Jess, run back and buy that blue pants suit! It was stunning on you! I was surprised when you said it didn't look on you like on the mannequin. Which is OK because you're not a mannequin! It was so sophisticated looking on you
I totally know how you feel. It's extremely frustrating and when you get tests done, you want them to show something wrong, as crazy as it sounds, so that you know for sure what's wrong and therefore get treatment, if you can. Don't know how many times I've left the doctors almost crying. But it won't deter me, I'm determined to keep on at them and hopefully get some satisfaction. And I hope you do too Jess 😄
Brilliant video Jess. Love the dress and your nails plus make up. Looking beautiful. Glad you and Steph had a great evening. Sending hugs to you both. 😻🥰😍😘🤗
Jess, anytime you get tested ask to have a copy of your results. You want to have a baseline and check changes over time. You can copy them into an excel spreadsheet or just keep the paper copy in a folder. Most of the doctor's in the IS have a portal to keep patient data on and the patient can access and look at results
It took me 15 years to get a diagnosis and I got diagnosed with stage 4 endometriosis last September and had surgery to remove it this year…. But had to go privately! Over the 15 years of trying to get a diagnosis They told me for years it was just IBS and if I was to loose weight all my problems would go away…. Don’t give up as you know your body!
This sounds exactly like my experiences. I feel like I have it too yet the doctors keep telling me its IBS. It's so frustrating, and I almost cry when I leave the doctors office. I'm glad you got a definitive answer after all that 😄
@@traceys8065 I came across an absolutely incredible gynecologist and he just got me, understood me and listened to me. I had endometriosis in 8 different locations it was really severe it look him 3.5 hours to remove it all and I just feel so frustrated that I was just ignored for so long and now when I tell my nhs consultants I have endo they still don’t believe me!!! It’s just crazy!!!! I really hope you can get a diagnosis soon xx
My friend had the same problem getting diagnosed with endometriosis, it took over a year with GP so ended up going to the nutfield in Newcastle to get diagnosed it was a very quick process.
Hi Jess My gp referred me to endocrinology & I waited approx 9 months to see a consultant. I had an ultrasound & blood tests. 3 months later, I was seen by an endocrinologist who diagnosed PCOS. I hope you get put on the right pathway to determine what's going on. The meal at Ginos looked delicious. We all need a bestie like Steph, she's amazing. Take care ❤x
Hiya Jess, I was eventually diagnosed with adenomyosis after year of tests and appointments because of my pain ( they just kept offering pain meds and more blood tests that came back "satisfactory") I TOLD them that I would like a MRI scan so they can do a proper in depth check and that's how they spotted my condition. I hope this helps ...you have to take the lead if you know something is not right 🤗 I hope you get answers your looking for xxx
Hey Jess. Consider asking your GP to be referred to a gynaecologist for a laparoscopy (keyhole operation) to look for endo plus an MRI after that to confirm it. Hope you get your answers soon xx
@@TheSliceOfJessthe wait for a laprascopy is years in some places it’s worth trying to see if you can have scans first to be treated so if you have it it doesn’t get worse. Speaking from someone who didn’t know they had stage 4.
I have been going back and forth with the doctors as I believe I have been suffering with lots of PCOS symptoms for years which just seem to be getting worse with no clear explanation. I got sent for a hormone/testosterone blood test which came back as normal so now just hit a complete dead end and don' t know where to go next. Trying to get any sort of PCOS diagnosis is so difficult, it feels like it's never taken seriously enough by doctors.
Get a referral letter from your GP to see any private consultant, ring the private consultant and ask if you can have an MRI or whatever scan they suggest in advance. Be aware that sometimes endo cannot be seen on an MRI, this will speed it all up. I just was not willing to wait. Also there’s loads of Facebook groups with support re Endo, they are really helpful.
I have endo too it's awful. Currently awaiting my hysterectomy and I'm 37. Been on zoladex since Jan which is a chemical menopause. Been in so much less pain. Hope you get answers babe ♥️
Hi jess i love ur hair this length it then got me thinking would ever consider clip in extensions but for a bob length? I just love a bob on you x❤hope u had fun out with steph 💕
I went through same process as you. Blood tests showed high CRP which shows inflammation in body and other issues and I had a pelvic ultrasound as I had other endometriosis symptoms such as painful smears etc, even the nurse asked do you have painful sex because of how much I was tensed due to the pain. But when the ultrasound came back fine I gave up. Periods are a medical event in themselves (like giving birth) and maybe they are just painful for me.I cope with it by taking the Pill which stops them altogether. Plus endometriosis if left untreated can spread to your bowels, bladder etc which would cause pain continuously I was told.
Did your blood tests show elevated white blood cells which would indicate some kind of infection? Inflammation is a body's response that something is not right. You have to be your own advocate
@@lct7192000 no high wbc and no high neutrophils. CRP has been high for years but could be accounted for by my autoimmune thyroid condition. The thing is I’ve had other health issues recently with my heart rate and have seen a cardiologist and a nephrologist (not at my request) the doctor made the referrals without my knowing. I could be asking for cameras, scans etc for lots of things but they have pathways they have to follow (NICE guidelines) and there’s no point asking for everything in my opinion because it’s just emotionally draining for me and maybe just a waste of time and resources. I think you need to know when to draw a line, e.g if a MRI comes back fine then what? X
@@lct7192000my CRP has been high for years. No high WBC or Neutrophils. I do have an autoimmune thyroid condition it could be that. I could push for different scans etc but GPs have pathways they have to follow NICE guidelines and I’ve been referred without me asking to other specialists and I don’t want to push and push them when you’ve got to draw the line somewhere because it’s emotionally draining for me and a waste of resources. Yes I could have a MRI but if that comes back clear then what? X
I commented a few months ago but I went through something really similar to you and in the end we came to the conclusion it was my contraception. We decided to try the coil and it made everything go away whcih might not be the answer you want but my cousin also had something similar and the coil sorted her right out. I was off work and everything before because I have an outdoor job and just couldn’t be outdoors whilst profusely bleeding and in pain all the time!
Hi Jess definitely ask for the internal scan , tbh on mine it picked up ovarian cysts which i then went private for an operation for removal but they found they could not remove because I was full of endometriosis 😢 resulting in having to have a full hysterectomy apparently I was told endometriosis is not picked up on scans who knew
From personal experience, I presented with the same symptoms as you, particularly lower right pelvic pain that was excruciating then went and came back every so often. Did all the tests like you which never showed anything definitive and my GP who was really good to me said you'll only get a concrete answer if you underwent surgery for endometriosis. Luckily my symptoms stopped for over a year. I unfortunately had an ectopic pregnancy in January this year and before my surgery, I explained that I previously had lower right pelvic pain, which was where my ectopic presented and they told me they would investigate. After surgery to remove my right fallopian tube, they explained that I had a dermoid cyst and various abrasions in the right side from a previous infection which could have presented as the pelvic pain. I chose not to have the surgery back when I had the pain but after the loss of my 2nd baby, it was a way of finding out..What I'm trying to say is be persistent with your GP and say you want the last resort of surgery (key hole btw not invasive) to explore where you're experiencing the pain. You could get the answers you need from there. I have also had a friend who did exactly the same, was persistent and finally had surgery to remove her endometriosis tissue and had follow up surgeries as hers was quite severe. But at least she knew what was wrong and has been given a long term plan of medication/rehab which seems like what you want to happen, answers and a plan going forward. No way am I offering advice or telling you, just giving you personal experience. And recent experience xxx
For me, I has to go private, I suffered so much with periods and ended up not being able to work or leave the house. My gp EVENTUALLY referred me to a gynae consultant and the waiting list was 56, yes over a years, wait! I went privately, had an appt within a week and surgery within a month. Even if you just see a private consultant it may give you peace of mind. Make sure you take all your blood test and scan results to your private appt as they cannot access them, it will save you having to pay to have them repeated privately. In the end I just paid for my appt and surgery which they did as a package including all my aftercare.
I'm in Australia, my sister did a trans vaginal ultrasound and they saw the cysts on her ovaries and diagnosed her with PCOS(plus weight and hair on her face). The doctor told her PCOS was type 3 diabetes, so if she got her weight down and watched her blood sugars she would see improvement. She did, she lost 27kg symptoms improved dramatically. She did is currently going through IVF even with all the changes she's had. Hope you get a diagnosis makes the "what if" out of it and you can stress less.
A lot of consultants work for the NHS and private hospitals. I think you need to give an NHS Consultant the opportunity to find the problem. Private consultants charge roughly £300 for the first consultation and £200 for everyone thereafter, plus additional charges for tests. If you go private your GP has to refer you to the private consultant of your choice.
Jess, the US and many other countries use a symptom list to diagnose PCOS, the Rotterdam criteria. After I was diagnosed, I asked for the transvaginal scan, got blood work, etc and they both showed "normal" results and have ever since. But because all of my other symptoms were on the list they just diagnosed it. Review the Rotterdam criteria and see for yourself. Syndromes are like catch-all diagnoses. Women with a mix of symptoms just kinda get tossed in. I wish you the best
Hi Jess, ive not gone through anything similar however it may be worth you looking jnto Hertility. It is a test that essentially tests fertility levels however they also test for 18 different gynaecological conditions (inc PCOS and Endemetreosis), so they may flag something up! I think its about £150 online xxx
Thing is with pcso is they treat it with the pill and if you plan on having children its not great! but i do have it and i had a blood test a ultrasound scan and a internal scan and a lot of doctors along the way,that simply think they know best. I got to the point that I'd had enough and told the doctor how i was feeling in floods of tears before getting the internal scan and being diagnosed. I really hope you find out whats going on with your health x
Hi Jess. I have pcos and went through about 8 years of hell to get a diagnosis. They diagnose pcos on multiple things so basically if there is a list of eg 5 symptoms and you meet eg 3 of them they will.diagnose you as pcos. I had follicles on my ovaries, hirsutism and a few other things. Even with these symptoms is took me 8 years to be heard and be validated. I went private and my gyanecologist was fantastic. She diagnosed me pretty much straight away. There.isnt treatment for pcos but I just needed to know what was going on with me. I did develop other things from pcos and I can tell you about it if you want, it would take a.while.lol xx
Jess I have had experience of GP and Private healthcare as luckily I was covered through work. Depending on the GP, you have to insist on what you want, so like Boo111-88 below states, I would suggest you first option would be to insist on being referred to a gynae consultant in the hospital. They should have more experience of what tests etc you need to be able to diagnose. When I went private, I saw a gynae consultant at the Spire Washington who was lovely and he was male. It wasn't for what you had but they were really good there, however the initial consultation appointment I think was about £250 so expensive and that's without treatment. Good luck and hope you get answers soon. X
I have PCOS and Endometriosis. I had an laparoscopy in march where they found endometriosis in 4 places. I have had some relief after they burnt some away. Xx it is a horrible thing.i hope you get answers. Xx
Your results would come through if you have the NHS app. And all your notes. My daughter has had great help through NHS had her own gynae nurse been treating her from her early 20's can contact them anytime. Hope all ok. X
I would try and get your bloods done somewhere else. Maybe that would mean privately. Labs can have slightly different markers. So a diff testing lab might show something. x
Yesss the only thing that annoys me as a curvy girl is the length of dresses! They think we're all built like the size 6's but we have hips and 🍉 's 😂 14:00 xxx
You need a transvaginal scan. They will check everything. Also they will have a general look inside... Whereas they dont on the ultrasound. Also ask for swabs to be taken to test for infections etc. i went privately for mine... They tell you there and then which is great!
I suffered for 8 years with endometriosis the pain was excruciating it got so bad the only option I had was to have a full hysterectomy I was 36 and absolutely devastated as we wanted a family. Also they did a Laparoscopy to diagnose my endometriosis.
this may sound weird but i think ask for a colonoscopy. if ur having pain in lower tummy that feels like period cramping, it could def be coming from the bowel and that feels identical. hope this helps. x
I follow Vintage Bombshell and she just recently posted her story of getting endometriosis diagnosed. She used private insurance in the states and the struggle was horrible. Please see her video and read the comments. Women are treated so poorly medically and several nurses agree. Good luck Jess. No one should be left to suffer.
Could it be a food intolerance? The only way to find out if it’s endometriosis is to have a Laparoscopy if you’ve already had a scan and it’s showed nothing. The bloods would have picked up pcso as long as he did a full hormone panel too
You need a transvaginal scan to be diagnosed with PCO or endometriosis. Ultrasound can see deep infiltrating endometriosis but you need to see a Sonographer or doctor who specialises in it. But it cannot see superficial endometriosis and you will need a laparoscopy to be diagnosed. You can also have polycystic ovaries without having the syndrome. It’s a very complex condition and can be hard to diagnose. But keep pushing. It’s important particularly if you do want to have kids in the near future. This will be relevant information.
It took me YEARS to get diagnosed with PCOS and they then didn't even know how to help me manage symptoms apart from suggesting the pill which ended up making so many symptoms worse! Advocate for yourself and ask what the benefits and risks are of the "solutions" they come up with for you. Both PCOS and Endometriosis are so under-researched and there is not enough done to help women manage symptoms post diagnosis! Push for a scan of your ovaries, that will confirm whether you have PCOS or not. The blood tests are not an accurate way of diagnosing PCOS, the best way is to get a scan!
My Endometriosis was diagnosed via a laparoscopy and i had to go private luckily It was covered by insurance. I did however see the bills and the cost was astronomical. First thing is you need to be referred to a gynecologist and take it from there. If you have the NHS App you can access your blood test results on there, I always check these myself And research because " satisfactory or in range" might not be an optimal result for you . Always do your own research and never take Dr's word sadly you have to be your own advocate these days .
Who was your insurance with? I might look into some plans and see what’s best cause I can only imagine what the cost would be 🙈 I do have the nhs app but none of my test results are on there? Might have to contact the GP about that one though
@@TheSliceOfJess Insurance was through my husband's job we both get coverage and it's been a godsent Unfortunately if you were to take out a policy now it would be a pre existing condition and I think you would struggle to claim. You are legally entitled to all of your test results and medical records, if they don't appear on the App ask at the surgery for a print out . I live in the NE and I used The Spire hospital. Also make sure they check Thyroid levels ( all of them ) and check the results yourself I don't know your history obviously but some of it is sounding familiar and sounds familiar. Hope it all turns out to be nothing
Heyy as you asked, my story: 1.) loads of speaking to doctors on NHS, all the women telling me it's normal, telling me I'm lucky I have less periods than everyone else meanwhile I'm in the dark with the lights off unable to breath or move... After 4/5 times after I kept demanding a refferal to a specialist. I got one. *** so my suggestion here is you have to keep repeating yourself. "I know for certain in my self. I'm not confused. This is not normal. I need to see a specialist." keep saying it until you are reffered. GPS can do nothing else really. 2. I was lucky that gyneos in my area were way too booked so I got quite a quick refferal on the NHS to a private hospital and specialist. The specialist will definitely sort you out the vaginal and lower belly scan things and blood tests. I had a woman again. And she told me she didn't believe me that I'd tried all the hormonal contraceptives that I had tried. (wtf was I supposed to say to that I don't know) she told me my hormones were normal (I've since seen the results and they actually aren't quite in the normal range). *BTW unless you have a giant fibroid or something on ovaries, etc the scans will also probably show nothing.) she said it probably is endometriosis but there's nothing they can do anyway other than give me hormonal contraceptives so just take them. I asked for a second opinion and got reffered to a male doctor. *** advice here is to ask for a copy of the results printed off and keep them whenever you can. ***and you are allowed to ask for as many second opinions as you want until you are actually listened to. 3) then I spoke to a male specialist who (was a bit perverted in all honesty) but he listened to me and booked me in for an investigative laparoscopy quite quickly. Endometriosis was diagnosed. I failed to do some stuff here * ask if parts of endo will be send off for labs. * ask for a histoscopy as well at the same time to check the inside of womb. *(personal choice but perhaps ask for investigation with zero ablation done. I've heard no good news about ablation but the diagnosis is very very helpful). I had a marina put in at the same time 4) had a follow up with a female who was delightful but not the surgeon so couldn't answer my questions on that, but she told me there are loads of options going forward unlike the female specialist. She wasn't a specialist. ***ask for your follow up to be with the surgeon. Ask to be spoke and walked through the images and results of the labs 5) I had had the marina put in for a year and a half before and I can't get on with it at all (very sharp pains that take my breath away) although I hear most ppl okay with it. So I got that removed. Current gyneo said the histoscopy might have told me why I can't deal with he marina... 6) now I have found a great gyneo female very local to me gentle and thorough and helpful. Personally I'm going for a very radical solution, which won't be good for most people. *** right this second go online and get private health care compare the market... And chose your own doctors by reading their bios going forward. Game changer. Still get second opinions and change doctor as much as you want. Don't just accept who insurance says. *follow endometriosis advocates on Instagram they'll explain the rest *also if you get the NHS app you can see your blood results on there quite quickly All the best xox
Wow thank you so much for going into so much detail! This has been incredibly helpful and I’ve screenshot your comment onto my phone so I can refer back to it! Thank you so so much ♥️♥️
Hi Jess,sorry to hear that your going through such a terrible experience with your GP I just think that you really have to be persistent to get anyone to listen to and it’s a shame it’s come to this but a lot of people in pain are going down the private route which in this country in this day and age is insane!!…I really hope you get sorted.You looked stupid in your dress and also I loved the lip stick and oil think I might give that colour a go xxxxx
You’re entitled to a second opinion, so I’d go and ask the “so what now question”, if nothing’s forthcoming from your GP to that question, request they refer you to a specialist in women’s health Just a quick question though - this pain, is it middle or end of your cycle or just random Good luck and keep advocating for yourself!
I think you should ask for a referral to the Gynaecologist as this has been going on for a long time. I don't know how long the waiting list is though so might be best to go private if you can. I had a trans vaginal ultrasound as I had an ovarian cyst, which eventually burst by itself, but then I still had loads of pain. The Gyno at first gaslit me telling me my pain was IBS. After a wasted 3 months of taking peppermint oil capsules FFS! he eventually put me on a 6 month course of a GNRH agonist to put me in a temporary menopause. These are the same drugs used in IVF and as puberty blockers. Sounds scary but I just had to use a nasal spray at night and take a HRT tablet in the morning to prevent any side effects. It worked really well for me and my pain vanished completely convincing the Gyno that it was hormonal and not intestinal. He performed an exploratory laparoscopy where the Endometriosis was diagnosed and treated. It took 18 months from when I was referred to him to being treated, and this was after 20 years of complaining to GP's about awful painful periods and just being fobbed off. Quite normal for Endometriosis sufferers unfortunately. Good Luck
…oh the joys of being a woman eh? A trans-vaginal scan will provide a more indepth view of the womb thickness, ovaries etc. This would be more useful than an MRI that would cover a greater area if GP alternatively suspects possible bowel problem? There are a number of further procedures (surgical) that can be undertaken to diagnose. I u’stand frustration of contemplating going privately, but in doing so, if leading towards a diagnosis by a process of more invasive procedures, this may be very costly. NICE guidelines promote a process of elimination in diagnosis. Even a private specialist would do the same tests albeit it quicker. (Advice given as qualified nurse/midwife). We’re on this journey with you Jess 💓xx
MRI was far more useful for me, my endometriosis was missed on ultrasound scans. Both probably useful, but if they suspect Endo, they’ll do an MRI anyway eventually nine times out of ten.
It’s sad that in 2024 for any woman’s health (or MH) issue you have to really push hard to be heard never mind get answers 😫 and 99% of time time they will just suggest you go on the pill etc as if that’s some all encompassing miracle cure for all feminine issues!. You shouldn’t have to know what’s next, that’s supposed to be their job! To find out the underlying cause and help you 😢 Do you have a free sexual health centre in your area? Quite often they run specialised clinics such as gynaecology so you might get to speak to someone a bit more experienced and hopefully helpful!! Could be worth a shot before going private. I hope you find answers ❤
Isn’t it! You’d think that by now they’d have pulled their socks off but apparently not! We did have a sexual health clinic in the city centre but after c-19 it completely changed and it’s way harder to even get an appointment now 🙄
Hi jess, i gave up with the nhs to be honest. They dont my bloods and then that was it no interest in helping me towards a diagnosis. I went private for an internal scan first that showed up cysts on both ovaries, again nhs werent bothered in investigating so i paid private and saw an amazing gyne who said i needed a laparoscopy which is the only way of fully seeing everything so im now waiting that! Thats what you need to have done. 🩷
The black dress/outfit looked really beautiful on you and the red lips just topped it off perfectly!
Gorgeous!!
Aw thank you! ♥️
Jess the blue suit looked stunning on you it really suited you ❤❤
Jess, run back and buy that blue pants suit! It was stunning on you! I was surprised when you said it didn't look on you like on the mannequin. Which is OK because you're not a mannequin! It was so sophisticated looking on you
Agree! I thought she looked great in it.
Yes do agree The Blue Pants suit was very nice
Mary Canada 🇨🇦
Ahh thanks guys! Do you think? I wasn’t sure in the shop!!
@@TheSliceOfJessJess it looks fantastic ,go and get it
Jess you are looking absolutely stunning,dressed up and dressed down! x I really hope you get to the bottom of your health problem x
I totally know how you feel.
It's extremely frustrating and when you get tests done, you want them to show something wrong, as crazy as it sounds, so that you know for sure what's wrong and therefore get treatment, if you can.
Don't know how many times I've left the doctors almost crying.
But it won't deter me, I'm determined to keep on at them and hopefully get some satisfaction.
And I hope you do too Jess 😄
Jess you look fantastic in the black dress xxx go you xxx ❤❤❤
Brilliant video Jess. Love the dress and your nails plus make up. Looking beautiful. Glad you and Steph had a great evening. Sending hugs to you both. 😻🥰😍😘🤗
Thank you 🥰♥️
Jess, anytime you get tested ask to have a copy of your results. You want to have a baseline and check changes over time. You can copy them into an excel spreadsheet or just keep the paper copy in a folder. Most of the doctor's in the IS have a portal to keep patient data on and the patient can access and look at results
Hi Jess do not rely on the doctors contacting you, if you haven't heard from them within 5 days ring them.
Hope you get some answers soon. xx
Loved the blue co ord on you Jess it looked stunning xx
Girrrrrrl your confidence is GLOWING ✨
Thank you! 🥰
That black dress is stunning
Thank you! ♥️
@@TheSliceOfJess your welcome 🥰
I have been waiting nearly 6 years for an intial gyno appointment and have had to have 2 surgeries privately for it while waiting . Keep pushing !! X
I hope you appointment goes well on the 13th and you get the treatment you need whatever it is .x.
I also loved the blue waistcoat outfit on you too! X
Good luck Jess with your quest to get a needed answer to your pain 😘 and you looked stunning and Steph also 😘xx
Thank you!!
LOVED the co ord thing!!
Ah do you think? I might have to go back for it haha!
@@TheSliceOfJess yeah I thought it looked good 😊
You are looking amazing Jess! X
Ive never noticed afore but yer eye colour is GORGEOUS 👌🏻😂
@@MOTHERHUSH aw thank you so much! ♥️
It took me 15 years to get a diagnosis and I got diagnosed with stage 4 endometriosis last September and had surgery to remove it this year…. But had to go privately! Over the 15 years of trying to get a diagnosis They told me for years it was just IBS and if I was to loose weight all my problems would go away…. Don’t give up as you know your body!
This sounds exactly like my experiences.
I feel like I have it too yet the doctors keep telling me its IBS.
It's so frustrating, and I almost cry when I leave the doctors office.
I'm glad you got a definitive answer after all that 😄
@@traceys8065 I came across an absolutely incredible gynecologist and he just got me, understood me and listened to me. I had endometriosis in 8 different locations it was really severe it look him 3.5 hours to remove it all and I just feel so frustrated that I was just ignored for so long and now when I tell my nhs consultants I have endo they still don’t believe me!!! It’s just crazy!!!! I really hope you can get a diagnosis soon xx
My friend had the same problem getting diagnosed with endometriosis, it took over a year with GP so ended up going to the nutfield in Newcastle to get diagnosed it was a very quick process.
Hi Jess
My gp referred me to endocrinology & I waited approx 9 months to see a consultant.
I had an ultrasound & blood tests. 3 months later, I was seen by an endocrinologist who diagnosed PCOS. I hope you get put on the right pathway to determine what's going on.
The meal at Ginos looked delicious. We all need a bestie like Steph, she's amazing.
Take care ❤x
Jess you looked absolutely STUNNING in that black dress, so classy, so demure 😉
Aw thank you! ♥️♥️♥️
Hi Jess, you looking so cute on your night out... good luck with your doctors. x
Your little black dress is lovely & it would also look lovely with a gold chain belt xx
Hiya Jess, I was eventually diagnosed with adenomyosis after year of tests and appointments because of my pain ( they just kept offering pain meds and more blood tests that came back "satisfactory") I TOLD them that I would like a MRI scan so they can do a proper in depth check and that's how they spotted my condition. I hope this helps ...you have to take the lead if you know something is not right 🤗 I hope you get answers your looking for xxx
Hey Jess. Consider asking your GP to be referred to a gynaecologist for a laparoscopy (keyhole operation) to look for endo plus an MRI after that to confirm it. Hope you get your answers soon xx
I think I might do that, lots of people have said the same!
@@TheSliceOfJessthe wait for a laprascopy is years in some places it’s worth trying to see if you can have scans first to be treated so if you have it it doesn’t get worse. Speaking from someone who didn’t know they had stage 4.
Beautiful as ever ❤️
♥️♥️ thank you
WOW Jess you look stunning 🙋
Aw thank you! ♥️
You look stunning Jess 😊
Awww Jess, I hope u get sorted at the docs next xx
I have been going back and forth with the doctors as I believe I have been suffering with lots of PCOS symptoms for years which just seem to be getting worse with no clear explanation. I got sent for a hormone/testosterone blood test which came back as normal so now just hit a complete dead end and don' t know where to go next. Trying to get any sort of PCOS diagnosis is so difficult, it feels like it's never taken seriously enough by doctors.
Sam's with me and yes I agree, they don't seem to care .
Ur make up looked sooo nice...... looking gorge hun ❤ another great video 😊xx
Looking beautiful as always Jess ❤xx
Get a referral letter from your GP to see any private consultant, ring the private consultant and ask if you can have an MRI or whatever scan they suggest in advance. Be aware that sometimes endo cannot be seen on an MRI, this will speed it all up. I just was not willing to wait. Also there’s loads of Facebook groups with support re Endo, they are really helpful.
red lip is stunning on you!! 😍
I have endo too it's awful. Currently awaiting my hysterectomy and I'm 37. Been on zoladex since Jan which is a chemical menopause. Been in so much less pain. Hope you get answers babe ♥️
Love your hair
Did they test your LH, FSH and AMH?
It took an ultrasound and my AMH plus my symptoms to get diagnosed with PCOS xx
Hi jess i love ur hair this length it then got me thinking would ever consider clip in extensions but for a bob length? I just love a bob on you x❤hope u had fun out with steph 💕
I think your hair looks much better without the extensions!
That blue waistcoat and trousers looked fantastic on you go back and get it perfect and flattering on you
Hi chick can I just say your skin and hair look skin so healthy..have a good weekend xx❤❤❤ you look lovely in black xx
That jeans suit by h& m
That looks soooo good
Hi Jess, I know it’s not Fenwicks but Primark have some lovely pastel sling backs xxx
I’ll have a look! Thanks 🥰
Took me five years for PCoS/ adeno diagnosis. And tbh they were scanning for something else. It is such a pain but hope you get answers soon x
I went through same process as you. Blood tests showed high CRP which shows inflammation in body and other issues and I had a pelvic ultrasound as I had other endometriosis symptoms such as painful smears etc, even the nurse asked do you have painful sex because of how much I was tensed due to the pain. But when the ultrasound came back fine I gave up. Periods are a medical event in themselves (like giving birth) and maybe they are just painful for me.I cope with it by taking the Pill which stops them altogether. Plus endometriosis if left untreated can spread to your bowels, bladder etc which would cause pain continuously I was told.
Did your blood tests show elevated white blood cells which would indicate some kind of infection? Inflammation is a body's response that something is not right. You have to be your own advocate
@@lct7192000 no high wbc and no high neutrophils. CRP has been high for years but could be accounted for by my autoimmune thyroid condition. The thing is I’ve had other health issues recently with my heart rate and have seen a cardiologist and a nephrologist (not at my request) the doctor made the referrals without my knowing. I could be asking for cameras, scans etc for lots of things but they have pathways they have to follow (NICE guidelines) and there’s no point asking for everything in my opinion because it’s just emotionally draining for me and maybe just a waste of time and resources. I think you need to know when to draw a line, e.g if a MRI comes back fine then what? X
@@lct7192000my CRP has been high for years. No high WBC or Neutrophils. I do have an autoimmune thyroid condition it could be that. I could push for different scans etc but GPs have pathways they have to follow NICE guidelines and I’ve been referred without me asking to other specialists and I don’t want to push and push them when you’ve got to draw the line somewhere because it’s emotionally draining for me and a waste of resources. Yes I could have a MRI but if that comes back clear then what? X
Not me blessing you when you sneezed
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I commented a few months ago but I went through something really similar to you and in the end we came to the conclusion it was my contraception. We decided to try the coil and it made everything go away whcih might not be the answer you want but my cousin also had something similar and the coil sorted her right out. I was off work and everything before because I have an outdoor job and just couldn’t be outdoors whilst profusely bleeding and in pain all the time!
Hi Jess definitely ask for the internal scan , tbh on mine it picked up ovarian cysts which i then went private for an operation for removal but they found they could not remove because I was full of endometriosis 😢 resulting in having to have a full hysterectomy apparently I was told endometriosis is not picked up on scans who knew
My endometriosis was picked up on scans, it’s different for everyone.
From personal experience, I presented with the same symptoms as you, particularly lower right pelvic pain that was excruciating then went and came back every so often. Did all the tests like you which never showed anything definitive and my GP who was really good to me said you'll only get a concrete answer if you underwent surgery for endometriosis. Luckily my symptoms stopped for over a year. I unfortunately had an ectopic pregnancy in January this year and before my surgery, I explained that I previously had lower right pelvic pain, which was where my ectopic presented and they told me they would investigate. After surgery to remove my right fallopian tube, they explained that I had a dermoid cyst and various abrasions in the right side from a previous infection which could have presented as the pelvic pain. I chose not to have the surgery back when I had the pain but after the loss of my 2nd baby, it was a way of finding out..What I'm trying to say is be persistent with your GP and say you want the last resort of surgery (key hole btw not invasive) to explore where you're experiencing the pain. You could get the answers you need from there. I have also had a friend who did exactly the same, was persistent and finally had surgery to remove her endometriosis tissue and had follow up surgeries as hers was quite severe. But at least she knew what was wrong and has been given a long term plan of medication/rehab which seems like what you want to happen, answers and a plan going forward.
No way am I offering advice or telling you, just giving you personal experience. And recent experience xxx
Great video too Jess, love all your videos 💓
For me, I has to go private, I suffered so much with periods and ended up not being able to work or leave the house. My gp EVENTUALLY referred me to a gynae consultant and the waiting list was 56, yes over a years, wait! I went privately, had an appt within a week and surgery within a month. Even if you just see a private consultant it may give you peace of mind. Make sure you take all your blood test and scan results to your private appt as they cannot access them, it will save you having to pay to have them repeated privately. In the end I just paid for my appt and surgery which they did as a package including all my aftercare.
I'm in Australia, my sister did a trans vaginal ultrasound and they saw the cysts on her ovaries and diagnosed her with PCOS(plus weight and hair on her face). The doctor told her PCOS was type 3 diabetes, so if she got her weight down and watched her blood sugars she would see improvement. She did, she lost 27kg symptoms improved dramatically. She did is currently going through IVF even with all the changes she's had. Hope you get a diagnosis makes the "what if" out of it and you can stress less.
A lot of consultants work for the NHS and private hospitals. I think you need to give an NHS Consultant the opportunity to find the problem. Private consultants charge roughly £300 for the first consultation and £200 for everyone thereafter, plus additional charges for tests. If you go private your GP has to refer you to the private consultant of your choice.
❤❤❤❤❤❤your a absolute babe
Jess, the US and many other countries use a symptom list to diagnose PCOS, the Rotterdam criteria. After I was diagnosed, I asked for the transvaginal scan, got blood work, etc and they both showed "normal" results and have ever since. But because all of my other symptoms were on the list they just diagnosed it. Review the Rotterdam criteria and see for yourself. Syndromes are like catch-all diagnoses. Women with a mix of symptoms just kinda get tossed in. I wish you the best
You look lovely. Where are your shoes from please ? x
Like the dress you got its nice on
Thank you 😊
Hi Jess, ive not gone through anything similar however it may be worth you looking jnto Hertility. It is a test that essentially tests fertility levels however they also test for 18 different gynaecological conditions (inc PCOS and Endemetreosis), so they may flag something up! I think its about £150 online xxx
Thing is with pcso is they treat it with the pill and if you plan on having children its not great! but i do have it and i had a blood test a ultrasound scan and a internal scan and a lot of doctors along the way,that simply think they know best. I got to the point that I'd had enough and told the doctor how i was feeling in floods of tears before getting the internal scan and being diagnosed. I really hope you find out whats going on with your health x
Hi Jess.
I have pcos and went through about 8 years of hell to get a diagnosis.
They diagnose pcos on multiple things so basically if there is a list of eg 5 symptoms and you meet eg 3 of them they will.diagnose you as pcos. I had follicles on my ovaries, hirsutism and a few other things.
Even with these symptoms is took me 8 years to be heard and be validated. I went private and my gyanecologist was fantastic. She diagnosed me pretty much straight away.
There.isnt treatment for pcos but I just needed to know what was going on with me.
I did develop other things from pcos and I can tell you about it if you want, it would take a.while.lol xx
I do the same with my lip liner for the same reason
Jess I have had experience of GP and Private healthcare as luckily I was covered through work. Depending on the GP, you have to insist on what you want, so like Boo111-88 below states, I would suggest you first option would be to insist on being referred to a gynae consultant in the hospital. They should have more experience of what tests etc you need to be able to diagnose. When I went private, I saw a gynae consultant at the Spire Washington who was lovely and he was male. It wasn't for what you had but they were really good there, however the initial consultation appointment I think was about £250 so expensive and that's without treatment. Good luck and hope you get answers soon. X
I have PCOS and Endometriosis. I had an laparoscopy in march where they found endometriosis in 4 places. I have had some relief after they burnt some away. Xx it is a horrible thing.i hope you get answers. Xx
Oh wow you looked amazing in co-ord
Your results would come through if you have the NHS app. And all your notes. My daughter has had great help through NHS had her own gynae nurse been treating her from her early 20's can contact them anytime. Hope all ok. X
I would try and get your bloods done somewhere else. Maybe that would mean privately. Labs can have slightly different markers. So a diff testing lab might show something. x
Yesss the only thing that annoys me as a curvy girl is the length of dresses! They think we're all built like the size 6's but we have hips and 🍉 's 😂 14:00 xxx
You need a transvaginal scan. They will check everything. Also they will have a general look inside... Whereas they dont on the ultrasound. Also ask for swabs to be taken to test for infections etc. i went privately for mine... They tell you there and then which is great!
I suffered for 8 years with
endometriosis the pain was excruciating it got so bad the only option I had was to have a full hysterectomy I was 36 and absolutely devastated as we wanted a family. Also they did a Laparoscopy to diagnose my endometriosis.
this may sound weird but i think ask for a colonoscopy. if ur having pain in lower tummy that feels like period cramping, it could def be coming from the bowel and that feels identical. hope this helps. x
❤Jess. Xx😊
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I follow Vintage Bombshell and she just recently posted her story of getting endometriosis diagnosed. She used private insurance in the states and the struggle was horrible. Please see her video and read the comments. Women are treated so poorly medically and several nurses agree.
Good luck Jess. No one should be left to suffer.
Could it be a food intolerance? The only way to find out if it’s endometriosis is to have a Laparoscopy if you’ve already had a scan and it’s showed nothing. The bloods would have picked up pcso as long as he did a full hormone panel too
I had to have a laparoscopy to get an endo diagnosis, they removed a cyst off my ovary and diagnosed me then
Jess, a scan cannot physically show endometriosis. Request a referral to a gynaecologist. Xx
Jass, it meant to read you look stunning in your dress not stupid 😅😅…sorry about that xxx😮😮😮😮😮
😂😂 I did think it must have been a mistake! ❤
You need a transvaginal scan to be diagnosed with PCO or endometriosis. Ultrasound can see deep infiltrating endometriosis but you need to see a Sonographer or doctor who specialises in it. But it cannot see superficial endometriosis and you will need a laparoscopy to be diagnosed. You can also have polycystic ovaries without having the syndrome. It’s a very complex condition and can be hard to diagnose. But keep pushing. It’s important particularly if you do want to have kids in the near future. This will be relevant information.
It took me YEARS to get diagnosed with PCOS and they then didn't even know how to help me manage symptoms apart from suggesting the pill which ended up making so many symptoms worse! Advocate for yourself and ask what the benefits and risks are of the "solutions" they come up with for you. Both PCOS and Endometriosis are so under-researched and there is not enough done to help women manage symptoms post diagnosis! Push for a scan of your ovaries, that will confirm whether you have PCOS or not. The blood tests are not an accurate way of diagnosing PCOS, the best way is to get a scan!
My Endometriosis was diagnosed via a laparoscopy and i had to go private luckily
It was covered by insurance. I did however see the bills and the cost was astronomical.
First thing is you need to be referred to a gynecologist and take it from there.
If you have the NHS App you can access your blood test results on there, I always check these myself
And research because " satisfactory or in range" might not be an optimal result for you .
Always do your own research and never take Dr's word sadly you have to be your own advocate these days .
Who was your insurance with? I might look into some plans and see what’s best cause I can only imagine what the cost would be 🙈 I do have the nhs app but none of my test results are on there? Might have to contact the GP about that one though
@@TheSliceOfJess
Insurance was through my husband's job we both get coverage and it's been a godsent
Unfortunately if you were to take out a policy now it would be a pre existing condition and I think you would struggle to claim.
You are legally entitled to all of your test results and medical records, if they don't appear on the App ask at the surgery for a print out .
I live in the NE and I used The Spire hospital.
Also make sure they check Thyroid levels ( all of them ) and check the results yourself
I don't know your history obviously but some of it is sounding familiar and sounds familiar.
Hope it all turns out to be nothing
I had an internal scan when they found out I had pcos as my bloods came back normal so I'd ask for a vaginal scan x
Insist on your GP to refer you to a Gynaecologist due to symptoms including chronic pain. GP'S are not specialised enough to make a diagnosis.
Heyy as you asked, my story:
1.) loads of speaking to doctors on NHS, all the women telling me it's normal, telling me I'm lucky I have less periods than everyone else meanwhile I'm in the dark with the lights off unable to breath or move... After 4/5 times after I kept demanding a refferal to a specialist. I got one.
*** so my suggestion here is you have to keep repeating yourself. "I know for certain in my self. I'm not confused. This is not normal. I need to see a specialist." keep saying it until you are reffered. GPS can do nothing else really.
2. I was lucky that gyneos in my area were way too booked so I got quite a quick refferal on the NHS to a private hospital and specialist. The specialist will definitely sort you out the vaginal and lower belly scan things and blood tests. I had a woman again. And she told me she didn't believe me that I'd tried all the hormonal contraceptives that I had tried. (wtf was I supposed to say to that I don't know) she told me my hormones were normal (I've since seen the results and they actually aren't quite in the normal range). *BTW unless you have a giant fibroid or something on ovaries, etc the scans will also probably show nothing.) she said it probably is endometriosis but there's nothing they can do anyway other than give me hormonal contraceptives so just take them. I asked for a second opinion and got reffered to a male doctor.
*** advice here is to ask for a copy of the results printed off and keep them whenever you can. ***and you are allowed to ask for as many second opinions as you want until you are actually listened to.
3) then I spoke to a male specialist who (was a bit perverted in all honesty) but he listened to me and booked me in for an investigative laparoscopy quite quickly. Endometriosis was diagnosed. I failed to do some stuff here
* ask if parts of endo will be send off for labs. * ask for a histoscopy as well at the same time to check the inside of womb. *(personal choice but perhaps ask for investigation with zero ablation done. I've heard no good news about ablation but the diagnosis is very very helpful). I had a marina put in at the same time
4) had a follow up with a female who was delightful but not the surgeon so couldn't answer my questions on that, but she told me there are loads of options going forward unlike the female specialist. She wasn't a specialist.
***ask for your follow up to be with the surgeon. Ask to be spoke and walked through the images and results of the labs
5) I had had the marina put in for a year and a half before and I can't get on with it at all (very sharp pains that take my breath away) although I hear most ppl okay with it. So I got that removed. Current gyneo said the histoscopy might have told me why I can't deal with he marina...
6) now I have found a great gyneo female very local to me gentle and thorough and helpful. Personally I'm going for a very radical solution, which won't be good for most people.
*** right this second go online and get private health care compare the market... And chose your own doctors by reading their bios going forward. Game changer. Still get second opinions and change doctor as much as you want. Don't just accept who insurance says. *follow endometriosis advocates on Instagram they'll explain the rest
*also if you get the NHS app you can see your blood results on there quite quickly
All the best xox
Wow thank you so much for going into so much detail! This has been incredibly helpful and I’ve screenshot your comment onto my phone so I can refer back to it! Thank you so so much ♥️♥️
@@TheSliceOfJess aww yay so glad it's helped! Also there is a documentary called below the belt on endometriosis xox
I hope you get some answers. Women's health isn't taken seriously in the NHS. 😢 ❤
Hi Jess,sorry to hear that your going through such a terrible experience with your GP I just think that you really have to be persistent to get anyone to listen to and it’s a shame it’s come to this but a lot of people in pain are going down the private route which in this country in this day and age is insane!!…I really hope you get sorted.You looked stupid in your dress and also I loved the lip stick and oil think I might give that colour a go xxxxx
You need to ask for an ultrasound ASAP
She's had an abdominal scan x
You’re entitled to a second opinion, so I’d go and ask the “so what now question”, if nothing’s forthcoming from your GP to that question, request they refer you to a specialist in women’s health
Just a quick question though - this pain, is it middle or end of your cycle or just random
Good luck and keep advocating for yourself!
I think you should ask for a referral to the Gynaecologist as this has been going on for a long time. I don't know how long the waiting list is though so might be best to go private if you can. I had a trans vaginal ultrasound as I had an ovarian cyst, which eventually burst by itself, but then I still had loads of pain. The Gyno at first gaslit me telling me my pain was IBS. After a wasted 3 months of taking peppermint oil capsules FFS! he eventually put me on a 6 month course of a GNRH agonist to put me in a temporary menopause. These are the same drugs used in IVF and as puberty blockers. Sounds scary but I just had to use a nasal spray at night and take a HRT tablet in the morning to prevent any side effects. It worked really well for me and my pain vanished completely convincing the Gyno that it was hormonal and not intestinal. He performed an exploratory laparoscopy where the Endometriosis was diagnosed and treated. It took 18 months from when I was referred to him to being treated, and this was after 20 years of complaining to GP's about awful painful periods and just being fobbed off. Quite normal for Endometriosis sufferers unfortunately. Good Luck
Jess I meant…it’s Friday lol xx
😂😂😂
I would see a by oncologist if it’s related to periods that might get a better look at testing needed.
♥️👭💕🍸🍴💫👍🏻
NHS is so awful they never helpful. It’s better for you to go private if you can. x
…oh the joys of being a woman eh? A trans-vaginal scan will provide a more indepth view of the womb thickness, ovaries etc. This would be more useful than an MRI that would cover a greater area if GP alternatively suspects possible bowel problem? There are a number of further procedures (surgical) that can be undertaken to diagnose.
I u’stand frustration of contemplating going privately, but in doing so, if leading towards a diagnosis by a process of more invasive procedures, this may be very costly. NICE guidelines promote a process of elimination in diagnosis. Even a private specialist would do the same tests albeit it quicker. (Advice given as qualified nurse/midwife). We’re on this journey with you Jess 💓xx
MRI was far more useful for me, my endometriosis was missed on ultrasound scans. Both probably useful, but if they suspect Endo, they’ll do an MRI anyway eventually nine times out of ten.
It’s sad that in 2024 for any woman’s health (or MH) issue you have to really push hard to be heard never mind get answers 😫 and 99% of time time they will just suggest you go on the pill etc as if that’s some all encompassing miracle cure for all feminine issues!. You shouldn’t have to know what’s next, that’s supposed to be their job! To find out the underlying cause and help you 😢 Do you have a free sexual health centre in your area? Quite often they run specialised clinics such as gynaecology so you might get to speak to someone a bit more experienced and hopefully helpful!! Could be worth a shot before going private. I hope you find answers ❤
Isn’t it! You’d think that by now they’d have pulled their socks off but apparently not! We did have a sexual health clinic in the city centre but after c-19 it completely changed and it’s way harder to even get an appointment now 🙄
Hi jess, i gave up with the nhs to be honest. They dont my bloods and then that was it no interest in helping me towards a diagnosis. I went private for an internal scan first that showed up cysts on both ovaries, again nhs werent bothered in investigating so i paid private and saw an amazing gyne who said i needed a laparoscopy which is the only way of fully seeing everything so im now waiting that! Thats what you need to have done.
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