Hellooo everyone! I hope you found this lesson helpful and informative! Let me know if you have any questions about this lesson. A related condition is that of Korsakoff's syndrome - please check out this lesson for what you need to know about Korsakoff's syndrome ua-cam.com/video/AtCWbyWP-wM/v-deo.html
my wife seems to be at the same stage as your wife,with the same progression,i am more or less treating her the same way as you do,with very similar results,i have very little advice from the doctor and apart from 2 visits to him in the last 8 months i have been left to carry on by myself,i did have an hour appointement with something they call the memory clinic in which they talked to her on her own for 55 minutes and then let me in the room for the last 5 minutes,i had so many questions to ask but from what i can gather they dont seem to know very much about the condition themselves,i have read every bit of information i can get from the internet,and it was so comforting to find your posts,they have been so valueable to me, please keep updating in the future i cant tell you how much hope you have given me that i,m doing things sort of right,i dont have any outside help and at the moment have to take her to work with me all day ,have to do all the cooking and cleaning and have to prompt her in personal hygiene even help with dressing,not physically but just helping match appropriate clothes and colours etc,
That is so sad! You are doing a really good job though Rich. Never give up! Have you seen any improvements with your wife - with thiamine supplementation? And can I please ask you, did she have really bad balance problems? Prayers and blessings to you both - from Louise in Australia 🙏❤️🩹
My mom just got diagnosed with this and its been very hard to handle. Thank you for making this video so I can better understand Edit:My mom has now passed away from this disease. Its been a month since she passed. I wish this disease was better understood, or that there were support groups for my dad
I’m sorry about your mom. My sister was just diagnosed with this. :( she’s coming home from the hospital Thursday. I’m doing research to know what I can do help her. Any suggestions?
@@LorenaRivera-we2nk I think the only mistake we really made was not catching it early enough. Not getting her professional help sooner. Dont let pride or anxiety stop you, if you can't give her the help she needs, call a professional to come in and do their best. Good luck, I wish you all the best
I’m sorry to hear this. I can’t imagine how you must’ve felt. I’m a recovered alcoholic with 9 years sober, so I also understand and feel for her as well. I hope things are going better for you both now.
@@juddmcwilliams8047 She definitely stopped eating. Im not sure about the nausea or liver failure though. But her refusal to eat is what escalated the situation for sure
My 47 year old daughter was recently diagnosed with Wernicke. She had a severe medical episode and rushed to the hospital, she received bags of thiamine and sodium chloride with glucose. In hospital for 7 days. Although she was unable to stand or walk the hospital sent her home in an Ambulance …she lives alone in an upstairs apartment…they carried her up on a gurney. She was left with no one there to care for her for over 2 weeks. I live in another town and disabled with a paralyzed leg, stairs are a nightmare for me. Her vehicle was taken to my house and in my garage for safe keeping. The first thing she does is order wine delivery. Could t find home health care to help her out for 2 weeks. What does a mom do to help her adult child who refuses to admit she has a drinking problem (she hides her wine). I’m exhausted in trying…her two teenagers have moved out and Im pretty much done too. Her health is deteriorating…do I just turn and go the other way? I do pray all the time.
Find a professional. Hospitals are businesses. They are designed to be full at all times and to recycle patients. no wonder they didn’t sign her up for monitoring or assistance, that’s not in the hospitals business interest.
Thanks for this. I am a paramedic and we do not carry thiamine on our truck. In our protocols WE is listed as a caution rather than a contraindication for administering glucose (IV or PO), so technically we are allowed to do it. At what point would you consider a BGL to be so dangerously low (or hypoglycaemic symptoms to be so severe) that you would give glucose pre-hospital regardless of a possible thiamine deficiency, versus withholding it so the hospital could give thiamine first? Haven't had that dilemma yet- just curious to see what you thought.
Firstly I'm not exactly sure but if the person is hypoglycemic surely that would take priority? Like you say if it's a caution and not contraindicated then I would personally prioritise hypo over potentially exacerbating WE any day. Besides, IV thiamine is given pretty quickly to any etoh withdrawal patient in-hospital anyway (at least where I work). Also, we invariably give the thiamine in glucose bags - I wonder if I should switch to giving the first dose in normal saline.
Thiamine NEEDS to be administered first. Obv. the glucose/sugars further exacerbate the B1 deficiency - because that's what they do/did in the first place.
I had my gallbladder removed 12 years ago and a brain lesion left side removed 5 years ago. I also feel I may have nystagmus because my eyes has rapid shifty movements especially when I’m nervous... could this be a thiamine deficiency? I really want to correct the eye movements I’m insecure about it
@@cyberturkey77 I recently had blood work done and my thiamine level was 25. I also hear that there is another test I should done because it’s more accurate by any chance you know the name and is 25 considered low? Thanks for answering my question.
@@ericaerica5022 transketolase test. That seems quite low. I would say if you dont want to test just take thiamine as its non toxic and you'll wee out excess
Thiamine hcl is only 10% bioavailable. Look into lipothimine or thiamax, they both are highly available and cross the blood brain barrier. EOnutrition goes over these in depth.
Hellooo everyone! I hope you found this lesson helpful and informative! Let me know if you have any questions about this lesson.
A related condition is that of Korsakoff's syndrome - please check out this lesson for what you need to know about Korsakoff's syndrome ua-cam.com/video/AtCWbyWP-wM/v-deo.html
Ok..i subscribe
Sometimes seizures also occurs in this condition?
my wife seems to be at the same stage as your wife,with the same progression,i am more or less treating her the same way as you do,with very similar results,i have very little advice from the doctor and apart from 2 visits to him in the last 8 months i have been left to carry on by myself,i did have an hour appointement with something they call the memory clinic in which they talked to her on her own for 55 minutes and then let me in the room for the last 5 minutes,i had so many questions to ask but from what i can gather they dont seem to know very much about the condition themselves,i have read every bit of information i can get from the internet,and it was so comforting to find your posts,they have been so valueable to me, please keep updating in the future i cant tell you how much hope you have given me that i,m doing things sort of right,i dont have any outside help and at the moment have to take her to work with me all day ,have to do all the cooking and cleaning and have to prompt her in personal hygiene even help with dressing,not physically but just helping match appropriate clothes and colours etc,
That is so sad! You are doing a really good job though Rich. Never give up!
Have you seen any improvements with your wife - with thiamine supplementation?
And can I please ask you, did she have really bad balance problems?
Prayers and blessings to you both - from Louise in Australia 🙏❤️🩹
My mom just got diagnosed with this and its been very hard to handle. Thank you for making this video so I can better understand
Edit:My mom has now passed away from this disease. Its been a month since she passed. I wish this disease was better understood, or that there were support groups for my dad
I’m sorry about your mom. My sister was just diagnosed with this. :( she’s coming home from the hospital Thursday. I’m doing research to know what I can do help her. Any suggestions?
@@LorenaRivera-we2nk I think the only mistake we really made was not catching it early enough. Not getting her professional help sooner. Dont let pride or anxiety stop you, if you can't give her the help she needs, call a professional to come in and do their best. Good luck, I wish you all the best
I’m sorry to hear this. I can’t imagine how you must’ve felt. I’m a recovered alcoholic with 9 years sober, so I also understand and feel for her as well. I hope things are going better for you both now.
Can you tell me, did your mom have nausea or stop eating prior to her diagnosis? Or any signs of liver failure?
@@juddmcwilliams8047 She definitely stopped eating. Im not sure about the nausea or liver failure though. But her refusal to eat is what escalated the situation for sure
My 47 year old daughter was recently diagnosed with Wernicke. She had a severe medical episode and rushed to the hospital, she received bags of thiamine and sodium chloride with glucose. In hospital for 7 days. Although she was unable to stand or walk the hospital sent her home in an Ambulance …she lives alone in an upstairs apartment…they carried her up on a gurney. She was left with no one there to care for her for over 2 weeks. I live in another town and disabled with a paralyzed leg, stairs are a nightmare for me. Her vehicle was taken to my house and in my garage for safe keeping. The first thing she does is order wine delivery. Could t find home health care to help her out for 2 weeks. What does a mom do to help her adult child who refuses to admit she has a drinking problem (she hides her wine). I’m exhausted in trying…her two teenagers have moved out and Im pretty much done too. Her health is deteriorating…do I just turn and go the other way? I do pray all the time.
Helll. How are you? I’m so sorry to hear about your daughter. Call AA and Alanon - they may be able to help and they are free!
Find a professional. Hospitals are businesses. They are designed to be full at all times and to recycle patients. no wonder they didn’t sign her up for monitoring or assistance, that’s not in the hospitals business interest.
@@Texas Pure Blood, maybe see if she’ll read the book, “Kick the Drink.” It’s worked for a few people I know. ❤️
You need AlAnon.
I’m so sorry and hope that things have gotten better.
This video helped me a lot to present my seminar, it was amazing mnemonic u was simple it , Greeting to u J J medicine 👏🏼🌷
thank you brother for doing this and taking the time
Man you are so good
God bless you
Thank you
Thanks for this. I am a paramedic and we do not carry thiamine on our truck. In our protocols WE is listed as a caution rather than a contraindication for administering glucose (IV or PO), so technically we are allowed to do it. At what point would you consider a BGL to be so dangerously low (or hypoglycaemic symptoms to be so severe) that you would give glucose pre-hospital regardless of a possible thiamine deficiency, versus withholding it so the hospital could give thiamine first? Haven't had that dilemma yet- just curious to see what you thought.
Firstly I'm not exactly sure but if the person is hypoglycemic surely that would take priority? Like you say if it's a caution and not contraindicated then I would personally prioritise hypo over potentially exacerbating WE any day. Besides, IV thiamine is given pretty quickly to any etoh withdrawal patient in-hospital anyway (at least where I work). Also, we invariably give the thiamine in glucose bags - I wonder if I should switch to giving the first dose in normal saline.
@@tangoblueyt interesting take. Thanks for the reply!
Thiamine NEEDS to be administered first. Obv. the glucose/sugars further exacerbate the B1 deficiency - because that's what they do/did in the first place.
Thanks for this. Se comprendio todo claremente
I had my gallbladder removed 12 years ago and a brain lesion left side removed 5 years ago. I also feel I may have nystagmus because my eyes has rapid shifty movements especially when I’m nervous... could this be a thiamine deficiency? I really want to correct the eye movements I’m insecure about it
Yes and nervousness in excess can be related to Thiamine. Take 100mg Thiamine hcl three times a day
@@cyberturkey77 I recently had blood work done and my thiamine level was 25. I also hear that there is another test I should done because it’s more accurate by any chance you know the name and is 25 considered low? Thanks for answering my question.
@@ericaerica5022 transketolase test. That seems quite low. I would say if you dont want to test just take thiamine as its non toxic and you'll wee out excess
Thiamine hcl is only 10% bioavailable. Look into lipothimine or thiamax, they both are highly available and cross the blood brain barrier. EOnutrition goes over these in depth.
@@figy7147 Thank you
Thank you!
What about in people with inflammatory bowel disease?
Thanks a lot bro
If you have a high clinical suspicion of someone with alcoholism but they deny it, can prescribing thiamine have any AE?
👍💖 easily understand by u
Stop drinkin...🍻😄😃
This disease killed my mom. It is not a joke
Mon frère et mort de cette maladie
that's sad to hear :/
Rest In peace
My grandpa have this syndrome. 1 moth from this syndrome. Can you please help me, if i have a chace to save him. 🙏
Can a thiamine deficiency cause brain lesions?
yes
@@user-yn2ct2ie9m Did it happen to you too? How do you know? Thank you, btw.
Is bed wetting a symptom?? Not just bed wetting, but peeing everywhere.
My mom had bladder issues before her diagnosis