Treating the brain in pelvic pain - with Dr Sandy Hilton
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- Опубліковано 11 січ 2019
- HI! If you want to know more + find the links that we mention have a look at the blog that goes with this video www.jillybond.com/2019/01/18/929/
If you're a physio and want to join me on The Happy Bladder Course to learn more about how to apply these principles in your treatment have a look at the dates for courses here: www.JillyBond.com/courses
I'd love to hear your thoughts and feedback - have you seen my Facebook page?
This is such a brilliant conversation!
Thanks so much for this! Pure gold!
I have been a patient of Dr Hilton’s in Chicago. She’s a brilliant therapist.
When my pelvic floor issues really came to a head and I was trying to find a way to sit comfortable I tried a yoga ball and it causes major stabbing abdominal pain. It turned out I had endometriosis and extensive fibrosis connecting my cervix to the uterus and bladder. My uterus and bladder were completely fussed with fibrosis. The fibrosis had filled my retroperitoneal cavity and encased my ureter. So no wonder it hurt to sit on something that was putting upward pressure on my pelvic organs! Surgery has made things so much better but 18 months out I'm still working daily to manage symptoms. I've had 2 rounds of Botox and pudendal nerve blocks. I've gotten better with ups and downs and we are figuring out pain drivers but I can say that managing pelvic floor symptoms is the major focus of my life. It makes it hard to have enough energy for everything. My "better" is having a life that doesn't revolve around keeping things "down". I'm both extremely hopeful and full of fear that this won't become more manageable.
I just realized that I started watching this 3 years ago and probably found it very triggering because I was in the middle of severe unexplained pelvic and abdominal pain and working on increasing tolerance was not at all something that was relevant to me. I was sitting and being active and losing things slowly as the pain worsened. However, I had disease progression happening and significant physiological problems causing the pain. However this is exactly what I need now that I've had surgery and am trying to unlearn and unwind all of the things my mind and body did to protect me from that disease. So if you are in acute pain and don't know why and this is triggering and feels like they don't understand, then try and have hope that there is another side where this will be useful. I am 100% positive that these providers can point you in the direction of other providers who can identify and treat the source of your pain, such as endometriosis, adhesions from C-section, etc.
@Jolly Bond may I ask the name of the textbook you reference at around the 40 min mark?
what is the name of the textbook you mentioned? is it anatomy and physiology?
Hi, my main problem is frequent urgency. I have seen a Pelvic Doctor and going to PT right now. I just started trigger point therapy but i can’t tell if i’m seeing results (started trigger point injections 1.5 weeks ago and PT 3-4 weeks ago). Any advice?
How you doing lately - did things improved?
I was told by my doctor to definitely not sit on anything but my donut hole pillow and basically stand as much as possible. Diagnosed with pudendal neuralgia. Would love to know if it’s really safe to just sit on an ordinary chair without injuring myself Yes? No? Don’t know if you might be including my diagnosis in this discussion..
Would like an answer for this too please :)
What is the name and author of the book mentioned?
hi I'm having pelvic pain as well
Where abouts in UK are you
I've got heal pain as well
Hey I think you’ve gone too far down a very particular line of reasoning without factoring the very real pain that establishes and shapes these behaviours as perhaps more negligible than manageable. I was a an active, innovative, willing and open person when it came to facing discomfort and experiencing significantly more pain by putting myself out of my comfort zone by continuing to work, changing diet, lifestyle, outlook and treatment plans, modalities or programs but pain and disability persisted for 9 year’s irregardless. I would posit that mine and some others experience can actually be part of an adverse reaction to ciprofloxacin (in my case) and other medical injuries but will never really know for sure what happened. I suffered and recovered for no apparent reason. It’s way too easy to make all sorts of informed and uniformed perspectives about phenomena for which we have no direct experience. You come from a theoretical position while confusing this for reality without calibrating the gap between your own understanding and another’s experience and come across as glib.
Your comment isn’t really helpful for anyone and may be more damaging.
I completely understand where you are coming from, especially considering how much medical gaslighting we all experience. I didn't get the impression that they were dismissing pain like so many providers. Instead they are helping people have a full life while living with pelvic pain. What can you safely do with the pain you have currently while we also focus on correcting the dysfunction for long term relief. I can totally understand how this feels like ignoring people's pain when all you've had is doctors deny your experience. However they are doing the opposite by acknowledging your pain and working on what hurts and how as how can we start healing and regaining function based on exactly what is going on in your body. I hope you find good providers who bring you relief.
I think they are coming at this from the assumption that the source of the pain has been identified and addressed. Surgery has happened, etc. Your experience really seems to mirror mine and I hope you've found a provider that helps you. I went 35 years being told my issues were either normal or untreatable until perimenapause brought everything to a head and I spent 18 months fighting to find doctors who believed me, believed I could get better, and had the skills to do it. Keep fighting for your quality of life.