Surviving everyday grief and the loss of a child with zellweger syndrome

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  • Опубліковано 18 жов 2024

КОМЕНТАРІ • 5

  • @LisaLisa-iv5mu
    @LisaLisa-iv5mu 3 роки тому +1

    Hi Suzanne, I stumbled across your video. My deepest sympathy goes out to you and your family. May God give you all peace and strength during these difficult times. Words cannot express how sorry I am for the loss of your beautiful son, Jacob. You’ll always have an extra guardian angel 👼 by your side ALWAYS. I also lost a child, my only child - 8 months ago, so I can relate to your pain - it’s a pain like no other. Thank you so much for taking the time to make this video and sharing your story. You and your family will be in my thoughts and prayers. 🙏

    • @mvboobiez
      @mvboobiez  3 роки тому

      Hi Lisa , many many hugs to you . Thank you for writing. ❤️ they will always be with us . They will always send signs . And we will meet them again . 🌻 we survive this battle one day at a time . what is your child’s name ?

  • @anhdo3337
    @anhdo3337 9 місяців тому

    I understand very well what you have been through, because my child has the same illness as your child. he was born on 12/28/2019 and he died three months later on 6/4/2020. Now I just gave birth to a baby girl and she behaves just like my first son. I am very sad now and think that I will lose her again

  • @angelaemmett4224
    @angelaemmett4224 2 роки тому

    My son has Zellewegers Syndrome. I live in Kirkland. I’m alone too

    • @patrickthorne5113
      @patrickthorne5113 Рік тому

      Hey is ur son okay? My son was born one month ago with zellweger syndrome and it’s on the severe side according to the doctors