How to Start and Run a Parkinson's Support Group

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In this video, Davis Phinney Foundation Ambassadors share tips on how to design, start, manage, and nurture a Parkinson’s support group. Whether in-person or virtual, co-ed or gender-specific, or general or topic-specific, these facilitators and people living with Parkinson’s have lots of ideas and lessons to share.
Want to learn more about the Ambassadors featured in this video, you can connect with them here: davisphinneyfoundation.org/am...
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Time Stamps:
0:00 - Introduction
9:16 - Logistics of support groups
10:58 - How to recruit
13:30 - Having a website for your group
15:49 - Different kinds of Parkinson’s groups
17:13 - Challenges that leaders might face (and strategies to overcome)
24:12 - What to do with difficult questions
28:54 - Games and icebreakers
32:44 - More on recruiting members
38:49 - Creating a safe space and confidentiality
40:22 - Handling difficult situations in a group meeting
44:35 - What have you personally learned from leading groups?
50:45 - Which organizations can help
51:30 - Conclusion

[@splashesin8]

😄I need to get with the program around here. I love that "let's make serotonin together" idea! 💕🌸

[@davisphinneyfdn]

Right? I love that idea:)

[@allentrembath6911]

I need a support group around Somerset Pa.

[@davisphinneyfdn]

While we don't host support groups, we do have five ambassadors in Pennsylvania who might be able to help you find a group. You can find these ambassadors here: davisphinneyfoundation.org/ambassador-search/
You might also try the APDA to see if they have a group in your area: www.apdaparkinson.org/community/pennsylvania/

[@abasicservice1com]

My Parkinson’s disease support group, Parkinson’s thiamine hcl , is 42 members short of ten thousand members. Our group is member organized and operated. No subscriptions. Free.