Why Marathon Mindset Won’t Cut It | Gez Medinger’s Top Research Insights
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- Опубліковано 28 чер 2024
- In this video, Gez Medinger, a marathon runner turned investigative journalist, talks about his Long Covid journey, his challenges, breakthroughs, and transforming his UA-cam channel into a key for millions of people!
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MENTIONED IN THIS VIDEO:
📖 The Long Covid Handbook by Gez Medinger & Professor Danny Altmann - amzn.to/3DeVXsz
📖 Carmen Scheibenbogen, MD - www.nature.com/articles/s4146...
🎥 Carmen Scheibenbogen, MD - • The Two Types of Long ...
🏠 The Fatigue Center, Charité Hospital in Berlin, Germany - cfc.charite.de/
📖 Nancy Klimas, MD - Remission of severe forms of long COVID following monoclonal antibody (MCA) infusions - www.sciencedirect.com/science...
🏠 Steven Porges - Polyvagal Theory: A Science of Safety - pubmed.ncbi.nlm.nih.gov/35645...
🎥 Svetlana Blitshteyn, MD - • Dysautonomia in Long C...
CONNECT WITH GEZ:
👉 Gez's Twitter - / gezmedinger
📸 Gez's Instagram - / gmedinger
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HOW TO SUPPORT THE CHANNEL: Every Bit Counts! 😊
✅ Join this channel membership - / @raelanagle
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LEARN MORE:
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🐥 Twitter - / raelanagle
TIMESTAMPS:
00:00 🎙️ Meet the Incredible Gez Medinger
02:38 💔 The Impact of Long Covid on Gez's Life
05:13 🤒 The Heartbreak of Living with Long Haul
06:59 🧐 Why People Can't Understand You
08:15 💪 Gez's Top Coping Strategies
10:18 💊 Medications Gez Found Helpful
12:15 👩🏻 Are The Go-Go-Go Types Hit Hardest?
13:52 😢 The Mental Health Breakdown
17:57 🧪 Cracking the Long Covid Code
23:52 📊 Why Patients Need to Lead the Charge
27:53 💡 How to Approach Your Recovery
31:45 😢 Grieving the Person You Were
34:54 📚 Handbook for the Perplexed
36:41 👤 The Most Important Advice
38:05 📺 What Kind of Support We Need
NOTE: This description may contain affiliate links to products I enjoy using myself. As an Amazon Associate, I earn from qualifying purchases. Should you choose to use these links, this channel may earn affiliate commissions at no additional cost to you. I appreciate your support!
REMINDER: This is for information purposes only and nothing I share should be considered medical advice. Please make your own assessment, do your own further research, and consult your trusted healthcare professionals before deciding if anything I talk about here might be right for you.
#longcovid #longhaul #longhaulers #recoverystory #chronicfatigue
👉 ✅ Come join me in my new course! 🧠 Brain Retraining 101: For ME/CFS and Long Covid Recovery. Enroll now: raelan-agle-s-school1.teachable.com/p/brain_retraining_101
"It's like I was kidnapped from my owm life but yet there no team or anyone was trying to find me or save me!" Yes Raelan! Very good analogy!
So great to see Gez on your show! He was a lifeline for me early in the pandemic when we were so ill and scrambling to understand what the heck was happening to our bodies.
Thanks Nakana!
Yes!! I watched everything and bought your book, Gez. Thanks for staying positive.
Oooo!!! So nice to see Gez here! I watched so many of his videos during my long Covid journey! I remember how he had even travelled to the US to address this along with a panel of doctors, experts, and he was looking SO tired! I could relate to that as my never ending nightmare continued as NO one would understand it!
So glad to see him again and looking SO much better!!!❤
For sure, his incredible work has been a game-changer for so many! ❤️
Thank you!
It's amazing, his experience is almost identical to mine. I'm still struggling and have recently had to quit my job as a firefighter after 28 years, but I'm hopeful that I'll soon begin to get back to living my life. It's so frustrating.
Good luck
I also had to leave work, it’s not easy is it? I hope you are back in better health soon. X
Great to see Gez on your channel. Completely agree that nervous system regulation is key. Keeping as active as possible without exacerbating symptoms too much has been key for me too. I got worse by resting and pacing too much. My POTS improved massively by increasing activity whilst working to keep my nervous system calm. Still on the journey after two years, but getting there!
I completely identify with this. Doing too little as well as doing too much causes me to decline. It's working in that narrow band while keeping the nervous system calm that seems to me to be the great challenge.
Are either of you on meds like beta blockers or anything to control the POTS (my big issue)?
I pray for you Gez, my self and everyone who suffering from this disease 🦠.
Thank you Sadna! Wishing you the best as always :)
Gez is such an authority on LC covid, I wish the establishment in research would listen more to him. He is so right on and totally agree with his approach to finding a solution. We just need to pick some plausible solutions and try them. We can learn why later.
Both of you have been instrumental in keeping me buoyant whilst still navigating recovery .... It's a long and arduous journey but both of your videos really help thanks
Oh, Ella ❤️ Much love to you!
I'm interested in finding out more about this antibody treatment..... I listened to a really interesting podcast on The Long Covid Sessions with Professor Andrew Shaw who discussed plugging the antibody gap .... Is there any chance you might pursue and look into this as a possible treatment?
16:03 This glass box thing: a Dutch artist from the Netherlands with chronic Lyme did this glass box act where she lied in a glass box (specially made for this purpose) for 2 hours. To show people how this illness feels. How PEM feels.
I came watch her when she did the act in Rotterdam. Celeste Laetitia is her name. I posted a picture on my Instagram back then. This was the most relatable thing ever.
Wow, Forisma, thanks so much for sharing! ❤️
Really nice to see Gez on your channel. Found him early on in my recovery journey. His videos and research were and are an amazing resource for long covid.
Couldn't agree more, Sandra ❤️
Wow, the 2 best ones in one video! These 2 are the real deal!
So kind of you, Alexandre! ❤️
Haha, thank you!
I wanted to cry whenever he said to look into dysautonomia because after alot of different doctors I finally found one to diagnose me with this a year ago a bitter sweet feeling 😔
GEZ your our hope and everything. God bless you
Brilliant interview once again. Thank you. Very interesting about the 2 types, the ones who don't get PEM and those who do.....i most definitely do!!!
Im reading Stephen Porges book, our polyvagal world which is very good and is about the need to feel safe to be healthy and happy. I was pretty sceptical about Curable app but it is brilliant , not expensive and like having your own therapist and programme tailored to your needs. So as was spoken about, working constantly on calming the nervous system and feeling safe. Seems like im focusing on the right area. Thanks again ❤.
Two GOATS of the game. Big Thank you to the both of you 🙏🙏
So kind of you, Mansfield 🙏
Gez I miss you! So good to see. I was disappointed to hear the researchers have run out of funds, and everything might just slide. Oh dear God Help us. Your analogy of the glass box is bang on. I have no life, feel very alone and teary alot of days. It's hard to accept my life as I knew it is gone.
My experience at month 6 now, is that anxiety is the trigger, not doing. Anxiety often gets me doing things which is why I think "doing" seems to make it worse. I just went on a 4 mile run today and felt great after, but if I start worrying about my symptoms, by immune system goes into overdrive and starts causing damage all over my body.
If you went on a 4 mile run, you have not gone long covid
I feel the exact same way! It’s absolutely debilitating to say the least, I have PTSD from my tours overseas and have anxiety but now that I have long Covid the anxiety can just be I stand and cannot turn it off! I’m same way in that I go for long runs or work out hard and feel great but then a few minutes later I’ll think of anything and “wham” huge anxiety that just makes my body and mind go into overdrive. I explain it like this, it’s like pushing the gas peddle and you try to release it and it’s just stuck on the whole time and can’t let it go.
Oof, Raelan - "It's like I was kidnapped from my life, yet there was no team trying to find me or save me. The world just kept going, and I just disappeared".
I'd love you to do a video talking about what it's like to lose relationships through chronic illness if you're up for it? The only person left in my orbit now is my partner, and it's been crushing learning how little people will try to show up if we go through the worst of circumstances. And, when I'm trying to imagine a happy future on the other side of this, I get stuck with picturing how I could feel at ease around people again and throw myself wholeheartedly into building new friendships, because I'll have this nagging sense that they're all ultimately fair-weather friendships that will evaporate one day. It's difficult picturing how these last few years could be forgotten and moved past in that way. So, any tips? :)
Oh, LS, my heart goes out to you! ❤️ Thanks for bringing up such an important topic, we'll talk more about it on this channel, for sure!
Why would a video on that depressing subject help anything? Put your efforts into being positive and recovery stories.
@@swyllie30 insight into how to move on from the trauma of chronic illness is a valuable part of recovery that not many people talk about. I literally said in my comment it's part of picturing a happy future. That's how it helps...
You said exactely what's been in my mind now for three years. I just realized that my state has 50+ state politicians. What are they doing? What is their job description. My son still hasn't received his covid unemployment from three years ago. Government offices still aren't open, yet they're getting paid? What's going on? My son saw 17 doctors last year. None could help him!!! This year I take him to a chiropractor, whose book I read. He thought his son was going to die, just like I thought about my son. I was so hopeful. I thought he'll understand. He'll care....nope, he does one 2 second procedure and tells him to take vitanins C and Zinc. Then charges $200.
@@vinllgetthere You are so blesed to have a partner. I'm so blessed to have my children. I keep wondering how people alone are making it. Are they?
Love me some Gez :) Such a nice guy helping a lot of hopeless folks to have some hope!
Good timing. I was just wondering how Gez is doing. Thanks to both of you.
I LOVE GEZ SO MUCH- if it wasn’t for him I would’ve gone mad.
Wonderful to see Gez on your channel! He was so important in my recovery journey! Thank you both!
Thanks Susanne!
Oh wow, you found Gez for an interview. Raelan, you were absolutely the best help I had found when I got Covid in 2021, especially the manageable exercise on a bed, on sofa, against a wall, change of diet & being easy on myself etc. Then later I came across Gez and all the research he was finding and kept on carrying on, pacing and chunking 😊
Thank you both for being the stalwarts to fight our corner and keep banging away
Really appreciate your kind words! ❤️
Ooh a duvet day! I’m gonna have to try that 🤗 love Gez!! Has been the driftwood that kept so many of us from drowning! ❤
That’s very kind of you Kylie!
Thanks so much for interviewing Gez! I have been watching his videos since 2020 and in the early days, at my lowest, they helped me hang on. Thanks to the both of you for your incredible work!
Hi, I'm one of your followers for over a year allready - both of you helped me incredibly lot keeping hope in my darkest and most desperate times. I bought Gez' book imediately in february 23 and took every minute without brainfog for reading some few pages.
Brain Retrain, breathwork, meditation and selfcare brought me from bedbound to travel and skiing again. I almost can't believe it myself. I'm more than gratefull for both your chanels! In German language I only found stuff, that made me more sick than bevore. Please keep going!!!
Bevor LC I did extremely lot biking and hiking in the Alps. I was grieving a lot about losing it all for ever, couldn't manage a few steps, took several days after one shower to be somehow something like back to "normal". Many other symptoms, but now almost recovered. I'm celebrating every new day, every thing - no matter how small - that I can do again. My family has me back after a long time of tears.
Wish we would have such a helpfull recovery chanel in German language. I know people who can't follow the english ones.
So happy that we have been a part of your recovery, Amrei ❤️.
Send me an email so I can connect you with some people in Germany who are trying to change that.
It is in dark moments that a correct attitude is most important. If we fight against the darkness, we are swallowed by it and suffer misfortune. If we react to the lack of visible progress with despair and negativity, we extinguish our own inner light and block the aid of the Higher Power. If we try to persuade others that they must return to the light, we exhaust ourselves in vain now.
In a time such as this is it wise to adopt a stance of outer disengagement and inner perseverance. Do not focus on or interact with the negative influences around you; this only strengthens their grip on you. Step aside, yield, let go, allow people and events to pass without attachment. Direct your attentions inside to your inner light, your devotion to what is right, your conversation with the Higher Power.
To have patience with oneself is to have self-love. Progress may be slow, but there will indeed by progress after inner realignment. Growth takes time. Remember that much of the work of the Higher Power is hidden from us, and that we enable and assist it by remaining detached, accepting, and reserved in the face of negative influences.
Gez, just want to say a big "Thank u" for being there at the beginning & since. Thought i was on the mend but caught covid again & unfortunately symptomatic once more. Hope ur "hurdle" is the last. x
Gez was so helpful to me when i got long covid. When I was sick in 2022 I'd watch his videos and ask questions he would respond back answering my questions and helping me directly. He is so kind and considerate.
I watch both you and Gez for my daughter- I forward her the links to the good ones like this! Her journey matches Gez in so many ways- she said this was one of the most validating things she has watched!! Thank you both 🙌💫
Great video. Tons of good advice and conversation. Gez provides a great perspective and is a tremendous resource and has been since 2020, when I started following him as someone with LC. I've made a lot of progress following many of the things you spoke of -- but I'm not where I was before all this (used to run marathons) largely because of heart-related issues I've developed that are limiting AND I've unfortunately have had a couple of COVID infections recently and they can rekindle things that nothing else can.
That all said, I disagree that a marathon mindset won't cut it. I agree that the idea where hard work/pushing through often brings benefits from running/marathon training is definitely not what is needed with LC, but the marathon mindset is soooo much more than that. It's about being able to adjust to new realities, having discipline to follow a plan and to never give up on hope, even when all seems lost or unattainable (crashing at mile 20 of a marathon OR having to drop out brings these type of emotions). Going through such disappointments is not battling an chronic illness, but it did bring me an important mental toughness that has helped me tremendously as I work to heal from LC, especially all the ups and downs. In a lot of ways, it's like a marathon that we never meant to enter but did and has the worst weather and terrain ever.
Anyway, the video definitely worth watching beyond my minor quibble. Best of luck with your channel and helping people understand these conditions. That is important work.
Amazing 👏 we are thankful for all your help bringing LC to be heard.
Thank you Raelan and Gez! You were both SOOO helpful to me in my early Long Haul days 2 years ago. I'm back in a crash and found this video to be the PERFECT refresher of both the details of recovery and the encouragement for it.
I always feel better just listening to Gez - he absolutely embodies hope but in a. rational as well as empathic way. I live in the UK so I've decided to send a link to this video to my local (Tory) MP. There's a big right wing move to push the long-term sick back to work in the UK so a moonshot fund to respond quickly with trials on promising treatments would be money well spent! Thank you both tor the interview.
That’s awesome re your MP, we desperately need more recognition!
@@RUNDMC1 Thanks Gez. Do you know if there are any Long Covid activism groups in the UK? It's time to find a political voice.
@@poey50 yes, absolutely - Long Covid SOS, Long Covid Support and Long Covid Kids have all been busy and weighing in at the Covid inquiry!
I got Covid on the same day as Gez in March 2020 and found his channel very early. It was and is an important source of help and support. Thanks! We will get over this finally one day...
You will definitely get through it, I did and know of another, my LC buddy is almost there. Sending healing vibes your way 🙏🥰
@@nickywellman594awesome. Thanks for sharing.
13th was the unlucky number!
@@RUNDMC1 Indeed it was!!
Great idea about doing nothing for a day! For me it means mostly silence and limited video, but I have found it helps me re-balance after some busier days. The forced extra rest serves as a reminder that I can feel much better than I allow myself. Now I have two days per week to do nothing or whatever brings me joy (aside from hygiene and cook quick one pot meals). It really helps! Joy and space to follow our curiosity in itself is healing. ❤ I watched some of his videos and didn’t realize he is dealing with Long Covid as well. Very grateful he made the time to do this, great info for our doctors too. P.S. He is very easy on the eyes too lol. What a bonus! 😅
Thank you both so much for this interview. I appreciate all the work that both of you have done and continue to share. I am 2 years in to long covid recovery, still a long way to go but I am getting there slowly thanks to people like you. ❤😊
Ditto. Gez was the 1st person I found actually helping people understand & when I hear him describe how LC affected him, I have tears the way he’s able to articulate it so spot on when others simply can’t grasp: how holistically it impacts your life. Thanks to you both & for me (in case this helps anyone else) it’s antihistamine’s & *b-1, C, super B complex, selenium & magnesium + breathing exercises + pacing. And this from someone who used to be a whirlwind of endless energy… but I’m progressing & these forums offer help & hope. Grateful for both of your caring & your efforts! ♥️
I still get caught in the trap of comparing what I’m able to do with the healthy me of the past. I really have to tell myself it’s OK to start from where you are now. I agree that pacing is the hardest part because exercise was a stress reliever for me and I punish myself for being‘useless’ which is unhelpful. Good luck to everyone on this journey! X
I am definitely around people who are dismissive of my condition. It’s difficult to start new relationships with decreased energy.
Gez is amazing
Regarding PEM/PESE, I just wanted to point out that it's possible to get an exacerbation of symptoms immediately following exertion/activity and a further exacerbation 24 to 48 hours later, so it's not necessarily that easy to identify whether it's safe to slowly increase activity in the way Gez describes. I think you need to be cautious with any exacerbation of your general symptom profile if you meet the criteria for ME/CFS. I feel recovery comes before activity, that is you can only increase activity to the extent your condition has already improved. Improvement is not linear or predictable. If you do start to improve, it's also all to easy to increase activity too much or too fast and tip back into a crash.
gez so great to see you ! magnificent show just found it thank-you raelan for hosting gez such a great help
So glad to bump into Gez again. I've been watching him since his "what the hell is going on?" days, and learning with him has been a pleasure. He has a very special personality that just makes him so likeable as well. I'm glad to see that he's making real progress.
Thank you for this interview! I’ve been watching Gez since I was injured by Pfizer in early 2021. He has validated my symptoms and taught me that I am not alone. I have learned so much from both of you and I’m so appreciative! Next month will be 3 yrs for me, I’m improving but no where near my ‘normal’ self. But I learned in this video that I need to focus more on mind work… thank you!!
Wishing you the best in your recovery Patty!
Gez, you are a legend, I have watched every single video on your channel, eagerly waiting for the 4th video with prof Akiko.
Gez was a LIFESAVER for me when I got knocked down early 2022… thank you! Off to buy your book although I am recovered!🙌🙌🙌
I hope everyone that gets this nasty illness knows that recovery is possible. It might not happen overnight but keep searching and trying things and keep your mindset strong! I pray for a full recovery for anyone out there suffering right now with LC or chronic fatigue.❤
So happy to hear you’ve recovered Alysson!
Great interview.That was awesome. So much good info ! Wow Gez Thank you, so helpful
Pleasure Jacqui!
Great video from the two people who helped me most with my ongoing long covid journey. Thank you both for all you do, it really is beneficial and appreciated.
That was amazing thank you Raelan for this. Thanks Gez for sacrificing your energy to give your insight. Much appreciated
It’s a pleasure Cheryl :)
Thank you so much for having someone actually focusing on the science of this condition. So many of us are disillusioned by the continuous focus on brain retraining on this channel when we haven’t found it works for us and has no real scientific evidence behind it. Would really appreciate more videos like this for me to feel comfortable watching this channel again! We love Gez!
Very similar story to myself. Training for a marathon in 2020, contracted a virus possibly covid as I worked at the hospital. Didn’t recover after marathon. Not seen this guys channel so will check it out
There are so many helpful resources on Gez's channel. I hope you'll find your missing piece and recover fully! ❤️
Highly recommend Gez's videos on LC
I wouldn’t bother. If his channel had any answers LC would be over. It’s just a lot of theories with no answers.
@@swyllie30I sort of agree, but it can be comforting to see someone you relate to going through the same thing
My uncle died last year and I cried a lot on the funeral. I thought that would help but it totally backfired. My mcas and histamine issues started coming out! Before that it was just pots and dysautonomia. Now it’s a mess I can’t even eat
Low histamine diet and grief processing. Get out in nature and do breath work.
So great to see Gez here!! Thank you both for all the great videos.❤️❤️Gez, glad to see you’re feeling better but I think all the activities you have been doing, all the research, UA-cam interviews, writing a book, etc have been delaying your recovery! You need to take one year off and truly concentrate on yourself and your recovery. Sending healing prayers your way.🙏🏼🙏🏼
I’ve taken 2 months off but you’re right. It’s not enough!
Gez you helped me start on my recovery journey. You were the first person i watched about this.
Thank you. Im still recovering.. trying nicotine patches now thst seem to be having positive effects. If you see this let me know if you are trying anything new
The Dream Team! Thank you both!!
Thanks it's been over three years and I've been trying everything. Definitely have done a good amount of crying. Look forward to trying some other treatment techniques from this video and on this channel.
Thank you Gez this was fantastic, so helpful. Thank you for giving your energy to help us the long covid/MECFS community
I’m 2 years in and had MCAS/histamine intolerance in a minor way before getting LC now it’s through the roof and I can’t eat most things or digest very well. Sleep is my biggest issue and has been since the beginning. I really hope we figure this out soon, a lot of people have been hanging on by a thread for a long time now. Thanks for your continued dedication. I just started LDN to see what happens.
I could have written this comment myself. I’ve been on LDN now for 9 months and it’s the thing that got me out of bed. It’s helped me physically for sure but nothing seems to be helping the neurological changes. Best of luck to you.
Are you on a low histamine diet?
yes@@revelation1215
You were and continue to be a lifeline in my long haul covid. Thank you
So thankful for your insights, conversations, ability to communicate clearly.
So interesting, thanks Raelan! I ve had CFS for 34 years following an EBV infection...Long story short, I just want to share my positive experience with Normast not only for mast cell activation, but also for pain, brain fog and other nuerological problems, especially for the eyes? B3 has also helped me a lot. Hope this is helpful for someone!❤
Hi Mia thank you for the valuable suggestion. Will normast work on all types of allergies and anaphylactic type situations? Thx . I know I’m a bit late in reaching out. Thx.
Thank you so much, this really helps me.
I'm so glad! ❤️❤️❤️
Gez! The thing i love about you is that you recognize the trauma of all this. There is a lot going on with LC, especially the version i have. I got sick the same time as you, first symptoms march 13th 2020 and in the ER 5 days later. I'm still bedbound but my brain is slowly coming back online. Sidenote:
Im so ducking tired of seeing all these clueless comments on videos like yours implying LC is from vaccines, when we had been suffering for nearly a year before their availability 🥴 (Not denying the vax injured, but its painful when people deny our experiences with the virus).
Hey. Thanks for the support! And you may notice I take time out to respond to each of those vax conspiracy commenters with the obvious flaw in their argument 🤣
Wishing you the best in your recovery. I’m truly sorry to hear you’re still bedbound. I know lots of people who’ve recovered from being bedbound at some point so don’t give up hope.
What's helped me the most has been pacing, sunlight, meditation (combo with sunlight for best results imo), and a nutritious, gut healing diet. As a lactose tolerant person, that's a lot of low pasteurized milk (and farm fresh raw milk if you're lucky enough to have access) and probiotic dairy, eggs, meat, and cooked vegetables, the meat and vegetables being cooked in easy on the stomach fats like coconut oil or ghee. I've also done a lot of the other interventions recommended in Gez's videos, but found none of them were that noticeably impactful. I'm sure they helped, but I didn't experience the "Wow, within a week I feel better" results as I did with the above things. Each one I listed seemed to jump my recovery ahead when added.
@RUNDMC I’m a first waver. I watched a few of your videos over the years and I admire your thorough approach but I’m curious as to whether you tried brain retraining and if it helped you. So many people have recovered using it. I do Gupta myself and made great headway but have had lots of outside obstacles that have slowed my recovery. It’s such a tough journey and your description of how it feels was spot on.
I have tried it - it didn’t work for me. That doesn’t mean it won’t work for some.
Best video yet!!! Both awesome helps and Nobel prize winners eventually
Haha, very kind of you Mr Kelso!
12:50 I was a couch potato before me/cfs :))
ME actually made me sporty 😁 now I go to the gym and stuff and can really appreciate what I can do.
Thank you.
Gez was right when he said we are grieving for the person we once was.
I have recently gone out to our club and use to dance rock & roll, I tries a couple of times and it just brought on my PEM.
I look around the room and think
WHY me ? How come it hasn’t affected all these people ???
I struggle with the noise, perfume , second smoke, bright lights etc.
I have to wear ear plugs, limit my time and can not engage in lengthy conversation.
What a nice surprise two people I follow actually match up and do a Collab
Hello GEZ, thank you both for this super cool interview. Do you have a link or information about antidepressants ssri against Long Covid? I stopped taking the SSRI five months ago. Symptoms have gotten worse, but I'm glad I'm not taking any medication at the moment. I hope the question isn't too specific for a comment. I'm a big fan of both of you. Thanks for all the information. I work a lot on the nervous system and i m convinced that I will be in top shape again soon. before COVID I also ran the Berlin Marathon. But now I’m taking care about me. 😊
I can’t post links in comments, but do a google for ‘serotonin long covid’. You’ll find lots of press around the recent paper. We don’t have stuff published about SSRIs as treatment - just evidence that seratonin levels are compromised so it’s logical SSRIs might help.
Raelan, i would loooove you to do a video on long covid insomnia and have some recovery stories guests talk about how they dealt or recovered from their insomnia. Thank you
Such an important topic, thanks for bringing it up, Brie!
I cried every day , I watched his videos , It was a nitrmare thankfully I come out of it but took well over a year.
I think the stress & reading stories about ME stopped recovery . You can’t heal in stress mode
Fantastic informative interview!
Glad you enjoyed it!
I don't want to blame anyone and I appreciate that you give space to all kind of people sharing their experiences.
But I have to admit that this approach never was and even now isn't helping. From my experience I only got better from calming down my nervous system, learning to create safety and trust within myself. I respect all the effort Gez was making over the years, but it's not for me. Trying to find the answers out there, trying to fix etc. isn't the solution from my point of view. This endless searching for solutions is not the cure. If someone is okay with just managing symptoms it might be okay, but it will never hit the root cause, which is a hypersensitive nervous system.
Totally agree… I followed Gez’s content for 2 years and didn’t see any progress. He is totally good intentioned but his type of content focussed on outside solutions do not help. Then I shifted my focus to mind-body content (trauma work, polyvagal, somatic, brain retraining) and recovery stories. I also had to stop watching content from people like Gez and any of the mainstream well-intentioned doctors and scientists… and I am now 90% recovered.
did you follow a program? if so what companies?@@jamesos84
I totally agree. After 3 years I am 90-95% recovered and what made the most difference for me was acceptance, regulating my nervous system and resolving past traumas. (still working on that) I hated it when anyone who recovered told me that Long Covid was a MindBody thing, but I experienced it the hard way and now believe that for some of us at least it's a combination of some Mind Body approaches. If you are feeling somewhat normal or better in some occasions throughout the day for a few hours or even 1-2 days a month that's a sign that your symptoms may not be physiological.
@@EdHunteR87 I'm kind of the same. 69 weeks in and hard to say what % I am. On a good, regular day I feel pretty much alright but my exercise intolerance is crazy! This is the hardest part for me as I used to be a pro athlete. The holiday rush lead to me having a day with 7200 "steps", about 3 times my normal amount, and I relapsed HARD. I'm 100% with you on the mind+body thing but I'm REALLY struggling with the "almost there" stage we're in.
@@jamesos84I want to start brain retraining as I’ve run out of options after 2 years and 3 months. I’ve lost my life. I am deeply depressed and grieving. My issue is I don’t know if I am a believer. My mindset regarding brain retraining courses is very sceptical. I am suffering with bad brain fog and dizziness. It’s almost like I don’t want to start a program only to find out it was all a scam. I’m just stuck.
I used to be one of those people who would cry at everything! Even commercials! I haven’t been able cry in over a year….
Could you please spend more time looking at [sun] light, some enlightenment is needed for us all. Roger Seheult provides some details that serve well as a starting point. Seeing as we are made of so much very specifically organised water, and sunlight is buried in water especially infrared-a, people like Karu, Pollack, Sommer etc. might be able to shed on the situation.
If you were to look at what the different things that you have been ingesting, Gez, perhaps you might also get the sense that the different kinds of molecules might, to a great extent, converge on the mitochondria (niacin is interesting) ...
Omg - exact same - same funny feeling march 2020 - first time I’ve heard anyone talk about this
This was awesome! Thank you for speaking to Mast Cells and POTs dysautonomia.
All of these being underlying mechanisms in various degrees and presentations. And the Epstein bar viral re-mix repeat replay on steroids for many of us.
Excellent breakdown. So hope you can make a full recovery. The grief and loss process is such a huge component and you brought this home so well in this episode. Thank you.
Much love to you both. And gratitude. Much gratitude to all your amazing hard work, impressive. Truly impressive.
👍👍
Thank you!
I would venture to hypothesis it’s not just “the Epstein bar viral” but maybe the herpes viral or combination of virals being reactivated and possibly underlying yet unknown untreated driving the mast cell response to stressors then cascading with dysautonomia… POTS presents. Just a hypothesis. I don’t think the mass cells just keep going off unless there’s something signaling there’s a threat and may be these viral’s that don’t ever really fully go away yet lie dormant and wait for a stressor are the mechanism signaling the mass cells that then signal dysautonomia that then signal POTS . To me that is what I feel happening within my system. Stress load of any variety kicking off a viral like symptom load then the mast cells explode and often then bacterial infections due to the mucus membrane tissue inflammation then the dysautonomia dynamic of blood vessels veins inflamed then POTS.
Hello y’all… this is what is happening for me. How about you?
How do you get well with them diagnoses
@@joanneclark8256 You have to find healing on all levels, physical mental spiritual emotional
I contacted Lyme 10 years ago and have it chronically. Also tested positive for ebv back then but never knew I had mono. Three years ago i believe I had covid. I had a fever, vomiting, loss of taste and smell. I had no cold symptoms what so ever. I felt better after one day. Slowly I started to feel terrible after recovering. Brain swelling, heart problems, weak muscles,anxiety, depression, shortness of breath and more. I am 45 years old and have 2 teenagers. They have had to drive me around and pick me up from the e.r. many times. I am going to save up money to be treated by Bruce Pattersen. I have not felt like myself or had a brain for 3 years. Oh yeah, one weird symptoms I forgot to mention is, if I ride or drive long periods in the car I feel really anxious, weak and shaky.
Thanks for your podcasts. They make me feel like I'm not crazy!❤
Gez, you look great.
Gez has been so supportive for me on my journey his book is an excellent resource. and my what a handsome fella!
PEM is a symptom not the cause and pacing keeps the brain and nervous system stuck in the fear-symptom cycle 🙈
Wow wow wow, how amazing to see you two beautiful people catch-up. Thanks so much to you both for being instrumental in my own, now full recovery from LC after 19mths. Great advice at the end Gez & thanks Raelan for your amazing work. Gez I hope you can find some more time for you on your own healing journey, can’t thank you both enough🙌🙏💕
Nicky ❤️ So happy for you! 🌟🎉 You're a rock star!
@@RaelanAgle Thanks Raelan, your work is changing lives 🥂🤸🙌🥰
Thank you Nicky!
Can you give any tips on what helped you? I've been in it since March 2020 but my case has been more severe than most people I've seen.
@@northernflicker1111 I'm so sorry to hear that, it's such a long time to be sick. My symptoms were mainly chronic fatigue and brain fog. After a year I started to improve after hyperbaric for 4 months & antihistamines took the edge off the fatigue. After a big crash in April I decided to scale things right back and try to heal my nervous system with yoga nidra & x2 20min meditation a day,which I still do. I just concentrated on relaxing my mind and body and gradually improved by September I was mostly fully recovered. I also take Niacin bit B2. Which I also started in April. I hope this is helpful. Raelan's channel has also been helpful with tips. Particularly as it's so positive. I hope you can find your own way out of it. 💝
I’m convinced it is all nervous system deregulation.
Just an observation. Gez is still wound up like a top. He appears like a normal, healthy, person that has just 3 or 4 coffees. He can talk about all the science behind long COVID and use antihistamines and serotonin upregulating medications and talk about how he incorporates mindfulness, mediation and mind body approaches, but until he truly trains his brain to calm the hell down he will not fully recover. It's interesting to notice the affect that Gez's high level or arousal has on Raelan. In the intro Raelen's speech is slower, less urgent, but as the interview begins Gez's high state of urgency is almost contagious, as Raelen speech increases in velocity and more urgency. Once one realizes this, they will understand what is at the core of this illness, which is is a constant state of threat, stress, and unease and the inability to dampen those effects, and self soothe to regulate the nervous system.
Hey, thanks for your comment and observation! Worth pointing out that for interviews like this I am ‘switched on’ - as I see the audience’s time/energy as precious and I want to try to communicate as much information as I can in the time they can spare. So yes - there’s a degree of sympathetic NS kicking in. But rest assured this isn’t how I spend the rest of my day! And I fully agree how important it is to calm the nervous system to aid the process of recovery.
Go easy with the judgement. You can't walk in his shoes.
Not a judgement, as I said, more of an observation. I've been through this whole journey, an extreme case of it, so I know all too well what it is like walking in these shoes.@@poey50
I get the sores too! I've never heard anyone say anything about it.
Yey Gez!
Thank you for the work you are doing. After so many interviews and data, would it be possible to analyze the data and come up with a summary on what most people have found helpful in their recovery?. I understand everyone is different, but i there a common thread across all cases?
For sure, you can look up "75 ME/CFS Recovery Interviews Summarized - The Vital TOP 5 Takeaways"
***WHEREZ GEZ *** @@@WHERE IS GEZ@@@ … RA, you found him! I am elated - Gez thank Ra for taking up for me where you left off!! AND thanks for the FOLLOWUP CUES like Greiving the person you’ve were, and your three point summary, your summary of “coping strategies”. My two favs in one place! Hallelujah hallelujah
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I have been trying ozone therapy & 29:05 EBOO & vitamin ivs and iv NAD plus and hyperbaric chamber, and also cryotherapy all have been help me with long haul COVID over the last 4 months
There are over 100 different mediators of MCAS other than histamine. I'm one that has other ones.
I'm trying to stay out of fatal heart rhythm
What was your go-to movie to make you cry?
Is anyone freezing chills at night is that dysautonomia? How can one get proper diagnosed
18:15 Mast cells activation and dysautonomia - I actually think that these two ARE ME/CFS. It would be helpful if we could just stop using the names as ME, long covid, and just focus on the specific dysautonomia types and mast cell activation symptoms.
Some people are really supported by drugs. Myself, not so much, but then again, if you know that me/cfs iis actually dysautonomia and MCAS, you can also target these with 'natural' treatments. This was a huge part of my recovery, learning how to improve both MCAS and dysautonomia.
Brain retraining has been really positive for my MCAS symptoms by the way.
Can you share which natural supplements help dysautonomia please ? I really dislike drugs.
Which brain retraining plz ?
@@nicolassabatier8777 Gupta
Long COVID is sort of like the line in the Godfather 3. " Just when I thought I was out, they pull me back in" It's the same with long COVID. Just when you think you're getting better, you're not! Going on 2 years for me, and wearing on me, as I'm sure many others as well. Prayers to everyone.😢 ❤❤❤❤
One day I'll be citing my book