The Latest Research & Viral Persistence | Long Covid Q&A
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- Опубліковано 29 вер 2024
- In this Q&A session with the Sheffield ME & Fibromyalgia Group, we cover everything from the latest research landscape, to viral persistence, how to get the best from your GP, and a huge selection of questions from fellow long haulers, covering everything from chances of recovery two years in, to how to pace effectively and avoid crashes.
This is an edited version of the talk - the full recording is available here:
• Q&A on Long Covid with...
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Before I caught Covid in March 2020 I was a filmmaker. I’m not well enough to go back to work yet (shoot days are brutal), but I’ve decided to indulge my passion by breaking down the hottest recent films and TV shows (from an insider’s perspective with 20 years in the industry) to describe exactly how they work. Sound interesting? Then subscribe to my second channel! ( @thescriptflip )
Here are some links:
5 Reasons Why Top Gun Maverick Crushes the Original | Film Director Breaks it Down:
• 5 Reasons Why Top Gun ...
Why Succession Shouldn't Work at All, But is Somehow the Best Show on TV:
• Succession Shouldn't W...
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The Long Covid Handbook (Oct 2022), by Gez Medinger and Professor Danny Altmann and published by Penguin Books is now available in paperback, ebook and audiobook. A singular resource that brings together everything patients, clinicians and academics have learnt about the condition since early 2020, as well as lessons from sufferers and researchers of ME/CFS and other chronic conditions. It offers world leading expert advice on understanding, managing and treating Long Covid. The Long Covid Handbook is available from the following links:
US: a.co/d/0gvkJCU
UK: amzn.eu/d/9KjurGb
CONTENTS:
0:39 Patient Led Research
5:45 The Latest Research for LC
8:50 Viral Persistence
12:50 Getting the Best Care
17:25 Pacing - Art or Science?
21:30 Purpose of The LC Handbook
23:50 Conflict Writing The Book
27:00 Your Questions Answered
NAD information was genuinely interesting. In fairness, I've probably heard this in one of your previous videos but my memory is a bit of a scrambled egg these days. I hope you get recognition for your contributions to this community one day.
Thanks Jag!
I think this man saved my life. I had crippling long covid...no help, medical gaslighting, ..found his channel and turned things around. It's been over a year now and even though not yet 100%, I'm functional now, relatively healthy and looking forward to regaining optimal levels of health and energy soon. Thank you Gez.
So happy to hear about your recovery Isis!
That's amazing!! What was your symptoms. And what have you done to help you??
A point of interest for me is that on the NHS website all the symptoms of Long Covid mirror the ones for Pernicious Anaemia (PA). I have PA and since having long covid, I have felt that all my PA symptoms which were being kept in check with 8 weekly B12 injections have been amplified. The impact of this has been devastating for my capacity to do my job. Currently on sickness leave... again.
Thank you, so much!. Got it Feb 2020. Still struggling (a lot). Not MD but spent 41 yrs scalpel in hand. I loved the stress/challenge. Life long adrenaline junkie. Now it's a curse. Using a health metric thing and working on improving my hrv has been a little help. Thank you understanding what's wrong with me really helps.
ArtemiC Rescue is used for Covid Short, and ArtemiC Support is used for Covid Long. Ordered online on the shop and shipped worldwide.🌍🌎🌎
@@CBEACH Thank you again! I’m am looking into this now! Is it expensive? I wonder if it would work better than Ivermectin? Thanks! ❤️
@@leannshort2211 Its much less expensive than getting a covid complication. And its good with no side effects.
@@CBEACH What is it made of?
@@grovermartin6874 look it up - Artemic shop $88
Such a helpful set of thoughts on how to get a GP to help, because many of us are struggling to find a way to get the help we need!
Be annoying, ask too many questions. Track as much as you can, heart rate tracking for the 10 minute stand tests. If you have been tracking step counts for years, showing months of 10,000+ averages then dropping down to 2000. Keep trying things, and make notes about what changes. Use the idea of "follow the science", can you prove it's all in my head? (they were frustrated by that one)
I remember somebody mentioning that the people who know the most about weird pediatric illnesses are the children's mothers.
I just keep looking at different Dr's, but I also educated my regular GP, when I gave him links to articles and study, he would look at the information and try things they recommend.
@@kathleenb2948 ArtemiC Rescue is used for Covid Short, and ArtemiC Support is used for Covid Long. Ordered online on the shop and shipped worldwide.🌍🌎🌎
you have low atp levels your idiot doctor doesnot know what atp is ,take 2 x 1000mg caps liposomal vit c for 12 hours a day do that each day until all symptoms are gone ,high dose liposomal vit c raises the atp level the immune system calms down this is the end of long covid or any post viral condition,doctors are useless
@@kathleenb2948 That's wonderful to hear! Were you a patient of his for a long time before Covid-19, so he had a before-and-after experience of you to compare your current condition?
Every day I have to listen to my head. When it says to stop being stimulated. It's a good time to go and lie down and have a rest, sleep, nap. Otherwise your body starts fizzing.
I work as a investment manager and am lucky that i can still work with long Covid. I've been to three investment conferences in the past 2 weeks and all of them mentioned how long Covid is now affecting the labour market and overall economy both in the UK and US. The lack of workers is now putting pressure on companies to pay higher salaries and is contributing to the already damaged economy off the back of Covid and Ukraine. I definitely think that over the next few months central banks and governments will start to take notice of this and realise how important it is to get millions of people back into the workforce.
Agree - this is only going to be a bigger and bigger issue going forwards
Sami, I totally agree with you. I work in the technology sector and can luckily pace myself and work remotely, but I’m sensing that many of my colleagues who work with clients don’t have that choice and when presented with severe long covid symptoms just have to step back. I think there’s a potential tsunami of labour challenges ahead with so many people feeling so debilitated…
@@sueholly-rodway8842 ArtemiC Rescue is used for Covid Short, and ArtemiC Support is used for Covid Long. Ordered online on the shop and shipped worldwide.🌍🌎🌎
@Sami it seems as though LC is a result of nervous system injury/likely secondary to spike pro- not sure if treatment can be found..
The problem is that people like myself with long covid, who worked in manual labour type jobs can no longer do the job we've been doing for most of our lives. I lost my job (that I hoped would see me to retirement) in February, I have since started college but even this is a major challenge and I'm finding it hard to cope with even this comparatively easy level of activity. I'd love to be part of the workforce again but I know that I couldn't cope with a job and the requirements and responsibilities that it entails, even though we are now struggling to make ends meet.
A great reminder that what I experience every day is normal in long covid world! Have received some 'psychosomatic' comments recently, so that was timely, thank you. After your comment about HBOT, I thought I'd treat myself and look up some local providers. On reading about side-effects it said that one possible effect is that your long distance sight improves for a while. Oddly, I had a covid booster today and afterwards I felt quite 'refreshed' as I remember from the first two vaccines. I also noticed that my eyesight had improved. I convinced myself that it must be psychosomatic. Now I'm not so sure. Only anecdotal, but I found that very interesting, and hoping this latest vaccine might clear away some viral residue. Though it seems to have irritated my shingles. As you say, it's such a complicated picture. Very much looking forward to your book.
There is a phenomena that can happen after a covid infection or a covid vaccine where long covid can reduce for a while. Dr Been talked about anti antibodies back in Jan or Feb 2022, with William Murphy. I have experienced this effect for about 1 month at my first vaccine dose.
Thank you Andrea! Wishing you the best in your recovery :)
Gez, you are a treasure for this community and a total star for all you have done and continue to do.
My cortisol is in my boots, and was prior to this beast that is LC; this is the first time I’ve heard there might be a link.
Would love to see an interview with Dr. Phillip Bull on your channel! Thank you for mentioning CTDs.
It’s coming!!
@@RUNDMC1 Awesome. Your channel has been an absolute godsend--I recommend it to those struggling frequently. Thank you.
@@vandraws my pleasure Van!
I knew back in March 2020 that myself a life time member of the Asthma community that I was lible to get Covid-19 quickly. And I was right. My first infection was 17th March 2020. I've now had it 3 times. December 2020. And September 2022. I knew I had Long covid before talking to a Thoracics Doctor some 7 or 8 months after first infection. I made a chart of the symptoms I was getting. By 7 or 8 months in I had about 30 symptoms. I'm not medical trained but I could see I was going to be high risk.
30 months Long Covid
I'm very grateful for my new GP who has been looking after me for the last 14 months. He has been brilliant. Sadly I now have to find another doctor. Due to house move. He has been amazing and is always looking up now on Long Covid issue. He is very switched on.
I listen more now to my heart (now have heart issue due to Covid-19). And I listen to my head. And I listen to my stomach. These 3 things regulate what I can and can't do now.
ArtemiC Rescue is used for Covid Short, and ArtemiC Support is used for Covid Long. Ordered online on the shop and shipped worldwide.🤑🤑🤑
I have long covid for 5 months now..and i have problems with nervesystem and problems with everthing and cant sleep.and the dont find nothing at the docktor...and i feel that om never getting better..
Hi Gez, I am absolutely positive that you can recover from long covid. I had post viral fatigue in the mid 90's, I recovered in 9 months. Didn't know how at the time but armed with current knowledge I can kind of see how it happened. I had ME/CFS early this century, with much trial and error and research I recovered (to the level where I could win gym competitions), protocols were very similar to your suggestions but of course research has come a long way in the last 15 years. I have had long covid since May, had covid for 2 weeks, felt okish, went back to the gym, 2 weeks later wallop. Have you tried AMPK activators? My first degree is physiology so of course I delve into the detail. I'm pretty sure any AMPK disregulation is not the primary cause but it does seem to be a consequence. Since I started a few AMPK activators I have definitely improved, you recommend quercetin which is an AMPK activator, I also take berberine and resveratrol. If there is anything at all I can do to help let me know. I have done a lot of my own research, like you if I pace things properly I can research. Before long covid I was about 90% through a personal trainer course, I intend to finish and be a post LC PT.
This was amazing...I'd like to send this to my GP!
Thank you Heidi!
Any thoughts on a woman's menstrual cycle activating long covid flairs?
Yes - I’ve made films on it! Check out the videos on the channel
you have an amazing head of hair. lol
It’s been cut since this!
The pharmaceutical company's should be sued, this should be pursued, you need a very good solicitor! They need to pay and the will!!! They are being sued in America i think!❤❤❤❤
Após a morte , que filme merda
34 months now. One thing I can add is that stress is the highest trigger by far. The intensity of stress level seems to be directly correlated to the intensity of the relapse.
Both direct and immediate, in my experience.
Defo stress or to much exertion
Totally agree my biggest stresser visits too the gp. I’ve never met such arrogance and delusional GPs all in one practice in my entire life. Something much be done regarding there gaslighting. How I didn’t just give in too it all is beyond me. Thanks too people like you I suppose speaking out for us all. ❤
Yep, avoid any stress or drama as much as possible
I don’t know for sure if it helps, but I’ve been taking CBD oil/drinks/leaves to see if helps take the edge off the stress levels, which seem to spike way more quickly than they did before I had long covid…
I just found this channel today, and I could cry it is so validating! I had Covid in March 2020, and never fully got back to my normal, very active life(biking, hiking, lifting, running, active job), and despite getting the vaccine, JJ, got Covid again in Dec 2021. I have been suffering since, and been going to Doctors, cardiologist, pulmonologist, noone can pinpoint why I have the symptoms I have , and I feel like I am losing my mind and not being believed. This is making me finally feel less alone.
You’re absolutely not alone!
You have more company than ever… I am so grateful for ages and his research. Answers and validation, helpful RX.
Welcome April!!! We've been with Gez over 3 years now! I'm March 2020 also....You hang in there! You have found your people! And we are so glad you are here ❤️
my boyfriend and I got it in March 2020, its been confirmed ! that was the worst month, the worst strain, was were sure we were going to die. we were bed ridden for 2 years, like you, we reapsed . FINALLY, after spending thousands on supplements, MMS did it, 1 month 8 times a day, 2-3 drops....we also used zeolite - our lives are back to normal. that is what we did......due to the latest discovery that micro clots are found in all covid patients we have added lumbrokinase, dan shen, curcuma....
Gez, you are simply wonderful. When I look way back to your "what the hell is going on?" video and now listen to you here, you have accomplished so much and pushed the bar so far ahead when it comes to understanding this syndrome. Give yourself plenty of pats of the back. Another thought that crossed my mind was that I bet that you crashed after this high energy, intensive interview. So glad you're out there fighting the fight and please continue to take care of yourself.
Thank you Erika - and yes, the interview took 70 minutes in total (this is edited). I def had to go and lie down for a long rest afterwards!
@@RUNDMC1 💛
@@vyara7777 long covid can be healed in hours by safely raising the atp level
@@Beekind799 really?
@@sadnagoso456 yes ,i have healed 2 this morning ,a lady and a man ,not partners the lady has had long covid for 20 months she is an md doctor she was healed in 40 minutes the immune system calmed right down end of long covid ,i gave her 4 x1000mg caps lipsomal vit c about 40 minutes later ,she said ,my god i am better,i gave her 10 more to take 2 hourly to make certain its gone ,she wont tell her patients she will treat the symptoms of low atp levels with big pharma drugs that can never raise the atp ,the man has had long covid for 15 months he also had cfs for 15 years ,i gave him 4 x 1000mg caps lipsomal vit c approx 40minutes later ,he started to cry ,his immune system has been on fire for 15 years it took the high dose of lipsomal vit c about 40 m inutes to raise the atp level this calms the immune system right down and the energy levels rise ,itsa kinda magic ,all post viral conditions are caused by low atp levels and are easily healed in hours i get my lipsomal vit c off ebay i get 360 liposoaml vit c jels for 19 quid on ebay it says on the package that they are tablets but when they come they are high tech lipsomal vit c jels an excellent product at an excellent price ,donot have mrna vaccines they can kill you and you cannot stop it ,my mate died yesterday ,he was warned
Thank you so so much @Gez, for just being there and for everything you’re driving. I’ve preordered your book, and honestly you are saving my sanity!
So glad to see you again, Gez! You are giving us hope, everytime you post something new. P.S.: I like your hair!😊
Haha, thank you! I’ve had it all cut off since this recording though 🤣
Thanks for all your good work Gez Medinger.
Thank you!
Pacing has been the most important and yet most difficult. I find that keeping a journal helps me to focus on improvement versus what I cant and wish I could do.
Having worked more than 2 decades in cardiac and pulmonary rehabilitation, energy conservation (aka pacing) is critical to managing life when struggling with LC as it is with folks that have chronic cardio-pulmonary cond. The internal (family and friends) and external support (professional help) one has can really make a difference as it is with many other chronic and debilitating conditions, for the most part.
I’ve had LC since Jan 2022 and have found the most success with acupuncture, breath work (flourish app) and intermittent fasting (16hrs per day). I have had to avoid all stress, alcohol and crappy food, but I finally feel like I am beginning to get better!!! I had all sorts of weird symptoms at the start but everything is improving now. Just wanted to get some positive news out there!
ArtemiC Rescue is used for Covid Short, and ArtemiC Support is used for Covid Long. Ordered online on the shop and shipped worldwide.🌍🌎🌎
Hi Carolyn, would you like to connect? Heartening to hear your success. I've experienced this since April this year and gradually discovering what works too. Be good to share with others 😊
Great to hear it Carolyn!
@Carolyn same here LC since January getting better slowly now, wondering if we will ever fully recover..
@@vanjacalantropo For long covid you could try ArtemiC Support drops.
TWO YEARS ON! Yes.
Had worked from home an extra 7 months. Back to the office...I can barely do the 5 day week.
IF I get 9 hrs of sleep and extra on weekends I could almost feel normal, EXCEPT with exertion: I still hit that SHARP chest pain.
I did have auto-immune conditions prior to 2020, but WAS active, age 58. Lungs were perfectly healthy, but no more.
Cognitive impairment, low oxygen, weakness, chest pain, fatigue, always hot.
Oh, and I was sick 2 weeks in March 2020--so no Covid test even available yet to prove it to my employer. Ugh.
Very few resources in Michigan.
Thanks for the info!
Gabriella, were there any medical resources anywhere in March 2020? Weren't they still calling it SARS coronavirus-2 then?
I kept trying to get tested when the first test came out, but the fact that I did not have a fever at the time caused the testers to reject me. So...
Lucky us. It isn't easy, being the goose at the head of the V, if you've ever noticed how migratory geese fly. Fortunately for us all, Gez Medinger has been transforming his experiences and sharing them with us!
Thank you, Gez! You have a good analytical mind, and trust in your own observations. And stand up to the people who live in tiny prefabricated boxes intellectually! We are in your debt.
Having long covid has made me a better doctor for myself. I always have believed doctors and insurance are only one degree separated from their origins of fraud and extortion. Prescribing for my self mandatory rest and relaxation at a moments notice is often seen as rude, lazy and unacceptable behavior in public.
all post viral conditions are caused by low atp levels ,take 2 x 1000mg caps lipsomal vit c every hour for 12 hours aday do this each day until all symptoms are gone,high dose liposomal vit c gets into the cell fast and super charges the cell mitochondrias production of atp ,you cannot overdose on high doses of liposomal vit c ,it doesnot take long to raise the atp level and the immune system calms down ,the low atp levels has pulled down all your levels you need to takea nutritional supplement protocol ,when you first got virus symptoms all you had to do was take 2 x 1000mg caps liposomal vit c every hour until all the symptoms are gone ,no long covid
Gez, many many thanks to you for your work and working while ill! You are so inspiring. Can't thank you enough. March2020
Thank you Dawn!
I'm very hopeful the segment Chris Cuomo does on Long Covid on his show tonight at 8pm on News Nation (during a mid term election season) gets a lot of attention. He said last night he's interviewing a prominent researcher in the field of LC but did not say who?? It would be great if it were Putrino, Proal, YOU...
Re: Pacing - Long covid/EBV/Fibro person here who started twice a week very slow-going PT in Oct. A big part of "Pacing" for me is the recognition of my total enegy output used whether its grocery shoppping or having lunch with a friend etc. I had disregard my energy use during these types of social events and when I crashed would become depressed and discouraged. Now I think of it as my "Social PT" and give my energy output its due, in the same way I do with physical PT. It gives me more GRACE for my limited ability at this moment in time.
So glad I'm still in the control group.
I never got Covid19, and I'm not jabbed. My heart DOES go out to those of you who can't seem to shake this damned thing!
Long covid for 8 months. Did a water fast for 10 days and 1 week after my normal life is back! It was really hard but so worth it. Tried the pacing, etc also but this just gave my life back in 10 days. Did a 3 day fast couple months before but that did not do it. Read about some people doing a longer fast helping and just went for it.
What symptoms did you have before the fast? I would like to try this but I get tremors now when I don’t eat enough and I’m scared of passing out due to dysautonomia
How do you fast and what symptoms did u have
How are you feeling these days Gez? Your channel has been a godsend for me since getting rinsed by covid in March
I’m getting by! So sorry to hear you’ve been suffering too - it really does rinse you, excellent term.
ArtemiC Rescue is used for Covid Short, and ArtemiC Support is used for Covid Long. Ordered online on the shop and shipped worldwide.🌍🌎🌎
Thanks Mr. Medinger,
I find your information shared here far more what i have been searching for since realizing i have been experiencing Long Haul for 12 Months. I do hold out hope to recover. Mainly wanting to know that people ARE recovering eventually.
Hey, Gez! Not trying to be a fan girl or anything but I just wanted to say thanks and tell you how grateful I am for your channel and the work you do!!! When I found your content I was 70% bed-bound, no hope, horrible doctor who was gaslighting the hell out of me, seizures, pain, POTs, cognitive dysfunction that felt like dementia- all the usual suspects. The first major changes I made were adding an H1 and H2 blocker. From there I got Dr Patterson's testing, fired my horrible doctor, found one that would work with the Patterson Protocols and try additional meds that she or I have found through your channel and those you've interviewed. I'm at about 65-70‰ of where I was pre COVID. Today I started my 1st day of Paxlovid to see if viral persistence is the last step in getting my life back. It got pretty dark in early days but with the information I've found here I've been able to advocate for myself and find hope that there is life worth living after all this.
Hi Kinsey - thanks so much for your message. I’m so glad to hear you’ve managed to advocate for yourself and make a positive difference in your care. You’re probably doing a bit better than me if you’re close to 70% of pre-covid!
Well done - keep fighting!
Sounds great. Where can one find out more about the Patterson Protocol? I'll look into it and give it a shot
If you don't mind me asking, which H1 and H2 blockers helped? How long have you been with LC? I'm currently 8 months.
@@jessemendoza2991 Personally I’m on fexofenadine and famotidine. Don’t know about the OP!
Greatly appreciate each of your videos and all the effort taken to provide the community with insight and information! Thank you for all you do!
Thanks Brian!
I can totally relate to the unacception of having this total reset of my body!!!:((( What I was able to accomplish in December of 2021 is the total opposite of that now! It's very frustrating and depressing to have had my whole life change in just one month due to Covid infection and Long Covid!! I thought that when I recovered in two weeks from the infection that things would improve and I would go back to normal!! It's very devastating mentally to wake up each day not knowing what to expect 😢 I truly Thank God that I did survive that 🙏❤ The Long Covid took me into another door of terror,, since there was a period of time that I truly thought that I wasn't going to make it through, that is how bad it got!! It's a frightening experience to say the least!! I am not feeling that way now but it was a grueling 9 months!!:(( What scares me now is that Idk the extent of damage that's been done to my body and when will it end!!! It has change me mentally and physically 😢 I don't personally know anyone that's going through this aside from my fellow Long Haulers on the internet!! Doctors keep saying that everyone's body is different and sending me for tests which leads to further testing!! I'm praying for myself and all the others going through this nightmare 🙏🙏❤ Without my LHC connections I would be lost!! Without God I wouldn't even be here 🙏❤ Thank you for bringing this into the light bc this is so controversial and unknown and mysterious that it is a very hidden subject otherwise!!
@Dolores DeMar I am experiencing all this from my 2nd jab. Never had Covid
@@donnazukadley7300 oh my goodness,, that's awful 😢 I'm really sorry to hear this and I pray that you recover very soon!! 🙏🙏🙏❤
@@donnazukadley7300 Interesting. I got the first vaccine as soon as it was available.
My body's response was remarkable. I fell deeply asleep in the chair after getting the shot. When awakened after the 15 minutes, I was so exhausted I could get out to my car only by holding onto the wall. I decided to "rest" in my car before driving home. Two hours later the cold weather woke me. I drove for a while, pulling off the highway twice to sleep. My 25-minute drive took more than two hours. I got home, locked the door, and sat down on the edge of my bed to catch my breath. I woke up 20 HOURS later, still wearing my coat.
I felt as if I'd been given a new lease on life. My energy surged back, my mind and spirit were clear, nothing hurt. That surge gradually waned after about three months.
I've read that people who had already had Covid-19 sometimes had a strong positive response, so deduced that, despite not having been permitted to be tested [no fever at that time], I had had a mild case.
It's been a slippery slope since. Always biting off more than I could chew, until I'm afraid to move too far from my bed. Gez' investigation and conclusions have been of great value and comfort. Niacin, but mostly his benediction to REST when needed!
Sounds like there's more to learn.
Vicious loops from hell!!.....😂...Thank you Gez, been trying to explain this to my husband. Bless his heart. 😆😅 Gonna share this with him! Thank you Gez as always!!!
PACE.PACE.PACE.
Thanks Kelly!
Long-term Covid has destroyed the quality of my life.
Gez only spoke briefly about his trip to the alps and how it helped him. In that video he says he felt better after his time in the mountains - and indeed arranged another weekend trip soon after. He also mentioned that he'd heard of other people who benefited from going to the mountains or to the seaside. Because of his video (and also being aware that it used to be normal for people to convalesce at the seaside) I made the significant decision to move from London to a warmer location. I don't do well in the cold and wet and feel better in the sun. After moving I felt much better in just 3 weeks, and my brain fog lifted and I was able to think clearly and productively for the first time in years. (I had MECFS for 2 years before I got Long Covid in 2020).
I read an article (sorry I can't find it) about the health benefits of fresh air and how being outside has anti bacterial and anti viral properties (due in part to chemicals released from plants and trees). I also believe that moving from living alone (being alone is not a safe place in the wild) to living with some friends (safety in community) had an impact and allowed me to feel safe, comfortable and relaxed. This switches the body out of fight flight and freeze (where the immune system and the repair systems are switched off/downregulated) and into the rest, digest and repair systems that allow us to heal. I notice a sense of helplessness in many LC people and a belief that a pill is the only solution to this illness, and a complete denial of the body's ability to heal (look at the story of Dr Terry Wahls for inspiration. She has multiple sclerosis and at one point was completely paralysed yet recovered significant abilities and now lives a very full life. She still has MS but her level of function is very high, she can walk, talk, cycle and continue to work). I'm not dismissing medication - I've just started on Ivabradine - but it's not the only solution. I also walk, do breathwork and meditation, monitor my nutrition closely and include vegetables, good quality food, herbs and spices, clean filtered water and vitamin, mineral and herbal supplements. Pacing is essential, I overdid things in July and knocked myself sideways for 6 weeks - and now I'm in bed as soon as I feel tired. Thanks Gez for all your work on our behalf. Can someone please nominate you for a Knighthood?
My symptoms disappeared during two holidays in very hot climates. Returned as soon as I came home!
@@tavernier9804 long covid is healed in hours by safely raising the atp level ,message me i will type it out
Sorry I missed this comment until now! I’m so happy to hear how well this worked out for you - hopefully the improvements can be sustained! :)
i think this is all to do with oxygen intake or chemical intake. Hotter climates such as Spain and Italy ( outside Cities) usually have less pollution. I go to Spain by the coast and Sicily also by the coast, its not the sun as I've been in less hot months and sometimes feel i no longer have me/cfs although i know i do as i push it sometimes and end up back in bed. Its the air. We are so chemical sensitive that we feel the pollution in the UK. I feel heavier here. you will also find you can drink a glass of wine without effect, again your body has less chemicals so it can tolerate the alcohol chemical. The mountains are possibly less oxygenated depending how high, but the air will be PURE. I think that's the answer and wonder if any oxygen therapy would help us. Ive packed in work now my career down the pan and considering moving to a better pollution free environment.
Temperature didn’t help me, but sunshine yes. In Iceland (hardly tropical) I improved; it had lots more sunshine than home. I’ve wondered if it’s due to the same energy benefits seen with infrared therapy.
another amazing video. viral persistence I think is red herring. most symptoms point to hypersensitivity, and alterations to brain chemistry. I think an insult occurs to the central nervous system. as well as other symptoms this seems to alter the threshold at which immune activation occurs. ebv reactivation I think is just the immune system triggering abnormally to a dormant virus. Mcas is another hypersensibity symptom. an IGE level blood test might reveal if this is a problem for you. I believe high level oxidative morbid stress combined with a virus triggers an insult. my best guess is basal ganglia region of the brain. establishing good sleep should be your number 1 priority. lowering stress and anxiety and reducing the abnormal response is critical, meditation, therapy, lifestyle changes, anxilotic medication (SSRI and benzo on demand can help). things which promote a healthy brain, walking, nature, friendship, hobby's. good nutrition as a general health thing... the hardest thing about this condition is the altered mental and emotional state. in order for the fatigued state to improve you have to reduce the state of anxiety that comes with the condition.
Yes relapses are brutal .. currently 8 weeks into one !
Late March 2020. Hit hard with something, no tests available in my area. 5’3” 126 lbs. very active, low A1C 4.2. Outdoor allergies but nothing really serious. Still fighting fatigue, hypersensitivity to noise & light, cough+breathing issues. I’ve tried to be more deliberate @supplements, spending time outdoors when weather permits, & giving myself permission to stay in bed when I need to. I’ve always been extremely active with multiple projects on board at one time. I’ve come to terms with less on my plate somewhat. I try to be happy doing what I can when I can, not easy, but I’ve found not pressuring myself is key.
Good questions and great summery of where we’re at
On Pacing…I find perceived exertion approach (staying between 1-2 on a scale of 1 to 10) to be more helpful in avoiding symptoms/crashes. My heart rate is so variable that using that as a guide was not as effective. On acceptance…Perhaps thinking of it as acceptance of where I am now but always maintaining a clear vision of where I want to be in the future has helped to keep my mind in a less hyper vigilant place. Thank you so much for this update! Your videos have been extremely helpful. There’s no getting away from it, is there? Pushing yourself to do more is counterproductive for sure. All the old crutches like caffeine for instance, I think of as borrowed energy - and I’m in an energy deficit to begin with or so it seems. Wishing everyone well on their journey!
all post viral conditions can be healed in a day ,message me it will cost you 20 quid i healed a long covid patient today ,it only took a couple of hours and the immune system calmed down thats the end of any post viral condition ,22 months of hell ended in a couple of hours he has spent over 70000quid on useless protocols ,20 quid to heal any post viral condition,big pharma dont like me very much,i donot lose any sleep over that
Do you find Caffenine makes you worse? I'm only 26 and been a Personal trainer for years. I've still been going to the gym but it's just not the same anymore. Pacing is so hard as one day is fine, then 4 days later you can be wiped!!
Do you find Caffenine makes you worse? I'm only 26 and been a Personal trainer for years. I've still been going to the gym but it's just not the same anymore. Pacing is so hard as one day is fine, then 4 days later you can be wiped!!
@@jayroberts4900 Caffeine and alcohol both make me worse, personally.. Because it increases my heart rate and makes me feel "more anxious" even though I'm mentally okay.
@@jayroberts4900, Just to share some more info, I turned 33 in August. I used to hike dogs 5 days a week on steep trails in Utah and would cover anywhere from 4-6 miles a day. Now? I'm lucky if I can walk a mile yet alllllll of my labwork says I'm a prime specimen.. I was one of the those people who were bleaching everything before it entered my home! (Mail, groceries..) I can only assume I picked it up at the grocery store, as I was completely avoiding every other social aspect of my life and hiding at home. Had a mild case of covid Dec. 2020. Then all of my long covid symptoms rolled in A MONTH LATER with my first period, post covid.. 😭 What's even crazier, is my health didn't get severe until October of this year, 2022. It started rapidly declining in July of 2022..
Absolutely amazing video. Gez also seems to be in better health versus a few months ago. For me, I found that monosodium glutamate was keeping my autonomic nervous system stuck in sympathetic mode, also known as fight or flight. So, it made me have tachycardia and bad sleep. Avoiding msg has cut in half my long covid symptoms, along with the fatigue. It is still there, but at a much lower degree. Good news!
ArtemiC Rescue is used for Covid Short, and ArtemiC Support is used for Covid Long. Ordered online on the shop and shipped worldwide.🌍🌎🌎
Great to hear you’re doing better Alexandre!
I missed your videos and the support, hope and information they bring. Thank you and take care!
This is a validating video. It’s hard to find support in the US for post covid symptoms. My Dr. told me last week, there is no protocol for post Covid symptoms, because once they find something that helps, they later find it is not helpful.
take 2 x 1000mg caps liposomal vit c every hour until all symptoms are gone,long covid is caused by low atp levels ,high dose liposomal vit c gets into the cell fast and super charges the cell mitochondrias production of atp thats the end of any post viral condition in hours ,of cpourse the idiot doctor in charge of your jealth doesnot know any of this ,they area real joke
Thanks Gez for everything you've done so far for the LC cause. Great Q&A, esp. the pacing that helped me a lot personally in my 28 months LC. Can't wait for the book! Must have been fatigue-inducing to record the audiobook, much appreciated that you're taking the time to do it. I was excited to take part in the survey, so I could finally report that I feel 'fixed' (90%) - but I just tested + again this week! The March 2020 illness was acute (no hospital but 7-day 39-41 degree fever, coughing up blood clots, palpitations etc). After the initial illness, my main 2-year-long issue was O2 saturation (it would often drop at 85 randomly), tachycardia, fatigue and random allergies (food + skin). However this finally cleared this Summer, and last month I went for a short hike (slowly!) in the Alps and no relapse, so I thought that I could maybe go back to running next year. But I caught covid last weekend, so I was fearing the worst (I'm not v-xxd).
*However* I got only 4 days of very light symptoms (slight temperature, sore throat for 2 days, fatigue for 1 day, congested nose for 4 days). I also only tested + on 3 consecutive days, then negative again. I felt fine the whole time. This is a huge surprise, and I'm relieved. However I will still continue with my protocol (diet, vit C/D/Zink/NAC/Quercetin) and will drop way back down in terms of pacing. I had planned to start low-level training (walks) this Autumn before going back to running in February. But now I'll add another 3 months to my 'new' recovery time before I even attempt to go walking. But I thought I'd share as for now, I'm still considering myself 'almost recovered' (90%) compared to March 2020: I can do 40m meetings without O2 drops, I can sing without fainting, I can work for 6h/day with no fatigue. All the best to all of you who are still struggling, I'm sending good vibes. (PS I live at 1,000m altitude and wonder whether that does help recovery).
Thank you for the wonderful comment Julie and so glad to hear you’re on the road to recovery!
@@RUNDMC1 I particularly liked the end of the Q&A where you said that a lot of us have had to accept a different lifestyle. It's all about how far we've come, not how far there's still to go. Just 10 months ago I was fully accepting that I might never run again, but now I think it's possible to envisage it for next year (albeit maybe not ultra mountain stuff), and I'll "enjoy" the next 3 months of pacing rather than feeling frustrated from this new infection. It's been so long, I might as well wait another 3 months.
@@juliefreemankummer6686 Exactly :)
Great attitude@@juliefreemankummer6686, love it! Looking at it from a positive angle. It's so true that it's affected us for so long -- what's another 3 months (if it will help us from setting us back tenfold)!?
this is one of the best videos I have seen on lc and I watch/read everything
I’m glad you found it helpful!
Gez, way-ay back, when you first were putting out videos of Long Covid, I referred you to the similarities of ME/CFS and the activation of the Epstien/Bar Virus to LC. I'm glad you found Carolyn Sheffield and the ME/Fibromyalgic Group.
consider this. the EBV is not reactivating. But your body is mounting an immune response to it as if it were a threat (when it isnt, as its typically dorminant). Understanding the difference between the two is critical to understanding ME CFS. For those with ME CFS that have had it for say 20 years. If the EBV was "reactivating" and attacking the body periodically they would be dead. Chronic viral infection was ruled out as the root cause of ME CFS in the late 80's. If you examine the blood or organs of someone showing high titres of antigens to EBV you will never actually find the virus, only the antigens. I also think if it was viral pathology the distribution of the illness would be closer to 50/50 not 70/30. (women to men). interesting chronic anxiety is also distributed 70/30 women to men, suggesting this is more a central nervous system issue.
Great stuff as always Gez! Sorry your sister has visual issues, I had the same and got great help from my fantastic optician. There is some long covid research here in Sweden into visual damage and she knew one of the researcher who guided her. Apparently about 10% get hit by visual/eye problems and they have developed a protocol for that. Perhaps a future topic on the channel?
I myself got essentially well again on day 10 after first shoot, after 18 month of hell. Took nearly a year to fully come back but now Im in marathon shape again!
Fantastic to hear of your recovery Jonas, great news!
How are her visual symptoms related??
I think I have those visual issues too. It seems like I'm somewhat shortsighted now but it also varies from day to day. What should I tell my eye doctor and where can I find the research ?
@@rubenkrieger3803 That's what's been going on with my eyes, too! One day I can drive better without glasses; the next day, I need them to walk across the room easily!
What the heck is it?
Thank you so much! Your channel has been a huge help to me since I got covid in August 2020. I tried to return to full-time work this year and had to quit after 6 months. I’m now trying to figure out pacing all over again. I’m also looking forward to you talking about connective tissue disorders and long covid. I’ve always been very bendy, but lately my physical therapist has been saying I should look into an EDS diagnosis. My joint issues have gotten so much worse post-covid.
You’re not the only one to have joint issues post Covid!
Thank you, Gez! Your time, efforts, interest in this is really fantastic! I've been following your channel for coming up to 2 years now ( this November ) and I personally want to thank you for all of your efforts. It's people like you who will truly help us long haulers. I hope you are feeling decent now, most days, and please continue to heal even more. Hoping the same for everyone else that is affected by this devil disease. Cheers! Looking forward to your upcoming videos and research.
That’s so kind of you - thank you so much!
I have horrible fatigue for 14 months..I wonder though if there are millions just in the US alone we're are they..I know no one personally..and even Survivor Corps has only 200,000 which is alot but not close to millions
Hi Gez, I'm 26. Had covid twice.
Ended up with a bi lateral PE from the second Covid (or so they think).I'm currently on Apixoban! It's hard as I'm a personal trainer by trade and a fairly big guy. 6'1 at 16 and a half stone. I've still managed to 'body build'. never touched any form of steroids. However since, I'm no way near the same. I find my immune system is just shot, i pick up illness much more now. Also, experience muscle twitch's all over my body? legs, arms, behind my eye and just all over, do you have any idea what this is?
Also, in regards of the vaccine. Can I have this given I had the clot? Does the vaccine help LC?
Hi Jay - so sorry to hear about the PE. Hope you’ve recovered OK from that? Your muscle twitching is not uncommon - one of the many possible neurological symptoms.
As for the vaccine - personally I would stay well away from it with your clot history! Will be making a film on the vaccine choice for long haulers imminently.
I've battled with fatigue and circulation issues since getting covid in late 2020. Luckily I can still work but it's a battle of willpower having to do everything whilst feeling fatigued all the time, particularly in mornings and evenings. The advice from GP was really not helpful, essentially that I go into self imposed convalescence, which is not possible as I am single, have to work to survive (physical job where I stand 90% of the time), can't move back in with parents. I'm trying to finish my training as a stonemason, I can't take time off every time I crash or have issues, very frustrating.
Ya man it's fucking horrible..shitty how the government is ingnoring us
ArtemiC Rescue is used for Covid Short, and ArtemiC Support is used for Covid Long. Ordered online on the shop and shipped worldwide.
I feel my physical labor job helped me recover from my POTS symptoms more quickly than I would have otherwise, though it was very hard at first it did get better over time. When I realized that long covid was an example of tension myositis syndrome and started watching recovery videos instead of visiting long covid message boards (which were keeping my subconscious in a terrified state) I rapidly recovered.
What circulation issues you have? I think I have something related to that
@@jhonybraavo Rush of blood amf faintness after climbing stairs, and certain kinds of heavy lifting where I am using my quadriceps muscles
I've only starting watching this, and I had that EXACT experience you described. My antibodies were negative and I was told I never had COVID. 2.5+ years later, I am told the same thing because my nucleocapsid antibodies were negative earlier this year. Of course they were! It's 2 years after the fact!!
I still do not have a LC diagnosis as the basis for everything else that is wrong with me.
Edit: Wearing oxygen 24/7 has been the best thing so far. It improved many of my symptoms to the point where I have functional times periods during most days as opposed to sleeping 16+ hours a day and hardly being able to put a coherent sentence together without tripping over my words.
Try doing a gut detox which helped me with improving my brain function. I still have a way to go myself but it brought lots of healing to my brain. Make certain to add a good quality pro and pre biotics with the gut detox. I bought my supplements from the NutriShop in Glendora, CA USA. They'll ship to you anywhere! Just tell.yhem you're looking for the long covid treatment.
ArtemiC Rescue is used for Covid Short, and ArtemiC Support is used for Covid Long. Ordered online on the shop and shipped worldwide.🌍🌎🌎
I never had Covid but I am experiencing all this after my 2nd jab
What works for covid diarrhoea which is causing peripheral neuropathy for me? I have started the antihistamines a week ago and changing my diet to low histamine foods.
I take vitamin D C E B and calcium and magnesium and zinc. Looking at NAC. Taking extra B12 as well.
It's been 1 month of ... diarrhoea and I'm struggling.
Any messages of hope?
It may also be autonomic as well as MCAS related. Often associated with overactive sympathetic NS - worth considering
I found a way to track my body for pacing and supplement efficacy. I have a galaxy watch (apple, Fitbit, Garmin seem to have the same functions) and have been data logging for the past 2 months. The biggest predictor seems to be the "stress" measurement. Which looks at heart rate variability. High stress = low HRV.
If I see too many peaks in the "stress" I know I will have issues the next, and the next few days I will see the levels come down with constant rest. When I take a new supplement or medicine, I can usually see a sustained change. If something makes thing worse I can see the change very quickly.
I also set up a custom exercise, so it takes a lot more heart rate measurements during the 10 minute stand test.
yes I also been tracking that stuff on my watch, if you got a constant o2 monitor built in, what does your readings do?
mine sometimes crashes down to the 70s but I don't always feel anything. weird
@@marky5493 if you look up the youtube channel "the qualified scientist" you will see that wrist O2 is not very accurate, so I turned it off to save power. In the years that I have been dealing with LC I have never had a finger O2 show less than 92%.
I was hoping the Blood pressure function on my watch would be useful, but it is very position dependent. Lift you wrist 1 inch and the reading is vastly different.
I was talking to a clinic that deals with POTS, and they confirmed that these are reasonable indicators, but if I go to them I need to pay, if I go through the healthcare system. It is covered by my province healthcare. The overlap between LC and POTS symptoms seems be pretty large.
@@matts4277 wow you are lucky man, I get lovely readings that vary from 100%to 70%all in the same day sometimes. It might be the watch, but I'm never sure so I just keep an eye on it but I don't use it as much if a reference.
I just sent my doctor Gez'snew book.
I would dearly love to submit my long-haul experience and information toward research, but have not yet found a venue or contact after extensive searching. Apparently am looking in all the wrong places, how does one get to the people who are interested and have the authority to pass it on? My primary care doc is very supportive, but I am the one sending her information.
It's m.e. in my opinion....
Please see the research of The open Medicine foundation...they've done much of the groundwork for long covid.
Their leader helped create the human genome project...they know their stuff
I feel like I'm the only one with what I have, neurological issues.
Twitching, pain in fingers and toes, trigeminal nerve stimulation, tinatus. I have none of the other stuff. I now believe I don't have Long Covid, just damage from the virus.
NHS has been so hard to deal with, waited 15 weeks for LC clinic, told me to eat veg and sleep...nice one.
I final convinced them to refer me to a LC Neurological Clinic with a form guest of yours.
I'm following the Walh Protocol for MS, I think it is helping but then eat well is everything forever.
Good luck everyone.
You’re not the only one with that Andrew!
@@RUNDMC1 appreciate the work you have put in. The loneliness of it is the worst part or lack of understanding.
Have faith in the future!
I have that too brother. A lot of pain on my scalp and eyes etc. super dizzy all the time and that’s the worst symptoms for me. Sometimes fatigue and pain
@ Andrew Jones
You are not alone! I’m 16 weeks post mild infection and now I’m left with arm weakness and horrific arm pain- like deep in my bones and horrible fatigue.. right when I feel like I’ve overcome it- it comes back… How long have you been dealing with LC? Hang in there and never lose hope!
@Gez, I hope this isn’t a stupid question, but I’ll ask anyway - what are you finding/hearing about alcohol intolerance and autonomic dysfunction? I find that my body reacts badly to even one glass of wine, but I so desperately wish I could have one to help me relax? Any science you’ve noticed on that?
Yes! Although it’s not so much the autonomic reaction that comes first but the MCAS one. Alcohol is an absolutely disastrous trigger for it.
Wow! I can't consume alcohol, too, but I never made the connection! I thought that intollerance could be from taking some supplements, like shilajit. Thank you for posting your experience! It might mean some liver damage from long covid...
@@RUNDMC1 oh wow…makes so much sense to me. Thank you!
By early 20s I could no longer drink alcohol , I'd only previously drank moderately but haven't now drunk alcohol for decades, haven't missed it all ...can have lots of fun socially without it . I swim ( and do sauna ) to relax which helps with EDS / hypermobility also. Haven't had covid , l have to admit. Find another relaxing activity as your body can no longer cope with alcohol ( alcohol causes systemic inflammation of major organs , also ...say goodbye to it once and for all; it's no longer your relaxing friend !)
Same here, tried drinking a beer for the 1st time in 8 months. Got through it felt symptoms come on slowly. But the next day was hell, just off of 1 beer. Sucks.
Has anyone compared the % who suffer from long Covid to the % who have been vaxx injured? The sx seem similar, I wonder if those with long Covid, had they received the vaxx, would’ve been negatively impacted and vice versa.
I noticed that when I fast I feel much better. I don't know if that's because during the fas the immune system is at rest. I tried to have just one meal at day in the evening so at least I can work during the day. I tried Vitamin B3, has anyone tried to use NAD+?
Your comment about the dichotomy of acceptance vs hope, awareness vs ignoring the symptoms made me laugh. So true! I struggle with this every day! But all the treatments you've posted about are slowly helping me, and I can't thank you enough. I hope you realise just how much you've done for so many of us. Like others, I hope the outside world recognises your incredible contributions soon too. Thank you. I hope you get featured in the new Guardian living with long COVID series!
That’s so kind of you - thank you!
Gez, you have mentioned doing breath work several times. When my dysautonomia is really bad (adrenaline rush, heart rate increase etc) I try belly breathing and humming breathing etc but often it doesn’t help! Thoughts on breathing techniques that might work better??
Depending on how ‘wound up’ you are - it might take up to an hour to settle the autonomic system. Some people can settle it with 5 mins of breathwork, but for others it might take much longer!
All of this! I would like to be included in the research. I've got a weird constellation of symptoms going on over two and a half years and this is answering so many of my questions that I wouldn't dare ask a physician at this point. Residual viral load makes perfect sense in my case. And hay fever. When I first came down with I took some herbs also and I think I over activated my immune system and now seems I have an autoimmune system because I am having continual allergic reactions to things I'm still trying to figure out the timing of but the struggle is real and the way my body is reacting is not pretty. I too was "active" before covid for a 63 year old, already disabled woman. But this lasting chronic fatigue is a bear and how you are describing pacing is exactly how I have been adapting. Thanks for this and sticking with it. Hope it pans out.
My allergies also became severe after each bout of Covid... it wasn't your herbs that caused it. Also my asthma has gotten a lot worse post Covid... NAD has helped with that. I'm the same age and the degeneration of my physical and mental ability is frightening. Hope you get better. Rest/sleep is the best treatment for the chronic fatigue.
What about reminens in the lungs, train it away or let time do it, heard different approach to this matter .!?
yes I still crash and get caught out when a walk I coped with last week...this week puts me back lots. it took such a long time to get my head around pacing. when a physio was telling me to add an extra lamppost to my walk routine months after covid somewhat blew my mind. I didn't want to be poorly for so long. however have learnt the hard way that if I try to push through it screws everything up. Then to have a second albeit very mild version of covid put me back again but new and different symptoms.
Gez - you always nail it - Thank you so very much - I was once told by a GP to stop being so introspective 😡🤷🏼♀️🙏👏👏👏👏👏
Haha, thanks Dee!
Yes, been told “probably anxiety” but it’s my firm belief that the anxiety is a symptom of a problem. There’s something else going on creating several symptoms including - very occasionally- anxiety. So far no medical provider can figure it out, we’re just managing symptoms (occasional insomnia, tingling in lower legs and sometimes abdomen, tinnitus, muscle soreness, a weird fatigue after workouts, anxiety and occasional lightheadedness).
Started since 2020 Aug.. Pressure headache daily.. Cough on off.. Breathlessness.. Balance problem.. Tiredness.. Now the intensity is lesser but not gone.
How do you know for sure you have long covid or ME/CFS?
Diagnosis is done from symptomatic presentation - we don’t have a diagnostic test yet
Brilliant Gez… you speak just like a doctor.. amazing and agree with all you have said..
Thank you Jo!
Thanks this is helpful, something I can share with my friends and family.
I really need help.. I got Covid 12/2020 i had every symptom of LC in the book. The symptoms i have left is cognitive/neuro/gastro issues. I haven't been able to work since. I'm mentally exhausted all the time, can't concentrate or focus too long, and i can't handle stress anymore. This mental exhaustion seems to calm down in the evenings and i feel almost normal from 12am-2am, best time i have mental clarity. I can push through and go for walks and cycling with no issues so i don't think i have PEM. I do feel better laying down doing nothing though. As for Neurological i think i have Neuropathy on my right leg, i get weird sensation to my foot when i touch my inner right thigh, and the right side of my chest and forehead is always tight and tense, also right ear tinnitus. As for gastro issues, i always have soft stool, looks like i'm not absorbing fats. All blood work normal except Pancreas enzymes was moderately low. MRI show all abdomen organs normal. Gastro doc thinks it's stress. All this makes me believe i have high cortisol levels or spike during the day. or i have some type of adrenal issue. I want to work and support my family. I'm in the U.S.
Weird have same symptoms at least some. Same issue with midnight to roughly 3 am I feel somewhat fine. At least 90%. But during the day is hell.
@@jessemendoza2991 Yeah 12-3 but i usually fall asleep at 2. This thing sucks man.
If SARS COV2 better replicate at low tissue temperature,(?) that say Christian Drosten at TWiV 659 at min29,may be analgezic antipiretic drugs enhance capacity of SARS COV2 to persist(?)
Dealing with sob, raging panic and feeling like I'm hyperventilating many times a day .Almost wish I could go back to 2020 when I had sooo much brain fog I couldn't feel my breathing,or anxiety lol
Has anybody tried Dr. Sinclair‘s protocoll NMN/Resveratrol/TMG? I have started a week ago, l think it is too soon to expect any positive change…all the best to all of you❤
What is MECSF? I am a nurse and following you as a reliable resource. In the U.S. there is only rare recognition of long covid. There is rare recognition of all post covid symptoms. As a nurse I am seeing an increase in dementia, cancer and clotting disorders /c CVAs in younger men. There is no recognition of spike protein as the instiginator. Selling "immunizations" is the primary goal. Are healthcare providers rewarding $$ for vaccinating patients? In over 35 years of work in health care I have given more Midodrine in the past year than the previous 29 years.
Thank you very much for sharing your thoughts on pacing. I really learned a lot from this conversation.
I spent five months in bed, have always been workaholic and very active (at least one hour of exercise a day, on my month -long summer vacation 3-4 hours a day, swimming, exercise bike, walking, kayaking). Am fortunate to have few symptoms, fatigue (which was so tremendous at first I felt like I was melting into my mattress, really distressing) and depression (which I had a hard time identifying since I've never felt it before, I've always been very emotionally volatile and intense but generally a very happy person). Brain fog and dizziness lasted about three months, thankfully are gone (maybe had some panic attacks or perhaps it was just a rational fear of the dizziness/inability to focus on the screen,etc). Having a doctor daughter has done nothing for me, she points out I was "never tested"...But thanks to Gez and others I'm helping her to get informed. For the first few months I told my husband (who has taken care of me, and of the dogs we rescue, rehabilitate and re-home) that I could not possibly continue to live like this. Now I'm gradually getting better, my days range between 2 percent of my old normal energy level to maybe 20 percent on a great day - after which I crash obviously. Huge relief to find this channel, very validating, and also scary to hear how long this lasts for so many people. Thanks Gez, you're the best! Good luck everyone!
February 2020 post ER visit where a young man came in coughing his head off. I was wearing two hospital masks cause i am a germaphobe. A week later sore throat fever upper respiratory distress first week. Doc gave me a z-pac and sent me packing saying I had a cold. 5 weeks bedbound, difficulty breathing called doc and asked for a covid test. Doc denied me and said i had the flu. I was bed bound frequently for two years. Saw a pulmodoc in April 2022 that put me on steroids. And trelogy puffer to reduce lung inflammation. I have asthma, sleep apnea and hashimotos which i thought hashimotos was the culprit-for fatigue, breathless. New primary doc told me to force myself to exercise. I couldn't walk throughout the house without breathing heavy before steroids. Disgusted with most docs. Pulmonary doc heard me and believed me helped me. I still get tired but i can get a bike ride in for two miles but back with a lay down post bike ride. Im pushing 70. Im also a bit scared to get my 5 th booster. I wear my n95 in grocery stores and will continue to do. I use a stool to cook and wash dishes. Thank you for validation on moving slower. I would beat myself up for being lazy. I was never lazy. Single parent that was a multi tasking workaholic plus highly active, rollerblading into my 60's for hour to 2 hours, swimmer nordic tracker to shutdown during the last two years plus. Gratitude shout out
Got COVID in 2020. Still sick. So tired. I'm miserable
You’re not the only one Nick :(
You're not Robinson Crusoe. Try some micronutrients that help the mitochondria such as Niacin vitamin C co Q10 etc.
Has anybody tried mushroom supplments? A mix of lions maine, shitake etc
What about reminens in the lungs, train it away or let time do it, heard different approach to this matter .!?
Good question
I call Long Covid my little alien 👽 it came to me 17th March 2020. Hasn't gone away yet.
ArtemiC Rescue is used for Covid Short, and ArtemiC Support is used for Covid Long. Ordered online on the shop and shipped worldwide.🤑🤑🤑
I have ME; which I was managing fairly well until I got Covid. Now I have LC. My lateral flow remains positive 6 months on from the original infection!!! My gut feeling is persistent viral infection is at the root of my M.E. and also LC but what shocks me more than anything is the lack of interest shown by any medical professional I mention this to!!!! I’m totally baffled by this. I’d happily get involved in a scientific study which had the potential to help everyone who has to endure LC and or ME/ CFS.
This mad that you’ve still got positive lat flows 6 months on - you are clearly not managing to clear the virus. Even more mad that your docs aren’t trying to help.
all post viral conditions are caused by low atp levels and are easily healed ina day ,take 4 x 1000mg caps liposomal vit c every hour for 12 hours day do that each day until healed ,withina couple of hours the immune system will calm right down thats the end of any virus or post viral condition ,this is the end of symptoms and the end of low energy levels ,this will heal any post viral condition in hours ,safely ,you cannot overdose on high dose lipsomal vit c .the reason you are totally baffled is you are not a biological systems engineer trained o the 5 box immune system ,healing post viral conditions and cancers is bread and butter to me they are easily healed
Hey, can you post a link to the survey on UA-cam? Some of us stay off of twitter, I like the sanity I have left.
Let me see if I can manage that - UA-cam comments don’t like links!
@@RUNDMC1 or post a short video with a link in the description.
Or even a different link and see if the there is a different response structure from those who stay off of twitter. ie same questions different survey
So sorry for all those suffering with long covd.been a yr.& half& it's been hell .I'm 81.❤❤❤❤❤😮😮😮
Brilliant. I can't wait to listen to the upcoming audiobook. I've thankfully recovered but I'm still fascinated by long covid because I can honestly say it's the worst thing I've ever gone though.
How long were you suffering for Chris? Make any changes you think contributed to your recovery?
@@RUNDMC1 just before the 6 month mark I would say I'd recovered. I did the usual things like ivermectin and fluoxetine but by far the turning point for me was breath work and watching recovery stories (and deleting my reddit, Facebook and Twitter accounts which were keeping my brain in a state of fear). I believe part of long covid is tension myositis syndrome and the solution is to gradually desensitize your nervous system. The same paradoxical techniques which treat conditions like panic disorder (accepting and allowing symptoms while very gradually increasing activity) can calm the mind then the body will follow gradually. I've noticed that the people who recover seem to believe that this is possible. I couldn't seen to wrap my head around it however until I totally stopped visiting long covid forums. I still have an occasional "echo" of symptoms but it quickly resolves itself within hours or even minutes now where before it would have taken days if I overdid it physically or mentally. Rachel Whitfield's long covid blog was especially helpful and would be a good place to start if someone is open to the mind-body connection as a possible solution.
all post viral conditions are healed in hours ,aids ,me ,cfs ,long covid are all caused by low atp levels ,message me be prepared to spend 20 quid ,i healed a long covid patient today ,within 2 hours of taking the first couple of doses the immune system calmed down thats the end of any post viral condition ,22 months of hell ended in hours
What I don’t understand is, no high profile athletes are suffering from long covid? I’ve heard of a few cases but considering how many footballers there are on the planet, it’s been next to none affected. Does sustained intensive cardio then play a role? I’ve not played sport or done much cardio in the last year and still suffering neurological symptoms now five months post infection. I’m going to begin increasing cardio and see if there’s any improvement.
One word: stigma. They won’t go public with it. But Aguero retired due to Covid. Plenty of high profile players have suffered, and lots of runners and other sports people too.
@@RUNDMC1 Yeah that’s a good point, I just thought there would be a bit more noise about it.
In February I saw Hugh Jackman live, and he looks like he is suffering from LC. The stigma is real.
@@melanieolmsted6740 Dave Navarro is sitting out the Jane's Addiction tour because of long covid.
Excellent answer. I think those players are going to have subpar seasons and some won’t even know why. There will be more injuries. I’d be interested in the numbers, stats/retirements/etc.
2:30 same in Sweden, IF you get too see the same doctor the mabey think something else. But when you start too argue about why one self dont have Anxiety etc, they interpret it as you are quiet healthy, and improving, and therefore its better to send you home, for more rest instead of sending one to the specialist. Nightmare-
Oh and thanks for your answers that you could provide it must have been exhausting for you to make the video I could tell half way into it you looked stressed thank you will watch other video
Super appreciate all your work! Buying the book, your channel has been super helpful in my LONGCOVID journey! Your work is having an impact thank you!
That makes all the difference to hear that :) (helping the journey, that is - although I hope the book helps some more!)
you do realize aids ,me ,cfs ,long covid are post viral conditions that can be healed in hours ,i healed a long covid patient this morning,22 months of hell ended in hours ,safely ,message me and i will tell you what to do ,be prepared to spend 20 quid ,take no advice from gez he has long covid and is vaccine injured ,he cant help himself ,the toxic spike protein is killing him,that can be removed easily ,his book isnot worth wiping your arse on ,
Hi Gez, I've been enjoying your videos. Do you know of any studies on vaccine reactions? I became ill last April several months after my booster shot. I've been dealing with chronic fatigue type symptoms ever since. I ended up with Covid in July but now I'm on 7 months of CFS symptoms. Just curious if anyone has come upon longterm vaccine reaction studies. Keep up the great work.
I’ve done a couple of them - have a scroll down through my videos!
What helped me is being around nature {forest bathing} it's also good for the gut and our well-being. watching what I eat. Try to keep a stress-free lifestyle. I started grounding/earthing read it's good for inflammation and your whole well-being. Just take your shoes off on the grass. You feel the energy of the ground. I feel so relaxed afterward.
Hey Gez what do you think about the dr Paterson treatment..?
Difficult to get hold of in the UK!
@@RUNDMC1 They are opening a lot of blood draw places in the Uk for IncellDX..Bruce Patterson theory and treatment sounds like a good one.. ? No..? Do you know some people that did it or are doing the treatment..?
its nonsense dr paterson knows nothing about the 5 box immune system ,all post viral conditions can be healed in hours,aids me ,cfs ,long covid are all caused by low atp levels i healed a long covid patient today within a couple of hours of taking the first couple of doses the immune system calms down this is the end of any post viral condition,22 moths of hell ended in hours ,he has spent over 70000 quid on useles protocls ,20 quid to overturn any post viral condition in hours