The Most Promising Drug For Long Covid You've Never Heard Of | With Dr Wes Ely
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- Опубліковано 20 тра 2024
- In this film, the first of two - Dr Asad Khan and I ask intensive care physician Dr Wes Ely about how he became involved in Long Covid, what it takes to get large scale treatment trials off the ground, and why there’s one in particular he’s excited about - and we are too.
Resources:
www.thelancet.com/journals/la...
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The Long Covid Handbook (Feb 2023) by Gez Medinger & Professor Danny Altmann (and published by Penguin Books) is now available in paperback, ebook and audiobook. A singular resource that brings together everything patients, clinicians and academics have learnt about the condition to date, as well as lessons from sufferers and researchers of ME/CFS and other chronic conditions. It offers world leading expert advice on understanding, managing and treating Long Covid. It is available from the following links.
US: a.co/d/0gvkJCU
UK: amzn.eu/d/9KjurGb
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Interested in my second channel?
Here are some links!
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5 Reasons Why Top Gun Maverick Crushes the Original | Film Director Breaks it Down:
• 5 Reasons Why Top Gun ...
Why Succession Shouldn't Work at All, But is Somehow the Best Show on TV:
• Succession Shouldn't W... - Наука та технологія
I am incredibly grateful for your videos. I hope and pray that, one day, all Long Covid patients will be heard, seen and treated.
Us too!
@@RUNDMC1 I am soooo waiting for the day you declare yourself cured. It continues to give me (and probably a lot more people) hope!
Sometimes I wonder if the first two are not the hard part.
LOL.....THERE IS NO SUCH THING you clown.
You are SICK all the time as you took the THINGS IN THE ARM
@@RUNDMC1 LOL.....THERE IS NO SUCH THING you clown.
People are SICK all the time as they took the THINGS IN THE ARM
Actually crying real tears as I watch this. The three of you are tireless warriors for all of us. Thank you so very, very much. I've been hanging on for years, hoping something comes along to make this misery tolerable. Godspeed, Dr. Ely.
Same here, made me tear up from gratitude for people who actually care and try
Same here, 3 minutes in-“…. Then 100 days later…”. I do wish I knew if pushing myself to go back to work t too soon made a difference. I knew I needed to rest a bit more, but “nursing-guilt” got me, we were SO swamped.
Try, as an RN, explaining to my Uber black & white healthcare company that I was worse 3 months later!!! The only thing to my advantage was I had a neurologist. I could call and say “I can’t think right “. And I never really emphasize the thinking because I never wanted it in my medical record. I NEEDED critical thinking skills and though I’m somewhat better I certainly can’t rely on any critical thinking, or memory, and that was absolutely required in my job.
And I can’t even predict the glitches, but the day I actually had to Say to my daughter “It is 2023, not 2024, right?” I just wanted to crawl under the floor mats!! I told her I’d been reading lots talking about 2024 but I knew it wasn’t that, because I suddenly couldn’t just think it through (so truthfully, that would’ve freaked me out also)
Now I watch my grandkids but it takes hubby and I both because between the two of us we have 1 healthy body and 1 functional brain!!
LOL.....THERE IS NO SUCH THING you clown.
You are SICK all the time as you took the THINGS IN THE ARM
what are you symptoms?
The doctor speaks way to fast. What's the name of the statin? Baro what?
Thanks Gez for being one of the first to light a candle when we were all stumbling about in the dark.❤
Very kind of you, thank you Eileen!
100% Gez you are a hero
👍
Kno u speak from the heart w your own suffering.. u r the essence of caring, blessings to u🙏❤️
@@RUNDMC1 he's talking about the brand name drug Olumiant (generic Baricitinib)
The NIH has a long history of being spectacularly consistent rejecting ME/CFS research grants, perhaps now with LC omnipresent and thus undeniable those hitherto tightly drawn purse strings will loosen. Thx Gez for another excellent interview and thanks to Dr Ely for pursuing this line of research pro bono... the world needs more like you!
Thanks Angus!
Exactly. This appears to be the critical mass we needed for figuring out ME. I'm lucky I got ME at the same time as the pandemic...
The NIH is probably responsible for covid so I wouldn't expect much help from them.
hold your breath because the NIH is who helped to create Covid in the first place.. depopulation. Thanks, Fauci!
Dr Wes described by LC experience exactly. I was never hospitalised, I initially got better, then I completely crashed, physically and mentally. I've learned a lot from your videos Gez, so grateful.
Same
@@vsotey
Which vaccines, when and how many boosters?
How can we get on th trial Gez? Heartfelt thanks for what you bring to us ❤
How do we get I. Trial?? Im 42..once healthy suffering from blood clots and stroke!
@@deannarichbourg2396
Why are none of the governments holding the makers of the treatments accountable.?
I've had long Covid for three and a half years. I actually started crying when Dr Ely was talking about designing his study with long Covid patients on the panel, really listening to patients and putting in measures to protect the participants when they experience flares. Dr Ely is a light of hope that perhaps more doctors will share his humility and willingness to listen in the future. And thank you, Gez, for your three and a half years of giving all of us long-haulers the will to keep fighting this.
Thank you Jan :)
@@RUNDMC1he just a sniffle mate, wake up
You dont have long COVID...they made that crap up😂😂
@@nospoontobend2656 a few million people might care to disagree with you buddy! I ran marathons before this shit. It’s very, very real.
@@RUNDMC1 ppffff bullshit....and the Government and pharma are pushing a new vaccine now. Ok pal. Everyone in my family got sick, they got the vaccines....I was the only one who didn't along with 2 friends of mine. All 3 of us never got it. Keep buying the BS.....lol shmucks
For those without capacity to listen to the whole thing first, they talk about
a Jak stat inhibitor and Immunomodulation,
among other things. Hopefully I got those right, I'm not familiar with them yet.
Interesting to hear about. Good to hear people doing research for the public benefit, lower income countries, and with long Covid patients' unique needs being considered during studies.
Thank you!
How do you spell the name of the drug?
Thanks
I think it's Baricitnib aka Olumiant
@@tanyawieczorek6603
Was the same with chronic fatigue syndrome. Was healthy in Air Force a Viet Vet. After hit out of blue with ?? Was down 3 months in bed.24/7. All kinds crazy symptoms. No one listened we had Yuppie Flu. Or exaggerated.or was in head. Insulting. Got better for few years after not well well but better. Then crash. Now 30 years later spent most life in bed. Pushed hard but symptoms change day to day never leave. So long covid now sounds exactly wat we have had for so many years.
This is fascinating. I was following Dr Wes prior to his LC studies about post ICU delirium which in itself was fascinating, and he also shares the story of his daughter’s brain damage. He clearly cares about patients and ending human suffering.
This Dr is the epitome of dedication, sacrifice, inspiration, and all that is good in the human/humane dise of medicine.. wish we could get some trials here in the northeast, w BOSTON, YALE UVM, etc . I graduated from Brown, and there's nothing here in Ri.. see io drs +none know what I'm talking about.. have to self advocate w nad+, choline, glutathione, etc.. blessings Dr Ely and all 🙏❤️
A large hospital system in Chicago just asked me to be involved with a new study. The drug they were looking into is something many in LC community tried years ago. I’m so frustrated! I hope to see more forward thinking individuals like this to help us out of this hell.
I'm participating in a clinical trial for amyloidosis. It is going extremely well. We are well looked after by the pharma company.
@@basher5013 is that the disease name or the drug name?
@@mindynewman9362 I’m wondering the same, may have to research ourselves…
@@mindynewman9362No, it refers to the types of blood clots (amyloid clots) and isis at the ene means ‘inflammation of’, so it’s the name of the condition by which these blood clots cause illness
What was the drug they were looking into?
Hey, that would be the FIRST miracle, a doctor who's actually LISTENING. (Apologize for the bitterness).
How's this for bitter: I've suffered almost 40 years with exactly all the long covid symptoms and have gotten the pats on the head from doctors telling me to go away. Fatigue so bad I sleep sometimes 16 hours a day, and I mean fatigue so bad that i cant focus my eyes together, muscle aches, body stiffness, my legs feeding like they have lead in them they're so heavy, headaches including migraines, brain fog, tinnitus, joint pain, heart palpitations, dizziness and fainting, gastrointestinal upset, bloating, food intolerance, yada yada. Crickets from doctors. Then this covid $hit happens. Now my symptoms are worse! I've lost faith in the medical community.
@@winniecash1654 Long Covid, ME/CFS and post-viral fatigues SEEM to be linked to the "evil Triad" - POTS, MCAS and EDS. When my kid was diagnosed with EDS by a genetecist, I wasn't present but my ex was. Based on the answers that my ex (who didn't know ALL of my medical history) gave, the geneticist said it was 99% likely that I had the same condition, just never diagnosed. Covid, Epstein-Barr, SARS-1, all seem to trigger an existing condition.
The medical community is still at the "witch doctor" stage on this stuff - the chemistry and interactiosn just for MCAS are insanely complex ... and GIVE all the symptoms we experience. For at least SOME people this responds to (somewhat drastic) diet interventions. Think Celiac disease - it was often FATAL until people learned it was a DIET issue. I'm not giving medical advice, but self advocacy and knowing that - even when they don't have a "god complex" - doctors will often get it wrong are important.
For people who are curious, the drug is called baricitinib.
The side effects that pop up associated with are (and these are just some)...
Upper respiratory tract infections, cold or sinus infections)
Headache
Acne
Increased cholesterol levels
Increased muscle enzyme levels
Urinary tract infection
Increased liver enzyme levels
Inflammation of hair follicles (folliculitis)
Tiredness
Lower respiratory tract infections
Nausea
genital yeast infection
low red blood cell count (anemia)
low white blood cell count (neutropenia)
stomach-area (abdominal) pain
shingles (herpes zoster)
increased weight
@@KathrynRoberts60better than multi organ failures
I'm in Switzerland. I had covid June 2022 - 2 weeks of hell but then it vanished apart from pressure in the sinus area (unvaxed). The pressure disappeared after 3 months. Five months later I developed a UTI which I've had for 7 months, a hiatal hernia/barretts oesophagus, extreme weakness, fatigue, headaches, brain fog, and serious neck, back issues.. I feel like I've aged 20 years in just a few months. I'm trying to find a long covid clinic in Switzerland - maybe one in Bern. Prior to that a vibrant, healthy person - runner, skier, walker - 71 years old.
So sorry to hear that Elle :(
Thank you!
Some take antihistamines.
.Pomegranite jiuce daily is good for vascular health etc (on UA-cam). Also Google... FLCCC Alliance website, and Dr Shakara Chetty (South Africa)
Happy to see some people in the medical community still working on LC. I was severely under the impression that it is being swept under the carpet.
Not everywhere!
Don't worry, it's not. The cure is worth WAY too much money and there's plenty going on. It's just that all the trials and red tape make actual public applications of these ideas take AGES to reach us. The wait is agonizing my brother, but never lose hope.
OMG I was going to ask if he planned to expand the trial to include ME/CFS patients bc of the crossover with LC. Those of us with ME/CFS have been neglected for decades!
It's great that Dr Ely is looking at the connections with ME/cfs.
Yes we speak much more about this in the next one
I’m seeing this 3 years after getting Covid & then long Covid . It took me a year & half to recover. I watched gez first shows . I remember being devastated at my
Life as I had to go sick from
Work , spend hours in the dark in bed as I couldn’t tolerate light or physical movement.
I never thought I would get better I spent hours in tears .
But I did recover . Now I think the more we stress over our condition the longer it continues. Our body cannot heal in unstable state …. My heart goes out to anyone suffering. It’s horrendous state to be in …. But remember YOU can recover x
Your probably sick from the poison
3 years and 5 months on now and feel worse than I did 1 or 2 years ago. I really want to be able to 'switch off' from the condition and not stress about it but my body reminds me all the time that I have this debilitating condition. I feel the need to constantly research and try to 'get better'. Honestly, I just don't know how to get out of this trap. I would like to just start 'accepting' it but when your life and personality has changed so much..... I just don't know how? any advice welcome
@@ClairDoubleday that's nothing to do with covid ,it's the VACCINE that's making you sick
@@ClairDoubleday don’t research . My biggest wrong ! . It keeps you struck .
It a physiological problem but I honestly believe what got me better in the end , was meditation & thinking about what I was telling myself. It was all negative& catastrophes. Your body can’t heal in that state . Your immune system has been knocked off its axis. Imagine every day of you moving it back .everyone thinks it’s all rubbish but I know in my heart it got me better because that’s when I stated to recover . All of sudden you just feel different. But remember, you will be in a rehab phase. That just means you are not relapsing but your body needs to do it at its pace . Xxx
Clair D. I hope you're doing better. The only thing that helps me is prayer, taking it all to the Lord! Giving all the anxiety and worries to him! And staying in the word. That's what brings me peace. Hope this helps 🙏
Wes has long been a great advocate for us patients. So happy to see him on here!
Go Dr Wes, go!
I hope this comes to England! 😢long Covid has destroyed my quality of life!
Fingers crossed for Dr West, seems a great guy. If it means some of us can avoid going to bed every couple of hours then I’m all in. Good luck.
This is a serious drug and comes with reviewed and additional black box warnings that need to be seriously considered and understood before taking. Be careful.
This is very encouraging. I hope they get the funding without too many revisions, and that the trial can start soon. Also glad to see him speak about delirium and dementia - both routinely ignored by many medical professionals in relation to long covid. Thanks again, Gez, for another helpful video.
YAY! Can't wait to hear more about this trial!
Pray that it CURES LC
Thank you again Gez!
Hi! Yes we will recover!
@@alexandrecouture2462 Hello friend! Nice to see you here!
@@alexandrecouture2462what an optimism, amazing
I spent 2 months in hospital & had to learn to walk again when I came out. I went from 104kgs to 78. It's now just over 2 years later & my lungs are at about 70%. I'm now unemployed & have not received a cent from UIF. If I do anything in the garden, I'm out of breath. Sweep the floors & I'm out of breath. It's good to hear there is hope
I hope this work will help us suffering from Myalgic encefalomyelite too. I've been suffering for 10 years.
As I’m reading all the comments I almost want to give a sigh of relief that I’m not alone in this fight. I have been sick for over 3 years now with every ailment you can think of and am currently getting over Covid again for the 3rd time… I almost threw in the towel because I’m so tired of being like this and if it hadn’t of been for God I I know I would of given up… this is an evil world we live in and to even consider to stay in the fight comes from Gods strength, not mine… find peace in the valley where it is very dark…GOD BLESS
I’ve had #ME for 28 years. People like Dr Wes Ely & Dr Asad Khan give me back the hope I’d lost. I would so like to live before I die. I was 38 years old when I got ME after a severe virus. I’m now 66, & deteriorating. 🙏🤞🙏
I got ME in 1991, age 49. After 32 years can’t imagine what a “normal” life would be like. Would love to know what my tormentor looks like before I go even if it is too late to get cure. I manage very well now with severe restrictions on my energy pot.
35 yo when I'll with CFS/ ME
NOW 62.
GIVEN UP HOPE. PRAYING NOW with LC attention.
Hugs
have you tried thyroxine?@@lauriecolaprete3460
Sounds like someone who actually listens to the patient experience! ❤
i was looking into jak inhibitors yesterday, awesome to know now which one may be most useful for covid, another great video Gez ✊ and to the doctor in the interview what a great man
Bonjour ! J’ai écouté la vidéo. Mais je n’ai pas compris le nom du meilleur médicament pour le Covid long. J’ai compris que c’est un médicament qui existe déjà. Et qui est immunomodulateur sauf erreur de ma part. Pouvez-vous m’envoyer le nom ou /et la classe du médicament pour le Covid long? Merci beaucoup ! J’ai bien compris que ce médicament va être d’abord mis en essai thérapeutique. Mais je voudrais avoir son nom générique ou son nom. Merci infiniment
The video links to an article in the Lancet which mentions - “baricitinib, a Janus kinase (JAK) 1-2 inhibitor”
I was just trying to figure out how it was spelled the Jake inhibitor he spoke of would you happen to know ? Thanks up front
Praying for LC treatments... Good luck Dr. West!
Poly vagal breathing cured me
@@robotsrulejapanis that the technique by Dr Boon Lim?
Thanks Gez. I’ve had Long Covid for over three and half years, bedridden most of the time, I’m desperate for a cure or even some help. Please keep us updated
I will of course. Best of luck in your recovery, my heart goes out to you.
@@RUNDMC1 Thank you so much 🙏🏼 like many, I’m at my wits end.
have you taken ivermectin yet? NAC, High C and Zinc and A through D?
@@s-ternichols I’ve not been able to get a doctor to prescribe ivermectin or paxlovid but I’ve tried all the vitamins etc, the only thing that gives me positive results is sunshine but soon as I return to the UK I’m back to the chronic fatigue.
Another great video jez.
Way back in 93 when i got me/cfs, i drove around not being able to find my house, in a neighbourhood that ive lived for 50 years.a taste of what me/cfs can do to our brains
I have had ME / CFS 27 YRS . My cognitive deficiencies are massive. I feel like I have severe dementia. Still terrifying
Thank you to all of you. We are beyond lucky to have people like you on our team!
Wes is an absolute legend
God bless you. A true scientist, scholar, humanitarian.
This is very interesting thank you for bringing this to our attention!
I remember watching a video on early-stage mild dementia and realizing and recognizing that post Covid that was the state that I was functioning in was a state of mild dementia. It was unsettling yet eye opening. It was a long spell before popping a bit out of it to a more typical level of functioning… a solid 10 months to a year. My Autonomic Nervous System was so hi-jacked! And POTS symptoms evolved along with increased next level MCAS.
Still struggling but it is so good to see people out there pushing for research and trying to being people back to functioning health.
I was considered “mild”, ER visit due to what I now believe was a POTS hypertension event. Lungs clear. Covid test positive. Klebsiella Pneumonia UTI intestine infection that was not resolving with antibiotics. Now I believe the vascular and tissue were chronically inflamed with a Mast Cell explosion. Felt bone deep in my whole pelvic region.
It’s been a new dive into a new level of chronic health nightmare. But the mild dementia symptoms so troubling making basic life tasks almost impossible, dangerous.. burn the house down trying to cook, auto accident dangerous due to diminished functioning… for a mom… devastating.
I look forward to seeing how this progresses. Please keep us posted. And thank you! ❤❤❤
🙏🙏🙏
🙏❤️
Thank you so much for doing this, you’re giving us the hope we desperately need!
Same w me, cept bad head and lung congestion, tested neg, but now realized vax injured, am severe autoimmune :celiac, mold injured, COPD, long Lyme, .. could hardly hold my head up w swollen lymph, and urgent care sent me home😥😥🙏❤️
Sure hope Wes is able to get this started quickly. 3 years and counting. Thanks as always for staying with the LC videos.
And there's also the fourth group. The PACVS post acute covid vaccine syndrome. A sister to PACS. Kind regards, covid vaccine injured intern Dr from Sweden 🇸🇪
Tu.. I'm w u in that group🙏❤️
Same here..from one shot
Same here - vaccine injures
i am vaccine injured as well, i have had black out spells since vaccine Plizfer one dose. where i almost black out 3 years in November. getting echo cardiogram on weds. 2000 dollars out of my pocket plizfer should be paying for this!
please share your symtoms
😢 praying 🙏🏻 this works and I can try this treatment I follow this doctor he makes me feel valid 😢 I have been on oxgyen for 2 yrs , intubated for over two months 5% chance to live , tracheostomy , nerve damage, brain fog , GI issues , now my heart , bone aches and arthritis I never had. The list goes on , I’m 38 four kids 😢 I shouldn’t be going through this my kids need me .
I’m so sorry to hear this Krystal :(
Hope you get help. I was diagnosed with chronic fatigue syndrome.at 38. Was extremely healthy not overwt. Nothing wrong. Now almost 70. It has been a life of hell no matter what I took or how hard I push thru this hell. Can't pray it away or ignore it away with cognitive behavior therapy. It's real symptoms are real. Drugs just cause more side effects. Age no help and menopause was the last straw. I hope for you that you get help.
Absolutely amazing - I actually dare to hope 🙏 - I've lit my candle 🕯 - Thank you Gez for your continued commitment to the LC community and all that you do for and on our behalf 🙏
Thanks Dee!
Gez, you are a gift to us. Thank you for doing the heavy lifting and doing the research, and bringing us these experts.
Thanks Evin - the lifting isn’t that heavy!
Great interview Gez! Brings hope to the community. ❤️
For those who can't afford to wait. Low dose Naltrexone is available now
I'm so frustrated with this mess, I'm tired of being tired. I was hospitalized Aug 17th-Nov 1, 2021, Fatigue, lack of oxygen(lunch function 65%, depression and anxiety, weakness, headaches/ migraines and pains, easily bruising, ears ringing, stomachaches, itchiness, I can't clean my house I can't work. Anything I get determined to do, I nearly have to kill myself to get it done. I'm so over this. And I watched Covid study videos all the time to find out my doctor is absolutely clueless still and they don't care. I think that's the most frustrating thing that my doctor just doesn't care. And she doesn't care to go look for any answers.
Yes!! ME CFS ❤❤❤ help us 🙏🙏🙏
We talk about ME/CFS much more in the second part (coming later in the week)
@@RUNDMC1 thank you so much...living like this has been so frustrating..three years now
@@trishafrye53 absolutely with you there. I’m 3.5 years now myself
This is exciting! I’ve been long hauling for nearly two years now. The last three months I’ve been on gabapentin and that’s helped a lot but I’m still not cured and struggle with really bad days. Thanks for doing this interview.
1) The linked bariticinib study showed only a small reduction in mortality (12%, vs 14% in the control group).
2) Wondering if bariticinib was associated with a lower incidence of the most severe forms of LC, ie with long term disability.
Thanks for your work all together ❤
Thanks Charlotte!
Great interview and so good to have hope! Dr Ely is a hero ive read his book highly recommed
Thank you, Gez. Looking forward to more helpful videos.
Wow. What an amazing man. Bless him ❤
that sounds terrific!! thank you!!
Thank you for the video. It gives me hope
Interesting. I wonder if the primary target of the jak stat is interferon alpha control? That's what Ron Davis and Rob Phair are also targeting in their research. As they believe in me/cfs INF alpha is keeping the itaconate shunt active. Jak stat is one regulator.
Dr wes ely is the the essence of all that exemplifies an outstanding , dedicated, humble, physician.. HE IS the "light in the darkness".. has long cov himself and never mentions it, tu to all r researchers , drs, pharm who offer a glimmer of hope to the 70million of us suffering🙏❤️
I would love to hear how this trial aligns with everything the OMF are doing and theorising. I wonder if the researchers are in touch? Thanks so much Gez and Dr Wes Ely, keeping the hope up.
I hope they do connect. It definitely links up.
Baily, this article gives a lot of details on mode of action, i.e. which parts of our immune response it tones down. A big part, but not the only, is reducing neutrophil degranulation. In acute Covid, it is blocking the deadly cytokine storm. Treated monkeys in this experiment interestingly also showed less phospho alkalinity in their blood at the acute infection stage. As baricitinib is not anti-viral, they are studying combo treatments for acute Covid, pairing it with anti-virals. www.ncbi.nlm.nih.gov/pmc/articles/PMC7523106/#:~:text=Thus%2C%20baricitinib%20could%20provide%20a,inflammation%20and%20reducing%20viral%20replication.
This guy is a saint! A true national (global) treasure and must be protected at all costs. Thank you for all your dedication, passion and hard work to improve the human condition and undo (or prevent) the damage that has been done.
Thank you doctor for your hard work! I love you already! I’ve been sick for 9 months! I have long Covid with sarcoidosis! I need your help for sure!
You’ve lit a candle of hope for so many of us! 🕯️
Thanks Rebecca!
Thanks Gez and Wes and Asad 😊
Dr Wes Ely, what a wonderfully altruistic and humble good hearted guy he is, totally patient focused and passionate about what he does; I'm sure hes going to be successful in helping LC patients with a drug break - through . Perhsps the FDA/ NICE might fast-track baricitnib if the trials are promising . I hope so. Too many have suffered too long,
Thank you Gez for a brilliant and uplifting vid .❤
Thanks again Gez for you continued help for the LC community. We love you and thank you from the bottom of our hearts for stirring up all those questions and doctors to get answers for us all. I pray you are feeling better. I am doing ok at the time, but like us all have my ups and downs. I sure appreciate this wonderful doctors drive and knowledge, he seems so dedicated to the cause for LC. I cant wait till they get some more answers. Take care Gez! Well done!
❤
D
Thank you D! ☺️
@@RUNDMC1 your welcome! 11:30 pm here in California USA. 🥰
WoW, thank you so much for this video! It gives me hope. Long covid since 2020, and unable to work at all since 2nd infection in 2022.
Thank you for believing in long covid and working to reverse it ❤
Awesome guy! Thank you for sharing. Nice to add another possible tool in the toolbox to be hopeful about.
I have been on Ivermectin for 18 months, I have had longhaulers for 3 years and 6 months. I have tryed many things. The Ivermectin has helped between 95% to 99%, I'm thrilled, but if I stop my symptoms return. I'm praying for a "unicorn" cure.
Does it come back even if you titrate the dose down slowly?
What dose of ivermectin do you take, please? I tried it but think I got the dosage wrong.
I’ve also found IVM has helped me when I am in a me/Cfs crash. I take 2 tablets 24 hrs apart. Done it twice so far and the crash has been over in a couple of days after taking the first tablet.
Where do you get ivm?
The fact that patients have to come and be tested at your facility already corrupts the studies population. The real sufferers are stuck in bed.
A whole lot better than nothing bro.
Yes, that's right I can hardly walk 2 years of suffering.
Hope we can get better soon. All the best. ❤
We need help!! I initially got covid back in May of 2021. I was down for the count for 4 weeks. I never really fully recovered from it. My wife went on to a full recovery. Two plus years later and i struggle to work everyday but fight through it. Ill go about 2 or 3 weeks and feel good and then for about a week im down and out again with mild to severe heart pain, chest pain, lung discomfort, brain fog, extreme fatigue, heart palpitations, shortness of breath, dizziness, numbness to left side, and now most recently stomach cramps. Ive spent thousands of dollars with ER visits thinking something is seriously wrong and all tests come back negative with a clean bill of health. Cardiologist visits that tell me to take ibprophen and even went to an infectious disease doctor all of which tell me nothing is wrong with me. Im beyond frustrated with all of this. I just want my life back. Im a very active person and work outside all day in construction and its so hard to stay focused when there's no end in sight for us long haulers.
LOL.....THERE IS NO SUCH THING you clown.
You are SICK all the time as you took the THINGS IN THE ARM
Same here
My husband has been suffering for a year with LC after having Covid. Dementia, affected all his joints and muscles. I pray everyday that they will find a treatment for LC. I want my husband back.
Wow, this is so encouraging. Thank you for sharing, Gez. I'm glad he mentioned MECFS too. Would this (or anything else you've heard of) benefit bedbound patients with extreme fatigue and PEM?
Yes, potentially! But we’re still at the ‘let’s find out’ stage
Thanks for all you do. I learned so much
Another great video.. thanks so much Gez
A pleasure David!
Thank you Gez....the more we know!!!!
The better!!!
Definitely!
Thanks again Gez
CBD has made the most significant improvements to my long covid. Found this out incidentally after taking some for a backache. The next morning I had noticeable changes to my eyesight and energy. I am almost completely recovered now. I take NAC daily to avoid reinfection.
The best medicine to use for almost everything!
What type CBD is helping you? Name of drops? Thanks. I've been searching for Anything that will help my mom 😭
I really hope this treatment becomes available asap and hopefully it works for POTS as well!
This was amazing to see and hear❤ I've heard of Dr Ely in an earlier interview, such an awesome wonderful human and professional❤
I agree!
Great video! Fantastic information. ❤
Glad it was helpful!
Thank you!
Thanks Gez. Really would like to be able to get out of bed and back to my life like many of us💗
Wishing you the best in your recovery Diana!
There's no talk of whether these "long covid" people have been induced by injection to produce the toxic spike protein. It matters.
Half of all long haulers developed long covid a year before there even was a vaccine. It doesn’t matter that much.
I hope this works! It’s been to long with this bs! Thank you guys for everything!
I have horrible long covid with severe issues. My daughter has heart problems bow and shes 16. Did not have any problems before. Me and all 3 of my kids have it. I think its from the delta strain. Because we all have it. I will be willing to do any trials .
PLease get itself some fresh pineapple and for ur kids it very good for anti inflammatory I have long covid and its helping me to some extend its the bromelien in it that very good for spike protein ❤ stay strong and take it easy I hope u get better soon
Thank-you.
I've had symptoms the doctor mentions at the start, for the past year I've been accepting that I am in cognitive decline, it's weird just like he said I get flares that last days to weeks and I simply cannot think. As if to spite me I am given one day a month of relative clarity. In my 3 years of hell (previously perfectly healthy my whole life), not one of the doctors or consultants ever asked about or explored covid being the issue even though it lines up exactly in time. I find this beyond strange almost to the point of being kafkaesque.
Anyway despite my best efforts in my life to be healthy (exercise, diet, sleep hygeine, sun exposure) none of it has improved my situation and now at the ripe old age of 36 am now just managing a decline.
Do you live near a cell tower?
@@oyamawapitithat is not it
Take grape seed extract, modified citrus pectin and dlpa. See if it helps
Oh..So, tell me why this cannot be an option? You have to consider multiple options to be able to find the cause. Try to think out of the box!@@partdeux992
😢❤
Thankfully there are people like this in the world. There was one glaring omission in his discussion; he did not address the fact that many people are suffering from the same symptoms of Long Covid after Covid Vaccination. Long vaccination injury and Long Covid seem to be one in the the same.
It may have been an oversight.?
But excess deaths are still very high in most first world countries.
Thank you Gez. 🙂❤
Pleasure Jayne!
Thank you Gez as always
Thanks Tracey!
Thank you so much for your work! I wish I could get involved in a clinical trial!
Please add older adults to your study when it begins,I have been told many times that I’m too old to get into a study for long covid. My problems began 5 days after the first shot,migraines,which I never had before, brain fog not able to remember things and absolutely no critical thinking. Almost confined to my house.yes still suffering today!
Just commenting for the algorithm. Much appreciated as always, Gez!
Thank you, you too!
Will you include along long Vax in the trial? Because they have been excluded broadly speaking. Most of them myself included have had COVID, but started having symptoms post vaccination.
I don't understand why can't a dr prescribe a jak inhibitor off label for people to try? We are suffering and can't wait.
Best Interview Ever!!!!
Thanks Cindy :)
Thank you so much for all this inspiring information. A cute might come!
Excellent interview on a promissing area for PASC! My only concern is that i didn't hear any consideration for the large amount of evidence supporting viral persistance in PASC. If the viral persistence is being driven by infection in viral reservoirs then inhibiting the JAK/STAT signaling pathway could exacerbate the condition. Effectively handcuffing the immune system during its stalemated struggle against an adept pathogen.
One of the continued complexities of the condition - we talk about this more in the next vid.
Awesome! ❤
This is great to hear, I didn’t know about this drug at all. Thank you again Gez, for spreading the word and helping us too.
One thing that I am thinking though, is that once they get the funding, we should be talking about 2-3 years at best to have that treatment available, am I wrong?
Won’t be far off that
🙏🏻
Call me cynical, but we cannot trusts the NIH, CDC, FDA, big pharma, etc, and I cannot imagine further being a human experiment. We have lost respect and trust in the majority of allopathic providers. Look at lack of treatment options and push of remdesivir. I had a bad case of cv for 4 months and have LH. I hope this is legit and works.
Very grateful God Bless.........my husband did his post-doc at Stanford and used to fly his small plane with a massive stack of NIH grants next to him on his way to Washington to help decide who went forward. I care deeply since suffering from Long Covid for 3 and half years. Wishing you well, and so very grateful for your energy and caring
I need a hopeful video today.
Thank you so much for these videos. My child has Long Covid and it gives us so much hope to see all the work still being done on working on a treatment.
We used the 32 day ArtemiC Rescue and ArtemiC Support combo, and it worked well for us for both short and long covid.🎉🎉
I contracted SARS-COV-2 the first week of December 2021 and had it for 45 days. Durning that time It proceeded to strip life as I knew it away from me. And YES, the Brain fog is one of the most difficult things to deal with.