recovery process and various agencies to whom they may turn for assistance.
There will be some interviews from Survivors and they will share their experiences. We will address symptoms of various disorders that emerge after ABI such as CTE and post traumatic seizure disorder and post-concussive syndrome and SIADH. We will also be discussing medications used to treat ABI and alternative treatments and new research which is providing hope for the future. Its a broad topic and we
Thunderstorms Of The Brain : ILAE Classification Of Seizures and Epilepsy Episode 3
This video is the third in our series "Thunderstorms of the Brain" and in this episode we discuss the updated classification system developed by the ILAE. (International League Against Epilepsy)
This classification system is used around the world by physicians and APs to communicate with each other and their patients about Seizures and Epilepsy. We will describe the system in detail for both seizure and Epilepsy classification.
If you have any questions, please ask or comment below. Please click like and share, don't forget to hit the bell icon.
Also, please share this video with anyone who might benefit from seeing.
#detoursunderstandingacquiredbraininjury , #traumaticbraininjury #acquiredbraininjury #ABI, #TBI, #epilepsy, #epilepsyawareness , #epilepsywarrior , #epilepsyawarenessmonth , #seizure , #seizureawareness , #seizures , #seizuredisorder , #epilepsia #neurology
We do not include photographs or videos of patients experiencing seizures unless people have specifically allowed us to use these videos or they are public domain. Just to notify people ahead of time that there will be few videos of people experiencing seizures, due to our desire to protect the privacy of seizure patients.
This classification system is used around the world by physicians and APs to communicate with each other and their patients about Seizures and Epilepsy. We will describe the system in detail for both seizure and Epilepsy classification.
If you have any questions, please ask or comment below. Please click like and share, don't forget to hit the bell icon.
Also, please share this video with anyone who might benefit from seeing.
#detoursunderstandingacquiredbraininjury , #traumaticbraininjury #acquiredbraininjury #ABI, #TBI, #epilepsy, #epilepsyawareness , #epilepsywarrior , #epilepsyawarenessmonth , #seizure , #seizureawareness , #seizures , #seizuredisorder , #epilepsia #neurology
We do not include photographs or videos of patients experiencing seizures unless people have specifically allowed us to use these videos or they are public domain. Just to notify people ahead of time that there will be few videos of people experiencing seizures, due to our desire to protect the privacy of seizure patients.
Переглядів: 182
Відео
Thunderstorms of The Brain Epilepsy and Seizures Defining a Disorder Episode One
Переглядів 400Місяць тому
This episode is the first episode of our series on Epilepsy and Seizures where we will discuss the latest definition of Epilepsy and Seizures and some of the organizations which provide support for patients and professionals which care for people with seizures and epilepsy. Please like and share this video with anyone who would benefit from this content. Don't forget to subscribe and hit that b...
Thunderstorms of The Brain : Epilepsy and Seizures An Introduction - Part I
Переглядів 100Місяць тому
This is the introduction to a series dedicated to Epilepsy and Seizures. Specifically, this series is meant to provide a surface look at Epilepsy and Seizures and their connection with Acquired Brain Injury. We will discuss definitions, assessment, professionals involved in treatment of seizures, treatments available at the current time (including alternative treatments) , first aid for people ...
Jennifer and Mark discuss the interaction between Chronic Mental Illness and Acquired Brain Injury .
Переглядів 1182 місяці тому
In this video, Jennifer and Mark discuss how pre-existing mental illness may interact with acquired brain injury. Many people with ABI have a history of pre-existing chronic mental illness and we discuss how pre-existing mental illness may increase the likelihood of ABI and how it may effect symptoms of disorders such as schizophrenia, manic-depressive disorder, anxiety, and depression. Acquire...
Pediatric Essentials Of Acquired Brain Injury: Traumatic Brain Injury - Ep 1 (Mechanisms of Injury).
Переглядів 2664 місяці тому
In this episode we discuss the mechanisms behind pediatric traumatic brain injury and the long term effects that traumatic brain has on children and adolescents. Pediatric Traumatic Brain Injury is similar in many ways to Traumatic Brain Injury in adult patients. The differences are directly related to the fact that kids and teens' brains are still developing. Despite the fact that these make f...
Discussing Dental Dilemas: How Acquired Brain Injury and Oral Health connect ...
Переглядів 3245 місяців тому
Take care of your teeth and gums! This is Dental Week in Australia, but its important to always remember to see your dentist every six months or sooner if you have an Acquired Brain Injury. Jenny discusses her long history of dental health issues over the last few years and I explain why we have difficulty with oral health after ABI. Causes of Dental Problems After ABI: Dry Mouth due to lower s...
Debbie and Mark's Heartfelt Conversations : Painful To Watch? Migraines and Hydrocephalus Headaches.
Переглядів 976 місяців тому
Debbie and Mark wanted to show what its like having a conversation while both were struggling with post traumatic headaches. Post traumatic headaches have many different sources and have many different manifestations. Mark has migraine headaches, which he has had since before his TBI, but which have been made worse by his injuries and effect his memory and word finding. Debbie has headaches fro...
Essentials of Pediatric Acquired Brain Injury : Epidemiology of Pediatric ABI (Episode 1) ...
Переглядів 2466 місяців тому
This series of videos is intended to explain the differences and similarities between pediatric and adult acquired brain injury. We will discuss Traumatic and Non-Traumatic Acquired Brain Injury throughout the series and how the similarities and differences between children and adults with Acquired Brain Injury effect the course and long term outcome of their brain injuries. In this first episo...
Essentials of Acquired Brain Injury : Unanswered Questions and Acquired Brain Injury: End of series
Переглядів 2186 місяців тому
In this our final of the Essentials Series, we discuss a broad variety but by no means exhaustive list of possible and speculative causes of acquired brain injury, including: Micro/Nanoplastics/Materials Medications Low Frequency Vibrations Disrupted Gut/Brain Axis Migraine Headaches Excessive Noise Ubiquitous Chemicals All of these plus potentially others could cause ABI (Acquired Brain Injury...
Debbie and Mark: Heartfelt Discussions Ep 2 0 Supporting Those Who Support Us
Переглядів 816 місяців тому
Debbie and Mark engage in an open and heartfelt discussion about caretakers, their brain injuries and the support they received. As usual these type of open heart conversations wander about and touch on many serious and lighthearted and even funny topics, from our loved ones saving us, to misunderstanding the meanings of modern terms, to exploring why some environments, despite being intensely ...
Essentials of Acquired Brain Injury: Energy Based Brain Injury
Переглядів 3987 місяців тому
When the word brain injury is mentioned, the vast majority of people, both professional and lay think of mechanically induced Traumatic Brain Injury. While this makes sense, there is another type of Traumatic Brain Injury that is not mechanical but resembles TBI in every way except mechanism of injury. (MOI). Energy based ABI is a type of TBI that is usually forgotten in the shadow of Closed He...
Dishing with Debbie and Mark: Discussions about everything and nothing. Episode 1.0 ...
Переглядів 1277 місяців тому
Debbie and Mark talk about their experiences with brain injury, survivorship, communication skills deficits, thoughts of suicide, seizures, finding a way back, advice to new survivors, gag gifts of brain injury, savant syndrome, humor, face blindness, and just plain old living. Share this video with anyone who would benefit from seeing it. Click like and subscribe and comment below. Please Visi...
Pills and Potions: Pharmacology and Pharmacy for Survivors and Caretakers Ep 1.
Переглядів 2187 місяців тому
This video is focused on the basics of Hospital Pharmacy (The clinical study of dispensing the appropriate medications for a specific problem) for patients with Acquired Brain Injury. In this video we will discuss the principles of prescribing and dispensing the specific classes of medications for patients with Acquired Brain Injury. This is a general video which describes the classes of medica...
Introducing Jennifer: Overcoming The Past
Переглядів 1127 місяців тому
Introducing Jennifer: Overcoming The Past
Swimming with Debbie : Detours Understanding Acquired Brain Injury ...
Переглядів 657 місяців тому
Just as it says :-) Learn some basic swim and stretching skills with Debbie G. Do Not Swim without someone assisting you, even if you are an experienced swimmer ! Please click like and subscribe... don't forget that bell :-) #detoursunderstandingacquiredbraininjury #traumaticbraininjury #acquiredbraininjury #headinjury #headtrauma #neurotrauma #braininjury #braininjuryawareness #braindamage #TB...
Julie 2.0 : Transitioning from Downstairs to Upstairs Parent ...
Переглядів 777 місяців тому
Julie 2.0 : Transitioning from Downstairs to Upstairs Parent ...
The Essentials of Acquired Brain Injury: Metabolic Encephalopathy (7/9) ...
Переглядів 7638 місяців тому
The Essentials of Acquired Brain Injury: Metabolic Encephalopathy (7/9) ...
Detours Shorts: Hypoxic and Ischemic Encephalopathy...
Переглядів 538 місяців тому
Detours Shorts: Hypoxic and Ischemic Encephalopathy...
Detours Shorts: Meningitis and Encephalitis...
Переглядів 598 місяців тому
Detours Shorts: Meningitis and Encephalitis...
Detours Shorts: Strokes, Aneurysms, & AVMs.
Переглядів 258 місяців тому
Detours Shorts: Strokes, Aneurysms, & AVMs.
Detours Shorts: Traumatic Brain Injury...
Переглядів 698 місяців тому
Detours Shorts: Traumatic Brain Injury...
Beyond Tired: Kate and Mark Discuss Personal Experience of Neurofatigue.
Переглядів 1,5 тис.8 місяців тому
Beyond Tired: Kate and Mark Discuss Personal Experience of Neurofatigue.
Julie 2.0 and Mark: Family after Brain Injury
Переглядів 628 місяців тому
Julie 2.0 and Mark: Family after Brain Injury
Introducing Laura: Surviving Encephalitis
Переглядів 2819 місяців тому
Introducing Laura: Surviving Encephalitis
Essentials of Acquired Brain Injury: Infectious Diseases of the Nervous System (III) Encephalitis
Переглядів 3379 місяців тому
Essentials of Acquired Brain Injury: Infectious Diseases of the Nervous System (III) Encephalitis
Heartfelt Conversations: Julie 2.0 - Finding ourselves:
Переглядів 439 місяців тому
Heartfelt Conversations: Julie 2.0 - Finding ourselves:
Detours in the Road of Life Dana and Amy's Story
Переглядів 929 місяців тому
Detours in the Road of Life Dana and Amy's Story
My father had bacterial meningitis from streptococcal pneumonia. However, we only found out because he got confused and double dosed his medication which caused very severe serotonin syndrome which landed him in the hospital. (he was on multiple serotonergic medications) the ER doctor assumed he had amphetamine toxicity but didnt even drug test him, i arrived about an hour after he got to the ER and i was shocked by the state he was in but i recognized it as serotonin syndrome and explained that my reasoning was because he was on so many medications that effected serotonin. The doctor blew me off at first but when the drug test came back clean she took me much more seriously. They called poison contol who talked them through it but when he didnt wake up they finally did an MRI and found the meningitis. He was transferred to a better hospital. He was getting better then got sepsis from an infection in his gallbladder. But he eventually started to recover. However the nursing place he was sent to neglected him and he was sent to a different hospital where he was diagnosed with metabolic encephalopathy. 🤦🏼♀️ I brought him home and took him to many many doctors appointments and now, somehow, hes basically back to normal but his short term memory is very poor. I have no idea how he survived.The doctors at the second hospital gave me "the talk" because he was in such poor condition when they recieved him that they didnt want me to get my hopes up.
Def from severe celluotous i had sepsis with uti
I. Have memory loss and when i hsve a conversatjon lost what i ssy
This is a well explained lecture. Thank you!
Ended up minutes not even away from dying intabated in the ICU due to drug induced toxic encephalopathy from laced marijuana from a sealed package from a legal dispensary. Most horrible thing I have ever been through. Just so happy I am so blessed I am alive happened the 8th of this past December and it takes months to get better after the toxins are gone I wish I had the room and time to type what all happened it was just horrific and I wouldn't wish it on anyone God bless anyone who knows or have been through it because the hallucination I had I was dead and tortured in a loop of about 40 seconds over and over and woke up a day or so later when they were taking the breathing tube out of me
I am almost 2 years from SAE. I spent last year on end of life hospice. My brain feels like it’s vibrating still. The worse the vibrations the more “MIA” I am, or….i can’t think clearly at all. I had multi organ failure. Heart, kidneys, liver, pancreas. I got lesions on my brain, spinal cord, and other organs. I have a lot of atrophy. Lorazepam helps with my “brain buzzy (is what I call it). I was very smart. Both my oldest were valedictorian. I already had issues with bpm and bp. After I had a HARD TIME keeping them both from being CRAZY low. Any suggestions on the brain buzz? I want it gone. I can waddle now but only short distances. I had major weight loss (dropped to 92lbs and I’m 5 ‘11) my hands still look like crab claws. My numbness up and down my limbs. Drs don’t seem to know alot to help. I want relief from my brain buzz. It makes everything harder. My family is SO patient and supportive. I had already Ehlers Danlos Syndrome and other stuff when it happened. I got COVID. Sepsis. Was in the hospital. Then my dr of 13 years passed away and my new dr put me on Valium and Prozac. …….i was puking. Couldn’t hold anything down. Didn’t know my husband or kids. My pupils were HUGE. Nonreactive. I should have known. We should have known. They of course took me off those meds that aren’t supposed to be taken together. I have EDS VERY severely. 2 types. It didn’t help the situation. I just want my brain buzz to go away.
Sir what should We do we can not control fr seizures...
Great content 💯
Could you please make a video on hypercapnia?
My daughter has this injury from a suspected accidental fentanyl overdose. She was without oxygen for a long time. Today is 9 months since her injury happened. A couple months ago she started showing emotion and very minimally responding, then she acquired sepsis from neglect, among other things at the many facilities and hospitals she’s been to, it’s been a nightmare. Since the sepsis, she was barely even making eye contact except yesterday she did more than she has in a while, I can only pray this setback isn’t permanent. We have still a very long road ahead❤️🩹🙏🏻
Ok also has question about reading ( as Marc my child had his anoxic brain injury 25 minutes cardiac arrest ) - so I was concentrated on brain recovery So for naw his most problems in school ( yes he is in ordinary school and stil claver he has a lot nerotypical friends can play Minecraft & fortnight games) But in school bigest problem - reading ! We think about Alexia - that really part of brain responsible for reading was most affected ??? He is really good in mathematics & science he is very logical But reading ( not progressing even with a lot of training it’s like is more easy for him to remember scientific logic and discuss than to read it’s like when he is reading- he is decoding every word - and no more memory to remember what he did read …. But no problems to lisening audio books…. He listened all Harry Potter) Can you develop more about part of brain responsible for reading ?
Thank you for such a comprehensive explanation of the subject. Approximately 2 years ago my girlfriend (F 53) , born with Spina Bifida, experienced a Sudden Cardiac Arrest in my presence. CPR for 8 minutes (untrained), Paramedics took 20 minutes to get rhythm, transport, 45 days on vent, 1.5 years in various care facilities. Home now. Incontinent, Lost about 10 years of recent memory, Now aware and recovering. Slight speech impairment, completely verbal, understands humor, sarcasm, and almost all other. Math is good, reads and enjoys television, wants to get better. Masters degree in Public Administration, Masters in Sociology. Incontinant and suffering from pressure wounds. I love her so very much.
That’s great, I am happy she’s still here with you 🙏🏻
Hello, I was diagnosed with toxic encephalopathy in 2008 and have lost both my dr and specialist since the pandemic. I am in need of finding new Dr's and am wondering if you can please send an email where I can contact you. I'd greatly appreciate your help or a referral to Dr's who can help me in the Chicago area where I live. Thank-you Katharine
I have toxic encephalopathy due to breathing in toxic chemicals. The one scanned that always showed damage was a PET scan. Positive Emission Tomography.
Most likely she has some damage to her frontal lobe and hippocampus…usually any anoxic event causes widespread damage to the white matter as well, but without testing it’s impossible to say…she should probably have a neuropsychologist do an assessment and also have a neurologist check…seizures are a possibility even years later…although after five years, much less likely. My friend Julie had very significant brain injury from her cardiac arrest…she’s very sweet but struggles quite a bit…
I really struggle with the lingering deficits 7 years on from my injury, a toxic reaction to a systemic retinoid I was prescribed. I think in general, the neurotoxicity of very frequently prescribed pharmaceuticals is severely understated, and I would argue a substantial portion of patients exposed go on to develop mild cognitive impairment as a direct result. As for myself, there are good days and there are those really bad ones as well, where the brain fog, aphasia, and the disruption in registration, recall, executive functioning and everything in between is just wearing me down. It's a daily struggle. I do everything within my capability to get out of my body's way and assist recovery, - strict ketogenic diet as part of a ketogenic metabolic therapy, avoid any and all toxins the best I can (I completely abstain from alcohol) and I try to keep active by going on brisk walks in the park daily. Despite the hardships, I am happy to be alive, and am currently about to graduate medical school in the upcoming June.
Our primary host has been ill so we’ve been a bit delayed…
the culture of scientific discourse is autocratic and insane. you can't hold a conversation and talk complete nonsense. you refuse to examine literature outside of the bounds of your dysfunctional consensus, parroting establishment credo to the point of slaughtering every patient you can influence. what about Dr. Andrew Moulden? what about Dr. Ross Hauser and his thesis regarding spine injury and disease in relation to the vagus nerve. all of you in the profession are nothing but mass murdering creeps. absolutely childish. off the charts with evil. psychiatry is Nazism and when these pills are given to those with brain injury they die young, usually in the streets or in custody. and you eat their meat.
Hello, I love your videos is there a way I could message you and ask some questions, I am a tbi survivor I need a chat about adhd medications, and self medicating cocaine for years for the opposite effect, would love to find out some answers please x
I am on a waiting list for adhd examination but I really can’t wait, it is 100 percent clear that I have adhd since my brain injury
I have been using cocaine since after the brain injury couldn’t explain why I started snorting cocaine but a small dose would be perfect if it wasn’t cocaine…. I hope you know what I mean, if it wasn’t cocaine that made me feel normal and calm again I wouldn’t need any more
But the doctors don’t understand like what you do, they think I’m just a drug addict looking for another high but I’m not, the amount of research I do looking for answers all point to my tbi, I go to sleep listening to your videos x
I mean I close my eyes and listen every night not that I fall asleep lol x
I’m on #2 and I have 2 family members with this I believe. It’s horrible to watch happen.
Dang I LOVE this guy! He gets all of us who have suffered so much. I fell off a trailer almost 2 years ago and needed an emergent craniotomy for epidural hematoma with skull fractures. Glad to be alive! Thanks for ALL your videos, you are putting words to everything we all feel. Many thanks and keep up the good work!!
Thank you so much for the informative video, I especially appreciate the action items. Truly a Godsend for someone blindly navigating the nuances of TBI and struggling with the lack of therapeutic care due to short staffing/poor communication at the hospital.
Ty so much for this information as a man learning to find his direction through the valley of the shadow of TBI and a frontal severe TBI at that. TY just shared this with hope it would help people socially understand the changes to my health recently.
I suffer from tbi my symptoms didn’t happen until 4 years after the injury occurred.
Would my doctor be offended if I just shown him this video ? And said here u go, this might help you out a lot, Because the way this guy has just explained my situation in half hour iv been hoping for this
This is unbelievable somebody in this world actually knows what has gone wrong with my brain!!! After 12 years of wondering what the hell is wrong with me, I had frontal love damage in a car accident lost smell and taste, big respect for this video I need everybody who meets me to watch this video !!!!
people will never know the feeling of loosing usual control of your bodys behaviors that we have had since birth and abruptly loose. You are not alone friend there are others like me wandering through the same darkness and it does feel good to know we are not alone.
I had my ureter severed during a vaginal hysterectomy. I filled up with urine 30 days before I was told get help or die. Doctors ran. That's not normal to live 30 days, they said. I've never been the same. It was hell. Still is.
Thanks
I hope you make sime videos before this premiere
the advice is absolutely harmful. humans must not treat one another in accordance with the principles associated with lab animals in cages involving stimulus response algorithms associated with Skinner and Pavlovian type behaviorism. this is truly disgusting. outlandish and reprehensible. this fellow should be imprisoned and corrected for so much as suggesting such a manner of conduct. truly.
Are you a TBI survivor or do you have a loved one who is?
What is the "acute" aspect of metabolic encephalopathy? Numerous symptoms have continued since the event of exposure to pesticides.
Do you provide consultations?
thank you for your hard work and time making these videos. extremely helpful ❤💚
WELL SAID SIR,MY OUTCOME OF ENCAFFELITES
I'm still having problems with anger management, especially under stress. Going to have to try Abilify and/or a beta blocker--Propanolol.
I would be careful with Depakote/Valproic-Acid. I took in some years ago, only to incur injury to the liver as a result. Although i was fortunate to have recovered from the incident, the literature suggests that in many cases the pathology once instigated can become progressive, even resulting in death. So please be attentive. Also, Lamictal appears to be associated with the potential for a severe skin reaction, so I would also recommend caution with this medication as well, should it come into consideration. As regards to anti-convulsants, the most common and natural of all that is used in veterinary medicine is potassium bromide. I take this often, along with lithium. however the problem lf intermittent explosive disorder, per the DSM label, persists, particularly in response to any uptick in life stressors. very grateful for the advice in this video. anger management, though of value, is highly over-rated and as indicated in many animal models including our very own pets, the problem can be intrasigent and therefore often either under-treated or mistreated. those of us afflicted risk induction into situations of involuntary confinement which given the prevailing socio-economic factors can result in premature death via disposession and homelessness. I myself am now seeking to upgrade my own treatment protocols with regard to the anger issue as the matter of personal safety is of the utmost importance. Cigerrettes used to be my go-to drug, but since I quit the need to find a better, pharmacological substitute has become very evident. painfully so.
Thankyou so so much for this very informative video on ABI/TBI. 💫🙂☀️🌺🌸💮🏵️🌻
Thank you🎉🎉 You do an awesome job explaining. The brain doesn't play games. It's fascinating. The complexities....
Thank you!!
🎉🎉
Thank you
Can TBI trigger EBV?
My Daughter-In-Law had a Anoxia caused by anaphylaxis. It was sudden and lasted approx 5 minures. We feared that she would have severe brain damage but has done amazingly well but has short term memory loss and irritability. What part of her brain is damaged?
Thank you so, so much for this
Great video Kim and Mark
Wow, amazing info, thank you so much!!
The audio isn’t good, can barely hear her
Very informative, scary how many things can cause brain damage
Ah crap. I’m experiencing this behaviour with a housemate. How can you reason with someone in such a state?
Thank you for your thorough explanation. I stumbled upon your channel and the information has been extremely helpful in understanding what my little brother is going through. His accident happened two weeks ago and he is just now beginning to "awaken" from a coma.