You are so strong for making this video and let me tell you that this video is very encouraging. MRKH is a very hard thing to process and live with. I can only imagine what it must be like for you. I also suffer from MRKH was diagnosed officially when I was also 18 years old I am now 24 and I am still learning how to cope. You are not alone! Thank you for sharing your story! ❤
It brings me so much joy to know my video has brought you encouragement. I am honestly still learning to cope myself. With every day we get stronger. Please know you are also not alone. Thank you for the support!
Hey girl! I just came across your video & I loved it! I also have MRKH. I got emotional watching your video as it brought up so many memories & rough moments I forgot about. It’s not a bad thing, so I want to thank you! I went to go check out your channel & realized somebody gave you a shout out in one of the MRKH groups I’m in on Facebook! ❤️
I also have Mrkh I found out 12 years ago when I was 18 I still struggle everyday but watching your video I know I’m not alone never met anyone with the condition I had no help from doctors it was so poorly done I was told I couldn’t have children then that was it I had to research it myself. I’m married now but everyday I’m terrified he will resent me one day
I literally felt the same way when I found out, at the time I didn’t care or worry about the possibility of not carrying my own child. Now that I’m older it’s something I think about ever single day. Just know you’re not alone girl! I just filmed a video about my experience with MRKH too if you wanna check it out!!
Girllllll I love you and I see you. I HAVE MRKH (MULLERIAN AGENEISIS) also. It took me awhile to be comfortable speaking on it as well. Our journeys to discovery are slightly different I have the upper canal just slightly shorter ovaries nothing else. Dilators worked for me but I see that struggle I know your pain same, same but different. Your video resignated and your strength is great. I'm able and comfortable with it now, and able to achieve the O but there is a lot of misconstrued opinions like it's not hard enough and it effects me daily. I didn't seek therapy but should've. Your strong and beautiful and I wish you the best
MRKH is such a demanding issue..I don't know how one can get through this on her own. Its so nice of you to share your condition with others. As this might be such an isolating path..People are hardly aware unless the issue affects their own life. I wanted to thank you for creating this video. Will definitely recommend it to a friend of mine who has MRKH type 2 and is currently undergoing surrogacy to have a child.You are very upfront and honest about this. May God bless you!
I'm sorry to hear this..Your friend must be lucky to have you by her side!! As far as I know, type 2 MRKH is too tricky..And moreover, ladies have to pass surrogacy in case they want to have kids..IVF won't work for many..I'm glad your friend has made the decision, may god help her on the way. Where did she go?
You are an inspiration to not just women but everyone around the world. You are a fighter, keep fighting. I love you so much and am very proud of you for doing this. Love you big sis
Thank you for being open with your diagnosis. I was “diagnosed” with it at a young age as well. I def understand that exclusion feeling and it sucks especially when everyone around are starting to have littles. The dr. Didn’t say much after saying I have no uterus…I just found out I have uterine fibroids a day ago. You can only get them when you have one…How idk, but I’ll be finding out soon. Go keep getting tested because mines didn’t show and for some reason it has…
I'm happy for you....I kinda envy you for this, you're a strong woman, I recently just had a pelvic Altra sound and they couldn't find anything.....I go back Wednesday to get my true results but I truly believe I have this as well.....I'm scared even commenting lol but you let me know that I'm not alone and I had to let you know the same, I wish you the best 💜💜
I also have scoliosis and deaf in my right ear.....and of course no periods and I'm 21....you kinda have me wanting to do a video as well just to put out awareness but ehhh😭, again much love 💜
Thank you so much!! I hope all goes well Wednesday. This can be a very overwhelming process but no need to be scared. Like you said you are not alone. Ik it sounds cliche af lol but I really am here if you need to reach out. Appreciate your comment and support with my video🙌🏾💪🏾💕
@@zaddytori8124 You should!! I watched your video so ik you're not shy in front of the camera lol. Making my video helped me heal but ik it takes a lot to put something so personal out. Just think on it. Thanks again for the support 💕
Thank you for sharing your story.. I've never known about MRKH before actually met a woman who's become a cloe friend of mine and who turned out to be MRKH sufferer too. Since then I started doing research on the point. And th every first thing I read was sth like 'Women who suffer from the condition either have an underdeveloped vagina and uterus or these structures are absent altogether. In the majority of cases, affected women do not have periods and a lack of menstruation by age 16 is often the first symptom of the condition. Women with MRKH syndrome do have normal, functioning ovaries and can still have children with the help of assisted reproduction..' The latter gives hope there MIGHT BE the solution for every case. My friend is currently looking onto surrogacy, since her dh wants genetically related kids. It's hard to understand the pains you're going through, MRKH ladies. May god help all of you.
Not everyone knows that ladies diagnosed with MRKH havevaginal agenesis, which refers to an absent or incomplete vagina. The uterus is very small or absent and the cervix is also missing. It’s important to understand that young women with this syndrome are just like others. I mean they have normal ovaries and experience puberty without having periods. MRKH is a syndrome that may or may not be associated with missing one kidney, skeletal, and hearing problems..Though those definitely affect the women's lives..I believe your friend has made a great decision turning to surrogacy. There are lots of options nowadays and still some perfect destinations. It's known that Ukraine has become very popular. And it's understandable why.
@@jerceygleam4940 I know somebody who hasn't had such a ''joyous'' experience with MRKH. She's 36 and watching all the other friends and family members carry children and then give birth to them. It is a constant reminder that the world chose differently for her..she says. With no explanation given. She's closed her fb account because she told she's got so incredibly jealous that these people all around pop out kids left and right and she can't!! Poor thing she was diagnosed almost 20 years ago when doctors had very little information in the way of what to do. Now they grow vaginal tissue...and do all kinds of reconstruction. There are things like IVF and surrogacy..donor egg and mitochondrial donation..
@@nickeyn675 That is the worst feeling ever. I was much like your friend. For ten years I had no social media because I just couldn't deal with the constant reminder of my "abnormality". Please continue to be in her corner with uplifting and encouraging words.
A very emotional video! Additionally, any desire to be with a man comes with the dreaded conversation about how different things are with body... than with most women. I know somebody who was diagnosed almost 20 years ago when doctors had very little information in the way of what to do. Now they grow vaginal tissue...and do all kinds of reconstruction. There are things like IVF and surrogacy. I believe all this helps to remain more optimistic..Wishing you all the very best ahead!
Hi, I'm new to all of this. I ended up doing research on my own and came up with this conclusion. I have an appointment scheduled for this week to get it confirmed. I've also suffered from scoliosis (I have a severe case, had Harrington rods placed). I'm now 24 years old and I noticed that I didn't have a period, but I wasn't really concerned. I didn't start to worry until I attempted to have sex and I was told that there was a wall. Thank you for your video, I can't wait to learn more about the surgery options, how did it go for you?
Surgery went well for me. The recovery was difficult the first few weeks. The dilating process is the hardest part. My one year mark just passed and I can honestly say I have no regrets. I have scoliosis too and also had to get the rods a few years back. It sounds like you may have Type 2 MRKH. Sry for the late response, I hope your appointment went well and you were able to get more clarity.
hey i just got diagnosed with it yesterday (im 16) and i have no idea like what to do going forward, like physical thearpy and surgery or anything, do you have any advice going forward.
Pour celles souffrant de MRKH, ce n'est pas une fatalité. Grâce à la science elle peuvent devenir maman soit à travers une greffe d'utérus, soit la GPA. Moi par exemple, ma fille est née grâce à la mère porteuse du groupe de reproduction humaine de Feskov. J'étais très inquiète, je pensais même qu'elle ne me ressemblerait pas, mais quand je l'ai vue, j'ai réalisé que c'était le plus beau cadeau que la vie m'avait fait.
Wyeshia Borden Please do. I’d love to hear it. If you don’t want to share publicly feel free to email me at mrkh.kiaray@gmail.com Thank you so much for the support. Hope to hear from you soon💕
You are so strong for making this video and let me tell you that this video is very encouraging.
MRKH is a very hard thing to process and live with. I can only imagine what it must be like for you. I also suffer from MRKH was diagnosed officially when I was also 18 years old I am now 24 and I am still learning how to cope. You are not alone! Thank you for sharing your story! ❤
It brings me so much joy to know my video has brought you encouragement. I am honestly still learning to cope myself. With every day we get stronger. Please know you are also not alone. Thank you for the support!
Thanks - this video is really encouraging
You are not alone!!, Thank you for this video girl, you are amazing !!!!!!!
You are the amazing one!! Glad to know I don't stand alone. Thank you for the support!
Hang in there sista. Thank you for sharing with the world. You honesty is moving. May you be happy, wishing you love and happiness.
Thank you so much for the support and kind words. 💕
Hey girl! I just came across your video & I loved it! I also have MRKH. I got emotional watching your video as it brought up so many memories & rough moments I forgot about. It’s not a bad thing, so I want to thank you! I went to go check out your channel & realized somebody gave you a shout out in one of the MRKH groups I’m in on Facebook! ❤️
You’re welcome and thank you as well for watching and supporting my videos. Brings me joy knowing I’m not alone💕
I also have Mrkh I found out 12 years ago when I was 18 I still struggle everyday but watching your video I know I’m not alone never met anyone with the condition I had no help from doctors it was so poorly done I was told I couldn’t have children then that was it I had to research it myself. I’m married now but everyday I’m terrified he will resent me one day
I literally felt the same way when I found out, at the time I didn’t care or worry about the possibility of not carrying my own child. Now that I’m older it’s something I think about ever single day. Just know you’re not alone girl! I just filmed a video about my experience with MRKH too if you wanna check it out!!
AslinNieshel Yess thank you for the support. I will definitely go check your video out. MRKH will not defeat us! 💕
Girllllll I love you and I see you. I HAVE MRKH (MULLERIAN AGENEISIS) also. It took me awhile to be comfortable speaking on it as well. Our journeys to discovery are slightly different I have the upper canal just slightly shorter ovaries nothing else. Dilators worked for me but I see that struggle I know your pain same, same but different. Your video resignated and your strength is great. I'm able and comfortable with it now, and able to achieve the O but there is a lot of misconstrued opinions like it's not hard enough and it effects me daily. I didn't seek therapy but should've. Your strong and beautiful and I wish you the best
MRKH is such a demanding issue..I don't know how one can get through this on her own. Its so nice of you to share your condition with others. As this might be such an isolating path..People are hardly aware unless the issue affects their own life. I wanted to thank you for creating this video. Will definitely recommend it to a friend of mine who has MRKH type 2 and is currently undergoing surrogacy to have a child.You are very upfront and honest
about this. May God bless you!
I'm sorry to hear this..Your friend must be lucky to have you by her side!! As far as I know, type 2 MRKH is too tricky..And moreover, ladies have to pass surrogacy in case they want to have kids..IVF won't work for many..I'm glad your friend has made the decision, may god help her on the way. Where did she go?
Thank you so much. You are correct MRKH is very demanding, and it never stops just moves from one stage to the next.
You are an inspiration to not just women but everyone around the world. You are a fighter, keep fighting. I love you so much and am very proud of you for doing this. Love you big sis
Camryn Riley Omg thank you so much Cam!!! Just brought tears to my eyes 😭 I love you more baby bro 💕
Thank you for being open with your diagnosis. I was “diagnosed” with it at a young age as well. I def understand that exclusion feeling and it sucks especially when everyone around are starting to have littles. The dr. Didn’t say much after saying I have no uterus…I just found out I have uterine fibroids a day ago. You can only get them when you have one…How idk, but I’ll be finding out soon. Go keep getting tested because mines didn’t show and for some reason it has…
Hey , I watched till the end , it was so relatable 😭 , if you wanna talk I’m here !
Narimane Mz like wise 💕
Hi dear sister im also MRKH i have sad story' too hope u always get happiness in this world
Thank you. Wishing you healing and happiness as well sis!! I’m always here if you want to share your story 💕
Maybe i can share in email...so can u send me ur email address?
I'm happy for you....I kinda envy you for this, you're a strong woman, I recently just had a pelvic Altra sound and they couldn't find anything.....I go back Wednesday to get my true results but I truly believe I have this as well.....I'm scared even commenting lol but you let me know that I'm not alone and I had to let you know the same, I wish you the best 💜💜
I also have scoliosis and deaf in my right ear.....and of course no periods and I'm 21....you kinda have me wanting to do a video as well just to put out awareness but ehhh😭, again much love 💜
Thank you so much!! I hope all goes well Wednesday. This can be a very overwhelming process but no need to be scared. Like you said you are not alone. Ik it sounds cliche af lol but I really am here if you need to reach out. Appreciate your comment and support with my video🙌🏾💪🏾💕
@@zaddytori8124 You should!! I watched your video so ik you're not shy in front of the camera lol. Making my video helped me heal but ik it takes a lot to put something so personal out. Just think on it. Thanks again for the support 💕
I know wym and same to you love💜
Thank you for sharing your story..
I've never known about MRKH before actually met a woman who's become a cloe friend of mine and who turned out to be MRKH sufferer too. Since then I started doing research on the point. And th every first thing I read was sth like 'Women who suffer from the condition either have an underdeveloped vagina and uterus or these structures are absent altogether. In the majority of cases, affected women do not have periods and a lack of menstruation by age 16 is often the first symptom of the condition.
Women with MRKH syndrome do have normal, functioning ovaries and can still have children with the help of assisted reproduction..' The latter gives hope there MIGHT BE the solution for every case. My friend is currently looking onto surrogacy, since her dh wants genetically related kids.
It's hard to understand the pains you're going through, MRKH ladies. May god help all of you.
Not everyone knows that ladies diagnosed with MRKH havevaginal agenesis, which refers to an absent or incomplete vagina. The uterus is very small or absent and the cervix is also missing. It’s important to understand that young women with this syndrome are just like others. I mean they have normal ovaries and experience puberty without having periods. MRKH is a syndrome that may or may not be associated with missing one kidney, skeletal, and hearing problems..Though those definitely affect the women's lives..I believe your friend has made a great decision turning to surrogacy. There are lots of options nowadays and still some perfect destinations. It's known that Ukraine has become very popular. And it's understandable why.
@@jerceygleam4940 I know somebody who hasn't had such a ''joyous'' experience with MRKH. She's 36 and watching all the other friends and family members carry children and then give birth to them. It is a constant reminder that the world chose differently for her..she says. With no explanation given. She's closed her fb account because she told she's got so incredibly jealous that these people all around pop out kids left and right and she can't!! Poor thing she was diagnosed almost 20 years ago when doctors had very little information in the way of what to do. Now they grow vaginal tissue...and do all kinds of reconstruction. There are things like IVF and surrogacy..donor egg and mitochondrial donation..
@celesta rimble Thank you so much. Please continue to be there for your friend. She is very lucky to have your support!
@@nickeyn675 That is the worst feeling ever. I was much like your friend. For ten years I had no social media because I just couldn't deal with the constant reminder of my "abnormality". Please continue to be in her corner with uplifting and encouraging words.
I’ve hidden it too 😞 still am tbh 😞
Narimane Mz Up until this past week I was too. I definitely understand. You will share when you’re ready no need to rush.
A very emotional video! Additionally, any desire to be with a man comes with the dreaded conversation about how different things are with body... than with most women. I know somebody who was diagnosed almost 20 years ago when doctors had very little information in the way of what to do. Now they grow vaginal tissue...and do all kinds of reconstruction. There are things like IVF and surrogacy. I believe all this helps to remain more optimistic..Wishing you all the very best ahead!
Thank you so much. I'm definitely trying to stay optimistic throughout this process.
Hi, I'm new to all of this. I ended up doing research on my own and came up with this conclusion. I have an appointment scheduled for this week to get it confirmed. I've also suffered from scoliosis (I have a severe case, had Harrington rods placed). I'm now 24 years old and I noticed that I didn't have a period, but I wasn't really concerned. I didn't start to worry until I attempted to have sex and I was told that there was a wall.
Thank you for your video, I can't wait to learn more about the surgery options, how did it go for you?
Surgery went well for me. The recovery was difficult the first few weeks. The dilating process is the hardest part. My one year mark just passed and I can honestly say I have no regrets. I have scoliosis too and also had to get the rods a few years back. It sounds like you may have Type 2 MRKH. Sry for the late response, I hope your appointment went well and you were able to get more clarity.
Do you have your overies and fallopian tubes?
hey i just got diagnosed with it yesterday (im 16) and i have no idea like what to do going forward, like physical thearpy and surgery or anything, do you have any advice going forward.
Please ask your parents to seek multiple opinions
mrhk
Pour celles souffrant de MRKH, ce n'est pas une fatalité. Grâce à la science elle peuvent devenir maman soit à travers une greffe d'utérus, soit la GPA. Moi par exemple, ma fille est née grâce à la mère porteuse du groupe de reproduction humaine de Feskov. J'étais très inquiète, je pensais même qu'elle ne me ressemblerait pas, mais quand je l'ai vue, j'ai réalisé que c'était le plus beau cadeau que la vie m'avait fait.
Ft
Hey I would like to share my story with you
Wyeshia Borden Please do. I’d love to hear it. If you don’t want to share publicly feel free to email me at mrkh.kiaray@gmail.com Thank you so much for the support. Hope to hear from you soon💕
Be happy you dont have the cycle.
Clearly you don't have mrkh, because I do and would give anything to have the cycle
can i have ur fb id please? wanna ask u something
Sad
No kids