Endometriosis is a life long disease. Grief catches up after so many years of being isolated, suffering without much support and knowing that you won't have a child to hold your hand, when you really need it. As i get older, I feel much older....Its damn exhausting. My depression is so bad that I go mute for days....talking is just too much, especially when in pain. I'm trying to get surgery overseas for nerve entrapment, and my body feels so heavy and diseased. I was a registered nurse before my first lap, which basically ruined my life. I went from pain a few days to pain everyday. There needs to be Endometriosis clinics for support and advocacy and other resources in every part of the world. We used to have a women's hospital 20 yrs ago but seem to have gone backwards. I'm starting my art up again to have something positive to do. Thanks for talking about this, Jo. I haven't had any further surgery since 2001.....my symptoms are bought on mechanically by faeces sitting on the nerves and my ligaments ache all day after having a bowel motion. I also have crotch zapping, which indicates further nerve involvement. So, I'm trying to get surgery with a neuropelvologist in Australia to at least have a look see and remedy some of my pelvic nerve pain. I've done CBT and counselling and physiotherapy, but to be honest, nothing has really helped. I was 12 when my periods were unbelievably painful, put on the combined pill at 14, and diagnosed at age 26. Total hysterectomy age 28. I'm now 55 and I'm loosing weight for not eating much. Food equals going to the toilet which means pain. It's starting to actually take my life.....so I need exploratory surgery as I had stage 4.
Endometriosis is a life long disease. Grief catches up after so many years of being isolated, suffering without much support and knowing that you won't have a child to hold your hand, when you really need it.
As i get older, I feel much older....Its damn exhausting. My depression is so bad that I go mute for days....talking is just too much, especially when in pain.
I'm trying to get surgery overseas for nerve entrapment, and my body feels so heavy and diseased.
I was a registered nurse before my first lap, which basically ruined my life. I went from pain a few days to pain everyday.
There needs to be Endometriosis clinics for support and advocacy and other resources in every part of the world.
We used to have a women's hospital 20 yrs ago but seem to have gone backwards.
I'm starting my art up again to have something positive to do.
Thanks for talking about this, Jo.
I haven't had any further surgery since 2001.....my symptoms are bought on mechanically by faeces sitting on the nerves and my ligaments ache all day after having a bowel motion.
I also have crotch zapping, which indicates further nerve involvement.
So, I'm trying to get surgery with a neuropelvologist in Australia to at least have a look see and remedy some of my pelvic nerve pain.
I've done CBT and counselling and physiotherapy, but to be honest, nothing has really helped.
I was 12 when my periods were unbelievably painful, put on the combined pill at 14, and diagnosed at age 26. Total hysterectomy age 28.
I'm now 55 and I'm loosing weight for not eating much. Food equals going to the toilet which means pain. It's starting to actually take my life.....so I need exploratory surgery as I had stage 4.
Thank you ladies!!!!💎💎💎🦢🦢🦢🇨🇦🙋🏻♀️🫂🫂🫂